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Showing 1 – 31 of 31 results.
Curated

Alameda County [California] Health and Ways of Living Study, 1974 Panel (ICPSR 6838)

Released/updated on: 2008-01-31
Geographic coverage: United States, California
Time period: 1974-01-01--1974-12-31
These data constitute the second wave of a survey designed to study the influence of health practices and social relationships on the physical and mental health of a typical sample of the population. The first wave (HEALTH AND WAYS OF LIVING STUDY, 1965 PANEL [ALAMEDA COUNTY, CALIFORNIA] [ICPSR 6688]) collected information for 6,928 respondents (including approximately 500 women aged 65 years and older) on chronic health conditions, health behaviors, social involvements, and psychological characteristics. The 1974 questionnaire was sent to 6,246 living subjects who had responded in 1965, and were able to be located. A total of 4,864 individuals responded in 1974. Questions were asked on marital and life satisfaction, parenting, physical activities, employment, and childhood experiences. Demographic information on age, race, height, weight, education, income, and religion was also collected. Included with this dataset is a separate file (Part 2) containing mortality data for respondents who died between the 1965 and 1974 panels, and information on nonrespondents.
Curated
Partially restricted
Simple Crosstabs

Americans' Changing Lives: Waves I, II, III, IV, V, and VI, 1986, 1989, 1994, 2002, 2011, and 2021 (ICPSR 4690)

Released/updated on: 2024-12-12
Geographic coverage: United States
Time period: 1986-01-01--2021-12-31

The Americans' Changing Lives (ACL) survey series is an ongoing, nationally representative, longitudinal study focusing especially on differences between Black and White Americans in middle and late life. These data constitute the first, second, third, fourth, fifth, and sixth waves in a panel survey covering a wide range of sociological, psychological, mental, and physical health items. Wave I of the study began in 1986 with a nation face-to-face survey of 3,617 adults ages 25 and up, with Black Americans and people aged 60 and over over-sampled at twice the rate of the others. Wave II constitutes face-to-face re-interviews in 1989 of those still alive. Survivors have been re-interviewed by telephone, and when necessary face-to-face, in 1994 (Wave III), 2001/02 (Wave IV), 2011 (Wave V), and 2019/21 (Wave VI).

Please note that for Wave VI, the majority of data collection occurred in 2019, with only a small subset (n=39) of participants surveyed in 2021.

ACL was designed and sought to investigate the following: (1) The ways in which a wide range of activities and social relationships that people engage in are broadly "productive," (2) how individuals adapt to acute life events and chronic stresses that threaten the maintenance of health, effective functioning, and productive activity, and (3) sociocultural variations in the nature, meaning, determinants, and consequences of productive activity and relationships. Among the topics covered are interpersonal relationships (spouse/partner, children, parents, friends), sources and levels of satisfaction, social interactions and leisure activities, traumatic life events (physical assault, serious illness, divorce, death of a loved one, financial or legal problems), perceptions of retirement, health behaviors (smoking, alcohol consumption, overweight, rest), and utilization of health care services (doctor visits, hospitalization, nursing home institutionalization, bed days). Also included are measures of physical health, psychological well-being, and indices referring to cognitive functioning.

Demographic information provided for individuals includes household composition, number of children and grandchildren, employment status, occupation and work history, income, family financial situation, religious beliefs and practices, ethnicity, race, education, sex, and region of residence.

Curated
Restricted

Center for Education and Drug Abuse Research (CEDAR): Etiological and Prospective Family Study in Southwestern Pennsylvania, Baseline and Follow-Up Data, 1990-2014 (ICPSR 33444)

Released/updated on: 2021-06-30
Geographic coverage: United States, Pennsylvania
Time period: 1990-01-01--2014-12-31
The Center for Education and Drug Abuse Research (CEDAR) conducted research on 775 families enrolled in the Center's prospective investigations into the etiology of substance use disorder (SUD). The pro-bands are men with lifetime presence/absence of SUD consequent to use of an illicit drug who have a 10-12 year old biological son or daughter. The biological children of SUD men are assigned to the high average risk (HAR) group whereas offspring of men without SUD, having neither axis 1 disorder ("normal") nor SUD psychiatric disorder, are assigned to the low average risk (LAR) group. A second control group (Psych control) was also collected, in whom the fathers had a lifetime DSM-III-R diagnosis of any psychiatric disorder not related to substance use. The sample sizes are as follows: HAR = 344, LAR = 350, and Psych = 81. The children had follow-up evaluations conducted at ages 12-14, 16, 19, and annually thereafter until age 30. CEDAR has already shown that they can predict in 10-12 year old youth cannabis use disorder by age 22 with approximately 70 percent accuracy, thereby substantiating the paradigm, subject recruitment strategy, and measurement protocols. Multidisciplinary research was conducted on family members (father, mother, children) with the objective of elucidating the genetic, bio-behavioral, and environmental factors on development of SUD consequent to use of illegal drugs. Research protocols are organized into three thematically connected research modules (Neurogenetics, Developmental Psychopathology, and Translation) linking etiology and prevention. The research components thus align with the NIH Roadmap model such that basic science informs clinical research leading to prevention guided by an understanding of etiology. In addition to module-level research, faculty also participate in three organizational aims: (1) Devise a practical scale to quantify the transmissible liability to SUD; (2) Empirically test a bio-psychological theory of SUD etiology focusing on off-time maturation leading to psychological dysregulation predisposing to SUD; and, (3) Delineate SUD liability variants within an ontogenetic framework.
Curated

Changing Lives of Older Couples (CLOC): A Study of Spousal Bereavement in the Detroit Area, 1987-1993 (ICPSR 3370)

