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External data

The Mitigating Effects of Telehealth Uptake on Disparities in Maternal Care Access, Quality, Outcomes, and Expenditures, United States, 2018-2022 (ICPSR 39023)

Released/updated on: 2026-03-18
Geographic coverage: United States
Time period: 2018-01-01--2022-12-31

This study explores whether perinatal telehealth uptake has mitigated the pandemic's effects on disparities in maternal care access, quality, and outcomes by race, ethnicity, and rural or urban residence. Research to date has approached this question in several ways. First, researchers have utilized census data to assess whether community-wide broadband infrastructure exists to support the use of telehealth services in areas with high travel times to maternal care units. Findings suggest that socioeconomically disadvantaged communities face significant barriers to maternity care access, both with substantial travel burdens and inadequate digital access to facilitate telehealth services. Second, to examine maternal care quality, researchers have employed South Carolina hospital-based claims data and vital statistics to identify racial, ethnic, and urban/rural disparities in rates of cesarean delivery before and during the COVID-19 pandemic period. Results indicate that cesarean rates differed by rural vs. urban facility locations and racial and ethnic groups but observed disparities were not significantly exacerbated by the pandemic. Third, using South Carolina hospital-based claims data and COVID-19 testing data, researchers found significant racial, ethnic, and rural disparities in postpartum readmissions involving mental health and substance use disorders from childbirth discharge through one year postpartum during the COVID-19 pandemic. Finally, drawing on data from the National COVID Cohort Collaborative (N3C), research has shown that hybrid care increased substantially during the COVID-19 public health emergency, but pregnant people living in rural areas had lower levels of hybrid care than urban people, and individuals who belonged to racial and ethnic minority groups were more likely to have hybrid care than White individuals.

Future research will investigate the impact of the COVID-19 pandemic and perinatal telehealth uptake on additional maternity care and birth outcomes by race, ethnicity, and urbanicity. The study also aims to assess how state-level telehealth policies relate to perinatal telehealth uptake by race, ethnicity, and urbanicity, and to develop a model to predict long-term changes in maternal care access, quality, outcomes, and expenditures, with and without state telehealth policies.

The ICPSR provides variable-level metadata for the data associated with this study. The actual data may only be available from the Principal Investigator directly. The variable descriptions available through ICPSR also include information regarding the source of each variable listed, as does the Data Source field of these metadata.

External data

National Family Health Survey (NFHS), India, 1992-2021 (ICPSR 39549)

Released/updated on: 2025-10-14
Geographic coverage: India
Time period: 1992-01-01--1993-12-31, 1998-01-01--1999-12-31, 2005-01-01--2006-12-31, 2015-01-01--2016-12-31, 2019-01-01--2021-12-31

The National Family Health Survey (NFHS) is a large-scale, multi-round survey providing information on fertility, infant and child mortality, the practice of family planning, maternal and child health, reproductive health, nutrition, anemia, and utilization and quality of health and family planning services in India.

The First National Family Health Survey (NFHS-1) was conducted in 1992-93. The survey collected extensive information on population, health, and nutrition, with an emphasis on women and young children. Eighteen Population Research Centres (PRCs), located in universities and institutes of national repute, assisted IIPS in all stages of conducting NFHS-1. All the state-level and national-level reports for the survey have already been published (48 reports in all).

The Second National Family Health Survey (NFHS-2) was conducted in 1998-99 in all 26 states of India with added features on the quality of health and family planning services, domestic violence, reproductive health, anemia, the nutrition of women, and the status of women. The results of the survey are currently being published.

The Third National Family Health Survey (NFHS-3) was carried out in 2005-2006. Eighteen Research Organizations including five Population Research Centres carried out the survey in 29 states of India. The funding for NFHS-3 is provided by USAID, DFID, the Bill and Melinda Gates Foundation, UNICEF, UNFPA, and MOHFW, GOI., ICF (USA), is providing technical assistance for NFHS-3, and the National AIDS Control Organization (NACO) and the National AIDS Research Institute (NARI) are providing technical assistance for the HIV component.

The 2015-16 National Family Health Survey (NFHS-4), the fourth in the NFHS series, provides information on population, health, and nutrition for India and each state and union territory. All four NFHS surveys have been conducted under the stewardship of the Ministry of Health and Family Welfare (MoHFW), Government of India. MoHFW designated the International Institute for Population Sciences (IIPS), Mumbai, as the nodal agency for all of the surveys. Funding for NFHS-4 was provided by the United States Agency for International Development (USAID), the United Kingdom Department for International Development (DFID), the Bill and Melinda Gates Foundation (BMGF), UNICEF, UNFPA, the MacArthur Foundation, and the Government of India. ICF provided technical assistance through The DHS Program, which is funded by USAID. Assistance for the HIV component of the survey was provided by the National AIDS Control Organization (NACO) and the National AIDS Research Institute (NARI), Pune. NFHS-4 fieldwork was conducted by 14 field agencies, and seven laboratories conducted the HIV testing (see Appendix Table XX). Data collection took place in two phases from 1 January 2015 to 31 December 2016. NFHS-4 was designed to provide information on sexual behaviour; HIV/AIDS knowledge, attitudes, and behaviour; and domestic violence only at the state level (in the state module), while most indicators in the district module are reported at the district level. The primary objective of the 2015-16 National Family Health Survey is to provide essential data on health and family welfare, as well as data on emerging issues in these areas. The clinical, anthropometric, and biochemical (CAB) component of NFHS-4 is designed to provide vital estimates of the prevalence of malnutrition, anaemia, hypertension, HIV, and high blood glucose levels through a series of biomarker tests and measurements.

The National Family Health Survey 2019-21 (NFHS-5), the fifth in the NFHS series, provides information on population, health, and nutrition for India, each state/union territory (UT), and for 707 districts as on March 31 st 2017. All five NFHS surveys have been conducted under the stewardship of the Ministry of Health and Family Welfare (MoHFW), Government of India. MoHFW designated the International Institute for Population Sciences (IIPS), Mumbai, as the nodal agency for all the rounds of NFHS. Funding for NFHS-5 was provided by the MoHFW, Government of India. ICF, USA provided technical assistance through the Demographic and Health Surveys (DHS) Program, which is funded by USAID. Assistance for the Dried Blood Sample (DBS) component of the survey was provided by the Indian Council of Medical Research (ICMR) and the National AIDS Research Institute (NARI), Pune. NFHS-5 fieldwork for India was conducted in two phases-- Phase-I from 17 June 2019 to 30 January 2020 covering 17 states and 5 UTs and Phase-II from 2 January 2020 to 30 April 2021 covering 11 states and 3 UTs -- by 17 Field Agencies and gathered information from 636,699 households, 724,115 women, and 101,839 men. Like NFHS-4, NFHS-5 also provides district-level estimates for many important indicators. The contents of NFHS-5 are similar to NFHS-4 to allow comparisons over time. However, NFHS-5 includes some new topics, such as preschool education, disability, access to a toilet facility, death registration, bathing practices during menstruation, and methods and reasons for abortion. The scope of clinical, anthropometric, and biochemical testing (CAB) has also been expanded to include measurement of waist and hip circumferences, and the age range for the measurement of blood pressure and blood glucose has been expanded. However, HIV testing was not included in NFHS-5. The NFHS-5 sample was designed to provide national, state/union territory (UT), and district level estimates of various indicators covered in the survey. However, estimates of indicators of sexual behaviour; husband's background and woman's work; HIV/AIDS knowledge, attitudes, and behaviour; and domestic violence are available only at the state/union territory (UT) and national level.

To request this data, fill out: International Institute for Population Sciences Data Request Form.

Curated
Simple Crosstabs

Baby's First Years (BFY), New York City, New Orleans, Omaha, and Twin Cities, 2018-2023 (ICPSR 37871)

Released/updated on: 2025-01-30
Geographic coverage: New York City, Omaha, Minneapolis, United States, St. Paul, Louisiana, New Orleans, Minnesota, New York (state), Nebraska
Time period: 2018-05-01--2019-06-30, 2019-07-01--2020-06-30, 2020-07-01--2021-06-30, 2021-07-01--2022-06-30, 2022-07-01--2023-08-16

The overall goal of the Baby's First Years study is to assess the causal role played by household income in affecting children's early cognitive, socio-emotional, and brain development. Recent advances in developmental neuroscience suggest that experiences early in life have profound and enduring impacts on the developing brain. Family economic resources shape the nature of many of these experiences, yet the extent to which they affect children's development is unknown. The Baby's First Years project is the first randomized controlled trial to provide estimates of the causal impacts of unconditional cash gifts on the cognitive, socio-emotional, and brain development of infants and young children in low-income U.S. families.

Specifically, 1,000 recruited mothers of infants with incomes below the federal poverty line from four diverse U.S. communities are receiving monthly cash gift payments by debit card. Mothers were initially told the gifts would last for the first 40 months of their child's life, but we have secured funding to continue the payments for three additional years (i.e., for a total of 76 months). Parents in the high cash gift group (n=400 in the study sample) are receiving a cash gift of $333 per month ($4,000 per year), while parents in the low cash gift group (n=600) are receiving a nominal monthly gift payment of $20 ($240 per year), also for 76 months.

In order to measure the impacts of the unconditional cash gift income on children's cognitive and behavioral development, we are assessing high and low cash gift group differences at ages 4, 6, and 8 (and, for a subset of measures, we capture interim development at ages 1, 2, and 3) in measures of cognitive, language, memory, self-regulation, and socio-emotional development. In order to understand the processes by which child impacts emerge, we are measuring a host of family process measures summarized in our pre-registration chart. Our data collection points are referred to as: "baseline", "age 1", "age 2," "age 3", "age 4", "age 6", and "age 8".

