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Curated

Bicol Community Survey (BCS), 1981: [Philippines] (ICPSR 6888)

Released/updated on: 2006-03-30
Geographic coverage: Philippines, Global
Time period: 1981-01-01--1981-12-31
During 1981, the Bicol Community Survey gathered data from 100 barangays located in the same provinces of the Philippines that were sampled by the BICOL MULTIPURPOSE SURVEY (BMS), 1978: [PHILIPPINES] (ICPSR 6878): Albay, Camarines Sur, and Sorsogon. Barangays are political subdivisions equivalent to villages in rural areas and to neighborhoods in urban areas. Data were gathered at the community level from barangay heads, health care providers (both public and private), traditional birth practitioners (hilots), traditional healers (herbolario), and barangay residents using a questionnaire divided into six different sections, each with its own particular focus. The six sections correspond to the six data files in this collection. Part 1, Infant Food Prices, contains information from one store in each barangay on content, availability, and price information of infant foods. Part 2, Health Services: Availability and Distance, contains one observation for each barangay from either barangay captains, barangay officials, or housewives regarding the time and cost of travel to health providers, both public and private. Part 3, Health Services: Prices and Quality, provides information from 518 heads of health care facilities, private health care professionals, traditional birth practitioners, and traditional healers about travel costs, costs per visit, and costs for prescribed medication. Part 4, Promotional Practices of Infant Food Companies, offers responses from hilots, heads of health facilities, and private professionals about brands of infant formula available, whether free samples and pamphlets were provided, and whether supplies such as pads, pencils, equipment, or posters were donated. Part 5, Environmental Sanitation, provides data from sanitary inspectors on water availability, water conditions, and garbage disposal within the barangay. For Part 6, Health Professionals Survey Data, heads of facilities and private professionals were given a self-administered survey regarding the demographic, educational, and employment characteristics of workers, along with their knowledge of and attitude toward breast-feeding. Interviews conducted with hilots by field workers using the same questionnaire are also included.
Curated

Border Contraceptive Access Study, El Paso, Texas 2005-2008 (ICPSR 32561)

Released/updated on: 2011-11-07
Geographic coverage: El Paso, Ciudad Juarez, United States, Texas, Mexico, Chihuahua
Time period: 2005-01-01--2008-12-31

Oral contraceptive (OC) users living in El Paso, Texas were interviewed to assess motivations for patronizing a United States clinic or a Mexican pharmacy with over-the-counter (OTC) pills and to determine which women were likely to use the OTC option. The experiences of OC users who obtained their contraception from Mexican pharmacies were compared with those of women who obtained their pills from family planning clinics in El Paso, Texas, where eligible low-income women often pay nothing. 532 clinic users and 514 pharmacy users were surveyed about background characteristics, motivations for choosing their oral contraception source, and satisfaction with this source. For more information, please see the Border Contraceptive Access Study website.

Curated

Chinese Household Income Project, 2002 (ICPSR 21741)

Released/updated on: 2009-08-14
Geographic coverage: China (Peoples Republic)
Time period: 2002-01-01--2002-12-31

The purpose of this project was to measure and estimate the distribution of personal income and related economic factors in both rural and urban areas of the People's Republic of China. The principal investigators based their definition of income on cash payments and on a broad range of additional components. Data were collected through a series of questionnaire-based interviews conducted in rural and urban areas at the end of 2002. There are ten separate datasets. The first four datasets were derived from the urban questionnaire. The first contains data about individuals living in urban areas. The second contains data about urban households. The third contains individual-level economic variables copied from the initial urban interview form. The fourth contains household-level economic variables copied from the initial urban interview form. The fifth dataset contains village-level data, which was obtained by interviewing village leaders. The sixth contains data about individuals living in rural areas. The seventh contains data about rural households, as well as most of the data from a social network questionnaire which was presented to rural households. The eighth contains the rest of the data from the social network questionnaire and is specifically about the activities of rural school-age children. The ninth dataset contains data about individuals who have migrated from rural to urban areas, and the tenth dataset contains data about rural-urban migrant households. Dataset 1 contains 151 variables and 20,632 cases (individual urban household members). Dataset 2 contains 88 variables and 6,835 cases (urban households). Dataset 3 contains 44 variables and 27,818 cases, at least 6,835 of which are empty cases used to separate households in the file. The remaining cases from dataset 3 match those in dataset 1. Dataset 4 contains 212 variables and 6,835 cases, which match those in dataset 2. Dataset 5 contains 259 variables and 961 cases (villages). Dataset 6 contains 84 variables and 37,969 cases (individual rural household members). Dataset 7 contains 449 variables and 9,200 cases (rural households). Dataset 8 contains 38 variables and 8,121 cases (individual school-age children). Dataset 9 contains 76 variables and 5,327 cases (individual rural-urban migrant household members). Dataset 10 contains 129 variables and 2,000 cases (rural-urban migrant households).

The Chinese Household Income Project collected data in 1988, 1995, 2002, and 2007. ICPSR holds data from the first three collections, and information about these can be found on the series description page. Data collected in 2007 are available through the China Institute for Income Distribution.