Released/updated on: 2006-01-18
Geographic coverage: Detroit, United States, Michigan
Time period: 1987-01-01--1993-12-31
Changing Lives of Older Couples (CLOC) is a large multi-wave prospective study of spousal bereavement. Face-to-face baseline interviews with married older adults in the Detroit, Michigan standardized metropolitan statistical area (SMSA) were conducted between June 1987 and April 1988, and follow-up interviews were conducted at six months (Wave 1), 18 months (Wave 2), and 48 months (Wave 3) after a spouse's death. Each widowed person was assigned a same-age, same-sex, same-race matched control from the baseline sample. Controls were interviewed again at each of the three follow-ups as well. Spousal loss was monitored using state-provided monthly death records and through daily obituaries from local area newspapers. The National Death Index (NDI) and direct ascertainment of death certificates were used to confirm all deaths. The primary strength of the CLOC study is its ability to measure spousal bereavement quantitatively. For this purpose a global grief scale and six grief subscales, unique to the CLOC study, were prepared. Depression was measured for all respondents with conceptualizations of depression at each wave, as well as major depressive episodes according to DSM-III-R criteria. Other survey questions focused on the social, psychological, and physical functioning of older adults (e.g., demographic, financial, housing, life events, social support, work and activities, marriage and family, religion, health and well-being). For a portion of the respondents (n = 432) in what was referred to as the MacBat study, various biomedical indicators (motor and cognitive, physiological, endocrinological and biochemical) were measured as well. The CLOC study has been subset into four primary datasets. The core, or Complete, dataset (Part 1) contains all available variables from all four waves of the study (Baseline, W1, W2, W3) for the entire sample of 1,532 persons (excluding clones, the 13 individuals who initially participated in a follow-up interview as control subjects, but who subsequently experienced spousal loss, and then entered the study as bereaved subjects). The Baseline Only dataset (Part 2) contains all variables collected at the baseline interview (V1-V957) for the entire sample of 1,532 persons (excluding clones). It also contains the baseline physiological variables (V20001-V20991) from the subsample of 432 persons who also participated in the baseline MacBat portion of the study. The Widowed-Controls Only datasets (Parts 3 and 4) contain all available data from anyone who participated as either a widowed person or a control subject in at least one of the three CLOC follow-up surveys (W1, W2, W3). This dataset is available with or without clones (n = 558 subjects including clones, and n= 545 excluding clones). The Couples Only dataset (Part 5) contains data collected from both the husband and the wife of 423 couples (n = 846) and includes all available data from all four waves of data collection (baseline, W1, W2, W3). Each record contains data for the wife (the "V" variables) and data for the husband (the "S" variables). A Clones Only dataset (Part 6) is also included for the advanced user and contains data for the 13 individuals identified as clones. A case-control matched design is recommended for analysis of the Clones Only data.
Curated
Restricted

Charleston Heart Study, Charleston, South Carolina, 1960-2000 (ICPSR 4050)

Released/updated on: 2021-06-03
Geographic coverage: Charleston (South Carolina), United States, South Carolina
Time period: 1960-01-01--2000-12-31
The Charleston Heart Study (CHS) represents data collected over a 41-year period (1960-2000) in order to provide an understanding of the natural progression of aging in a community-based cohort. In 1960 the CHS began enrolling a random selection of community residents who were 35 years of age and older -- including men and women, Black and White. The primary hypothesis of the original study was to investigate racial differences in the manifestation and risk factors for coronary disease. Over the ensuing 40+ years, a variety of outcome measurements were incorporated into the re-examination of the participants, including psychosocial, behavioral, aging, and functional measures. As a longitudinal study, the CHS allows for the study of the risk factors, correlates, and consequences of aging, while simultaneously allowing for exploration of racial disparity in the manifestation of putative risk factors and outcomes. The CHS began with baseline data and added a special cohort of Black men. In subsequent years three separate follow-ups were conducted. The data include death information for respondents and background characteristics (age, race, sex, occupation, education, and marital status).
Curated
Simple Crosstabs

Health and Ways of Living Study, 1965 Panel: [Alameda County, California] (ICPSR 6688)

Released/updated on: 2013-12-04
Geographic coverage: United States, California
Time period: 1965-01-01--1965-12-31
The purpose of this survey was to explore the influence of health practices and social relationships on the physical and mental health of a typical sample of the population in Alameda County, California. The information obtained for the 6,928 respondents (including approximately 500 women aged 65 years and older) covers chronic health conditions, health behaviors, social involvements, and psychological characteristics. Questions were asked about marital and life satisfaction, parenting, physical activities, employment, and childhood experiences. Demographic variables include data on respondetns' age, race, height, weight, education, income, and religion.
Curated

Human Aging: A Biological and Behavioral Longitudinal Study of Healthy Aged Males, 1957-1968 (ICPSR 7678)

Released/updated on: 2006-01-12
Geographic coverage: United States
Time period: 1957-01-01--1968-12-31
This data collection contains data gathered in a longitudinal study of a sample of men aged 65 to 92 who were in good health during the first wave of the study in 1957. The chief aim of the study was to focus on the nature of the normal aging process in individuals of advanced age. The 47 study participants had not suffered from accidents, illnesses, severe emotional or personality problems, or environmental difficulties that might have led to premature aging, but 20 participants showed evidence of asymptomatic subclinical disease. This group represented the typical or "average" healthy aged individual with minimal degrees of physical pathology. Five years later, in 1962, a follow-up study was conducted with 29 of the 39 men still alive. The second follow-up, done in 1968, involved 19 of the surviving 23 men. The data are arranged in files by year: 1957, 1962, and 1968. Included are psychiatric data and medical evaluative data as well as various psychological and medical test scores (e.g., psychometric data, electroencephalographic data, audiological test data, responses to the Minnesota Multiphasic Personality Inventory (MMPI), Rorschach test results, personality test results, Inflund Selective Recall Test results, audiometric conduction findings, clinical psychology ratings, cerebral blood flow, and metabolism studies), and biographical and demographic data.
Curated
Simple Crosstabs

Midlife in the United States (MIDUS 1), 1995-1996 (ICPSR 2760)

Released/updated on: 2020-09-28
Geographic coverage: United States
Time period: 1995-01-01--1996-01-31

The Midlife in the United States (MIDUS) is a collaborative, interdisciplinary investigation of patterns, predictors, and consequences of midlife development in the areas of physical health, psychological well-being, and social responsibility. A description of the study and findings from it are available at http://www.midus.wisc.edu.

The first wave of the MIDUS study (MIDUS 1 or M1) collected survey data from a total of 7,108 participants. The baseline sample was comprised of individuals from four subsamples: (1) a national RDD (random digit dialing) sample (n=3,487); (2) oversamples from five metropolitan areas in the U.S. (n=757); (3) siblings of individuals from the RDD sample (n=950); and (4) a national RDD sample of twin pairs (n=1,914). All eligible participants were non-institutionalized, English-speaking adults in the coterminous United States, aged 25 to 74.

