Search results

Showing 1 – 24 of 24 results.
Curated

Bicol Multipurpose Survey (BMS), 1978: [Philippines] (ICPSR 6878)

Released/updated on: 2005-11-04
Geographic coverage: Philippines
The Bicol Multipurpose Survey (BMS) was designed to assess the impact of the Bicol River Basin Development Project (BRBDP) on one of the poorest regions in the Philippines. Using data collected from both semi-urban and rural areas of the Bicol Region, the BMS sought to examine the impact not only of the various development projects of the BRBDP such as irrigation, electricity, and road repair, but also the economic, social, and health issues faced by the residents of the Bicol Region. The survey gathered data for 17 project areas and 3 cities in the provinces of Albay, Camarines Sur, and Sorsogon. Household-level information (Part 1) covers household characteristics, physical environment, income and expenditures, distance from schools, and respondents' feelings about household conditions and the progress of the barangay in which they lived (a barangay is a political subdivision equivalent to a village in rural areas and to a neighborhood in urban areas). Information on topics such as attitudes about foods during pregnancy, infant and child care, prenatal care, community involvement, and work history are contained in a separate Mothers Data file (Part 2). The individual-level data (Parts 3-5) contain demographic information such as age, sex, and education, and include time spent on household and occupational tasks. Information was collected from persons as young as 6 years of age, but was coded for individuals 15 years and older for tasks such as selling, food preparation, farm work, raising livestock and poultry, and the type and amount of fishing. Morbidity data from over 17,000 individuals are also included. The Household Production files (Parts 6-11) cover agriculture and business, crop production, rice farming, raising livestock and poultry, type of fishing done, and quantity of fish caught. Also included are income figures, assets, and liabilities. The Barangay Survey (Part 12) examines the physical aspects of the barangay and the use of social services in the area to determine the impact of the BRBDP and outside influences. The barangay captain or official records provided information on the physical characteristics, community services, medical services, social services, sanitation, and educational systems available within the barangay. The Extension Workers Survey (Part 13) asked 324 workers about their knowledge and activities regarding agricultural practices such as fertilizer use, pest and disease control, and other aspects of planting and transplanting. Through the Medical Practitioners Survey (Part 14), 426 practitioners were asked questions on their education and training, general health knowledge and experience, and knowledge and attitudes about birth control. Data collected in 1978, 1983, and 1994 can be used individually or merged together on a unique household identifier found in Part 15 (with the exception of the Medical Practitioners and Extension Workers data).
Curated
Partially restricted
Simple Crosstabs

Chitwan Valley Family Study: Changing Social Contexts and Family Formation, Nepal, 1995-2019 (ICPSR 4538)

Released/updated on: 2024-10-16
Geographic coverage: Nepal
Time period: 1995-01-01--2019-01-01

The Chitwan Valley Family Study (CVFS) is a comprehensive family panel study of individuals, households, and communities in the Chitwan Valley of Nepal. The study was initially designed to investigate the influence of changing community and household contexts on population outcomes such as marital and childbearing processes. Over time, the goals of the study expanded to investigate family dynamics, intergenerational influences, child health, migration, labor force participation, attitudes and beliefs, mental health, agricultural production, environmental change, and many other topics. The data include full life histories for more than 10,000 individuals, tracking and interviews with all migrants, continuous measurement of community change, over 25 years of demographic event registry, and many other data collections. For additional information regarding the Chitwan Valley Family Study, please visit the Chitwan Valley Family Study Website. A Data Guide for this study is available as a web page and for download.

Principal Investigators

  • William G. Axinn, University of Michigan
  • Dirgha Ghimire, University of Michigan
  • Jordan Smoller, Massachusetts General Hospital
Curated
Restricted

Explaining Low Fertility in Italy (ELFI) (ICPSR 31881)

Released/updated on: 2012-01-12
Geographic coverage: Bologna, Cagliari, Europe, Naples, Italy, Padua

The ethnographic fieldwork portion of the project - interviews with women of reproductive age, and when available their partners and mothers - was initiated and completed in 2006. For each of four Italian cities (Padua, Bologna, Cagliari, and Naples) studied ethnographically by trained anthropologists, both a working-class and a middle-class neighborhood were identified. These interviews (349 in number) have been transcribed without identifiers. All interviews have been coded and assigned 'attributes' (or nominative variables, such as gender, civil/religious status of marriage, etc.) using the qualitative data analysis software (NVIVO), and these reside in secure electronic project folders. This large body of qualitative interview data is now complete and ready for use across the international collaborative units. Preliminary research reveals the particular significance of family ties in Italy, the fundamental role played by gender systems, and the specific cultural, socio-economic, and politic contexts in which fertility behavior and parenting are embedded.

