Americans' Changing Lives: Waves I, II, III, IV, V, and VI, 1986, 1989, 1994, 2002, 2011, and 2021 (ICPSR 4690)
The Americans' Changing Lives (ACL) survey series is an ongoing, nationally representative, longitudinal study focusing especially on differences between Black and White Americans in middle and late life. These data constitute the first, second, third, fourth, fifth, and sixth waves in a panel survey covering a wide range of sociological, psychological, mental, and physical health items. Wave I of the study began in 1986 with a nation face-to-face survey of 3,617 adults ages 25 and up, with Black Americans and people aged 60 and over over-sampled at twice the rate of the others. Wave II constitutes face-to-face re-interviews in 1989 of those still alive. Survivors have been re-interviewed by telephone, and when necessary face-to-face, in 1994 (Wave III), 2001/02 (Wave IV), 2011 (Wave V), and 2019/21 (Wave VI).
Please note that for Wave VI, the majority of data collection occurred in 2019, with only a small subset (n=39) of participants surveyed in 2021.
ACL was designed and sought to investigate the following: (1) The ways in which a wide range of activities and social relationships that people engage in are broadly "productive," (2) how individuals adapt to acute life events and chronic stresses that threaten the maintenance of health, effective functioning, and productive activity, and (3) sociocultural variations in the nature, meaning, determinants, and consequences of productive activity and relationships. Among the topics covered are interpersonal relationships (spouse/partner, children, parents, friends), sources and levels of satisfaction, social interactions and leisure activities, traumatic life events (physical assault, serious illness, divorce, death of a loved one, financial or legal problems), perceptions of retirement, health behaviors (smoking, alcohol consumption, overweight, rest), and utilization of health care services (doctor visits, hospitalization, nursing home institutionalization, bed days). Also included are measures of physical health, psychological well-being, and indices referring to cognitive functioning.
Demographic information provided for individuals includes household composition, number of children and grandchildren, employment status, occupation and work history, income, family financial situation, religious beliefs and practices, ethnicity, race, education, sex, and region of residence.
Changing Lives of Older Couples (CLOC): A Study of Spousal Bereavement in the Detroit Area, 1987-1993 (ICPSR 3370)
Charleston Heart Study, Charleston, South Carolina, 1960-2000 (ICPSR 4050)
Collaborative Psychiatric Epidemiology Surveys (CPES), 2001-2003 [United States] (ICPSR 20240)
CTDA 1005: Posttraumatic Stress and Depression Risk Screening in Children Age 8 to 17 Seen in the Emergency Department for Unintentional Injury and Their Parents, United States, 2003 (ICPSR 39173)
After pediatric injury, posttraumatic stress and other emotional outcomes in children and their parents often go unrecognized and untreated. This is due in part to the challenges in identifying at-risk children and their parents in the emergency care setting. The aims of this study were to assess the extent to which nurses were able to implement a brief screener for posttraumatic stress symptoms risk within the course of normal care of injured patients, and to assess posttraumatic stress and depression symptoms in injured children (aged 8-17 years) and their parents after emergency department care, and the relationship of these symptoms to parent-reported overall recovery.
CTDA 1009: Posttraumatic Stress and Depression in Adolescents Age 12 to 17 Seen in the Emergency Department for Violent Injury, United States, 2001-2003 (ICPSR 39195)
Because the emergency department (ED) is often the only point of contact with the health care system for violently injured adolescents, it provides a unique opportunity to assess children following a violent injury. In violently injured teens, depressive and acute posttraumatic stress symptoms may help predict future behavioral risk factors and reinjury. The objective of this study was to examine whether emergency department (ED) assessments of depressive and posttraumatic stress symptoms after an episode of interpersonal violence are associated with future risk behaviors, re-injury and posttraumatic stress symptoms in adolescents.
Injured adolescents (age 12-17 years) were assessed for posttraumatic stress and depression symptoms and self-reported risk behaviors either during or soon after (within 2 weeks) an ED visit and completed a telephone follow-up assessment between 6 and 18 months later, during which they were assessed again for self-reported risk behaviors, posttraumatic stress symptoms and re-injury.
