Mortality in Correctional Institutions: ICD-10 Diagnosis Codes for Natural Deaths Occurring in State Prison or Local Jail Custody, 2000-2019 (ICPSR 38671)
Version Date: May 15, 2023 View help for published
Principal Investigator(s): View help for Principal Investigator(s)
United States. Bureau of Justice Statistics
Series:
https://doi.org/10.3886/ICPSR38671.v1
Version V1
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Summary View help for Summary
The Mortality in Correctional Institutions (MCI) collection was collected annually by the Bureau of Justice Statistics (BJS) from 2000 to 2019 from the approximately 2,800 local adult jail jurisdictions nationwide, and from 2001 to 2019 from the 50 state departments of corrections. The MCI obtained national, state, and incident-level data on persons who died while in the physical custody of state prisons and local jails. The MCI began in 2000 under the Death in Custody Reporting Act of 2000 (P.L. 106-297), and continued after the law was reauthorized in 2014. BJS used MCI data to track national trends in the number and causes (or manners) of deaths occurring in state prison or local jail custody. The MCI collected data about the characteristics of the decedents as well as circumstances surrounding the death, including the cause, time and location where the death occurred, and information on whether an autopsy was conducted and the availability of results to the respondent. This data collection is comprised of two datasets (one prison, one jail) that contain all deaths from 2000-2019 with the illness (also known as natural) deaths assigned ICD-10 diagnosis codes when possible. Data on executions and deaths of persons in the custody of federal, state, and local law enforcement agencies not acting in a jail capacity were considered out-of-scope for MCI. More details on the collection, survey instruments, and publications using the MCI data can be found at the BJS website: Mortality in Correctional Institutions (MCI) (Formerly Deaths in Custody Reporting Program (DCRP)) | Bureau of Justice Statistics.
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Geographic Coverage View help for Geographic Coverage
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state
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Access to these BJS-sponsored data is restricted. Users interested in obtaining these data must complete a NACJD Restricted Data Use Agreement available from the ResearchDataGov website, specify the reasons for the request, and obtain IRB approval or notice of exemption for their research.
Restricted Data Use Agreements available on the NACJD website are provided for reference only. Please visit the ResearchDataGov website to download the appropriate Restricted Data Use Agreement and submit your request. Once approved, data may be accessed from a requester secure site via ICPSR's secure download procedures.
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Date of Collection View help for Date of Collection
Data Collection Notes View help for Data Collection Notes
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The ICD-10 codes presented in this collection are diagnosis codes, not procedure or billing codes, and as previously stated, should not be interpreted as the sole medical condition suffered by the decedent at the time of death. ICD-10 diagnosis codes consist of a letter followed by a 2-digit number that can range from 00 to 99. Additional numerical digits after the first two digits represent modifications or specifications to the condition designated by the first two digits, and are offset by a decimal. The ICD-10 codes in the MCI data are presented without decimals. If the MCI ICD-10 diagnosis code consists of a letter and a 2-digit number, there were no modifications or specifications associated with that condition in the text provided by the respondent. For 3- and 4-digit numbers, users should place the decimal point between the second and third number. For example, C22, C220, C223, C227, and C229 would all refer to a malignant neoplasm of the liver, but the additional digits were assigned when a respondent gave greater detail: C22.0 refers to liver cell carcinoma; C22.3 refers to angiosarcoma of the liver; C22.7 refers to other specified carcinomas of the liver; and C22.9 refers to malignant neoplasm of the liver which is not specified as primary or secondary.
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Prior to 2015, only natural or illness deaths consistently were assigned ICD-10 diagnosis codes in the MCI collection. Unnatural deaths, including suicide, homicide, accidental injury and accidental intoxication, were assigned ICD-10 codes sporadically if enough descriptive detail was included on the individual death record submitted to BJS, and the nosologist was familiar with the ICD-10 diagnosis code. Similarly, deaths ultimately ruled to be of unknown cause received ICD-10 codes describing any medical detail prison or jail repsondents provided.
From 2015 to 2019, nosologists coded all deaths with ICD-10 codes regardless of cause, although the level of detail varied based on what text was provided by the respondent (for example, many accidental intoxication deaths were coded as T50.9 - Poisoning by other and unspecified drugs, medicaments, and biological substances). While the ICD-10 diagnosis codes are provided on all records to which they were assigned during the MCI collection, BJS was specifically concerned with the medical coding of illness deaths, and data users should concentrate on analyses of ICD-10 codes for these decedents, as opposed to those who died by unnatural causes.