Curated

Linked Birth/Infant Death Period Data, 1995: [United States, Puerto Rico, Virgin Islands, and Guam] (ICPSR 2285)

Released/updated on: 2006-01-18
Geographic coverage: United States, Guam, Virgin Islands of the United States, Global
This data collection consists of six data files, which can be used to determine infant mortality rates in the United States in 1995. For the first time, data for Puerto Rico, the Virgin Islands, and Guam were included. Another change in 1995 is a change in format of the linked files. They are now released in two different formats, period data and birth cohort data. This collection represents the period data. Parts 1 and 2 are the Denominator files for the United States and for Puerto Rico, the Virgin Islands, and Guam, respectively. These files consist of all births in 1995. Variables in these files include year of birth, state and county of birth, characteristics of the infant (age, sex, race, birth weight, gestation), characteristics of the mother (Hispanic origin, race, age, education, marital status, state of birth), characteristics of the father (Hispanic origin, race, age, education), pregnancy items (prenatal care, live births), and medical data. A new variable in the Denominator files for 1995 is clinical estimate of gestation. Parts 3 and 4 are the Numerator files. They provide records of all infant deaths that occurred in 1995 linked to their corresponding birth certificates, whether the birth occurred in 1995 or 1994. Variables in these files include age at death, underlying cause of death, autopsy, place of accident, infant death identification number, exact age at death, day of birth and death, and month of birth and death. New variables in the linked Numerator files for 1995 include a weight and a clinical estimate of gestation. Parts 5 and 6 are the "unlinked" files. They consist of infant death records that could not be linked to their corresponding birth records.
Curated
Partially restricted

Memphis New Mothers Study, 1990-1994 (ICPSR 6782)

Released/updated on: 2024-02-14
Geographic coverage: United States, Tennessee, Memphis
Time period: 1990-06-01--1994-04-30
This study was a randomized trial that tested the effectiveness of home visitation by nurses as a means of enhancing the health and well-being of socially disadvantaged women and their first-born children. Low-income, pregnant women bearing first babies were randomly assigned to four treatment groups: (1) subjects that received free transportation to prenatal care, (2) subjects that received transportation to prenatal care and developmental screening for the children, (3) subjects that received transportation to prenatal care and developmental screening, plus prenatal home visits by nurses, and (4) subjects that received transportation to prenatal care, developmental screening, prenatal home visits, and postnatal home visits by nurses. Assessments of the women covered health-related behaviors, mother's care-giving environment, child's health and development, levels of social support, mother's psychological resources, personal life-course development, and costs of health care. Variables measuring health-related behaviors included the use of cigarettes and illegal drugs and the presence of sexually-transmitted diseases. The mother's care-giving environment and the child's health and development were evaluated by the Bavolek adult-adolescent parenting interview score, the Caldwell home observation scale, the Bayley mental development index, the Achenbach child behavioral problems inventory, and other indices. Levels of social support were evaluated by the amount of support expected to be received from a boyfriend or husband and the mother's mother. Assessments of maternal psychological resources included the Pearlin mastery scale, the Shipley IQ score, and the Bandura self-efficacy score. Personal life-course development was assessed by the respondents' educational and occupational achievements, and the numbers of subsequent pregnancies and children. Variables measuring the effect of the program on the cost of health care include number of hospital emergency room visits, number of hospitalizations, total length of stay, number of well-child and ill-child doctor visits, and use of community social services. Other variables provide information on age at birth, pre-pregnancy weight, birth weight and gender, race, employment status, income, housing density, and education.
Curated

Mother and Infant Home Visiting Program Evaluation-Strong Start (MIHOPE-Strong Start), United States, 2012-2017 (ICPSR 37847)

Released/updated on: 2021-12-07
Geographic coverage: North Carolina, Indiana, Tennessee, California, Kansas, New York (state), New Jersey, Washington, South Carolina, Michigan, Pennsylvania, Iowa, Illinois, Massachusetts, Georgia, Wisconsin, Nevada
Time period: 2011-01-01--2017-05-01

Mother and Infant Home Visiting Program Evaluation-Strong Start (MIHOPE-Strong Start) was a large-scale evaluation that rigorously tested the effectiveness of evidence-based home visiting in improving birth and health outcomes during pregnancy and in the year after birth. Local programs included in the study's analysis implemented one of two evidence-based models: Healthy Families America (HFA) or Nurse-Family Partnership (NFP). These models were chosen because earlier evaluations found some evidence of their having positive impacts on birth outcomes.

