Showing 1 – 20 of 20 results.
Curated
Do Older Adults Know Their Spouses' End-of-Life Treatment Preferences? (ICPSR 25701)
Released/updated on: 2009-06-23
Geographic coverage: United States
When terminally ill patients become mentally incapacitated, their surrogates often make treatment decisions in collaboration with health care providers. The authors examined how surrogates' errors in reporting their spouses' preferences are affected by their gender, status as durable power of attorney for health care (DPAHC), whether they and their spouses discussed end-of-life preferences, and their spouses' health status. Structural equation models were applied to data from married couples in their mid-60s from the 2004 wave of the Wisconsin Longitudinal Study. Surrogates reported their spouses' preferences incorrectly 13 percent and 26 percent of the time in end-of-life scenarios involving cognitive impairment and physical pain, respectively. Surrogates projected their own preferences onto their spouses'. Similar patterns emerged regardless of surrogate gender and status as DPAHC, marital discussions about end-of-life preferences, or spousal health status. Implications for the process of surrogate decision-making and for future research are discussed.
Curated
Established Populations for Epidemiologic Studies of the Elderly, 1981-1993: [East Boston, Massachusetts, Iowa and Washington Counties, Iowa, New Haven, Connecticut, and North Central North Carolina] (ICPSR 9915)
Released/updated on: 2006-01-18
Geographic coverage: North Carolina, Iowa, New Haven, United States, Massachusetts, Connecticut, Boston
Time period: 1981-01-01--1993-12-31
The goals of the Established Populations for Epidemiologic Studies of the Elderly (EPESE) project were to describe and identify predictors of mortality, hospitalization, and placement in long-term care facilities and to investigate risk factors for chronic diseases and loss of functioning. The survey elicited information from persons 65 years of age and older in four geographic locations: East Boston, Massachusetts, New Haven, Connecticut, Iowa and Washington Counties, Iowa, and five counties in north central North Carolina. The public use baseline data (Part 1) cover demographic characteristics (age, sex, race, income, education, marital status, number of children, employment, and religion), height, weight, social and physical functioning, chronic conditions, related health problems, health habits, self-reported use of dental, hospital, and nursing home services, and depression. Data from six follow-up surveys conducted in all four of the sites are also provided (Parts 2-4 and 6-8), along with information from death certificates for deaths occurring in the first six years of follow-up for all four sites (Part 5).
Curated
Simple Crosstabs
Families of Newtown, New York, 1642-1790 (ICPSR 35005)
Released/updated on: 2016-06-22
Geographic coverage: United States, New York (state)
Time period: 1642-01-01--1790-12-31
This dataset focuses on economic, social, and geographic mobility of town residents, and life events (marriage, birth and mortality). Church records supplemented with genealogies, wills, inventories, probate records, cemetery data, town books, court books, censuses, and tax lists were used to reconstitute families along the lines of previous French and English work (e.g. Fleury, M. and L. Henry, Nouveau manuel de dépouillement et d'exploitation de l'état civil ancient (1965) and Wrigley, E.A, "Family Reconstitution" in E.A. Wrigley, ed. An Introduction to English Historical Demography (1966). Family reconstitution is a method for studying demographic behavior in the absence of modern censuses and vital registration, providing for both observation of demographic events, as well as the population and time at risk. This dataset includes information about 202 couples and their 1094 children. The data on couples focus on demographic details for mothers and fathers, including birth, baptism, marriage and death dates, residence and religion. The data on children includes demographic information for the child, as well as marriage age and residence. Not all families have complete information.
External data
Fatal Encounters Database, United States, 2000-present (ICPSR 38118)
Released/updated on: 2021-06-24
Geographic coverage: United States
The Fatal Encounters database aims to document all deaths through police interaction in the United States since Jan. 1, 2000. The database includes any non-police deaths that occur when police are present or are precipitated by police action or presence.
