2015 U.S. Transgender Survey (USTS) (ICPSR 37229)
The 2015 U.S. Transgender Survey (USTS) was conducted by the National Center for Transgender Equality (NCTE) to examine the experiences of transgender adults in the United States. The USTS questionnaire was administered online and data were collected over a 34-day period in the summer of 2015, between August 19 and September 21. The final sample included respondents from all fifty states, the District of Columbia, American Samoa, Guam, Puerto Rico, and U.S. military bases overseas. The USTS Public Use Dataset (PUDS) features survey results from 27,715 respondents and details the experiences of transgender people across a wide range of areas, such as education, employment, family life, health, housing, and interactions with police and prisons.
The survey instrument had thirty-two sections that covered a broad array of topics, including questions related to the following topics (in alphabetical order): accessing restrooms; airport security; civic participation; counseling; family and peer support; health and health insurance; HIV; housing and homelessness; identity documents; immigration; intimate partner violence; military service; police and incarceration; policy priorities; public accommodations; sex work; sexual assault; substance use; suicidal thoughts and behaviors; unequal treatment, harassment, and physical attack; and voting.
Demographic information includes age, racial and ethnic identity, sex assigned at birth, gender and preferred pronouns, sexual orientation, language(s) spoken at home, education, employment, income, religion/spirituality, and marital status.
There are no publicly available data files for this study. The naming conventions were maintained from the original pre-ICPSR release and the PUDS file is restricted use along with the qualitative data (MS Excel) file.
Before applying for access to these data please refer to the Approved Requests for USTS Data. These abstracts describe work currently in progress, and we provide them to help reduce the risk of duplication of research efforts.
ABC News AIDS Poll, January 1996 (ICPSR 6833)
Abstinence Reinforcing Contingency Management to Suppress HIV Viral Load (Project First), New York City, 2012 (ICPSR 39785)
This study is part of the Seek, Test, Treat and Retain (STTR) Collaboration Project that involved over twenty studies in the fields of HIV and drug abuse. All studies were independently developed, but were chosen for the collaboration because they focused on one or more steps of the HIV treatment cascade: Seek, Test, Treat and Retain. As part of STTR Collaboration Project, the studies were grouped into Criminal Justice-related studies and Vulnerable Population-related studies. The data collected by these studies included twelve common domains (e.g., Demographic characteristics, Mental Health) in each of which a shared questionnaire or instrument was taken up by the studies and adapted to fit the study.
Using a randomized controlled study design, this study tested the efficacy of an abstinence-reinforcing CM intervention compared with a control condition (performance feedback) on HIV viral load (VL) suppression. The intervention CM group could receive up to $1320 in vouchers over the 16-week intervention based on drug-free urine. Participants were followed for 28 weeks (44 visits), with research visits occurring twice weekly during the Baseline Period (weeks 1-4, visits 1-8) and Intervention Period (weeks 5-20, visits 9-40), then every two weeks during the Post-Intervention Period (weeks 21-28, visits 41-44).
Afrobarometer Round 4: The Quality of Democracy and Governance in Benin, 2008 (ICPSR 33823)
Afrobarometer Round 4: The Quality of Democracy and Governance in Kenya, 2008 (ICPSR 34001)
Afrobarometer Round 4: The Quality of Democracy and Governance in Liberia, 2008 (ICPSR 34002)
Afrobarometer Round 4: The Quality of Democracy and Governance in Namibia, 2008 (ICPSR 34008)
Afrobarometer Round 4: The Quality of Democracy and Governance in Tanzania, 2008 (ICPSR 34012)
Afrobarometer Round 4: The Quality of Democracy and Governance in Zimbabwe, 2009 (ICPSR 34015)
Afrobarometer Round 5: The Quality of Democracy and Governance in Benin, 2011 (ICPSR 35465)
Alcohol and Drug Services Study (ADSS), 1996-1999: [United States] (ICPSR 3088)
ARV Effects on HIV Epidemiology and Behaviors in Rakai, Uganda (ICPSR 35921)
Asian Women Working in Massage Parlors in New York City and Los Angeles County, 2014-2016 (ICPSR 39387)
Media coverage has highlighted raids, mass arrests, and undercover stings of illicit massage parlors in United States cities and suburbs. This study defines "illicit," as a sub-set of massage parlors that purport to operate as legal businesses but where sexual services are illegally bought and sold. Although some media accounts have highlighted linkages between illicit massage parlors, human trafficking, and the fact that many of the workers are Asian immigrant women, the daily experiences of workers in illicit massage parlors are rarely reported from their own perspectives. To fill this gap in knowledge, researchers interviewed 116 Chinese and Korean women who reported that they had provided sexual services in a massage parlor setting in New York City or Los Angeles County. This data collection includes anonymized responses from these women about their demographic background, path to working in massage parlors, working conditions, social networks, sexual health and access to healthcare, victimization by clients and managers, and trust in law enforcement.