The Office of Planning, Research, and Evaluation (OPRE) of the Administration for Children and Families (ACF) partnered with the Center for Medicare and Medicaid Innovation (CMMI) of the Centers for Medicare and Medicaid Services (CMS) and the Maternal and Child Health Bureau (MCHB) of the Health Resources and Services Administration (HRSA) to sponsor the study. MIHOPE-Strong Start was part of the CMMI's Strong Start for Mothers and Newborns Initiative, which evaluated whether enhanced, nonmedical prenatal interventions, when provided in addition to routine medical care, have the potential to improve birth outcomes and reduce health care costs for women enrolled in Medicaid or the Children's Health Insurance Program (CHIP). Under contract with OPRE, MDRC conducted MIHOPE-Strong Start in collaboration with James Bell Associates, Johns Hopkins University, Mathematica, and New York University.

The analysis for MIHOPE-Strong Start included 2,899 women and 66 local programs (37 HFA and 29 NFP programs) operating across 17 states: California, Georgia, Illinois, Indiana, Iowa, Kansas, Massachusetts, Michigan, Nevada, New Jersey, New York, North Carolina, Pennsylvania, South Carolina, Tennessee, Washington, and Wisconsin. Women were eligible for MIHOPE-Strong Start if they were pregnant and at least 8 weeks from their due date.

The MIHOPE-Strong Start analysis included a subset of families and local programs that were recruited for MIHOPE, the national evaluation of the Maternal, Infant, and Early Childhood Home Visiting (MIECHV) program. Specifically, the MIHOPE-Strong Start impact analysis included information on 46 local home visiting programs and 1,845 families that were initially recruited for MIHOPE but met the MIHOPE-Strong Start eligibility criteria. An important distinction between MIHOPE-Strong Start and MIHOPE is that MIHOPE included only programs receiving MIECHV funding, while MIHOPE-Strong Start included both MIECHV and non-MIECHV-funded programs.

In both studies, families were randomly assigned either to an evidence-based home visiting program or to a control group who was given information on other services available in the community. The random assignment design was intended to create program and control groups that were similar when women entered the study, so that systematic differences in the outcomes of interest observed between the two groups can be attributed to the home visiting services rather than to the preexisting characteristics of the women.

Curated

Natality Detail File, 2006 [United States] (ICPSR 24941)

Released/updated on: 2009-08-19
Geographic coverage: North Carolina, Indiana, Wyoming, Northern Mariana Islands, Utah, Guam, Virgin Islands of the United States, Arizona, Montana, Kentucky, California, Kansas, Florida, Delaware, Pennsylvania, Mississippi, Iowa, Illinois, Texas, Connecticut, Georgia, Virginia, Maryland, Idaho, Oregon, Vermont, Puerto Rico, United States, Oklahoma, Tennessee, Maine, American Samoa, Alabama, Arkansas, Washington, South Carolina, Nebraska, West Virginia, Massachusetts, Colorado, Missouri, Alaska, North Dakota, Wisconsin, Nevada, Rhode Island, Hawaii, Minnesota, New York (state), New Jersey, Michigan, New Mexico, New Hampshire, Louisiana, Ohio
This collection provides information on live births in the United States during calendar year 2006. The natality data in these files are a component of the vital statistics collection effort maintained by the federal government. Birth data is limited to births occurring in the United States to United States residents and nonresidents. Births occurring to United States citizens outside of the United States are not included in this data collection. Part 1 contains data on births occurring within the United States, while Part 2 contains data on births occurring in the United States territories of Puerto Rico, the Virgin Islands, Guam, American Samoa, and the Commonwealth of the Northern Mariana Islands. Beginning in 2005, the United States file no longer includes geographic detail (e.g., mother's state of residence). Geographic variables for the United States Territories file include the territory and county in which the birth occurred and in which the mother resided. Other variables describe the place of delivery, who was in attendance, and medical and health data such as the method of delivery, prenatal care, tobacco and alcohol use during pregnancy, pregnancy history, medical risk factors, and infant health characteristics. Birth and fertility rates and other statistics related to this study can be found in the National Vital Statistics Report in the codebook documentation. Demographic variables include the child's sex and month and year of birth, the parent's age, race, and ethnicity, as well as the mother's marital status, education level, and residency status.
Curated

