Improving Self-Care of Informal Caregivers of Adults with Heart Failure, United States, 2019-2024 (ICPSR 39524)
This randomized controlled trial tested the efficacy of a virtual support health coaching intervention compared to a health information control group in improving self-care, decreasing stress, and improving coping and health status of informal caregivers of adults with heart failure. A secondary aim was to estimate intervention cost and cost-effectiveness. An exploratory aim was to explore the effect of caregiver outcomes on patient outcomes.
CTDA 1036: Posttraumatic Stress, Appraisals, and Coping in Children Age 8 to 13 Hospitalized for Injury and Their Parents, United States, 2012-2015 (ICPSR 39433)
Millions of children suffer unintentional injuries annually. While the majority display transient psychological distress, a significant minority develop significant, persistent symptoms of posttraumatic stress disorder (PTSD) that are associated with poorer general health outcomes and impaired quality of life. Understanding variables that contribute to the development of PTSD is an essential step in identifying children at increased risk for PTSD and improving secondary prevention to reduce the incidence of PTSD in children following medical events.
The objective of this study was to examine the interplay of biological, psychological (cognitive appraisals, coping), and environmental (parent influence) factors during the peri-trauma time period as these relate to the development of child PTSD symptoms over time.
Children age 8-13 with a recent injury (within the past 2 weeks) and one parent / caregiver per child were enrolled during an inpatient hospitalization. At the time of enrollment, and again 6 weeks and 12 weeks post-injury, children and parents completed measures of cognitive appraisals, coping, coping assistance, and PTSD symptoms. A brief parent-child interaction task was completed at the time of the baseline assessment - data from this task-based assessment are not included in this dataset.
CTDA 1035: Posttraumatic Stress in Children Age 8 to 16 and Their Parents After Hurricane, United States, 2005-2008 (ICPSR 39322)
The overall objective of this study was to examine trajectories and predictors of posttraumatic stress and depression in children and parents after a major hurricane, with a particular focus on hurricane exposure and on parenting variables that might be amenable to intervention.
Three months after the hurricane, the study enrolled students in grades four through eight (age 8 to 16) in local schools and invited parent participation, and conducted assessments at four time points post-hurricane. Children reported on prior violence exposure and hurricane-related trauma exposure, and on posttraumatic stress, coping, social support; and parents reported on child behavior as well as their own posttraumatic stress and other mental health symptoms, coping, and parenting practices. (Note: The current dataset does not include measures of parenting practices.)
CTDA 1027: Posttraumatic Stress in Children Age 7 to 12 After Hurricane, United States, 1992-1993 (ICPSR 39338)
The aims of this study were to describe the course of posttraumatic stress responses in children after exposure to a hurricane and to examine potential predictors of child outcomes.
Three months after a major hurricane, the study enrolled students in grades three to five (age 7 to 12) in local schools. At the initial (3 month) assessment, children reported on specific hurricane-related trauma exposures, posttraumatic stress and anxiety symptoms, coping, and social support; at 7 months and 10 months post-hurricane, children reported on posttraumatic stress, anxiety, and coping.
CTDA 1008: Posttraumatic Stress in Children Age 8 to 17 Hospitalized or Seen in the Emergency Department for Unintentional Injury, United States, 2005-2006 (ICPSR 39182)
The objectives of the current study were to describe child post-traumatic stress (PTS), coping behavior, and parent coping assistance following a child's injury. The study enrolled children age 8 to 17 treated at the emergency department or admitted to the hospital for unintentional injury, and one parent per child. Children and parents completed measures of child PTS, coping, and coping assistance at 2 weeks post-injury and 3 months post-injury. The research team addressed these questions:
- What types of coping do children use following an injury?
- Is parent coping assistance related to child coping behavior?
- Are child coping strategies associated with PTS symptoms?
- Is early parent coping assistance related to later development of child PTS symptoms?
This study was originally conceived as a prospective randomized trial to evaluate the efficacy of secondary prevention messages conveyed in printed informational materials (handouts and workbooks) for children and parents after pediatric injury. Children and their parents received 1 of 5 randomly assigned workbook sections (each addressing a different key theme). No differences were observed between groups for parent/child knowledge and beliefs about PTS and adaptive coping, nor in child PTS symptoms. Thus, data from all groups have been combined for analyses of prospective PTS outcomes and coping processes.