External data
Human Mortality Database (ICPSR 138)
Released/updated on: 2006-06-19
Geographic coverage: United States, Wales, England, Iceland, Global, Russia, Netherlands, Sweden, Austria, Latvia, Slovakia, France, Bulgaria, Lithuania, Hungary, Japan, Switzerland, Spain, New Zealand, Canada, Czech Republic, Belgium, Norway, Finland, Denmark, Italy, Australia, Germany
The Human Mortality Database (HMD) was created to provide detailed mortality and population data to researchers, students, journalists, policy analysts, and others interested in the history of human longevity. The project began as an outgrowth of earlier projects in the Department of Demography at the University of California, Berkeley, USA, and at the Max Planck Institute for Demographic Research in Rostock, Germany. It is the work of two teams of researchers in the USA and Germany. The main goal of the database is to document the longevity revolution of the modern era and to facilitate research into its causes and consequences. At present, the database contains detailed data for a collection of 26 countries. The countries involved are Australia, Austria, Belgium, Bulgaria, Canada, Czech Republic, Denmark, the total and civilian populations of England and Wales, Finland, France, Germany, West Germany, East Germany, Hungary, Iceland, Italy, Japan, Latvia, Lithunia, Netherlands, the Maori and Non-Maori populations of New Zealand, Norway, Russia, Slovakia, Spain, Sweden, Switzerland, and the United States.
Curated
Japanese General Social Survey (JGSS), 2001 (ICPSR 4213)
Released/updated on: 2007-03-30
Geographic coverage: Japan, Global
Time period: 2001-01-01--2001-12-31
This survey was designed to solicit political, sociological, and economic information from people living in Japan. Respondents were queried on crime and the judicial system, and more specifically, on issues such as the death penalty, juvenile punishment, and whether respondents were victims of various crimes within the last year. Questions on family issues covered topics such as divorce, the health of respondents' marriages, the roles of each spouse, and issues involving children. Questions on finances included the state of respondents' finances during the last few years and compared to other Japanese families both past and present, whether the income tax rate was high, and the ease of improving one's standard of living in Japan. Political questions addressed government spending, the responsibility of the government, and whether respondents would vote for a woman gubernatorial candidate. Also, respondents were asked to rate their political views on a scale from Conservative (1) to Progressive (5). In terms of health, questions were asked on the health of respondents and their spouses, the topic of euthanasia, donation cards, and the frequency of smoking and alcohol consumption. Quality of life questions addressed the frequency with which respondents read the newspaper, watched television, the amount of satisfaction respondents received from life, and how often respondents participated in leisure activities like fishing, jogging, mahjong, etc. Respondents were asked to give their opinions concerning extra-marital affairs, sexual relations between two adults of the same sex, pornography and prostitution. Information gathered on religion included the extent of their participation in a particular religion, whether respondents believed in life after death and views on burial. Respondents were polled for information regarding their social status and whether respondents were members of any groups including religious, trade, or social service organizations. Demographic information included age, sex, employment status, marital status, household income, and religious orientation.
Curated
Japanese General Social Survey (JGSS), 2002 (ICPSR 4214)
Released/updated on: 2007-03-30
Geographic coverage: Japan, Global
Time period: 2002-01-01--2002-12-31
This survey was designed to solicit political, sociological, and economic information from people living in Japan. Respondents were queried on crime and the judicial system, and more specifically, on issues such as the death penalty, juvenile punishment, and whether respondents were victims of various crimes within the last year. Questions on family issues covered topics such as divorce, the health of respondents' marriages, the roles of each spouse, and issues involving children. Questions on finances included the state of respondents' finances during the last few years and compared to other Japanese families both past and present, whether the income tax rate was high, and the ease of improving one's standard of living in Japan. Political questions addressed government spending, the responsibility of the government, and whether respondents would vote for a female gubernatorial candidate. Also, respondents were asked to rate their political views on a scale from conservative (1) to progressive (5). In terms of health, questions were asked on the health of respondents and their spouses, the topic of euthanasia, donation cards, and the frequency of smoking and alcohol consumption. Quality of life questions addressed the frequency with which respondents read the newspaper and watched television, the amount of satisfaction respondents received from life, and how often respondents participated in leisure activities like fishing, jogging, and mahjong. Respondents were asked to give their opinions concerning extra-marital affairs, sexual relations between two adults of the same sex, pornography, and prostitution. Information gathered on religion included the extent of their participation in a particular religion, whether respondents believed in life after death, and views on burial. Respondents were polled for information regarding their social status and whether respondents were members of any groups including religious, trade, or social service organizations. Demographic information included age, sex, employment status, marital status, household income, and religious orientation.