Natality Local Area Summary Data, 1980: [United States] (ICPSR 9409)

Released/updated on: 2008-10-06
Geographic coverage: United States
This collection contains information on live births in the United States during calendar year 1980. The natality data in this file are a component of the vital statistics collection effort maintained by the federal government. Geographic variables of residence for births include the state, county, city, population, division and state subcode, Standard Metropolitan Statistical Area (SMSA), and metropolitan-nonmetropolitan county. Other variables include the race and sex of the child, the age of the mother, mother's education, place of delivery, person in attendance, and live birth order. The summary variables in the file include total number of births occurring in the country, the ratio of births to married women, the ratio of births to unmarried women, number of live births by birth weight, total number of births to United States residents, births by attendant, and place of delivery.
Curated

National Maternal and Infant Health Survey, 1988 (ICPSR 9730)

Released/updated on: 2008-08-19
Geographic coverage: United States
This survey was designed to explore factors that cause negative pregnancy outcomes. Questions were asked of pregnant women concerning prenatal care, weight gain or loss during pregnancy, alcohol, cigarette, or drug use during pregnancy, and whether vitamin or mineral supplements were taken before or during pregnancy. In addition, questions were asked about the use of home pregnancy tests, exercise before and during pregnancy, medical care before, during, and after delivery, previous pregnancies and their outcomes, birth control use, and how the mother felt and behaved. Demographic information about the mother such as marital status, marital history, date of birth, state of birth, mother's weight at birth, weight changes before, during, and after pregnancy, height, race, education, work history, and place of residence was obtained. Information about the father includes items such as age, height, weight, education, and job status. In addition, family income questions were asked, as were questions about the health, care, and feeding of the baby. Information was also taken from birth certificates and fetal and infant death certificates.
Curated

National Pregnancy and Health Survey: Drug Use Among Women Delivering Live Births, 1992 (ICPSR 2835)

Released/updated on: 2008-07-31
Geographic coverage: United States
Time period: 1992-01-01--1993-01-01
The primary objective of the National Pregnancy and Health Survey (NPHS) was to produce national annual estimates of the percentages and numbers of mothers of live newborns in the United States who used selected licit and illicit drugs in the 12 months prior to delivery. A further objective was to describe patterns of prenatal substance use among demographic subgroups of women. Information on demographic and socioeconomic characteristics, obstetric history, and drug treatment of women who delivered infants at sampled hospitals was obtained through an interviewer-administered questionnaire, while data on substance use before and during pregnancy were collected through a questionnaire completed by the respondent and concealed from the interviewer. Respondents were asked about use of the following substances: alcohol, amphetamines, analgesics, cocaine, crack cocaine, barbiturates, hallucinogens, hashish, heroin, marijuana, methadone, methamphetamine, sedatives, stimulants, tobacco, and tranquilizers. Additionally, information was collected on the respondent's pregnancy, prenatal care, delivery, previous pregnancies, and background. Additional data were obtained from the mothers' and infants' medical records. Urine specimens collected routinely by the hospital on obstetric admissions were tested for selected drugs. Finally, in a subsample of six hospitals, hair specimens were requested from respondents to evaluate the potential of hair as a source of toxicological data in future studies.
Curated

National Survey of Family Growth, Cycle I, 1973 (ICPSR 7898)

Released/updated on: 2008-10-08
Geographic coverage: United States
This data collection contains information on maternal and child health, family practices, and attitudes of 9,797 women aged 15-44 living in the coterminous United States who were either currently married, previously married, or never married but had offspring living in the household in 1973. The data have been utilized by the National Center for Health Statistics as the basis for a series of reports on the determinants and consequences of patterns of family formation and fertility in the United States in 1973. Extensive information was gathered from respondents about their pregnancies. They were asked about their family planning practices and consultations, prenatal and postnatal care, medical conditions, number of pregnancies and live births, problems experienced in conceiving, complicated pregnancies, sterilization, and medical checkup history. Data are also provided on respondents' desired number of children, birth expectations, and family size preferences. Other demographic variables provide information on respondents' family history, date of birth, race, ethnicity, religion, education, occupation, employment, and income.
Curated

