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Active for Life: Translation of Physical Activity Programs for Mid-Life and Older Adults, 2003-2007 [United States] (ICPSR 24723)

Released/updated on: 2024-02-14
Geographic coverage: North Carolina, District of Columbia, United States, Tennessee, California, Michigan, Pennsylvania, Illinois, Texas, Missouri, Ohio, Virginia, Maryland
Time period: 2003-01-01--2007-01-01

Sponsored by the Robert Wood Johnson Foundation, the Active for Life (AFL) initiative investigated how two physical activity programs for adults aged 50 and older, Active Choices (AC) and Active Living Every Day (ALED), worked in community settings. Created by researchers at Stanford University, Active Choices used lifestyle counseling and personalized telephone support to encourage older adults to be physically active. In AFL, this was a 6-month program delivered through one face-to-face meeting followed by up to eight one-on-one telephone counseling calls. Active Living Every Day, which was created by the Cooper Institute and Human Kinetics Inc., also provided lifestyle counseling to promote physical activity, but in a classroom and workbook format. During the first three years of the four-year AFL initiative, ALED was delivered as a 20-week program where participants attended weekly small group meetings, but in the last year it was shortened to 12 weekly meetings. Nine organizations received AFL grants to implement the programs during 2003-2006. Four grantees implemented the one-on-one AC model, while five implemented the group-based ALED model.

Data were collected from the AC and ALED sites for both a process and outcomes evaluation. The primary aims of the process evaluation were to (1) monitor the extent to which the grantees demonstrated fidelity to the AC and ALED models in their program implementation, (2) assess staff experiences implementing the programs, and (3) assess participants' impressions of the programs. A quasi-experimental, pre-post study design was used to assess outcomes. Primary aims of the outcomes evaluation were to evaluate the impact of AC and ALED on self-reported physical activity, and to evaluate the impact of the programs on self-reported stress, depressive symptoms, and satisfaction with body function and appearance. Secondary aims of the outcome evaluation were to (1) evaluate the impact of the programs on measures of functional fitness, (2) examine whether changes in self-reported physical activity and functional fitness were moderated by participant characteristics, including age, gender, race, baseline physical activity self-efficacy, and baseline physical activity social support, and (3) examine whether changes in self-reported physical activity were consistent with a mediation model for physical activity self-efficacy and physical activity social support.

The collection has 14 data files (datasets). Datasets 1-7 constitute the process evaluation data, and Datasets 8-14 the outcomes evaluation data:

Dataset 1 (AC Initial Face-to-Face Sessions Data) contains information about the initial face-to-face AC session: the format, date, and length of the session, whether the 8 steps required in the face-to-face session were completed, what was discussed between the health educator and the participant related to physical activity plans, interests, benefits, and barriers, and the health educator's progress notes. The file contains one record for each AC participant.

Dataset 2 (AC Completed Calls Data) comprises information about the completed AC calls, but does not cover the topics discussed on the calls. Recorded information about each call includes the date and length of the call, the health educator's progress notes, and whether the participant was assessed for injury, light activity, moderate activity, exercise goals, or exercise intentions. Each call is represented by a separate record in the data file and, typically, there are multiple records per participant.

Dataset 3 (AC Topics Discussed on Completed Calls ) contains information about the topics discussed on each completed AC call, e.g., exercise barriers/benefits, previous exercise experiences, goal setting, long term goals, injury prevention, rewards/reinforcement, social support, progress tracking, and relapse prevention. Each record in the file represents one topic and there are often multiple records per call for each participant.

Dataset 4 (AC Aggregate Call Data) aggregates the call data across calls for each AC participant. For example, for a given participant, this dataset shows the total number of calls completed, the number of calls where injury/health problems were assessed, etc. The file contains one record per participant.

Dataset 5 (ALED Sessions Data) contains information about each class session for every ALED group, including the session date, start time, and end time, learning activities covered in the session, participant evaluations of the session and the facilitator, facilitator progress notes, the number of participants who were in various stages of readiness for moderate exercise, and the number of participants who tracked physical activity and thoughts about physical activity. This file has one record for each session of every ALED group.

Dataset 6 (ALED Attendance and Tracking Data (Years 2-4)) consists of participant-level attendance and tracking data for every ALED session during the second to fourth years of the evaluation, including the participant's attendance at the session, whether the participant's stage of readiness was assessed, and whether the participant tracked thoughts about physical activity or actual physical activity. There is no participant-level ALED data for the first year. Each participant has a separate record for each session. Thus, the file contains 20 records per participant in the years 2-3, and 12 records per participant in year 4.

Dataset 7 (ALED Aggregate Attendance and Tracking Data (Years 2-4)) contains ALED attendance and tracking data for each participant in years 2-4, aggregated across the sessions. The data file has one record for each participant.

Dataset 8 (Demographics) comprises program information (e.g., program status, start date, end date, site, etc.), demographic information (e.g., age, gender, race, Hispanic origin, employment status, income, and the participant's state and ZIP code of residence), and responses to the Physical Activity Readiness Questionnaire (PAR-Q), a screening tool that was used to assess possible risks of exercising based on answers to specific health history questions. The file contains one record for each AFL participant, except for those with a status of "nonstarter" or "repeater."

Datasets 9 (Pretest Survey Data) and 10 (Posttest Survey Data) contain data from the Pretest and Posttest Surveys. The Pretest Survey was administered at the beginning of the AC and ALED programs, while the Posttest Survey was administered at their end. Topics covered by the surveys include social and recreational activities, activities undertaken for exercise, perceived stress, depressive symptoms, satisfaction with body appearance and function, social support for physical activity, self-efficacy for physical activity, neighborhood environment, health conditions, health-related quality of life, caregiving, and self-reported height and weight. Both surveys included items from the Community Health Activities Model Program for Seniors Physical Activity Questionnaire (CHAMPS), the Center for Epidemiological Studies Depression Questionnaire (CES-D), the Behavioral Risk Factor Surveillance System Questionnaires (BRFSS), and the International Physical Activity Prevalence Study Environmental Module. These data files each have one record for each participant who submitted a questionnaire.

Dataset 11 (ALED Week 12 Survey Data (Year 4)) contains responses to the ALED Week 12 Posttest Survey, which was used to evaluate the 12-week adaptation of ALED in Year 4. (In Year 4, ALED participants completed both a 12- and 20-week posttest survey). There is one record for each participant who returned this survey.

Dataset 12 (Six-Month Posttest Follow-Up Survey Data (Years 3-4)) comprises data from a special 6-month follow-up survey which was administered in years 3-4 in six of the ALED sites and one of the AC sites. Participants were questioned about their current physical activities, weight, health-related quality of life, satisfaction with bodily function, and other topics. As with Datasets 9-11, the data file contains one record for each participant who returned a questionnaire.

Dataset 13 (Functional Fitness Tests Data) contains the results of pretest and posttest functional fitness tests which were administered by one ALED grantee. Four tests were adminstered: (1) the 30-Foot Walk Test, (2) the 30-Second Chair Stand, (3) 8-Foot Up and Go, and (4) the Chair Sit and Reach Test. This participant-level data file also includes pretest height measurements plus pretest and posttest weight measurements.