Additional information on the project, survey design, sample, variables, and COVID-19 pandemic adjustments are available from:

  • The User Guides for Baseline, Age 1, Age 2, Age 3, and Age 4, which are included under the "Data and Documentation" tab
  • The project's website: babysfirstyears.com

The researchers request that all peer-reviewed papers using BFY Data:

  • be submitted to PubMed https://publicaccess.nih.gov immediately upon acceptance for publication
  • include the following citation to the data in their bibliography:

Citation

Magnuson, Katherine A., Kimberly Noble, Greg J. Duncan, Nathan A. Fox, Lisa A. Gennetian, Hirokazu Yoshikawa, and Sarah Halpern-Meekin. Baby's First Years (BFY), New York City, New Orleans, Omaha, and Twin Cities, 2018-2023. ICPSR37871-v8. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], YYYY-MM-DD. http://doi.org/10.3886/ICPSR37871.v8

  • and include the following in their acknowledgements:

Acknowledgement

This research uses data from the Baby's First Years study. Research reported in this publication was supported by the Eunice Kennedy Shriver National Institute of Child Health and Human Development of the National Institutes of Health under Award Number R01HD087384 and 2R01HD087384. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health. This research was additionally supported by the US Department of Health and Human Services, Administration for Children and Families, Office of Planning, Research and Evaluation; Office of Behavioral and Social Sciences Research-Office of the Director, National Institutes of Health; Andrew and Julie Klingenstein Family Fund; Annie E. Casey Foundation; Arnold Ventures; Arrow Impact; BCBS of Louisiana Foundation; Bezos Family Foundation, Bill and Melinda Gates Foundation; Bill Hammack and Janice Parmelee, Brady Education Fund; Chan Zuckerberg Initiative (Silicon Valley Community Foundation); Charles and Lynn Schusterman Family Philanthropies; Child Welfare Fund; Esther A. and Joseph Klingenstein Fund; Ford Foundation; Greater New Orleans Foundation; Heising-Simons Foundation; Holland Foundation; Jacobs Foundation; JPB Foundation; J-PAL North America; Lozier Foundation; New York City Mayor's Office for Economic Opportunity; Perigee Fund; Robin Hood Foundation; Robert Wood Johnson Foundation; Russell Sage Foundation; Sherwood Foundation; Valhalla Foundation; Weitz Family Foundation; W.K. Kellogg Foundation; and three anonymous donors.

Principal Investigators

Katherine Magnuson, PhD; University of Wisconsin-Madison, lead PI social and behavioral science

Kimberly Noble, MD, PhD; Teachers College, Columbia University, lead PI neuroscience

In alphabetical order:

Greg Duncan, PhD; University of California, Irvine

Nathan A. Fox, PhD; University of Maryland

Lisa A. Gennetian, PhD; Duke University Sanford School of Public Policy

Hirokazu Yoshikawa, PhD; New York University

Principal Investigators of Qualitative Substudy

Sarah Halpern-Meekin, PhD; University of Wisconsin-Madison

Katherine Magnuson, PhD; University of Wisconsin-Madison

Study Management

Lauren Meyer, Teachers College, Columbia University; National Project Director

Andrea Karsh, University of California, Irvine; Administrative Director

Matthew Maury, Duke University, Production and Retention Management

Study Co-Investigators

Sarah Black, PhD; University of New Orleans

William Fifer, PhD; Sackler Institute for Developmental Psychobiology, Columbia University Medical Center

Michael Georgieff, MD; University of Minnesota

Joseph Isler, PhD; Columbia University Medical Center

Debra Karhson, PhD; University of New Orleans

Alicia Kunin-Batson, PhD, University of Minnesota

Connie Lamm, PhD; University of Arkansas

Dennis Molfese, PhD; University of Nebraska, Lincoln

Victoria Molfese, PhD; University of Nebraska, Lincoln

Jennifer Mize Nelson, PhD; University of Nebraska, Lincoln

Timothy Nelson, PhD; University of Nebraska, Lincoln

Sonya Troller-Renfree, PhD; Teachers College, Columbia University

Study Data Collectors

The Survey Research Center, Institute for Social Research, University of Michigan, Ann Arbor, is responsible for recruitment and baseline, age-1, age-2, and age-3 data collection waves. Starting at age-4 through age-8, SRC is responsible for tracking families and assisting site-based staff in locating families. SRC data collection operations are overseen by: Stephanie Chardoul, Director of Survey Research Operations and Piotr Dworak, Senior Survey Specialist, Survey Research Operations.

Contact

To contact the study investigators, email them at [email protected]

Website: babysfirstyears.com

Self-published

EMERGE DHS Family Planning Measures Pilot (ICPSR 210961)

Released/updated on: 2024-11-14
Geographic coverage: Kampala District, Uganda, Western Region, Uganda, Eastern Region, Uganda, Central Region, Uganda, Northern Region, Uganda
Time period: 2023-03-01--2023-04-30
The Center on Gender Equity and Health at UC San Diego conducted a pilot survey to measure various dimensions of gender equality and empowerment. The questionnaire covers: Reproductive Health and Family Planning
  • Pregnancy history and outcomes
  • Contraceptive use and decision-making
  • Antenatal and postnatal care
  • Partner involvement in reproductive health
Women's Agency and Decision-Making
  • Control over earnings and assets
  • Household decision-making
  • Freedom of movement
  • Digital access and autonomy
Gender-Based Violence
  • Physical, emotional and sexual violence
  • Help-seeking behaviors
  • Community safety
  • Support systems
Social Capital and Civic Engagement
  • Group membership and leadership
  • Social support networks
  • Political participation
  • Community involvement
The questionnaire includes both standard DHS modules and new measures specific to gender equality assessment. Data collection involved household surveys with women respondents, with particular attention to privacy and ethical considerations when discussing sensitive topics like domestic violence. The instrument demonstrates a comprehensive approach to measuring women's empowerment across multiple domains while maintaining comparability with standard DHS metrics.
Curated
Simple Crosstabs

Risk Factors for Placental Malaria, Sulfadoxine-pyrimethamine Doses, and Birth Outcomes in a Rural to Urban Prospective Cohort Study on the Bandiagara Escarpment and Bamako, Mali, 2011-2019 (ICPSR 39037)

Released/updated on: 2024-05-21
Geographic coverage: Mali, Bandiagara, Bamako
Time period: 2011-01-01--2019-12-31

Placental malaria is associated with maternal illness and anemia, low birth weight, and preterm birth. Mali has one of the highest malaria case incidence rates globally, according to World Health Organization (WHO) reports on malaria. Using a rural to urban longitudinal cohort of women who initially resided on the Bandiagara Escarpment at study enrollment, this observational study addressed the following questions:

  1. Was risk for placental malaria higher in Bamako (urban) or on the Bandiagara Escarpment (rural)?
  2. What were the maternal risk factors for placental malaria in this cohort?
  3. What was the association between number of intermittent preventative treatment in pregnancy with sulfadoxine-pyrimethamine (IPTp-SP) doses, placental malaria, and birth outcomes?
  4. What factors predicted how many doses women received?

Placental samples (N = 317) and accompanying demographic data were collected from 249 women living on the Bandiagara Escarpment or in the District of Bamako during the years 2011 to 2019. Samples were evaluated by histology to assess placental malaria infection stage and parasite density. Generalized estimating equations (GEE) for logistic regression were used to model the risk factors for placental malaria infection (yes/no) and to assess the characteristics of women who had no doses or fewer doses of SP versus 3 or more doses of SP during pregnancy. Lastly, GEE was used to model birth outcomes as continuous dependent variables (birth weight, birth length, and placenta weight).

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Tsogolo La Thanzi (TLT): Postpartum Data, Malawi, 2009-2012 [Healthy Futures] (ICPSR 38494)

Released/updated on: 2024-05-06
Geographic coverage: Balaka, Malawi, Africa
Time period: 2009-01-01--2012-12-31

Tsogolo la Thanzi (TLT) is a longitudinal study in Balaka, Malawi designed to examine how young people navigate reproduction in an AIDS epidemic. Tsogolo la Thanzi means "Healthy Futures" in Chichewa, Malawi's most widely spoken language. Data are being collected to develop better understandings of the reproductive goals and behavior of young adults in Malawi -- the first cohort to never have experienced life without AIDS. To understand these patterns of family formation in a rapidly changing setting, TLT used the following approach: an intensive longitudinal design where respondents were interviewed every four months at TLT's centralized research center. Data collection began in May of 2009 and was completed in June of 2012. To assess changes on a longer time-horizon, a follow-up survey referred to as Tsogolo la Thanzi 2 (TLT-2) was fielded between June and August of 2015.

This dataset is a supplementary survey module that was administered to women TLT participants during waves 2 to 8 who reported having a new birth since their last interview, and to those in the refresher sample (wave 9) who reported a recent birth in the past 4 months. The survey focused on several aspects of the childbirth experience and the mother's and child's postpartum health.

