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Curated

Advanced Cognitive Training for Independent and Vital Elderly (ACTIVE), United States, 1999-2001 (ICPSR 4248)

Released/updated on: 2010-06-30

Geographic coverage: Indiana, United States, Massachusetts, Alabama, Florida, Maryland, Michigan

Time period: 1999-01-01--2001-01-01

The data producers have recompiled the ACTIVE data into a new study which is available as of December 2023, ICPSR 38821; data users should plan to use study 38821 instead.

ACTIVE (Advanced Cognitive Training for Independent and Vital Elderly), 1999-2001 [United States] was a multisite randomized controlled trial conducted at six field sites with New England Research Institutes (NERI) as the coordinating center. The field sites included the University of Alabama at Birmingham, Hebrew Rehabilitation Center for the Aged in Boston, Indiana University, Johns Hopkins University in Baltimore, Pennsylvania State University, and the University of Florida/Wayne State University (Detroit). The primary aim of the trial was to test the effects of three distinct cognitive interventions -- previously found to be successful in improving elders' performance on basic measures of cognition under laboratory or small-scale field conditions -- on measures of cognitively demanding daily activities. Trainings consisted of an initial series of ten group sessions followed by four-session booster trainings at one and three years. The three cognitive interventions focused on memory, executive reasoning, and speed of processing. The design included a no-contact control group. Participants were assessed at baseline, immediately after training, and annually thereafter. A total of 2,832 older adults were enrolled in the trial, and 2,802 were included in the analytical sample. Twenty-six percent of the participants were African American.

Curated

Alameda County [California] Health and Ways of Living Study, 1994 and 1995 Panels (ICPSR 3083)

Released/updated on: 2006-03-06

Geographic coverage: United States, California

This collection provides a 30-year follow-up with respondents from Alameda County who were originally interviewed in 1965 for the first wave of the Health and Ways of Living Study. The purpose of the survey was to explore the influences of health practices and social relationships on the physical and mental health of a typical sample of the population. The first wave of the study, HEALTH AND WAYS OF LIVING STUDY, 1965 PANEL: [ALAMEDA COUNTY, CALIFORNIA] (ICPSR 6688), collected information for 6,928 respondents (including approximately 500 women aged 65 years and older) on chronic health conditions, health behaviors, social involvements, and psychological characteristics. The second wave, the 1974 panel (ALAMEDA COUNTY [CALIFORNIA] HEALTH AND WAYS OF LIVING STUDY, 1974 PANEL [ICPSR 6838]), collected information from 4,864 of the original respondents. The third and fourth waves (1994 and 1995 panels, respectively), provided in this collection, explore some new topics. The third wave provides a follow-up of 2,729 original 1965 and 1974 respondents and examines health behaviors such as alcohol consumption and smoking habits, along with social activities. Also included is information on health conditions such as diabetes, osteoporosis, hormone replacement, and mental illness. Another central topic investigated is activities of daily living (including self-care such as dressing, eating, and shopping), along with use of free time and level of involvement in social, recreational, religious, and environmental groups. The fourth wave is a follow-up to the 1994 panel, and contains 2,569 cases. This wave examines changes in functional abilities such as self-care activities, employment, involvement in community activities, visiting friends/family, and use of free time since 1994.

Curated

Alameda County [California] Health and Ways of Living Study, 1999 Panel (ICPSR 4432)

Released/updated on: 2006-11-16

Geographic coverage: United States, California

This fifth wave of data, collected in 1999, provides follow-up with 2,123 respondents from Alameda County who were originally interviewed in 1965 for the first wave of the Health and Ways of Living Study. The purpose of the survey was to explore the influences of health practices and social relationships on the physical and mental health of a typical sample of the population. Part 2 of this collection contains mortality data including cause and year of death. The first wave of the study, HEALTH AND WAYS OF LIVING STUDY, 1965 PANEL: [ALAMEDA COUNTY, CALIFORNIA] (ICPSR 6688), collected information for 6,928 respondents (including 360 men and 530 women aged 65 years and older) on chronic health conditions, health behaviors, social involvements, and psychological characteristics. The second wave, the 1974 panel, ALAMEDA COUNTY [CALIFORNIA] HEALTH AND WAYS OF LIVING STUDY, 1974 PANEL (ICPSR 6838), collected information from 4,864 of the original respondents. The third and fourth waves, ALAMEDA COUNTY [CALIFORNIA] HEALTH AND WAYS OF LIVING STUDY, 1994 and 1995 PANELS (ICPSR 3083), provided a follow-up of 2,729 original 1965 and 1974 respondents. The fourth wave is a follow-up to the 1994 panel and contains 2,569 cases.