Dataset 14 (Participants' Impressions of the Programs (Years 1, 3, and 4)) contains data collected by the last sections of the Posttest Survey, ALED Week 12 survey, and 6-Month Follow-up Survey. The topics it covers include the participants' impressions of the programs, participation in physical activities, and changes (compared to before they started the AFL program) in motivation to be physically active, actual level of physical activity, medical and health conditions, overall pain, flexibility/limberness, level of stress, happiness, and enjoyment of life. The file has a separate record for each survey completed by the participants. Thus, there are 1-3 records per participant.

Curated
Simple Crosstabs

Behavioral Risk Factor Surveillance System (BRFSS), 2003 (ICPSR 34085)

Released/updated on: 2013-08-05
Geographic coverage: Oregon, Vermont, Puerto Rico, Indiana, United States, Oklahoma, Maine, Utah, Nebraska, West Virginia, Massachusetts, North Dakota, Wisconsin, Arizona, Nevada, District of Columbia, Rhode Island, Montana, Hawaii, Kansas, New York (state), New Jersey, Michigan, Iowa, New Mexico, Illinois, Texas, Connecticut, New Hampshire, Louisiana, Ohio, Georgia, Virginia, Maryland
The Behavioral Risk Factor Surveillance System (BRFSS) is a state-based system of health surveys that collects information on health risk behaviors, preventive health practices, and health care access primarily related to chronic disease and injury. For many states, the BRFSS is the only available source of timely, accurate data on health-related behaviors. BRFSS was established in 1984 by the Centers for Disease Control and Prevention (CDC); currently data are collected monthly in all 50 states, the District of Columbia, Puerto Rico, the United States Virgin Islands, and Guam. More than 350,000 adults are interviewed each year, making the BRFSS the largest telephone health survey in the world. States use BRFSS data to identify emerging health problems, establish and track health objectives, and develop and evaluate public health policies and programs. The BRFSS is a cross-sectional telephone survey conducted by state health departments with technical and methodologic assistance provided by CDC. States conduct monthly telephone surveillance using a standardized questionnaire to determine the distribution of risk behaviors and health practices among adults. Responses are forwarded to CDC, where the monthly data are aggregated for each state, returned with standard tabulations, and published at the year's end by each state. The BRFSS questionnaire was developed jointly by CDC's Behavioral Surveillance Branch (BSB) and the states. When combined with mortality and morbidity statistics, these data enable public health officials to establish policies and priorities and to initiate and assess health promotion strategies.
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Community Tracking Study Household Survey, 1998-1999, and Followback Survey, 1998-2000: [United States] (ICPSR 3199)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1998-01-01--2000-01-01
This collection comprises the second round of the Community Tracking Study (CTS) Household Survey and the second round of the CTS Followback Survey. The CTS, sponsored by the Robert Wood Johnson Foundation, is a national study designed to track changes in the health care system and their effects on care delivery and individuals. Fifty-one metropolitan areas and nine nonmetropolitan areas were randomly selected to form the core of the CTS and to be representative of the nation as a whole. As in the first round of the Household Survey (COMMUNITY TRACKING STUDY HOUSEHOLD SURVEY, 1996-1997, AND FOLLOWBACK SURVEY, 1997-1998: [UNITED STATES] (ICPSR 2524)), the second round of the Household Survey was administered to households in the 60 CTS sites and to a supplemental national sample of households. Respondents provided information about household composition and demographic characteristics, health insurance coverage, use of health services, unmet health care needs, out-of-pocket expenses for health care, usual source of care, patient trust and satisfaction, last visit to a medical provider, health status and presence of chronic health conditions, risk behaviors and smoking, and employment, earnings, and income. The purpose of the Followback Survey was to obtain detailed information on private health insurance coverage reported in the Household Survey. It was administered to the health plans and other organizations (managed care organizations, third-party administrators, employer or union plans, and employers) that offered or administered the respondents' comprehensive private health insurance policies. Information on private health insurance policies collected by the Followback Survey includes product type, gatekeeping, consumer cost sharing, provider payment methods, and coverage of mental health and/or substance abuse services.
Curated

Eurobarometer 64.3: Foreign Languages, Biotechnology, Organized Crime, and Health Items, November-December 2005 (ICPSR 4590)

Released/updated on: 2010-06-23
Geographic coverage: Cyprus, Portugal, Global, Malta, Greece, Netherlands, Sweden, Austria, Latvia, Luxembourg, Ireland, Poland, Slovenia, Slovakia, France, Bulgaria, Lithuania, Croatia, Romania, Hungary, Europe, United Kingdom, Spain, Czech Republic, Turkey, Belgium, Finland, Denmark, Italy, Germany, Estonia
Time period: 2005-11-05--2005-12-07
This round of Eurobarometer surveys diverged from the standard Eurobarometer measures and queried respondents on (1) foreign languages, (2) biotechnology, (3) organized crime and corruption, (4) health consciousness, (5) smoking, (6) AIDS prevention, (7) medical errors, and (8) consumer rights. For the first topic, foreign languages, respondents were asked to identify their native language, and first, second, and third foreign languages spoken, including proficiency and frequency of use. In addition, respondents were asked to identify the main reasons to learn a new language, methods used in learning, and barriers preventing learning. Respondents' opinions were sought regarding the best age to start learning a first and second new language, language support, and whether there should be a common language used throughout the European Union (EU). For the second topic, respondents were asked about their understanding of biotechnology, including gene therapy, pharmacogenetics, genetically modified foods and plants, nanotechnology, stem cell research, and its application in industry. Respondents' opinions were sought regarding the use of these techniques, governing safety and regulatory processes, new technology development, and integration of biotechnology into society. Respondents were also queried about their knowledge of science and politics and discussion of these matters with others, their opinions regarding entity involvement, including the EU, in utilizing or advancing biotechnology, and their personal political involvement in this area. For the third topic, organized crime and corruption, respondents were asked to identify the degree of national corruption, sources where corruption exists, a regulatory force in reducing it, and any personal involvement with corruption, in addition to providing an opinion about whether information sharing or policy development may reduce corruption. For the fourth topic, health consciousness, respondents were asked about their current state of health, breastfeeding, dieting, views on eating, foods consumed, changes in eating or drinking patterns and associated reasons for these changes, ease of and barriers to eating healthily, and exercise. Respondents were asked about their knowledge of sports and physical activity, and their opinion about obesity among adults and children. For the fifth topic, smoking, respondents were asked about their smoking habits and use with other substances, sensitivity to smoke, knowledge about second-hand smoke, exposure to tobacco cessation campaigns, and the likelihood of quitting. In addition, respondents were asked to provide an opinion about smoking bans in public places and the consumption of alcohol and tobacco among pregnant women. For the sixth topic, AIDS prevention, respondents were asked about their knowledge of AIDS transmission, changes in personal behaviors influenced by AIDS, and their opinions regarding current national measures in managing the AIDS pandemic and the potential coordination with the EU. For the seventh topic, medical errors, respondents were asked about their awareness of incidents of medical errors in their country, the significance of those errors, personal experience of a medical error, the likelihood of avoiding an error, and their degree of concern about suffering a medical error. For the eighth and final topic covered by this survey, consumer rights, those respondents living in Poland were asked about where and how often they saw or heard information about consumer rights, how frequently the media talked about consumer rights, and who in the media was the source of this information. Respondents were also asked whether they had heard a particular message and to define the meaning of that message, to evaluate Poland's consumer rights in comparison to other EU countries, and to assess the effectiveness of the justice system in protecting consumer rights. In addition, respondents were queried about their knowledge of consumer rights in certain situations, which organizations they would trust to provide correct advice and information about consumer rights, and whether they would refer others to a specific organization that deals with consumer rights, Federacja Konsumentow. Demographic and other background information includes respondent's age, gender, height, and weight, nationality, origin of birth (personal and parental), religious affiliation and involvement, marital status, left-to-right political self-placement, occupation, age when stopped full-time education, household composition, use of a fixed or a mobile telephone, size of locality, region of residence, and language of interview.
Curated
Simple Crosstabs