Curated

"Your Child's Teeth" Project, 1991-1993: [New York City] (ICPSR 6578)

Released/updated on: 2024-02-14
Geographic coverage: New York City, United States, New York (state)
Time period: 1991-03-01--1993-06-30
The purpose of this study was to assess the effectiveness of an educational program called "Your Child's Teeth", which was designed to modify mothers' care of their young children's teeth. These data, gathered at three consecutive weekly sessions with mothers, children, and dental health counselors in New York City, provide information on the oral health of the children and the extent of the mothers' knowledge of dental care for infants. Information on the oral health of the children includes scores of caries and abscesses in the maxillary teeth, and indices of maxillary and mandibular plaque and gingivitis. Mothers were queried on how to clean infants' teeth and gums, how to prevent use of a baby's bottle from causing cavities, and other behaviors and practices related to dental hygiene. Demographics include mother's age, race, and education, as well as child's age and gender.
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Understanding Incarceration and Re-Entry Experiences of Female Inmates and Their Children: The Women's Prison Inmate Networks Study (WO-PINS), Pennsylvania, 2017-2018 (ICPSR 38003)

Released/updated on: 2023-07-27
Geographic coverage: United States, Pennsylvania
Time period: 2017-01-01--2018-12-31

This study advances the understanding of incarceration and reentry, and their consequences for women by focusing on prison social systems and their informal network structures. The data for this project are aimed at four research questions: (1) What is the informal social structure within prison? (2) How are inmates' positions within the informal structure correlated with their health? (3) What are the consequences of informal social structure and inmates' positions within it for inmate-level and prison-level outcomes? and (4) How does in-prison and out-of-prison social capital correspond with community reentry and family reintegration?

In phase 1, network data were collected for "get along with best" and "power and influence" nominations along with survey data to contextualize the measured networks. In phase 2, semi-structured interviews were conducted with eligible respondents to gather expectations for re-entry and anticipated egocentric support networks. Phase 3 followed paroled inmates for two subsequent interviews, and also gathered interviews with their children, and the children's caretakers. Administrative records were used to construct a recidivism supplement that is appropriate for modeling the hazard of recidivism following release. Behavioral data are combined from multiple sources, including inmate surveys, prison work records, misconduct records, drug tests, visitation lists, and gang classification data.

Self-published

Comparison of Perinatal and Neonatal Outcomes of Very Advanced Maternal Aged Pregnants and Early Adolescent Pregnant Women (ICPSR 176701)

Released/updated on: 2022-08-01
Geographic coverage: Türkiye
Time period: 2017-01-01--2021-12-31
Aims: Very advanced maternal age or early adolescent pregnancies are risky pregnancies and are among the current era problems. Early ages and advanced ages have unique perinatal and neonatal consequences. In this study, it was aimed to compare the perinatal and neonatal outcomes of very advanced maternal age and early adolescent pregnancies. Materials and Methods: This study includes 297 cases who gave birth in Siirt Training and Research Hospital (Siirt, Turkey) between 2017-2021 years. The cases were divided into 3 groups as group 1=pregnancy of 16 years and below (80 cases); group 2=pregnancy of 45 years and above (67 cases); and group 3=pregnancy between 25-35 years of age. Perinatal and neonatal outcomes of the cases were compared retrospectively. Results: Of the total 297 cases, 26.9% were interpreted as “group 1”, 22.6% as “group 2”, and 50.5% as “group 3”. The group 1 pregnancy rate was 2.29% and the group 2 pregnancy rate was 1.91%. Gravity, parity, abortion history, fasting glucose level, GDM (gestational diabetes mellitus), preeclampsia, polyhydramnios, “presentation anomaly frequency” and cesarean delivery (CS) were found to be significantly higher in Group 2 compared to other groups (p<0.05). Vaginal delivery rate was found to be significantly higher in group 1 (p<0.05). Similar results were found in terms of neonatal mortality and other negative outcomes (p>0.05). Conclusion: Very advanced age pregnancies are more risky in terms of adverse pregnancy outcomes than adolescent pregnancies. To reduce the negative perinatal outcomes, it is important to conduct management of early adolescent and especially very advanced age pregnancies close to perinatology department locations. Keywords: Adolescence, pregnancy, very advanced maternal age, perinatal outcomes
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Official Crime Rates of Participants in Trials of the Nurse-Family Partnership, Denver, Elmira, New York, and Memphis, 1977-2005 (ICPSR 36580)

Released/updated on: 2020-05-14
Geographic coverage: Elmira, United States, Tennessee, Colorado, Denver, Memphis, New York (state)
Time period: 1994-01-01--1995-12-31, 2000-01-01--2001-12-31, 1977-01-01--1980-12-31, 1992-01-01--1995-12-31, 1996-01-01--1999-12-31, 1988-01-01--1988-12-31, 2005-01-01--2005-12-31

These data are part of NACJD's Fast Track Release and are distributed as they were received from the data depositor. The files have been zipped by NACJD for release, but not checked or processed except for the removal of direct identifiers. Users should refer to the accompanying readme file for a brief description of the files available with this collection and consult the investigator(s) if further information is needed.

This study examined maternal and youth self-reports of arrests and convictions with official records of crime among participants in three randomized controlled trials of the Nurse-Family Partnership (NFP) in Denver, Colorado, Elmira, New York, and Memphis, Tennessee.

Official records were obtained from third-party sources as well as directly from New York State Division of Criminal Justice Services.

The collection contains 10 SAS data files:

  • dmom_all.sas7bdat (n=735; 3 variables)
  • dmom_control.sas7bdat (n=247; 26 variables)
  • echild_all.sas7bdat (n=374; 4 variables)
  • echild_control.sas7bdat (n=173; 22 variables)
  • emom_all.sas7bdat (n=399; 4 variables)
  • emom_control.sas7bdat (n=184; 17 variables)
  • mchild_all.sas7bdat (n=708; 5 variables)
  • mchild_control.sas7bdat (n=482; 46 variables)
  • mmom_all.sas7bdat (n=742; 5 variables)
  • mmom_control.sas7bdat (n=514; 25 variables)

Demographic variables include race, ethnicity, highest grade completed, household income, marital status, housing density, maternal age, maternal education, husband/boyfriend education, and head of household employment status.

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Child Exposure to Intimate Partner Violence and Parent Aggression in Two Generations, United States, 2016-2018 (ICPSR 37185)

Released/updated on: 2019-07-25
Geographic coverage: United States
Time period: 2016-01-01--2018-12-31

These data are part of NACJD's Fast Track Release and are distributed as they were received from the data depositor. The files have been zipped by NACJD for release, but not checked or processed except for the removal of direct identifiers. Users should refer to the accompanying readme file for a brief description of the files available with this collection and consult the investigator(s) if further information is needed.

The research purpose of this project was to advance the scientific understanding of children's exposure to family violence and children's adjustment. This research examined the prevalence of child exposure to psychological and physical Intimate Partner Violence (IPV) and parent-to-child aggression (PCA), proximal associations with child externalizing and internalizing behavior, social and scholastic competence in early childhood and adolescence, and the developmental timing and intergenerational transmission of exposure to IPV and PCA related to child externalizing behavior. The study also looked at child effortful control and positive parenting as risk and protective factors theorized to mediate associations between child exposure to family violence and later child adjustment. Secondary analyses were conducted using a prospective multigenerational data set involving community families from lower socioeconomic status backgrounds that comprise the Three Generational Study.

The study collection includes 3 SPSS (.sav) files. The zip file includes CEV_3GS4_Cooccur_itemsB_12212018.sav (n= 283; 356 variables), CEV_3GS7_Cooccur_itemsB_12212018.sav (n= 184; 341 variables), CEV_OYS5_Cooccur_itemsC_12212018.sav (n= 206; 368 variables).

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Dating Abuse Prevention in Teens of Moms with Domestic Violence Protection Orders, North Carolina, 2010-2011 (ICPSR 33381)

Released/updated on: 2018-07-19
Geographic coverage: North Carolina, United States
Time period: 2010-03-01--2011-01-31

These data are part of NACJD's Fast Track Release and are distributed as they were received from the data depositor. The files have been zipped by NACJD for release, but not checked or processed except for the removal of direct identifiers. Users should refer to the accompanying readme file for a brief description of the files available with this collection and consult the investigator(s) if further information is needed.

Children exposed to domestic violence are at increased risk of experiencing and perpetrating violence against their partners when they become adolescents and adults. Despite this increased risk and the fact that approximately 15 million children are exposed to domestic violence yearly, there have been no evaluated dating abuse prevention programs conducted specifically with this population.

The collection contains 2 SAS data files: baseline_final.sas (n=51; 465 variables) and followup_final.sas (n=32; 463 variables).

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NICHD Study of Early Child Care and Youth Development: Phase I, 1991-1994 [United States] (ICPSR 21940)

Released/updated on: 2018-06-25
Geographic coverage: North Carolina, United States, Massachusetts, California, Kansas, Virginia, Arkansas, Wisconsin, Washington, Pennsylvania
Time period: 1991-01-01--1994-12-31

The overall purpose of this study was to examine the influence of variations in early childcare histories on the psychological development of infants and toddlers from a variety of family backgrounds. This general objective was addressed through a prospective, longitudinal study of the experiences of 1,364 children and their families, which took into account the complex interactions among child characteristics and those of the human and physical environments in which the children were reared.

Research Goals

The specific research aims were as follows:

  • Examining the relationship between infants' childcare arrangements (defined in terms of hours, type, quality, and stability of care and the age at which the child entered care) and children's concurrent and long-term development. Specifically, the study investigated the association between children's experiences in childcare and their social, emotional, language, and cognitive development. The social-emotional assessments included measures of attachment, independence, compliance, behavior problems, prosocial and antisocial behavior, and general competence in interacting with peers. Cognitive variables include general developmental level and problem solving skills. Language assessments incorporated measures of children's expressive and receptive communicative competence.