Curated

National Health Interview Survey, 1994: Second Longitudinal Study on Aging, Wave 2, 1997 (ICPSR 3526)

Released/updated on: 2007-03-01

Geographic coverage: United States

The Second Longitudinal Study of Aging (LSOA II) is a collaborative effort of the National Center for Health Statistics (NCHS) and the National Institute on Aging (NIA). The NATIONAL HEALTH INTERVIEW SURVEY, 1994: SECOND SUPPLEMENT ON AGING (ICPSR 2563), serves as the baseline for this study. LSOA II Wave 2 interviews were conducted with a total of 7,998 respondents who were interviewed at baseline and consists of 7,060 survivor interviews and 998 decedent interviews. LSOA II Wave 2 is comprised of two data files, the Survivor Data (Part 1) and the Decedent Data (Part 2). The Survivor Data contains one record for each sample person (N = 9,447) interviewed at baseline and includes information drawn from several additional sources, including NATIONAL HEALTH INTERVIEW SURVEY, 1994 (ICPSR 6724) core questionnaire, NATIONAL HEALTH INTERVIEW SURVEY, 1994: FAMILY RESOURCES INCOME AND ASSETS SUPPLEMENT (ICPSR 2656), and NATIONAL HEALTH INTERVIEW SURVEY ON DISABILITY, 1994: PHASE I, DISABILITY OUTCOME SUPPLEMENT (ICPSR 2539). Wave 2 questions examined migration, convalescent home utilization, persistent symptomatic conditions such as pain in legs, swelling in feet, etc., nutrition, influenza immunization, mammogram, prostate, and cholesterol screenings, routine use of vitamins and aspirin, and detailed questions on home health care utilization. In addition a random one-quarter sample of the follow-up respondents were chosen to complete the Childhood Health and Family Longevity Module. This section is similar to that administered during the 1996 Health and Retirement Survey (HRS). Variable SF3462 indicates whether the sample person answered the childhood module. For the Decedent Data (Part 2) information was gathered from a family member or close relative regarding sample persons (N = 938) who were deceased at the time of Wave 2 interviews. Questions focused on housing, long-term care, assistance with key activities, chronic conditions, cognitive functioning, and health care use and health insurance.

Curated

National Health Interview Survey, 1994: Second Supplement on Aging (ICPSR 2563)

Released/updated on: 2007-02-12

Geographic coverage: United States

The National Health Interview Survey, 1994: Second Supplement on Aging (SOA II), conducted approximately 10 years after the original SOA (see NATIONAL HEALTH INTERVIEW SURVEY, 1984 [ICPSR 8659], Parts 6 and 7), had four specific aims. The first was to provide a replication of the first SOA to determine whether changes had occurred in the level of disability among older persons between 1984 and the mid-1990s. The second aim was to elicit information on the causes and correlates of changes in health and functioning in older Americans, including background demographic characteristics, health behaviors, and attitudes, pre-existing illness, and social and environmental support. The third was to describe the sequence and consequences of health events, including utilization of health care and services for assisted community living, on the physiological consequences of disability such as pain and fatigue, on social consequences such as changes in social activities, living arrangements, social support, and use of community services, and on the deployment of assisted living strategies and accessibility of technological and environmental adaptations. The final aim was to serve as the baseline for another national longitudinal study focusing on older Americans, the SECOND LONGITUDINAL STUDY OF AGING (LSOA II) (for the first LSOA see NATIONAL HEALTH INTERVIEW SURVEY: LONGITUDINAL STUDY OF AGING, 70 YEARS AND OVER, 1984-1990 [ICPSR 8719]).