National Survey of Family Growth, Cycle II, 1976: Couple File (ICPSR 7902)

Released/updated on: 2008-11-26
Geographic coverage: United States
This data collection contains information on fertility, family planning, and related aspects of maternal and child health for 8,611 women aged 15-44 living in the coterminous United States who were either currently married, previously married, or never married but had offspring living in the household in 1976. The data have been utilized by the National Center for Health Statistics as the basis for a series of reports on the determinants and consequences of patterns of family formation and fertility in the United States. This release of Cycle II of the 1976 Survey of Family Growth data contains extensive information on respondents' methods of family planning, prenatal and postnatal health care, family size preferences, and child care usage. Other demographic variables provide information on respondent's family, marital, and employment histories, date of birth, race, ethnicity, religion, education, occupation, and income. Additional information about the respondents can be found in the related collection, NATIONAL SURVEY OF FAMILY GROWTH, CYCLE II, 1976: INTERVAL FILE (ICPSR 8181).
Curated

National Survey of Family Growth, Cycle IV, 1988 (ICPSR 9473)

Released/updated on: 2009-08-26
Geographic coverage: United States
Time period: 1988-01-01--1988-08-01
The National Survey of Family Growth (NSFG) Cycle IV interviews covered respondents' pregnancy histories, past and current use of contraception, ability to bear children, use of medical services for family planning, infertility, and prenatal care, marital histories, and associated cohabiting unions. Data on occupation and labor force participation and on a wide range of social, economic, and demographic characteristics are also presented. Cycle IV added questions about AIDS and cohabitation and asked detailed questions on adoption and sexually transmitted diseases.
Curated
Partially restricted

Pathways to Adulthood: A Three-Generation Urban Study, 1960-1994: [Baltimore, Maryland] (ICPSR 2420)

Released/updated on: 2019-11-26
Geographic coverage: Baltimore, United States, Maryland
Time period: 1960-01-01--1994-01-01
This collection incorporates both prospective and retrospective data on three generations of families initially living in inner-city Baltimore, Maryland. The prospective data were selected from data collected as part of the Johns Hopkins Collaborative Perinatal Study (JHCPS), a survey of pregnant women seeking prenatal care and delivery at Johns Hopkins Hospital during 1960-1964. JHCPS studied these women (the first-generation mothers, abbreviated as G1) and the children born to them during 1960-1965 (the second-generation children, abbreviated as G2) until the children were 8 years old. The retrospective data come from a follow-up study, conducted in 1992-1994, of G1, G2, and the children born to G2 (the third-generation children, abbreviated as G3). Data from JHCPS on G1 include obstetrical and reproductive history at registration for prenatal care, sociological/family history variables at or around delivery of G2, observations of mother with child when G2 was 4 months old and 8 months old, and family history, demographic, and sociological variables when G2 was age 7. For G2, the data from JHCPS include delivery room observations at birth, pediatric examination data at age 4 months, developmental evaluation data at age 8 months, pediatric-neurological examination data at age 12 months, language, hearing, and speech evaluation summary data at age 36 months, psychological, behavior profile, physical growth, and other tests at age 48 months, psychological, motor, behavior, neurological, vision, physical, and other tests at age 7-1/2 years, and language, hearing, and speech evaluations, physical growth, interval medical history, and other tests at age 8 years. Retrospective data from the follow-up study on G1 include variables on education, employment, family composition, health and health care usage, housing conditions, income and income sources, marital status, partnerships and changes, neighborhood characteristics at registration to JHCPS and current, and reproductive history. For G2, data from the follow-up include information on aspirations, education, schooling, employment, family composition, health and health care usage, housing conditions, income and income sources, legal problems, living arrangements, marriage, partnership and changes, neighborhood characteristics at birth, at ages 11/12 and 16/17, and current, reproductive history, social relationships, smoking, and substance abuse. Data for the assessed third-generation children, i.e., G3s who were 7-8 years old during the follow-up period, include information on cognitive development, academic achievement and behavior, prenatal care, health, day care, and parental aspirations.
Curated

Project on Human Development in Chicago Neighborhoods (PHDCN): Addendum (Primary Caregiver), Wave 3, 2000-2002 (ICPSR 13670)