Curated

Community Hospital Program (CHP) Access Impact Evaluation Surveys, 1978-1979, 1981 (ICPSR 8245)

Released/updated on: 2006-01-12
Geographic coverage: United States
Time period: 1978-01-01--1979-12-31, 1981-01-01--1981-12-31
This data collection evaluates group medical practices and the ways in which they affect both access to and use of medical services. Group practices, sponsored by the Robert Wood Johnson Foundation Community Hospital Program (CHP), were selected for use in this assessment. The data were collected by the Center for Health Administration Studies at the University of Chicago, with the assistance of Chilton Research Services. Two surveys were conducted for the study: a baseline survey in 1978-1979 and a follow-up in 1981. Community residents and CHP patients in 12 communities were interviewed. Demographic and medical care data were collected for selected individuals and families in the survey areas. Data on regular sources of medical care for individuals include the type of organization used, type of practice, accessibility, frequency of visits, types of health care professionals seen, cost, and satisfaction. Also in the collection are data on perceived health, episodes of illness (including symptoms, duration, disability days, and doctors consulted), use of preventive health care services, and insurance coverage. Demographic data for individuals and families include age, sex, race, educational attainment, employment, and income. Of the 198 files in this collection, 88 are "raw" data files and 110 are frequencies. The data files consist of four types. The first type are Sample Person files. These contain the responses of group practice patients and community members. The second type are Doctor Episode files, which record doctors and episodes of illness. Family files make up the third type of file, and consist of family members' responses to the survey. Analysis files, linking patient and doctor data, are the fourth type of file. The SPSS frequency files correspond to the data files: two per file for the Sample Person files, and one per file for the remaining three types of files.
Curated
Partially restricted

Community Tracking Study Household Survey, 1998-1999, and Followback Survey, 1998-2000: [United States] (ICPSR 3199)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1998-01-01--2000-12-31
This collection comprises the second round of the Community Tracking Study (CTS) Household Survey and the second round of the CTS Followback Survey. The CTS, sponsored by the Robert Wood Johnson Foundation, is a national study designed to track changes in the health care system and their effects on care delivery and individuals. Fifty-one metropolitan areas and nine nonmetropolitan areas were randomly selected to form the core of the CTS and to be representative of the nation as a whole. As in the first round of the Household Survey (COMMUNITY TRACKING STUDY HOUSEHOLD SURVEY, 1996-1997, AND FOLLOWBACK SURVEY, 1997-1998: [UNITED STATES] (ICPSR 2524)), the second round of the Household Survey was administered to households in the 60 CTS sites and to a supplemental national sample of households. Respondents provided information about household composition and demographic characteristics, health insurance coverage, use of health services, unmet health care needs, out-of-pocket expenses for health care, usual source of care, patient trust and satisfaction, last visit to a medical provider, health status and presence of chronic health conditions, risk behaviors and smoking, and employment, earnings, and income. The purpose of the Followback Survey was to obtain detailed information on private health insurance coverage reported in the Household Survey. It was administered to the health plans and other organizations (managed care organizations, third-party administrators, employer or union plans, and employers) that offered or administered the respondents' comprehensive private health insurance policies. Information on private health insurance policies collected by the Followback Survey includes product type, gatekeeping, consumer cost sharing, provider payment methods, and coverage of mental health and/or substance abuse services.
Curated
Simple Crosstabs

Continuity and Change in Contraceptive Use, United States, 2012-2014 (ICPSR 37067)

Released/updated on: 2018-05-09
Geographic coverage: United States
Time period: 2012-11-01--2014-06-30

The Continuity and Change in Contraceptive Use study assessed contraceptive use patterns from a national sample of women four times over an 18-month time period. Researchers examined patterns of use and a wide range of issues that inform women's contraceptive use patterns, including pregnancy motivation, life events, relationship dynamics and access to health care.

Curated

Health Poverty and Place: Modeling Inequalities in Accra Using RS and GIS (ICPSR 36015)

Released/updated on: 2015-06-22
Geographic coverage: Africa, Ghana
This project collects data on geographic differentials in health and mortality in urban Accra, Ghana. It uses remote sensing (RS) and geographic information system (GIS) technology to measure the association of adverse health outcomes with neighborhood ecology, collects observations of physical features and build structures visible from satellite imagery, and assesses additional community-level variables such as social organization and institutions. This study also uses census and survey data on the area. The respondents to the 2003 Accra Women's Health Survey are also re-interviewed on health outcomes.
Curated
Partially restricted

Health Tracking Household Survey, 2007 [United States] (ICPSR 26001)

Released/updated on: 2011-04-15
Geographic coverage: United States
Time period: 2007-01-01--2007-12-31

The 2007 Health Tracking Household Survey (HTHS) is the successor to the Community Tracking Study (CTS) Household Surveys which were conducted in 1996-1997 (ICPSR 2524), 1998-1999 (ICPSR 3199), 2000-2001 (ICPSR 3764), and 2003 (ICPSR 4216). Although the HTHS questionnaires are similar to the CTS Household Survey questionnaires, the HTHS sampling design does not have the community focus intrinsic to CTS. Whereas the CTS design focused on 60 nationally representative communities with sample sizes large enough to draw conclusions about health system change in 12 communities, the HTHS design is a national sample not aimed at measuring change within communities. Hence, "Community" was dropped from the study title. Like the CTS Household Surveys, HTHS collected information on health insurance coverage, use of health services, health expenses, satisfaction with health care and physician choice, unmet health care needs, usual source of care and patient trust, health status, adult chronic conditions, height and weight, and smoking behavior. In addition, the survey inquired about perceptions of care delivery and quality, problems with paying medical bills, use of in-store retail and onsite workplace health clinics, patient engagement with health care, sources of health information, and shopping for health care.

At the beginning of the interview, a household informant provided information about the composition of the household which was used to group the household members into family insurance units (FIU). Each FIU comprised an adult household member, his or her spouse or domestic partner (same sex and other unmarried partners), if any, and any dependent children 0-17 years of age or 18-22 years of age if a full-time student (even if living outside the household). In each FIU in the household, a FIU informant provided information on insurance coverage, health care use, usual source of care, and general health status of all FIU members. This informant also provided information on family income as well as employment, earnings, employer-offered insurance plans, and race/ethnicity for all adult FIU members. Moreover, every adult in each FIU (including the FIU informant) responded through a self-response module to questions that could not be answered reliably by proxy respondents, such as questions about unmet needs, assessments of the quality of care, consumer engagement, satisfaction with physician choice, use of health information, health care shopping, and detailed health questions. The FIU informants responded on behalf of children regarding unmet needs, satisfaction with physician choice, and use of health care information.