Health and Ways of Living Study, 1965 Panel: [Alameda County, California] (ICPSR 6688)

Released/updated on: 2013-12-04
Geographic coverage: United States, California
The purpose of this survey was to explore the influence of health practices and social relationships on the physical and mental health of a typical sample of the population in Alameda County, California. The information obtained for the 6,928 respondents (including approximately 500 women aged 65 years and older) covers chronic health conditions, health behaviors, social involvements, and psychological characteristics. Questions were asked about marital and life satisfaction, parenting, physical activities, employment, and childhood experiences. Demographic variables include data on respondetns' age, race, height, weight, education, income, and religion.
Curated

Health Behavior in School-Aged Children, 2001-2002 [United States] (ICPSR 4372)

Released/updated on: 2008-07-24
Geographic coverage: United States
Time period: 2001-01-01--2002-01-01
Since 1982, the World Health Organization (WHO) Regional Office for Europe has sponsored a cross-national, school-based study of health-related attitudes and behaviors of young people. These studies, generally known as Health Behavior in School-Aged Children (HBSC), are based on independent national surveys of school-aged children in as many as 30 participating countries. The HBSC studies were conducted every four years since the 1985-1986 school year. The data available here are from the results of the United States survey conducted during the 2001-2002 school year. The study results can be used as stand-alone data, or to compare with the other countries involved in the international HBSC. The HBSC study has two main objectives. The first objective is to monitor health-risk behaviors and attitudes in youth over time to provide background data and to identify targets for health promotion initiatives. The second objective is to provide researchers with relevant information in order to understand and explain the development of health attitudes and behaviors through early adolescence. The study contains variables dealing with many types of drugs such as tobacco, alcohol, marijuana, inhalants, and any other substances. The study examines the first time these substances were used and the frequency of their use. Other topics include questions about the person's health and other health behaviors. Some of these topics include eating habits, body image, health problems, family make-up, personal injuries, bullying, fighting, and bringing weapons to school. A school administrator and the lead health education teacher also completed individual surveys concerning school programs and policies that affect students' health and the content of various health courses.
Curated

Health Behavior in School-Aged Children (HBSC), 2005-2006 (ICPSR 28241)

Released/updated on: 2012-02-29
Geographic coverage: United States
Time period: 2005-01-01--2006-01-01
Since 1982, the World Health Organization (WHO) Regional Office for Europe has sponsored a cross-national, school-based study of health-related attitudes and behaviors of young people. These studies, generally known as Health Behavior in School-Aged Children (HBSC), are based on independent national surveys of school-aged children in more than 40 participating countries. The HBSC studies were conducted every four years since the 1985-1986 school year. The data available here are from the results of the United States survey conducted during the 2005-2006 school year. The study results can be used as stand-alone data, or to compare with the other countries involved in the international HBSC. The HBSC study has two main objectives. The first objective is to monitor health-risk behaviors and attitudes in youth over time to provide background data and to identify targets for health promotion initiatives. The second objective is to provide researchers with relevant information in order to understand and explain the development of health attitudes and behaviors through early adolescence. The study contains questions dealing with many types of drugs such as tobacco, alcohol, marijuana, and other substances. Other topics include questions about family composition, the student's physical health, and other health behaviors and attitudes. Some of these topics include eating habits, dieting, physical activity, body image, health problems, and bullying. A school administrator also completed a survey concerning the school's programs and policies that affect students' health and the content of various health courses.
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Simple Crosstabs

Health Behavior in School-Aged Children (HBSC), 2009-2010 (ICPSR 34792)

Released/updated on: 2013-11-20
Geographic coverage: United States
Time period: 2009-01-01--2010-01-01

Since 1982, the World Health Organization (WHO) Regional Office for Europe has sponsored a cross-national, school-based study of health-related attitudes and behaviors of young people. These studies, generally known as Health Behavior in School-Aged Children (HBSC), are based on independent national surveys of school-aged children in more than 40 participating countries. The HBSC studies were conducted every four years since the 1985-1986 school year. The data available here are from the results of the United States survey conducted during the 2009-2010 school year. The files contain data on 12,642 students from 314 participating schools. Of the 314 participating schools a school administrator questionnaire was completed by 283 of them. The study results can be used as stand-alone data, or to compare with the other countries involved in the international HBSC.

The HBSC study has two main objectives. The first objective is to monitor health-risk behaviors and attitudes in youth over time to provide background data and to identify targets for health promotion initiatives. The second objective is to provide researchers with relevant information in order to understand and explain the development of health attitudes and behaviors through early adolescence.

The study contains questions dealing with many types of drugs such as tobacco, alcohol, marijuana, and other substances. Other topics include questions about family composition, the student's physical health, and other health behaviors and attitudes. Some of these topics include eating habits, dieting, physical activity, body image, health problems, and bullying. A school administrator also completed a survey concerning the school's programs and policies that affect students' health and the content of various health courses.

Curated

Health Information National Trends Survey (HINTS), 2007 (ICPSR 25262)

Released/updated on: 2009-06-23
Geographic coverage: United States
The Health Information National Trends Survey (HINTS) collects nationally representative data about the American public's access to and use of cancer-related information. The 2007 HINTS survey is the third in an ongoing biannual series and provides information on the changing patterns, needs, and behavior in seeking and supplying cancer information and explores how cancer risks are perceived. Respondents were asked about the ways in which they obtained health information, their use of health care services, their views about medical information and research, and their beliefs about cancer. A series of questions specifically addressed cervical cancer, colon cancer, and the Human Papillomavirus (HPV). Information was also collected on physical and mental health status, diet, physical activity, sun exposure, history of cancer, tobacco use, and whether respondents had health insurance. Demographic variables include sex, age, race, education level, employment status, marital status, household income, number of people living in the household, ownership of residence, and whether respondents were born in the United States.
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Simple Crosstabs

Malawi Longitudinal Study of Families and Health (MLSFH), 1998-2021 (ICPSR 20840)

Released/updated on: 2026-03-04
Geographic coverage: Malawi, Africa
Time period: 1998-01-01--2021-01-01

The Malawi Longitudinal Study of Families and Health (MLSFH) is one of very few long-standing longitudinal cohort studies in a poor Sub-Saharan African (SSA) context. It provides a record of more than 25 years of demographic, socioeconomic, and health conditions in one of the world's poorest countries. Initial data collection began in 1998 under the Malawi Diffusion and Ideational Change Project (MDICP) to examine social networks and fertility decisions among married women and their husbands. While this initial study population is still followed, the scope of the project and population expanded to a broader focus on social and contextual determinants of health across the lifecourse in Malawi.

This collection includes Rounds 1 through 9 of the MLSFH, as well as supplemental data collections from Sexual Diaries, Migration Follow-Ups (MHM), a Biomarker Survey, Adverse Childhood Experiences (ACE), and a Benefits of Knowledge Intervention Survey. The MLSFH Data web page contains additional information and cohort profiles for all MLSFH data collections, including those not made available through ICPSR-DSDR.