Barbershop-based HIV/STD Risk Reduction for African American Young Men (ICPSR 35854)
Can Church Schools Reduce Risk of HIV Infection for Orphan Girls in Zimbabwe? (ICPSR 35937)
CARE Corrections: Technology for Jail HIV/HCV Testing, Linkage, and Care (TLC), Washington, DC, 2012-2014 (ICPSR 39784)
This study is part of the Seek, Test, Treat and Retain (STTR) Collaboration Project that involved over twenty studies in the fields of HIV and drug abuse. All studies were independently developed, but were chosen for the collaboration because they focused on one or more steps of the HIV treatment cascade: Seek, Test, Treat and Retain. As part of STTR Collaboration Project, the studies were grouped into Criminal Justice-related studies and Vulnerable Population-related studies. The data collected by these studies included twelve common domains (e.g., Demographic characteristics, Mental Health) in each of which a shared questionnaire or instrument was taken up by the studies and adapted to fit the study.
The main project of the CARE+ Corrections study is in Washington DC and is a RCT evaluating the "CARE+ Corrections intervention (a computerized tool integrating HIV treatment counseling, secondary transmission risk reduction counseling, and facilitated linkage to care through text message reminders)" versus standard of care among returning citizens in Washington, DC. The study is recruiting 100 participants who are incarcerated or were released from a correctional facility less than 6 months ago.
CBS News/New York Times Monthly Poll #1, April 1998 (ICPSR 2544)
CBS News/New York Times Monthly Poll and Call-Back, June 1993 (ICPSR 6205)
Chicago Male Drug Use and Health Survey (MSM Supplement), 2002-2003 (ICPSR 34303)
Childbearing Dynamics in Setting of High HIV Prevalence and Massive ART Rollout (ICPSR 35946)
Community Factors, HIV and Related Health Outcomes in Men Who Have Sex With Men (ICPSR 35848)
Community Health Center: Core Data Project, 2001-2002 [United States] (ICPSR 21520)
The Community Vulnerability and Responses to Drug-User-Related HIV/AIDS, 1990-2013 [96 Metropolitan Statistical Areas, United States] (ICPSR 36575)
The Community Vulnerability and Responses to Drug-User-Related HIV/AIDS, 1990-2013 [96 Metropolitan Statistical Areas, United States] study (CVAR) was a research study of why large United States Metropolitan Statistical Areas (MSAs) vary over time in their vulnerability to HIV/AIDS among drug users and in MSA responses to HIV/AIDS. This collection contains estimates of HIV prevalence among people who injected drugs (PWID) and among sub-populations of PWID. This collection is comprised of ten datasets with differing amounts of variables and provides trend data that describe the following:
- Epidemiologic outcomes including population prevalence of PWIDs and Non-injecting drug users (NIDUs), and particularly their prevalence among youth; and, among PWIDs, HIV prevalence, late-diagnosis HIV cases, and AIDS incidence and mortality.
- Implementation of evidence-based drug-related interventions including drug abuse treatment, syringe exchange, HIV counseling and testing.
- Implementation of non-evidence-based drug-related interventions including incarceration and arrests of drug users.
The collection contains data on the MSA sub-populations including Black, Hispanic, White and "other" race categories. In addition, some statistics are presented in age range categories such as ages 15-29, 30-64 and 15-64.
Consequences of Recent Parental Divorce for Young Adults, 1990-1992 (ICPSR 24400)
Contextualizing and Responding to HIV Risk Behaviors among Black Drug Offenders, New York, 2016 (ICPSR 37590)
The purpose of this study was to pilot test the potential for improvement in antiretroviral medication adherence of an adapted group-based, multi-session, community-based Antiretroviral Therapy (ART) adherence and risk reduction intervention, Project ADHerence Education and Risk Evaluation (ADHERE). Project ADHERE was compared to a single-session group-based medication adherence intervention, Medication Adherence and Care Engagement (MACE). A secondary aim was to examine the impact of Project ADHERE on HIV risk behaviors (i.e., illicit drug use and unprotected sexual behavior).