Data from the samples were collected primarily in 1995/96. The survey (Project 1) dataset contains responses from a 30-minute Phone interview and two 50-page Self-Administered Questionnaire (SAQ) instruments. Of the 7,108 respondents who completed the Phone interview, 6,325 also completed the SAQ.

This updated version of the study is comprised of three primary datasets:

Dataset 1, Main, Siblings, and Twin Data, contains responses from the main survey of 7,108 respondents. Respondents were asked to provide extensive information on their physical and mental health throughout their adult lives, and to assess the ways in which their lifestyles, including relationships and work-related demands, contributed to the conditions experienced. Those queried were asked to describe their histories of physical ailments, including heart-related conditions and cancer, as well as the treatment and/or lifestyle changes they went through as a result. A series of questions addressed alcohol, tobacco, and illegal drug use, and focused on history of use, regularity of use, attempts to quit, and how the use of those substances affected respondents' physical and mental well-being. Additional questions addressed respondents' sense of control over their health, their awareness of changes in their medical conditions, commitment to regular exercise and a healthy diet, experience with menopause, the decision-making process used to deal with health concerns, experiences with nontraditional remedies or therapies, and history of attending support groups. Respondents were asked to compare their overall well-being with that of their peers and to describe social, physical, and emotional characteristics typical of adults in their 20's, 40's, and 60's. Information on the work histories of respondents and their significant others was also elicited, with items covering the nature of their occupations, work-related physical and emotional demands, and how their personal health had correlated to their jobs. An additional series of questions focusing on childhood queried respondents regarding the presence/absence of their parents, religion, rules/punishments, love/affection, physical/verbal abuse, and the quality of their relationships with their parents and siblings. Respondents were also asked to consider their personal feelings of accomplishment, desire to learn, sense of control over their lives, interests, and hopes for the future.

The Datasets previously numbered 2 and 3 have been removed to avoid redundancies, and all datasets have been renumbered. Please refer to the readme file.

Dataset 2, Twin Screener Data, provides the first national sample of twin pairs ascertained randomly via the telephone.

Dataset 3, Coded Text Responses, describes how open-ended textual responses in the MIDUS 1 Computer-Assisted Telephone Interview (CATI) and Self-Administered Questionnaire (SAQ) were transformed into categorical numeric codes. These codes are included in a stand-alone dataset containing only those cases (N=3,950) that contained text data in their responses.

Online Analysis Only: Datasets 1, 2, and 3 were merged together by the SU_ID variable to form "Merged Data with Weights (Online Analysis Only)" (Dataset 4) for online analysis capabilities.

MIDUS also maintains a Colectica portal, which allows users to interact with variables across waves and create customized subsets. Registration is required.

Curated
Simple Crosstabs

Midlife in the United States (MIDUS 1) National Study of Daily Experiences (NSDE), 1996-1997 (ICPSR 3725)

Released/updated on: 2023-01-25
Geographic coverage: United States
Time period: 1996-03-01--1997-03-31
The National Study of Daily Experiences (NSDE) is one of the in-depth studies that are part of the MacAuthur Foundation National Survey of Midlife in the United States (MIDUS). The purpose of the NSDE is to examine the day-to-day lives, particularly the daily stressful experiences, of a subsample of MIDUS respondents. Although previous daily diary research has advanced understanding of daily stress processes, there are important limitations in these studies that are addressed in the NSDE. First, previous studies in this area have relied on small and often unrepresentative samples that limit the ability to generalize findings. For this reason, the NSDE uses a large national sample of adults in the United States. Second, previous studies of individual differences in exposure and reactivity to daily events have typically examined only one source of variability, such as personality, to the exclusion of others. The NSDE corrects this problem by utilizing the data collected in the larger MIDUS survey on a wide array of sociodemographic and psychosocial variables to study the determinants of exposure and reactivity to daily stress. Third, previous studies have failed to investigate the role of genetics in both exposure and reactivity to daily stressors. The NSDE has a subsample of identical and fraternal same-sex twin pairs in order to explore this issue. The twins were selected if twin pairs had high self-reported certainty of zygosity, had completed the MIDUS interview and questionnaires, and had mailed in their cheek cell samples. A wide range of information was obtained using the daily telephone interview. Conducting interviews for an entire year provided information about seasonal variation in daily experiences. Respondents completed an average of 7.2 of the 8 interviews resulting in a total of 10,397 days of interviews. Data collection consisted of 40 separate "flights" of interviews with each flight representing the eight-day sequence of interviews from approximately 33 respondents. The entire interview was CATI programmed, which enabled researchers to incorporate skip patterns and open ended probe questions as well as to keypunch data during the interview, allowing data cleaning throughout the data collection. Demographic information includes gender and age.
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Simple Crosstabs

Midlife in the United States (MIDUS 2), 2004-2006 (ICPSR 4652)

Released/updated on: 2021-09-15
Geographic coverage: United States
Time period: 2004-01-01--2006-12-31

In 1995-1996, the MacArthur Midlife Research Network carried out a national survey of 7,108 Americans aged 25 to 74 (MIDLIFE IN THE UNITED STATES (MIDUS), 1995-1996 [ICPSR 2760]). The purpose of the study was to investigate the role of behavioral, psychological, and social factors in understanding age-related differences in physical and mental health. The study was innovative for its broad scientific scope, its diverse samples (which included twins and the siblings of main sample respondents), and its creative use of in-depth assessments in key areas (e.g., daily stress and cognitive functioning). A description of the study and findings from it are available at http://www.midus.wisc.edu. With support from the National Institute on Aging, a longitudinal follow-up of the original MIDUS samples: core sample (N = 3,487), metropolitan over-samples (N = 757), twins (N = 925 complete pairs), and siblings (N = 950), was conducted in 2004-2006. Guiding hypotheses for it, at the most general level, were that behavioral and psychosocial factors are consequential for physical and mental health. MIDUS 2 respondents were aged 35 to 86. Data collection largely repeated baseline assessments (e.g., phone interview and extensive self-administered questionnaire), with additional questions in selected areas (e.g., cognitive functioning, optimism and coping, stressful life events, and caregiving). To add refinements to MIDUS 2, an African American sample (N = 592) was recruited from Milwaukee, Wisconsin, who participated in a personal interview and completed a questionnaire paralleling the above assessments. Survey data for the Milwaukee sample are available in a separate project [ICPSR 22840]. Also administered was a modified form of the mail questionnaire, via telephone, to respondents who did not complete a self-administered questionnaire.

