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Curated
Improving Methods for Linking Secondary Data Sources for Comparative Effectiveness Research (CER)/Patient-Centered Outcomes Research (PCOR) [Methods Study], United States, 2008-2019 (ICPSR 39614)
Released/updated on: 2025-12-15
Geographic coverage: United States
Time period: 2008-01-01--2019-01-01
Researchers often combine patient health data from different sources, such as claims and health records. These data contain personal information, such as names and social security numbers.
In this study, the research team wanted to learn patients' views on sharing and combining health data for research. The team surveyed patients about their views on
- Sharing health and personal data, such as social security numbers
- Benefits and risks of data sharing
- Ways to help patients feel comfortable sharing health data