  • Examining whether the social ecology of the home moderates the effects of childcare, i.e., whether children from different home environments are differentially affected by similar childcare experiences. The study examined the moderating effects of parents' values and attitudes, psychological adjustment and mental health, stress and social support, child-rearing practices, time use, interactions with the child, the marital relationship, and family demographics.

  • Examining whether individual differences among children moderate the effects of infant care on child development. The study examined the moderating effects of such child characteristics as age, sex, health, birth order, and temperament.

  • Identify demographic and family characteristics associated with families' childcare decisions. The study examined whether specific childcare arrangements are related to the parents' social class, marital status, psychological adjustment and personality, child-rearing values and attitudes, parenting practices, stress, social support, marital relationship, and the availability of childcare in the community.

  • Provide a natural history of infant care in the 1990s, and help establish a baseline of data pertaining to the kinds of care being used by families. Whereas other national databases, such as those provided by the United States Census Bureau, provide static estimates of the number of children in different types of childcare, this network study supplements that knowledge with longitudinal data on successive enrollments into day care at various ages, patterns of arrangements used concurrently and over time, and the stability of arrangements during the first three years of life. One of the most valuable aspects of the collaborative study is the opportunity it provides to obtain a more complete and accurate picture of patterns of infant care used by families today. Census surveys use only gross categories of care (e.g., center vs. in-home). In this study, more fine-grained information regarding the types of centers and home-care facilities was gathered.

  • Examine the consequences for families of maternal employment and childcare choices. Family relationships, parental mental health, family stress, and so on, are not just inputs to child development or moderators of childcare effects, they are also outcomes. High-quality childcare may alleviate family stress and enhance parental adjustment. Low-quality childcare may add to the stress parents experience. Although the main focus in the study was on the effect of childcare on the child, the study also examined the effect of childcare on the family.

  • Identify demographic characteristics of childcare associated with childcare quality. Of interest to policy makers is another aspect of the study, the investigation of those regulatory characteristics that predict care of higher quality. These characteristics included the level and type of caregiver training, the size of the childcare group, the auspices of the childcare program (public/private, profit/nonprofit, independent/chain, employer-sponsored/church-based), whether the facility was licensed or unlicensed, the level of payment and fees, and whether the caregiver was a relative of the family.

Data File Organization

309 data files were compiled for this study and are organized into 3 main groups:

  1. Analytical Data Sets (ADS) -- The raw data were examined and composites defined by small groups of individual principal investigators according to the demographic, family, childcare, and child outcome content of the data. The psychometric and distributional qualities of the variables, along with site differences, were examined. A set of variables that were psychometrically and distributionally acceptable to be used in analytic analyses was designed to test the study hypotheses. These data files comprise Parts 1-42 of the study data material.

  2. Supplemental Data Sets -- New and revised analysis variables as well as across-time mean scores and primary composites were produced as a supplement to the original Analytical Datasets. These data files comprise Parts 43-55 of the study data material.

  3. Raw Data Sets -- The raw data were made available and comprise Parts 56-309 of the study data material.

Training Workshop

A three-day summer training workshop on the SECCYD was put on by NICHD at the Inter-University Consortium for Political and Social Research in Ann Arbor, Michigan in 2010. The binder from that workshop, which includes the Powerpoint slides used during presentations, are freely available to the public as part of the study documentation.

Curated
Restricted

NICHD Study of Early Child Care and Youth Development: Phase II, 1995-1999 [United States] (ICPSR 21941)

Released/updated on: 2018-06-25
Geographic coverage: North Carolina, United States, Massachusetts, California, Kansas, Virginia, Arkansas, Wisconsin, Washington, Pennsylvania
Time period: 1995-01-01--1999-12-31

The overall purpose of this study was to examine the influence of variations in early childcare histories on the psychological development of infants and toddlers from a variety of family backgrounds. This general objective was addressed through a prospective, longitudinal study of the experiences of 1,364 children and their families, which took into account the complex interactions among child characteristics and those of the human and physical environments in which the children were reared.

Research Goals

The specific research aims were as follows:

  • Examining the relationship between infants' childcare arrangements (defined in terms of hours, type, quality, and stability of care and the age at which the child entered care) and children's concurrent and long-term development. Specifically, the study investigated the association between children's experiences in childcare and their social, emotional, language, and cognitive development. The social-emotional assessments included measures of attachment, independence, compliance, behavior problems, prosocial and antisocial behavior, and general competence in interacting with peers. Cognitive variables include general developmental level and problem solving skills. Language assessments incorporated measures of children's expressive and receptive communicative competence.

  • Examining whether the social ecology of the home moderates the effects of childcare, i.e., whether children from different home environments are differentially affected by similar childcare experiences. The study examined the moderating effects of parents' values and attitudes, psychological adjustment and mental health, stress and social support, child-rearing practices, time use, interactions with the child, the marital relationship, and family demographics.

  • Examining whether individual differences among children moderate the effects of infant care on child development. The study examined the moderating effects of such child characteristics as age, sex, health, birth order, and temperament.

  • Identify demographic and family characteristics associated with families' childcare decisions. The study examined whether specific childcare arrangements are related to the parents' social class, marital status, psychological adjustment and personality, child-rearing values and attitudes, parenting practices, stress, social support, marital relationship, and the availability of childcare in the community.

  • Provide a natural history of infant care in the 1990s, and help establish a baseline of data pertaining to the kinds of care being used by families. Whereas other national databases, such as those provided by the United States Census Bureau, provide static estimates of the number of children in different types of childcare, this network study supplements that knowledge with longitudinal data on successive enrollments into day care at various ages, patterns of arrangements used concurrently and over time, and the stability of arrangements during the first three years of life. One of the most valuable aspects of the collaborative study is the opportunity it provides to obtain a more complete and accurate picture of patterns of infant care used by families today. Census surveys use only gross categories of care (e.g., center vs. in-home). In this study, more fine-grained information regarding the types of centers and home-care facilities was gathered.

  • Examine the consequences for families of maternal employment and childcare choices. Family relationships, parental mental health, family stress, and so on, are not just inputs to child development or moderators of childcare effects, they are also outcomes. High-quality childcare may alleviate family stress and enhance parental adjustment. Low-quality childcare may add to the stress parents experience. Although the main focus in the study was on the effect of childcare on the child, the study also examined the effect of childcare on the family.

  • Identify demographic characteristics of childcare associated with childcare quality. Of interest to policy makers is another aspect of the study, the investigation of those regulatory characteristics that predict care of higher quality. These characteristics included the level and type of caregiver training, the size of the childcare group, the auspices of the childcare program (public/private, profit/nonprofit, independent/chain, employer-sponsored/church-based), whether the facility was licensed or unlicensed, the level of payment and fees, and whether the caregiver was a relative of the family.

Data File Organization

193 data files were compiled for this study and are organized into 3 main groups:

  1. Analytical Data Sets (ADS) -- The raw data were examined and composites defined by small groups of individual principal investigators according to the demographic, family, childcare, and child outcome content of the data. The psychometric and distributional qualities of the variables along with site differences were examined. A set of variables that was psychometrically and distributionally acceptable to be used in analytic analyses was designed to test the study hypotheses. These data files comprise Parts 1-24 of the study data material.

  2. Supplemental Data Sets -- New and revised analysis variables as well as across-time mean scores and primary composites were produced as a supplement to the original Analytical Data Sets. These data files comprise Parts 25-27 of the study data material.

  3. Raw Data Sets -- The raw data were made available and comprise Parts 28-193 of the study data material.

Training Workshop

A three-day summer training workshop on the SECCYD was put on by NICHD at the Inter-University Consortium for Political and Social Research in Ann Arbor, Michigan in 2010. The binder from that workshop, which includes the Powerpoint slides used during presentations, are freely available to the public as part of the study documentation.

Curated
Restricted

NICHD Study of Early Child Care and Youth Development: Phase III, 2000-2004 [United States] (ICPSR 21942)

Released/updated on: 2018-06-25
Geographic coverage: North Carolina, United States, Massachusetts, California, Kansas, Virginia, Arkansas, Wisconsin, Washington, Pennsylvania
Time period: 2000-01-01--2004-12-31

The overall purpose of this study was to examine the influence of variations in early childcare histories on the psychological development of infants and toddlers from a variety of family backgrounds. This general objective was addressed through a prospective, longitudinal study of the experiences of 1,364 children and their families, which took into account the complex interactions among child characteristics and those of the human and physical environments in which the children were reared.

Research Goals

The specific research aims were as follows:

  • Examining the relationship between infants' childcare arrangements (defined in terms of hours, type, quality, and stability of care and the age at which the child entered care) and children's concurrent and long-term development. Specifically, the study investigated the association between children's experiences in childcare and their social, emotional, language, and cognitive development. The social-emotional assessments included measures of attachment, independence, compliance, behavior problems, prosocial and antisocial behavior, and general competence in interacting with peers. Cognitive variables include general developmental level and problem solving skills. Language assessments incorporated measures of children's expressive and receptive communicative competence.

  • Examining whether the social ecology of the home moderates the effects of childcare, i.e., whether children from different home environments are differentially affected by similar childcare experiences. The study examined the moderating effects of parents' values and attitudes, psychological adjustment and mental health, stress and social support, child-rearing practices, time use, interactions with the child, the marital relationship, and family demographics.