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Simple Crosstabs

Midlife in the United States (MIDUS 3), 2013-2014 (ICPSR 36346)

Released/updated on: 2019-04-30
Geographic coverage: Contiguous United States
Time period: 2013-05-01--2014-11-30

In 1995-1996, the MacArthur Midlife Research Network carried out a national survey of over 7,000 Americans aged 25 to 74 [ICPSR 2760]. The purpose of the study was to investigate the role of behavioral, psychological, and social factors in understanding age-related differences in physical and mental health. The study was innovative for its broad scientific scope, its diverse samples (which included siblings of the main sample respondents and a national sample of twin pairs), and its creative use of in-depth assessments in key areas (e.g. daily diary of stressful experiences [ICPSR 3725] and cognitive functioning [ICPSR 3596]) on a subset of participants. A detailed description of the study and findings generated by it are available at: http://www.midus.wisc.edu

With support from the National Institute on Aging, a follow-up of the original Midlife Development in the United States (MIDUS) sample was conducted in 2004 (MIDUS 2 [ICPSR 4652]). The daily stress and cognitive functioning projects were repeated and expanded at MIDUS 2; in addition the protocol was expanded to include biomarkers and neuroscience.

In 2013 a third wave (MIDUS 3) of survey data was collected on longitudinal participants. Data collection for this follow-up wave largely repeated baseline assessments (e.g., phone interview and extensive self-administered questionnaire), with additional questions in selected areas such as economic recession experiences. Cognitive functioning data were also collected at the same time, while data collection for the daily diary, biomarker, and neuroscience projects commenced in 2017.

MIDUS also maintains a Colectica portal, which allows users to interact with variables across waves and create customized subsets. Registration is required.

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Simple Crosstabs

Midlife in the United States (MIDUS 3): Neuroscience Project, 2017-2022 (ICPSR 38862)

Released/updated on: 2025-04-15
Geographic coverage: United States
Time period: 2017-01-01--2022-12-31

From 2004-2009, an initial follow-up of the original Midlife Development in the United States samples (MIDUS 2) was conducted with expansion of the protocol to include Neuroscience Project data collection and a sample of Black Americans from Milwaukee, WI. The MIDUS Neuroscience Project performed a second follow-up from 2017-2022 of the MIDUS Main and Milwaukee samples (MIDUS 3) on a subsample of those who completed the MIDUS 3 Survey and Biomarker Projects.

The goal was to examine indices of brain aging, function, and structure with a focus on the brain circuitry associated with individual differences in affective style, and to characterize the peripheral consequences of these central profiles for biological systems that may be relevant to health. The primary aims were to: (1) characterize individual differences in emotional reactivity, recovery, and sustaining processes using corrugator and zygomatic electromyography and eyeblink startle magnitude, (2) characterize individual differences in brain morphology and connectivity using structural magnetic resonance imaging (MRI) and diffusion weighted imaging (DWI) (3) characterize individual differences in functional activity within the neural circuitry of emotion using task and resting state fMRI, (4) calculate brain age, and (5) test the ability of these indices to predict the comprehensive array of health, wellbeing, cognitive, psychological, social, and life challenge factors assessed in other MIDUS projects. To probe individual differences in emotional processes, psychophysiological and fMRI measures of emotional responses to the presentation of negative, positive, and neutral pictures, and these same measures during a post-picture period were examined.

Emotion-influenced memory was assessed at both the psychophysiological and imaging sessions: (1) Free recall of the presented affective pictures at the end of the psychophysiological session. (2) Memory and likeability ratings for neutral faces paired with the affective pictures in the imaging task. Finally, selected tasks from the CANTAB assessed affective biases and cognitive processes important for emotion regulation.

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Simple Crosstabs

Midlife in the United States (MIDUS): Survey of Minority Groups [Chicago and New York City], 1995-1996 (ICPSR 2856)

Released/updated on: 2018-03-21
Geographic coverage: New York City, United States, Chicago, Illinois, New York (state)
Time period: 1995-01-01--1996-12-31
This survey of minority groups was part of a larger project to investigate the patterns, predictors, and consequences of midlife development in the areas of physical health, psychological well-being, and social responsibility. Conducted in Chicago and New York City, the survey was designed to assess the well-being of middle-aged, urban, ethnic minority adults living in both hyper-segregated neighborhoods and in areas with lower concentrations of minorities. Respondents' views were sought on issues relevant to quality of life, including health, childhood and family background, religion, race and ethnicity, personal beliefs, work experiences, marital and close relationships, financial situation, children, community involvement, and neighborhood characteristics. Questions on health explored the respondents' physical and emotional well-being, past and future attitudes toward health, physical limitations, energy level and appetite, amount of time spent worrying about health, and physical reactions to those worries. Questions about childhood and family background elicited information on family structure, the role of the parents with regard to child rearing, parental education, employment status, and supervisory responsibilities at work, the family financial situation including experiences with the welfare system, relationships with siblings, and whether as a child the respondent slept in the same bed as a parent or adult relative. Questions on religion covered religious preference, whether it is good to explore different religious teachings, and the role of religion in daily decision-making. Questions about race and ethnicity investigated respondents' backgrounds and experiences as minorities, including whether respondents preferred to be with people of the same racial group, how important they thought it was to marry within one's racial or ethnic group, citizenship, reasons for moving to the United States and the challenges faced since their arrival, their native language, how they would rate the work ethic of certain ethnic groups, their views on race relations, and their experiences with discrimination. Questions on personal beliefs probed for respondents' satisfaction with life and confidence in their opinions. Respondents were asked whether they had control over changing their life or their personality, and what age they viewed as the ideal age. They also rated people in their late 20s in the areas of physical health, contribution to the welfare and well-being of others, marriage and close relationships, relationships with their children, work situation, and financial situation. Questions on work experiences covered respondents' employment status, employment history, future employment goals, number of hours worked weekly, number of nights away from home due to work, exposure to the risk of accident or injury, relationships with coworkers and supervisors, work-related stress, and experience with discrimination in the workplace. A series of questions was posed on marriage and close relationships, including marital status, quality and length of relationships, whether the respondent had control over his or her relationships, and spouse/partner's education, physical and mental health, employment status, and work schedule. Questions on finance explored respondents' financial situation, financial planning, household income, retirement plans, insurance coverage, and whether the household had enough money. Questions on children included the number of children in the household, quality of respondents' relationships with their children, prospects for their children's future, child care coverage, and whether respondents had changed their work schedules to accommodate a child's illness. Additional topics focused on children's identification with their culture, their relationships with friends of different backgrounds, and their experiences with racism. Community involvement was another area of investigation, with items on respondents' role in child-rearing, participation on a jury, voting behavior, involvement in charitable organizations, volunteer experiences, whether they made monetary or clothing donations, and experiences living in an institutional setting or being homeless. Respondents were also queried about their neighborhoods, with items on neighborhood problems including racism, vandalism, crime, drugs, poor schools, teenage pregnancy, the existence of social networks, the frequency of contact with family members, social interaction with neighbors, sense of community, whether the respondent owned or rented their home, and the financial, legal, and medical problems of family members. A final set of questions sought respondents' assessments of their life and their expectations for the future. Additional background information on respondents includes age, ethnicity, and gender.
External data

