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2021-2022 Study of Family and Staff Experiences in AIAN Head Start FACES Programs (2021-2022 Study), United States (ICPSR 38965)

Released/updated on: 2026-04-07
Geographic coverage: United States
Time period: 2021-08-01--2022-07-31

The 2021-2022 Study of Family and Staff Experiences in AIAN Head Start FACES Programs (2021-2022 Study) builds on the American Indian and Alaska Native Head Start Family and Child Experiences Survey (AIAN FACES), which has been a source of national information on children and families enrolled in Head Start programs operated by federally recognized tribes (known as Region XI AIAN Head Start) since 2015. The motivation and goals of the Study of Family and Staff Experiences in AIAN FACES Programs (the 2021-2022 study) came from a need that arose as the COVID-19 pandemic continued into another year of affecting Region XI Head Start families' and staff's lives--and from recognizing the disproportionate impact of the pandemic on AIAN communities.

The 2021-2022 study included a nonrepresentative sample of Region XI Head Start programs and the children and families they serve. Although a nationally representative sample of Region XI Head Start programs, centers, teachers, and children were selected, fewer of them participated than expected, despite an extension of the planned parental consent collection and data collection windows.

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2021-2022 Study of Family and Staff Well-Being in Head Start FACES Programs (2021-2022 Study), United States (ICPSR 38950)

Released/updated on: 2025-01-13
Geographic coverage: United States
Time period: 2021-08-01--2022-07-31

The 2021-2022 Study of Family and Staff Well-Being in Head Start FACES Programs (2021-2022 study), builds on the Head Start Family and Child Experiences Survey (FACES), which has been a source of national information about Head Start programs and participants since 1997. The motivation and goals of the Study of Family and Staff Well-Being in Head Start Family and Child Experiences Survey Programs (the 2021-2022 study) came from a need that arose as the COVID-19 pandemic continued into another year of affecting Head Start families' and staff's lives.

The 2021-2022 study included two components. Firstly, the Program, Staff, and Family Study, was conducted in 60 programs, and included the collection of parent surveys and Teacher Child Reports (TCRs) in fall 2021 and spring 2022, as well as a teacher survey in fall 2021. Secondly, the Program and Staff Study, conducted in the 60 programs participating in the Program, Staff, and Family Study plus an additional 120 programs, included the collection of program director, center director, and teacher surveys in spring 2022.

The 2021-2022 study aimed to describe the national population of Head Start programs, centers, teachers, classrooms, and children during the 2021-2022 program year. However, the Data Producers were unable to fully meet this goal because of challenges related to the COVID-19 pandemic. A nationally representative sample of Head Start programs was selected. However, fewer of the programs participated than expected. Probability samples of centers, teachers, and children within the participating programs were selected. Weights are available for analysis to account for the probability that children and their teachers, centers, and programs were selected for the study. This lessens the risk of bias due to study non-participation and survey nonresponse; and provide results that represent, to the extent possible, all programs, centers, teachers, classrooms, and children in Head Start. The responding sample may not fully represent the population due to higher-than-expected non-response that may not have been adequately addressed with weighting adjustments.

Despite these limitations, the 2021-2022 study sample design supports many analyses for programs and teachers, as well as children. The data from the programs in the Program, Staff, and Family Study can address questions about the children and parents who participate in the program, including about children's development across one year in the Head Start program for both newly entering children and those returning for a second year. The study also supports research questions related to subgroups of interest, such as families with low income and specific racial/ethnic groups, as well as policy issues that emerge during the study. In addition, the research questions investigate the characteristics of Head Start programs, centers, and teachers, and the classrooms they teach. Users can use the same data to answer questions about the relationships between program and classroom characteristics and child and family well-being. The data from the larger sample of programs in the Program and Staff Study are most useful for answering questions about Head Start programs, classrooms, teachers, and program and center directors.

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Advanced Cognitive Training for Independent and Vital Elderly (ACTIVE), United States, 1999-2001 (ICPSR 4248)

Released/updated on: 2010-06-30
Geographic coverage: Indiana, United States, Massachusetts, Alabama, Florida, Maryland, Michigan
Time period: 1999-01-01--2001-01-01

The data producers have recompiled the ACTIVE data into a new study which is available as of December 2023, ICPSR 38821; data users should plan to use study 38821 instead.

ACTIVE (Advanced Cognitive Training for Independent and Vital Elderly), 1999-2001 [United States] was a multisite randomized controlled trial conducted at six field sites with New England Research Institutes (NERI) as the coordinating center. The field sites included the University of Alabama at Birmingham, Hebrew Rehabilitation Center for the Aged in Boston, Indiana University, Johns Hopkins University in Baltimore, Pennsylvania State University, and the University of Florida/Wayne State University (Detroit). The primary aim of the trial was to test the effects of three distinct cognitive interventions -- previously found to be successful in improving elders' performance on basic measures of cognition under laboratory or small-scale field conditions -- on measures of cognitively demanding daily activities. Trainings consisted of an initial series of ten group sessions followed by four-session booster trainings at one and three years. The three cognitive interventions focused on memory, executive reasoning, and speed of processing. The design included a no-contact control group. Participants were assessed at baseline, immediately after training, and annually thereafter. A total of 2,832 older adults were enrolled in the trial, and 2,802 were included in the analytical sample. Twenty-six percent of the participants were African American.

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Aging, Status, and Sense of Control (ASOC), 1995, 1998, 2001 [United States] (ICPSR 3334)

Released/updated on: 2005-12-15
Geographic coverage: United States
The Aging, Status, and Sense of Control (ASOC) was conducted during 1995, 1998 and 2001 and examined the relationship between age and changes in the sense of control over one's life. Part I contains data for Waves I and II. Respondents were queried about their physical health, including activities of daily living such as shopping, walking, and doing housework, along with medical conditions such as heart disease, high blood pressure, lung disease, breast cancer, diabetes, arthritis or rheumatism, osteoporosis, and allergies or asthma. Questions regarding mental health investigated difficulties staying focused, feelings of sadness or anxiety, and enjoyment of life. Respondents were also asked about their health behaviors, including use of tobacco and alcohol, frequency of exercise, use of medical services including insurance coverage, and the number of prescription medications used. Also examined was respondents' sense of control over their lives, including social support and participation, and history of adversity, which covered such topics as home or apartment break-ins or assaults, major natural disasters, unemployment longer than six months, and times without enough money for clothes, food, rent, bills, or other necessities. Demographic questions included age, sex, marital status, education, work status, marital and family relations, and socioeconomic status. Wave III (Part 2) was collected in 2001 and contains data on the same questions such as physical health, mental health and health behaviors.
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Alameda County [California] Health and Ways of Living Study, 1974 Panel (ICPSR 6838)

Released/updated on: 2008-01-31
Geographic coverage: United States, California
These data constitute the second wave of a survey designed to study the influence of health practices and social relationships on the physical and mental health of a typical sample of the population. The first wave (HEALTH AND WAYS OF LIVING STUDY, 1965 PANEL [ALAMEDA COUNTY, CALIFORNIA] [ICPSR 6688]) collected information for 6,928 respondents (including approximately 500 women aged 65 years and older) on chronic health conditions, health behaviors, social involvements, and psychological characteristics. The 1974 questionnaire was sent to 6,246 living subjects who had responded in 1965, and were able to be located. A total of 4,864 individuals responded in 1974. Questions were asked on marital and life satisfaction, parenting, physical activities, employment, and childhood experiences. Demographic information on age, race, height, weight, education, income, and religion was also collected. Included with this dataset is a separate file (Part 2) containing mortality data for respondents who died between the 1965 and 1974 panels, and information on nonrespondents.
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Alameda County [California] Health and Ways of Living Study, 1994 and 1995 Panels (ICPSR 3083)

Released/updated on: 2006-03-06
Geographic coverage: United States, California
This collection provides a 30-year follow-up with respondents from Alameda County who were originally interviewed in 1965 for the first wave of the Health and Ways of Living Study. The purpose of the survey was to explore the influences of health practices and social relationships on the physical and mental health of a typical sample of the population. The first wave of the study, HEALTH AND WAYS OF LIVING STUDY, 1965 PANEL: [ALAMEDA COUNTY, CALIFORNIA] (ICPSR 6688), collected information for 6,928 respondents (including approximately 500 women aged 65 years and older) on chronic health conditions, health behaviors, social involvements, and psychological characteristics. The second wave, the 1974 panel (ALAMEDA COUNTY [CALIFORNIA] HEALTH AND WAYS OF LIVING STUDY, 1974 PANEL [ICPSR 6838]), collected information from 4,864 of the original respondents. The third and fourth waves (1994 and 1995 panels, respectively), provided in this collection, explore some new topics. The third wave provides a follow-up of 2,729 original 1965 and 1974 respondents and examines health behaviors such as alcohol consumption and smoking habits, along with social activities. Also included is information on health conditions such as diabetes, osteoporosis, hormone replacement, and mental illness. Another central topic investigated is activities of daily living (including self-care such as dressing, eating, and shopping), along with use of free time and level of involvement in social, recreational, religious, and environmental groups. The fourth wave is a follow-up to the 1994 panel, and contains 2,569 cases. This wave examines changes in functional abilities such as self-care activities, employment, involvement in community activities, visiting friends/family, and use of free time since 1994.
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Alameda County [California] Health and Ways of Living Study, 1999 Panel (ICPSR 4432)

Released/updated on: 2006-11-16
Geographic coverage: United States, California
This fifth wave of data, collected in 1999, provides follow-up with 2,123 respondents from Alameda County who were originally interviewed in 1965 for the first wave of the Health and Ways of Living Study. The purpose of the survey was to explore the influences of health practices and social relationships on the physical and mental health of a typical sample of the population. Part 2 of this collection contains mortality data including cause and year of death. The first wave of the study, HEALTH AND WAYS OF LIVING STUDY, 1965 PANEL: [ALAMEDA COUNTY, CALIFORNIA] (ICPSR 6688), collected information for 6,928 respondents (including 360 men and 530 women aged 65 years and older) on chronic health conditions, health behaviors, social involvements, and psychological characteristics. The second wave, the 1974 panel, ALAMEDA COUNTY [CALIFORNIA] HEALTH AND WAYS OF LIVING STUDY, 1974 PANEL (ICPSR 6838), collected information from 4,864 of the original respondents. The third and fourth waves, ALAMEDA COUNTY [CALIFORNIA] HEALTH AND WAYS OF LIVING STUDY, 1994 and 1995 PANELS (ICPSR 3083), provided a follow-up of 2,729 original 1965 and 1974 respondents. The fourth wave is a follow-up to the 1994 panel and contains 2,569 cases.
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Americans' Changing Lives: Waves I, II, III, IV, V, and VI, 1986, 1989, 1994, 2002, 2011, and 2021 (ICPSR 4690)

Released/updated on: 2024-12-12
Geographic coverage: United States
Time period: 1986-01-01--2021-01-01

The Americans' Changing Lives (ACL) survey series is an ongoing, nationally representative, longitudinal study focusing especially on differences between Black and White Americans in middle and late life. These data constitute the first, second, third, fourth, fifth, and sixth waves in a panel survey covering a wide range of sociological, psychological, mental, and physical health items. Wave I of the study began in 1986 with a nation face-to-face survey of 3,617 adults ages 25 and up, with Black Americans and people aged 60 and over over-sampled at twice the rate of the others. Wave II constitutes face-to-face re-interviews in 1989 of those still alive. Survivors have been re-interviewed by telephone, and when necessary face-to-face, in 1994 (Wave III), 2001/02 (Wave IV), 2011 (Wave V), and 2019/21 (Wave VI).

