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Curated

Panel Study of Income Dynamics (PSID): Main Interview, 2021 (ICPSR 39190)

Released/updated on: 2024-10-10

Geographic coverage: United States

The PSID is the world's longest-running nationally representative household panel survey. With over 50 years of data on the same families and their descendants, the PSID is a cornerstone of the data infrastructure for empirically based social science research in the U.S. PSID gathers data on the family as a whole and on individuals residing within the family, emphasizing the dynamic and interactive aspects of family economics, demography, and health. PSID data were collected annually from 1968-1997 and biennially after 1997.

In the Main Interview, one person per family is interviewed on a regular basis. Information about each family member is collected, but much greater detail is obtained about the reference person and, if married/cohabitating, the spouse or long-term cohabitor. Survey content changes to reflect evolving scientific and policy priorities, although many content areas have been consistently measured since 1968. Information includes employment, income, wealth, expenditures, time use, health, dementia screener, insurance, education, marriage, childbearing, philanthropy, and numerous other topics. Additional types of PSID data are available only under a restricted contract. These include but are not limited to: geospatial data below the level of state; mortality data; Medicare claims; and educational characteristics from the National Center for Education Statistics.

With low attrition and high success in following young adults as they form their own families, the sample size has grown from roughly 5,000 families in 1968 to more than 9,000 families and 24,000 individuals by 2021. Over the course of the study, the PSID has distributed data on more than 84,000 individuals. The long panel, genealogical design, and broad content of the data offer unique opportunities to conduct generational and life-course research.

The PSID now contains thousands of inter- and intragenerational relationships over 50 years of data, including (as of the 2021 wave):

"Paired" generational relationships, with each family in the pair providing independent interviews
- Parent-Adult Child pairs: ~4,300
- Sibling pairs: ~5,200
- Cousin pairs: ~5,400
"Tripled" generational relationships, with all three generations providing independent interviews
- Grandparent-Parent-Adult Child triplets: ~1,000

For information about earlier data collections, see Panel Study of Income Dynamics (PSID): Main Interview, 1968-2015.

In 2021, the main interview was updated to include questions about the impacts of the COVID-19 pandemic, including: loss of earnings, US government stimulus payments, charitable giving, participants' exposure to COVID-19, and vaccination status.

Curated

Resources for Enhancing Alzheimer's Caregiver Health, 1996-2001, Baseline and Follow-Up Data (ICPSR 3678)

Released/updated on: 2006-09-26

Geographic coverage: United States, Tennessee, California, Alabama, Florida, Birmingham, Pennsylvania, Miami, Palo Alto, Massachusetts, Memphis, Philadelphia, Boston

Time period: 1996-09-01--2001-02-01

Resources for Enhancing Alzheimer's Caregiver Health (REACH) was established in 1995 to conduct social and behavioral research on interventions designed to enhance family caregiving, particularly in minority families, for persons with Alzheimer's Disease and related disorders. Baseline data (ICPSR 3253) were collected through randomized clinical trials at six sites: University of Alabama-Birmingham, The Research and Training Institute of the Hebrew Rehabilitation Center for Aged in Boston, University of Tennessee-Memphis, University of Miami, Veterans Affairs Palo Alto Health Care System and Stanford University, and Thomas Jefferson University in Philadelphia. Interventions such as psychoeducational support groups, behavioral skills training programs, family-based systems interventions, environmental modifications, and technological computer-based information and communication services varied by site. This collection contains baseline data along with follow-up data at 6-, 12-, and 18-month intervals from each site with focus on the impact of the various intervention strategies on psychological distress, health status, health practices, and health care utilization. Also included are follow-up batteries, transition batteries (placement, bereavement, discontinued), and data reporting missed visits. Parts 1 through 5 contain screening data and responses to a short mental status questionnaire. Parts 6 through 34 contain baseline data along with follow-up data at 6, 12, and 18-month intervals and cover activities of daily living, anxiety, and caregiver health and health behaviors along with sociodemographic information. Also included are care recipient medications and sociodemographic information. Parts 35 through 40 contain tracking data and also include an examination of interventions.

