The Mitigating Effects of Telehealth Uptake on Disparities in Maternal Care Access, Quality, Outcomes, and Expenditures, United States, 2018-2022 (ICPSR 39023)
This study explores whether perinatal telehealth uptake has mitigated the pandemic's effects on disparities in maternal care access, quality, and outcomes by race, ethnicity, and rural or urban residence. Research to date has approached this question in several ways. First, researchers have utilized census data to assess whether community-wide broadband infrastructure exists to support the use of telehealth services in areas with high travel times to maternal care units. Findings suggest that socioeconomically disadvantaged communities face significant barriers to maternity care access, both with substantial travel burdens and inadequate digital access to facilitate telehealth services. Second, to examine maternal care quality, researchers have employed South Carolina hospital-based claims data and vital statistics to identify racial, ethnic, and urban/rural disparities in rates of cesarean delivery before and during the COVID-19 pandemic period. Results indicate that cesarean rates differed by rural vs. urban facility locations and racial and ethnic groups but observed disparities were not significantly exacerbated by the pandemic. Third, using South Carolina hospital-based claims data and COVID-19 testing data, researchers found significant racial, ethnic, and rural disparities in postpartum readmissions involving mental health and substance use disorders from childbirth discharge through one year postpartum during the COVID-19 pandemic. Finally, drawing on data from the National COVID Cohort Collaborative (N3C), research has shown that hybrid care increased substantially during the COVID-19 public health emergency, but pregnant people living in rural areas had lower levels of hybrid care than urban people, and individuals who belonged to racial and ethnic minority groups were more likely to have hybrid care than White individuals.
Future research will investigate the impact of the COVID-19 pandemic and perinatal telehealth uptake on additional maternity care and birth outcomes by race, ethnicity, and urbanicity. The study also aims to assess how state-level telehealth policies relate to perinatal telehealth uptake by race, ethnicity, and urbanicity, and to develop a model to predict long-term changes in maternal care access, quality, outcomes, and expenditures, with and without state telehealth policies.
The ICPSR provides variable-level metadata for the data associated with this study. The actual data may only be available from the Principal Investigator directly. The variable descriptions available through ICPSR also include information regarding the source of each variable listed, as does the Data Source field of these metadata.
National Family Health Survey (NFHS), India, 1992-2021 (ICPSR 39549)
The National Family Health Survey (NFHS) is a large-scale, multi-round survey providing information on fertility, infant and child mortality, the practice of family planning, maternal and child health, reproductive health, nutrition, anemia, and utilization and quality of health and family planning services in India.
The First National Family Health Survey (NFHS-1) was conducted in 1992-93. The survey collected extensive information on population, health, and nutrition, with an emphasis on women and young children. Eighteen Population Research Centres (PRCs), located in universities and institutes of national repute, assisted IIPS in all stages of conducting NFHS-1. All the state-level and national-level reports for the survey have already been published (48 reports in all).
The Second National Family Health Survey (NFHS-2) was conducted in 1998-99 in all 26 states of India with added features on the quality of health and family planning services, domestic violence, reproductive health, anemia, the nutrition of women, and the status of women. The results of the survey are currently being published.
The Third National Family Health Survey (NFHS-3) was carried out in 2005-2006. Eighteen Research Organizations including five Population Research Centres carried out the survey in 29 states of India. The funding for NFHS-3 is provided by USAID, DFID, the Bill and Melinda Gates Foundation, UNICEF, UNFPA, and MOHFW, GOI., ICF (USA), is providing technical assistance for NFHS-3, and the National AIDS Control Organization (NACO) and the National AIDS Research Institute (NARI) are providing technical assistance for the HIV component.
The 2015-16 National Family Health Survey (NFHS-4), the fourth in the NFHS series, provides information on population, health, and nutrition for India and each state and union territory. All four NFHS surveys have been conducted under the stewardship of the Ministry of Health and Family Welfare (MoHFW), Government of India. MoHFW designated the International Institute for Population Sciences (IIPS), Mumbai, as the nodal agency for all of the surveys. Funding for NFHS-4 was provided by the United States Agency for International Development (USAID), the United Kingdom Department for International Development (DFID), the Bill and Melinda Gates Foundation (BMGF), UNICEF, UNFPA, the MacArthur Foundation, and the Government of India. ICF provided technical assistance through The DHS Program, which is funded by USAID. Assistance for the HIV component of the survey was provided by the National AIDS Control Organization (NACO) and the National AIDS Research Institute (NARI), Pune. NFHS-4 fieldwork was conducted by 14 field agencies, and seven laboratories conducted the HIV testing (see Appendix Table XX). Data collection took place in two phases from 1 January 2015 to 31 December 2016. NFHS-4 was designed to provide information on sexual behaviour; HIV/AIDS knowledge, attitudes, and behaviour; and domestic violence only at the state level (in the state module), while most indicators in the district module are reported at the district level. The primary objective of the 2015-16 National Family Health Survey is to provide essential data on health and family welfare, as well as data on emerging issues in these areas. The clinical, anthropometric, and biochemical (CAB) component of NFHS-4 is designed to provide vital estimates of the prevalence of malnutrition, anaemia, hypertension, HIV, and high blood glucose levels through a series of biomarker tests and measurements.
