About Us
The Patient-Centered Outcomes Data Repository (PCODR) is the place to discover, access, and analyze comparative clinical effectiveness research (CER) data collected through studies funded by Patient-Centered Outcomes Research Institute (PCORI). It is currently the only collection of its kind focused exclusively on patient-centered CER data. This community resource has the potential to:
- Optimize the potential for research participants’ contribution to generalizable knowledge about human health by facilitating additional data use and the findings possible beyond the original, prespecified research purposes
- Accelerate the discovery of new and better care approaches through additional analyses, reproduction of published findings and the development of avenues for new research
The Repository follows the PCORI Policy for Data Management and Data Sharing which calls for PCORI-funded studies to responsibly share datasets and data documentation to enable reanalysis and reuse. Responsible data sharing involves respecting the interests of CER study participants and acknowledging and maximizing the contributions possible through their research participation.
PCORI
The Patient-Centered Outcomes Research Institute (PCORI) is the nation’s leading funder of patient-centered comparative clinical effectiveness research (CER).PCORI seeks to empower patients and others with actionable information about their health and healthcare choices. PCORI’s unique place in the health research landscape stems from its focus on outcomes that matter to patients and it is widely acknowledged as a leader in driving US clinical research to become more patient-centered.
ICPSR
The Inter-university Consortium for Political and Social Research (ICPSR) maintains the world’s largest archive of digital social science data. ICPSR provides leadership and training in data access, curation, and methods of analysis for the social science research community. A well-trained staff provides user support to faculty, students, researchers, and policymakers using the extensive online data archive. ICPSR conducts research in the emerging field of data science and works to promote data sharing around the world.
Statement of Funding
This repository incorporates data collected from CER studies funded by the Patient-Centered Outcomes Research Institute (PCORI). This repository is operated by the Inter-university Consortium for Political and Social Research (ICPSR) under contract to PCORI, Washington, DC (Contract No. MSA-SOW#01-ICPSR-SCI-06-15-2020). The ICPSR is responsible for its content.
All statements, findings, and conclusions in this repository are solely those of ICPSR and do not necessarily represent the views of PCORI or its Board of Governors. This repository was developed through a contract to support PCORI’s work. Questions or comments may be sent to ICPSR at ICPSR-help@umich.edu
Contact Us
Email: ICPSR-help@umich.edu
Telephone: 734-647-2200
United States Postal Service:
Patient-Centered Outcomes Data Repository
ICPSR
University of Michigan
Institute for Social Research
P.O. Box 1248
Ann Arbor, MI 48106-1248