Developing and Validating Quantitative Measures to Assess Community Engagement in Research: Addressing the Measurement Challenge, United States, 2017-2020 (ICPSR 38493)
Community-engaged research is an umbrella term for forms of research that have community and stakeholder engagement as a core principle, for example, patient-centered outcomes research (PCOR), participatory action research, and community-based participatory research. However, the implementation and category of community engagement can vary across a spectrum from minimal engagement to fully collaborative engagement. A major methodological gap is the assessment of stakeholder engagement from a stakeholder perspective. Evaluation of the impact of stakeholder engagement on research development, implementation, and outcomes requires the development and validation of tools that assess engagement. This study's objective was to develop and validate comprehensive and condensed versions of a survey instrument that will be completed by stakeholders and used to assess engagement in research studies from a stakeholder perspective.
Stakeholder Engagement in Question Development (SEED) Method for Stakeholder Engagement in Question Development and Prioritization [Methods Study], Richmond and Martinsville, Virginia, 2014-2019 (ICPSR 39564)
In this project, the study team created a method of setting research agendas called Stakeholder Engagement in quEstion Development, or the SEED (Stakeholder Engagement in Question Development) Method. These agendas help identify research topics and questions that are important to study. The team tested the SEED Method at two sites in Virginia. The team wanted to learn if the method developed research agendas that reflected differing views and if people were satisfied with the process.
Using the SEED Method, the study team gathered input from three sets of people at each site:
- Research Team. Community members and staff from local colleges who worked with the study team to lead the project
- Topic Groups. Three groups of people who developed research questions. Each group had people with a type of viewpoint, such as patients, health professionals, or research funders. The groups worked independently with the Research Team.
- Stakeholder Consultants. Patients and health professionals with knowledge of the research topic who took part in interviews and group discussions
To access the methods please visit the The SEED Method for Stakeholder Engagement website.