  • Examining whether individual differences among children moderate the effects of infant care on child development. The study examined the moderating effects of such child characteristics as age, sex, health, birth order, and temperament.

  • Identify demographic and family characteristics associated with families' childcare decisions. The study examined whether specific childcare arrangements are related to the parents' social class, marital status, psychological adjustment and personality, child-rearing values and attitudes, parenting practices, stress, social support, marital relationship, and the availability of childcare in the community.

  • Provide a natural history of infant care in the 1990s, and help establish a baseline of data pertaining to the kinds of care being used by families. Whereas other national databases, such as those provided by the United States Census Bureau, provide static estimates of the number of children in different types of childcare, this network study supplements that knowledge with longitudinal data on successive enrollments into day care at various ages, patterns of arrangements used concurrently and over time, and the stability of arrangements during the first three years of life. One of the most valuable aspects of the collaborative study is the opportunity it provides to obtain a more complete and accurate picture of patterns of infant care used by families today. Census surveys use only gross categories of care (e.g., center vs. in-home). In this study, more fine-grained information regarding the types of centers and home-care facilities was gathered.

  • Examine the consequences for families of maternal employment and childcare choices. Family relationships, parental mental health, family stress, and so on, are not just inputs to child development or moderators of childcare effects, they are also outcomes. High-quality childcare may alleviate family stress and enhance parental adjustment. Low-quality childcare may add to the stress parents experience. Although the main focus in the study was on the effect of childcare on the child, the study also examined the effect of childcare on the family.

  • Identify demographic characteristics of childcare associated with childcare quality. Of interest to policy makers is another aspect of the study, the investigation of those regulatory characteristics that predict care of higher quality. These characteristics included the level and type of caregiver training, the size of the childcare group, the auspices of the childcare program (public/private, profit/nonprofit, independent/chain, employer-sponsored/church-based), whether the facility was licensed or unlicensed, the level of payment and fees, and whether the caregiver was a relative of the family.

Data File Organization

504 data files were compiled for this study and are organized into 4 main groups:

  1. Analytical Data Sets (ADS) -- The raw data were examined and composites defined by small groups of individual principal investigators according to the demographic, family, childcare, and child outcome content of the data. The psychometric and distributional qualities of the variables along with site differences were examined. A set of variables that was psychometrically and distributionally acceptable to be used in analytic analyses was designed to test the study hypotheses. These data files comprise Parts 1-49 of the study data material.

  2. Supplemental Data Sets -- New and revised analysis variables as well as across-time mean scores and primary composites were produced as a supplement to the original Analytical Data Sets. These data files comprise Parts 50-55 of the study data material.

  3. Raw Census-Related Data Sets -- Files were produced using geocoded addresses for survey respondents to match block group level data from the 1990 and 2000 Censuses for investigators to create additional measures of interest from the geocoded addresses. These data files comprise Parts 56-58 of the study data material.

  4. Raw Data Sets -- The raw data were made available and comprise Parts 59-505 of the study data material.

Training Workshop

A three-day summer training workshop on the SECCYD was put on by NICHD at the Inter-University Consortium for Political and Social Research in Ann Arbor, Michigan in 2010. The binder from that workshop, which includes the Powerpoint slides used during presentations, are freely available to the public as part of the study documentation.

Curated
Restricted

NICHD Study of Early Child Care and Youth Development: Phase IV, 2005-2007 [United States] (ICPSR 22361)

Released/updated on: 2018-06-25
Geographic coverage: North Carolina, United States, Massachusetts, California, Kansas, Virginia, Arkansas, Wisconsin, Washington, Pennsylvania
Time period: 2005-01-01--2007-12-31

The overall purpose of this study was to examine the influence of variations in early childcare histories on the psychological development of infants and toddlers from a variety of family backgrounds. This general objective was addressed through a prospective, longitudinal study of the experiences of 1,364 children and their families, which took into account the complex interactions among child characteristics and those of the human and physical environments in which the children were reared.

Research Goals

The specific research aims were as follows:

  • Examining the relationship between infants' childcare arrangements (defined in terms of hours, type, quality, and stability of care and the age at which the child entered care) and children's concurrent and long-term development. Specifically, the study investigated the association between children's experiences in childcare and their social, emotional, language, and cognitive development. The social-emotional assessments included measures of attachment, independence, compliance, behavior problems, prosocial and antisocial behavior, and general competence in interacting with peers. Cognitive variables include general developmental level and problem solving skills. Language assessments incorporated measures of children's expressive and receptive communicative competence.

  • Examining whether the social ecology of the home moderates the effects of childcare, i.e., whether children from different home environments are differentially affected by similar childcare experiences. The study examined the moderating effects of parents' values and attitudes, psychological adjustment and mental health, stress and social support, child-rearing practices, time use, interactions with the child, the marital relationship, and family demographics.

  • Examining whether individual differences among children moderate the effects of infant care on child development. The study examined the moderating effects of such child characteristics as age, sex, health, birth order, and temperament.

  • Identify demographic and family characteristics associated with families' childcare decisions. The study examined whether specific childcare arrangements are related to the parents' social class, marital status, psychological adjustment and personality, child-rearing values and attitudes, parenting practices, stress, social support, marital relationship, and the availability of childcare in the community.

  • Provide a natural history of infant care in the 1990s, and help establish a baseline of data pertaining to the kinds of care being used by families. Whereas other national databases, such as those provided by the United States Census Bureau, provide static estimates of the number of children in different types of childcare, this network study supplements that knowledge with longitudinal data on successive enrollments into day care at various ages, patterns of arrangements used concurrently and over time, and the stability of arrangements during the first three years of life. One of the most valuable aspects of the collaborative study is the opportunity it provides to obtain a more complete and accurate picture of patterns of infant care used by families today. Census surveys use only gross categories of care (e.g., center vs. in-home). In this study, more fine-grained information regarding the types of centers and home-care facilities was gathered.

  • Examine the consequences for families of maternal employment and childcare choices. Family relationships, parental mental health, family stress, and so on, are not just inputs to child development or moderators of childcare effects, they are also outcomes. High-quality childcare may alleviate family stress and enhance parental adjustment. Low-quality childcare may add to the stress parents experience. Although the main focus in the study was on the effect of childcare on the child, the study also examined the effect of childcare on the family.

  • Identify demographic characteristics of childcare associated with childcare quality. Of interest to policy makers is another aspect of the study, the investigation of those regulatory characteristics that predict care of higher quality. These characteristics included the level and type of caregiver training, the size of the childcare group, the auspices of the childcare program (public/private, profit/nonprofit, independent/chain, employer-sponsored/church-based), whether the facility was licensed or unlicensed, the level of payment and fees, and whether the caregiver was a relative of the family.

Data File Organization

158 data files were compiled for this study and are organized into 4 main groups:

  1. Analytical Data Sets (ADS)-- The raw data were examined and composites defined by small groups of individual principal investigators according to the demographic, family, childcare, and child outcome content of the data. The psychometric and distributional qualities of the variables along with site differences were examined. A set of variables that was psychometrically and distributionally acceptable to be used in analytic analyses was designed to test the study hypotheses. These data files comprise Parts 1-19 of the study data material.

  2. Supplemental Data Sets -- New and revised analysis variables as well as across-time mean scores and primary composites were produced as supplements to the original Analytical Data Sets. These data files are Parts 20-26 of the study data material.

  3. Raw Census-Related Data Sets -- Files were produced using geocoded addresses for survey respondents to match block group-level data from the 1990 and 2000 Censuses for investigators to create additional measures of interest from the geocoded addresses. These data files comprise Parts 27-30 of the study data material.

  4. Raw Data Sets -- The raw data were made available and comprise Parts 31-158 of the study data material.

Included in this phase of the study are the output of several third-party software programs that were used during Phases II, III and IV to collect data for specific tasks or activities. These programs produced one output data file per subject, which were combined to produce some of the raw data files for those studies. The original program output is included as expanded documentation in this phase of the study.

Training Workshop

A three-day summer training workshop on the SECCYD was put on by NICHD at the Inter-University Consortium for Political and Social Research in Ann Arbor, Michigan in 2010. The binder from that workshop, which includes the Powerpoint slides used during presentations, are freely available to the public as part of the study documentation.