The National Family Health Survey 2019-21 (NFHS-5), the fifth in the NFHS series, provides information on population, health, and nutrition for India, each state/union territory (UT), and for 707 districts as on March 31 st 2017. All five NFHS surveys have been conducted under the stewardship of the Ministry of Health and Family Welfare (MoHFW), Government of India. MoHFW designated the International Institute for Population Sciences (IIPS), Mumbai, as the nodal agency for all the rounds of NFHS. Funding for NFHS-5 was provided by the MoHFW, Government of India. ICF, USA provided technical assistance through the Demographic and Health Surveys (DHS) Program, which is funded by USAID. Assistance for the Dried Blood Sample (DBS) component of the survey was provided by the Indian Council of Medical Research (ICMR) and the National AIDS Research Institute (NARI), Pune. NFHS-5 fieldwork for India was conducted in two phases-- Phase-I from 17 June 2019 to 30 January 2020 covering 17 states and 5 UTs and Phase-II from 2 January 2020 to 30 April 2021 covering 11 states and 3 UTs -- by 17 Field Agencies and gathered information from 636,699 households, 724,115 women, and 101,839 men. Like NFHS-4, NFHS-5 also provides district-level estimates for many important indicators. The contents of NFHS-5 are similar to NFHS-4 to allow comparisons over time. However, NFHS-5 includes some new topics, such as preschool education, disability, access to a toilet facility, death registration, bathing practices during menstruation, and methods and reasons for abortion. The scope of clinical, anthropometric, and biochemical testing (CAB) has also been expanded to include measurement of waist and hip circumferences, and the age range for the measurement of blood pressure and blood glucose has been expanded. However, HIV testing was not included in NFHS-5. The NFHS-5 sample was designed to provide national, state/union territory (UT), and district level estimates of various indicators covered in the survey. However, estimates of indicators of sexual behaviour; husband's background and woman's work; HIV/AIDS knowledge, attitudes, and behaviour; and domestic violence are available only at the state/union territory (UT) and national level.
To request this data, fill out: International Institute for Population Sciences Data Request Form.
Baby's First Years (BFY), New York City, New Orleans, Omaha, and Twin Cities, 2018-2023 (ICPSR 37871)
The overall goal of the Baby's First Years study is to assess the causal role played by household income in affecting children's early cognitive, socio-emotional, and brain development. Recent advances in developmental neuroscience suggest that experiences early in life have profound and enduring impacts on the developing brain. Family economic resources shape the nature of many of these experiences, yet the extent to which they affect children's development is unknown. The Baby's First Years project is the first randomized controlled trial to provide estimates of the causal impacts of unconditional cash gifts on the cognitive, socio-emotional, and brain development of infants and young children in low-income U.S. families.
Specifically, 1,000 recruited mothers of infants with incomes below the federal poverty line from four diverse U.S. communities are receiving monthly cash gift payments by debit card. Mothers were initially told the gifts would last for the first 40 months of their child's life, but we have secured funding to continue the payments for three additional years (i.e., for a total of 76 months). Parents in the high cash gift group (n=400 in the study sample) are receiving a cash gift of $333 per month ($4,000 per year), while parents in the low cash gift group (n=600) are receiving a nominal monthly gift payment of $20 ($240 per year), also for 76 months.
In order to measure the impacts of the unconditional cash gift income on children's cognitive and behavioral development, we are assessing high and low cash gift group differences at ages 4, 6, and 8 (and, for a subset of measures, we capture interim development at ages 1, 2, and 3) in measures of cognitive, language, memory, self-regulation, and socio-emotional development. In order to understand the processes by which child impacts emerge, we are measuring a host of family process measures summarized in our pre-registration chart. Our data collection points are referred to as: "baseline", "age 1", "age 2," "age 3", "age 4", "age 6", and "age 8".
Additional information on the project, survey design, sample, variables, and COVID-19 pandemic adjustments are available from:
- The User Guides for Baseline, Age 1, Age 2, Age 3, and Age 4, which are included under the "Data and Documentation" tab
- The project's website: babysfirstyears.com
The researchers request that all peer-reviewed papers using BFY Data:
- be submitted to PubMed https://publicaccess.nih.gov immediately upon acceptance for publication
- include the following citation to the data in their bibliography:
Citation
Magnuson, Katherine A., Kimberly Noble, Greg J. Duncan, Nathan A. Fox, Lisa A. Gennetian, Hirokazu Yoshikawa, and Sarah Halpern-Meekin. Baby's First Years (BFY), New York City, New Orleans, Omaha, and Twin Cities, 2018-2023. ICPSR37871-v8. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], YYYY-MM-DD. http://doi.org/10.3886/ICPSR37871.v8
- and include the following in their acknowledgements:
Acknowledgement
This research uses data from the Baby's First Years study. Research reported in this publication was supported by the Eunice Kennedy Shriver National Institute of Child Health and Human Development of the National Institutes of Health under Award Number R01HD087384 and 2R01HD087384. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health. This research was additionally supported by the US Department of Health and Human Services, Administration for Children and Families, Office of Planning, Research and Evaluation; Office of Behavioral and Social Sciences Research-Office of the Director, National Institutes of Health; Andrew and Julie Klingenstein Family Fund; Annie E. Casey Foundation; Arnold Ventures; Arrow Impact; BCBS of Louisiana Foundation; Bezos Family Foundation, Bill and Melinda Gates Foundation; Bill Hammack and Janice Parmelee, Brady Education Fund; Chan Zuckerberg Initiative (Silicon Valley Community Foundation); Charles and Lynn Schusterman Family Philanthropies; Child Welfare Fund; Esther A. and Joseph Klingenstein Fund; Ford Foundation; Greater New Orleans Foundation; Heising-Simons Foundation; Holland Foundation; Jacobs Foundation; JPB Foundation; J-PAL North America; Lozier Foundation; New York City Mayor's Office for Economic Opportunity; Perigee Fund; Robin Hood Foundation; Robert Wood Johnson Foundation; Russell Sage Foundation; Sherwood Foundation; Valhalla Foundation; Weitz Family Foundation; W.K. Kellogg Foundation; and three anonymous donors.