Curated

Medicare Current Beneficiary Survey, Calendar Year 1991: [United States] (ICPSR 6118)

Released/updated on: 2006-01-12
Geographic coverage: United States
Time period: 1991-01-01--1991-12-31
This data collection is the first in a series of data releases planned from the ongoing Medicare Current Beneficiary Survey (MCBS). The MCBS is a continuous, multipurpose survey of a representative sample of the Medicare population. Sample persons are interviewed three times a year over several years to form a continuous profile of their health care experience. Field work for Round 1 began in September of 1991 and was completed in December. New rounds, which involve reinterviewing the same sample persons (or other appropriate respondents), begin every four months. Interviews are conducted regardless of whether the sample person resides at home or in a long-term care facility, using the questionnaire version appropriate to the setting. This first-round interview captured baseline information about the Medicare population, including their demographic characteristics (date of birth, sex, race, education, military service, and marital status), health status and functioning, insurance coverage, financial resources, and family support. Round 1 of the community interview, which questioned respondents living at home, also included a topical supplement on access to medical care, sources of medical care, and satisfaction with medical care.
Curated

National Health Interview Survey, 2007 (ICPSR 27201)

Released/updated on: 2010-08-26
Geographic coverage: United States
Time period: 2007-01-01--2007-12-31
The purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. Implementation of a redesigned NHIS, consisting of a basic module, a periodic module, and a topical module, began in 1997 (see NATIONAL HEALTH INTERVIEW SURVEY, 1997 [ICPSR 2954]). The 2007 NHIS contains the Household, Family, Person, Sample Adult, and Sample Child files from the basic module. Each record in Part 1, Household Level, contains data on type of living quarters, number of families in the household responding and not responding, and the month and year of the interview for each sampling unit. Part 2, Family Level, is made up of reconstructed variables from the person-level data of the basic module and includes information on sex, age, race, marital status, Hispanic origin, education, veteran status, family income, family size, major activities, health status, activity limits, and employment status, along with industry and occupation. As part of the basic module, Part 3, Person Level, provides information on all family members with respect to health status, limitation of daily activities, cognitive impairment, and health conditions. Also included are data on years at current residence, region variables, height, weight, bed days, doctor visits, hospital stays, and health care access and utilization. A randomly-selected adult in each family was interviewed for Part 4, Sample Adult, regarding respiratory conditions, use of nasal spray, renal conditions, AIDS, joint symptoms, health status, limitation of daily activities, and behaviors such as smoking, alcohol consumption, and physical activity in addition to questions regarding stroke, diabetes, arthritis, and weight control. Part 5, Sample Child, provides information from an adult in the household on medical conditions of one child in the household, such as respiratory problems, seizures, allergies, and use of special equipment like hearing aids, braces, or wheelchairs. Also included are variables regarding child behavior, the use of mental health services, and Attention Deficit Hyperactivity Disorder (ADHD), as well as responses to the SDQ, the Strengths and Difficulties questionnaire on child mental health. The 2007 data contain the Child Conditions - Limitation of Activity and Health Status (CHS), Child Health Care Access and Utilization (CAU), Child Mental Health Brief (CMB), Child Mental Health Services (CMS) and Child Influenza Immunization (CFI) sections. Part 6, Injury/Poison Episode, is an episode-based file that contains information about the external cause and nature of the injury or poisoning episode and what the person was doing at the time of the injury or poisoning episode, in addition to the date and place of occurrence. Part 7, Injury/Poison Episode Verbatim, contains edited narrative text descriptions of the injury or poisoning, provided by the respondent. Part 8, Adult Complementary and Alternative Medicine, and Part 9, Child Complementary and Alternative Medicine, provide information regarding the use of 17 nonconventional health care practices, including acupuncture, movement therapies, and relaxation techniques, for sample adults and sample children, respectively. Supplemental Sample Child, Part 10, and Supplemental Sample Child Alternative Medicine, Part 11, are supplemental files for the 2007 data release. These files provide dummy records to fill in the missing information for Part 5, Sample Child, and Part 9, Child Complementary and Alternative Medicine. Part 12, Paradata, does not contain health related information, but rather data which are related to the interview process, including measures of time, contact-ability, and cooperation. RAT_CAT3 Update, Part 13, corrects an error in the 2007 Family Level variable RAT_CAT3.
Curated

National Health Interview Survey, 2008 (ICPSR 27341)

Released/updated on: 2010-08-26
Geographic coverage: United States
Time period: 2008-01-01--2008-12-31
The purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. Implementation of a redesigned NHIS, consisting of a basic module, a periodic module, and a topical module, began in 1997 (see NATIONAL HEALTH INTERVIEW SURVEY, 1997 [ICPSR 2954]). The 2008 NHIS contains the Household, Family, Person, Sample Adult, and Sample Child files from the basic module. Each record in Part 1, Household Level, contains data on type of living quarters, number of families in the household responding and not responding, and the month and year of the interview for each sampling unit. Part 2, Family Level, is made up of reconstructed variables from the person-level data of the basic module and includes information on sex, age, race, marital status, Hispanic origin, education, veteran status, family income, family size, major activities, health status, activity limits, and employment status, along with industry and occupation. As part of the basic module, Part 3, Person Level, provides information on all family members with respect to health status, limitation of daily activities, cognitive impairment, and health conditions. Also included are data on years at current residence, region variables, height, weight, bed days, doctor visits, hospital stays, and health care access and utilization. A randomly-selected adult in each family was interviewed for Part 4, Sample Adult, regarding respiratory conditions, renal conditions, AIDS, joint symptoms, health status, limitation of daily activities, and behaviors such as smoking, alcohol consumption, and physical activity. Additionally, questions regarding oral health, asthma, balance, cancer screening, heart disease, HPV, immunization, and vision were fielded. Part 5, Sample Child, provides information from an adult in the household on medical conditions of one child in the household, such as respiratory problems, seizures, allergies, and use of special equipment like hearing aids, braces, or wheelchairs. Also included are variables regarding child behavior, Attention Deficit Hyperactivity Disorder (ADHD), oral health, asthma, indoor tanning, HPV, immunization, mental health, and vision. Part 6, Injury/Poison Episode, is an episode-based file that contains information about the external cause and nature of the injury or poisoning episode and what the person was doing at the time of the injury or poisoning episode, in addition to the date and place of occurrence. Part 7, Injury/Poison Episode Verbatim, contains edited narrative text descriptions of the injury or poisoning, provided by the respondent. Part 8, Paradata, does not contain health related information, but rather data which are related to the interview process, including measures of time, contact-ability, and cooperation.
Curated
Simple Crosstabs