Formerly incarcerated Black drug offenders are at an elevated risk for HIV infection. Despite substantial research expressing the need for HIV prevention services for ex-offenders postrelease, this population has limited access to quality programming and services related to HIV risk reduction. This study seeks to inform and adapt an HIV risk reduction intervention to address the needs of formerly incarcerated Black drug offenders who are being released from prisons in the New York City metropolitan area. The study utilizes qualitative and quantitative methods to inform and adapt an HIV prevention intervention for this study population.
Cooperative Agreement for AIDS Community-Based Outreach/Intervention Research Program, 1992-1998: [United States] (ICPSR 3023)
Criminal Justice Drug Abuse Treatment Studies (CJ-DATS) 2: HIV Services and Treatment Implementation in Corrections 2010-2013 [United States] (ICPSR 34983)
The Criminal Justice Drug Abuse Treatment Studies 2 (CJ-DATS 2) was launched in 2008 with a focus on conducting implementation research in criminal justice settings. NIDA's ultimate goal for CJ-DATS 2 was to identify implementation strategies that maximize the likelihood of sustained delivery of evidence-based practices to improve offender drug abuse and HIV outcomes, and to decrease their risk of incarceration.
CJ-DATS 2 HIV Services Treatment Implementation in Corrections focused on implementing interventions to address the HIV continuum of care in correctional settings. There are 5 datasets associated with this study.
-Dataset 1 (DS1) contains data aggregated at the correction facility level that examines delivery of HIV services in the experimental and control study groups (215 cases).
-Dataset 2 (DS2) and Dataset 3 (DS3) detail survey responses from correctional staff about how the HIV services were changed and/or implemented at their facilities (DS2 has 68 cases and DS3 has 85 cases).
-Dataset 4 (DS4) contains survey responses from inmates about their perceptions of the HIV services provided at facilities in which they are incarcerated (2,301 cases).
-Dataset 5 (DS5) contains data merged together by the principal investigator from several surveys given to treatment staff, treatment directors, correctional officers and correctional directors. This dataset includes demographic information, staff perceptions of their work environment, perceptions of HIV infected individuals, evaluations of HIV workshops and perceptions of the delivery of HIV services at their facility (385 cases).
These 5 datasets contain a total of 889 variables.
Criminal Justice Drug Abuse Treatment Studies (CJ-DATS): HIV/HEPATITIS Prevention for Re-Entering Drug Offenders (ICPSR 29061)
Criminal Justice Drug Abuse Treatment Studies (CJ-DATS): National Criminal Justice Treatment Practices (NCJTP) Survey of Co-occurring Substance Use and Mental Disorder (COD) Treatment Services in Criminal Justice Settings, 2002-2008 (ICPSR 27962)
Criminal Justice Drug Abuse Treatment Studies (CJ-DATS): Restructuring Risky Relationships-HIV (RRR-HIV), 2005-2008 [United States] (ICPSR 30842)
Criminal Justice Drug Abuse Treatment Studies (CJ-DATS): Step 'N Out, 2002-2006 [United States] (ICPSR 30221)
Criminal Justice Drug Abuse Treatment Studies (CJ-DATS): Targeted Intervention Components (TIC) for Correctional Re-Entry Programs, 2002-2008 [United States] (ICPSR 27961)
Culture-based Prediction of Adolescent HIV Risk (ICPSR 35922)
Determinants of Use of Safer Conception Strategies Among HIV Clients in Uganda (ICPSR 35879)
Drug Abuse Treatment Outcome Study--Adolescent (DATOS-A), 1993-1995: [United States] (ICPSR 3404)
Drug Abuse Treatment Outcome Study (DATOS), 1991-1994: [United States] (ICPSR 2258)
Drug-Abuse Treatment Outcomes Study (DATOS) is a prospective study designed to determine the outcomes of adult drug abuse treatment delivered in typical, stable, community-based programs and to provide comprehensive information on continuing and new questions about the effectiveness of drug abuse treatment for adults currently available in a variety of publicly funded and private programs. The study examined the role of treatment outcomes and program type, client characteristics (including dependence, treatment history, and physical and mental health comorbidities), treatment received (e.g., length and intensity of services provided), therapeutic approaches, provision of aftercare, and research on the components of effective treatment, including factors that engage and retain clients in programs. Four types of programs were included: outpatient methadone (OPM), short-term inpatient (STI), long-term residential (LTR), and outpatient drug-free (ODF). Respondents were sampled from among adults admitted to drug abuse treatment programs in 11 representative U.S. cities during 1991-1993.