Americans' Changing Lives: Waves I, II, III, IV, V, and VI, 1986, 1989, 1994, 2002, 2011, and 2021 (ICPSR 4690)
The Americans' Changing Lives (ACL) survey series is an ongoing, nationally representative, longitudinal study focusing especially on differences between Black and White Americans in middle and late life. These data constitute the first, second, third, fourth, fifth, and sixth waves in a panel survey covering a wide range of sociological, psychological, mental, and physical health items. Wave I of the study began in 1986 with a nation face-to-face survey of 3,617 adults ages 25 and up, with Black Americans and people aged 60 and over over-sampled at twice the rate of the others. Wave II constitutes face-to-face re-interviews in 1989 of those still alive. Survivors have been re-interviewed by telephone, and when necessary face-to-face, in 1994 (Wave III), 2001/02 (Wave IV), 2011 (Wave V), and 2019/21 (Wave VI).
Please note that for Wave VI, the majority of data collection occurred in 2019, with only a small subset (n=39) of participants surveyed in 2021.
ACL was designed and sought to investigate the following: (1) The ways in which a wide range of activities and social relationships that people engage in are broadly "productive," (2) how individuals adapt to acute life events and chronic stresses that threaten the maintenance of health, effective functioning, and productive activity, and (3) sociocultural variations in the nature, meaning, determinants, and consequences of productive activity and relationships. Among the topics covered are interpersonal relationships (spouse/partner, children, parents, friends), sources and levels of satisfaction, social interactions and leisure activities, traumatic life events (physical assault, serious illness, divorce, death of a loved one, financial or legal problems), perceptions of retirement, health behaviors (smoking, alcohol consumption, overweight, rest), and utilization of health care services (doctor visits, hospitalization, nursing home institutionalization, bed days). Also included are measures of physical health, psychological well-being, and indices referring to cognitive functioning.
Demographic information provided for individuals includes household composition, number of children and grandchildren, employment status, occupation and work history, income, family financial situation, religious beliefs and practices, ethnicity, race, education, sex, and region of residence.
Medical Student Stress Management Behaviors (ICPSR 208892)
Individualized Assessment and Treatment for Marijuana Dependence: Treatment Mechanisms, United States, 2013-2016 (ICPSR 39044)
Marijuana is the most commonly used illicit drug in the US, but treatment for marijuana dependence is not fully effective. The most effective treatments to date have employed motivational enhancement (MET) plus cognitive-behavioral coping skills treatment (CB) and contingency management (CM) for abstinence. This study was intended to deliver a treatment to enhance coping and self-efficacy to improve marijuana outcomes in the long term. Researchers are explored the idea that more tailored teaching of coping skills may result in improved outcomes for marijuana-dependence than those seen thus far. The Individualized Assessment and Treatment Program (IATP) for marijuana dependent patients employed experience sampling (ES) to determine the strengths and weaknesses of each patient in drug-use situations so that treatment could be tailored accordingly.
Participants were 198 men and women meeting criteria for marijuana dependence and randomly assigned to 9 sessions of treatment in one of 4 treatment conditions: Standardized MET plus CB (SMET-CB); SMET+ CM (SMET-CB-CM); IATP; or IATP + CM (IATP-CM). Patients in all treatments engaged in ES via cell-phone for two weeks prior to treatment, for a weekly period during treatment, for another week after treatment has ended, and for two weekly periods at months 8 and 14. In the IATP conditions, the information gathered from the pretreatment and during-treatment ES periods provided data for a functional analysis of patients' drug use and urges to use. Therapists used the information to address specific cognitions, affects, and behaviors that were adaptive and maladaptive, and tailored a specific coping skills program with the patient. During-treatment experience sampling allowed monitoring of the treatment goals and procedures, making the treatment adaptive. In the SMET-CB conditions the experience sampling data were not used in therapy, but still provides in-vivo measures of drug use and coping skills.