National Longitudinal Study of Adolescent to Adult Health (Add Health), 1994-2025 [Public Use] (ICPSR 21600)

Released/updated on: 2026-03-03
Geographic coverage: United States
Time period: 1994-01-01--2025-12-31

Downloads of Add Health require submission of the following information, which is shared with the original producer of Add Health: supervisor name, supervisor email, and reason for download. A Data Guide for this study is available as a web page and for download.

The National Longitudinal Study of Adolescent to Adult Health (Add Health), 1994-2018 [Public Use] is a longitudinal study of a nationally representative sample of U.S. adolescents in grades 7 through 12 during the 1994-1995 school year. The Add Health cohort was followed into young adulthood with four in-home interviews, the most recent conducted in 2008 when the sample was aged 24-32. Add Health combines longitudinal survey data on respondents' social, economic, psychological, and physical well-being with contextual data on the family, neighborhood, community, school, friendships, peer groups, and romantic relationships.

Add Health Wave I data collection took place between September 1994 and December 1995, and included both an in-school questionnaire and in-home interview. The in-school questionnaire was administered to more than 90,000 students in grades 7 through 12, and gathered information on social and demographic characteristics of adolescent respondents, education and occupation of parents, household structure, expectations for the future, self-esteem, health status, risk behaviors, friendships, and school-year extracurricular activities. All students listed on a sample school's roster were eligible for selection into the core in-home interview sample. In-home interviews included topics such as health status, health-facility utilization, nutrition, peer networks, decision-making processes, family composition and dynamics, educational aspirations and expectations, employment experience, romantic and sexual partnerships, substance use, and criminal activities. A parent, preferably the resident mother, of each adolescent respondent interviewed in Wave I was also asked to complete an interviewer-assisted questionnaire covering topics such as inheritable health conditions, marriages and marriage-like relationships, neighborhood characteristics, involvement in volunteer, civic, and school activities, health-affecting behaviors, education and employment, household income and economic assistance, parent-adolescent communication and interaction, parent's familiarity with the adolescent's friends and friends' parents.

Add Health data collection recommenced for Wave II from April to August 1996, and included almost 15,000 follow-up in-home interviews with adolescents from Wave I. Interview questions were generally similar to Wave I, but also included questions about sun exposure and more detailed nutrition questions. Respondents were asked to report their height and weight during the course of the interview, and were also weighed and measured by the interviewer.

From August 2001 to April 2002, Wave III data were collected through in-home interviews with 15,170 Wave I respondents (now 18 to 26 years old), as well as interviews with their partners. Respondents were administered survey questions designed to obtain information about family, relationships, sexual experiences, childbearing, and educational histories, labor force involvement, civic participation, religion and spirituality, mental health, health insurance, illness, delinquency and violence, gambling, substance abuse, and involvement with the criminal justice system. High School Transcript Release Forms were also collected at Wave III, and these data comprise the Education Data component of the Add Health study.

Wave IV in-home interviews were conducted in 2008 and 2009 when the original Wave I respondents were 24 to 32 years old. Longitudinal survey data were collected on the social, economic, psychological, and health circumstances of respondents, as well as longitudinal geographic data. Survey questions were expanded on educational transitions, economic status and financial resources and strains, sleep patterns and sleep quality, eating habits and nutrition, illnesses and medications, physical activities, emotional content and quality of current or most recent romantic/cohabiting/marriage relationships, and maltreatment during childhood by caregivers. Dates and circumstances of key life events occurring in young adulthood were also recorded, including a complete marriage and cohabitation history, full pregnancy and fertility histories from both men and women, an educational history of dates of degrees and school attendance, contact with the criminal justice system, military service, and various employment events, including the date of first and current jobs, with respective information on occupation, industry, wages, hours, and benefits. Finally, physical measurements and biospecimens were also collected at Wave IV, and included anthropometric measures of weight, height and waist circumference, cardiovascular measures such as systolic blood pressure, diastolic blood pressure, and pulse, metabolic measures from dried blood spots assayed for lipids, glucose, and glycosylated hemoglobin (HbA1c), measures of inflammation and immune function, including High sensitivity C-reactive protein (hsCRP) and Epstein-Barr virus (EBV).

Wave V data collection took place from 2016 to 2018, when the original Wave I respondents were 33 to 43 years old. For the first time, a mixed mode survey design was used. In addition, several experiments were embedded in early phases of the data collection to test response to various treatments. A similar range of data was collected on social, environmental, economic, behavioral, and health circumstances of respondents, with the addition of retrospective child health and socio-economic status questions. Physical measurements and biospecimens were again collected at Wave V, and included most of the same measures as at Wave IV.

The overall goal of Wave VI was to better understand life course trajectories, determinants, and consequences of critical dimensions of aging, health, and health disparities among U.S. early midlife adults. Data collection took place from 2022 to 2025, with participants between the ages of 39 and 51, with an average age of 44. Beyond longitudinal survey measures, newly added questions included those on cumulative stress, discrimination, despair, work-life balance, memory, physical limitations, and caregiving. Continuing from previous waves, home exams collected physical measurements and biospecimens with most of the same measures as Wave V.