Clients entering treatment completed two comprehensive intake interviews (Intake 1 and Intake 2), approximately one week apart. This information is provided in Parts 1 and 2 of the data collection. These interviews were designed to obtain baseline data on drug use and other behaviors, as well as information on background and demographic characteristics, patterns of dependence, living situation and child custody status, education and training, income and expenditures, and HIV risk behaviors, along with assessments of dependence, mental health, physical health, and social functioning. Data on criminal justice status and criminal behavior are reported in Part 5, Illegal Activities Data, and are drawn from the Intake 1 interview. Data reflecting during-treatment progress, including service delivery and client satisfaction, were collected in the one-, three-, and six-month in-treatment interviews (Parts 3, 4, and 8). The 12-Month Post-Treatment Follow-Up Interview (Part 6) replicated many of the intake questions and focused on key behaviors in the year following treatment. Part 7 includes variables for time in treatment and interview availability indicators. The 12-Month Follow-Up Urine Result data (Part 9) provide the results from urine sample tests that were given to a sample of subjects at the time of the 12-Month Follow-Up Interview. Urine specimens were tested for eight categories of drugs (amphetamines, barbiturates, benzodiazepines, cannabinoids, cocaine metabolite, methaqualone, opiates, and phencyclidine). The drugs covered in the study were alcohol, tobacco, marijuana (hashish, THC), hallucinogens or psychedelics such as LSD, mescaline, and PCP, cocaine (including crack), heroin, narcotics or opiates such as morphine, codeine, Demerol, Dilaudid, and Talwin, downers or depressants such as sedatives, barbiturates, and tranquilizers, amphetamines or other stimulants such as speed or diet pills, and other drugs. Part 10 contains data for 1393 clients who were interviewed 5 years post treatment. This part contains many of the same types of questions asked during previous interviews.
Education and HIV Risk Among Young People in a High Prevalence Country (ICPSR 35859)
Effectiveness of Peer Navigation to Link Released HIV-Positive Jail Inmates to HIV Care (LINK LA), Los Angeles, California, 2012-2016 (ICPSR 39789)
This study is part of the Seek, Test, Treat and Retain (STTR) Collaboration Project that involved over twenty studies in the fields of HIV and drug abuse. All studies were independently developed, but were chosen for the collaboration because they focused on one or more steps of the HIV treatment cascade: Seek, Test, Treat and Retain. As part of STTR Collaboration Project, the studies were grouped into Criminal Justice-related studies and Vulnerable Population-related studies. The data collected by these studies included twelve common domains (e.g., Demographic characteristics, Mental Health) in each of which a shared questionnaire or instrument was taken up by the studies and adapted to fit the study.
This study was a Randomized Controlled Trial (RCT) of a peer-based health system navigation intervention among individuals assigned to the intervention group compared with those assigned to the control group (usual care transitional management services). Baseline interviews were conducted during incarceration while the follow-up interviews were conducted at months 2, 6 and 12 following release from jail to the community. For participants who were re-incarcerated during, interviews were conducted in the jail setting to ensure high study retention. The goal was to improve engagement and retention in HIV care.
Efficacy of HIV Posttest Support for ANC in South Africa (ICPSR 35916)
Elucidating Biopsychosocial Mediators of HIV Progression (ICPSR 35912)
Enhanced STI/HIV Partner Notification in South Africa (ICPSR 35885)
Evaluation of SAFEChildren, a Family-Focused Prevention Program in Chicago, Illinois, 2006-2010 (ICPSR 33101)
Evaluation of the Health Link Program [New York City]: The Community Reintegration Model to Reduce Substance Abuse Among Jail Inmates, 1997-2002 (ICPSR 3978)
Expanding Patient-Reported Outcome (PRO) Assessment Integrated into Routine Clinical Care of Patients with HIV to New Patient-Reported Outcomes Measurement Information System (PROMIS) Domains: Identifying Patient Priorities, Developing Cross-Walks with Legacy Instruments, and Evaluating Predictive Validity [Methods Study], United States, 2015-2019 (ICPSR 39566)
Understanding which aspects of health and wellness are most important to patients living with HIV can help clinics improve care. Clinics often have patients complete surveys about their health and wellness. This study created new sets of survey questions for people living with HIV.
This study had two parts. In the first part, the research team asked patients living with HIV and their clinicians, such as doctors and nurses, what health and wellness topics they found important. In the second part, the team created sets of survey questions for two topics: domestic violence and social support. The team then asked patients living with HIV to answer the questions.