Parents And Children Coping Together (PACT I Child), Los Angeles, California, 1997-2002 (ICPSR 35194)

Version Date: Apr 23, 2018

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Principal Investigator(s):
Debra Murphy, Integrated Substance Abuse Programs, Dept. of Psychiatry, UCLA

Series:

https://doi.org/10.3886/ICPSR35194.v1

Version V1

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Summary

Parents And Children Coping Together (PACT) was designed to longitudinally assess mothers in Los Angeles county living with HIV (MLHs) and their young, well children age 5 to 11 years old. The PACT sample was followed every 6 months for 30 months. The study utilizes longitudinal data from children/adolescent and mother dyads to investigate the effects of maternal HIV and family variables on adolescent sexual behavior. Specific aims were to:

  1. Evaluate longitudinally youth adjustment (i.e., mental health, behavioral adjustment, social outcomes) including measures for young children. Measures included developmentally appropriate youth and maternal mental health measures (e.g., Children's Depression Inventory for youths age under 18; Beck Depression Inventory for youths age equal to or greater than 18), assessment of maternal physical health, assessment of child behaviors, and family functioning.
  2. Evaluate youth characteristics from across developmental periods that may moderate or mediate the impact of MLHs' chronic illness on patterns of youth adjustment over time, including: (a) background factors of age, gender, ethnicity; and (b) moderating and mediating factors, such as self-concept, family cohesion, the parent-child relationship, HIV/AIDS knowledge, perceived stigma, autonomy, and parent-adolescent separation.
  3. Evaluate maternal characteristics that may moderate or mediate the impact of MLHs' chronic illness on the youth (e.g., illness severity, mental health status, social support, parenting skills).
This collection is a part of the PACT series and contains the child datasets (baselines and follow-ups) from PACT 1. The instrument was divided into 16 sections. These sections are as follows: (A) PACT Child Demographic Questions, (B) Child Social Network, (C) Modified Items from My Family and Friends, (E) RCMAS, (F) Timeline, (G) CDI, (H) Dominic-R, (I) Hopelessness Scale for Children, (L) Children's Coping Strategies Checklist, (M) General Coping Efficacy (C-GCE), (N) Family Functioning (Four subscales), (P) Children's Self-Concept, (Q) Children's Health Knowledge and Attitude Items, (R) Items from Child Behavior Checklist, (S) Life Events and Family Routines, and (T) GLESC Positive Stable Events. Demographic variables include age, education, religious activities, and household structure.

Citation

Murphy, Debra. Parents And Children Coping Together (PACT I Child), Los Angeles, California, 1997-2002 . Inter-university Consortium for Political and Social Research [distributor], 2018-04-23. https://doi.org/10.3886/ICPSR35194.v1

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Funding

United States Department of Health and Human Services. National Institutes of Health. National Institute of Mental Health (R01MH57207)

Subject Terms

Geographic Coverage

Smallest Geographic Unit

None

Restrictions

Public and restricted versions of the data are included in this collection. Due to the sensitive nature of the restricted data, users will need to complete a Restricted Data Use Agreement before they can obtain the restricted version. These forms can be accessed on the download page associated with this dataset.

Confidential information includes HIV status, substance use and conduct disorder/juvenile delinquency. Questions from proprietary instruments (e.g., Child Behavior Checklist; Piers Harris Self Concept Scale) have been removed from the codebooks and instruments; however, variable labels in the datasets contain the question number and a short stem from items on proprietary scales so that data users will be able to calculate the scales. In addition, most scales have been created and are included in the datasets.

Distributor(s)

Inter-university Consortium for Political and Social Research
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Time Period(s)

1997 -- 2002

Date of Collection

1997-10 -- 2002-06

Data Collection Notes

  1. Proprietary scales were used in this survey. These variables may not include full variable/value labels and question text in the data.

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Sample

The PACT study followed a sample of 135 Mothers living with HIV (MLHs). MLHs were recruited from agencies specializing in services for families affected by HIV/AIDS (e.g., clinical primary care sites, AIDS service organizations) in Los Angeles County. Site staff at recruitment agencies reviewed client records to identify eligible families. They provided MLH with brochures about the study and study staff contact information. Fliers and brochures describing the study and providing the interview and payment schedules were available in English and Spanish and were displayed at all recruitment sites. When describing the project, recruitment staff assured their clients that their decision about whether or not to participate in this research would have no impact on their receipt of treatment services and that the referring agency will not be directly informed about such decisions.

Following initial contact by interested individuals, UCLA research staff contacted the mothers. All interested women were informed of the purpose of the study, and of the fact that the study would be presented to the children only as a study of mother-child communication, and that the mothers' diagnosis will not be discussed with the children. All mothers were given an opportunity to review both the mother assessment and the child assessment prior to giving permission or consent. Each mother was asked to discuss possible participation with her child prior to the enrollment interview, and a separate assent process was conducted with the child at the same appointment. The child was told of the different topics to be addressed in his/her interviews, and assured that she/he has the right to refuse to answer any questions she/he does not wish to answer. If a mother had more than one eligible child in the targeted age range, random selection was utilized to determine which child would be asked to be a study participant.

The reasons for choosing only one child were primarily practical: to maintain participant incentives at a reasonable budget; to hold the cost of interviewer time to a reasonable level; and to keep the assessment of the mothers (i.e., "subject burden") as reasonable as possible.

Recruitment Criteria and PACT Inclusion:

  • Confirmation of MLH HIV/AIDS status; Well child age 5 to 11; Informed consent of MLH; Assent of children.
Exclusion criteria:
  • Psychosis of the parent or child (as advised by recruitment site staff); Cognitive ability/intellectual functioning of MLH or child (minimum IQ of approximately 70); Parental refusal or child not giving assent.

Time Method

Longitudinal: Panel, Cross-sectional

Universe

HIV positive mothers and their children in Los Angeles county.

Unit(s) of Observation

Individual

Data Type(s)

Mode of Data Collection

Presence of Common Scales

Measurement tools and scales are listed in the table of contents of the PACT Mother and Child assessments.

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Original Release Date

2018-04-23

Version History

2018-04-23 ICPSR data undergo a confidentiality review and are altered when necessary to limit the risk of disclosure. ICPSR also routinely creates ready-to-go data files along with setups in the major statistical software formats as well as standard codebooks to accompany the data. In addition to these procedures, ICPSR performed the following processing steps for this data collection:

  • Checked for undocumented or out-of-range codes.

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Weight

Not applicable

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Notes

RCMD logo

This study is provided by Resource Center for Minority Data (RCMD).