Curated
Kaiser Permanente Study of the Oldest Old, 1971-1979 and 1980-1988: [California] (ICPSR 4219)
Released/updated on: 2011-02-07
Geographic coverage: United States, California
Time period: 1971-01-01--1988-12-31
This data collection is an epidemiological study of chronic disease in the oldest old. It is based on information collected from Kaiser Permanente facilities in Northern California. Members of Kaiser Permanente Medical Care programs who were aged 65 or older at the time the data were being collected and who had taken a multiphasic health checkup examination within four to six years of the baseline date were included in the study. There are several components to the dataset. Part 1, Master Records, includes information from the morbidity review, in which over 35 chronic conditions or diagnoses were abstracted from the member charts, as well as detailed diagnostic criteria for the major conditions. A prevalence review was done, which included the four years prior to the baseline date for these same conditions. Recurrent disease is included for the following conditions: cancers, myocardial infarction, and various forms of strokes. A detailed account of outpatient health services use, and data from the multiphasic health checkup, which was administered to each participant during the nine yearly follow-ups, are also included in the Master Records file. Part 2, Hospitalization, contains records of causes and dates of hospitalizations and discharges and nursing home admissions. There is also a section on incomplete reviews and the reasons for them. Demographic information and some lifestyle information from the multiphasic health checkup (e.g., smoking, alcohol, and Body Mass Index) are also in this file.
Curated
Longitudinal Study of Generations, 1971, 1985, 1988, 1991, 1994, 1997: [California] (ICPSR 4076)
Released/updated on: 2005-02-25
Geographic coverage: United States, Los Angeles, California
The Longitudinal Study of Generations (LSOG), initiated in 1971, began as a survey of intergenerational relations among 300 three-generation California families: grandparents (then in their sixties), middle-aged parents (then in their early forties), and grandchildren (then aged 15 to 26). The study broadened in 1991 and now includes a fourth generation, the great-grandchildren of these same families. The LSOG, with a fully elaborated generation-sequential design, allows comparisons of sets of aging parents and children at the same stage of life but during different historical periods. These comparisons make possible the investigation of the effects of social change on inter-generational solidarity or conflict across 35 years and four generations, as well as effects of social change on the ability of families to buffer stressful life transitions (aging, divorce and remarriage, higher female labor force participation, changes in work and the economy, and possible weakening of family norms of obligation), and the effects of social change on the transmission of values, resources, and behaviors across generations. The study also examines how intergenerational relationships influence individuals' well-being as they transition across the life course from early, to middle, to late adulthood. The LSOG contains information on family structure, household composition, affectual solidarity and conflict, values, attitudes, behaviors, role importance, marital relationships, health and fitness, mental health and well-being, caregiving, leisure activities, and life events and concerns. Demographic variables include age, sex, income, employment status, marital status, socioeconomic history, education, religion, ethnicity, and military service.
Curated
Medicare Current Beneficiary Survey, Calendar Year 1991: [United States] (ICPSR 6118)
Released/updated on: 2006-01-12
Geographic coverage: United States
Time period: 1991-01-01--1991-12-31
This data collection is the first in a series of data releases planned from the ongoing Medicare Current Beneficiary Survey (MCBS). The MCBS is a continuous, multipurpose survey of a representative sample of the Medicare population. Sample persons are interviewed three times a year over several years to form a continuous profile of their health care experience. Field work for Round 1 began in September of 1991 and was completed in December. New rounds, which involve reinterviewing the same sample persons (or other appropriate respondents), begin every four months. Interviews are conducted regardless of whether the sample person resides at home or in a long-term care facility, using the questionnaire version appropriate to the setting. This first-round interview captured baseline information about the Medicare population, including their demographic characteristics (date of birth, sex, race, education, military service, and marital status), health status and functioning, insurance coverage, financial resources, and family support. Round 1 of the community interview, which questioned respondents living at home, also included a topical supplement on access to medical care, sources of medical care, and satisfaction with medical care.
Curated
Simple Crosstabs
Midlife in the United States: Core Sample Mortality Data, 1995-2023 (ICPSR 37237)
Released/updated on: 2025-07-10
Geographic coverage: United States
Time period: 1995-01-01--2023-12-31
In 1995-1996, the MacArthur Midlife Research Network carried out a national survey of over 7,000 Americans aged 25 to 74 (ICPSR 2760). The purpose of the study was to investigate the role of behavioral, psychological, and social factors in understanding age-related differences in physical and mental health.
With support from the National Institute on Aging, an initial follow-up of the original Midlife Development in the United States (MIDUS) samples was conducted in 2004 (MIDUS 2). The daily stress and cognitive functioning projects were repeated at MIDUS 2; in addition the protocol was expanded to include biomarkers and neuroscience. In 2005, a baseline sample of 592 African Americans from Milwaukee was added to MIDUS to examine health issues in minority populations.