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Simple Crosstabs

National Social Life, Health, and Aging Project (NSHAP): Round 3 and COVID-19 Study, [United States], 2015-2016, 2020-2021 (ICPSR 36873)

Released/updated on: 2024-09-09
Geographic coverage: United States
Time period: 2015-01-01--2016-01-01, 2020-01-01--2021-01-01

The National Social Life, Health and Aging Project (NSHAP) is a population-based study of health and social factors on a national scale, aiming to understand the well-being of older, community-dwelling Americans by examining the interactions among physical health, illness, medication use, cognitive function, emotional health, sensory function, health behaviors, and social connectedness. It is designed to provide health providers, policy makers, and individuals with useful information and insights into these factors, particularly on social and intimate relationships.

The National Opinion Research Center (NORC), along with Principal Investigators at the University of Chicago, conducted more than 3,000 interviews during 2005 and 2006 with a nationally representative sample of adults aged 57 to 85. Face-to-face interviews and biomeasure collection took place in respondents' homes. Round 3 was conducted from September 2015 through November 2016, where 2,409 surviving Round 2 respondents were re-interviewed, and a New Cohort consisting of adults born between 1948 and 1965 together with their spouses or co-resident partners was added. All together, 4,777 respondents were interviewed in Round 3. The following files constitute Round 3: Core Data, Social Networks Data, Disposition of Returning Respondent Partner Data, and Proxy Data.

Included in the Core files (Datasets 1 and 2) are demographic characteristics, such as gender, age, education, race, and ethnicity. Other topics covered respondents' social networks, social and cultural activity, physical and mental health including cognition, well-being, illness, history of sexual and intimate partnerships and patient-physician communication, in addition to bereavement items. In addition data on a panel of biomeasures including, weight, waist circumference, height, and blood pressure was collected. The Social Networks (Datasets 3 and 4) files detail respondents' current relationship status with each person identified on the network roster. The Disposition of Returning Respondent Partner (Datasets 5 and 6) files detail information derived from Section 6A items regarding the partner from Rounds 1 and 2 within the questionnaire. This provides a complete history for respondent partners across both rounds. The Proxy (Datasets 7 and 8) files contain final health data for Round 1 and Round 2 respondents who could not participate in NSHAP due to disability or death.

The COVID-19 sub-study, administered to NSHAP R3 respondents in the Fall of 2020, was a brief self-report questionnaire that probed how the coronavirus pandemic changed older adults' lives. The COVID-19 sub-study questionnaire was limited to assessing specific domains in which respondents may have been affected by the coronavirus pandemic, including: (1) COVID experiences, (2) health and health care, (3) job and finances, (4) social support, (5) marital status and relationship quality, (6) social activity and engagement, (7) living arrangements, (8) household composition and size, (9) mental health, (10) elder mistreatment, (11) health behaviors, and (12) positive impacts of the coronavirus pandemic. Questions about engagement in racial justice issues since the death of George Floyd in police custody were also added to facilitate analysis of the independent and compounding effects of both the COVID-19 pandemic and reckoning with longstanding racial injustice in America.

Curated

National Survey of Adolescents, 2004: Burkina Faso (ICPSR 22408)

Released/updated on: 2008-07-24
Geographic coverage: Burkina Faso, Africa, Sub-Saharan Africa
Time period: 2004-04-01--2004-06-01
The National Survey Adolescents was launched in 2004 in four Sub-Saharan African countries--Burkina Faso, Ghana, Malawi, and Uganda--to provide detailed information on adolescent risk-taking and health-seeking behavior as related to HIV, STDs and unintended pregnancy. The study examined a range of factors (e.g., behavioral, sociocultural, economic) that could lead to increased vulnerability to risk. The study also encompassed knowledge of means of prevention, sources of trusted information and health care, and impediments to adolescents' abilities to apply their knowledge and take preventive action. The survey in Burkina Faso was administered between April and June 2004. Using a two-stage stratified sample design that selected households from rural and urban clusters, 5,400 households were listed for initial screening. After an initial interview in each household, individual surveys were administered in person to adolescents between the ages of 12 and 19 who were de facto or de jure members of the household. This process collected 6,489 individual interviews with adolescents. Because of the sensitive nature of questions administered in the survey, informed consent forms were obtained from both parents/guardians and the respondents, and in all possible instances interviewers and respondents were paired by gender.
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National Survey of Adolescents, 2004: Ghana (ICPSR 22409)

Released/updated on: 2008-07-24
Geographic coverage: Africa, Ghana, Sub-Saharan Africa
Time period: 2004-01-01--2004-05-01
The National Survey Adolescents was launched in 2004 in four Sub-Saharan African countries--Burkina Faso, Ghana, Malawi, and Uganda--to provide detailed information on adolescent risk-taking and health-seeking behavior as related to HIV, STDs and unintended pregnancy. The study examined a range of factors (e.g., behavioral, sociocultural, and economic) that could lead to increased vulnerability to risk. The study also encompassed knowledge of means of prevention, sources of trusted information and health care, and impediments to adolescents' abilities to apply their knowledge and take preventive action. The Ghanian portion was administered between January and May 2004. Using a two-stage stratified sample design that selected households from rural and urban clusters, 9,445 households were listed for initial screening. After an initial interview in each household, individual surveys were administered in person to adolescents between the ages of 12 and 19 who were de facto or de jure members of the household. This process collected 4,430 individual interviews with adolescents. Because of the sensitive nature of questions administered in the survey, informed consent forms were obtained from both parents/guardians and the respondents, and in all possible instances interviewers and respondents were paired up by gender.
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National Survey of Adolescents, 2004: Malawi (ICPSR 22410)

Released/updated on: 2008-07-24
Geographic coverage: Malawi, Africa, Sub-Saharan Africa
Time period: 2004-03-01--2004-08-01
The National Survey Adolescents was launched in 2004 in four Sub-Saharan African countries--Burkina Faso, Ghana, Malawi, and Uganda--to provide detailed information on adolescent risk-taking and health-seeking behavior as related to HIV, STDs and unintended pregnancy. The study examined a range of factors (e.g., behavioral, sociocultural, economic) that could lead to increased vulnerability to risk. The study also encompassed knowledge of means of prevention, sources of trusted information and health care, and impediments to adolescents' abilities to apply their knowledge and take preventive action. The survey in Malawi was administered between March and June 2004 and again in August 2004. Using a two-stage stratified sample design that selected households from rural and urban clusters, 7,750 households were listed for initial screening. After an initial interview in each household, individual surveys were administered in person to adolescents between the ages of 12 and 19 who were de facto or de jure members of the household. However, during the initial data collection period this process collected only 3,448 individual interviews with adolescents. Consequently, in August 2004, researchers extended the surveys to additional clusters excluded during the first round of surveys bringing the total number of individuals to 4,879. Because of the sensitive nature of questions administered in the survey, informed consent forms were obtained from both parents/guardians and the respondents, and in all possible instances interviewers and respondents were paired up by gender.
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Simple Crosstabs

National Survey of Adolescents, 2004: Uganda (ICPSR 22411)