Please note that for Wave VI, the majority of data collection occurred in 2019, with only a small subset (n=39) of participants surveyed in 2021.

ACL was designed and sought to investigate the following: (1) The ways in which a wide range of activities and social relationships that people engage in are broadly "productive," (2) how individuals adapt to acute life events and chronic stresses that threaten the maintenance of health, effective functioning, and productive activity, and (3) sociocultural variations in the nature, meaning, determinants, and consequences of productive activity and relationships. Among the topics covered are interpersonal relationships (spouse/partner, children, parents, friends), sources and levels of satisfaction, social interactions and leisure activities, traumatic life events (physical assault, serious illness, divorce, death of a loved one, financial or legal problems), perceptions of retirement, health behaviors (smoking, alcohol consumption, overweight, rest), and utilization of health care services (doctor visits, hospitalization, nursing home institutionalization, bed days). Also included are measures of physical health, psychological well-being, and indices referring to cognitive functioning.

Demographic information provided for individuals includes household composition, number of children and grandchildren, employment status, occupation and work history, income, family financial situation, religious beliefs and practices, ethnicity, race, education, sex, and region of residence.

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Australian [Adelaide] Longitudinal Study of Aging, Wave 6: [1999-2000] (ICPSR 3679)

Released/updated on: 2006-01-18
Geographic coverage: Australia, Global
Time period: 1999-01-01--2000-01-01
The general purpose of the Australian [Adelaide] Longitudinal Study of Aging (ALSA) is to gain further understanding of how social, biomedical, and environmental factors are associated with age-related changes in the health and well-being of persons aged 70 years and older. Emphasis is given to the effects of social and economic factors on morbidity, disability, acute and long-term care service use, and mortality. The aim is to analyze the complex relationships between individual and social factors and changes in health status, health care needs, and service utilization dimensions. Components of Wave 6 (1999-2000) (Part 1) include a comprehensive personal interview conducted via the Computer-Assisted Personal Interview (CAPI) system, a home-based assessment of physiological functions, self-completed questionnaires, and additional clinical studies. In Part 2, Wave 6 Clinical Data, information about the health histories of the respondents was elicited, including information on medication, blood pressure, and physical and mental disabilities.
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Behavioral Risk Factor Surveillance System (BRFSS), 2003 (ICPSR 34085)

Released/updated on: 2013-08-05
Geographic coverage: Oregon, Vermont, Puerto Rico, Indiana, United States, Oklahoma, Maine, Utah, Nebraska, West Virginia, Massachusetts, North Dakota, Wisconsin, Arizona, Nevada, District of Columbia, Rhode Island, Montana, Hawaii, Kansas, New York (state), New Jersey, Michigan, Iowa, New Mexico, Illinois, Texas, Connecticut, New Hampshire, Louisiana, Ohio, Georgia, Virginia, Maryland
The Behavioral Risk Factor Surveillance System (BRFSS) is a state-based system of health surveys that collects information on health risk behaviors, preventive health practices, and health care access primarily related to chronic disease and injury. For many states, the BRFSS is the only available source of timely, accurate data on health-related behaviors. BRFSS was established in 1984 by the Centers for Disease Control and Prevention (CDC); currently data are collected monthly in all 50 states, the District of Columbia, Puerto Rico, the United States Virgin Islands, and Guam. More than 350,000 adults are interviewed each year, making the BRFSS the largest telephone health survey in the world. States use BRFSS data to identify emerging health problems, establish and track health objectives, and develop and evaluate public health policies and programs. The BRFSS is a cross-sectional telephone survey conducted by state health departments with technical and methodologic assistance provided by CDC. States conduct monthly telephone surveillance using a standardized questionnaire to determine the distribution of risk behaviors and health practices among adults. Responses are forwarded to CDC, where the monthly data are aggregated for each state, returned with standard tabulations, and published at the year's end by each state. The BRFSS questionnaire was developed jointly by CDC's Behavioral Surveillance Branch (BSB) and the states. When combined with mortality and morbidity statistics, these data enable public health officials to establish policies and priorities and to initiate and assess health promotion strategies.
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Behavioral Risk Factor Surveillance System (BRFSS), United States, 2017 (ICPSR 37989)

Released/updated on: 2023-07-10
Geographic coverage: District of Columbia, Puerto Rico, United States, Guam

The Behavioral Risk Factor Surveillance System (BRFSS) is a system of health-related telephone surveys that collect state data about U.S. residents regarding their health-related risk behaviors, chronic health conditions, and use of preventive services. Established in 1984 with 15 states, BRFSS now collects data in all 50 states as well as the District of Columbia and three U.S. territories. BRFSS completes more than 400,000 adult interviews each year.

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Center for Education and Drug Abuse Research (CEDAR): Etiological and Prospective Family Study in Southwestern Pennsylvania, Baseline and Follow-Up Data, 1990-2014 (ICPSR 33444)

Released/updated on: 2021-06-30
Geographic coverage: United States, Pennsylvania
Time period: 1990-01-01--2014-01-01
The Center for Education and Drug Abuse Research (CEDAR) conducted research on 775 families enrolled in the Center's prospective investigations into the etiology of substance use disorder (SUD). The pro-bands are men with lifetime presence/absence of SUD consequent to use of an illicit drug who have a 10-12 year old biological son or daughter. The biological children of SUD men are assigned to the high average risk (HAR) group whereas offspring of men without SUD, having neither axis 1 disorder ("normal") nor SUD psychiatric disorder, are assigned to the low average risk (LAR) group. A second control group (Psych control) was also collected, in whom the fathers had a lifetime DSM-III-R diagnosis of any psychiatric disorder not related to substance use. The sample sizes are as follows: HAR = 344, LAR = 350, and Psych = 81. The children had follow-up evaluations conducted at ages 12-14, 16, 19, and annually thereafter until age 30. CEDAR has already shown that they can predict in 10-12 year old youth cannabis use disorder by age 22 with approximately 70 percent accuracy, thereby substantiating the paradigm, subject recruitment strategy, and measurement protocols. Multidisciplinary research was conducted on family members (father, mother, children) with the objective of elucidating the genetic, bio-behavioral, and environmental factors on development of SUD consequent to use of illegal drugs. Research protocols are organized into three thematically connected research modules (Neurogenetics, Developmental Psychopathology, and Translation) linking etiology and prevention. The research components thus align with the NIH Roadmap model such that basic science informs clinical research leading to prevention guided by an understanding of etiology. In addition to module-level research, faculty also participate in three organizational aims: (1) Devise a practical scale to quantify the transmissible liability to SUD; (2) Empirically test a bio-psychological theory of SUD etiology focusing on off-time maturation leading to psychological dysregulation predisposing to SUD; and, (3) Delineate SUD liability variants within an ontogenetic framework.
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Charleston Heart Study, Charleston, South Carolina, 1960-2000 (ICPSR 4050)

Released/updated on: 2021-06-03
Geographic coverage: Charleston (South Carolina), United States, South Carolina
Time period: 1960-01-01--2000-01-01
The Charleston Heart Study (CHS) represents data collected over a 41-year period (1960-2000) in order to provide an understanding of the natural progression of aging in a community-based cohort. In 1960 the CHS began enrolling a random selection of community residents who were 35 years of age and older -- including men and women, Black and White. The primary hypothesis of the original study was to investigate racial differences in the manifestation and risk factors for coronary disease. Over the ensuing 40+ years, a variety of outcome measurements were incorporated into the re-examination of the participants, including psychosocial, behavioral, aging, and functional measures. As a longitudinal study, the CHS allows for the study of the risk factors, correlates, and consequences of aging, while simultaneously allowing for exploration of racial disparity in the manifestation of putative risk factors and outcomes. The CHS began with baseline data and added a special cohort of Black men. In subsequent years three separate follow-ups were conducted. The data include death information for respondents and background characteristics (age, race, sex, occupation, education, and marital status).
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Children and Neighborhoods: Randomized Study of Mobility (Continuation-Revised) (ICPSR 36000)

Released/updated on: 2015-06-19
Geographic coverage: United States
This project collects follow-up survey data on the physical and mental health of youth whose families were randomly assigned the HUD's Moving to Opportunity (MTO) housing vouchers. Youth are surveyed roughly ten years after randomization.
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Chitwan Valley Family Study: Changing Social Contexts and Family Formation, Nepal, 1995-2019 (ICPSR 4538)

Released/updated on: 2024-10-16
Geographic coverage: Nepal
Time period: 1995-01-01--2019-01-01

The Chitwan Valley Family Study (CVFS) is a comprehensive family panel study of individuals, households, and communities in the Chitwan Valley of Nepal. The study was initially designed to investigate the influence of changing community and household contexts on population outcomes such as marital and childbearing processes. Over time, the goals of the study expanded to investigate family dynamics, intergenerational influences, child health, migration, labor force participation, attitudes and beliefs, mental health, agricultural production, environmental change, and many other topics. The data include full life histories for more than 10,000 individuals, tracking and interviews with all migrants, continuous measurement of community change, over 25 years of demographic event registry, and many other data collections. For additional information regarding the Chitwan Valley Family Study, please visit the Chitwan Valley Family Study Website. A Data Guide for this study is available as a web page and for download.