Released/updated on: 2007-03-02
Geographic coverage: United States, Chicago, Illinois
Time period: 2000-01-01--2002-01-01
The Project on Human Development in Chicago Neighborhoods (PHDCN) was a large-scale, interdisciplinary study of how families, schools, and neighborhoods affect child and adolescent development. One component of the PHDCN was the Longitudinal Cohort Study, which was a series of coordinated longitudinal studies that followed over 6,000 randomly selected children, adolescents, and young adults, and their primary caregivers over time to examine the changing circumstances of their lives, as well as the personal characteristics, that might lead them toward or away from a variety of antisocial behaviors. Numerous measures were administered to respondents to gauge various aspects of human development, including individual differences, as well as family, peer, and school influences. For primary caregivers included in Wave 3 but not in Wave 2, an addendum interview was administered consisting of measures or portions of measures from the Wave 2 interview. This included questions from PROJECT ON HUMAN DEVELOPMENT IN CHICAGO NEIGHBORHOODS (PHDCN): DEMOGRAPHIC FILE, WAVE 2, 1997-2000 (ICPSR 13609), PROJECT ON HUMAN DEVELOPMENT IN CHICAGO NEIGHBORHOODS (PHDCN): MY CHILD'S EXPOSURE TO VIOLENCE, WAVE 2, 1997-2000 (ICPSR 13619), PROJECT ON HUMAN DEVELOPMENT IN CHICAGO NEIGHBORHOODS (PHDCN): FAMILY SUICIDE INTERVIEW, WAVE 2, 1997-2000 (ICPSR 13623), PROJECT ON HUMAN DEVELOPMENT IN CHICAGO NEIGHBORHOODS (PHDCN): HOUSEHOLD COMPOSITION, WAVE 2, 1997-2000 (ICPSR 13628), PROJECT ON HUMAN DEVELOPMENT IN CHICAGO NEIGHBORHOODS (PHDCN): HEALTH SCREEN, WAVE 2, 1997-2000 (ICPSR 13629), and PROJECT ON HUMAN DEVELOPMENT IN CHICAGO NEIGHBORHOODS (PHDCN): PRENATAL AND EARLY HEALTH, WAVE 2, 1997-2000 (ICPSR 13644). It was administered to primary caregivers in Cohorts 0, 3, 6, 9, and 12.
Curated

Project on Human Development in Chicago Neighborhoods (PHDCN): Children and First Pregnancy, Wave 3, 2000-2002 (ICPSR 13683)

Released/updated on: 2007-02-06
Geographic coverage: United States, Chicago, Illinois
Time period: 2000-01-01--2002-01-01
The Project on Human Development in Chicago Neighborhoods (PHDCN) was a large-scale, interdisciplinary study of how families, schools, and neighborhoods affect child and adolescent development. One component of the PHDCN was the Longitudinal Cohort Study, which was a series of coordinated longitudinal studies that followed over 6,000 randomly selected children, adolescents, and young adults, and their primary caregivers over time to examine the changing circumstances of their lives, as well as the personal characteristics, that might lead them toward or away from a variety of antisocial behaviors. Numerous measures were administered to respondents to gauge various aspects of human development, including individual differences, as well as family, peer, and school influences. One such measure was the Children and First Pregnancy instrument. It was administered to subjects in Cohorts 15 and 18 and collected information related to the number of children the subject had, as well as information regarding the subject's first pregnancy.
Curated

Project on Human Development in Chicago Neighborhoods (PHDCN): Infant Assessment Unit, Wave 1, 1995-1997 (ICPSR 13579)

Released/updated on: 2006-02-17
Geographic coverage: United States, Chicago, Illinois
Time period: 1994-01-01--1997-01-01
The Project on Human Development in Chicago Neighborhoods (PHDCN) was a large-scale, interdisciplinary study of how families, schools, and neighborhoods affect child and adolescent development. One component of the PHDCN was the Longitudinal Cohort Study, which was a series of coordinated longitudinal studies that followed over 6,000 randomly selected children, adolescents, and young adults, and their primary caregivers over time to examine the changing circumstances of their lives, as well as the personal characteristics, that might lead them toward or away from a variety of antisocial behaviors. Numerous measures were administered to respondents to gauge various aspects of human development, including individual differences, as well as family, peer, and school influences. Part of the Longitudinal Cohort Study was the Infant Assessment Unit (IAU). The objective of the IAU was to observe how prenatal and postnatal conditions affect the health and cognitive functioning of infants during the first year of life. Consisting of several instruments, the IAU sought to measure infant cognition and quantify the experiences of the sampled infants from Cohort 0 during their first 12 months of life. Additionally, the IAU examined the circumstances surrounding the mother's pregnancy and the subsequent care received by the infant.
Curated