It was hypothesized that IATP conditions would yield significantly better coping skills acquisition than SMET-CB conditions, both at posttreatment and at extended follow-ups, and that change in coping skills would predict better outcomes for the IATP conditions. It was further predicted that the addition of CM to both IATP and SMET-CB would enhance short-term and long-term outcomes. The results would have implications for improved tailoring of treatment to patients' strength and deficits, and for the validity of the training of coping skills for cannabis relapse prevention. The data collected will shed light on the ways in which patients in treatment use coping skills in real-time contexts. Finally, the use of repeated ES periods will allow researchers to determine how treatment impacts thoughts, feelings and behaviors, and how these in turn affect outcome in the long and short term.
Project SECURE: Keeping Kids Safe in San Francisco Unified School District, California, 2017-2021 (ICPSR 38302)
Altering Administrative Segregation for Inmates and Staff: A Mixed-Methods Analysis of the Effects of Living and Working in Restrictive Housing, Arizona, 2017-2019 (ICPSR 37851)
The Arizona Working and Living in Prison (AZWLP) project examined the impact of living and working in restrictive status housing, with a particular focus on the impact of restrictive housing on prisoner and staff well-being. The prisoner data represents three waves of data: baseline (within 3 weeks of placement in permanent housing), six months, and twelve months across medium, close, and maximum security custody levels. The critical measure of well-being is the Symptom Checklist-90 Revised (SCL-90-R). Prisoners were assessed at all three time points to determine whether placement in maximum custody impacted well-being as compared to placements in close or medium custody.
The staff data represents cross-sectional data of staff working in medium, close, and maximum security custody levels and asked staff to report on the emotional and physical impacts of the job, psychosomatic symptoms, organizational commitment, and social support.
How Right Now Mental Health & Coping Data (ICPSR 184644)
Basic Psychological Needs, Coping, and Subjective Quality of Life Among Tenants at Risk of Eviction (ICPSR 183281)
Rochester Intergenerational Study (RIGS), New York, United States, 1999-2019 (ICPSR 37920)
The Rochester Intergenerational Study (RIGS), is an extension of the Rochester Youth Development Study (RYDS). RIGS investigates intergenerational continuity and discontinuity of drug use in a three-generation prospective design. The focal participant is the oldest biological child (G3) of the original participant in the RYDS study. The project contains developmental data collected since 1988 on the G2 parents and G1 grandparents; combining those data with the prospective data collected from 1999 to 2019 allows examination of how the parent's own developmental course influences their transition to adulthood and their behavior as parents which, in turn, can be used to explain the onset and development of the G3 child's drug use.
Variables included pertain to the parent's stressors, drug use and problem behaviors, prosocial bonds, peer networks, gang affiliation, family context, major family events, and parenting behaviors. G3 assessments include their general psychosocial development, with detailed information on the onset and course of their drug use, problem behaviors, school behavior, and prosocial behavior.
Identifying Sexual Assault Mechanisms Among Diverse Women, New York State, 2016-2017 (ICPSR 37450)
This study offers novel insights into mechanisms associated with sexual assault (SA) among sexual minority women (SMW). Experiences of bias and stigma contribute to lower rates of SA reporting by this population. This results in victims with unmet needs and fewer criminal prosecutions of SA perpetrators. This study used a mixed-methods approach to collect data from lesbian, bisexual, and heterosexual women to instigate changes that would improve responses from law enforcement, victim services, and anti-violence programs that serve SMW.
This study comprised of three parts a: baseline survey, qualitative interview, and daily survey. Self-reported baseline questionnaires included topics like lifetime victimization (childhood sexual abuse, adult sexual aggression, and assault), discrimination, distress, mental health, alcohol use, and sexual history. The qualitative interviews focused on the most recent, and when applicable, the most salient adult sexual assault (ASA) incident. Interviews began by asking the participants to describe their ASA incidents with follow-probes asking about the victimization, perpetrator characteristics (gender and relationship to participant), and context of assault (role of alcohol or drugs and setting). Participants were also asked if they discussed the assault with anyone and their reasons for disclosure or non-disclosure. As well as short and long-term coping patterns. The daily survey asked participants about their mood, alcohol use, drinking contexts, and sexual experiences (consensual and non-consensual).
This study contains demographic information such as: age, race, income, education, and BMI.