National Longitudinal Study of Adolescent to Adult Health (Add Health), 1994-2008 [Restricted Use] (ICPSR 35249)

Released/updated on: 2014-06-24
Geographic coverage: United States
The National Longitudinal Study of Adolescent to Adult Health (Add Health) is a longitudinal study of a nationally representative sample of adolescents in grades 7-12 in the United States during the 1994-95 school year. The Add Health cohort has been followed into young adulthood with four in-home interviews, the most recent in 2008, when the sample was aged 24-32. Add Health combines longitudinal survey data on respondents' social, economic, psychological and physical well-being with contextual data on the family, neighborhood, community, school, friendships, peer groups, and romantic relationships, providing unique opportunities to study how social environments and behaviors in adolescence are linked to health and achievement outcomes in young adulthood. The fourth wave of interviews expanded the collection of biological data in Add Health to understand the social, behavioral, and biological linkages in health trajectories as the Add Health cohort ages through adulthood.
External data

National Longitudinal Survey of Mature and Young Women (ICPSR 34930)

Released/updated on: 2013-10-28
Geographic coverage: United States
Time period: 1967-01-01--2003-12-31
The National Longitudinal Survey of Mature and Young Women, a two-cohort survey, is part of the NLS Original Cohort project. The Mature Women's cohort includes 5,083 women who were ages 30-44 when first interviewed in 1967, while the Young Women's cohort includes 5,159 women who were ages 14-24 when first interviewed in 1968. Data for both cohorts are available through 2003, when active surveying was discontinued.
External data

National Longitudinal Survey of Older and Young Men (ICPSR 34937)

Released/updated on: 2013-11-11
Geographic coverage: United States
The National Longitudinal Survey of Older and Young Men, a two-cohort survey, is part of the NLS Original Cohort project. The Older Men's cohort includes 5,020 men ages 45-59 in 1966, with data available through the 1990 survey year, the final year the Older Men were interviewed. The Young Men's cohort includes 5,225 men who were ages 14-24 when first interviewed in 1966, with data available through 1981, when active surveying was discontinued.
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Simple Crosstabs

National Survey of Families and Households, Wave 1: 1987-1988, [United States] (ICPSR 6041)

Released/updated on: 2017-08-31
Geographic coverage: United States
Time period: 1987-03-01--1988-05-31

The National Survey of Families and Households (NSFH), Wave 1 (1987-1988) is the first of three waves in a longitudinal survey that was designed to study the causes and consequences of changes happening in families and households within the United States. At a time when the range of family structures was becoming more and more diverse, this study permitted a close examination of the resulting family compositions and household operations. One adult per household was randomly selected as the primary respondent, and there was a total of 13,007 respondents. In addition to the main interview conducted with the primary respondent, a shorter, self-administered questionnaire was given to the spouse or cohabitating partner, and also administered to the householder if he or she was a relative of the primary respondent.

A considerable amount of life-history information was collected, such as the respondent's family living arrangements in childhood, departures and returns to the parental home, and histories of marriage, separation, divorce, cohabitation, adoption, child custody arrangements, and stepfamily relations. Respondents were also asked about the relationship of household members to each other and the quality of their relationships with their parents, children, and in-laws. Information on economic well-being was also collected, including earnings from wages, self-employment income, interest, dividends, investments, pensions, Social Security, public assistance, and child support/alimony. Demographic information collected includes sex, age, marital status, education, and employment.

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Simple Crosstabs

National Survey of Families and Households, Wave 2: 1992-1994, [United States] (ICPSR 6906)

Released/updated on: 2018-06-06
Geographic coverage: United States
Time period: 1992-07-01--1994-08-31

The National Survey of Families and Households (NSFH), Wave 2 1992-1994, a longitudinal population-based survey of families and households in the United States, investigates the causes and consequences of changes in American family and household structure. This is the second wave of a three part survey. The current study, NSFH Wave 2, is the second follow up and was conducted in 1992-1994. The sample included all NSFH Wave 1 main respondents and spouse/partner with focal children and all other NSFH Wave 1 main respondents ages 45 and over in 2000, as well as their NSFH Wave 1 spouse/partner.

The Wave 2 survey included the following components: (1) an interview of all surviving members of the original sample via face-to-face personal interview, (2) a personal interview with the current spouse or cohabiting partner almost identical to the interview with the main respondent, (3) a personal interview with the original spouse or partner of the primary respondent in cases where this relationship had ended, (4) a telephone interview with "focal children" who were originally aged 13-18 in Wave 1, (5) a short telephone interview with "focal children" who were originally aged 5-12 in Wave 1, (6) short proxy interviews with a surviving spouse or other relative in cases where the original respondent had died or was too ill to interview, and (7) a telephone interview with a randomly-selected parent of the main respondent. Demographic information collected includes sex, age, marital status, education, and employment

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National Survey of Families and Households, Wave 3: 2001-2003, [United States] (ICPSR 171)