Released/updated on: 2018-07-09
Geographic coverage: Africa, Uganda, Sub-Saharan Africa
Time period: 2004-02-01--2004-07-01
The National Survey Adolescents was launched in 2004 in four Sub-Saharan African countries--Burkina Faso, Ghana, Malawi, and Uganda--to provide detailed information on adolescent risk-taking and health-seeking behavior as related to HIV, STDs and unintended pregnancy. The study examined a range of factors (e.g., behavioral, sociocultural, economic) that could lead to increased vulnerability to risk. The study also encompassed knowledge of means of prevention, sources of trusted information and health care, and impediments to adolescents' abilities to apply their knowledge and take preventive action. The Ugandan portion was administered between February and July 2004. Using a two-stage stratified sample design that selected households from rural and urban clusters, 7,106 households were listed for initial screening. After an initial interview in each household, individual surveys were administered in person to adolescents between the ages of 12 and 19 who were de facto or de jure members of the household. This process collected 6,659 individual interviews with adolescents. Because of the sensitive nature of questions administered in the survey, informed consent forms were obtained from both parents/guardians and the respondents, and in all possible instances interviewers and respondents were paired up by gender.
Curated

National Survey of America's Families (NSAF), 1997 (ICPSR 4581)

Released/updated on: 2007-10-04
Geographic coverage: United States
Time period: 1997-01-01--1997-11-01

The National Survey of America's Families (NSAF) is a household survey that provides a comprehensive look at quantitative measures of the well-being of children, adults, and their families. While the focus of the survey is at the state level, the scope is national -- with a primary emphasis on low-income families. NSAF information was gathered from interviews conducted with the Most Knowledgeable Adult (MKA), the person in the household who was most knowledgeable about the questions being asked about the respondent, their spouse/partner (if applicable) and the focal child (or children). Data were collected from more than 40,000 families in two stages. First, a screener interview was administered to determine whether a household was eligible to complete the second, extended interview.

Two types of extended interviews were administered. Option A interviews were used in households with children under age 18. Option B interviews were used in childless adult households and also with emancipated minors. The extended interview was divided into several sections and is labeled A through P below:

  • A. Student Status. This section contained two questions that asked whether the respondent was a student and whether that household was the respondent's usual residence.

  • B. Health Status and Satisfaction. These questions asked about the respondent's satisfaction with health care, access to health care, the health status of the focal children, and the health status of the respondent.

  • C. Parent/Child/Family Interaction and Education. This series of questions asked about education for focal children. Questions addressed the focal child's current grade (or the last grade completed) and the child's attitudes toward school and schoolwork, skipping school, suspensions, and changing schools. Questions were also asked about children over 11 years old working for pay and attending summer school.

  • D. Household Roster. In this section, the name, age, and sex of all persons living in the household were recorded, and relationships between all household members were investigated.

  • E. Health Care Coverage. Information was gathered about current health insurance coverage for the respondent, the respondent's spouse/partner, and the focal children. Questions were also asked about characteristics of that coverage and of periods in which family members had no insurance coverage.

  • F. Health Care Use and Access. This section gathered information about health status, health care services received, and necessary health care services that were postponed during the preceding 12 months. Questions on routine care, overnight stays in hospitals, dental care, mental health care, women's health care, well-child care, and prescription medicines were also included.

  • G. Child Care. In this section, respondents were queried as to child care arrangements including Head Start, child care centers, before- or after-school care, and babysitters. Questions were asked about the total number of hours per week in each care situation, the typical number of children cared for, the typical number of adult child care providers, and child care costs.

  • H. Nonresidential Parent/Father. These questions determined whether a focal child had a nonresident parent, how often the child saw his/her nonresident parent, whether the nonresident parent provided financial support, and whether nonresident parents were required by child support orders to provide financial support.

  • I. Employment and Earnings. This section contained a series of questions about the employment and earnings of the respondent and the spouse/partnerfor the current and preceding year. Topics included employment status, occupation, industry, employer-provided health insurance, hours worked, and earnings. Some questions were also asked about the earnings of other family members.

  • J. Family Income. Family income also was identified from a wide variety of sources other than earnings from employment. These sources included public assistance (e.g., Aid to Families with Dependent Children [AFDC], General Assistance, Emergency Assistance, or vouchers), Food Stamps, child support, foster care payments, financial assistance from friends or relatives, unemployment compensation, workers' compensation or veterans' payments, Supplemental Security Income, Social Security, pension or annuity income, interest or dividend income, income from rental property, or any other income source.

  • K. Welfare Program Participation. This section gathered detailed information about AFDC and Food Stamp benefits that the respondent might have received within the preceding two years. For both types of assistance, periods in which the respondent's benefits were reduced or eliminated were identified, as were strategies for coping during such times. Current AFDC or Food Stamp recipients were asked about any requirements they had to fulfill (e.g., job search, training, etc.) in order to receive these benefits. Recipients were also asked questions about awareness of time limits and experiences with diversion. For respondents with children, questions were asked about benefits received in the previous year through the supplemental food program for Women, Infants, and Children (WIC) and free or reduced-cost school breakfast and lunch programs.

  • L. Education and Training. This series of questions inquired about the highest grade completed, highest degree earned, participation in job training programs during the previous year, and classes taken for credit during the previous year.

  • M. Housing and Economic Hardship. Questions covered the respondent's living arrangements, the name(s) of the lease- or mortgage- holder(s) in the household, and the amount of rent or mortgage paid monthly. Information was collected about financial contributions by the respondent or his/her spouse or partner to children under 18 years old living outside the household. The effect of economic hardship on the family's food consumption and ability to pay for housing costs was also assessed.

  • N. Issues, Problems, and Social Services. Questions in this section covered the respondent's state of mind, feelings about his or her child (or children), constructive activities the child (or children) might have been involved with, the availability of social services in their community, problems the child (or children) might have had in the preceding year and efforts to obtain help for those problems, and the respondent's involvement in volunteer and religious activities.

  • O. Race, Ethnicity, and Nativity. Race and ethnicity were asked for the respondent, the spouse/partner, and the focal child (or children). For household members who were born outside the United States, country of origin and citizenship questions were asked.

  • P. Closing. At the end of the survey, respondents were asked their opinions about welfare and working and about raising children. Closing questions asked for the respondent's ZIP code and, in households with foreign-born individuals, tracing information for use in a follow-up survey.

The 1997 NSAF data are available in nine parts and are organized into hierarchical, flat household-, family-, person-, adult-, and child-level files. A description of each is provided below:

  1. Focal Child Data. This dataset contains data elements from the extended interview that are specific to focal children (FC1 and FC2). Select data items that were asked only of MKAs are also included. Information in this dataset is primarily from sections N (Issues, Problems, and Social Services) and P (Closing) of the extended interview. The dataset contains one record for each focal child.

  2. Adult Pair Data. Included in this dataset is information collected from the extended interview about both the respondent and the respondent's spouse/partner. There is one observation per respondent and one per spouse (where applicable). Information in this dataset is primarily from sections I (Employment and Earnings) and L (Education and Training) of the extended interview.

  3. Random Adult Data. Information in this person-level dataset is specific to a randomly selected adult, either the respondent or the spouse/partner. This situation occurs only in sections E (Health Insurance Coverage) and F (Health Care Access and Utilization) of the extended interview.

  4. Childless Adult Data. This dataset contains data elements from the extended interview that are asked only of the respondent in Option B interviews. Variables in this dataset come mainly from section N (Issue, Problems, and Social Services) and P (Closing). There is one record per Option B interview in the dataset.

  5. Family-Respondent Data. Information in this dataset centers around information about the family's use of health care and social services. This family-level dataset contains one observation per respondent. Because there could be more than one respondent per family, family-respondent level variables may have different values within a single family.