CTDA 1010: Posttraumatic Stress in Children Age 6 to 16 Hospitalized for Accident-Related Injury and Their Parents, Australia, 2000-2004 (ICPSR 39198)
Trajectory modeling can identify patterns of posttraumatic stress symptoms in children and parents. This study aimed to describe trajectories of child and parent posttraumatic stress symptoms across 2 years post-injury, and to examine potential risk factors predicting problematic trajectories. The study enrolled children age 7 to 16 admitted to general or intensive care units for treatment of accidental injury, and one parent/caregiver per child. Within 2 weeks of injury, and at 4-6 weeks, 6 months, and (a subset) at 2 years post-injury, children and parents were assessed for posttraumatic stress symptoms. Parents also completed measures of parenting behavior and pre-injury child mental health.
CTDA 1022: Posttraumatic Stress in Children Age 7 to 17 Seen in Hospital for Acute Injury, Australia, 2004-2006 (ICPSR 39196)
The broad aims of this overall project were to examine predictors of children's adjustment, mainly post-traumatic stress disorder (PTSD), after a single-incident injury. The overarching hypothesis was that a combination of physiological/biological, cognitive, and parental anxiety factors would predict children's later adjustment. The dataset in this collection comes from the combination of two broad projects that recruited from the same hospitals, with the first (smaller) project being built upon by the second project (which contained additional measures and an additional follow-up).
Children and adolescents aged 7 to 17 and their families (n=135) were recruited for the study after presentation to either of two major metropolitan Australian hospitals following a single-incident injury. Children's heart rate was recorded at hospital triage. Children and parents completed risk screening measures within 4 weeks of injury. Measures for cognitive appraisals, social support, traumatic stress, depression, and anxiety symptoms were assessed at 3 months and 6 months post-injury.
CTDA 1032: Posttraumatic Stress in Children Age 7 to 15 Hospitalized for Burn or Traffic Injury and Their Parents, Switzerland, 2016-2018 (ICPSR 39197)
This study enrolled children ages 7 to 15 who received medical care at the hospital after an acute traffic accident or burn injury, and up to two parents/caregivers per child. Within 1 month of injury, and at 3 months, and 6 months post-injury, children and parents were assessed for posttraumatic stress symptoms (PTSS) and depression. Parents also completed measures of their own anxiety symptoms and of child behavior and health-related quality of life. The study aimed to achieve a better understanding of dysfunctional trauma-related cognitions considering child and environmental factors in a cross-sectional and a longitudinal design.
CTDA 1035: Posttraumatic Stress in Children Age 8 to 16 and Their Parents After Hurricane, United States, 2005-2008 (ICPSR 39322)
The overall objective of this study was to examine trajectories and predictors of posttraumatic stress and depression in children and parents after a major hurricane, with a particular focus on hurricane exposure and on parenting variables that might be amenable to intervention.
Three months after the hurricane, the study enrolled students in grades four through eight (age 8 to 16) in local schools and invited parent participation, and conducted assessments at four time points post-hurricane. Children reported on prior violence exposure and hurricane-related trauma exposure, and on posttraumatic stress, coping, social support; and parents reported on child behavior as well as their own posttraumatic stress and other mental health symptoms, coping, and parenting practices. (Note: The current dataset does not include measures of parenting practices.)
Epidemiology of Depression and Help-Seeking Behavior, 1979-1983, Los Angeles, California (ICPSR 24761)
Filipino American Community Epidemiological Study (FACES), 1995-1999 (ICPSR 29262)
Hispanic Established Populations for the Epidemiologic Studies of the Elderly, 1993-1994: [Arizona, California, Colorado, New Mexico, and Texas] (ICPSR 2851)
Hispanic Health and Nutrition Examination Survey, 1982-1984 (ICPSR 8535)
The Irish Longitudinal Study on Ageing (TILDA), Wave 1, 2009-2011 (ICPSR 34315)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The TILDA Series data files, including studies 34315, 38681, 37105, 37106, 38670, 38674, are no longer available from ICPSR and NACDA at the request of the data producer due to concerns related to EU and Irish data privacy and data sharing rules. Individuals interested in obtaining TILDA data access at this time should reach out to the TILDA project directly (https://tilda.tcd.ie/data/accessing-data/).
The Irish Longitudinal Study on Ageing (TILDA) is a major inter-institutional initiative led by Trinity College Dublin which aims to produce a massive improvement in the quantity and quality of data, research and information relating to older people and ageing in Ireland. Eligible respondents for this study include individuals aged 50 and over and their spouses or partners of any age. The study involves interviews on a two yearly basis with a sample cohort of 8,504 people aged 50 and over (or their spouses/partners) and resident in Ireland, collecting detailed information on all aspects of their lives, including the economic (pensions, employment, living standards), health (physical, mental, service needs and usage) and social aspects (contact with friends and kin, formal and informal care, social participation). Both survey interviews and physical and biological measurements are utilized. Demographic and background variables include age, sex, marital status, household composition, education, and employment.
