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Development of a Patient-Directed Queries Network to Engage Patients and Prioritize Their Questions to Inform the Patient-Centered Outcomes Research Institute (PCORI) Research Agenda [Methods Study], United States, 2014-2020 (ICPSR 39616)
Released/updated on: 2025-12-15
Geographic coverage: United States, Oklahoma, California, New York (state)
Time period: 2014-01-01--2020-01-01
Research teams usually decide on research agendas, or issues and questions to study in research projects, even when community stakeholder organizations, or CSOs, such as healthcare networks and patient organizations, are involved.
In this project, the research team explored a process for helping CSOs create research questions and set research agendas.