Principal Investigators
Katherine Magnuson, PhD; University of Wisconsin-Madison, lead PI social and behavioral science
Kimberly Noble, MD, PhD; Teachers College, Columbia University, lead PI neuroscience
In alphabetical order:
Greg Duncan, PhD; University of California, Irvine
Nathan A. Fox, PhD; University of Maryland
Lisa A. Gennetian, PhD; Duke University Sanford School of Public Policy
Hirokazu Yoshikawa, PhD; New York University
Principal Investigators of Qualitative Substudy
Sarah Halpern-Meekin, PhD; University of Wisconsin-Madison
Katherine Magnuson, PhD; University of Wisconsin-Madison
Study Management
Lauren Meyer, Teachers College, Columbia University; National Project Director
Andrea Karsh, University of California, Irvine; Administrative Director
Matthew Maury, Duke University, Production and Retention Management
Study Co-Investigators
Sarah Black, PhD; University of New Orleans
William Fifer, PhD; Sackler Institute for Developmental Psychobiology, Columbia University Medical Center
Michael Georgieff, MD; University of Minnesota
Joseph Isler, PhD; Columbia University Medical Center
Debra Karhson, PhD; University of New Orleans
Alicia Kunin-Batson, PhD, University of Minnesota
Connie Lamm, PhD; University of Arkansas
Dennis Molfese, PhD; University of Nebraska, Lincoln
Victoria Molfese, PhD; University of Nebraska, Lincoln
Jennifer Mize Nelson, PhD; University of Nebraska, Lincoln
Timothy Nelson, PhD; University of Nebraska, Lincoln
Sonya Troller-Renfree, PhD; Teachers College, Columbia University
Study Data Collectors
The Survey Research Center, Institute for Social Research, University of Michigan, Ann Arbor, is responsible for recruitment and baseline, age-1, age-2, and age-3 data collection waves. Starting at age-4 through age-8, SRC is responsible for tracking families and assisting site-based staff in locating families. SRC data collection operations are overseen by: Stephanie Chardoul, Director of Survey Research Operations and Piotr Dworak, Senior Survey Specialist, Survey Research Operations.
Contact
To contact the study investigators, email them at [email protected]
Website: babysfirstyears.com
EMERGE DHS Family Planning Measures Pilot (ICPSR 210961)
- Pregnancy history and outcomes
- Contraceptive use and decision-making
- Antenatal and postnatal care
- Partner involvement in reproductive health
- Control over earnings and assets
- Household decision-making
- Freedom of movement
- Digital access and autonomy
- Physical, emotional and sexual violence
- Help-seeking behaviors
- Community safety
- Support systems
- Group membership and leadership
- Social support networks
- Political participation
- Community involvement
Risk Factors for Placental Malaria, Sulfadoxine-pyrimethamine Doses, and Birth Outcomes in a Rural to Urban Prospective Cohort Study on the Bandiagara Escarpment and Bamako, Mali, 2011-2019 (ICPSR 39037)
Placental malaria is associated with maternal illness and anemia, low birth weight, and preterm birth. Mali has one of the highest malaria case incidence rates globally, according to World Health Organization (WHO) reports on malaria. Using a rural to urban longitudinal cohort of women who initially resided on the Bandiagara Escarpment at study enrollment, this observational study addressed the following questions:
- Was risk for placental malaria higher in Bamako (urban) or on the Bandiagara Escarpment (rural)?
- What were the maternal risk factors for placental malaria in this cohort?
- What was the association between number of intermittent preventative treatment in pregnancy with sulfadoxine-pyrimethamine (IPTp-SP) doses, placental malaria, and birth outcomes?
- What factors predicted how many doses women received?
Placental samples (N = 317) and accompanying demographic data were collected from 249 women living on the Bandiagara Escarpment or in the District of Bamako during the years 2011 to 2019. Samples were evaluated by histology to assess placental malaria infection stage and parasite density. Generalized estimating equations (GEE) for logistic regression were used to model the risk factors for placental malaria infection (yes/no) and to assess the characteristics of women who had no doses or fewer doses of SP versus 3 or more doses of SP during pregnancy. Lastly, GEE was used to model birth outcomes as continuous dependent variables (birth weight, birth length, and placenta weight).
Tsogolo La Thanzi (TLT): Postpartum Data, Malawi, 2009-2012 [Healthy Futures] (ICPSR 38494)
Tsogolo la Thanzi (TLT) is a longitudinal study in Balaka, Malawi designed to examine how young people navigate reproduction in an AIDS epidemic. Tsogolo la Thanzi means "Healthy Futures" in Chichewa, Malawi's most widely spoken language. Data are being collected to develop better understandings of the reproductive goals and behavior of young adults in Malawi -- the first cohort to never have experienced life without AIDS. To understand these patterns of family formation in a rapidly changing setting, TLT used the following approach: an intensive longitudinal design where respondents were interviewed every four months at TLT's centralized research center. Data collection began in May of 2009 and was completed in June of 2012. To assess changes on a longer time-horizon, a follow-up survey referred to as Tsogolo la Thanzi 2 (TLT-2) was fielded between June and August of 2015.
This dataset is a supplementary survey module that was administered to women TLT participants during waves 2 to 8 who reported having a new birth since their last interview, and to those in the refresher sample (wave 9) who reported a recent birth in the past 4 months. The survey focused on several aspects of the childbirth experience and the mother's and child's postpartum health.
"Your Child's Teeth" Project, 1991-1993: [New York City] (ICPSR 6578)
Understanding Incarceration and Re-Entry Experiences of Female Inmates and Their Children: The Women's Prison Inmate Networks Study (WO-PINS), Pennsylvania, 2017-2018 (ICPSR 38003)
This study advances the understanding of incarceration and reentry, and their consequences for women by focusing on prison social systems and their informal network structures. The data for this project are aimed at four research questions: (1) What is the informal social structure within prison? (2) How are inmates' positions within the informal structure correlated with their health? (3) What are the consequences of informal social structure and inmates' positions within it for inmate-level and prison-level outcomes? and (4) How does in-prison and out-of-prison social capital correspond with community reentry and family reintegration?
In phase 1, network data were collected for "get along with best" and "power and influence" nominations along with survey data to contextualize the measured networks. In phase 2, semi-structured interviews were conducted with eligible respondents to gather expectations for re-entry and anticipated egocentric support networks. Phase 3 followed paroled inmates for two subsequent interviews, and also gathered interviews with their children, and the children's caretakers. Administrative records were used to construct a recidivism supplement that is appropriate for modeling the hazard of recidivism following release. Behavioral data are combined from multiple sources, including inmate surveys, prison work records, misconduct records, drug tests, visitation lists, and gang classification data.