Community Restorative Healing Project, Los Angeles, California, 2017-2018 (ICPSR 37622)
The vision of the Community Restorative (CORE) Health Project was to increase awareness and availability of trauma-informed care and indigenous healing practices in the target communities for clients and families being served by the City of Los Angeles Mayor's Office of Gang Reduction and Youth Development (GRYD). Two agencies were contracted to provide either trauma-focused mental health treatment or training on indigenous healing practices to clients, families, and the community. A total of 115 individual or group therapy sessions were provided, 23 community based workshops on trauma-informed care or indigenous healing practices were offered, and 15 professional development events were attended by over 354 GRYD intervention workers or CORE staff.
Background information was collected during the initial stages of the GRYD program, and a youth's eligibility for GRYD services was determined. The Posttraumatic Screening Inventory was used to assess the presence of posttraumatic stress, exposure to a traumatic event, and whether participants should be referred for treatment. Youths were then exposed to the GRYD's Summer Night Lights program, which raised trauma awareness, taught coping strategies, and increased access to services.
Then the National Compadres Network was chosen to administer three training sessions on indigenous healing practices: La Cultura Cura, El Joven Noble, and Circle Keepers. Pre-test surveys collected demographics such as age, gender, ethnicity, and religiosity, as well as their expectations heading into training. Post-test surveys assessed how much information participants received, the usefulness of information, if training rationale made sense, and whether or not participants planned to use what they had learned. After training sessions were completed, researchers conducted 10 follow up interviews with services providers and leadership from CORE.
The Effects of Internet-Delivered Mindfulness Training on Stress, Coping, and Mindfulness in University Students (ICPSR 110782)
Parents And Children Coping Together (PACT I Child), Los Angeles, California, 1997-2002 (ICPSR 35194)
Parents And Children Coping Together (PACT) was designed to longitudinally assess mothers in Los Angeles county living with HIV (MLHs) and their young, well children age 5 to 11 years old. The PACT sample was followed every 6 months for 30 months. The study utilizes longitudinal data from children/adolescent and mother dyads to investigate the effects of maternal HIV and family variables on adolescent sexual behavior. Specific aims were to:
- Evaluate longitudinally youth adjustment (i.e., mental health, behavioral adjustment, social outcomes) including measures for young children. Measures included developmentally appropriate youth and maternal mental health measures (e.g., Children's Depression Inventory for youths age under 18; Beck Depression Inventory for youths age equal to or greater than 18), assessment of maternal physical health, assessment of child behaviors, and family functioning.
- Evaluate youth characteristics from across developmental periods that may moderate or mediate the impact of MLHs' chronic illness on patterns of youth adjustment over time, including: (a) background factors of age, gender, ethnicity; and (b) moderating and mediating factors, such as self-concept, family cohesion, the parent-child relationship, HIV/AIDS knowledge, perceived stigma, autonomy, and parent-adolescent separation.
- Evaluate maternal characteristics that may moderate or mediate the impact of MLHs' chronic illness on the youth (e.g., illness severity, mental health status, social support, parenting skills).
Midlife in the United States (MIDUS): Boston Longitudinal Study (BOLOS) of Cognition in Midlife, 1995-2008 (ICPSR 3596)
This survey of adult management tasks began in 1995 as part of a larger national project (MIDUS) to investigate the patterns, predictors, and consequences of midlife development in the areas of physical health, psychological well-being, and social responsibility. Conducted in Boston, the survey was designed to examine how adults manage tasks in three domains of life -- work, family, and health. Further goals were to describe the subjective experience of goal attainment in midlife and to link it with objective measures of short-term longitudinal changes and cognitive functioning. During the national study, the Boston area was intentionally oversampled in order to create a subset to be used for in-depth study of management processes in midlife.
The Boston study began six months after the national study, and consisted of three interviews: a 30-minute phone interview followed by a 20-minute mail questionnaire (Time 1), a 90-minute in-person combination of cognitive tests, cortisol testing, photograph taking, and interview (Time 2), and a 30-minute phone interview (Time 3), conducted at six-month intervals. The focus was on projects related to family, work, and health that participants were working on during the period of the study. Each successive interview investigated participants' assessments of their progress in the present, recollection of six months in the past, and prediction six months into the future. Two waves of data collection were completed for this study. There were 151 respondents who participated in the first wave, 151 respondents who participated in both waves, and 26 additional respondents who participated in the second wave of data collection.