Released/updated on: 2018-06-06
Geographic coverage: United States
Time period: 2001-01-01--2003-12-31
The National Survey of Families and Households (NSFH) is a longitudinal population-based survey series that seeks to examine the causes and consequences of change in American family and household structures. NSFH Wave 3 was conducted in 2001-2003 and represents the third follow-up survey. The Wave 3 sample included interviews with all NSFH Wave 1 main respondents and spouse/partner with a focal child eligible for the NSFH Wave 2 interviews, interviews with these focal children (now aged 18-34), and interviews with all other NSFH Wave 1 main respondents aged 45 and over in the year 2000, as well as their NSFH Wave 1 spouse/partner.
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National Survey of the Japanese Elderly, 1996 (ICPSR 26621)

Released/updated on: 2010-10-04
Geographic coverage: Japan, Global
Time period: 1996-01-01--1996-12-31
This survey is the fourth wave of a study conducted jointly by the Institute of Gerontology at the University of Michigan (IoG) and the Tokyo Metropolitan Institute of Gerontology (TMIG). Previous waves of data were collected in November of 1987 (ICPSR 6842), November of 1990 (ICPSR 3407), and November of 1993 (ICPSR 4145). The survey was designed to create a panel dataset for use in cross-cultural analyses of aging between the United States and Japan. This is the first, and to date only, panel study designed for cross-cultural analyses on aging. Therefore, this survey represents a unique contribution to the gerontological archives for cross-cultural aging. The survey was designed to match as closely as feasible the Wave I instrument, however it had to allow for dynamic growth in areas of interest. The Wave I instrument was designed to be at least partially comparable to many pre-existing surveys of the aged. Specifically it incorporates components from the American's Changing Lives surveys conducted by Jim House et al. of the Institute for Social Research (ISR) at the University of Michigan and the 1984 National Health Interview Survey Supplement on Aging.
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Neighborhood Effects on the Long-Term Well-Being of Low-Income Adults From All Five Sites of the Moving to Opportunity Experiment, 2008-2010 [Public Use Data] (ICPSR 34563)

Released/updated on: 2013-03-14
Geographic coverage: New York City, Baltimore, United States, Chicago, Illinois, Massachusetts, Los Angeles, California, New York (state), Maryland, Boston
Time period: 1994-01-01--2010-12-31

Nearly 9 million Americans live in extreme-poverty neighborhoods, places that also tend to be racially segregated and dangerous. Yet, the effects on the well-being of residents of moving out of such communities into less distressed areas remain uncertain. Moving to Opportunity (MTO) is a randomized housing experiment administered by the United States Department of Housing and Urban Development that gave low-income families living in high-poverty areas in five cities the chance to move to lower-poverty areas. Families were randomly assigned to one of three groups:

1. The low-poverty voucher (LPV) group (also called the experimental group) received Section 8 rental assistance certificates or vouchers that they could use only in census tracts with 1990 poverty rates below 10 percent. The families received mobility counseling and help in leasing a new unit. One year after relocating, families could use their voucher to move again if they wished, without any special constraints on location.

2. The traditional voucher (TRV) group (also called the Section 8 group) received regular Section 8 certificates or vouchers that they could use anywhere; these families received no special mobility counseling.

3. The control group received no certificates or vouchers through MTO, but continued to be eligible for project-based housing assistance and whatever other social programs and services to which they would otherwise be entitled.

Families were tracked from baseline (1994-1998) through the long-term evaluation survey fielding period (2008-2010) with the purpose of determining the effects of "neighborhood" on participating families. These particular files include data from the 3,273 adult interviews completed as part of the MTO long-term evaluation and are comprised of variables analyzed for the article "Neighborhood Effects on the Long-Term Well-Being of Low-Income Adults" that was published in the journal Science on September 21, 2012. Using data from the long-term evaluation, the article reports that moving from a high-poverty to lower-poverty neighborhood leads to long-term (10- to 15-year) improvements in adult physical and mental health and subjective well-being, despite not affecting economic self-sufficiency. Subjective well-being is more strongly affected by changes in neighborhood economic disadvantage than racial segregation, which is important because racial segregation has been declining since 1970, but income segregation has been increasing. The files submitted here contain all outcomes and mediators analyzed for the article as well as a variety of demographic and other baseline measures that were controlled for in the analysis.

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Project on Human Development in Chicago Neighborhoods (PHDCN): Adolescent Dissociative Experiences Scale, Wave 3, 2000-2002 (ICPSR 13672)

Released/updated on: 2007-02-05
Geographic coverage: United States, Chicago, Illinois
Time period: 2000-01-01--2002-12-31
The Project on Human Development in Chicago Neighborhoods (PHDCN) was a large-scale, interdisciplinary study of how families, schools, and neighborhoods affect child and adolescent development. One component of the PHDCN was the Longitudinal Cohort Study, which was a series of coordinated longitudinal studies that followed over 6,000 randomly selected children, adolescents, and young adults, and their primary caregivers over time to examine the changing circumstances of their lives, as well as the personal characteristics, that might lead them toward or away from a variety of antisocial behaviors. Numerous measures were administered to respondents to gauge various aspects of human development, including individual differences, as well as family, peer, and school influences. One such measure was the Adolescent Dissociative Experiences Scale. It was administered to subjects in Cohorts 6, 9, and 12. It was a brief self-report measure of the frequency of dissociative experiences.
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Religion, Aging, and Health Survey, 2001, 2004 [United States] (ICPSR 3255)

Released/updated on: 2006-04-17
Geographic coverage: United States
Time period: 2001-01-01--2001-12-31, 2004-01-01--2004-12-31
This data collection looks at religion, self-rated health, depression, and psychological well-being in a sample of older Blacks and older Whites (aged 65 and over) within the United States. Questions were asked regarding religious status, activities, and beliefs among those who currently practice the Christian faith, those who used to be Christian but are not now, and those who have never been associated with any religion during their lifetimes. Demographic variables include age, race, sex, education, and income. Wave II was collected in 2004 and reinterviewed 1,024 respondents. There were 75 respondents who refused to participate, 112 who could not be located, 70 that were too ill for participation, 11 who had moved to nursing homes and 208 were deceased.
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Resources for Enhancing Alzheimer's Caregiver Health, 1996-2001 (ICPSR 3253)