The Irish Longitudinal Study on Ageing (TILDA), Wave 3, 2014-2015 (ICPSR 37106)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The TILDA Series data, including studies 34315, 38681, 37105, 37106, 38670, 38674, are currently unavailable at the request of the data producer due to concerns related to EU and Irish data privacy and data sharing rules. We are working to determine the best solution to continue to share these data with the research community. Individuals interested in obtaining TILDA data access at this time should reach out to the TILDA project directly (https://tilda.tcd.ie/data/accessing-data/).
The Irish Longitudinal Study on Ageing (TILDA) is a major inter-institutional initiative led by Trinity College Dublin which aims to produce a massive improvement in the quantity and quality of data, research and information relating to older people and ageing in Ireland. Eligible respondents for this study include individuals aged 50 and over and their spouses or partners of any age. The study involves interviews on a two yearly basis with a sample cohort of 8,504 people aged 50 and over (or their spouses/partners) and resident in Ireland, collecting detailed information on all aspects of their lives, including the economic (pensions, employment, living standards), health (physical, mental, service needs and usage) and social aspects (contact with friends and kin, formal and informal care, social participation). Both survey interviews and physical and biological measurements are utilized.
The third wave of TILDA interviews were undertaken between March 2014 and October 2015. Of the 7,445 interviewed in Wave 2, a third interview was obtained for 6,874 respondents. These consisted of the self, proxy and end-of-life interviews types. In addition to the returning respondents, 28 interviews were obtained from eligible household members who had chosen not to take part in Wave 1 or the new spouses/partners of existing respondents.
Demographic and background variables include age, sex, marital status, household composition, education, and employment.
The Irish Longitudinal Study on Ageing (TILDA), Wave 4, 2016 (ICPSR 38670)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The TILDA Series data, including studies 34315, 38681, 37105, 37106, 38670, 38674, are currently unavailable at the request of the data producer due to concerns related to EU and Irish data privacy and data sharing rules. We are working to determine the best solution to continue to share these data with the research community. Individuals interested in obtaining TILDA data access at this time should reach out to the TILDA project directly (https://tilda.tcd.ie/data/accessing-data/).
The Irish Longitudinal Study on Ageing (TILDA) is a major inter-institutional initiative led by Trinity College Dublin which aims to produce a massive improvement in the quantity and quality of data, research and information relating to older people and ageing in Ireland. Eligible respondents for this study include individuals aged 50 and over and their spouses or partners of any age. The study involves interviews on a one year basis with a sample cohort of residents of Ireland, collecting detailed information on all aspects of their lives, including the economic (pensions, employment, living standards), health (physical, mental, service needs and usage) and social aspects (contact with friends and kin, formal and informal care, social participation). Both survey interviews and physical and biological measurements are utilized.
The fourth wave of TILDA interviews were undertaken between January and December 2016. A total of 5,713 participants completed the self-interview.
Demographic and background variables include age, sex, marital status, household composition, education, and employment.
The Irish Longitudinal Study on Ageing (TILDA), Wave 5, 2018 (ICPSR 38674)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The TILDA Series data, including studies 34315, 38681, 37105, 37106, 38670, 38674, are currently unavailable at the request of the data producer due to concerns related to EU and Irish data privacy and data sharing rules. We are working to determine the best solution to continue to share these data with the research community. Individuals interested in obtaining TILDA data access at this time should reach out to the TILDA project directly (https://tilda.tcd.ie/data/accessing-data/).
The Irish Longitudinal Study on Ageing (TILDA) is a major inter-institutional initiative led by Trinity College Dublin which aims to produce a massive improvement in the quantity and quality of data, research and information relating to older people and ageing in Ireland. Eligible respondents for this study include individuals aged 50 and over and their spouses or partners of any age. The study involves interviews on a one year basis with a sample cohort of residents of Ireland, collecting detailed information on all aspects of their lives, including the economic (pensions, employment, living standards), health (physical, mental, service needs and usage) and social aspects (contact with friends and kin, formal and informal care, social participation). Both survey interviews and physical and biological measurements are utilized.
The fifth wave of TILDA interviews were undertaken between January and December 2018. A total of 4,978 participants completed the self-interview.