Principal Investigators

  • William G. Axinn, University of Michigan
  • Dirgha Ghimire, University of Michigan
  • Jordan Smoller, Massachusetts General Hospital
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Cleveland Study of the Elderly: a Follow-Up, 1984-1988 (ICPSR 6985)

Released/updated on: 2006-03-30
Geographic coverage: United States, Ohio, Cleveland
Time period: 1984-01-01--1988-01-01
This follow-up survey, funded under two separate grants from the National Institute on Aging (NIA), reinterviewed survivors of STUDY OF THE WELL-BEING OF OLDER PEOPLE IN CLEVELAND, OHIO, 1975-1976 (ICPSR 7773). The first part of the project, "Cleveland GAO Study of the Elderly: A Follow-Up", was conducted from 1983 to 1986, and reinterviewed survivors (n = 647) of the original 1975 sample (n = 1,834) to determine the impact of gender on the quality of life for elders, along with stability and change in measures of mental health. During 1984, a subset of the interview subjects were visited at their homes to validate self-reported impairment and disability. These data are presented in Part 1, Cleveland GAO Study of the Elderly: A Follow-Up, 1984 Data for Survivors of 1975 Sample. The second phase of the project, "Cleveland Elderly 12 Years Later," describes changes in disease, disability, and mortality since 1975 and attempted to determine if differences were related to changes in social support, use of health services, or economic status. The study also sought to assess levels of social, economic, mental, and physical well-being reported by respondents, and examined daily activities, the use and quality of services, and the characteristics of service providers. The "Cleveland Elderly 12 Years Later" data were collected in 1987 and again in 1988. Data collected in 1987 consist of interviews with survivors of the original 1975 sample (Part 2) along with interviews from an additional sample drawn from the 1977 Medicare rolls (Part 3). During 1988, interviews were again conducted with survivors of the original 1975 sample (Part 4) and survivors of the Medicare sample (Part 5). Data collected in 1984, 1987, and 1988 for survivors of the 1975 sample may be merged with the original data collected in 1975-1976 using the ID number.
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Collaborative Psychiatric Epidemiology Surveys (CPES), 2001-2003 [United States] (ICPSR 20240)

Released/updated on: 2024-02-28
Geographic coverage: United States
Time period: 2001-01-01--2003-01-01
The Collaborative Psychiatric Epidemiology Surveys (CPES) were initiated in recognition of the need for contemporary, comprehensive epidemiological data regarding the distributions, correlates and risk factors of mental disorders among the general population with special emphasis on minority groups. The primary objective of the CPES was to collect data about the prevalence of mental disorders, impairments associated with these disorders, and their treatment patterns from representative samples of majority and minority adult populations in the United States. Secondary goals were to obtain information about language use and ethnic disparities, support systems, discrimination and assimilation, in order to examine whether and how closely various mental health disorders are linked to social and cultural issues. To this end, CPES joins together three nationally representative surveys: the NATIONAL COMORBIDITY SURVEY REPLICATION (NCS-R), the NATIONAL SURVEY OF AMERICAN LIFE (NSAL), and the NATIONAL LATINO AND ASIAN AMERICAN STUDY (NLAAS). These surveys collectively provide the first national data with sufficient power to investigate cultural and ethnic influences on mental disorders. In this manner, CPES permits analysts to approach analysis of the combined dataset as though it were a single, nationally representative survey. Each of the CPES surveys has been documented in a comprehensive and flexible manner that promotes cross-survey linking of key data and scientific constructs.
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Combined Generations Wave 1 and TransPop surveys, United States, 2016-2018 (ICPSR 38421)

Released/updated on: 2024-08-29
Geographic coverage: United States
Time period: 2016-01-01--2018-01-01

This collection includes a combined dataset of the Generations study wave 1 (baseline) survey and the TransPop study transgender survey. The two studies have many overlapping variables, and they examined topics such as respondents' health outcomes and behaviors, experiences with discrimination, identity, and transition-related experiences. Data from these studies were merged to allow for analysis of the combined LGBT populations. This dataset has also been reweighted to be representative of these populations.

The complete Generations study data (baseline, wave 2, and wave 3 survey data) can be found under study number 37166, and the complete TransPop study data (transgender and cisgender survey data) can be found under study number 37938. For detailed information on the Generations and TransPop studies, including related publications, please refer to their respective DSDR/ICPSR study pages.

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Continuation of Dating It Safe: A Longitudinal Study on Teen Dating Violence, Houston, Texas, 2010-2018 (ICPSR 37170)

Released/updated on: 2022-11-29
Geographic coverage: United States, Texas, Houston
Time period: 2010-01-01--2018-01-01

Dating It Safe is a longitudinal cohort study of 1,042 youth in southeast Texas. Primarily freshmen high school students were recruited and assessed in the spring of 2010. Follow-up waves were collected annually each spring from 2011 through 2017 (Waves 2-8). The primary aims of this research study were to examine the:

  • longitudinal association between the three different forms of teen dating violence (TDV; i.e., physical violence, psychological abuse, and sexual aggression), and
  • risk and protective factors of TDV perpetration and victimization.
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CRELES-2: Costa Rican Longevity and Healthy Aging Study - Wave 2, 2006-2008 (Costa Rica Estudio de Longevidad y Envejecimiento Saludable, Ronda 2) (ICPSR 31263)

Released/updated on: 2025-01-14
Geographic coverage: Global, Costa Rica
Time period: 2006-10-01--2008-07-01

The Costa Rican Longevity and Healthy Aging Study (CRELES, or Costa Rica Estudio de Longevidad y Envejecimiento Saludable) is a nationally representative longitudinal survey of health and lifecourse experiences of 2,827 Costa Ricans ages 60 and over in 2005, the baseline collection. CRELES-2 refers to the second wave of visits in this longitudinal study, and includes the results from these visits. The first wave of interviews, or baseline, of CRELES is also available at http://doi.org/10.3886/ICPSR26681. The second wave fieldwork was conducted from October 2006 to July 2008, with 2,364 surviving and contacted participants. The original sample was drawn from Costa Rican residents in the 2000 population census who were born in 1945 or before, with an over-sample of the oldest-old (ages 95 and over). Vital statistics indicate that Costa Rica has an unusually high life expectancy for a middle-income country, even higher than that of the United States, but CRELES is the first nationally representative survey to investigate adult health levels in Costa Rica. CRELES public use data files contain information on a broad range of topics including self-reported physical health, psychological health, living conditions, health behaviors, health care utilization, social support, and socioeconomic status. Objective health indicators include anthropometrics, observed mobility, and biomarkers from fasting blood samples (such as cholesterol, glycosylated hemoglobin, and C-reactive protein). Mortality events are tracked and conditions surrounding death are measured in a surviving family interview.

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CRELES: Costa Rican Longevity and Healthy Aging Study - Wave 1, 2005 (Costa Rica Estudio de Longevidad y Envejecimiento Saludable) (ICPSR 26681)

Released/updated on: 2024-04-15
Geographic coverage: Central America, Global, Costa Rica
The Costa Rican Longevity and Healthy Aging Study (CRELES, or Costa Rica Estudio de Longevidad y Envejecimiento Saludable) is a nationally representative longitudinal survey of health and lifecourse experiences of 2,827 Costa Ricans ages 60 and over in 2005. Baseline household interviews were conducted between November 2004 and September 2006, with two-year follow-up interviews. The sample was drawn from Costa Rican residents in the 2000 population census who were born in 1945 or before, with an over-sample of the oldest-old (ages 95 and over). The main study objective was to determine the length and quality of life, and its contributing factors in the elderly of Costa Rica. Vital statistics indicate that Costa Rica has an unusually high life expectancy for a middle-income country, even higher than that of the United States, but CRELES is the first nationally representative survey to investigate adult health levels in Costa Rica. CRELES public use data files contain information on a broad range of topics including self-reported physical health, psychological health, living conditions, health behaviors, health care utilization, social support, and socioeconomic status. Objective health indicators include anthropometrics, observed mobility, and biomarkers from fasting blood and overnight urine collection (such as cholesterol, glycosylated hemoglobin, C-reactive protein, cortisol, and other components of integrative allostatic load measures). Mortality events are tracked and conditions surrounding death are measured in a surviving family interview (longitudinal follow-up data are not yet publicly available).
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Danish 1905 Cohort Study, 1998 (ICPSR 3960)

Released/updated on: 2016-08-22
Geographic coverage: Denmark, Global
Time period: 1905-01-01--1998-01-01
This data collection provides information on individuals born in Denmark in 1905 and who were still living in Denmark in 1998. The overall goal of the study was to establish a genetic-epidemiological database to shed light on the aging process among the extremely old. The data focus on their physical and cognitive functioning. Respondents were asked if they had been previously diagnosed with diseases such as diabetes, arthritis, asthma, migraine, cancer, stroke, heart attack, or depression, and if they were experiencing such ailments as cough, body pains, and bone fracture and were taking medication for them. Questions probed respondents' feelings about their health, life, and future. To assess respondents' general health and functioning, they were asked if they needed assistance with toileting, bathing, dressing, and mobility around the house; how often they needed to use the bathroom during the night; and if they used physical aids such as wheelchairs, eyeglasses, crutches, catheters, or diapers. They were also tested for memory and cognition, mobility, vision, speech, hearing, and lung functioning. Information was also elicited on respondents' mental state and awareness, energy level, menopause, frequency of visits with children and family, visits from a nurse, use of home care services, sleeping patterns, smoking and drinking habits, weight gain or loss, exercises, social activities, hobbies, reading habits, television viewing, and recent deaths in the family. Demographic information includes age, education, and marital status.
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Drug Abuse Treatment Outcome Study--Adolescent (DATOS-A), 1993-1995: [United States] (ICPSR 3404)