Curated

National Mortality Followback Survey, 1993 (ICPSR 2900)

Released/updated on: 2005-02-21
Geographic coverage: United States
Time period: 1993-01-01--1993-12-31
The National Mortality Followback Survey (NMFS) Program, begun in the 1960s by the National Center for Health Statistics (NCHS), uses a sample of United States residents who die in a given year, supplementing information derived from the death certificate with information from the next of kin or another person familiar with the decedent's life history. This information, sometimes enhanced by administrative records, is collected in order to study the etiology of disease, demographic trends in mortality, and other health issues. The 1993 National Mortality Followback Survey (NMFS) sampled individuals aged 15 years and over who died in 1993. Forty-nine of the 50 state vital registration areas, as well as the independent vital registration areas of the District of Columbia and New York City, granted approval to sample their death certificates. (South Dakota declined to participate due to a state law restricting the use of death certificate information.) A sample of 22,957 death certificates from 1993 was then drawn. To obtain reliable numbers for important population subgroups, such as persons under age 35, women, and the Black population, death certificates from those subgroups were oversampled. The 1993 NMFS survey focused on five subject areas: (1) socioeconomic differentials in mortality, (2) associations between risk factors and cause of death (use of tobacco, alcohol, drugs, firearms, motor vehicles), (3) disability (medical condition and cognitive functioning during the last year of life), (4) access and utilization of health care facilities during the last year of life (number of doctor visits, days bedridden, nursing home experiences, use of assistive medical devices, availability of health insurance), and (5) reliability of certain items reported on the death certificate. Demographic variables include age, gender, race, marital status, birthplace, education, occupation and industry, and income and assets. The 1993 NMFS survey differed from the previous mortality followback surveys in several ways: First, it emphasized deaths due to homicide, suicide, and unintentional injury. Second, the subject areas were considerably broader (many previously-surveyed subject areas, however, are included for trend analysis). This survey was also the first to acquire national-level information from medical examiners and coroners. Finally, the complexity of the questionnaire necessitated telephone or in-person interviews. The 1993 NMFS was designed in collaboration with other agencies of the Public Health Service, Department of Health and Human Services, and the National Highway Traffic Safety Administration.
Curated

National Survey of America's Families (NSAF), 1997 (ICPSR 4581)

Released/updated on: 2007-10-04
Geographic coverage: United States
Time period: 1997-01-01--1997-11-30

The National Survey of America's Families (NSAF) is a household survey that provides a comprehensive look at quantitative measures of the well-being of children, adults, and their families. While the focus of the survey is at the state level, the scope is national -- with a primary emphasis on low-income families. NSAF information was gathered from interviews conducted with the Most Knowledgeable Adult (MKA), the person in the household who was most knowledgeable about the questions being asked about the respondent, their spouse/partner (if applicable) and the focal child (or children). Data were collected from more than 40,000 families in two stages. First, a screener interview was administered to determine whether a household was eligible to complete the second, extended interview.

Two types of extended interviews were administered. Option A interviews were used in households with children under age 18. Option B interviews were used in childless adult households and also with emancipated minors. The extended interview was divided into several sections and is labeled A through P below:

  • A. Student Status. This section contained two questions that asked whether the respondent was a student and whether that household was the respondent's usual residence.

  • B. Health Status and Satisfaction. These questions asked about the respondent's satisfaction with health care, access to health care, the health status of the focal children, and the health status of the respondent.

  • C. Parent/Child/Family Interaction and Education. This series of questions asked about education for focal children. Questions addressed the focal child's current grade (or the last grade completed) and the child's attitudes toward school and schoolwork, skipping school, suspensions, and changing schools. Questions were also asked about children over 11 years old working for pay and attending summer school.

  • D. Household Roster. In this section, the name, age, and sex of all persons living in the household were recorded, and relationships between all household members were investigated.

  • E. Health Care Coverage. Information was gathered about current health insurance coverage for the respondent, the respondent's spouse/partner, and the focal children. Questions were also asked about characteristics of that coverage and of periods in which family members had no insurance coverage.

  • F. Health Care Use and Access. This section gathered information about health status, health care services received, and necessary health care services that were postponed during the preceding 12 months. Questions on routine care, overnight stays in hospitals, dental care, mental health care, women's health care, well-child care, and prescription medicines were also included.

  • G. Child Care. In this section, respondents were queried as to child care arrangements including Head Start, child care centers, before- or after-school care, and babysitters. Questions were asked about the total number of hours per week in each care situation, the typical number of children cared for, the typical number of adult child care providers, and child care costs.

  • H. Nonresidential Parent/Father. These questions determined whether a focal child had a nonresident parent, how often the child saw his/her nonresident parent, whether the nonresident parent provided financial support, and whether nonresident parents were required by child support orders to provide financial support.

  • I. Employment and Earnings. This section contained a series of questions about the employment and earnings of the respondent and the spouse/partnerfor the current and preceding year. Topics included employment status, occupation, industry, employer-provided health insurance, hours worked, and earnings. Some questions were also asked about the earnings of other family members.

  • J. Family Income. Family income also was identified from a wide variety of sources other than earnings from employment. These sources included public assistance (e.g., Aid to Families with Dependent Children [AFDC], General Assistance, Emergency Assistance, or vouchers), Food Stamps, child support, foster care payments, financial assistance from friends or relatives, unemployment compensation, workers' compensation or veterans' payments, Supplemental Security Income, Social Security, pension or annuity income, interest or dividend income, income from rental property, or any other income source.

  • K. Welfare Program Participation. This section gathered detailed information about AFDC and Food Stamp benefits that the respondent might have received within the preceding two years. For both types of assistance, periods in which the respondent's benefits were reduced or eliminated were identified, as were strategies for coping during such times. Current AFDC or Food Stamp recipients were asked about any requirements they had to fulfill (e.g., job search, training, etc.) in order to receive these benefits. Recipients were also asked questions about awareness of time limits and experiences with diversion. For respondents with children, questions were asked about benefits received in the previous year through the supplemental food program for Women, Infants, and Children (WIC) and free or reduced-cost school breakfast and lunch programs.