Comparison of Perinatal and Neonatal Outcomes of Very Advanced Maternal Aged Pregnants and Early Adolescent Pregnant Women (ICPSR 176701)
Official Crime Rates of Participants in Trials of the Nurse-Family Partnership, Denver, Elmira, New York, and Memphis, 1977-2005 (ICPSR 36580)
These data are part of NACJD's Fast Track Release and are distributed as they were received from the data depositor. The files have been zipped by NACJD for release, but not checked or processed except for the removal of direct identifiers. Users should refer to the accompanying readme file for a brief description of the files available with this collection and consult the investigator(s) if further information is needed.
This study examined maternal and youth self-reports of arrests and convictions with official records of crime among participants in three randomized controlled trials of the Nurse-Family Partnership (NFP) in Denver, Colorado, Elmira, New York, and Memphis, Tennessee.
Official records were obtained from third-party sources as well as directly from New York State Division of Criminal Justice Services.
The collection contains 10 SAS data files:
- dmom_all.sas7bdat (n=735; 3 variables)
- dmom_control.sas7bdat (n=247; 26 variables)
- echild_all.sas7bdat (n=374; 4 variables)
- echild_control.sas7bdat (n=173; 22 variables)
- emom_all.sas7bdat (n=399; 4 variables)
- emom_control.sas7bdat (n=184; 17 variables)
- mchild_all.sas7bdat (n=708; 5 variables)
- mchild_control.sas7bdat (n=482; 46 variables)
- mmom_all.sas7bdat (n=742; 5 variables)
- mmom_control.sas7bdat (n=514; 25 variables)
Demographic variables include race, ethnicity, highest grade completed, household income, marital status, housing density, maternal age, maternal education, husband/boyfriend education, and head of household employment status.
Child Exposure to Intimate Partner Violence and Parent Aggression in Two Generations, United States, 2016-2018 (ICPSR 37185)
These data are part of NACJD's Fast Track Release and are distributed as they were received from the data depositor. The files have been zipped by NACJD for release, but not checked or processed except for the removal of direct identifiers. Users should refer to the accompanying readme file for a brief description of the files available with this collection and consult the investigator(s) if further information is needed.
The research purpose of this project was to advance the scientific understanding of children's exposure to family violence and children's adjustment. This research examined the prevalence of child exposure to psychological and physical Intimate Partner Violence (IPV) and parent-to-child aggression (PCA), proximal associations with child externalizing and internalizing behavior, social and scholastic competence in early childhood and adolescence, and the developmental timing and intergenerational transmission of exposure to IPV and PCA related to child externalizing behavior. The study also looked at child effortful control and positive parenting as risk and protective factors theorized to mediate associations between child exposure to family violence and later child adjustment. Secondary analyses were conducted using a prospective multigenerational data set involving community families from lower socioeconomic status backgrounds that comprise the Three Generational Study.
The study collection includes 3 SPSS (.sav) files. The zip file includes CEV_3GS4_Cooccur_itemsB_12212018.sav (n= 283; 356 variables), CEV_3GS7_Cooccur_itemsB_12212018.sav (n= 184; 341 variables), CEV_OYS5_Cooccur_itemsC_12212018.sav (n= 206; 368 variables).
Dating Abuse Prevention in Teens of Moms with Domestic Violence Protection Orders, North Carolina, 2010-2011 (ICPSR 33381)
These data are part of NACJD's Fast Track Release and are distributed as they were received from the data depositor. The files have been zipped by NACJD for release, but not checked or processed except for the removal of direct identifiers. Users should refer to the accompanying readme file for a brief description of the files available with this collection and consult the investigator(s) if further information is needed.
Children exposed to domestic violence are at increased risk of experiencing and perpetrating violence against their partners when they become adolescents and adults. Despite this increased risk and the fact that approximately 15 million children are exposed to domestic violence yearly, there have been no evaluated dating abuse prevention programs conducted specifically with this population.
The collection contains 2 SAS data files: baseline_final.sas (n=51; 465 variables) and followup_final.sas (n=32; 463 variables).
NICHD Study of Early Child Care and Youth Development: Phase I, 1991-1994 [United States] (ICPSR 21940)
The overall purpose of this study was to examine the influence of variations in early childcare histories on the psychological development of infants and toddlers from a variety of family backgrounds. This general objective was addressed through a prospective, longitudinal study of the experiences of 1,364 children and their families, which took into account the complex interactions among child characteristics and those of the human and physical environments in which the children were reared.
Research GoalsThe specific research aims were as follows:
Examining the relationship between infants' childcare arrangements (defined in terms of hours, type, quality, and stability of care and the age at which the child entered care) and children's concurrent and long-term development. Specifically, the study investigated the association between children's experiences in childcare and their social, emotional, language, and cognitive development. The social-emotional assessments included measures of attachment, independence, compliance, behavior problems, prosocial and antisocial behavior, and general competence in interacting with peers. Cognitive variables include general developmental level and problem solving skills. Language assessments incorporated measures of children's expressive and receptive communicative competence.
Examining whether the social ecology of the home moderates the effects of childcare, i.e., whether children from different home environments are differentially affected by similar childcare experiences. The study examined the moderating effects of parents' values and attitudes, psychological adjustment and mental health, stress and social support, child-rearing practices, time use, interactions with the child, the marital relationship, and family demographics.
Examining whether individual differences among children moderate the effects of infant care on child development. The study examined the moderating effects of such child characteristics as age, sex, health, birth order, and temperament.
Identify demographic and family characteristics associated with families' childcare decisions. The study examined whether specific childcare arrangements are related to the parents' social class, marital status, psychological adjustment and personality, child-rearing values and attitudes, parenting practices, stress, social support, marital relationship, and the availability of childcare in the community.
Provide a natural history of infant care in the 1990s, and help establish a baseline of data pertaining to the kinds of care being used by families. Whereas other national databases, such as those provided by the United States Census Bureau, provide static estimates of the number of children in different types of childcare, this network study supplements that knowledge with longitudinal data on successive enrollments into day care at various ages, patterns of arrangements used concurrently and over time, and the stability of arrangements during the first three years of life. One of the most valuable aspects of the collaborative study is the opportunity it provides to obtain a more complete and accurate picture of patterns of infant care used by families today. Census surveys use only gross categories of care (e.g., center vs. in-home). In this study, more fine-grained information regarding the types of centers and home-care facilities was gathered.
