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Expanding Patient-Reported Outcome (PRO) Assessment Integrated into Routine Clinical Care of Patients with HIV to New Patient-Reported Outcomes Measurement Information System (PROMIS) Domains: Identifying Patient Priorities, Developing Cross-Walks with Legacy Instruments, and Evaluating Predictive Validity [Methods Study], United States, 2015-2019 (ICPSR 39566)
Released/updated on: 2025-11-24
Geographic coverage: United States
Time period: 2015-01-01--2019-01-01
Understanding which aspects of health and wellness are most important to patients living with HIV can help clinics improve care. Clinics often have patients complete surveys about their health and wellness. This study created new sets of survey questions for people living with HIV.
This study had two parts. In the first part, the research team asked patients living with HIV and their clinicians, such as doctors and nurses, what health and wellness topics they found important. In the second part, the team created sets of survey questions for two topics: domestic violence and social support. The team then asked patients living with HIV to answer the questions.