  • L. Education and Training. This series of questions inquired about the highest grade completed, highest degree earned, participation in job training programs during the previous year, and classes taken for credit during the previous year.

  • M. Housing and Economic Hardship. Questions covered the respondent's living arrangements, the name(s) of the lease- or mortgage- holder(s) in the household, and the amount of rent or mortgage paid monthly. Information was collected about financial contributions by the respondent or his/her spouse or partner to children under 18 years old living outside the household. The effect of economic hardship on the family's food consumption and ability to pay for housing costs was also assessed.

  • N. Issues, Problems, and Social Services. Questions in this section covered the respondent's state of mind, feelings about his or her child (or children), constructive activities the child (or children) might have been involved with, the availability of social services in their community, problems the child (or children) might have had in the preceding year and efforts to obtain help for those problems, and the respondent's involvement in volunteer and religious activities.

  • O. Race, Ethnicity, and Nativity. Race and ethnicity were asked for the respondent, the spouse/partner, and the focal child (or children). For household members who were born outside the United States, country of origin and citizenship questions were asked.

  • P. Closing. At the end of the survey, respondents were asked their opinions about welfare and working and about raising children. Closing questions asked for the respondent's ZIP code and, in households with foreign-born individuals, tracing information for use in a follow-up survey.

The 1997 NSAF data are available in nine parts and are organized into hierarchical, flat household-, family-, person-, adult-, and child-level files. A description of each is provided below:

  1. Focal Child Data. This dataset contains data elements from the extended interview that are specific to focal children (FC1 and FC2). Select data items that were asked only of MKAs are also included. Information in this dataset is primarily from sections N (Issues, Problems, and Social Services) and P (Closing) of the extended interview. The dataset contains one record for each focal child.

  2. Adult Pair Data. Included in this dataset is information collected from the extended interview about both the respondent and the respondent's spouse/partner. There is one observation per respondent and one per spouse (where applicable). Information in this dataset is primarily from sections I (Employment and Earnings) and L (Education and Training) of the extended interview.

  3. Random Adult Data. Information in this person-level dataset is specific to a randomly selected adult, either the respondent or the spouse/partner. This situation occurs only in sections E (Health Insurance Coverage) and F (Health Care Access and Utilization) of the extended interview.

  4. Childless Adult Data. This dataset contains data elements from the extended interview that are asked only of the respondent in Option B interviews. Variables in this dataset come mainly from section N (Issue, Problems, and Social Services) and P (Closing). There is one record per Option B interview in the dataset.

  5. Family-Respondent Data. Information in this dataset centers around information about the family's use of health care and social services. This family-level dataset contains one observation per respondent. Because there could be more than one respondent per family, family-respondent level variables may have different values within a single family.

  6. Household Data. This household-level dataset contains general information about the household such as the demographic characteristics of its members. Also contained in this dataset are administrative and process data such as housing subsidies, public housing, the number of bedrooms in the house, whether the home was owned or rented, and information pertaining to screeners and the completion of interviews.

  7. Person Data. This dataset contains one observation for each person living in the household. Included in this dataset is demographic information as well as information on current health insurance status and income.

  8. Social Family Data. Included in this dataset are items asked about the social family and variables aggregated at the social family level. The social family includes not only married partners and their children, but also unmarried partners, all of their children, and members of the extended family (anyone related by blood to the MKA, the spouse/partner, or their children). Among the survey items included are those variables indicating whether anyone in the social family had a particular type of income and health insurance. Also included are variables summarizing information across all members of a social family, such as the number of family members. There is one record for each social family.

  9. CPS Family Data. Since the social family definition was used in fielding the NSAF, this dataset includes only variables created using the Current Population Survey (CPS) definition of family. A CPS family includes the householder, spouse of family householder, children in the family, and other relatives of the family household respondent. There is one record for each CPS family in this dataset.

Curated

National Survey of America's Families (NSAF), 2002 (ICPSR 4582)

Released/updated on: 2007-10-03
Geographic coverage: United States
Time period: 2002-02-01--2002-10-31

The National Survey of America's Families (NSAF) is a household survey that provides a comprehensive look at quantitative measures of the well-being of children, adults, and their families. While the focus of the survey is at the state level, the scope is national -- with a primary emphasis on low-income families. NSAF information was gathered from interviews conducted with the Most Knowledgeable Adult (MKA), the person in the household who was most knowledgeable about the questions being asked about the respondent, their spouse/partner (if applicable) and the focal child (or children). Data were collected from more than 40,000 families in two stages. First, a screener interview was administered to determine whether a household was eligible to complete the second, extended interview.

Two types of extended interviews were administered. Option A interviews were used in households with children under age 18. Option B interviews were used in childless adult households and also with emancipated minors. The extended interview was divided into several sections and is labeled A through P below:

  • A. Student Status. This section contained two questions that asked whether the respondent was a student and whether that household was the respondent's usual residence.

  • B. Health Status and Satisfaction. These questions asked about the respondent's satisfaction with health care, access to health care, the health status of the focal children, and the health status of the respondent. It also covered questions about the respondent's awareness of specific insurance programs such as Medicaid, and those associated with the Children's Health Insurance Program (CHIP).

  • C. Parent/Child/Family Interaction and Education. This series of questions asked about education for focal children. Questions addressed the focal child's current grade (or the last grade completed) and the child's attitudes toward school and schoolwork, skipping school, suspensions, and changing schools. Questions were also asked about children over 11 years old working for pay and attending summer school.

  • D. Household Roster. In this section, the name, age, and sex of all persons living in the household were recorded, and relationships between all household members were investigated.

  • E. Health Care Coverage. Information was gathered about current health insurance coverage for the respondent, the respondent's spouse/partner, and the focal children. Questions were also asked about characteristics of that coverage and of periods in which family members had no insurance coverage.