Examine the consequences for families of maternal employment and childcare choices. Family relationships, parental mental health, family stress, and so on, are not just inputs to child development or moderators of childcare effects, they are also outcomes. High-quality childcare may alleviate family stress and enhance parental adjustment. Low-quality childcare may add to the stress parents experience. Although the main focus in the study was on the effect of childcare on the child, the study also examined the effect of childcare on the family.
Identify demographic characteristics of childcare associated with childcare quality. Of interest to policy makers is another aspect of the study, the investigation of those regulatory characteristics that predict care of higher quality. These characteristics included the level and type of caregiver training, the size of the childcare group, the auspices of the childcare program (public/private, profit/nonprofit, independent/chain, employer-sponsored/church-based), whether the facility was licensed or unlicensed, the level of payment and fees, and whether the caregiver was a relative of the family.
309 data files were compiled for this study and are organized into 3 main groups:
Analytical Data Sets (ADS) -- The raw data were examined and composites defined by small groups of individual principal investigators according to the demographic, family, childcare, and child outcome content of the data. The psychometric and distributional qualities of the variables, along with site differences, were examined. A set of variables that were psychometrically and distributionally acceptable to be used in analytic analyses was designed to test the study hypotheses. These data files comprise Parts 1-42 of the study data material.
Supplemental Data Sets -- New and revised analysis variables as well as across-time mean scores and primary composites were produced as a supplement to the original Analytical Datasets. These data files comprise Parts 43-55 of the study data material.
Raw Data Sets -- The raw data were made available and comprise Parts 56-309 of the study data material.
A three-day summer training workshop on the SECCYD was put on by NICHD at the Inter-University Consortium for Political and Social Research in Ann Arbor, Michigan in 2010. The binder from that workshop, which includes the Powerpoint slides used during presentations, are freely available to the public as part of the study documentation.
NICHD Study of Early Child Care and Youth Development: Phase II, 1995-1999 [United States] (ICPSR 21941)
The overall purpose of this study was to examine the influence of variations in early childcare histories on the psychological development of infants and toddlers from a variety of family backgrounds. This general objective was addressed through a prospective, longitudinal study of the experiences of 1,364 children and their families, which took into account the complex interactions among child characteristics and those of the human and physical environments in which the children were reared.
Research GoalsThe specific research aims were as follows:
Examining the relationship between infants' childcare arrangements (defined in terms of hours, type, quality, and stability of care and the age at which the child entered care) and children's concurrent and long-term development. Specifically, the study investigated the association between children's experiences in childcare and their social, emotional, language, and cognitive development. The social-emotional assessments included measures of attachment, independence, compliance, behavior problems, prosocial and antisocial behavior, and general competence in interacting with peers. Cognitive variables include general developmental level and problem solving skills. Language assessments incorporated measures of children's expressive and receptive communicative competence.
Examining whether the social ecology of the home moderates the effects of childcare, i.e., whether children from different home environments are differentially affected by similar childcare experiences. The study examined the moderating effects of parents' values and attitudes, psychological adjustment and mental health, stress and social support, child-rearing practices, time use, interactions with the child, the marital relationship, and family demographics.
Examining whether individual differences among children moderate the effects of infant care on child development. The study examined the moderating effects of such child characteristics as age, sex, health, birth order, and temperament.
Identify demographic and family characteristics associated with families' childcare decisions. The study examined whether specific childcare arrangements are related to the parents' social class, marital status, psychological adjustment and personality, child-rearing values and attitudes, parenting practices, stress, social support, marital relationship, and the availability of childcare in the community.
Provide a natural history of infant care in the 1990s, and help establish a baseline of data pertaining to the kinds of care being used by families. Whereas other national databases, such as those provided by the United States Census Bureau, provide static estimates of the number of children in different types of childcare, this network study supplements that knowledge with longitudinal data on successive enrollments into day care at various ages, patterns of arrangements used concurrently and over time, and the stability of arrangements during the first three years of life. One of the most valuable aspects of the collaborative study is the opportunity it provides to obtain a more complete and accurate picture of patterns of infant care used by families today. Census surveys use only gross categories of care (e.g., center vs. in-home). In this study, more fine-grained information regarding the types of centers and home-care facilities was gathered.
Examine the consequences for families of maternal employment and childcare choices. Family relationships, parental mental health, family stress, and so on, are not just inputs to child development or moderators of childcare effects, they are also outcomes. High-quality childcare may alleviate family stress and enhance parental adjustment. Low-quality childcare may add to the stress parents experience. Although the main focus in the study was on the effect of childcare on the child, the study also examined the effect of childcare on the family.
Identify demographic characteristics of childcare associated with childcare quality. Of interest to policy makers is another aspect of the study, the investigation of those regulatory characteristics that predict care of higher quality. These characteristics included the level and type of caregiver training, the size of the childcare group, the auspices of the childcare program (public/private, profit/nonprofit, independent/chain, employer-sponsored/church-based), whether the facility was licensed or unlicensed, the level of payment and fees, and whether the caregiver was a relative of the family.
193 data files were compiled for this study and are organized into 3 main groups:
Analytical Data Sets (ADS) -- The raw data were examined and composites defined by small groups of individual principal investigators according to the demographic, family, childcare, and child outcome content of the data. The psychometric and distributional qualities of the variables along with site differences were examined. A set of variables that was psychometrically and distributionally acceptable to be used in analytic analyses was designed to test the study hypotheses. These data files comprise Parts 1-24 of the study data material.
Supplemental Data Sets -- New and revised analysis variables as well as across-time mean scores and primary composites were produced as a supplement to the original Analytical Data Sets. These data files comprise Parts 25-27 of the study data material.
Raw Data Sets -- The raw data were made available and comprise Parts 28-193 of the study data material.