  6. Household Data. This household-level dataset contains general information about the household such as the demographic characteristics of its members. Also contained in this dataset are administrative and process data such as housing subsidies, public housing, the number of bedrooms in the house, whether the home was owned or rented, and information pertaining to screeners and the completion of interviews.

  7. Person Data. This dataset contains one observation for each person living in the household. Included in this dataset is demographic information as well as information on current health insurance status and income.

  8. Social Family Data. Included in this dataset are items asked about the social family and variables aggregated at the social family level. The social family includes not only married partners and their children, but also unmarried partners, all of their children, and members of the extended family (anyone related by blood to the MKA, the spouse/partner, or their children). Among the survey items included are those variables indicating whether anyone in the social family had a particular type of income and health insurance. Also included are variables summarizing information across all members of a social family, such as the number of family members. There is one record for each social family.

  9. CPS Family Data. Since the social family definition was used in fielding the NSAF, this dataset includes only variables created using the Current Population Survey (CPS) definition of family. A CPS family includes the householder, spouse of family householder, children in the family, and other relatives of the family household respondent. There is one record for each CPS family in this dataset.

Curated

National Survey of America's Families (NSAF), 2002 (ICPSR 4582)

Released/updated on: 2007-10-03
Geographic coverage: United States
Time period: 2002-02-01--2002-10-01

The National Survey of America's Families (NSAF) is a household survey that provides a comprehensive look at quantitative measures of the well-being of children, adults, and their families. While the focus of the survey is at the state level, the scope is national -- with a primary emphasis on low-income families. NSAF information was gathered from interviews conducted with the Most Knowledgeable Adult (MKA), the person in the household who was most knowledgeable about the questions being asked about the respondent, their spouse/partner (if applicable) and the focal child (or children). Data were collected from more than 40,000 families in two stages. First, a screener interview was administered to determine whether a household was eligible to complete the second, extended interview.

Two types of extended interviews were administered. Option A interviews were used in households with children under age 18. Option B interviews were used in childless adult households and also with emancipated minors. The extended interview was divided into several sections and is labeled A through P below:

  • A. Student Status. This section contained two questions that asked whether the respondent was a student and whether that household was the respondent's usual residence.

  • B. Health Status and Satisfaction. These questions asked about the respondent's satisfaction with health care, access to health care, the health status of the focal children, and the health status of the respondent. It also covered questions about the respondent's awareness of specific insurance programs such as Medicaid, and those associated with the Children's Health Insurance Program (CHIP).

  • C. Parent/Child/Family Interaction and Education. This series of questions asked about education for focal children. Questions addressed the focal child's current grade (or the last grade completed) and the child's attitudes toward school and schoolwork, skipping school, suspensions, and changing schools. Questions were also asked about children over 11 years old working for pay and attending summer school.

  • D. Household Roster. In this section, the name, age, and sex of all persons living in the household were recorded, and relationships between all household members were investigated.

  • E. Health Care Coverage. Information was gathered about current health insurance coverage for the respondent, the respondent's spouse/partner, and the focal children. Questions were also asked about characteristics of that coverage and of periods in which family members had no insurance coverage.

  • F. Health Care Use and Access. This section gathered information about health status, health care services received, and necessary health care services that were postponed during the preceding 12 months. Questions on routine care, overnight stays in hospitals, dental care, mental health care, women's health care, well-child care, and prescription medicines were also included.

  • G. Child Care. In this section, respondents were queried as to child care arrangements including Head Start, child care centers, before- or after-school care, and babysitters. Questions were asked about the total number of hours per week in each care situation, the typical number of children cared for, the typical number of adult child care providers, and child care costs.

  • H. Nonresidential Parent/Father. These questions determined whether a focal child had a nonresident parent, how often the child saw his/her nonresident parent, whether the nonresident parent provided financial support, and whether nonresident parents were required by child support orders to provide financial support.

  • I. Employment and Earnings. This section contained a series of questions about the employment and earnings of the respondent and the spouse/partner for the current and preceding year. Topics included employment status, occupation, industry, employer-provided health insurance, hours worked, and earnings. Some questions were also asked about the earnings of other family members.

  • J. Family Income. Family income was also identified from a wide variety of sources other than earnings from employment. These sources included public assistance (e.g., Temporary Assistance for Needy Families [TANF], General Assistance, Emergency Assistance, or vouchers), Food Stamps, child support, foster care payments, financial assistance from friends or relatives, unemployment compensation, workers' compensation or veterans' payments, Supplemental Security Income, Social Security, pension or annuity income, interest or dividend income, income from rental property, or any other income source.

  • K. Welfare Program Participation. This section gathered detailed information about TANF and Food Stamp benefits that the respondent might have received within the preceding two years. For both types of assistance, periods in which the respondent's benefits were reduced or eliminated were identified, as were strategies for coping during such times. Current TANF or Food Stamp recipients were asked about any requirements they had to fulfill (e.g., job search, training, etc.) in order to receive these benefits. Recipients were also asked questions about awareness of time limits and experiences with diversion. For respondents with children, questions were asked about benefits received in the previous year through the supplemental food program for Women, Infants, and Children (WIC) and free or reduced-cost school breakfast and lunch programs. Additional questions were asked about respondent experiences in obtaining government assistance for child care and health insurance through Medicaid and CHIP, and receipt and/or the use of the Earned Income Tax Credit (EITC) in any year between 1999 and 2002.

  • L. Education and Training. This series of questions inquired about the highest grade completed, highest degree earned, participation in job training programs during the previous year, and classes taken for credit during the previous year.

  • M. Housing and Economic Hardship. Questions covered the respondent's living arrangements, the name(s) of the lease- or mortgage- holder(s) in the household, and the amount of rent or mortgage paid monthly. Information was collected about financial contributions by the respondent or his/her spouse or partner to children under 18 years old living outside the household. The effect of economic hardship on the family's food consumption and ability to pay for housing costs was also assessed.

  • N. Issues, Problems, and Social Services. Questions in this section covered the respondent's state of mind, feelings about his or her child (or children), constructive activities the child (or children) might have been involved with, the availability of social services in their community, problems the child (or children) might have had in the preceding year and efforts to obtain help for those problems, and the respondent's involvement in volunteer and religious activities.

  • O. Race, Ethnicity, and Nativity. Race and ethnicity were asked for the respondent, the spouse/partner, and the focal child (or children). For household members who were born outside the United States, country of origin and citizenship questions were asked.

  • P. Closing. At the end of the survey, respondents were asked their opinions about welfare and working and about raising children. Respondents' ZIP code and address were also requested.

  • The 2002 NSAF data are available in nine parts and are organized into hierarchical, flat household-, family-, person-, adult-, and child-level files. A description of each is provided below:

    1. Focal Child Data. This dataset contains data elements from the extended interview that are specific to focal children (FC1 and FC2). Select data items that were asked only of MKAs are also included. Information in this dataset is primarily from sections N (Issues, Problems, and Social Services) and P (Closing) of the extended interview. The dataset contains one record for each focal child.

    2. Adult Pair Data. Included in this dataset is information collected from the extended interview about both the respondent and the respondent's spouse/partner. There is one observation per respondent and one per spouse (where applicable). Information in this dataset is primarily from sections I (Employment and Earnings) and L (Education and Training) of the extended interview.

    3. Random Adult Data. Information in this person-level dataset is specific to a randomly selected adult, either the respondent or the spouse/partner. This situation occurs only in sections E (Health Insurance Coverage) and F (Health Care Access and Utilization) of the extended interview.