Released/updated on: 2008-10-07
Geographic coverage: United States
Time period: 1993-01-01--1995-01-01
Drug Abuse Treatment Outcome Study - Adolescent (DATOS-A) was a multisite, prospective, community-based, longitudinal study of adolescents entering treatment. It was designed to evaluate the effectiveness of adolescent drug treatment by investigating the characteristics of the adolescent population, the structure and process of drug abuse treatment in adolescent programs, and the relationship of these factors with outcomes. Three major types or modalities of programs included in the study were chemical dependency or short-term inpatient (STI), therapeutic community or residential (RES), and outpatient drug-free (ODF). The adolescent battery of instruments included intake, intreatment, and follow-up questionnaires based largely on the DATOS adult study DRUG ABUSE TREATMENT OUTCOME STUDY (DATOS), 1991-1994: [UNITED STATES] (ICPSR 2258) instrument format, with considerable tailoring to the adolescent population. Clients entering treatment completed two comprehensive intake interviews (Intake 1 and Intake 2), approximately one week apart. This information is provided in Parts 1 and 2 of the data collection. These interviews were designed to obtain baseline data on drug use and other behaviors, such as illegal involvement, as well as information on background and demographic characteristics, education and training, mental health status, employment, income and expenditures, drug and alcohol dependence, health, religiosity and self-concept, and motivation and readiness for treatment. The one-, three-, and six-month intreatment interviews (Parts 3, 4, and 7) included items on treatment access, intreatment experience, and psychological functioning, as well as questions replicated from some of the domains in the Intake 1 and 2 questionnaires. The 12-month post-treatment follow-up interview (Part 5) included questions replicated from the previous interviews, and also included post-treatment status. Part 6 includes variables for time in treatment and interview availability indicators. The Measures Data (Part 8) were generated by using the Diagnostic and Statistical Manual of Mental Disorders (Rev. 3rd ed., DSM-III-R) (American Psychiatric Association, 1987). The variables in Part 8 give either the DSM-III-R level of dependence to a drug category or they describe whether the subject meets the DSM-III-R standard for a particular disorder. The 12-Month Follow-up Urine Result data (Part 9) provide the results from urine sample tests that were given to a sample of subjects at the time of the 12-Month Follow-up Interview. The urine test was used to ascertain the nature and extent of bias in the self-reports of the respondents. Urine specimens were tested for eight categories of drugs (amphetamines, barbiturates, benzodiazepines, cannabinoids, cocaine metabolite, methaqualone, opiates, and phencyclidine). The drugs covered in the study were alcohol, tobacco, marijuana (hashish, THC), cocaine (including crack), heroin, narcotics or opiates such as morphine, codeine, Demerol, Dilaudid, and Talwin, illegal methadone, sedatives and tranquilizers such as barbiturates and depressants, amphetamines or other stimulants such as speed or diet pills, methamphetamines, LSD, PCP, and other hallucinogens or psychedelics, and inhalants such as glue, gasoline, paint thinner, and aerosol sprays. The study also included drug of choice, frequency, and route of administration.
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First Baby Study (FBS), Pennsylvania, 2009-2014 (ICPSR 38778)

Released/updated on: 2023-11-15
Geographic coverage: United States, Pennsylvania
Time period: 2009-01-01--2014-01-01

The First Baby Study (FBS) was a prospective cohort study designed to investigate the association between mode of delivery at first childbirth (cesarean or vaginal) and subsequent fecundity and fertility over the course of a 3-year follow-up period. Women were enrolled during pregnancy and interviewed by telephone in their third trimester. Enrolled participants were followed-up with and surveyed at 1, 6, 12, 18, 24, 30 and 36 months postpartum. Participants were enrolled in 2009 to 2011 and the last interview was conducted in 2014.

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The Future of Families and Child Wellbeing Study (FFCWS), Public Use, United States, 1998-2024 (ICPSR 31622)

Released/updated on: 2026-04-06
Geographic coverage: United States
Time period: 1998-01-01--2024-01-01

The Future of Families and Child Wellbeing Study (FFCWS, formerly known as the Fragile Families and Child Wellbeing Study) follows a cohort of nearly 5,000 children born in large, U.S. cities between 1998 and 2000. The study oversampled births to unmarried couples; and, when weighted, the data are representative of births in large U.S. cities at the turn of the century. The FFCWS was originally designed to address four questions of great interest to researchers and policy makers:

  1. What are the conditions and capabilities of unmarried parents, especially fathers?
  2. What is the nature of the relationships between unmarried parents?
  3. How do children born into these families fare?
  4. How do policies and environmental conditions affect families and children?

The FFCWS consists of interviews with mothers, fathers, and/or primary caregivers at birth and again when children are ages 1, 3, 5, 9, 15, and 22. The parent interviews collected information on attitudes, relationships, parenting behavior, demographic characteristics, health (mental and physical), economic and employment status, neighborhood characteristics, and program participation. Beginning at age 9, children were interviewed directly (either during the home visit or on the telephone). The direct child interviews collected data on family relationships, home routines, schools, peers, and physical and mental health, as well as health behaviors.

A collaborative study of the FFCWS, the In-Home Longitudinal Study of Pre-School Aged Children (In-Home Study) collected data from a subset of the FFCWS Core respondents at the Year 3 and 5 follow-ups to ask how parental resources in the form of parental presence or absence, time, and money influence children under the age of 5. The In-Home Study collected information on a variety of domains of the child's environment, including: the physical environment (quality of housing, nutrition and food security, health care, adequacy of clothing and supervision) and parenting (parental discipline, parental attachment, and cognitive stimulation). In addition, the In-Home Study also collected information on several important child outcomes, including anthropometrics, child behaviors, and cognitive ability. This information was collected through interviews with the child's primary caregiver, and direct observation of the child's home environment and the child's interactions with his or her caregiver.

Similar activities were conducted during the Year 9 follow-up. At the Year 15 follow-up, a condensed set of home visit activities were conducted with a subsample of approximately 1,000 teens. Teens who participated in the In-Home Study were also invited to participate in a Sleep Study and were asked to wear an accelerometer on their non-dominant wrist for seven consecutive days to track their sleep (Sleep Actigraphy Data) and that day's behaviors and mood (Daily Sleep Actigraphy and Diary Survey Data).

An additional collaborative study collected data from the child care provider (Year 3) and teacher (Years 9 and 15) through mail-based surveys. Saliva samples were collected at Year 9 and 15 (Biomarker file and Polygenic Scores). The Study of Adolescent Neural Development (SAND) COVID Study began data collection in May 2020 following the onset of the COVID-19 pandemic. It included online surveys with the young adult and their primary caregiver.

The FFCWS began its seventh wave of data collection in October 2020, around the focal child's 22nd birthday. Data collection and interviews continued through January 2024. The Year 22 wave included a young adult (YA) survey with the original focal child and a primary caregiver (PCG) survey. Data were also collected on the children of the original focal child (referred to as Generation 3, or G3).

In 2017, the FFCWS team announced the Fragile Families (FF) Challenge, a collaborative effort in which participants were tasked with using machine learning methods and FFCWS data (Baseline to Year 9) to build a model that would predict six key outcomes at Year 15. Materials used in the FF Challenge have been archived in this collection.

Documentation for these files is available on the FFCWS website under Data and Documentation. For details of updates made to the FFCWS data files, please see the project's Data Alerts page.

Data collection for the Future of Families and Child Wellbeing Study was supported by the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) of the National Institutes of Health under award numbers R01HD36916, R01HD39135, and R01HD40421, as well as a consortium of private foundations.

Below is the citation for use of the FFCWS data accessed through ICPSR. For information on additional citation requirements when using FFCWS in publications, please refer to this FAQ on the FFCWS project site.

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Generations: A Study of the Life and Health of LGB People in a Changing Society, United States, 2016-2019 (ICPSR 37166)

Released/updated on: 2023-01-05
Geographic coverage: United States
Time period: 2016-01-01--2017-01-01, 2017-01-01--2018-01-01, 2018-01-01--2019-01-01

The Generations study is a five-year study designed to examine health and well-being across three generations of lesbians, gay men, and bisexuals (LGB). The study explored identity, stress, health outcomes, and health care and services utilization among LGBs in three generations of adults who came of age during different historical contexts. This collection includes baseline, wave 1, and wave 2 data collected as part of the Generations study.

The study aimed to assess whether younger cohorts of LGBs differed from older cohorts in how they viewed their LGB identity and experienced stress related to prejudice and everyday forms of discrimination, as well as whether patterns of resilience differed between different LGB cohorts. Additionally, the study sought to examine how differences in stress experience affected mental health and well-being, including depressive and anxiety symptoms, substance and alcohol use, suicide ideation and behavior, and how younger LGBs utilized LGB-oriented social and health services, relative to older cohorts.

In wave 2, respondents were re-interviewed approximately one year after completion of the baseline (wave 1) survey. Only respondents who participated in the original sample of participants were surveyed at wave 2 (i.e., the enhancement oversample was not included in the longitudinal design of this study).

In wave 3, respondents were re-interviewed approximately one year after the completion of the wave 2 survey.

Demographic variables collected as part of this study include questions related to age, education, race, ethnicity, sexual identity, gender identity, income, employment, and religiosity.

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Harlem Longitudinal Study of Urban Black Youth, 1968 United States (ICPSR 121)

Released/updated on: 2008-03-26
Geographic coverage: New York City, Harlem, United States
This dataset is housed at the Murray Research Center at Harvard University's Radcliffe Institute for Advanced Study. This is a 26-year longitudinal study of physical, psychological, and social aspects of health among a representative community sample of African-American adolescents, aged 12 to 18, residing in Central Harlem, New York City. Data were collected in five waves: 1968-1970, 1975-1976, 1983-1984, 1989-1990, and 1993-1994. In 1968, there were 668 respondents aged 12-17, and in 1994, when respondents were aged 35-41, 347 remained in the study. Along with other health issues, later waves assessed patterns of non-medical related drug use and HIV-related knowledge, attitudes, and behaviors. In order to apply to use Murray Center data, one must register as a Murray Center user and complete an Application for the Use of Data form.
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Health and Ways of Living Study, 1965 Panel: [Alameda County, California] (ICPSR 6688)

Released/updated on: 2013-12-04
Geographic coverage: United States, California
The purpose of this survey was to explore the influence of health practices and social relationships on the physical and mental health of a typical sample of the population in Alameda County, California. The information obtained for the 6,928 respondents (including approximately 500 women aged 65 years and older) covers chronic health conditions, health behaviors, social involvements, and psychological characteristics. Questions were asked about marital and life satisfaction, parenting, physical activities, employment, and childhood experiences. Demographic variables include data on respondetns' age, race, height, weight, education, income, and religion.
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Hispanic Established Populations for Epidemiologic Studies of the Elderly (EPESE) Frailty Study: 2006-2009 (ICPSR 36321)

