Advancing Stated-Preference Methods for Measuring the Preferences of Patients with Type 2 Diabetes [Methods Study], United States, 2013-2018 (ICPSR 39487)
Researchers often use surveys to learn about what patients prefer. The wording of survey questions may affect how patients answer.
In this study, the research team compared different ways of asking patients with type 2 diabetes questions in a national survey. The questions asked patients about managing their diabetes and the medicines they prefer. The team wanted to see how accurately the different ways of asking questions measured patients' preferences. The study looked at whether patients thought the different ways of asking questions:
- Were easy to understand and answer
- Led to answers that matched what patients really wanted
Expansion of Methods for Two-Stage Trial Designs for Testing Treatment, Self-Selection, and Treatment Preference Effects [Methods Study], 2016-2020 (ICPSR 39625)
A patient's preference for a treatment may affect how well the treatment works. For example, if patients prefer a specific medicine, they may be more likely to take that medicine.
Traditional randomized clinical trials can't tell how much patient preferences affect how well a treatment works. But a two-stage clinical trial might. In a two-stage trial, researchers assign patients by chance to one of two groups. In the first group, researchers assign patients by chance to get a specific treatment, regardless of their preference. In the second group, patients choose their treatment. In a two-stage trial, researchers can compare health outcomes for patients who choose their treatment with patients who don't. But few methods exist for researchers to design and analyze this type of trial.
In this project, the research team developed new statistical methods for two-stage trials. The team wanted to find out how many patients are needed for two-stage trials to provide accurate results. They also wanted to learn how to measure whether patient preference for a specific treatment affects patients' health outcomes.
To access the software, methods and R package, please visit the preference CRAN webpage and preference GitHub.
Methods for Prioritizing Surrogate Desired Health Outcomes for Patients [Methods Study], Washington, DC and Maryland, 2013-2018 (ICPSR 39516)
Children with intellectual and cognitive disabilities often have problems with reasoning, learning, and problem solving. With such challenges, caregivers may have to make choices for their children about their health care and treatments. These children may need such help into young adulthood.
In this study, the research team wanted to find out what matters most to caregivers about their children's care. Caregivers had children with an intellectual or cognitive disability plus a mental health condition, such as depression or anxiety. The team interviewed caregivers about their preferences. Then the team used this information to design a survey. A larger group of caregivers filled out the survey.