Project HealthDesign: Estrellita - An Application for Tracking Observations of Daily Living Related to Preterm Infants, 2011-2012 (ICPSR 36029)
Version Date: Jun 29, 2015 View help for published
Principal Investigator(s): View help for Principal Investigator(s)
Patricia Flatley Brennan, University of Wisconsin-Madison;
Gillian R. Hayes, University of California-Irvine;
Karen G. Cheng-Ramos, University of California-Irvine
Series:
https://doi.org/10.3886/ICPSR36029.v1
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2018-02-15 The citation of this study may have changed due to the new version control system that has been implemented. The previous citation was:
- Flatley Brennan, Patricia, Gillian R. Hayes, and Karen G. Cheng-Ramos. Project HealthDesign: Estrellita - An Application for Tracking Observations of Daily Living Related to Preterm Infants, 2011-2012. ICPSR36029-v1. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 2015-06-29. http://doi.org/10.3886/ICPSR36029.v1
2015-06-29 ICPSR data undergo a confidentiality review and are altered when necessary to limit the risk of disclosure. ICPSR also routinely creates ready-to-go data files along with setups in the major statistical software formats as well as standard codebooks to accompany the data. In addition to these procedures, ICPSR performed the following processing steps for this data collection:
- Created variable labels and/or value labels.
- Checked for undocumented or out-of-range codes.
Summary View help for Summary
More than 12 percent of all United States births each year are preterm. To improve the care of these infants, which have an increased risk of serious developmental and chronic health problems, the Estrellita team created a mobile phone application to monitor premature infants and their caregivers. This app allows caregivers to better understand the infant care process and to more easily interact with clinicians about themselves and the care of their infants. Caregivers used the Estrellita app to record their own stress levels and mood and their infants' observations of daily living (ODL) such as baby fussiness, diapering, weight, and bonding activities with the babies. In addition, the app allowed the caregivers to track clinical appointments, review the ODL data, and send and receive text messages from clinicians.
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Funding View help for Funding
Subject Terms View help for Subject Terms
Geographic Coverage View help for Geographic Coverage
Restrictions View help for Restrictions
The data are restricted from general dissemination for reasons of confidentiality. Users interested in obtaining the data must complete an Agreement for the Use of Confidential Data, specify the reasons for the request, and obtain IRB approval or notice of exemption for their research. Apply for access to the data through the ICPSR restricted data contract portal which can be accessed via the study home page.
Distributor(s) View help for Distributor(s)
Time Period(s) View help for Time Period(s)
Data Collection Notes View help for Data Collection Notes
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Estrellita (formerly FitBaby) was a project of Project HealthDesign, a national program of the Robert Wood Johnson Foundation designed to stimulate innovation in the development of person health records systems. Additional information about Estrellita is available on the Project HealthDesign Web site.
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Additional support for data cleaning and depositing the data with ICPSR came from the Smart Asthma Management program funded by the National Science Foundation.
Sample View help for Sample
A convenience sample of eight infants and their caregivers was selected from neonatal intensive care units in the Orange County, California area.
Universe View help for Universe
Premature infants and their caregivers.
Data Type(s) View help for Data Type(s)
Presence of Common Scales View help for Presence of Common Scales
Edinburgh Postnatal Depression Scale (EPDS)
Fussy-o-meter
MoodMap
Perceived Stress Scale
HideOriginal Release Date View help for Original Release Date
2015-06-29
Version History View help for Version History
2018-02-15 The citation of this study may have changed due to the new version control system that has been implemented. The previous citation was:
- Flatley Brennan, Patricia, Gillian R. Hayes, and Karen G. Cheng-Ramos. Project HealthDesign: Estrellita - An Application for Tracking Observations of Daily Living Related to Preterm Infants, 2011-2012. ICPSR36029-v1. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 2015-06-29. http://doi.org/10.3886/ICPSR36029.v1
2015-06-29 ICPSR data undergo a confidentiality review and are altered when necessary to limit the risk of disclosure. ICPSR also routinely creates ready-to-go data files along with setups in the major statistical software formats as well as standard codebooks to accompany the data. In addition to these procedures, ICPSR performed the following processing steps for this data collection:
- Created variable labels and/or value labels.
- Checked for undocumented or out-of-range codes.