    4. Childless Adult Data. This dataset contains data elements from the extended interview that are asked only of the respondent in Option B interviews. Variables in this dataset come mainly from section N (Issue, Problems, and Social Services) and P (Closing). There is one record per Option B interview in the dataset.

    5. Family-Respondent Data. Information in this dataset centers around information about the family's use of health care and social services. This family-level dataset contains one observation per respondent. Because there could be more than one respondent per family, family-respondent level variables may have different values within a single family.

    6. Household Data. This household-level dataset contains general information about the household such as the demographic characteristics of its members. Also contained in this dataset are administrative and process data such as housing subsidies, public housing, the number of bedrooms in the house, whether the home is owned or rented, and information pertaining to screeners and the completion of interviews.

    7. Person Data. This dataset contains one observation for each person living in the household. Included in this dataset is demographic information as well as information on current health insurance status and income.

    8. Social Family Data. Included in this dataset are items asked about the social family and variables aggregated at the social family level. The social family includes not only married partners and their children, but also unmarried partners, all of their children, and members of the extended family (anyone related by blood to the MKA, the spouse/partner, or their children). Among the survey items included are those variables indicating whether anyone in the social family had a particular type of income and health insurance. Also included are variables summarizing information across all members of a social family, such as the number of family members. There is one record for each social family.

    9. CPS Family Data. Since the social family definition was used in fielding the NSAF, this dataset includes only variables created using the Current Population Survey (CPS) definition of family. A CPS family includes the householder, spouse of family householder, children in the family, and other relatives of the family household respondent. There is one record for each CPS family in this dataset.

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Puerto Rican Elder: Health Conditions (PREHCO) Project, 2021-2024 (ICPSR 39091)

Released/updated on: 2026-03-31
Geographic coverage: Puerto Rico, United States
Time period: 2021-03-01--2024-07-31

These are the third and fourth waves of the PREHCO project (Puerto Rican Elder Health Conditions study) and have been developed between 2021 and 2024 as a collaboration between the University of Alabama at Birmingham and the University of Puerto Rico. The project began as a cross-sectional study of the non-institutionalized population aged 60 years or older in Puerto Rico. These waves followed the survivors of the original participants at the beginning of the fieldwork and aimed to examine the predictors of cognitive decline, disability, and mortality. The fourth wave of this study extends the follow-up of PREHCO to between 21 and 22 years after the initial data collection and aims to examine the predictors of cognitive decline, disability, and mortality.

PREHCO was designed as a study comparable to the Multicenter Project on Health and Well-being of Older Adults in Latin America and the Caribbean (SABE) developed by the Pan American Health Organization (PAHO) in several cities in Latin America, and with some studies carried out in the United States, mainly the Health and Retirement Study (HRS).

For this purpose, a questionnaire was designed that included sections on health conditions, physical and mental disability, functionality, use of medicines, health needs and social services, access to and use of health services, abuse, migration, housing conditions, patterns of help from family, community and public and government agencies, and others.

Since its inception, PREHCO has been funded with federal funds from the National Institute on Aging (NIA). Initially it was a project between the University of Wisconsin-Madison and the University of Puerto Rico from 2000-2009.

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Puerto Rican Elderly: Health Conditions (PREHCO) Project, 2002-2003, 2006-2007 (ICPSR 34596)

Released/updated on: 2013-09-13
Geographic coverage: Puerto Rico, United States
Time period: 2002-01-01--2007-01-01
The Puerto Rican Elderly: Health Conditions (PREHCO) study investigates issues affecting the elderly (individuals over 60 years of age) population in Puerto Rico: health status, housing arrangements, functional status, transfers, labor history, migration, income, childhood characteristics, health insurance, use of health services, marital history, mistreat, sexuality, etc. It is an island-wide, longitudinal sample survey of target individuals and their spouses with two waves of data collection: 2002-2003 and 2006-2007.
Curated

Religion, Aging, and Health Survey, 2001, 2004 [United States] (ICPSR 3255)

Released/updated on: 2006-04-17
Geographic coverage: United States
This data collection looks at religion, self-rated health, depression, and psychological well-being in a sample of older Blacks and older Whites (aged 65 and over) within the United States. Questions were asked regarding religious status, activities, and beliefs among those who currently practice the Christian faith, those who used to be Christian but are not now, and those who have never been associated with any religion during their lifetimes. Demographic variables include age, race, sex, education, and income. Wave II was collected in 2004 and reinterviewed 1,024 respondents. There were 75 respondents who refused to participate, 112 who could not be located, 70 that were too ill for participation, 11 who had moved to nursing homes and 208 were deceased.
Curated

Study of Women's Health Across the Nation (SWAN), 1998-2001: Family Medical History From Visits 02, 03, and 04 (ICPSR 30181)

Released/updated on: 2014-02-13
Geographic coverage: Inkster, Hackensack, United States, Chicago, Ypsilanti, California, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 1998-02-15--2001-06-01
The Study of Women's Health Across the Nation (SWAN) is a multisite longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers, and women learn how mid-life experiences affect health and quality of life during aging. The study is co-sponsored by the National Institute on Aging (NIA) and the National Institute of Health (NIH), Office of Research on Women's Health. The study began in 1994. Between 1998 and 2001, 2,829 of the 3,302 women that joined SWAN participated in a collection of family history data. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan); Boston, MA (Massachusetts General Hospital); Chicago, IL (Rush Presbyterian-St. Luke's Medical Center); Almeda and Contra Costa County, CA (University of California, Davis and Kaiser Permanente); Los Angeles, CA (University of California, Los Angeles); Hackensack, NJ (Hackensack University Medical Center); and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.
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Study of Women's Health Across the Nation (SWAN), 2003-2005: Visit 07 Dataset (ICPSR 31901)

Released/updated on: 2025-07-10
Geographic coverage: Inkster, Contra Costa County, Alameda County, United States, Chicago, Ypsilanti, California, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 2003-05-15--2005-01-31
The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. Data were collected about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. The study began in 1994. Between 2003 and 2005, 2,327 of the 3,302 women that joined SWAN were seen for their seventh follow-up visit. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan); Boston, MA (Massachusetts General Hospital); Chicago, IL (Rush Presbyterian-St. Luke's Medical Center); Alameda and Contra Costa County, CA (University of California-Davis and Kaiser Permanente); Los Angeles, CA (University of California-Los Angeles); Hackensack, NJ (Hackensack University Medical Center); and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. Though the New Jersey site was still part of the study, data was not collected from this site for the seventh visit. Demographic and background information includes age, language of interview, marital status, household composition, and employment.
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Study of Women's Health Across the Nation (SWAN): Baseline Dataset, [United States], 1996-1997 (ICPSR 28762)

Released/updated on: 2019-05-15
Geographic coverage: Detroit, United States, Chicago, California, Oakland, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Newark, Boston, Pittsburgh
Time period: 1996-01-01--1997-11-30

The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers, and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause.

The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 1996 and 1997, 3,302 participants joined SWAN through 7 designated research centers. The research centers are located in the following communities: Detroit, MI; Boston, MA; Chicago, IL; Oakland and Los Angeles, CA; Newark, NJ; and Pittsburgh, PA. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. This is the next phase of data collection after the original collection of the screening data (ICPSR 4368).