At Time 1, participants generated a list of two important family, work, and health tasks, then chose one of each as the most important in that domain. For each of the most important tasks, questions were asked about deadlines, whether participants were doing tasks because they had to do them, felt that they should do them, or chose to do them, and whether participants were doing tasks for themselves, others, or both. All six projects were ranked according to importance, and participants divided all their time into percentages spent on family, work, and health. The majority of questions on the mail questionnaire at Time 1 were taken from the Midlife Development Inventory (MIDI), the instrument created for the national study.
Respondents were asked to rate their control over health, to make assessments about present, past, and future health, to list any serious illnesses, and to indicate their physical health status. Study participants also rated their mental health, and discussed stressful life events in the last six months for self, spouse/significant other, parents, and children. Other questions focused on depression, mastery and constraints, community involvement, family, work, and life satisfaction. Scales used included the Ryff Well-Being Scales, the Eysenck Personality Inventory, the Staudinger and Baltes Wisdom Scale (1995), and the Ways of Coping Scale.
Time 2 was done in-person, and included a 50-minute series of cognitive tests followed by a 40-minute interview. The cognitive testing consisted of nine measures of cognitive ability completed in the following order: WAIS Forward Digit Span, WAIS Backward Digit Span, WAIS Vocabulary, counting backwards test, letter comparison test, dual-task test involving the counting backwards and letter comparison tests, WAIS Digit Symbol, Schaie-Thurston Letter Series, and Raven's Advanced Progressive Ma Matrices.
The Time 2 interview began with a series of questions asking about each of the family, work, and health tasks elicited from the participants in Time 1. Many questions were repeated from the MIDI including rating physical health, family life, work situation, and life overall, rating physical and mental health from poor to excellent, and a measure of stressful life events in the last six months for self, spouse/significant other, parents, and children. Participants were asked to rate how old they felt and how old they looked and to indicate their total yearly household income. Lastly, a series of open-ended questions asked about best and worst aspects of family, work, and health, how participants managed their daily life, the most challenging aspect of life and how it was managed, and what participants found most helpful in carrying out their daily life. Photographs were taken of participants at the conclusion of the interview.
Time 3 asked again about each of the most important family, work, and health tasks elicited from the participants in Time 1. Newly developed questions asked participants about ideas related to middle age, including when the participant believed middle age begins and ends, whether the participant was younger than, in, or older than middle age, the biggest changes in middle age, the best and worst aspects of middle age, whether the participant knew anyone who had had a "midlife crisis," and whether he or she would have or had had a midlife crisis. Participants were asked to rate how often they had problems and how often things went well with respect to a list of 26 domains, and how much stress and how much control they had in these domains. Lastly, participants were asked whether they had ever returned to a degree-oriented educational program after being out of school for five or more years, whether they were presently taking classes to further their education, and whether being a participant in the study had influenced the ways they thought about their family, work, and health projects.
Examination of the Conditions Affecting Forensic Scientists' Workplace Productivity and Occupational Stress [United States], 2012-2013 (ICPSR 35075)
These data are part of NACJD's Fast Track Release and are distributed as they were received from the data depositor. The files have been zipped by NACJD for release, but not checked or processed except for the removal of direct identifiers. Users should refer to the accompanying readme file for a brief description of the files available with this collection and consult the investigator(s) if further information is needed.
This study assessed the occupational experiences of forensic scientists working in laboratories across the United States. The sample included 899 forensic scientists in public and private laboratories operating at the local, state, and federal level across the United States. The study addressed the levels of work stressors and satisfaction among forensic scientists across the various disciplines, along with any correlates to working conditions, requests from various criminal justice system actors, policies, procedures, and demographic conditions. The use of positive and negative coping strategies by scientists was also measured to assess how individuals working in the field are affected by their job. Finally, the ergonomic and working environment of bench scientists were assessed to consider any influence they might have on their reported levels of stress and satisfaction.
