Additional Resources
In addition to our data guides and FAQs, we’ve compiled the following resources that may be useful for further exploration and support.
DSDR Marks the Spot:
Finding Quality Population Health Data Resources
This webinar introduces DSDR’s data collections and services, highlights recent and upcoming data releases, and showcases tools and resources for secondary data researchers and data depositors. The slides are available at https://myumi.ch/mRQ5g.
ICPSR YouTube Channel
Explore ICPSR’s YouTube channel for tutorials on setup files, Researcher Passport accounts, sharing NIH data, and classroom data resources.
- Addressing Conceptual Gaps in Big Data Research Ethics: An Application of Contextual Integrity.
- “But the data is already public”: on the ethics of research in Facebook.
- Council for Big Data, Ethics, and Society: Perspectives on Big Data, Ethics, and Society
- NIH Big Data to Knowledge (BD2K)
- NIH Big Data to Knowledge (BD2K): Training and Education
- In a Big Data World, Scholars Need New Guidelines for Research
- Where are human subjects in Big Data research? The emerging ethics divide
- Data Linkages and Disclosure Risk (PDF)
- How to Identify and Remediate Disclosure Risk (PDF)
- ICPSR’s Approaches to Confidentiality
- International Household Survey Network: Reducing the Disclosure Risk
- Introduction to Assessing Disclosure Risk (webinar)
- NIH Grants & Funding: Privacy
- US Federal Committee on Statistical Methodology (FCSM) Data Protection Toolkit
- Americans’ Changing Lives
- Avon Longitudinal Study of Parents and Children (ALSPAC)
- Environmental Risk (E-Risk) Longitudinal Twin Study
- Future of Families and Child Wellbeing Study
- Generation Scotland
- Genetic Epidemiology of Network of Arteriopathy (GENOA) (PDF)
- Health and Retirement Study
- The Irish Longitudinal Study on Ageing (TILDA)
- Multi-Ethnic Study of Atherosclerosis (MESA)
- National Health And Nutrition Examination Survey 1999-2002
- The National Longitudinal Study of Adolescent to Adult Health (Add Health)
- The Normative Aging Study (NAS)
- Northern Ireland Cohort for the Longitudinal study of Ageing (NICOLA)
- Understanding Society