Released/updated on: 2016-03-29
Geographic coverage: United States, New Mexico, Texas, Colorado, California, Arizona
Time period: 2006-01-01--2009-01-01
The Hispanic Established Populations for Epidemiologic Studies of the Elderly (EPESE) Frailty Study sought to apply a standard definition of frailty in a well-defined sample of Mexican American older adults and to examine the impact of frailty on disability, health related quality of life, institutionalization, and mortality in this population over time. This project is a continuation of a prior study (the Hispanic EPESE) examining the enabling-disabling process in this same population of aging Mexican Americans; data were collected from 1,031 older adults who were participating in the Hispanic EPESE. Only subjects who were physically capable of safely completing the muscle strength measures were included. Baseline interviews were collected for this subsample in 2006/2007 during Wave 6 (ICPSR 29654) of the Hispanic EPESE study. This collection includes data about respondents' health status, activities of daily living and their ability to perform tasks. Two-year follow-up data were collected in 2008/2009 from 731 participants in Wave 1. Demographic and background information include age, relationship status, gender, marital status and household composition.
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Hispanic Established Populations for Epidemiologic Studies of the Elderly, Wave II, 1995-1996: [Arizona, California, Colorado, New Mexico, and Texas] (ICPSR 3385)

Released/updated on: 2007-01-17
Geographic coverage: United States, New Mexico, Texas, Colorado, California, Arizona
Time period: 1995-01-01--1996-01-01
The baseline Hispanic Established Populations for the Epidemiologic Studies of the Elderly (Hispanic EPESE, ICPSR 2851) was modeled after the design of ESTABLISHED POPULATIONS FOR EPIDEMIOLOGIC STUDIES OF THE ELDERLY, 1981-1993: [EAST BOSTON, MASSACHUSETTS, IOWA AND WASHINGTON COUNTIES, IOWA, NEW HAVEN, CONNECTICUT, AND NORTH CENTRAL NORTH CAROLINA] (ICPSR 9915) and ESTABLISHED POPULATIONS FOR EPIDEMIOLOGIC STUDIES OF THE ELDERLY, 1996-1997: PIEDMONT HEALTH SURVEY OF THE ELDERLY, FOURTH IN-PERSON SURVEY [DURHAM, WARREN, VANCE, GRANVILLE, AND FRANKLIN COUNTIES, NORTH CAROLINA] (ICPSR 2744). This data collection contains the two-year follow-up of the baseline Hispanic EPESE, which collected data on a representative sample of community-dwelling Mexican-American elderly, aged 65 years and older, residing in the five southwestern states of Arizona, California, Colorado, New Mexico, and Texas. The primary purpose of the study was to provide estimates of the prevalence of key physical health conditions, mental health conditions, and functional impairments in older Mexican Americans and to compare these estimates with those for other populations. The Hispanic EPESE attempted to determine whether certain risk factors for mortality and morbidity operate differently in Mexican Americans than in non-Hispanic White Americans, African Americans, and other major ethnic groups. The public-use data cover demographic characteristics (age, sex, type of Hispanic race, income, education, marital status, number of children, employment, and religion), height, weight, social and physical functioning, chronic conditions, related health problems, health habits, self-reported use of dental, hospital, and nursing home services, and depression. This two-year follow-up is a cross-sectional examination of the predictors of mortality, changes in health outcomes, institutionalization, and other changes in living arrangements, as well as changes in life situations and quality of life issues. The Medications file (Part 2) includes a listing of the medications, by brand name and classification of the drug, which were prescribed for the respondent. The vital status of respondents from baseline to this round of the survey may be determined using the Vital Status file (Part 3). This file contains interview dates from the baseline as well as vital status at Wave II (respondent survived, date of death if deceased, proxy-assisted, proxy-true).
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Hispanic Established Populations for Epidemiologic Studies of the Elderly, Wave III, 1998-1999: [Arizona, California, Colorado, New Mexico, and Texas] (ICPSR 4102)

Released/updated on: 2007-01-23
Geographic coverage: United States, New Mexico, Texas, Colorado, California, Arizona
Time period: 1998-01-01--1999-01-01
This dataset comprises the second follow-up of the baseline Hispanic EPESE, HISPANIC ESTABLISHED POPULATIONS FOR THE EPIDEMIOLOGIC STUDIES OF THE ELDERLY, 1993-1994: [ARIZONA, CALIFORNIA, COLORADO, NEW MEXICO, AND TEXAS] (ICPSR 2851), and provides information on 1,980 of the original respondents. The Hispanic EPESE collected data on a representative sample of community-dwelling Mexican-American elderly, aged 65 years and older, residing in the five southwestern states of Arizona, California, Colorado, New Mexico, and Texas. The primary purpose of the series was to provide estimates of the prevalence of key physical health conditions, mental health conditions, and functional impairments in older Mexican Americans and to compare these estimates with those for other populations. The Hispanic EPESE attempted to determine whether certain risk factors for mortality and morbidity operate differently in Mexican Americans than in non-Hispanic White Americans, African Americans, and other major ethnic groups. The public-use data cover background characteristics (age, sex, type of Hispanic race, income, education, marital status, number of children, employment, and religion), height, weight, social and physical functioning, chronic conditions, related health problems, health habits, self-reported use of dental, hospital, and nursing home services, and depression. The follow-ups provide a cross-sectional examination of the predictors of mortality, changes in health outcomes, and institutionalization and other changes in living arrangements, as well as changes in life situations and quality of life issues. The vital status of respondents from baseline to this round of the survey may be determined using the Vital Status file (Part 2). This file contains interview dates from the baseline as well as vital status at Wave III (respondent survived, date of death if deceased, proxy-assisted, proxy-true). The first follow-up of the baseline data (Hispanic EPESE Wave II, 1995-1996 [ICPSR 3385]) followed 2,438 of the original 3,050 respondents. Hispanic EPESE, ICPSR 2851, was modeled after the design of ESTABLISHED POPULATIONS FOR EPIDEMIOLOGIC STUDIES OF THE ELDERLY, 1981-1993: [EAST BOSTON, MASSACHUSETTS, IOWA AND WASHINGTON COUNTIES, IOWA, NEW HAVEN, CONNECTICUT, AND NORTH CENTRAL NORTH CAROLINA] (ICPSR 9915) and ESTABLISHED POPULATIONS FOR EPIDEMIOLOGIC STUDIES OF THE ELDERLY, 1996-1997: PIEDMONT HEALTH SURVEY OF THE ELDERLY, FOURTH IN-PERSON SURVEY [DURHAM, WARREN, VANCE, GRANVILLE, AND FRANKLIN COUNTIES, NORTH CAROLINA] (ICPSR 2744).
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Hispanic Established Populations for Epidemiologic Studies of the Elderly, Wave IV, 2000-2001 [Arizona, California, Colorado, New Mexico, and Texas] (ICPSR 4314)

Released/updated on: 2009-11-25
Geographic coverage: United States, New Mexico, Texas, Colorado, California, Arizona
Time period: 2000-01-01--2001-01-01
This dataset comprises the third follow-up of the baseline Hispanic EPESE, HISPANIC ESTABLISHED POPULATIONS FOR THE EPIDEMIOLOGIC STUDIES OF THE ELDERLY, 1993-1994: [ARIZONA, CALIFORNIA, COLORADO, NEW MEXICO, AND TEXAS] (ICPSR 2851), and provides information on 1,682 of the original respondents. The Hispanic EPESE collected data on a representative sample of community-dwelling Mexican-American elderly, aged 65 years and older, residing in the five southwestern states of Arizona, California, Colorado, New Mexico, and Texas. The primary purpose of the series was to provide estimates of the prevalence of key physical health conditions, mental health conditions, and functional impairments in older Mexican Americans and to compare these estimates with those for other populations. The Hispanic EPESE attempted to determine whether certain risk factors for mortality and morbidity operate differently in Mexican Americans than in non-Hispanic White Americans, African Americans, and other major ethnic groups. The public-use data cover background characteristics (age, sex, type of Hispanic race, income, education, marital status, number of children, employment, and religion), height, weight, social and physical functioning, chronic conditions, related health problems, health habits, self-reported use of dental, hospital, and nursing home services, and depression. The follow-ups provide a cross-sectional examination of the predictors of mortality, changes in health outcomes, and institutionalization and other changes in living arrangements, as well as changes in life situations and quality of life issues. The vital status of respondents from baseline to this round of the survey may be determined using the Vital Status file (Part 2). This file contains interview dates from the baseline as well as vital status at Wave IV (respondent survived, date of death if deceased, proxy-assisted, proxy-reported cause of death, proxy-true). The first follow-up of the baseline data (Hispanic EPESE Wave II, 1995-1996 [ICPSR 3385]) followed 2,438 of the original 3,050 respondents, and the second follow-up (Hispanic EPESE Wave III, 1998-1999 [ICPSR 4102]) followed 1,980 of these respondents. Hispanic EPESE, 1993-1994 (ICPSR 2851), was modeled after the design of ESTABLISHED POPULATIONS FOR EPIDEMIOLOGIC STUDIES OF THE ELDERLY, 1981-1993: [EAST BOSTON, MASSACHUSETTS, IOWA AND WASHINGTON COUNTIES, IOWA, NEW HAVEN, CONNECTICUT, AND NORTH CENTRAL NORTH CAROLINA] (ICPSR 9915) and ESTABLISHED POPULATIONS FOR EPIDEMIOLOGIC STUDIES OF THE ELDERLY, 1996-1997: PIEDMONT HEALTH SURVEY OF THE ELDERLY, FOURTH IN-PERSON SURVEY [DURHAM, WARREN, VANCE, GRANVILLE, AND FRANKLIN COUNTIES, NORTH CAROLINA] (ICPSR 2744).
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Hispanic Established Populations for the Epidemiologic Studies of the Elderly, 1993-1994: [Arizona, California, Colorado, New Mexico, and Texas] (ICPSR 2851)

Released/updated on: 2009-12-14
Geographic coverage: United States, New Mexico, Texas, Colorado, California, Arizona
Time period: 1993-01-01--1994-01-01
The Hispanic Established Populations for the Epidemiologic Studies of the Elderly (Hispanic EPESE) was modeled after the design of the ESTABLISHED POPULATIONS FOR EPIDEMIOLOGIC STUDIES OF THE ELDERLY, 1981-1993: [EAST BOSTON, MASSACHUSETTS, IOWA AND WASHINGTON COUNTIES, IOWA, NEW HAVEN, CONNECTICUT, AND NORTH CENTRAL NORTH CAROLINA] (ICPSR 9915) and ESTABLISHED POPULATIONS FOR EPIDEMIOLOGIC STUDIES OF THE ELDERLY, 1996-1997: PIEDMONT HEALTH SURVEY OF THE ELDERLY, FOURTH IN-PERSON SURVEY [DURHAM, WARREN, VANCE, GRANVILLE, AND FRANKLIN COUNTIES, NORTH CAROLINA] (ICPSR 2744). The Hispanic EPESE collected baseline data beginning in September 1993 through June 1994 on a representative sample of community-dwelling Mexican-American elderly, aged 65 years and older, residing in the five southwestern states of Arizona, California, Colorado, New Mexico, and Texas. The primary purpose of the study was to provide estimates of the prevalence of key physical health conditions, mental health conditions, and functional impairments in older Mexican Americans and to compare these estimates with those for other populations. The Hispanic EPESE attempted to determine whether certain risk factors for mortality and morbidity operate differently in Mexican Americans than in non-Hispanic White Americans, African Americans, and other major ethnic groups. The public use baseline data cover demographic characteristics (age, sex, type of Hispanic race, income, education, marital status, number of children, employment, and religion), height, weight, social and physical functioning, chronic conditions, related health problems, health habits, self-reported use of dental, hospital, and nursing home services, and depression.
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Hispanic Established Populations for the Epidemiologic Study of the Elderly (HEPESE) Wave 5, 2004-2005 [Arizona, California, Colorado, New Mexico, and Texas] (ICPSR 25041)