Released/updated on: 2006-03-30
Geographic coverage: United States, Tennessee, California, Alabama, Florida, Birmingham, Pennsylvania, Miami, Palo Alto, Massachusetts, Memphis, Philadelphia, Boston
Time period: 1996-09-01--2001-02-28
Resources for Enhancing Alzheimer's Caregiver Health (REACH) was established in 1995 to conduct social and behavioral research on interventions designed to enhance family caregiving, particularly in minority families, for persons with Alzheimer's Disease and related disorders. Data were collected through randomized clinical trials at six sites: University of Alabama--Birmingham, the Research and Training Institute of the Hebrew Rehabilitation Center for Aged in Boston, University of Tennessee--Memphis, University of Miami, Veterans Affairs Palo Alto Health Care System and Stanford University, and Thomas Jefferson University in Philadelphia. Interventions studied included psychoeducational support groups, behavioral skills training programs, family-based systems interventions, environmental modifications, and technological computer-based information and communication services. Although interventions varied by site, all sites collected the same data at the same time intervals. The impact of the various intervention strategies on psychological distress, health status, health practices, and health care utilization was assessed. Parts 1 through 5 contain screening data and a short mental status questionnaire. Parts 6 through 24 contain baseline data and cover activities of daily living, anxiety, and caregiver health and behaviors along with sociodemographic information. Also included are care recipient medications and sociodemographic information. Parts 25 and 26 contain tracking data and also include an examination of interventions.
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Resources for Enhancing Alzheimer's Caregiver Health, 1996-2001, Baseline and Follow-Up Data (ICPSR 3678)

Released/updated on: 2006-09-26
Geographic coverage: United States, Tennessee, California, Alabama, Florida, Birmingham, Pennsylvania, Miami, Palo Alto, Massachusetts, Memphis, Philadelphia, Boston
Time period: 1996-09-01--2001-02-28
Resources for Enhancing Alzheimer's Caregiver Health (REACH) was established in 1995 to conduct social and behavioral research on interventions designed to enhance family caregiving, particularly in minority families, for persons with Alzheimer's Disease and related disorders. Baseline data (ICPSR 3253) were collected through randomized clinical trials at six sites: University of Alabama-Birmingham, The Research and Training Institute of the Hebrew Rehabilitation Center for Aged in Boston, University of Tennessee-Memphis, University of Miami, Veterans Affairs Palo Alto Health Care System and Stanford University, and Thomas Jefferson University in Philadelphia. Interventions such as psychoeducational support groups, behavioral skills training programs, family-based systems interventions, environmental modifications, and technological computer-based information and communication services varied by site. This collection contains baseline data along with follow-up data at 6-, 12-, and 18-month intervals from each site with focus on the impact of the various intervention strategies on psychological distress, health status, health practices, and health care utilization. Also included are follow-up batteries, transition batteries (placement, bereavement, discontinued), and data reporting missed visits. Parts 1 through 5 contain screening data and responses to a short mental status questionnaire. Parts 6 through 34 contain baseline data along with follow-up data at 6, 12, and 18-month intervals and cover activities of daily living, anxiety, and caregiver health and health behaviors along with sociodemographic information. Also included are care recipient medications and sociodemographic information. Parts 35 through 40 contain tracking data and also include an examination of interventions.
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Social Environment and Biomarkers of Aging Study (SEBAS) in Taiwan, 2000 and 2006 (ICPSR 3792)

Released/updated on: 2014-06-17
Geographic coverage: Taiwan
Time period: 2000-01-01--2000-12-31, 2006-01-01--2006-12-31

The Social Environment and Biomarkers of Aging Study (SEBAS) in Taiwan, 2000 and 2006, provides information regarding the health and well-being of older persons in Taiwan. Taiwan has undergone rapid demographic, social, and economic changes, becoming a highly urbanized and industrial society with a growing population of persons age 65 or older. SEBAS explores the relationship between life challenges and mental and physical health, the impact of social environment on the health and well-being of the elderly, as well as biological markers of health and stress. The study collected self-reports of physical, psychological, and social well-being, plus extensive clinical data based on medical examinations and laboratory analyses. Examination of health outcomes included chronic illnesses, functional status, psychological well-being, and cognitive function. Questions regarding life challenges focused on perceived stress, economic difficulties, security and safety, and the consequences of a major earthquake. Biological markers were used to identify cardiovascular risk factors, metabolic process measures, immune-system activity, the hypothalamic-pituitary adrenal axis, and sympathetic nervous system activity. Two rounds of biomarker data collected in 2000 and 2006 were complemented by face-to-face interviews with the participants. Demographic and background variables included age, sex, education, ethnicity, occupation, and residency.

Additional information about the Social Environment and Biomarkers of Aging Study can be found at the Georgetown University Center for Populations and Health Web site.

A Webinar describing the Social Environment and Biomarkers of Aging Study (SEBAS) was presented June 20, 2016. All interested users can access the webinar here.

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Survey of Midlife in Japan (MIDJA 2), May-October 2012 (ICPSR 36427)

Released/updated on: 2018-02-19
Geographic coverage: Tokyo, Japan, Global
Time period: 2012-05-01--2012-10-31

In 2008, with funding from the National Institute on Aging (NIA), baseline survey data for the Survey of Midlife in Japan (MIDJA), April-September 2008 were collected from a probability sample of Japanese adults (N=1,027) aged 30 to 79 from the Tokyo metropolitan area (ICPSR 30822). In 2009-2010 biomarker data was obtained from a subset of these cases (ICPSR 34969).

The survey and biomarker measures obtained parallel those in a national longitudinal sample of Americans known as Midlife in the United States or MIDUS (ICPSR 2760: MIDUS 1 and ICPSR 4652: MIDUS 2). The central objective was to compare the Japanese sample (MIDJA) with the United States sample (MIDUS) to test hypotheses about the role of psychosocial factors in the health (broadly defined) of mid- and later-life adults in Japan and the United States.

In 2012, with additional support from NIA, a longitudinal follow-up of the MIDJA sample was completed. The data collection for this second wave (N=657) largely repeated the baseline assessments. The goal of the follow-up wave was to conduct comparisons of longitudinal data available from the Japanese sample (MIDJA) and the United States sample (MIDUS) to test the hypothesis about the role of psychosocial factors in predicting health changes (including biomarkers) in both cultural contexts. Cultural influences on age differences in health and well-being were also of interest.

Demographic and background information included gender, age, education, marital status, household composition, and income.