A three-day summer training workshop on the SECCYD was put on by NICHD at the Inter-University Consortium for Political and Social Research in Ann Arbor, Michigan in 2010. The binder from that workshop, which includes the Powerpoint slides used during presentations, are freely available to the public as part of the study documentation.
NICHD Study of Early Child Care and Youth Development: Phase III, 2000-2004 [United States] (ICPSR 21942)
The overall purpose of this study was to examine the influence of variations in early childcare histories on the psychological development of infants and toddlers from a variety of family backgrounds. This general objective was addressed through a prospective, longitudinal study of the experiences of 1,364 children and their families, which took into account the complex interactions among child characteristics and those of the human and physical environments in which the children were reared.
Research GoalsThe specific research aims were as follows:
Examining the relationship between infants' childcare arrangements (defined in terms of hours, type, quality, and stability of care and the age at which the child entered care) and children's concurrent and long-term development. Specifically, the study investigated the association between children's experiences in childcare and their social, emotional, language, and cognitive development. The social-emotional assessments included measures of attachment, independence, compliance, behavior problems, prosocial and antisocial behavior, and general competence in interacting with peers. Cognitive variables include general developmental level and problem solving skills. Language assessments incorporated measures of children's expressive and receptive communicative competence.
Examining whether the social ecology of the home moderates the effects of childcare, i.e., whether children from different home environments are differentially affected by similar childcare experiences. The study examined the moderating effects of parents' values and attitudes, psychological adjustment and mental health, stress and social support, child-rearing practices, time use, interactions with the child, the marital relationship, and family demographics.
Examining whether individual differences among children moderate the effects of infant care on child development. The study examined the moderating effects of such child characteristics as age, sex, health, birth order, and temperament.
Identify demographic and family characteristics associated with families' childcare decisions. The study examined whether specific childcare arrangements are related to the parents' social class, marital status, psychological adjustment and personality, child-rearing values and attitudes, parenting practices, stress, social support, marital relationship, and the availability of childcare in the community.
Provide a natural history of infant care in the 1990s, and help establish a baseline of data pertaining to the kinds of care being used by families. Whereas other national databases, such as those provided by the United States Census Bureau, provide static estimates of the number of children in different types of childcare, this network study supplements that knowledge with longitudinal data on successive enrollments into day care at various ages, patterns of arrangements used concurrently and over time, and the stability of arrangements during the first three years of life. One of the most valuable aspects of the collaborative study is the opportunity it provides to obtain a more complete and accurate picture of patterns of infant care used by families today. Census surveys use only gross categories of care (e.g., center vs. in-home). In this study, more fine-grained information regarding the types of centers and home-care facilities was gathered.
Examine the consequences for families of maternal employment and childcare choices. Family relationships, parental mental health, family stress, and so on, are not just inputs to child development or moderators of childcare effects, they are also outcomes. High-quality childcare may alleviate family stress and enhance parental adjustment. Low-quality childcare may add to the stress parents experience. Although the main focus in the study was on the effect of childcare on the child, the study also examined the effect of childcare on the family.
Identify demographic characteristics of childcare associated with childcare quality. Of interest to policy makers is another aspect of the study, the investigation of those regulatory characteristics that predict care of higher quality. These characteristics included the level and type of caregiver training, the size of the childcare group, the auspices of the childcare program (public/private, profit/nonprofit, independent/chain, employer-sponsored/church-based), whether the facility was licensed or unlicensed, the level of payment and fees, and whether the caregiver was a relative of the family.
504 data files were compiled for this study and are organized into 4 main groups:
Analytical Data Sets (ADS) -- The raw data were examined and composites defined by small groups of individual principal investigators according to the demographic, family, childcare, and child outcome content of the data. The psychometric and distributional qualities of the variables along with site differences were examined. A set of variables that was psychometrically and distributionally acceptable to be used in analytic analyses was designed to test the study hypotheses. These data files comprise Parts 1-49 of the study data material.
Supplemental Data Sets -- New and revised analysis variables as well as across-time mean scores and primary composites were produced as a supplement to the original Analytical Data Sets. These data files comprise Parts 50-55 of the study data material.
Raw Census-Related Data Sets -- Files were produced using geocoded addresses for survey respondents to match block group level data from the 1990 and 2000 Censuses for investigators to create additional measures of interest from the geocoded addresses. These data files comprise Parts 56-58 of the study data material.
Raw Data Sets -- The raw data were made available and comprise Parts 59-505 of the study data material.
A three-day summer training workshop on the SECCYD was put on by NICHD at the Inter-University Consortium for Political and Social Research in Ann Arbor, Michigan in 2010. The binder from that workshop, which includes the Powerpoint slides used during presentations, are freely available to the public as part of the study documentation.
NICHD Study of Early Child Care and Youth Development: Phase IV, 2005-2007 [United States] (ICPSR 22361)
The overall purpose of this study was to examine the influence of variations in early childcare histories on the psychological development of infants and toddlers from a variety of family backgrounds. This general objective was addressed through a prospective, longitudinal study of the experiences of 1,364 children and their families, which took into account the complex interactions among child characteristics and those of the human and physical environments in which the children were reared.
Research GoalsThe specific research aims were as follows:
Examining the relationship between infants' childcare arrangements (defined in terms of hours, type, quality, and stability of care and the age at which the child entered care) and children's concurrent and long-term development. Specifically, the study investigated the association between children's experiences in childcare and their social, emotional, language, and cognitive development. The social-emotional assessments included measures of attachment, independence, compliance, behavior problems, prosocial and antisocial behavior, and general competence in interacting with peers. Cognitive variables include general developmental level and problem solving skills. Language assessments incorporated measures of children's expressive and receptive communicative competence.
Examining whether the social ecology of the home moderates the effects of childcare, i.e., whether children from different home environments are differentially affected by similar childcare experiences. The study examined the moderating effects of parents' values and attitudes, psychological adjustment and mental health, stress and social support, child-rearing practices, time use, interactions with the child, the marital relationship, and family demographics.