Curated
Partially restricted
Simple Crosstabs

Parents And Children Coping Together (PACT I Child), Los Angeles, California, 1997-2002 (ICPSR 35194)

Released/updated on: 2018-04-23
Geographic coverage: Los Angeles, California
Time period: 1997-01-01--2002-12-31

Parents And Children Coping Together (PACT) was designed to longitudinally assess mothers in Los Angeles county living with HIV (MLHs) and their young, well children age 5 to 11 years old. The PACT sample was followed every 6 months for 30 months. The study utilizes longitudinal data from children/adolescent and mother dyads to investigate the effects of maternal HIV and family variables on adolescent sexual behavior. Specific aims were to:

  1. Evaluate longitudinally youth adjustment (i.e., mental health, behavioral adjustment, social outcomes) including measures for young children. Measures included developmentally appropriate youth and maternal mental health measures (e.g., Children's Depression Inventory for youths age under 18; Beck Depression Inventory for youths age equal to or greater than 18), assessment of maternal physical health, assessment of child behaviors, and family functioning.
  2. Evaluate youth characteristics from across developmental periods that may moderate or mediate the impact of MLHs' chronic illness on patterns of youth adjustment over time, including: (a) background factors of age, gender, ethnicity; and (b) moderating and mediating factors, such as self-concept, family cohesion, the parent-child relationship, HIV/AIDS knowledge, perceived stigma, autonomy, and parent-adolescent separation.
  3. Evaluate maternal characteristics that may moderate or mediate the impact of MLHs' chronic illness on the youth (e.g., illness severity, mental health status, social support, parenting skills).
This collection is a part of the PACT series and contains the child datasets (baselines and follow-ups) from PACT 1. The instrument was divided into 16 sections. These sections are as follows: (A) PACT Child Demographic Questions, (B) Child Social Network, (C) Modified Items from My Family and Friends, (E) RCMAS, (F) Timeline, (G) CDI, (H) Dominic-R, (I) Hopelessness Scale for Children, (L) Children's Coping Strategies Checklist, (M) General Coping Efficacy (C-GCE), (N) Family Functioning (Four subscales), (P) Children's Self-Concept, (Q) Children's Health Knowledge and Attitude Items, (R) Items from Child Behavior Checklist, (S) Life Events and Family Routines, and (T) GLESC Positive Stable Events. Demographic variables include age, education, religious activities, and household structure.
Self-published

Survey of Serbian mothers (2015) (ICPSR 100196)

Released/updated on: 2016-06-28
Geographic coverage: Serbia
Time period: 2015-01-19--2015-04-18
Many studies have looked at benefits of breastfeeding for the baby and, less frequently, the mother. Though many women find breastfeeding difficult, few studies have looked at the potential costs of breastfeeding for this group. From January 19th, 2015 trough April 18th, 2015, 1980 Serbian mothers completed an online survey consisting of 74 questions which addressed their satisfaction with various areas of life. Mothers were divided into four groups depending on their breastfeeding experience: those who enjoy breastfeeding (Group 1), those who breastfeed despite finding it difficult (Group 2), those who do not breastfeed because they find it difficult, but otherwise would (Group 3) and those who do not breastfeed because “it’s their choice” (Group 4). Group 2 scored lower than Group 1 on 25 out of 26 indicators of satisfaction.  Group 3 scored higher than Group 2 on 19 out of 26 indicators. We found a remarkably consistent drop in satisfaction across many areas of life between women who breastfeed joyfully and those who do it out of a sense of duty. As public pressure on women to breastfeed mounts, distinction between these two kinds of breastfeeding experiences should be kept in mind.
Curated
Restricted

Maternal Lifestyle Study in Four Sites in the United States, 1993-2011 (ICPSR 34312)

Released/updated on: 2016-03-31
Time period: 1993-05-01--2011-02-28, 1993-06-01--2010-11-30, 1993-10-01--2008-10-31, 1997-07-01--2006-08-31, 2000-07-01--2011-02-28

The Maternal Lifestyle Study (MLS) was the largest of the NIH longitudinal studies of children with prenatal cocaine exposure (PCE). MLS was a longitudinal multi-site observational study of the long-term effects of in-utero exposure to cocaine on child development. MLS was conducted at four geographically diverse, collaborating university centers (Wayne State University, University of Tennessee at Memphis, University of Miami, and Brown University). Participants were identified during the newborn period while in the hospital. The MLS began enrollment of a longitudinal birth cohort of 1,388 infant/mother dyads in 1993. Subjects in the follow-up were seen from 1 month of age through 16 years of age. The overall purpose of the study was to investigate the effects of drug use during pregnancy on acute neonatal events and long-term physical health, social, behavioral and neurodevelopmental outcomes.

The study included five phases of data collection. The first phase examined acute effects of maternal substance use on infant health outcomes at birth. The four subsequent follow-up phases examined development across the following periods: Phase II -- 1-36 months; Phase III -- 4-7 years; Phase IV -- 8-11 years; Phase V -- 12-16 years. In Phase I, the study screened 19,079 infants between May 1993 and May 1995. Mothers at these centers were enrolled in the study within 24 hours after delivery. Initial screening included the mother's labor and delivery chart, the newborn admission chart, and a meconium sample. Infant meconium was collected and samples were express shipped to a central laboratory for analysis of metabolites of illicit drugs. Additionally, a drug use questionnaire that addressed the mother's use during pregnancy of nicotine, alcohol, marijuana, cocaine, opiates, and other illicit drugs was given by research staff that were trained and certified in the reliable administration of all of the study interviews. A mother-child dyad was considered exposed if a mother admitted to using cocaine during pregnancy and/or there was a positive meconium assay for cocaine metabolites including gas chromatography/mass spectrometry confirmation. Nonexposed children were those who were born to mothers who denied cocaine use, confirmed by negative meconium test results. Acute outcomes evaluated in Phase I included: central nervous system (CNS) and autonomic nervous system (ANS) findings and symptoms, abruption placenta, fetal growth retardation, congenital malformations, respiratory distress syndrome, chronic lung disease, intraventricular hemorrhage, necrotizing enterocolitis, retinopathy of prematurity, and periventricular leukomalacia.

From the initial Phase I cohort of 8,627 dyads, 1,388 participants for the longitudinal follow-up were recruited at a 1-month visit. The sample included a cohort of exposed infants (n = 658) who were group matched within site with a group of non-exposed comparison infants (n=730) by gestational age categories (32, 33-36, and 36 weeks) and child gender, race, and ethnicity. At the 1-month visit, the biological mother was interviewed for a detailed inventory of her legal and illegal drug use during pregnancy using the Maternal Interview of Substance Use (MISU). Phase II examined the first 36 months of life for the sample of 1,388. Follow-up visits occurred at 1, 4, 7, 9, 12, 18, 24, and 36 months (corrected age). Outcomes examined included physical health, developmental, behavioral, social, and environmental outcomes. Phase III followed children at 4, 4.5, 5, 6, and 7 years. In addition to outcomes examined in Phase II, school performance and neurodevelopmental measures of emotional and behavioral self-regulation were also examined. Phase IV covers ages 8, 9, 10, and 11 years of age. Outcomes in this phase were further expanded to include antisocial behavior, onset of substance use, psychopathology, and neuroendocrine function. Phase V assessed children at ages 12, 13, 14, 15, and 16 years of age. The fifth phase of the study has a significant emphasis on psychopathology, school performance, peer relationships, substance use onset and risk taking behaviors, including risky sexual behaviors.

Curated
Restricted

Time, Love, and Cash in Couples With Children Study (TLC3) [United States], 2000-2005 (ICPSR 22462)

Released/updated on: 2016-01-29
Geographic coverage: Milwaukee, United States, Chicago, New York (state), Wisconsin
Time period: 2000-01-01--2005-12-31
Time, Love, and Cash in Couples with Children (TLC3) consists of four waves of interviews with parents (married and nonmarried) who experienced a birth in the year 2000. Both mothers and fathers participated in semi-structured in-depth interviews individually and as a couple in each of the four waves. Interviewers were encouraged to probe and to be flexible with the order of the questions to foster a more conversational interaction. During the TLC3 interviews respondents were asked their views on parenthood, child-rearing responsibilities and expenditures, family structure and relationships, the amount of time spent with their child, their domestic responsibilities, and household income and expenditures. Questions also focused on the relationship between the parents. Respondents were asked how much time they spend together, what their thoughts were on the future of their relationship, and their general views on marriage, parenthood, and gender roles.
Curated
Simple Crosstabs

Puerto Rican Maternal and Infant Health Study (PRMIHS), 1994-1995 (ICPSR 36238)

Released/updated on: 2015-11-16
Geographic coverage: New York City, Puerto Rico, United States, Massachusetts, Connecticut, Florida, New Jersey, Pennsylvania
Time period: 1994-07-01--1995-12-31
The Puerto Rican Maternal and Infant Health Study (PRMIHS) is a cross-sectional study designed to provide information on the determinants of poor infant health among Puerto Ricans. The dataset features personal interview data from 2,763 mothers of Puerto Rican infants sampled from the 1994 and 1995 birth and infant death records of six United States vital statistics reporting areas (Connecticut, Florida, Massachusetts, New Jersey, New York City, Pennsylvania) and the Commonwealth of Puerto Rico. Mothers were contacted to participate in a Computer Assisted Personal Interview (CAPI) using the address information provided in the birth and infant death records. Respondent mothers were asked to recount their sexual history and use of contraception, age at conception, prenatal care and nutrition, substance abuse, and overall health before and during pregnancy. Details were also collected regarding migration history, family composition, partner involvement, social support structures, and receipt of any public financial assistance for food, housing, and/or medical care. Information regarding infant health and well-being was also gathered, and included respondents' reporting of recurrent health issues, required medical treatments, immunizations, and any accidents or sustained injuries. Mothers were also asked to confirm attainment of a number of infant developmental milestones, including sitting, crawling, standing, waving, and vocalization, as well as several other behaviors and abilities. Demographic information for mothers includes age, education, occupation, income, marital status, race and ethnic identity, language, and religious preference.
External data

Fragile Families and Child Wellbeing in Adolescence (ICPSR 35981)

Released/updated on: 2015-06-18
Geographic coverage: United States
This project expands the data collection of the Fragile and Families and Children Wellbeing Study (FFS). It conducts another round of interviews with mothers and children when children are 15 years old. This project also collects saliva samples from 3,600 children at age 15 to be used for future Methylation analysis. Approximately 3600 mothers and 3100 children are interviewed via phone. These phone interviews are 55 minutes long for mothers and 45 minutes long for children. Five hundred adolescents are interviewed in person for approximately 1 hour.
Curated

