Project HealthDesign Series

collection: series

About this Collection

Project HeathDesign was a national program of the Robert Wood Johnson Foundation designed to stimulate innovation in the development of personal health record systems by supporting design and prototyping efforts that focused on the needs, preferences and living environments of individuals. The project promoted a systems approach to personal health records in which an array of personal health applications would be built upon a common platform of core data elements.

The School of Nursing at the University of Wisconsin-Madison hosted the Project HealthDesign National Program Office (NPO) from 2006-2014. In Round 2 (2010-2012) the NPO led five teams of researchers to create innovative technological solutions to help patients manage personal health data, including observations of daily living (ODL). Technical solutions ranged from "smartphone" apps to tablet based solutions, including innovative displays and remote storage solutions. Working with diverse groups of clinical partners and patients, the teams were challenged to: 1) identify, capture, and store ODLs for their target patient populations; 2) analyze, interpret and display ODL data to extract clinically useful information; 3) use this information to provide feedback to patients so they could better manage their conditions and improve their health; and 4) enable patients to share this information with members of their clinical care team in ways that easily integrated into their clinical workflow.

Studies

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Project HealthDesign: iN Touch - Obese Teens and Young Adults Using Mobile Devices to Track Observations of Daily Living, 2011

This study examined the potential of collecting observations of daily living (ODLs) via mobile devices for youths who are managing obesity and are at risk for depression and anxiety. Leveraging TheCarrott.com (thecarrot.com) utilities and data storage platform, the iN Touch design team developed an application for the iPod Touch that study participants used to record their physical activity, food intake, socialization and mood. Study participants shared this information with their lay health coaches and collaboratively set goals with them. The data file contains the ODL information collected with the iPod Touch application.
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Project HealthDesign: BreathEasy - A Personal Health Record Application For Adults With Asthma, 2011-2012

Asthma is a chronic illness that affects more than 23 million adults in the United States. In addition to respiratory symptoms associated with the disease, individuals with asthma are also more likely to experience depression and anxiety. The BreathEasy team designed a mobile application built on the latest clinical guidelines for treatment and self-monitoring for patients with asthma. Patients with asthma used the application on smartphones to capture and report observations of daily living (ODLs) such as use of controller and rescue medications, asthma symptoms (including peak flow rates), depression and anxiety symptoms, encounters with asthma triggers, physical activity levels (including accelerometer based data), sleeping problems, and smoking. Clinicians used a web based dashboard with simple analysis and visualization tools that allowed them to quickly view the patients' data, evaluate their health statuses, and communicate changes in treatment or monitoring. This data collection contains the ODL data recorded by the patients.
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Project HealthDesign: Chronology.MD - Personal Health Record Applications for Patients With Crohn's Disease, 2011-2012

More than 600,000 people in the United States live with Crohn's disease, a chronic and progressive disorder of the digestive system which is most prevalent in young adults ages 18-35. The Chronology.MD team developed two mobile applications to help patients who have Crohn's disease create visually aided narratives of their condition and responses to treatment. Crohn's patients used the Chronology app to enter observations of daily living (e.g., levels of abdominal pain, energy, and stress); enter clinical data (levels of B-12, C-Reactive Protein, HTC and iron in the blood); automatically upload weight data using Withings scales; and automatically uploaded sleep and exercise data from Fitbit body monitors. The Crohnograph app enabled patients to view time trends for tracked ODLs and other data, explore possible associations among them, and show the data visualizations to their health care provider. The providers could document information from the visualization and conversations in clinical notes. This data collection comprises the data collected using the Chronology app from the patients who participated in the Chronology.MD study.

Variables

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