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Survey of Midlife in Japan (MIDJA), April-September 2008 (ICPSR 30822)

Released/updated on: 2018-03-09
Geographic coverage: Tokyo, Japan, Global
Time period: 2008-04-01--2008-09-30
The MIDJA study is a probability sample of Japanese adults (N = 1,027) aged 30 to 79 from the Tokyo metropolitan area. Survey data were collected on sociodemographic characteristics (age, gender, marital status, educational status), psychosocial characteristics (e.g., independence/interdependence, personality traits, sense of control, goal orientations, social support, family obligation, social responsibility), mental health (depression, anxiety, well-being, life satisfaction), and physical health (chronic conditions, health symptoms, functional limitations, health behaviors). These measures parallel those in a national longitudinal sample of midlife Americans known as MIDUS (ICPSR 4652: MIDUS II and ICPSR 2760: MIDUS I). The central objective is to compare the Japanese sample (MIDJA) with the United States sample (MIDUS) to test the hypothesis that the construct of interdependence predicts well-being and health in Japan, whereas the construct of independence predicts well-being and health in the United States. Cultural influences on age differences in health and well-being are also of interest.
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Swedish Adoption/Twin Study on Aging (SATSA), 1984, 1987, 1990, 1993, 2004, 2007, and 2010 (ICPSR 3843)

Released/updated on: 2015-05-13
Geographic coverage: Sweden, Global
Time period: 1984-01-01--2010-12-31
The Swedish Adoption/Twin Study on Aging (SATSA) was designed to study the origins of individual differences in aging and the environmental and genetic factors that are involved. SATSA began in 1984, and six additional waves were conducted in 1987, 1990, 1993, 2004, 2007, and 2010. The questionnaire was initially sent to all twins from the Swedish Twin Registry who were separated at an early age and raised apart; the survey was also administered to a control sample of twins who were raised together. The respondents were surveyed on items that included health status, how they were raised, work environment, alcohol consumption, and dietary and smoking habits, as well as questions about personality and attitudes; this information comprised the first component. The second component was collected from a subsample composed of 150 pairs of twins raised apart and 150 pairs of twins raised together. This subsample participated in seven waves of in-person testing, which included a health examination, structured interviews, and tests on functional capacity, cognitive abilities, and memory. The data are represented according to questionnaire and time number, and correspond to each wave/year: Questionnaire 1 and In-Person Testing Time 1 were in 1984; Questionnaire 2 and In-Person Testing Time 2 were in 1987; Questionnaire 3 and In-Person Testing Time 3 were in 1990; Questionnaire 4 and In-Person Testing Time 4 were in 1993; Questionnaire 5 was in 2003; In-Person Testing Time 5 was in 2004; Questionnaire 6 and In-Person Testing Time 6 were in 2007; In-Person Testing Time 7 was in 2010. The Administrative and Cognitive datasets include data from all years/waves. The Smell Survey dataset only includes data from 1990. No years were specified for the Contact measures and Separation measures datasets. Demographic and background information includes age, sex, education, family history, household composition and employment.
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Well Elderly 2, Los Angeles, California, 2004-2008 (ICPSR 33641)

Released/updated on: 2013-05-28
Geographic coverage: United States, Los Angeles, California
Time period: 2004-11-01--2008-10-31
Older people are at risk for health decline and loss of independence. Lifestyle interventions offer potential for reducing such negative outcomes. The Well Elderly study attempts to determine the effectiveness and cost-effectiveness of a preventive lifestyle-based occupational therapy intervention, administered in a variety of community-based sites, in improving mental and physical well-being and cognitive functioning in ethnically diverse older people. Participants included 460 men and women aged 60 - 95 years recruited from 21 sites in the greater Los Angeles metropolitan area. For six months elders in one group received the Well Elderly Intervention, while elders in the other group remained untreated for the first six months and received the intervention during the second six-month phase. Following receipt of the intervention, subjects in both groups remained untreated for respective twelve month spans. The manualized intervention consisted of small group and individual sessions led by a licensed occupational therapist. Typically, each group had six to eight members, all recruited from the same site and treated by the same intervener. Monthly community outings were scheduled to facilitate direct experience with intervention content such as the use of public transportation. An assessment battery (including questionnaires, cognitive tests, and biomarker samples) measured potential mediating variables as well as outcome variables and was administered at study baseline and at subsequent six-month intervals. In addition, at baseline a set of background and control variables were measured. At the end of each assessment session (questionnaires and cognitive tests), subjects provided salivary samples. The Samples were assayed for cortisol, dehydroepiandrosterone, and alpha amylase. Assessment of health-related quality of life, life satisfaction, and depression was based on self-rated questionnaires. Cognitive tests were conducted individually. Perceived physical health and aspects of mental well-being were measured, as were depressive symptoms, and life satisfaction. Variable categories include, health survey, stressful events, feelings, connections, attitudes, supports, beliefs, issues, activities, and demographics i.e. respondents age, sex, race, education level, employment, and income.
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Work, Family, and Health Study (WFHS) (ICPSR 36158)

Released/updated on: 2018-10-03
Geographic coverage: United States
Time period: 2009-09-01--2012-12-31
The National Institutes of Health (NIH) and the Centers for Disease Control and Prevention (CDC) formed the Work, Family and Health Network (WFHN) as a transdisciplinary research effort designed to enhance understanding of the impact of workplace practices and policies on work, family life, and health outcomes. The Work, Family and Health Network also seeks to illuminate the processes through which such practices and policies are adopted by employers and implemented by managers and employees. The Work, Family, and Health Study (WFHS) was conducted via group-randomized field experiments, one at each of two employers representing different industries. The information technology division of a Fortune 500 company (pseudonym: Tomo) had 26 total sites made up of 56 study groups with 7-60 employees each. Within the extended-care company (pseudonym: Leef), 30 work sites of 30-89 employees each were randomly assigned to intervention or usual practice (UP) conditions. All employee and manager participants were assessed at baseline and at 6-, 12-, and 18-months post baseline. Opinions were elicited from employees and managers regarding the amount of hours they work, balance between work and family, opportunities to work from home, the ability to take vacation and time off when desired, and decision-making authority at work. Responses were also gathered on issues such as talking with a manager about conflicts outside of work, willingness to help other coworkers when they have been absent, workplace safety, and obligations to come into work when sick. Information was also collected on the likelihood of respondents quitting the company, whether respondents were looking for work elsewhere, job performance ratings of self and others, opinions about supervisors, and a series of questions relating to psychological distress and well-being.
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