Demographic and background variables include age, sex, marital status, household composition, education, and employment.
Midlife in the United States (MIDUS 1) National Study of Daily Experiences (NSDE), 1996-1997 (ICPSR 3725)
National Health and Nutrition Examination Survey (NHANES), 1999-2000 (ICPSR 25501)
National Health and Nutrition Examination Survey (NHANES), 2001-2002 (ICPSR 25502)
National Health and Nutrition Examination Survey (NHANES), 2003-2004 (ICPSR 25503)
The National Health and Nutrition Examination Surveys (NHANES) is a program of studies designed to assess the health and nutritional status of adults and children in the United States. The NHANES combines personal interviews and physical examinations, which focus on different population groups or health topics. These surveys have been conducted by the National Center for Health Statistics (NCHS) on a periodic basis from 1971 to 1994. In 1999 the NHANES became a continuous program with a changing focus on a variety of health and nutrition measurements which were designed to meet current and emerging concerns. The surveys examine a nationally representative sample of approximately 5,000 persons each year. These persons are located in counties across the United States, 15 of which are visited each year.
For NHANES 2003-2004, there were 12,761 persons selected for the sample, 10,122 of those were interviewed (79.3 percent) and 9,643 (75.6 percent) were examined in the mobile examination centers (MEC). Many of the NHANES 2003-2004 questions were also asked in NHANES II 1976-1980, Hispanic HANES 1982-1984, NHANES III 1988-1994, and NHANES 1999-2002. New questions were added to the survey based on recommendations from survey collaborators, NCHS staff, and other interagency work groups. As in past health examination surveys, data were collected on the prevalence of chronic conditions in the population. Estimates for previously undiagnosed conditions, as well as those known to and reported by survey respondents, are produced through the survey. Risk factors, those aspects of a person's lifestyle, constitution, heredity, or environment that may increase the chances of developing a certain disease or condition, were examined. Data on smoking, alcohol consumption, sexual practices, drug use, physical fitness and activity, weight, and dietary intake were collected. Information on certain aspects of reproductive health, such as use of oral contraceptives and breastfeeding practices, were also collected. The diseases, medical conditions, and health indicators that were studied include: anemia, cardiovascular disease, diabetes and lower extremity disease, environmental exposures, equilibrium, hearing loss, infectious diseases and immunization, kidney disease, mental health and cognitive functioning, nutrition, obesity, oral health, osteoporosis, physical fitness and physical functioning, reproductive history and sexual behavior, respiratory disease (asthma, chronic bronchitis, emphysema), sexually transmitted diseases, skin diseases, and vision. The sample for the survey was selected to represent the United States population of all ages. Special emphasis in the 2003-2004 NHANES was on adolescent health and the health of older Americans. To produce reliable statistics for these groups, adolescents aged 15-19 years and persons aged 60 years and older were over-sampled for the survey. African Americans and Mexican Americans were also over-sampled to enable accurate estimates for these groups. Several important areas in adolescent health, including nutrition and fitness and other aspects of growth and development, were addressed. Since the United States has experienced dramatic growth in the number of older people during the twentieth century, the aging population has major implications for health care needs, public policy, and research priorities. NCHS is working with public health agencies to increase the knowledge of the health status of older Americans. NHANES has a primary role in this endeavor. In the examination, all participants visit the physician who takes their pulse or blood pressure. Dietary interviews and body measurements are included for everyone. All but the very young have a blood sample taken and see the dentist. Depending upon the age of the participant, the rest of the examination includes tests and procedures to assess the various aspects of health listed above. Usually, the older the individual, the more extensive the examination. Some persons who are unable or unwilling to come to the examination center may be given a less extensive examination in their homes.
Demographic data file variables are grouped into three broad categories: (1) Status Variables: provide core information on the survey participant. Examples of the core variables include interview status, examination status, and sequence number. (Sequence number is a unique ID assigned to each sample person and is required to match the information on this demographic file to the rest of the NHANES 2003-2004 data). (2) Recoded Demographic Variables: these variables include age (age in months for persons through age 19 years, 11 months; age in years for 1- to 84-year-olds, and a top-coded age group of 85 years of age and older), gender, a race/ethnicity variable, current or highest grade of education completed, (less than high school, high school, and more than high school education), country of birth (United States, Mexico, or other foreign born), Poverty Income Ratio (PIR), income, and a pregnancy status variable (adjudicated from various pregnancy related variables). Some of the groupings were made due to limited sample sizes for the two-year data set. (3) Interview and Examination Sample Weight Variables: sample weights are available for analyzing NHANES 2003-2004 data. For a complete listing of survey contents for all years of the NHANES see the document -- Survey Content -- NHANES 1999-2010.