  • F. Health Care Use and Access. This section gathered information about health status, health care services received, and necessary health care services that were postponed during the preceding 12 months. Questions on routine care, overnight stays in hospitals, dental care, mental health care, women's health care, well-child care, and prescription medicines were also included.

  • G. Child Care. In this section, respondents were queried as to child care arrangements including Head Start, child care centers, before- or after-school care, and babysitters. Questions were asked about the total number of hours per week in each care situation, the typical number of children cared for, the typical number of adult child care providers, and child care costs.

  • H. Nonresidential Parent/Father. These questions determined whether a focal child had a nonresident parent, how often the child saw his/her nonresident parent, whether the nonresident parent provided financial support, and whether nonresident parents were required by child support orders to provide financial support.

  • I. Employment and Earnings. This section contained a series of questions about the employment and earnings of the respondent and the spouse/partner for the current and preceding year. Topics included employment status, occupation, industry, employer-provided health insurance, hours worked, and earnings. Some questions were also asked about the earnings of other family members.

  • J. Family Income. Family income was also identified from a wide variety of sources other than earnings from employment. These sources included public assistance (e.g., Temporary Assistance for Needy Families [TANF], General Assistance, Emergency Assistance, or vouchers), Food Stamps, child support, foster care payments, financial assistance from friends or relatives, unemployment compensation, workers' compensation or veterans' payments, Supplemental Security Income, Social Security, pension or annuity income, interest or dividend income, income from rental property, or any other income source.

  • K. Welfare Program Participation. This section gathered detailed information about TANF and Food Stamp benefits that the respondent might have received within the preceding two years. For both types of assistance, periods in which the respondent's benefits were reduced or eliminated were identified, as were strategies for coping during such times. Current TANF or Food Stamp recipients were asked about any requirements they had to fulfill (e.g., job search, training, etc.) in order to receive these benefits. Recipients were also asked questions about awareness of time limits and experiences with diversion. For respondents with children, questions were asked about benefits received in the previous year through the supplemental food program for Women, Infants, and Children (WIC) and free or reduced-cost school breakfast and lunch programs. Additional questions were asked about respondent experiences in obtaining government assistance for child care and health insurance through Medicaid and CHIP, and receipt and/or the use of the Earned Income Tax Credit (EITC) in any year between 1999 and 2002.

  • L. Education and Training. This series of questions inquired about the highest grade completed, highest degree earned, participation in job training programs during the previous year, and classes taken for credit during the previous year.

  • M. Housing and Economic Hardship. Questions covered the respondent's living arrangements, the name(s) of the lease- or mortgage- holder(s) in the household, and the amount of rent or mortgage paid monthly. Information was collected about financial contributions by the respondent or his/her spouse or partner to children under 18 years old living outside the household. The effect of economic hardship on the family's food consumption and ability to pay for housing costs was also assessed.

  • N. Issues, Problems, and Social Services. Questions in this section covered the respondent's state of mind, feelings about his or her child (or children), constructive activities the child (or children) might have been involved with, the availability of social services in their community, problems the child (or children) might have had in the preceding year and efforts to obtain help for those problems, and the respondent's involvement in volunteer and religious activities.

  • O. Race, Ethnicity, and Nativity. Race and ethnicity were asked for the respondent, the spouse/partner, and the focal child (or children). For household members who were born outside the United States, country of origin and citizenship questions were asked.

  • P. Closing. At the end of the survey, respondents were asked their opinions about welfare and working and about raising children. Respondents' ZIP code and address were also requested.

  • The 2002 NSAF data are available in nine parts and are organized into hierarchical, flat household-, family-, person-, adult-, and child-level files. A description of each is provided below:

    1. Focal Child Data. This dataset contains data elements from the extended interview that are specific to focal children (FC1 and FC2). Select data items that were asked only of MKAs are also included. Information in this dataset is primarily from sections N (Issues, Problems, and Social Services) and P (Closing) of the extended interview. The dataset contains one record for each focal child.

    2. Adult Pair Data. Included in this dataset is information collected from the extended interview about both the respondent and the respondent's spouse/partner. There is one observation per respondent and one per spouse (where applicable). Information in this dataset is primarily from sections I (Employment and Earnings) and L (Education and Training) of the extended interview.

    3. Random Adult Data. Information in this person-level dataset is specific to a randomly selected adult, either the respondent or the spouse/partner. This situation occurs only in sections E (Health Insurance Coverage) and F (Health Care Access and Utilization) of the extended interview.

    4. Childless Adult Data. This dataset contains data elements from the extended interview that are asked only of the respondent in Option B interviews. Variables in this dataset come mainly from section N (Issue, Problems, and Social Services) and P (Closing). There is one record per Option B interview in the dataset.

    5. Family-Respondent Data. Information in this dataset centers around information about the family's use of health care and social services. This family-level dataset contains one observation per respondent. Because there could be more than one respondent per family, family-respondent level variables may have different values within a single family.

    6. Household Data. This household-level dataset contains general information about the household such as the demographic characteristics of its members. Also contained in this dataset are administrative and process data such as housing subsidies, public housing, the number of bedrooms in the house, whether the home is owned or rented, and information pertaining to screeners and the completion of interviews.

    7. Person Data. This dataset contains one observation for each person living in the household. Included in this dataset is demographic information as well as information on current health insurance status and income.

    8. Social Family Data. Included in this dataset are items asked about the social family and variables aggregated at the social family level. The social family includes not only married partners and their children, but also unmarried partners, all of their children, and members of the extended family (anyone related by blood to the MKA, the spouse/partner, or their children). Among the survey items included are those variables indicating whether anyone in the social family had a particular type of income and health insurance. Also included are variables summarizing information across all members of a social family, such as the number of family members. There is one record for each social family.

    9. CPS Family Data. Since the social family definition was used in fielding the NSAF, this dataset includes only variables created using the Current Population Survey (CPS) definition of family. A CPS family includes the householder, spouse of family householder, children in the family, and other relatives of the family household respondent. There is one record for each CPS family in this dataset.