Elucidating Biopsychosocial Mediators of HIV Progression (ICPSR 35912)
Well Elderly 2, Los Angeles, California, 2004-2008 (ICPSR 33641)
Sexual Assault Among Latinas (SALAS) Study, May-September 2008 [United States] (ICPSR 28142)
Generational Memory and the Critical Period: Evidence for National and World Events, 1985-2010 (ICPSR 33001)
Detroit Area Study, 1985: Life Events in Everyday Experience (ICPSR 6414)
The 1985 Detroit Area Study surveyed life events of respondents. Questions addressed alcohol and drug use, emotional state, incidents of depression and fear, stress caused by children and work, and respondent's general health. Information on the respondent's family background was also collected, with specific emphases on children, parenting, and marriage. Gender comparison questions were posed to explore in detail issues such as the benefits/responsibilities of marriage, marriage roles and careers, and division of housework tasks. The survey also included items on the respondent's financial situation, social life, social support network, and demographic characteristics such as age, race, sex, education, religion, and income.
Exploring Women's Histories of Survival of Violence and Victimization in a Midwestern State, 2004-2005 (ICPSR 4579)
Stress Training for Probation Officers and Their Families in Harris County, Texas, 2001 (ICPSR 4458)
Effectiveness of Alternative Victim Assistance Service Delivery Models in the San Diego Region, 1993-1994 (ICPSR 2789)
Families of Missing Children: Psychological Consequences and Promising Interventions in the United States, 1989-1991 (ICPSR 6140)
Providing Help to Victims: A Study of Psychological and Material Outcomes in New York City, 1984-1985 (ICPSR 9479)
Detroit Area Study, 1995: Social Influence on Health: Stress, Racism, and Health Protective Resources (ICPSR 3272)
This survey explored the ways in which social influences, such as stress and racism, affected health, and the impact these influences had on the respondents' outlook on life. Respondents were questioned about their health status and their exercise, smoking, sleeping, and dieting habits, as well as about diagnosed health problems and depression and their effects on daily activities. Respondents were also asked a series of questions regarding their employment status, type of job and whether it was a supervisory position, the racial makeup of their workgroup, their perceptions of their position and job, the likelihood of their finding another job, hassles experienced while at work, and whether they had any trouble balancing family and work. Another series of questions asked respondents whether they had been a victim of a serious physical attack or assault, robbery, or home burglary, if they had ever been unfairly searched, stopped, or questioned by police, why they felt they had been treated this way, and if they felt they had ever been treated unfairly by a teacher, landlord, or neighbor. Opinions were also solicited on the respondents' experience with depression and anxiety. Respondents were asked whether they felt it was possible to reach their goals, how satisfied they were with their present situation, how often they felt depressed and how long this feeling lasted, whether they lost weight or sleep due to this feeling, how this feeling of depression made them view themselves, how often and how long they were worried about things that were not likely to happen, how often they worried about non-serious things, and how they felt physically when they were anxious or depressed. Another set of questions queried respondents on alcohol and drug use. Respondents were asked how often they drank alcohol, the most they had to drink at one time, whether they had experienced any addiction to alcohol or experienced any emotional or psychological problems associated with drinking, whether they had any problem controlling their drinking, whether they had used drugs outside of a doctor's order, what types of drugs they had used, how often and in what type of situations they had used these drugs, and whether they had any addiction to the drugs. Respondents were also asked whether they had a regular doctor, whether they went to a doctor's office or clinic to seek medical attention, the last time they had gone for a checkup, how they were treated by staff at the visit, whether they trusted their doctor, the reasons why they did or did not receive medical attention, and whether they had health insurance. Respondents were also asked for their perceptions of differences between Blacks and whites, attitudes toward affirmative action with regard to employment, and their attitude toward interracial relationships. Another battery of questions queried respondents on any fears or phobias they had, such as a fear of animals, water, or visiting a doctor or dentist. Questions focused on the severity of these fears, how long they had had these fears, and how much these fears interfered in daily activities. A final set of questions gathered demographic information on respondents such as highest level of education completed, political affiliation, religious affiliation, level of religious participation, importance of religion, birth date, whether they owned their own home or rented, how much they spent on food each week, total family income for the year 1994, and the height and weight of respondents.