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Curated

Infant Health and Development Program (IHDP): Enhancing the Outcomes of Low Birth Weight, Premature Infants in the United States, 1985-1988 (ICPSR 9795)

Released/updated on: 2024-02-14

Geographic coverage: United States

Time period: 1985-01-01--1988-01-01

The Infant Health and Development Program was a collaborative, randomized, longitudinal, multisite clinical trial designed to evaluate the efficacy of comprehensive early intervention in reducing the developmental and health problems of low birth weight, premature infants. An intensive intervention extending from hospital discharge to 36 months corrected age was administered between 1985 and 1988 at eight different sites. The study sample of infants was stratified by birth weight (2,000 grams or less, 2,001-2,500 grams) and randomized to the Intervention Group or the Follow-Up Group. The Intervention Group received home visits, attendance at a special child development center, and pediatric follow-up. The Follow-Up Group received only the pediatric follow-up component of the program. Measures of cognitive development, behavioral status, health status, and other variables were collected from both groups at predetermined time points. Cognitive development was assessed by the Stanford-Binet Intelligence Scale, the Bayley Mental and Motor Scales, the Peabody Picture Vocabulary Test--Revised, and the Beery-Buktenica Developmental Test of Visual Motor Integration. Behavior problems were measured using the Richman-Graham Behavior Checklist and Achenbach's Child Behavior Checklist. Health status was evaluated through the dimensions of morbidity (defined as the presence or absence of health conditions), functional status (defined by limitations in activities of daily living due to health problems), changes in physical growth, and maternal perception of the child's health. The many other variables and indices in the data collection include site, pregnancy complications, child's birth weight and gestation age, birth order, child's gender, household composition, day care arrangements, source of health care, quality of the home environment, parents' race and ethnicity, and maternal age, education, IQ, and employment.

Curated

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Mother and Infant Home Visiting Program Evaluation-Strong Start (MIHOPE-Strong Start), United States, 2012-2017 (ICPSR 37847)

Released/updated on: 2021-12-07

Geographic coverage: North Carolina, Indiana, Tennessee, California, Kansas, New York (state), New Jersey, Washington, South Carolina, Michigan, Pennsylvania, Iowa, Illinois, Massachusetts, Georgia, Wisconsin, Nevada

Time period: 2011-01-01--2017-05-01

Mother and Infant Home Visiting Program Evaluation-Strong Start (MIHOPE-Strong Start) was a large-scale evaluation that rigorously tested the effectiveness of evidence-based home visiting in improving birth and health outcomes during pregnancy and in the year after birth. Local programs included in the study's analysis implemented one of two evidence-based models: Healthy Families America (HFA) or Nurse-Family Partnership (NFP). These models were chosen because earlier evaluations found some evidence of their having positive impacts on birth outcomes.

The Office of Planning, Research, and Evaluation (OPRE) of the Administration for Children and Families (ACF) partnered with the Center for Medicare and Medicaid Innovation (CMMI) of the Centers for Medicare and Medicaid Services (CMS) and the Maternal and Child Health Bureau (MCHB) of the Health Resources and Services Administration (HRSA) to sponsor the study. MIHOPE-Strong Start was part of the CMMI's Strong Start for Mothers and Newborns Initiative, which evaluated whether enhanced, nonmedical prenatal interventions, when provided in addition to routine medical care, have the potential to improve birth outcomes and reduce health care costs for women enrolled in Medicaid or the Children's Health Insurance Program (CHIP). Under contract with OPRE, MDRC conducted MIHOPE-Strong Start in collaboration with James Bell Associates, Johns Hopkins University, Mathematica, and New York University.

The analysis for MIHOPE-Strong Start included 2,899 women and 66 local programs (37 HFA and 29 NFP programs) operating across 17 states: California, Georgia, Illinois, Indiana, Iowa, Kansas, Massachusetts, Michigan, Nevada, New Jersey, New York, North Carolina, Pennsylvania, South Carolina, Tennessee, Washington, and Wisconsin. Women were eligible for MIHOPE-Strong Start if they were pregnant and at least 8 weeks from their due date.

The MIHOPE-Strong Start analysis included a subset of families and local programs that were recruited for MIHOPE, the national evaluation of the Maternal, Infant, and Early Childhood Home Visiting (MIECHV) program. Specifically, the MIHOPE-Strong Start impact analysis included information on 46 local home visiting programs and 1,845 families that were initially recruited for MIHOPE but met the MIHOPE-Strong Start eligibility criteria. An important distinction between MIHOPE-Strong Start and MIHOPE is that MIHOPE included only programs receiving MIECHV funding, while MIHOPE-Strong Start included both MIECHV and non-MIECHV-funded programs.

In both studies, families were randomly assigned either to an evidence-based home visiting program or to a control group who was given information on other services available in the community. The random assignment design was intended to create program and control groups that were similar when women entered the study, so that systematic differences in the outcomes of interest observed between the two groups can be attributed to the home visiting services rather than to the preexisting characteristics of the women.

Curated

Mothers, Places, and Preterm Birth (ICPSR 35959)

Released/updated on: 2015-06-12

Geographic coverage: Sweden

This study uses cross-sectional data on adverse birth outcomes and social factors among Swedish mothers from 1973-2005 to create two new databases: WomMed and WomSALLS. These databases link annual census, mortality, hospital, and individual survey data. WomMed contains annual data from prenatal and birth records, hospital admissions, and death records for each mother and child in Sweden, in addition to individual-level sociodemographic characteristics and maternal risk factors. WomSALLS includes data on health behaviors and risk factors, stress and adaptation, social cohesion, and psychological distress based on face-to-face interviews with representative samples of approximately 18,000 mothers aged 15-45, and born between 1928 and 1990.

Curated

Parental Trust and Racial Disparities in the Care of Discharged Premature Infants (ICPSR 35940)

Released/updated on: 2015-06-03

Geographic coverage: United States, Philadelphia

This project examines a large cohort of discharged premature infants receiving care at one of 32 outpatient pediatric sites affiliated with The Children's Hospital of Philadelphia. Families are surveyed three times during the first two years after discharge from the neonatal intensive care unit to determine the relative contribution of parental trust, communication styles, and expectations from the health care system on racial differences in care.