Curated

National Survey of Children's Health, 2003 (ICPSR 4691)

Released/updated on: 2007-05-24
Geographic coverage: United States
Time period: 2003-01-01--2003-12-31

The National Survey of Children's Health, funded by the Maternal and Child Health Bureau (MCHB), is a module of the State and Local Area Integrated Telephone Survey (SLAITS) that is conducted by the National Center for Health Statistics (NCHS) at the Centers for Disease Control and Prevention (CDC).

The survey was conducted to assess how well each state, and the nation as a whole, met MCHB's strategic plan goals and national performance measures. These goals include providing national leadership for maternal and child health, promoting an environment that supports maternal and child health, eliminating health barriers and disparities, improving the health infrastructure and systems of care, assuring quality care, working with states and communities to plan and implement policies and programs to improve the social, emotional, and physical environment, and acquiring the best available evidence to develop and promote guidelines and practices to assure a social, emotional, and physical environment that supports the health and well-being of women and children.

The National Survey of Children's Health (NSCH) was designed to produce national- and state-specific prevalence estimates for a variety of physical, emotional, and behavioral health indicators and measures of children's experiences with the health care system. Respondents were asked an extensive battery of questions about the family, including parental health, stress and coping behaviors, family activities, and parental concerns about their children, as well as their perceptions of the child's neighborhood.

Demographic information includes race, gender, family income, and education level.

Curated
Restricted

New Hope Project: Income and Employment Effects on Children and Families, 1994-2003 [Restricted Use] (ICPSR 30282)

Released/updated on: 2013-04-03
Geographic coverage: Milwaukee, United States, Wisconsin
Time period: 1994-08-01--2003-01-31
The New Hope Project gathered information on respondents over eight years using several data sources. This collection consists of three datasets: (1) Adults, (2) Child and Family Study (CFS) Parents, and (3) Youth. Information was collected on respondent's employment history, job characteristics and security, other sources of income, feelings about respondent's financial situation, material hardship, respondent's access to health care, as well as experiences with the New Hope program. Furthermore, families with at least one child between the ages of 1 and 10 at initial random assignment were selected for the Child and Family Study (CFS). The CFS independently surveyed parents/primary caregivers and up to two focal children when applicable, and collected information about the parents' and the child's well-being. Additionally, teachers of school-aged children were mailed surveys and asked to rate the child's performance and behavior. Demographic variables include age, gender, race, nationality, citizenship, educational attainment, employment status, income, marital status, parent-child relations, and household composition.
Curated
Simple Crosstabs

Puerto Rican Elder: Health Conditions (PREHCO) Project, 2021-2024 (ICPSR 39091)

Released/updated on: 2026-03-31
Geographic coverage: Puerto Rico, United States
Time period: 2021-03-01--2024-07-31

These are the third and fourth waves of the PREHCO project (Puerto Rican Elder Health Conditions study) and have been developed between 2021 and 2024 as a collaboration between the University of Alabama at Birmingham and the University of Puerto Rico. The project began as a cross-sectional study of the non-institutionalized population aged 60 years or older in Puerto Rico. These waves followed the survivors of the original participants at the beginning of the fieldwork and aimed to examine the predictors of cognitive decline, disability, and mortality. The fourth wave of this study extends the follow-up of PREHCO to between 21 and 22 years after the initial data collection and aims to examine the predictors of cognitive decline, disability, and mortality.

PREHCO was designed as a study comparable to the Multicenter Project on Health and Well-being of Older Adults in Latin America and the Caribbean (SABE) developed by the Pan American Health Organization (PAHO) in several cities in Latin America, and with some studies carried out in the United States, mainly the Health and Retirement Study (HRS).

For this purpose, a questionnaire was designed that included sections on health conditions, physical and mental disability, functionality, use of medicines, health needs and social services, access to and use of health services, abuse, migration, housing conditions, patterns of help from family, community and public and government agencies, and others.

Since its inception, PREHCO has been funded with federal funds from the National Institute on Aging (NIA). Initially it was a project between the University of Wisconsin-Madison and the University of Puerto Rico from 2000-2009.

Curated
Simple Crosstabs

Puerto Rican Elderly: Health Conditions (PREHCO) Project, 2002-2003, 2006-2007 (ICPSR 34596)

Released/updated on: 2013-09-13
Geographic coverage: Puerto Rico, United States
Time period: 2002-01-01--2007-12-31
The Puerto Rican Elderly: Health Conditions (PREHCO) study investigates issues affecting the elderly (individuals over 60 years of age) population in Puerto Rico: health status, housing arrangements, functional status, transfers, labor history, migration, income, childhood characteristics, health insurance, use of health services, marital history, mistreat, sexuality, etc. It is an island-wide, longitudinal sample survey of target individuals and their spouses with two waves of data collection: 2002-2003 and 2006-2007.
Curated

Testing and Counseling for HIV: A Multi-site Study (ICPSR 35925)

Released/updated on: 2015-06-03
Geographic coverage: United States
This project collects data based on interviews with health providers, with clients of testing services, and with non-users of services towards testing and disclosure for HIV, as well as on observations at study sites. Data are collected at health facilities to investigate the factors that hinder or facilitate uptake testing and counseling (T&C) for HIV in different settings.
Curated

Urban Social Context, Health and Health Disparities (ICPSR 36011)

Released/updated on: 2015-06-19
Geographic coverage: United States
This project expands on the Chicago Community Adult Health Study (CCAHS) about individual and social environmental influences on health. The CCAHS surveyed Chicago adults, including measurements of height, weight, waist, hip length, and blood pressure, in addition to saliva and/or blood samples. It also used old and collected new archival data on sampling areas, and carried out Systematic Social Observations of 1,664 city blocks. The current project collects new data on residential and social contexts, and begins to convert the existing cross-sectional study into a longitudinal study via respondent tracking and mortality follow-up. It lays the foundation for a second wave of data collection in 2008-2009.
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