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Study of Women's Health Across the Nation (SWAN): Cross-Sectional Screener Dataset, [United States], 1995-1997 (ICPSR 4368)

Released/updated on: 2019-03-11
Geographic coverage: Detroit, United States, Chicago, California, Oakland, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Newark, Boston, Pittsburgh
Time period: 1995-01-01--1997-01-01

This collection includes screener data collected as part of the Study of Women's Health Across the Nation (SWAN), which is a multi-site longitudinal, epidemiologic study which began in 1994 and was designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers, and women learn how mid-life experiences affect health and quality of life during aging. This data includes questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. Also included in the data are background characteristics (age, race, occupation, education, marital status, and family size).

The SWAN study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The screener dataset contains information from 16,142 women who responded to the SWAN cross-sectional screening interview during the period from 11/1/1995 through 12/1/1997 from the 7 clinical sites participating in the SWAN longitudinal study. The sites include Boston, Massachusetts, Pittsburgh, Pennsylvania, Oakland and Los Angeles, California, Detroit, Michigan, Newark, New Jersey and Chicago, Illinois. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.

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Study of Women's Health Across the Nation (SWAN): Visit 01 Dataset, [United States], 1997-1999 (ICPSR 29221)

Released/updated on: 2019-05-02
Geographic coverage: Detroit, United States, Chicago, California, Oakland, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Newark, Boston, Pittsburgh
Time period: 1997-02-01--1999-01-31

The Study of Women's Health Across the Nation (SWAN) is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause.

The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 1997 and 1999, 2,881 of the 3,302 women that joined SWAN were seen for their first follow-up visit. The research centers are located in the following communities: Detroit, MI; Boston, MA; Chicago, IL; Oakland and Los Angeles, CA; Newark, NJ; and Pittsburgh, PA. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.

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Study of Women's Health Across the Nation (SWAN): Visit 02 Dataset, [United States], 1998-2000 (ICPSR 29401)

Released/updated on: 2019-05-02
Geographic coverage: Detroit, United States, Chicago, California, Oakland, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Newark, Boston, Pittsburgh
Time period: 1998-02-01--2000-01-01

The Study of Women's Health Across the Nation (SWAN) is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. Also included in the data are background characteristics (age, race, occupation, education, marital status, and family size).

The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 1998 and 2000, 2,748 of the 3,302 women that joined SWAN were seen for their second follow-up visit. The research centers are located in the following communities: Boston, Massachusetts, Pittsburgh, Pennsylvania, Oakland and Los Angeles, California, Detroit, Michigan, Newark, New Jersey and Chicago, Illinois. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.

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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN): Visit 03 Dataset, [United States], 1999-2001 (ICPSR 29701)

Released/updated on: 2019-05-29
Geographic coverage: Detroit, United States, Chicago, California, Oakland, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Newark, Boston, Pittsburgh
Time period: 1999-02-01--2001-01-31

The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers, and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information.

The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 1999 and 2001, 2,710 of the 3,302 women that joined SWAN were seen for their third follow-up visit. The research centers are located in the following communities: Detroit, Michigan; Boston, Massachusetts; Chicago, Illinois; Oakland and Los Angeles, California; Newark, New Jersey; and Pittsburgh, Pennsylvania. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.

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Study of Women's Health Across the Nation (SWAN): Visit 04 Dataset, [United States], 2000-2002 (ICPSR 30142)

Released/updated on: 2019-05-15
Geographic coverage: Detroit, United States, Chicago, California, Oakland, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Newark, Boston, Pittsburgh
Time period: 2000-03-01--2002-01-31

The Study of Women's Health Across the Nation (SWAN) is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause.

The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 2000 and 2002, 2,679 of the 3,302 women that joined SWAN were seen for their second follow-up visit. The research centers are located in the following communities: Boston, Massachusetts, Pittsburgh, Pennsylvania, Oakland and Los Angeles, California, Detroit, Michigan, Newark, New Jersey and Chicago, Illinois. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.

Curated

Supporting Healthy Marriage Evaluation: Eight Sites within the United States, 2003-2013 (ICPSR 34420)

Released/updated on: 2014-12-19
Geographic coverage: United States, Oklahoma, Texas, Kansas, Florida, New York (state), Washington, Pennsylvania
Time period: 2003-01-01--2014-01-01

The Supporting Healthy Marriage (SHM) evaluation was launched in 2003 to develop, to implement, and to test the effectiveness of a program aimed at strengthening low-income couples' marriages as one approach for supporting stable and nurturing family environments and parents' and children's well-being. The evaluation was led by MDRC and was sponsored by the Office of Planning, Research and Evaluation in the Administration for Children and Families, United States Department of Health and Human Services.The SHM program was a voluntary yearlong marriage education program for low-income married couples who had children or were expecting a child. The program provided a series of group workshops based on structured curricula designed to enhance couples' relationships; supplemental activities to build on workshop themes; and family support services to address participation barriers, connect families with other services, and reinforce curricular themes.

The study sample consists of 6,298 couples (12,596 adult sample members) who were expecting a child or had a child under 18 years old at the time of study entry. The sample consists primarily of low-to-modest income, married couples with diverse racial and ethnic backgrounds. In each family, one child was randomly selected to be the focus of any child-related measures gathered in the data collection activities. These children ranged from pre-birth to 14 years old at the time of enrollment in the study. Follow-up interviews were conducted at 12 and 30 months after baseline data collection. More detail is provided in the study documentation.

Curated
Simple Crosstabs

Survey of HIV Status and Fertility Preferences in Sub-Saharan Africa, 2009-2010 (ICPSR 36718)

Released/updated on: 2017-04-10
Geographic coverage: Southern Province, Africa, Zambia, Lusaka, Northern Province, Sub-Saharan Africa
Time period: 2009-01-01--2010-01-01
The Survey of HIV Status and Fertility Preference in Sub-Saharan Africa 2009-2010 is one of eight community-based surveys conducted in Zambia and Nigeria exploring how HIV status relates to attitudinal and behavioral measures regarding HIV services and fertility preferences. Information was collected from 1,441 Zambian women aged 18-49 on topics such as fertility preferences, HIV status, pregnancy intention, current and previous pregnancies, attitudes toward and use of family planning, current and past sexual activity, past abortions, attitudes toward and knowledge about HIV, and attitudes toward and use of HIV services. Demographic variables include age, urban/rural location, native language, education, religion, and marital status.
Curated

Youth Risk Behavior Surveillance System (YRBSS) (ICPSR 28422)

Released/updated on: 2010-06-08
Geographic coverage: United States
The Youth Risk Behavior Surveillance System (YRBSS) monitors priority health-risk behaviors and the prevalence of obesity and asthma among youth and young adults. The YRBSS includes a national school-based survey conducted by the Centers for Disease Control and Prevention (CDC) and state, territorial, tribal, and district surveys conducted by state, territorial, and local education and health agencies and tribal governments.
Curated
Simple Crosstabs

The Zika Women's Panel Study on Shifting Risk Perceptions, United States, 2016-2017 (ICPSR 37240)

Released/updated on: 2019-01-14
Geographic coverage: United States
Time period: 2016-01-01--2017-01-01
This collection consists of a repeated panel survey that explored attitudes and behaviors related to the emerging Zika virus in 2016-2017. The respondents consisted of women of child-bearing age, ages 18-45, residing in the United States. Three waves of data collection were conducted between July 25, 2016 and Dec 22, 2017. Demographic variables include questions related to age, race, highest level of education, household income, and political affiliation.
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