Curated

Restricted

Study of Dementia in Swedish Twins, 1990-1999 (ICPSR 25963)

Released/updated on: 2010-06-04

Geographic coverage: Sweden, Global

Time period: 1990-05-01--1999-03-01

The Study of Dementia in Swedish Twins was designed to study the relative influence of genetic and environmental factors for Alzheimer's disease and other types of dementia and to test the role of specific environmental exposures that might constitute risk or protective factors for dementia. The first seven years of the Study of Dementia in Swedish Twins was based on the population from the SWEDISH ADOPTION/TWIN STUDY OF AGING (SATSA), 1984, 1987, 1990, and 1993 (ICPSR 3843). SATSA consists of a subset of 3,838 same-sex twins from the population-based Swedish Twin Registry; however, the baseline sample for the Study of Dementia in Swedish Twins consists of 2,394 individuals who were alive and born in 1935 or earlier. The Study of Dementia in Swedish Twins data cover background information (sex, zygosity, rearing status, ages at each data collection point, age at death), cognitive screening (which took place in conjunction with each SATSA wave of data collection), clinical dementia diagnoses for those who received a complete dementia workup (both baseline and longitudinal), cognitive test results (both baseline and longitudinal), medical history and medical risk factors (medical examination; blood pressure; laboratory results; history of neurologic, coronary, mental, and other diseases; smell test; history of head injury, anaesthesia, fevers, medications, dietary history with respect to fish, raw meat, and acidic foods prepared in aluminum pans), residential, occupational, and leisure activities history (including exposure related to welding, hairdressing, agriculture, medical settings, painting and other sources of organic solvents, crystal, carbon monoxide, radiation, raw meat and game; participation in contact sports; antiperspirant containing aluminum; history of smoking; history of use of alcohol), family history of dementia, and APOE genotype. SATSA is archived separately at ICPSR, see ICPSR 3843. The SATSA and the Study of Dementia in Swedish Twins files contain a common ID number that can be used to create a crosswalk between the files.

Curated

Simple Crosstabs

Swedish Adoption/Twin Study on Aging (SATSA), 1984, 1987, 1990, 1993, 2004, 2007, and 2010 (ICPSR 3843)

Released/updated on: 2015-05-13

Geographic coverage: Sweden, Global

Time period: 1984-01-01--2010-01-01

The Swedish Adoption/Twin Study on Aging (SATSA) was designed to study the origins of individual differences in aging and the environmental and genetic factors that are involved. SATSA began in 1984, and six additional waves were conducted in 1987, 1990, 1993, 2004, 2007, and 2010. The questionnaire was initially sent to all twins from the Swedish Twin Registry who were separated at an early age and raised apart; the survey was also administered to a control sample of twins who were raised together. The respondents were surveyed on items that included health status, how they were raised, work environment, alcohol consumption, and dietary and smoking habits, as well as questions about personality and attitudes; this information comprised the first component. The second component was collected from a subsample composed of 150 pairs of twins raised apart and 150 pairs of twins raised together. This subsample participated in seven waves of in-person testing, which included a health examination, structured interviews, and tests on functional capacity, cognitive abilities, and memory. The data are represented according to questionnaire and time number, and correspond to each wave/year: Questionnaire 1 and In-Person Testing Time 1 were in 1984; Questionnaire 2 and In-Person Testing Time 2 were in 1987; Questionnaire 3 and In-Person Testing Time 3 were in 1990; Questionnaire 4 and In-Person Testing Time 4 were in 1993; Questionnaire 5 was in 2003; In-Person Testing Time 5 was in 2004; Questionnaire 6 and In-Person Testing Time 6 were in 2007; In-Person Testing Time 7 was in 2010. The Administrative and Cognitive datasets include data from all years/waves. The Smell Survey dataset only includes data from 1990. No years were specified for the Contact measures and Separation measures datasets. Demographic and background information includes age, sex, education, family history, household composition and employment.

Curated

Wisconsin Longitudinal Study, 1957-2022 (ICPSR 6163)

Released/updated on: 2006-04-06

Geographic coverage: United States, Wisconsin

Time period: 1957-01-01--2022-01-01

The Wisconsin Longitudinal Study (WLS) is a long-term study of a random sample of 10,317 men and women who graduated from Wisconsin high schools in 1957. The WLS provides an opportunity to study the life course, intergenerational transfers and relationships, family functioning, physical and mental health and well-being, and morbidity and mortality from late adolescence through 2025. WLS data also cover social background, youthful aspirations, schooling, military service, labor market experiences, family characteristics and events, social participation, psychological characteristics and retirement.

Survey data were collected from the original respondents (the graduates) in 1957, 1964, 1975, 1992, 2004, 2011, 2020 and 2022; from their parents in 1957 and 1964; from a selected sibling in 1977, 1994, 2005, 2011, 2020 and 2022; from the spouse of the original respondent in 2004; and from the spouse of the selected sibling in 2006.

The collection of cognitive function data among graduates and siblings under the ILIAD study (MPIS: Sanjay Asthana, Michal Engelman, and Pamela Herd) began in 2020 to measure risk and resilience of Alzheimer's disease and related dementia (ADRD) as the cohort reaches their 80s. Data from 2020 and 2022 have been released, and 2025 and 2027 wave releases are forthcoming.

The WLS also has extensive administrative linkages, including with the 1940 and 1950 census, Social Security records, voting participation, and Medicare claims data.