Mode of First Delivery and Subsequent Child-bearing (ICPSR 35924)

Released/updated on: 2015-06-11
Geographic coverage: United States
This study collects interview data from women before and after their first childbirth, comparing those who have vaginal deliveries to those who have Cesarean sections. A diverse sample of 2,790 women is interviewed pre-delivery on their childbearing desires and intentions, and labor and delivery information are collected as well. Then, these women are followed for three years with assessments at 1, 6, 12, 18, 24, 30, and 36 months after their first delivery.
External data

Childbearing Dynamics in Setting of High HIV Prevalence and Massive ART Rollout (ICPSR 35946)

Released/updated on: 2015-06-05
Geographic coverage: Mozambique, Africa
This project evaluates the effect of antiretroviral therapy (ART), Maternal and Child Health (MCH) clinics, Voluntary Counseling and Testing (VCT), and Prevention of Mother-to-Child Transmission programs in southern Mozambique. It collects two waves of survey and qualitative data over five years, adding to a first wave that began in 2006. A sample of 1,680 married rural women residing in 54 villages is re-surveyed, and community surveys are also carried out in each village. 72 survey respondents from 8 of the sampled villages, with whom semi-structured in-depth interviews were conducted in the first wave, participate in two waves of in-depth interviews. Each year, statistical data on MCH/VCT/PMTCT service provision and utilization are collected from the districts' MCH clinics, and in-depth interviews are conducted with clinic nurses.
External data

Maternal Behavior Among Puerto Rican Adolescent Mothers (ICPSR 35892)

Released/updated on: 2015-05-14
Geographic coverage: United States
This project collects longitudinal data to examine maternal behavior and child outcomes among 180 English- and Spanish-speaking Puerto Rican adolescent mothers and their children. Data are gathered at the participants' home.
External data

Influences of Women's Empowerment on Marriage and Violence in Bangladesh (ICPSR 35858)

Released/updated on: 2015-05-01
Geographic coverage: Bangladesh
This study uses qualitative data to examine young women's relationships with their mothers and mothers-in-law to understand how these relationships foster empowerment in the younger generation or fail to do so. These data consist of ethnographic interviews with 20 triads of women - young married women, their mothers and their mothers-in-law.
External data

Nonstandard Maternal Work Schedules and Child Health in Impoverished Families (ICPSR 35852)

Released/updated on: 2015-04-24
Geographic coverage: United States
This project collects data from a randomly selected community-based cohort of economically disadvantaged mothers of infants (N=450) to examine the influence of maternal work on the physical health and emotional well-being of children. The project recruits mother-infant dyads when children are 3 months of age and follows them until children are 30 months old.
Curated
Partially restricted

Welfare, Children, and Families: A Three-City Study (ICPSR 4701)

Released/updated on: 2012-10-04
Geographic coverage: San Antonio, United States, Chicago, Illinois, Texas, Massachusetts, Boston
Time period: 1999-03-01--2006-05-31
This data collection is the third wave of an intensive study in Boston, Chicago, and San Antonio, which was initiated to assess the well-being of low-income children and families in the post-welfare reform era. The project investigates the strategies families have used to respond to reform, in terms of employment, schooling or other forms of training, residential mobility, and fertility. Central to this project is a focus on how these strategies affect children's lives, with an emphasis on their health and development as well as their need for, and use of, social services. For the first wave of the study, between March 1999 and December 1999, a random sample of approximately 2,400 households with children in low-income neighborhoods in Boston, Chicago, and San Antonio were selected for interviews. Forty percent of the families interviewed were receiving cash welfare payments at the time of the interview. Each household had a child aged 0 to 4 or aged 10 to 14 at the time of the interview. The child and the child's primary female caregiver are the focus of the study. Extensive baseline information was gathered at the initial personal interview with the caregivers, tested younger children were assessed, and older children were interviewed. All interviews were conducted in-person using a computerized instrument. The third wave of data collection took place between February 2005 and January 2006, when the focal children were aged 5 to 10 or aged 15 to 20. Between May 2005 and May 2006, interviews were conducted with the teachers of the focal children.
Curated

CBS News/New York Times National Poll, May #1, 2011 (ICPSR 33963)

Released/updated on: 2012-06-13
Geographic coverage: United States
Time period: 2011-05-01--2011-05-31
This survey, fielded May 2-3, 2011, is part of a continuing series of monthly surveys that solicits public opinion on a range of political and social issues. Respondents were asked for their opinions of political figures President Barack Obama, First Lady Michelle Obama, Tim Pawlenty, Sarah Palin, Donald Trump, Oprah Winfrey, and members of the British royal family: Prince Charles and Lady Camilla. Respondents were also asked their opinions about the following issues: United States troops in Afghanistan, gas prices, abortion, the American Civil War, Guantanamo Bay detention camp, Islam, and the Tea Party movement. Additional topics included personal happiness, home furnishings and decor, the effects of positive thinking, being a mother, the economic gap, plans for Memorial Day weekend, movies, Donald Trump's wealth, celebrities, prosecuting athletes for cheating, air travel, the Internet, new electronics, lying about one's age, and graffiti. Respondents were asked further background questions about whether they approved of the way President Obama was handling the presidency, including foreign policy, the economy, and the war in Afghanistan. Opinions were sought on how Osama bin Laden's death affected terrorism and respondents' personal security, the war on terror, and the mission in Afghanistan. Respondents were also asked if they were proud to be an American, whether they had a close family member or friend or knew anyone who died in the September 11, 2001 terrorist attacks, or had a family member in the armed forces. Demographic information includes sex, age, race, education level, household income, marital status, religious preference, employment status, type of residential area (e.g., urban or rural), state of residence, type of phone(s), number of phones, political party affiliation, political philosophy, voting behavior, and whether the respondent is an evangelical or a born-again Christian.
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Explaining Low Fertility in Italy (ELFI) (ICPSR 31881)

Released/updated on: 2012-01-12
Geographic coverage: Bologna, Cagliari, Europe, Naples, Italy, Padua
Time period: 2006-01-01--2006-12-31

The ethnographic fieldwork portion of the project - interviews with women of reproductive age, and when available their partners and mothers - was initiated and completed in 2006. For each of four Italian cities (Padua, Bologna, Cagliari, and Naples) studied ethnographically by trained anthropologists, both a working-class and a middle-class neighborhood were identified. These interviews (349 in number) have been transcribed without identifiers. All interviews have been coded and assigned 'attributes' (or nominative variables, such as gender, civil/religious status of marriage, etc.) using the qualitative data analysis software (NVIVO), and these reside in secure electronic project folders. This large body of qualitative interview data is now complete and ready for use across the international collaborative units. Preliminary research reveals the particular significance of family ties in Italy, the fundamental role played by gender systems, and the specific cultural, socio-economic, and politic contexts in which fertility behavior and parenting are embedded.

Curated

Detroit Area Study, 1962: Family Growth in Detroit (ICPSR 7401)

Released/updated on: 2011-06-16
Geographic coverage: Detroit, United States, Michigan
Time period: 1962-01-01--1962-12-31

The main focus of this data collection was women's attitudes toward family and family size. The women interviewed for this study answered questions on past pregnancies and described their attitudes toward large and small families, their reasons for having children, and the nature of their own patterns of family growth. Extensive family background information was also collected, including data on occupation of respondent and husband, age of respondent and husband, education of respondent and husband and their parents, family income, types of savings, and housing information.

Curated

Detroit Area Study, 1953: Child Training Patterns Among Urban Families and Attitudes and Perceptions of Consensus of Group Members (ICPSR 7317)

Released/updated on: 2010-07-20
Geographic coverage: Detroit, United States, Michigan
Time period: 1953-01-01--1953-12-31

This study contains data on child-rearing practices of mothers of children aged 18 and younger. The study was a combination of two studies: CHILD REARING PATTERNS AMONG URBAN FAMILIES by Daniel Miller and Guy Swanson, and ATTITUDES AND PERCEPTIONS OF CONSENSUS OF GROUP MEMBERS by Theodore Newcomb. Respondents were asked about their children's habits, toilet training, and bottle- and breast-feeding patterns. Respondents were also asked about their child-rearing practices, attitudes about children, views of child-appropriate and sex-appropriate tasks, handling of difficult situations with their children, and use of leisure time. Other questions explored respondents' political interests, social life, and friends. They were asked if they voted for Adlai Stevenson or Dwight Eisenhower in the last American presidential election and why. The respondents were questioned about their three best friends to determine how frequently they visited with them, how often they discussed the election with them, whom they voted for and what kind of jobs their husbands held. Demographic variables specify age, sex, race, education, place of birth, length of residence in the Detroit area, home ownership, length of time at present residence, marital status, number of children, original nationality of husband's family, income, occupation, religious preferences, and class identification.