Project on Human Development in Chicago Neighborhoods (PHDCN): Prenatal and Early Health, Wave 2, 1997-2000 (ICPSR 13644)

Released/updated on: 2006-05-17
Geographic coverage: United States, Chicago, Illinois
Time period: 1997-01-01--2000-01-01
The Project on Human Development in Chicago Neighborhoods (PHDCN) was a large-scale, interdisciplinary study of how families, schools, and neighborhoods affect child and adolescent development. One component of the PHDCN was the Longitudinal Cohort Study, which was a series of coordinated longitudinal studies that followed over 6,000 randomly selected children, adolescents, and young adults, and their primary caregivers over time to examine the changing circumstances of their lives, as well as the personal characteristics, that might lead them toward or away from a variety of antisocial behaviors. Numerous measures were administered to respondents to gauge various aspects of human development, including individual differences, as well as family, peer, and school influences. One such measure was the Prenatal and Early Health interview. This was adapted from the National Maternal and Infant Health Survey which was developed by the National Institutes of Health (NATIONAL MATERNAL AND INFANT HEALTH SURVEY, 1988 [ICPSR 9730]). It included questions regarding the mother's pregnancy and delivery of the subject, as well as questions regarding the subject's early health. It was administered to the subject's primary caregiver for Cohort 0.
Curated

Project on Human Development in Chicago Neighborhoods (PHDCN): Prenatal Health Screen, Wave 1, 1994-1997 (ICPSR 13596)

Released/updated on: 2007-09-27
Geographic coverage: United States, Chicago, Illinois
Time period: 1994-01-01--1997-01-01
The Project on Human Development in Chicago Neighborhoods (PHDCN) was a large-scale, interdisciplinary study of how families, schools, and neighborhoods affect child and adolescent development. One component of the PHDCN was the Longitudinal Cohort Study, which was a series of coordinated longitudinal studies that followed over 6,000 randomly selected children, adolescents, and young adults, and their primary caregivers over time to examine the changing circumstances of their lives, as well as the personal characteristics, that might lead them toward or away from a variety of antisocial behaviors. Numerous measures were administered to respondents to gauge various aspects of human development, including individual differences, as well as family, peer, and school influences. One such measure was the Prenatal Health Screen, administered only to pregnant women or mothers of infants under 12 months of age. It was designed to obtain information on the conception and due date of their unborn/newborn infants.
Curated
Simple Crosstabs

Puerto Rican Maternal and Infant Health Study (PRMIHS), 1994-1995 (ICPSR 36238)

Released/updated on: 2015-11-16
Geographic coverage: New York City, Puerto Rico, United States, Massachusetts, Connecticut, Florida, New Jersey, Pennsylvania
Time period: 1994-07-01--1995-12-31
The Puerto Rican Maternal and Infant Health Study (PRMIHS) is a cross-sectional study designed to provide information on the determinants of poor infant health among Puerto Ricans. The dataset features personal interview data from 2,763 mothers of Puerto Rican infants sampled from the 1994 and 1995 birth and infant death records of six United States vital statistics reporting areas (Connecticut, Florida, Massachusetts, New Jersey, New York City, Pennsylvania) and the Commonwealth of Puerto Rico. Mothers were contacted to participate in a Computer Assisted Personal Interview (CAPI) using the address information provided in the birth and infant death records. Respondent mothers were asked to recount their sexual history and use of contraception, age at conception, prenatal care and nutrition, substance abuse, and overall health before and during pregnancy. Details were also collected regarding migration history, family composition, partner involvement, social support structures, and receipt of any public financial assistance for food, housing, and/or medical care. Information regarding infant health and well-being was also gathered, and included respondents' reporting of recurrent health issues, required medical treatments, immunizations, and any accidents or sustained injuries. Mothers were also asked to confirm attainment of a number of infant developmental milestones, including sitting, crawling, standing, waving, and vocalization, as well as several other behaviors and abilities. Demographic information for mothers includes age, education, occupation, income, marital status, race and ethnic identity, language, and religious preference.
Curated

Survey and Assessment of Vietnamese Youth (SAVY), 2003 (ICPSR 24387)