National Health and Nutrition Examination Survey (NHANES), 2005-2006 (ICPSR 25504)
National Survey of American Life - Adolescent Supplement (NSAL-A), 2001-2004 (ICPSR 36380)
The National Survey of American Life Adolescent Supplement (NSAL-A), 2001-2004, was designed to estimate the lifetime-to-date and current prevalence, age-of-onset distributions, course, and comorbidity of DSM-IV disorders among African American and Caribbean adolescents in the United States; to identify risk and protective factors for the onset and persistence of these disorders; to describe patterns and correlates of service use for these disorders; and to lay the groundwork for subsequent follow-up studies that can be used to identify early expressions of adult mental disorders. In addition and similar to the NSAL adult dataset (Collaborative Psychiatric Epidemiology Surveys (CPES), 2001-2003 [United States] (ICPSR 20240)), the adolescent dataset contains detailed measures of health; social conditions; stressors; distress; racial identity; subjective, neighborhood conditions; activities and school; media; and social and psychological protective and risk factors. Numerous variables from the adult dataset have been merged into the adolescent dataset, as the NSAL adult and adolescent respondents reside in the same households. Some of these variables apply to the entire household (i.e. region, urbanicity, and family income), while others apply specifically to the NSAL adult respondent living in the adolescent's household (i.e. adult years of education, adult marital status, and adult nativity [foreign-born vs. US born]). The immigration measures were asked of Caribbean black adult respondents only. No comparable measures assess the immigration and generational status of the Caribbean black adolescent respondents. The adult dataset measures are merged into the adolescent dataset to assist in approximating these measures for adolescent respondents. The NSAL adolescent dataset also includes variables for other non-core and experimental disorders. These include tobacco use/nicotine dependence, premenstrual syndrome, minor depression, recurrent brief depression, hypomania, and hypomania sub-threshold. Demographic variables include age, race and ethnicity, ancestry or national origins, height, weight, marital status, income, and education level.
National Survey on Drug Use and Health, 2007 (ICPSR 23782)
National Survey on Drug Use and Health, 2008 (ICPSR 26701)
The National Survey on Drug Use and Health (NSDUH) series (formerly titled National Household Survey on Drug Abuse) primarily measures the prevalence and correlates of drug use in the United States. Detailed NSDUH 2008 documentation is available from SAMHSA. The surveys are designed to provide quarterly, as well as annual, estimates. Information is provided on the use of illicit drugs, alcohol, and tobacco among members of United States households aged 12 and older. Questions included age at first use as well as lifetime, annual, and past-month usage for the following drug classes: marijuana, cocaine (and crack), hallucinogens, heroin, inhalants, alcohol, tobacco, and nonmedical use of prescription drugs, including pain relievers, tranquilizers, stimulants, and sedatives. The survey covered substance abuse treatment history and perceived need for treatment, and included questions from the Diagnostic and Statistical Manual (DSM) of Mental Disorders that allow diagnostic criteria to be applied. The survey included questions concerning treatment for both substance abuse and mental health related disorders. Respondents were also asked about personal and family income sources and amounts, health care access and coverage, illegal activities and arrest record, problems resulting from the use of drugs, and needle-sharing. Questions introduced in previous administrations were retained in the 2008 survey, including questions asked only of respondents aged 12 to 17. These "youth experiences" items covered a variety of topics, such as neighborhood environment, illegal activities, drug use by friends, social support, extracurricular activities, exposure to substance abuse prevention and education programs, and perceived adult attitudes toward drug use and activities such as school work. Several measures focused on prevention-related themes in this section. Also retained were questions on mental health and access to care, perceived risk of using drugs, perceived availability of drugs, driving and personal behavior, and cigar smoking. Questions on the tobacco brand used most often were introduced with the 1999 survey. For this 2008 survey, Adult mental health questions were added to measure symptoms of psychological distress in the worst period of distress that a person experienced in the past 30 days and suicidal ideation. A split-sample design also was included to administer separate sets of questions to assess impairment due to mental health problems. Background information includes gender, race, age, ethnicity, marital status, educational level, job status, veteran status, and current household composition.