Examining whether individual differences among children moderate the effects of infant care on child development. The study examined the moderating effects of such child characteristics as age, sex, health, birth order, and temperament.
Identify demographic and family characteristics associated with families' childcare decisions. The study examined whether specific childcare arrangements are related to the parents' social class, marital status, psychological adjustment and personality, child-rearing values and attitudes, parenting practices, stress, social support, marital relationship, and the availability of childcare in the community.
Provide a natural history of infant care in the 1990s, and help establish a baseline of data pertaining to the kinds of care being used by families. Whereas other national databases, such as those provided by the United States Census Bureau, provide static estimates of the number of children in different types of childcare, this network study supplements that knowledge with longitudinal data on successive enrollments into day care at various ages, patterns of arrangements used concurrently and over time, and the stability of arrangements during the first three years of life. One of the most valuable aspects of the collaborative study is the opportunity it provides to obtain a more complete and accurate picture of patterns of infant care used by families today. Census surveys use only gross categories of care (e.g., center vs. in-home). In this study, more fine-grained information regarding the types of centers and home-care facilities was gathered.
Examine the consequences for families of maternal employment and childcare choices. Family relationships, parental mental health, family stress, and so on, are not just inputs to child development or moderators of childcare effects, they are also outcomes. High-quality childcare may alleviate family stress and enhance parental adjustment. Low-quality childcare may add to the stress parents experience. Although the main focus in the study was on the effect of childcare on the child, the study also examined the effect of childcare on the family.
Identify demographic characteristics of childcare associated with childcare quality. Of interest to policy makers is another aspect of the study, the investigation of those regulatory characteristics that predict care of higher quality. These characteristics included the level and type of caregiver training, the size of the childcare group, the auspices of the childcare program (public/private, profit/nonprofit, independent/chain, employer-sponsored/church-based), whether the facility was licensed or unlicensed, the level of payment and fees, and whether the caregiver was a relative of the family.
158 data files were compiled for this study and are organized into 4 main groups:
Analytical Data Sets (ADS)-- The raw data were examined and composites defined by small groups of individual principal investigators according to the demographic, family, childcare, and child outcome content of the data. The psychometric and distributional qualities of the variables along with site differences were examined. A set of variables that was psychometrically and distributionally acceptable to be used in analytic analyses was designed to test the study hypotheses. These data files comprise Parts 1-19 of the study data material.
Supplemental Data Sets -- New and revised analysis variables as well as across-time mean scores and primary composites were produced as supplements to the original Analytical Data Sets. These data files are Parts 20-26 of the study data material.
Raw Census-Related Data Sets -- Files were produced using geocoded addresses for survey respondents to match block group-level data from the 1990 and 2000 Censuses for investigators to create additional measures of interest from the geocoded addresses. These data files comprise Parts 27-30 of the study data material.
Raw Data Sets -- The raw data were made available and comprise Parts 31-158 of the study data material.
Included in this phase of the study are the output of several third-party software programs that were used during Phases II, III and IV to collect data for specific tasks or activities. These programs produced one output data file per subject, which were combined to produce some of the raw data files for those studies. The original program output is included as expanded documentation in this phase of the study.
Training WorkshopA three-day summer training workshop on the SECCYD was put on by NICHD at the Inter-University Consortium for Political and Social Research in Ann Arbor, Michigan in 2010. The binder from that workshop, which includes the Powerpoint slides used during presentations, are freely available to the public as part of the study documentation.
Parents And Children Coping Together (PACT I Child), Los Angeles, California, 1997-2002 (ICPSR 35194)
Parents And Children Coping Together (PACT) was designed to longitudinally assess mothers in Los Angeles county living with HIV (MLHs) and their young, well children age 5 to 11 years old. The PACT sample was followed every 6 months for 30 months. The study utilizes longitudinal data from children/adolescent and mother dyads to investigate the effects of maternal HIV and family variables on adolescent sexual behavior. Specific aims were to:
- Evaluate longitudinally youth adjustment (i.e., mental health, behavioral adjustment, social outcomes) including measures for young children. Measures included developmentally appropriate youth and maternal mental health measures (e.g., Children's Depression Inventory for youths age under 18; Beck Depression Inventory for youths age equal to or greater than 18), assessment of maternal physical health, assessment of child behaviors, and family functioning.
- Evaluate youth characteristics from across developmental periods that may moderate or mediate the impact of MLHs' chronic illness on patterns of youth adjustment over time, including: (a) background factors of age, gender, ethnicity; and (b) moderating and mediating factors, such as self-concept, family cohesion, the parent-child relationship, HIV/AIDS knowledge, perceived stigma, autonomy, and parent-adolescent separation.
- Evaluate maternal characteristics that may moderate or mediate the impact of MLHs' chronic illness on the youth (e.g., illness severity, mental health status, social support, parenting skills).
Survey of Serbian mothers (2015) (ICPSR 100196)
Maternal Lifestyle Study in Four Sites in the United States, 1993-2011 (ICPSR 34312)
The Maternal Lifestyle Study (MLS) was the largest of the NIH longitudinal studies of children with prenatal cocaine exposure (PCE). MLS was a longitudinal multi-site observational study of the long-term effects of in-utero exposure to cocaine on child development. MLS was conducted at four geographically diverse, collaborating university centers (Wayne State University, University of Tennessee at Memphis, University of Miami, and Brown University). Participants were identified during the newborn period while in the hospital. The MLS began enrollment of a longitudinal birth cohort of 1,388 infant/mother dyads in 1993. Subjects in the follow-up were seen from 1 month of age through 16 years of age. The overall purpose of the study was to investigate the effects of drug use during pregnancy on acute neonatal events and long-term physical health, social, behavioral and neurodevelopmental outcomes.