Curated

National Health Interview Survey: Longitudinal Study of Aging, 70 Years and Over, 1984-1990 (ICPSR 8719)

Released/updated on: 2011-08-18

Geographic coverage: United States

Time period: 1984-01-01--1990-01-01

This study, commonly known as the Longitudinal Study of Aging (LSOA), was conducted by the National Center for Health Statistics (NCHS) in collaboration with the National Institute on Aging (NIA) and designed to (1) provide mortality rates by demographic, social, economic, and health characteristics that are not available from the vital statistics system, (2) measure change in the functional status and living arrangements of older people, and (3) provide measures of health care use. It was also designed to describe the continuum from functionally independent living in the community through dependence, possible institutionalization, and finally death. The LSOA is an extension of the National Health Interview Survey (NHIS) of 1984, following its sample of 16,148 noninstitutionalized elderly people (55 years and over) living in the United States, with a special focus on those who were 70 years and over in 1984. This release of the LSOA contains data on those respondents who had been 70 years and older at the time of their 1984 interviews. The data include 1986, 1988, and 1990 reinterviews, National Death Index matches from 1984-1989, and 1987 interviews with contact persons named by decedents, as well as selected variables from the 1984 NHIS core questionnaire and its two supplements, Health Insurance and the Supplement on Aging (SOA). Two Medicare files are also included: Part 2, Medicare Hospital Records, and Part 3, Other Medicare Use Records (which covers home health care, hospice, and outpatient use). Links also are provided to allow merging of additional variables from the NATIONAL HEALTH INTERVIEW SURVEY, 1984 (ICPSR 8659).

Curated

National Survey of Self-Care and Aging: Baseline, 1990-1991 (ICPSR 6718)

Released/updated on: 2006-06-22

Geographic coverage: United States

Time period: 1990-09-16--1991-01-25

The National Survey of Self-Care and Aging (NSSCA) was conducted during 1990 and 1991 to create a baseline database on the prevalence of self-care behaviors by noninstitutionalized older adults. Personal interviews were conducted with 3,485 individuals 65 years of age and older. Oversampling of the oldest old was employed to assure representation of those who were frail or difficult to reach. A proxy was substituted if the subject was hospitalized, too ill, or cognitively not able to respond. Questions were asked about the type and extent of self-care behaviors for activities of daily living, management of chronic conditions (through self-care activities, equipment use, and environmental modifications), medical self-care for acute conditions, and health promotion/disease preventions. Social support, health service utilization, and socio-demographic/economic variables were also included. A follow-up study was conducted in 1994 (see NATIONAL SURVEY OF SELF-CARE AND AGING: FOLLOW-UP, 1994 [ICPSR 2592]).

Curated

Restricted

Stakeholder Views on Intellectual Disability Research Ethics, New York, 2013 (ICPSR 38311)

Released/updated on: 2022-03-30

Geographic coverage: United States, Syracuse, New York (state)

Time period: 2013-07-01--2013-11-24

Adults with intellectual disabilities (ID) face significant physical and mental health disparities. Ethical challenges may discourage their inclusion in research and hinder scientific advancements to reduce these health disparities. Five core groups are adults with ID, individuals who provide informal support to adults with ID, individuals who provide services to adults with ID, ID researchers, and Institutional Review Board (IRB) members. Little is known about these stakeholders' opinions on how to ethically include adults with ID in research. Increasing this knowledge base, especially by inviting input from groups whose opinions are rarely examined, is critical to helping the scientific community devise and deploy sensitive and responsive practices and encouraging research to reduce pressing disparities.

The research's long-term goal is to encourage science that is sensitive to the ethical and social dimensions of research with adults with ID and more inclusive of this population. The research's aim was to qualitatively study the views of adults with ID, persons who provide informal support to adults with ID, and persons who provide services to adults with ID on the participation of adults with ID in self-report research. The focus on self-report research that aims to study the thoughts and experiences of adults with intellectual disability reflects the field's increased emphasis on direct representation in such research and the less clear risks this research may bear.