Released/updated on: 2009-09-23
Geographic coverage: United States, New Mexico, Texas, Colorado, California, Arizona
Time period: 2004-01-01--2005-01-01
This dataset comprises the fourth follow-up of the baseline Hispanic EPESE (HISPANIC ESTABLISHED POPULATIONS FOR THE EPIDEMIOLOGIC STUDIES OF THE ELDERLY, 1993-1994: [ARIZONA, CALIFORNIA, COLORADO, NEW MEXICO, AND TEXAS] [ICPSR 2851]). The baseline Hispanic EPESE collected data on a representative sample of community-dwelling Mexican-Americans, aged 65 years and older, residing in the five southwestern states of Arizona, California, Colorado, New Mexico, and Texas. The primary purpose of the series was to provide estimates of the prevalence of key physical health conditions, mental health conditions, and functional impairments in older Mexican Americans and to compare these estimates with those for other populations. The Hispanic EPESE provides data on risk factors for mortality and morbidity in Mexican Americans in order to contrast how these factors operate differently in non-Hispanic White Americans, African Americans, and other major ethnic groups. The public-use data cover demographic characteristics (age, sex, type of Hispanic race, income, education, marital status, number of children, employment, and religion), height, weight, social and physical functioning, chronic conditions, related health problems, health habits, self-reported use of dental, hospital, and nursing home services, and depression. Subsequent follow-ups provide a cross-sectional examination of the predictors of mortality, changes in health outcomes, and institutionalization, and other changes in living arrangements, as well as changes in life situations and quality of life issues. During this 5th Wave, 2004-2005, reinterviews were conducted either in person or by proxy, with 1,167 of the original respondents. This 4th follow-up includes an additional sample of 902 Mexican Americans aged 75 and over with higher average-levels of education than those of the surviving cohort, increasing the total number of respondents to 2,069. By diversifying the cohort of those aged 75 and older, a better understanding can be gained of the influence of socioeconomic and cultural variations on the lives and health of older Mexican Americans.
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Hispanic Established Populations for the Epidemiologic Study of the Elderly (HEPESE) Wave 6, 2006-2007 [Arizona, California, Colorado, New Mexico, and Texas] (ICPSR 29654)

Released/updated on: 2012-02-23
Geographic coverage: United States, New Mexico, Texas, Colorado, California, Arizona
Time period: 2006-01-01--2007-01-01
This dataset comprises the fifth follow-up of the baseline Hispanic EPESE (HISPANIC ESTABLISHED POPULATIONS FOR THE EPIDEMIOLOGIC STUDIES OF THE ELDERLY, 1993-1994: [ARIZONA, CALIFORNIA, COLORADO, NEW MEXICO, AND TEXAS] [ICPSR 2851]). The baseline Hispanic EPESE collected data on a representative sample of community-dwelling Mexican Americans, aged 65 years and older, residing in the five southwestern states of Arizona, California, Colorado, New Mexico, and Texas. The primary purpose of the series was to provide estimates of the prevalence of key physical health conditions, mental health conditions, and functional impairments in older Mexican Americans and to compare these estimates with those for other populations. The Hispanic EPESE provides data on risk factors for mortality and morbidity in Mexican Americans in order to contrast how these factors operate differently in non-Hispanic White Americans, African Americans, and other major ethnic groups. The public-use data cover demographic characteristics (age, sex, type of Hispanic race, income, education, marital status, number of children, employment, and religion), height, weight, social and physical functioning, chronic conditions, related health problems, health habits, self-reported use of dental, hospital, and nursing home services, and depression. Subsequent follow-ups provide a cross-sectional examination of the predictors of mortality, changes in health outcomes, and institutionalization, and other changes in living arrangements, as well as changes in life situations and quality of life issues. During this 6th Wave, 2006-2007, reinterviews were conducted either in person or by proxy, with 921 of the original respondents. This fifth follow-up includes an additional sample of 621 Mexican Americans aged 75 years and over with higher average-levels of education than those of the surviving cohort, increasing the total number of respondents to 1,542. By diversifying the cohort of those aged 75 and older, a better understanding can be gained of the influence of socioeconomic and cultural variations on the lives and health of older Mexican Americans.
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Human Aging: A Biological and Behavioral Longitudinal Study of Healthy Aged Males, 1957-1968 (ICPSR 7678)

Released/updated on: 2006-01-12
Geographic coverage: United States
Time period: 1957-01-01--1968-01-01
This data collection contains data gathered in a longitudinal study of a sample of men aged 65 to 92 who were in good health during the first wave of the study in 1957. The chief aim of the study was to focus on the nature of the normal aging process in individuals of advanced age. The 47 study participants had not suffered from accidents, illnesses, severe emotional or personality problems, or environmental difficulties that might have led to premature aging, but 20 participants showed evidence of asymptomatic subclinical disease. This group represented the typical or "average" healthy aged individual with minimal degrees of physical pathology. Five years later, in 1962, a follow-up study was conducted with 29 of the 39 men still alive. The second follow-up, done in 1968, involved 19 of the surviving 23 men. The data are arranged in files by year: 1957, 1962, and 1968. Included are psychiatric data and medical evaluative data as well as various psychological and medical test scores (e.g., psychometric data, electroencephalographic data, audiological test data, responses to the Minnesota Multiphasic Personality Inventory (MMPI), Rorschach test results, personality test results, Inflund Selective Recall Test results, audiometric conduction findings, clinical psychology ratings, cerebral blood flow, and metabolism studies), and biographical and demographic data.
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Impact of Intimate Partner Violence on Women's Labor Force Participation in Illinois, 1999-2002 (ICPSR 4126)

Released/updated on: 2012-05-23
Geographic coverage: United States, Illinois
Time period: 1999-01-01--2000-01-01

The first goal of this study was to identify the incidence of partner violence among Temporary Assistance for Needy Families (TANF) recipients over a three-year period. The second goal of this study was to examine the impact of partner violence on women's labor force participation over time. A final goal of this research was to explore the short and longer-term consequences of victimization on women's employment and economic well-being, as well as their physical and mental health.

This study used the first three years of data from the Illinois Families Study (IFS). The first of the annual surveys was administered between November 1999 and September 2000, the second between February 2001 and September 2001, and the third between February 2002 and September 2002.

The three data files contain very similar information including such items as a household roster, housing and neighborhood characteristics, employment, literacy and skills, parenting, and children. There is also information related to the respondent's history, health, self-efficacy, life events, experiences with domestic violence, civic participation and social support, income resources, and experiences with welfare.

The Part 1 (Wave 1 Data) data file contains 1,323 cases and 942 variables. The Part 2 (Wave 2 Data) data file contains 1,183 cases and 763 variables. The Part 3 (Wave 3 Data) data file contains 1,072 cases and 778 variables.

Additional information about the Illinois Families Study (IFS) is available on the IFS Web site.

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Infant Health and Development Program (IHDP): Enhancing the Outcomes of Low Birth Weight, Premature Infants in the United States, 1985-1988 (ICPSR 9795)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1985-01-01--1988-01-01
The Infant Health and Development Program was a collaborative, randomized, longitudinal, multisite clinical trial designed to evaluate the efficacy of comprehensive early intervention in reducing the developmental and health problems of low birth weight, premature infants. An intensive intervention extending from hospital discharge to 36 months corrected age was administered between 1985 and 1988 at eight different sites. The study sample of infants was stratified by birth weight (2,000 grams or less, 2,001-2,500 grams) and randomized to the Intervention Group or the Follow-Up Group. The Intervention Group received home visits, attendance at a special child development center, and pediatric follow-up. The Follow-Up Group received only the pediatric follow-up component of the program. Measures of cognitive development, behavioral status, health status, and other variables were collected from both groups at predetermined time points. Cognitive development was assessed by the Stanford-Binet Intelligence Scale, the Bayley Mental and Motor Scales, the Peabody Picture Vocabulary Test--Revised, and the Beery-Buktenica Developmental Test of Visual Motor Integration. Behavior problems were measured using the Richman-Graham Behavior Checklist and Achenbach's Child Behavior Checklist. Health status was evaluated through the dimensions of morbidity (defined as the presence or absence of health conditions), functional status (defined by limitations in activities of daily living due to health problems), changes in physical growth, and maternal perception of the child's health. The many other variables and indices in the data collection include site, pregnancy complications, child's birth weight and gestation age, birth order, child's gender, household composition, day care arrangements, source of health care, quality of the home environment, parents' race and ethnicity, and maternal age, education, IQ, and employment.
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Iowa Youth and Families Project, 1989-1992 (ICPSR 26721)

Released/updated on: 2011-11-03
Geographic coverage: Iowa, United States
Time period: 1989-01-01--1992-01-01

This data collection contains the first four waves of the Iowa Youth and Families Project (IYFP), conducted in 1989, 1990, 1991, and 1992. The Iowa Youth and Families Project was developed from an initial sample of 451 7th graders from two-parent families in rural Iowa. The study was merged with the Iowa Single Parent Project (ISPP) to form the Iowa Family Transitions Project in 1994, when the target youth were seniors in high school. Survey data were collected from the target child (7th grader), a sibling within four years of age of the target child, and both parents. Field interviewers visited families at their homes on several occasions to administer questionnaires and videotape interaction tasks including family discussion tasks, family problem-solving tasks, sibling interaction tasks, and marital interaction tasks.

The Household Data files contain information about the family's financial situation, involvement in farming, and demographic information about household members.