Curated

CBS News/New York Times Monthly Poll #2, April 2009 (ICPSR 26947)

Released/updated on: 2010-05-06
Geographic coverage: United States
Time period: 2009-04-01--2009-04-30
This poll, fielded April 22-26, 2009, is a part of a continuing series of monthly surveys that solicit public opinion on the presidency and on a range of other political and social issues. This poll included an oversample of Blacks, for a total of 212 interviews with Blacks. Respondents were asked for their opinions of President Barack Obama and his handling the presidency and issues such as the economy and foreign policy. Opinions were solicited about the most important problem facing the country, whether the country was moving in the right direction, and the condition of the national economy. Respondents gave their opinions of the United States Congress, First Lady Michelle Obama, Vice President Joe Biden, former Vice President Dick Cheney, and former President George W. Bush. Several questions addressed the wars in Iraq and Afghanistan, the care received by veterans of these wars, whether the United States should negotiate with members of the Taliban, whether waterboarding was a form of torture, whether it was justified to use aggressive interrogation tactics to get information from suspected terrorists, and whether the military prison in Guantanamo Bay, Cuba, should be closed. Views were also sought on whether children were better off if their mother didn't work outside the home, as well as on the difficulty of motherhood today compared to when they were children. Female respondents with children were asked how similar their parenting style was to their mother's and whether they thought their family appreciated them enough. Additional topics addressed race relations in the United States, same-sex marriage, the effects of the recession, international relations with Iran and Cuba, gun control, immigration policy, and the health care system. Information was collected on how many of the respondent's neighbors and co-workers were Black, whether the respondent or a member of their immediate family had served in Iraq or Afghanistan, and whether anyone in the household owned a gun. Demographic variables include sex, age, race, education level, marital status, household income, employment status, perceived social class, political party affiliation, political philosophy, voter registration status and participation history, religious preference, whether they were parents, and whether they considered themselves to be a born-again Christian.
Curated

Parenthood in Early Twentieth-Century America Project (PETCAP), 1900-1944 (ICPSR 6876)

Released/updated on: 2009-08-11
Geographic coverage: United States
Time period: 1900-01-01--1944-12-31
The purpose of this data collection was to provide information on parenting in general and on fathers' roles in particular in the early part of the twentieth century in the United States. The collection comprises transcriptions of original handwritten and published materials relating to infant and child care dating from the turn of the century into World War II. There are three types of data in the collection: (1) popular magazine articles, (2) letters to educator and author Angelo Patri (1876-1965) and his replies, and (3) letters to the United States Children's Bureau, along with the Bureau's replies. The popular magazine data files include transcriptions of original magazine articles indexed under the READER'S GUIDE TO PERIODICAL LITERATURE categories of "father," "mother," and "parent," published between 1900 and 1942. In addition to the text of the articles, other information contained in each data file includes the author of the article, index classification (father, mother, or parent), year the article was published, magazine name and volume number, and gender of the article's author. The Children's Bureau data include advice-seeking letters from fathers and mothers and the Bureau's replies, written between 1915 and 1944. Beyond the actual text of the letters, other information includes the initials and title of the letter's author, location of the letter within the National Archives (box number), Bureau subject classification codes for the box that the letter came from, time period covered by the letters in the box, Bureau subject classification code(s) for each letter, date of the letter, return address (city and state), and gender of the letter's author. Also included are the name of the Children's Bureau staff member who wrote the reply, the date of the reply, and the text of the reply itself. The Angelo Patri data include the text of advice-seeking letters from both fathers and mothers and Patri's replies to them, as well as Patri's newspaper columns and scripts from his radio show. The Patri letters were primarily written between 1924 and 1939. Other information in each Patri data file includes the location of the document in the Library of Congress (box number and date), date of the letter, return address (city and state), gender of the author of the letter, and date of the reply.
Curated

Low-Fertility Cohorts Study, 1978: A Survey of White, Ever-Married Women Belonging to the 1901-1910 United States Birth Cohorts (ICPSR 4698)

Released/updated on: 2007-08-13
Geographic coverage: United States
Time period: 1901-01-01--1978-12-31
This study is comprised of personal interviews of white, ever-married women born between July 1, 1900, and June 30, 1910. In 1978, a national survey of 1,049 married women between the ages of 68 and 78 were interviewed between the months of March and July in order to investigate low fertility during the 1920s and 1930s and the women of childbearing age during those decades. In addition to the general purpose, the study was designed to gather information to test specific hypotheses concerning demographic and socioeconomic differentials in fertility, the prevalence of contraceptive practice and the methods employed, the extent to which subfecundity and sterility may have contributed to low fertility, and the timing patterns and childbearing pace of the time. The interview collected information on each respondent's family planning, contraception usage, pregnancy history, fecundity, infertility, fertility, and maternal and infant health. Besides demographic characteristics and background information about the respondents, information was also gathered on their household composition, their husband(s), marriages, and areas of residency.
Curated

ABC News/Good Housekeeping Mother's Day Poll, January 2006 (ICPSR 4655)

Released/updated on: 2007-06-26
Geographic coverage: United States
Time period: 2006-01-01--2006-01-31
This special topic poll, conducted January 30-February 2, 2006, is part of a continuing series of monthly polls that solicit public opinion on the presidency and on a range of other political and social issues. The focus of this data collection was on respondents' experiences as mothers. Female respondents with children under the age of 18 were asked how well they felt they were doing as mothers, how much each worried about not being as good a mother as she would like to be, and the quality of her relationships with her children and with her own mother. The poll asked how often the respondent asked her mother for advice, whether her mother ever gave her unsolicited parenting advice, and whether she found this advice helpful or annoying. A series of questions asked respondents to compare their own parenting styles with that of their mothers in areas such as discipline and parental involvement, and respondents gave their opinions on whether being a mother was harder or easier compared to when they were children. Additionally, respondents were asked whether they worked outside the home, whether they considered their work to be a career or just a job, who had the main child care responsibilities in their households, whether their own mothers had worked outside the home when they were children, and the number of children in their families when they were growing up. Demographic variables include age, race, marital status, household income, employment status, education level, and number and ages of children in the household.
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Restricted

Project on Human Development in Chicago Neighborhoods (PHDCN): Attitudes Toward Mother and Father, Wave 3, 2000-2002 (ICPSR 13676)

Released/updated on: 2007-02-06
Geographic coverage: United States, Chicago, Illinois
Time period: 2000-01-01--2002-12-31
The Project on Human Development in Chicago Neighborhoods (PHDCN) was a large-scale, interdisciplinary study of how families, schools, and neighborhoods affect child and adolescent development. One component of the PHDCN was the Longitudinal Cohort Study, which was a series of coordinated longitudinal studies that followed over 6,000 randomly selected children, adolescents, and young adults, and their primary caregivers over time to examine the changing circumstances of their lives, as well as the personal characteristics, that might lead them toward or away from a variety of antisocial behaviors. Numerous measures were administered to respondents to gauge various aspects of human development, including individual differences, as well as family, peer, and school influences. One such measure was the Attitudes Toward Mother and Father. It was administered to subjects in Cohorts 6, 9, and 12 and collected information regarding how the subjects felt toward their mothers and fathers.
Curated

Washington Post: DC-Region Moms Poll, April 2005 (ICPSR 4324)

Released/updated on: 2006-05-02
Geographic coverage: District of Columbia, Baltimore, United States, Virginia, Maryland
Time period: 2005-04-01--2005-04-30
This special topic poll, conducted April 14-23, 2005, is part of a continuing series of monthly surveys that solicit public opinion on the presidency and on a range of other political and social issues. The focus of this data collection was respondents' experiences as mothers living in the Washington, DC, area. Respondents, all female, were queried on their choices as mothers such as whether to stay at home or work outside of the home, whether those in two parent households factored each person's income into the decision of who, if anyone, would stay at home to care for the children, whether they ever had doubts about their decision to have children, and whether they ever had doubts about their decisions related to which parent would stay home to care for the children. Further questions addressed the division of child care and responsibilities, the level of accommodation received from employers to address their responsibilities as parents, balancing the responsibilities of motherhood and responsibility/necessity of finding personal time for oneself, and balancing the responsibilities of motherhood and those of their jobs. Additional issues addressed the emotional health and experiences involved in motherhood, their satisfaction with being mothers, the expectations of mothers compared to times past, and the judgment and advice received from others relative to their parenting decisions. Background information includes age, education, household income, race, and sex.
Curated

Longitudinal Study of Biosocial Factors Related to Crime and Delinquency, 1959-1962: [Pennsylvania] (ICPSR 8928)

Released/updated on: 2005-11-04
Geographic coverage: United States, Pennsylvania
Time period: 1959-01-01--1962-12-31
This study was designed to measure the effects of family background and developmental characteristics on school achievement and delinquency within a "high risk" sample of Black youths. The study includes variables describing the mother and the child. Mother-related variables assess prenatal health, pregnancy and delivery complications, and socioeconomic status. Child-related variables focus on the child at age 7 and include place in birth order, physical development, family constellation, socioeconomic status, verbal and spatial intelligence, and number of offenses.
Curated

Intergenerational Study of Parents and Children, 1962-1993: [Detroit] (ICPSR 9902)

Released/updated on: 2005-11-04
Geographic coverage: Detroit, United States, Michigan
Time period: 1962-01-01--1993-12-31
This data collection provides information on family formation and dissolution among young adults. Families who had given birth to their first, second, or fourth child in 1961 comprised the group of Detroit-area Caucasian couples who were interviewed and surveyed over the period 1962-1993. The resulting longitudinal study encompasses seven waves of data collected from mothers across the entire span of their offspring's childhood. Included are demographic, social, and economic information about the parental family, information about the attitudes, values, and behavior of both the mother and the father, and information about the mother's desires and expectations for her child's education, career attainments, and marriage. The collection also offers three waves of interview data collected from the children at ages 18 through 23. These data describe the young adults' attitudes and values, their expectations for school, work, marriage, and childbearing, and their perceptions of their parents' willingness to be of assistance to them. Life history calendar files for 1985 and 1993 detail the young adults' periods of cohabitation, marriage, separation, divorce, childbearing, living arrangements, education, paid employment, and military service.
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