Released/updated on: 2009-01-13
Geographic coverage: Vietnam (Socialist Republic)
Time period: 2003-10-01--2004-01-01
The Survey and Assessment of Vietnamese Youth (SAVY) is the first national survey on adolescents and youth to evaluate health status and other important development issues of the group of married and unmarried young people aged 14-25 from ethnic, rural, and urban areas of 42 provinces across Vietnam. The study provides detailed analysis and disaggregation of data for comparison purposes of specific groups including young men and women, rural and urban youth, married and unmarried young people, and young people of differing education levels. The survey was designed to assess education, employment, health and reproductive behavior and other development issues of adolescent and young people including HIV/AIDS, substance use, injuries, and violence. SAVY also explored young people's perceptions and attitudes as well as their future expectations.
Curated
Simple Crosstabs

Survey of HIV Status and Fertility Preferences in Sub-Saharan Africa, 2009-2010 (ICPSR 36718)

Released/updated on: 2017-04-10
Geographic coverage: Southern Province, Africa, Zambia, Lusaka, Northern Province, Sub-Saharan Africa
Time period: 2009-01-01--2010-01-01
The Survey of HIV Status and Fertility Preference in Sub-Saharan Africa 2009-2010 is one of eight community-based surveys conducted in Zambia and Nigeria exploring how HIV status relates to attitudinal and behavioral measures regarding HIV services and fertility preferences. Information was collected from 1,441 Zambian women aged 18-49 on topics such as fertility preferences, HIV status, pregnancy intention, current and previous pregnancies, attitudes toward and use of family planning, current and past sexual activity, past abortions, attitudes toward and knowledge about HIV, and attitudes toward and use of HIV services. Demographic variables include age, urban/rural location, native language, education, religion, and marital status.
Curated

Tsogolo La Thanzi (TLT): Pregnancy Questionnaire Data, Malawi, 2009-2012 [Healthy Futures] (ICPSR 37127)

Released/updated on: 2018-10-02
Geographic coverage: Balaka, Malawi, Africa
Time period: 2009-01-01--2012-01-01

Tsogolo la Thanzi (TLT) is a longitudinal study in Balaka, Malawi designed to examine how young people navigate reproduction in an AIDS epidemic. Tsogolo la Thanzi means "Healthy Futures" in Chichewa, Malawi's most widely spoken language. New data is being collected to develop better understandings of the reproductive goals and behavior of young adults in Malawi -- the first cohort to never have experienced life without AIDS. To understand these patterns of family formation in a rapidly changing setting, TLT used the following approach: an intensive longitudinal design where respondents are interviewed every fourth months at TLT's centralized research center. Data collection began in May of 2009 and was completed in June of 2012. To assess changes on a longer time-horizon, a follow-up survey referred to as Tsogolo la Thanzi 2 (TLT-2) was fielded between June and August of 2016. Please see ICPSR 36863 for the baseline dataset.

At each wave, women who tested as positive for pregnancy were given a questionnaire asking additional questions about that pregnancy. This dataset includes women from all waves.

Curated
Partially restricted

United States Public Knowledge and Attitudes About Genetic Testing, 2000 (ICPSR 3904)

Released/updated on: 2024-02-14
Geographic coverage: United States
The primary goal of this national survey was to assess knowledge, attitudes, and behavior regarding genetic testing in humans. The survey gauged respondents' knowledge of which genetic defects can be detected by the prenatal testing of a fetus, whether genetic testing can predict heart attacks or detect a tendency to develop depression and certain types of cancer, and whether gene therapy can be used to correct many of the defects discovered through gene testing. Attitudes toward prenatal genetic testing were examined, including preferences for abortion in case of fetal defect, as well as attitudes toward genetic testing of adults, genetic testing in the workplace, and other aspects of genetic testing. Respondents reported whether they or their partner ever had a prenatal genetic test or received counseling for a prenatal test, their reasons for deciding to have or not have a test, and whether anything happened to the pregnancy as result of a test, e.g., abortion. In addition, respondents were asked if they ever had themselves tested for a genetic disease or received counseling for such tests, for which conditions they were tested, whether they tested positive or negative, with whom they shared the test results, and whether they lost a job, lost health or life insurance, or had their insurance premiums increased as a result of being tested. Sources of information for news about science or health, trust in doctors to keep medical information private, and confidence in the people running the government and corporations that make and sell genetic tests constitute some of the other topics covered by the survey. Background variables include sex, age, race, Hispanic origin, employment status, union membership, religious preference, religiosity, disability status and type of disability, health insurance coverage, state and geographic region of residence, income, and education.
Back to top