The Parent and the Child Survey Data files contain responses to survey questions about the quality and stability of family relationships, emotional, physical, and behavioral problems of individual family members, parent-child conflict, family problem-solving skills, social and financial support from outside the home, traumatic life experiences, alcohol, drug, and tobacco use, and opinions on topics such as abortion, parenting, and gender roles. In addition, the Child Survey Data files include responses collected from the target child and his or her sibling in the study about experiences with puberty, dating, sexual activity, and risk-taking behavior.

The Problem-Solving Data files contain survey data collected from respondents about the family interactions tasks.

The Observational Data files contain the interviewers' observations collected during these tasks.

Demographic variables include sex, age, employment status, occupation, income, home ownership, religious preference, frequency of religious attendance, as well as the ages and sex of all household members and their relationship to the head of household. Demographic information collected on the parents also includes their birth order within their family, the ages and political philosophy of their parents, the sex, age, education level, and occupation of their siblings, and the country of origin of their ancestors.

Curated
Simple Crosstabs

The Irish Longitudinal Study on Ageing (TILDA), Wave 1, 2009-2011 (ICPSR 34315)

Released/updated on: 2025-05-07
Geographic coverage: Ireland
Time period: 2009-01-01--2011-01-01

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The TILDA Series data files, including studies 34315, 38681, 37105, 37106, 38670, 38674, are no longer available from ICPSR and NACDA at the request of the data producer due to concerns related to EU and Irish data privacy and data sharing rules. Individuals interested in obtaining TILDA data access at this time should reach out to the TILDA project directly (https://tilda.tcd.ie/data/accessing-data/).

The Irish Longitudinal Study on Ageing (TILDA) is a major inter-institutional initiative led by Trinity College Dublin which aims to produce a massive improvement in the quantity and quality of data, research and information relating to older people and ageing in Ireland. Eligible respondents for this study include individuals aged 50 and over and their spouses or partners of any age. The study involves interviews on a two yearly basis with a sample cohort of 8,504 people aged 50 and over (or their spouses/partners) and resident in Ireland, collecting detailed information on all aspects of their lives, including the economic (pensions, employment, living standards), health (physical, mental, service needs and usage) and social aspects (contact with friends and kin, formal and informal care, social participation). Both survey interviews and physical and biological measurements are utilized. Demographic and background variables include age, sex, marital status, household composition, education, and employment.

Curated
Simple Crosstabs

The Irish Longitudinal Study on Ageing (TILDA), Wave 2, 2012-2013 (ICPSR 37105)

Released/updated on: 2025-05-08
Geographic coverage: Ireland
Time period: 2012-01-01--2013-01-01

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The TILDA Series data, including studies 34315, 38681, 37105, 37106, 38670, 38674, are currently unavailable at the request of the data producer due to concerns related to EU and Irish data privacy and data sharing rules. We are working to determine the best solution to continue to share these data with the research community. Individuals interested in obtaining TILDA data access at this time should reach out to the TILDA project directly (https://tilda.tcd.ie/data/accessing-data/).

The Irish Longitudinal Study on Ageing (TILDA) is a major inter-institutional initiative led by Trinity College Dublin which aims to produce a massive improvement in the quantity and quality of data, research and information relating to older people and ageing in Ireland. Eligible respondents for this study include individuals aged 50 and over and their spouses or partners of any age. The study involves interviews on a two yearly basis with a sample cohort of 8,504 people aged 50 and over (or their spouses/partners) and resident in Ireland, collecting detailed information on all aspects of their lives, including the economic (pensions, employment, living standards), health (physical, mental, service needs and usage) and social aspects (contact with friends and kin, formal and informal care, social participation). Both survey interviews and physical and biological measurements are utilized.

The second wave of TILDA interviews were undertaken between February 2012 and March 2013. Of the 8,504 interviewed in Wave 1, a second interview was obtained for 7,445 respondents. These consisted of the self, proxy and end-of-life interviews types. In addition to the returning respondents, 170 interviews were obtained from eligible household members who had chosen not to take part in Wave 1 or the new spouses/partners of existing respondents.

Demographic and background variables include age, sex, marital status, household composition, education, and employment.

Curated
Simple Crosstabs

The Irish Longitudinal Study on Ageing (TILDA), Wave 3, 2014-2015 (ICPSR 37106)

Released/updated on: 2025-05-12
Geographic coverage: Ireland
Time period: 2014-01-01--2015-01-01

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The TILDA Series data, including studies 34315, 38681, 37105, 37106, 38670, 38674, are currently unavailable at the request of the data producer due to concerns related to EU and Irish data privacy and data sharing rules. We are working to determine the best solution to continue to share these data with the research community. Individuals interested in obtaining TILDA data access at this time should reach out to the TILDA project directly (https://tilda.tcd.ie/data/accessing-data/).

The Irish Longitudinal Study on Ageing (TILDA) is a major inter-institutional initiative led by Trinity College Dublin which aims to produce a massive improvement in the quantity and quality of data, research and information relating to older people and ageing in Ireland. Eligible respondents for this study include individuals aged 50 and over and their spouses or partners of any age. The study involves interviews on a two yearly basis with a sample cohort of 8,504 people aged 50 and over (or their spouses/partners) and resident in Ireland, collecting detailed information on all aspects of their lives, including the economic (pensions, employment, living standards), health (physical, mental, service needs and usage) and social aspects (contact with friends and kin, formal and informal care, social participation). Both survey interviews and physical and biological measurements are utilized.

The third wave of TILDA interviews were undertaken between March 2014 and October 2015. Of the 7,445 interviewed in Wave 2, a third interview was obtained for 6,874 respondents. These consisted of the self, proxy and end-of-life interviews types. In addition to the returning respondents, 28 interviews were obtained from eligible household members who had chosen not to take part in Wave 1 or the new spouses/partners of existing respondents.

Demographic and background variables include age, sex, marital status, household composition, education, and employment.

Curated
Simple Crosstabs

The Irish Longitudinal Study on Ageing (TILDA), Wave 4, 2016 (ICPSR 38670)

Released/updated on: 2025-05-12
Geographic coverage: Ireland

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The TILDA Series data, including studies 34315, 38681, 37105, 37106, 38670, 38674, are currently unavailable at the request of the data producer due to concerns related to EU and Irish data privacy and data sharing rules. We are working to determine the best solution to continue to share these data with the research community. Individuals interested in obtaining TILDA data access at this time should reach out to the TILDA project directly (https://tilda.tcd.ie/data/accessing-data/).

The Irish Longitudinal Study on Ageing (TILDA) is a major inter-institutional initiative led by Trinity College Dublin which aims to produce a massive improvement in the quantity and quality of data, research and information relating to older people and ageing in Ireland. Eligible respondents for this study include individuals aged 50 and over and their spouses or partners of any age. The study involves interviews on a one year basis with a sample cohort of residents of Ireland, collecting detailed information on all aspects of their lives, including the economic (pensions, employment, living standards), health (physical, mental, service needs and usage) and social aspects (contact with friends and kin, formal and informal care, social participation). Both survey interviews and physical and biological measurements are utilized.

The fourth wave of TILDA interviews were undertaken between January and December 2016. A total of 5,713 participants completed the self-interview.

Demographic and background variables include age, sex, marital status, household composition, education, and employment.

Curated
Simple Crosstabs

The Irish Longitudinal Study on Ageing (TILDA), Wave 5, 2018 (ICPSR 38674)

Released/updated on: 2025-05-12
Geographic coverage: Ireland

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The TILDA Series data, including studies 34315, 38681, 37105, 37106, 38670, 38674, are currently unavailable at the request of the data producer due to concerns related to EU and Irish data privacy and data sharing rules. We are working to determine the best solution to continue to share these data with the research community. Individuals interested in obtaining TILDA data access at this time should reach out to the TILDA project directly (https://tilda.tcd.ie/data/accessing-data/).

The Irish Longitudinal Study on Ageing (TILDA) is a major inter-institutional initiative led by Trinity College Dublin which aims to produce a massive improvement in the quantity and quality of data, research and information relating to older people and ageing in Ireland. Eligible respondents for this study include individuals aged 50 and over and their spouses or partners of any age. The study involves interviews on a one year basis with a sample cohort of residents of Ireland, collecting detailed information on all aspects of their lives, including the economic (pensions, employment, living standards), health (physical, mental, service needs and usage) and social aspects (contact with friends and kin, formal and informal care, social participation). Both survey interviews and physical and biological measurements are utilized.

The fifth wave of TILDA interviews were undertaken between January and December 2018. A total of 4,978 participants completed the self-interview.

Demographic and background variables include age, sex, marital status, household composition, education, and employment.

Curated

Japanese General Social Survey (JGSS), 2006 (ICPSR 25181)

Released/updated on: 2010-05-06
Geographic coverage: Japan, Global
This survey was designed to solicit political, sociological, and economic information from people living in Japan. The data were collected between October 3 and November 3, 2006, using face-to-face interviews and self-administered questionnaires. Respondents were asked to give employment information for themselves and their spouses, including industry, size of employer, number of hours worked, level of job satisfaction, and time spent commuting. Respondents were also queried regarding employment information and education level of their parents when the respondent was aged 15. Several questions were asked about household composition, the type of residence, the state of respondents' finances during the last few years and compared to other Japanese families both past and present, sources of financial support, the ease of improving one's standard of living in Japan, and the use of credit cards and consumer financing. Views were also sought on divorce, the roles of each spouse, issues involving children, the responsibility of the government, and taxation issues. In terms of health, questions were asked regarding the physical and mental health of respondents and their household members, the frequency of smoking and alcohol consumption, and their views on genetically modified foods. Quality of life questions addressed the amount of satisfaction respondents received from life, and how often they participated in sports, leisure, and volunteer activities. Additional topics covered were euthanasia, the use of technology, juvenile delinquency, car ownership and usage, their level of trust in various institutions, and whether respondents belonged to religious, trade, or social service organizations. Demographic variables include age, sex, education level, employment status, occupation, labor union membership, marital status, type of residential area (e.g., urban or rural), household income, perceived social status, political orientation, political party affiliation, and religious affiliation.
Curated
Simple Crosstabs

Japanese General Social Survey (JGSS), 2008 (ICPSR 30661)

Released/updated on: 2015-07-21
Geographic coverage: Asia, Japan, Global
The Japanese General Social Surveys (JGSS) Project is a Japanese version of the General Social Survey (GSS) project closely replicating the original GSS of the National Opinion Research Center at the University of Chicago. It provides data for analyses of Japanese society, attitudes and behaviors which make international comparisons possible. The objectives of the JGSS project are three-fold: (1) to collect and build cumulative data on general social surveys in Japan in a regular and consistent manner, thus enabling a time-series analysis; (2) to provide data for secondary analyses to researchers and university students in various social science fields; and (3) to provide data in a format useful for international comparative studies, research, and reports.
Curated
Partially restricted
Simple Crosstabs