The ICD-10 classification manual had a number of updates, culminating in a 2019 version. In some cases, ICD-10 diagnosis codes assigned to MCI decedents in the early years of the collection may no longer be found in the 2019 version. BJS suggests using Google to look for the letter and number combination to see whether earlier ICD-10 manual versions used the code listed.
- Users interested in looking up ICD-10 diagnosis codes can refer to the Centers for Disease Control or the World Health Organization. Note that some ICD-10 codes may have fallen out of use in in more recent versions of the ICD-10 manual.
Study Design View help for Study Design
MCI respondents were instructed to report a final cause of death (COD) as determined by a medical examiner for each decedent (see next paragraph). As part of the collection and processing of BJS's MCI collection, a nosologist (i.e., a clinical coder trained by the National Center for Health Statistics (NCHS) at the U.S. Department of Health and Human Service's Centers for Disease Control and Prevention (CDC)) used the text associated with illness deaths on the MCI death forms to assign standard diagnosis codes from the 10th revision of the International Statistical Classification of Diseases and Related Health Problems (ICD-10). Based on the text provided by respondents, the nosologist assigned a maximum of five codes to each MCI death case. In the MCI collection, nosologists assigned ICD-10 diagnosis codes only to natural deaths, such as heart disease, cancer, and liver disease. Unnatural deaths, such as drug or alcohol intoxication, homicides, suicides, and accidents, were not assigned ICD codes in the MCI. For decedents who were HIV positive or have AIDS at the time of death, MCI respondents were instructed to check a box for AIDS-related deaths, but no additional COD information was captured for these deaths. For quality control, BJS required nosologists to perform intraobserver error checks on 10% of their coded cases. If the nonagreement rate exceeded 3%, BJS conducted further review on additional cases coded by that nosologist and required retraining to the nosology contract staff as needed.
If only one illness was reported for a decedent, the assigned ICD-10 diagnosis code defined the underlying COD for that individual, and BJS ranked cases with single causes of death by frequency separately for male and female decedents. When a death was reportedly caused by multiple illnesses, BJS used the most common sex-specific COD among those with only one COD to designate the underlying COD. For example, a male decedent with two conditions--liver disease and cancer--is counted as a cancer death because cancer is a more common COD than liver disease among men who die from a single COD. A more complete discussion of the coding, ranking, and COD determination process can be found in this BJS publication: https://bjs.ojp.gov/content/pub/pdf/aicddcrpndi.pdf.
The illness information collected in MCI should not be used to infer that decedents did not have additional medical conditions that contributed significantly to their deaths. Unlike official state death forms, which ask coroners, doctors, or medical examiners to describe the chain of events leading to the death, as well as other conditions that contributed, the MCI only requests the underlying cause of death. When the MCI decedents were matched with their official state death certificates, the mean number of medical conditions that received an ICD-10 diagnosis code was 1.06 in MCI, compared to 2.69 on the death certificates (https://bjs.ojp.gov/content/pub/pdf/aicddcrpndi.pdf).
Sample View help for Sample
Individual-level death data are collected from local jail facilities and state prisons in the United States.
Time Method View help for Time Method
Universe View help for Universe
Deaths of individuals incarcerated in local jail facilities or in state prisons.
Unit(s) of Observation View help for Unit(s) of Observation
Data Source View help for Data Source
Local jail facilities and state departments of corrections
Data Type(s) View help for Data Type(s)
Mode of Data Collection View help for Mode of Data Collection
Description of Variables View help for Description of Variables
Variables include decedent demographics, correctional information, circumstances of death, and up to 5 ICD-10 codes describing the underlying cause of death.
Response Rates View help for Response Rates
All state department of corrections and 93 to 99% of jails participated for data years 2000 through 2019.
HideOriginal Release Date View help for Original Release Date
2023-05-15
Version History View help for Version History
2023-05-15 ICPSR data undergo a confidentiality review and are altered when necessary to limit the risk of disclosure. ICPSR also routinely creates ready-to-go data files along with setups in the major statistical software formats as well as standard codebooks to accompany the data. In addition to these procedures, ICPSR performed the following processing steps for this data collection:
- Created variable labels and/or value labels.
- Checked for undocumented or out-of-range codes.
Notes
The public-use data files in this collection are available for access by the general public. Access does not require affiliation with an ICPSR member institution.
One or more files in this data collection have special restrictions. Restricted data files are not available for direct download from the website; click on the Restricted Data button to learn more.