The study included five phases of data collection. The first phase examined acute effects of maternal substance use on infant health outcomes at birth. The four subsequent follow-up phases examined development across the following periods: Phase II -- 1-36 months; Phase III -- 4-7 years; Phase IV -- 8-11 years; Phase V -- 12-16 years. In Phase I, the study screened 19,079 infants between May 1993 and May 1995. Mothers at these centers were enrolled in the study within 24 hours after delivery. Initial screening included the mother's labor and delivery chart, the newborn admission chart, and a meconium sample. Infant meconium was collected and samples were express shipped to a central laboratory for analysis of metabolites of illicit drugs. Additionally, a drug use questionnaire that addressed the mother's use during pregnancy of nicotine, alcohol, marijuana, cocaine, opiates, and other illicit drugs was given by research staff that were trained and certified in the reliable administration of all of the study interviews. A mother-child dyad was considered exposed if a mother admitted to using cocaine during pregnancy and/or there was a positive meconium assay for cocaine metabolites including gas chromatography/mass spectrometry confirmation. Nonexposed children were those who were born to mothers who denied cocaine use, confirmed by negative meconium test results. Acute outcomes evaluated in Phase I included: central nervous system (CNS) and autonomic nervous system (ANS) findings and symptoms, abruption placenta, fetal growth retardation, congenital malformations, respiratory distress syndrome, chronic lung disease, intraventricular hemorrhage, necrotizing enterocolitis, retinopathy of prematurity, and periventricular leukomalacia.
From the initial Phase I cohort of 8,627 dyads, 1,388 participants for the longitudinal follow-up were recruited at a 1-month visit. The sample included a cohort of exposed infants (n = 658) who were group matched within site with a group of non-exposed comparison infants (n=730) by gestational age categories (32, 33-36, and 36 weeks) and child gender, race, and ethnicity. At the 1-month visit, the biological mother was interviewed for a detailed inventory of her legal and illegal drug use during pregnancy using the Maternal Interview of Substance Use (MISU). Phase II examined the first 36 months of life for the sample of 1,388. Follow-up visits occurred at 1, 4, 7, 9, 12, 18, 24, and 36 months (corrected age). Outcomes examined included physical health, developmental, behavioral, social, and environmental outcomes. Phase III followed children at 4, 4.5, 5, 6, and 7 years. In addition to outcomes examined in Phase II, school performance and neurodevelopmental measures of emotional and behavioral self-regulation were also examined. Phase IV covers ages 8, 9, 10, and 11 years of age. Outcomes in this phase were further expanded to include antisocial behavior, onset of substance use, psychopathology, and neuroendocrine function. Phase V assessed children at ages 12, 13, 14, 15, and 16 years of age. The fifth phase of the study has a significant emphasis on psychopathology, school performance, peer relationships, substance use onset and risk taking behaviors, including risky sexual behaviors.
Time, Love, and Cash in Couples With Children Study (TLC3) [United States], 2000-2005 (ICPSR 22462)
Puerto Rican Maternal and Infant Health Study (PRMIHS), 1994-1995 (ICPSR 36238)
Fragile Families and Child Wellbeing in Adolescence (ICPSR 35981)
Mode of First Delivery and Subsequent Child-bearing (ICPSR 35924)
Childbearing Dynamics in Setting of High HIV Prevalence and Massive ART Rollout (ICPSR 35946)
Maternal Behavior Among Puerto Rican Adolescent Mothers (ICPSR 35892)
Influences of Women's Empowerment on Marriage and Violence in Bangladesh (ICPSR 35858)
Nonstandard Maternal Work Schedules and Child Health in Impoverished Families (ICPSR 35852)
Welfare, Children, and Families: A Three-City Study (ICPSR 4701)
CBS News/New York Times National Poll, May #1, 2011 (ICPSR 33963)
Explaining Low Fertility in Italy (ELFI) (ICPSR 31881)
The ethnographic fieldwork portion of the project - interviews with women of reproductive age, and when available their partners and mothers - was initiated and completed in 2006. For each of four Italian cities (Padua, Bologna, Cagliari, and Naples) studied ethnographically by trained anthropologists, both a working-class and a middle-class neighborhood were identified. These interviews (349 in number) have been transcribed without identifiers. All interviews have been coded and assigned 'attributes' (or nominative variables, such as gender, civil/religious status of marriage, etc.) using the qualitative data analysis software (NVIVO), and these reside in secure electronic project folders. This large body of qualitative interview data is now complete and ready for use across the international collaborative units. Preliminary research reveals the particular significance of family ties in Italy, the fundamental role played by gender systems, and the specific cultural, socio-economic, and politic contexts in which fertility behavior and parenting are embedded.
Detroit Area Study, 1962: Family Growth in Detroit (ICPSR 7401)
The main focus of this data collection was women's attitudes toward family and family size. The women interviewed for this study answered questions on past pregnancies and described their attitudes toward large and small families, their reasons for having children, and the nature of their own patterns of family growth. Extensive family background information was also collected, including data on occupation of respondent and husband, age of respondent and husband, education of respondent and husband and their parents, family income, types of savings, and housing information.
Detroit Area Study, 1953: Child Training Patterns Among Urban Families and Attitudes and Perceptions of Consensus of Group Members (ICPSR 7317)
This study contains data on child-rearing practices of mothers of children aged 18 and younger. The study was a combination of two studies: CHILD REARING PATTERNS AMONG URBAN FAMILIES by Daniel Miller and Guy Swanson, and ATTITUDES AND PERCEPTIONS OF CONSENSUS OF GROUP MEMBERS by Theodore Newcomb. Respondents were asked about their children's habits, toilet training, and bottle- and breast-feeding patterns. Respondents were also asked about their child-rearing practices, attitudes about children, views of child-appropriate and sex-appropriate tasks, handling of difficult situations with their children, and use of leisure time. Other questions explored respondents' political interests, social life, and friends. They were asked if they voted for Adlai Stevenson or Dwight Eisenhower in the last American presidential election and why. The respondents were questioned about their three best friends to determine how frequently they visited with them, how often they discussed the election with them, whom they voted for and what kind of jobs their husbands held. Demographic variables specify age, sex, race, education, place of birth, length of residence in the Detroit area, home ownership, length of time at present residence, marital status, number of children, original nationality of husband's family, income, occupation, religious preferences, and class identification.