Katrina@10: Gulf Coast Child and Family Health Study (GCAFH) Subsample, Louisiana and Mississippi, 2005-2019 (ICPSR 39339)

Released/updated on: 2025-06-23
Geographic coverage: Mississippi, United States, Louisiana
Time period: 2005-01-01--2019-01-01

The NIH-funded Katrina@10 Program consists of an interrelated set of three primary data collection projects that focus on specific sub-populations who were uniquely affected by Hurricane Katrina: households along Louisiana and Mississippi's Gulf Coast, low-income parents from New Orleans, and Vietnamese families living in New Orleans. In addition, the program contains two secondary analyses of data that are more broadly representative of the overall affected population, and three cores (Administrative, Data Collection, Data Management and Dissemination) to support the set of research projects. The following research questions represent the studies together as a whole:

  • How well does the socio-ecological model of disaster recovery developed by the research team (Abramson et al. 2010) predict recovery across the three cohort studies?
  • How do trajectories of long-term recovery differ among and within these sub-populations?
  • How do the trajectories of recovery compare to those of mainstream populations?
  • How do the effects of predisposing factors (such as poverty) and degree-of-impact (such as flooding depth) vary among the three sub-populations?
  • How do interpretations of the disaster, resilience, and recovery differ among respondents?
  • What are the determinants of long-term recovery in domains such as mental and physical health, socio-economic status, and community and social roles? How are these domains related to each other across individuals and across sub-populations?

This collection contains data from the Gulf Coast Child and Family Health Study (GCAFH), a longitudinal cohort study of families living in the Louisiana and Mississippi Gulf Coast who had been displaced or sustained extensive household damage due to Hurricane Katrina. The GCAFH research team collected survey data from the initial cohort in 2006 (n=1,079) with multiple follow-ups through 2010, assessing post-disaster recovery via indicators such as economic recovery, social engagement, personal resilience, community cohesion, infrastructure stability, and physical and mental health.

The data in this collection is from the most recent survey follow-up with participants, conducted between 2016 and 2018. A public-use version (DS1) and restricted-use version (DS2) are available. Open-ended responses, continuous respondent age, continuous total household income, and a 7-category race variable have been masked in the public-use version. These items are available in the restricted-use version.

Curated
Partially restricted
Simple Crosstabs

Katrina@10: Katrina Impacts on Vietnamese Americans in New Orleans (KATIVA NOLA) Subsample, Louisiana, 2005-2019 (ICPSR 39340)

Released/updated on: 2025-06-24
Geographic coverage: Mississippi, United States, Texas, Louisiana, New Orleans
Time period: 2005-01-01--2019-01-01

The NIH-funded Katrina@10 Program consists of an interrelated set of three primary data collection projects that focus on specific sub-populations who were uniquely affected by Hurricane Katrina: households along Louisiana and Mississippi's Gulf Coast, low-income parents from New Orleans, and Vietnamese families living in New Orleans. In addition, the program contains two secondary analyses of data that are more broadly representative of the overall affected population, and three cores (Administrative, Data Collection, Data Management and Dissemination) to support the set of research projects. The following research questions represent the studies together as a whole:

  • How well does the socio-ecological model of disaster recovery developed by the research team (Abramson et al. 2010) predict recovery across the three cohort studies?
  • How do trajectories of long-term recovery differ among and within these sub-populations?
  • How do the trajectories of recovery compare to those of mainstream populations?
  • How do the effects of predisposing factors (such as poverty) and degree-of-impact (such as flooding depth) vary among the three sub-populations?
  • How do interpretations of the disaster, resilience, and recovery differ among respondents?
  • What are the determinants of long-term recovery in domains such as mental and physical health, socio-economic status, and community and social roles? How are these domains related to each other across individuals and across sub-populations?

The Katrina Impacts on Vietnamese Americans in New Orleans (KATIVA NOLA) study was a longitudinal study interested in measuring the impact of Hurricane Katrina on Vietnamese-Americans living in New Orleans. The original sample was taken in summer 2005 and was followed by three rounds of short and medium-term data collection in the 5 years following Katrina. This study measured a variety of outcomes, including physical and mental health, economic stability, housing stability, and social ties, to examine the long-term recovery trajectories of participants.

The data in this collection are from an additional, long-term follow-up survey conducted between 2017 and 2019. A public-use version (DS1) and restricted-use version (DS2) are available. Open-ended responses, continuous respondent age, continuous total household income, and a variable indicating exposure to specific flood events have been masked in the public-use version. These items are available in the restricted-use version.

Curated
Partially restricted
Simple Crosstabs

Katrina@10: Resilience in Survivors of Katrina Project (RISK) Subsample, New Orleans, Louisiana, 2005-2019 (ICPSR 39335)

Released/updated on: 2025-05-27
Geographic coverage: United States, Louisiana, New Orleans
Time period: 2005-01-01--2019-01-01

The NIH-funded KATRINA@10 Program consists of an interrelated set of three primary data collection projects that focus on specific sub-populations who were uniquely affected by Hurricane Katrina: households along Louisiana and Mississippi's Gulf Coast, low-income parents from New Orleans, and Vietnamese families living in New Orleans. In addition, the program contains two secondary analyses of data that are more broadly representative of the overall affected population, and three cores (Administrative, Data Collection, Data Management and Dissemination) to support the set of research projects. The following research questions represent the studies together as a whole:

  • How well does the socio-ecological model of disaster recovery developed by the research team (Abramson et al. 2010) predict recovery across the three cohort studies?
  • How do trajectories of long-term recovery differ among and within these sub-populations?
  • How do the trajectories of recovery compare to those of mainstream populations?
  • How do the effects of predisposing factors (such as poverty) and degree-of-impact (such as flooding depth) vary among the three sub-populations?
  • How do interpretations of the disaster, resilience, and recovery differ among respondents?
  • What are the determinants of long-term recovery in domains such as mental and physical health, socio-economic status, and community and social roles? How are these domains related to each other across individuals and across sub-populations?

This collection contains data from the Resilience in Survivors of Katrina (RISK) Project, which was a longitudinal study of low-income parents who lived in New Orleans at the time of Hurricane Katrina (August 2005). The initial study design was intended to increase educational attainment among college students, measuring economic status, social ties, and mental and physical health starting in 2003 (initial cohort n=1,019). However, with the aftermath of Hurricane Katrina, the research design evolved to study the consequences of a disaster for the lives of vulnerable individuals and their families. Follow-up surveys and in-depth qualitative interviews were conducted with participants at one year and five years post-Katrina, regardless of where participants lived.

The data in this collection is from the most recent survey follow-up with RISK Project participants (n=716), conducted between 2016 and 2018. A public-use version (DS1) and restricted-use version (DS2) are available. Open-ended responses and continuous variables for respondent age and total household income have been masked in the public-use version; these items are available in the restricted-use version.

Curated

Long Beach Longitudinal Study (ICPSR 26561)

Released/updated on: 2011-06-17
Geographic coverage: United States, Long Beach, California
Time period: 1994-01-01--1995-01-01, 2000-01-01--2002-01-01

The Long Beach Longitudinal Study (LBLS) was created in 1978 to obtain normative data for the Schaie-Thurston Adult Mental Abilities Test (STAMAT). From 1994 to 2003 it was extended under the guiding principle that cognitive aging is a largely contextual phenomenon. Individual differences in abilities and change in those abilities over adulthood are associated not only with cognitive mechanisms, but with sociodemographic phenomena such as birth cohort, or gender, and within-individual characteristics, including health, affect, self-efficacy, personality, and other variables that impact health. This principle is reflected in the testing measures added to the original panel. Besides the original ability measures used by Schaie, the Life Complexity Inventory, has been included in all testing. Because these measures were included in the later generations of testing, independent and direct comparisons can be made with Seattle Longitudinal Study (ICPSR 00158) to replicate findings and to generalize longitudinal samples.

Panel 1

The initial panel was sampled in 1978 and consisted of 65 adults aged 28-33 and 518 adults aged 55-84. This sample was tested using the STAMAT, as well as a 20-item list of common English nouns for testing free recall, and a brief essay to test text recall. In 1981, 264 participants from this sample were retested, 106 were again retested from 1994-1995, and 42 in 1997. Finally, 15 participants of the original sample were tested from 2000-2002 using additional tests adopted for the creation of a second panel, described below, as well as a test for measuring executive function.

Panel 2

In 1994, a second panel of 630 participants aged 30-97, a third of which were over 80, was added to the study. The testing for this sample included multiple indices of list recall, text recall, working memory, perceptual speed, and vocabulary for structural equation modeling. Assessment of language, autobiographical memory, personality, depression, health, health behaviors and other measures were also incorporated into the study. In 1997, 352 members of this second panel were retested. From 2000-2002, 179 participants of this second panel completed the 1994-1995 measures, as well as several tests extending the battery to indices of executive function. In 2003, 133 participants were retested.

Panel 3

A third sample was recruited during the 2000-2002 time frame consisting of 911 participants aged 30-98, again approximately a third of which were over the age of 80. In 2003, 513 members of this third panel were retested.

Datasets

The data are provided in 6 datasets.

  1. Panel 1 and 2 1978 - 2003 Longitudinal File

    Dataset 1 is a longitudinal file of data from Panel 1 for tests performed in 1978, 1981, 1994, 1997, and 2000-2002, and data from Panel 2 for tests performed in 1994, 1997, 2000-2002 and 2003.

  2. Panels 1 and 2 1994 STAMAT File

    Dataset 2 contains the STAMAT test variables for Panels 1 and 2.

  3. Panel 1 and 2 1994-2000 Master Data Longitudinal File

    Dataset 3 is a second longitudinal file containing the complete catalog of variables from Panels 1 and 2 for test performed in 1994, 1997 and 2000.

  4. Panel 2 Wave 1 1994 Cross File

    Dataset 4 contains variables for the first wave of Panel 2 which took place in 1994.

  5. Panel 2 Wave 2 1997 Cross File

    Dataset 5 contains variables for the second wave of Panel 2 which took place in 1997.

  6. Panel 3 Wave 1 2000 Master File

    Dataset 6 contains variables from the first wave of Panel 3 which took place in 2000.