In 2013, a third wave (MIDUS 3) of survey data was collected on longitudinal participants. Data collection for this follow-up wave largely repeated baseline assessments (e.g., phone interview and extensive self-administered questionnaire), with additional questions in selected areas (e.g., economic recession experiences, optimism and coping, stressful life events, and caregiving). A third wave of cognitive functioning data and a second wave of the Milwaukee sample were also collected. Data collection for the daily diary, biomarkers, and neuroscience is ongoing. This dataset includes all known MIDUS decedents (N=2,533) from the Core National and Milwaukee samples as of December 2023.
Curated
Mortality Detail and Multiple Cause of Death, 1981 (ICPSR 3874)
Released/updated on: 2007-07-12
Geographic coverage: North Carolina, Indiana, Wyoming, Utah, Guam, Virgin Islands of the United States, Arizona, Montana, Kentucky, California, Kansas, Florida, Delaware, Pennsylvania, Mississippi, Iowa, Illinois, Texas, Connecticut, Georgia, Virginia, Maryland, Idaho, Oregon, Vermont, Puerto Rico, United States, Oklahoma, Tennessee, Maine, American Samoa, Alabama, Arkansas, Washington, South Carolina, Nebraska, West Virginia, Massachusetts, Colorado, Missouri, Alaska, North Dakota, Wisconsin, Nevada, New York, District of Columbia, Rhode Island, South Dakota, Hawaii, Minnesota, New Jersey, Michigan, New Mexico, New Hampshire, Louisiana, Ohio
Time period: 1981-01-01--1981-12-31
This data collection presents information about the causes of deaths occurring during 1981. Part 1, the Mortality Detail file, describes every death or fetal death registered in the United States for 1981. Part 2, Multiple Cause of Death, provides information about the causes of all recorded deaths occurring in the United States, Puerto Rico, the Virgin Islands, Guam, and American Samoa during 1981. Data are provided concerning underlying causes of death, multiple conditions that caused the death, place of death, residence of the deceased (e.g., region, division, state, county), whether an autopsy was performed, and the month and day of death. In addition, data are supplied on the sex, race, age, marital status, education, usual occupation, and origin or descent of the deceased. The multiple cause of death fields were coded from the MANUAL OF THE INTERNATIONAL STATISTICAL CLASSIFICATION OF DISEASES, INJURIES, AND CAUSE-OF-DEATH, NINTH REVISION (ICD-9), VOLUMES 1 AND 2.
Curated
Mortality Detail Files, 1968-1991 (ICPSR 7632)
Released/updated on: 2010-08-10
Geographic coverage: United States
Time period: 1968-01-01--1991-12-31
This data collection describes every death or fetal death registered per year in the United States from 1968-1991. Information includes the month and day of death for deaths prior to 1989 and the month of death for deaths in 1989 and after, the sex of the deceased, the age of the deceased at the time of death, the deceased's place of residence, place of death, and whether an autopsy was performed. Causes of death are coded using the eighth and ninth revisions of THE INTERNATIONAL CLASSIFICATION OF DISEASES.
Curated
Mortality in the South, 1850 (ICPSR 7424)
Released/updated on: 1992-02-16
Geographic coverage: North Carolina, United States, Texas, Tennessee, Kentucky, Louisiana, Georgia, South Carolina
Time period: 1850-01-01--1850-12-31
This study recorded information on deaths that occurred in 1850 in seven states of the southern United States: Georgia, Kentucky, Louisiana, North Carolina, South Carolina, Tennessee, and Texas. The data were obtained from the manuscript mortality schedules of the 1850 United States Census. Variables identify the state and county in which each death occurred, and provide information on the age, sex, race, legal status (free or slave), place of birth, and occupation of the deceased. The month and cause of death as well as the number of days of illness before death are also documented.
Curated
Multiple Cause of Death, 1996 (ICPSR 2702)
Released/updated on: 2009-03-05
Geographic coverage: Puerto Rico, United States, Guam, Virgin Islands of the United States
Time period: 1996-01-01--1996-12-31
This data collection includes information about the cause of all recorded deaths occurring in the United States, Puerto Rico, the Virgin Islands, and Guam during 1996. Data are provided concerning underlying causes of death, multiple conditions that caused the death, place of death, residence of the deceased (e.g., region, division, state, county), whether an autopsy was performed, and the month and day of the week of the death. In addition, data are supplied on the sex, race, age, marital status, education, usual occupation, and origin or descent of the deceased. Mortality Detail data for 1996 also can be extracted from this file. The Mortality Detail records are contained in the first 159 positions of these Multiple Cause records. The multiple cause of death fields were coded from the MANUAL OF THE INTERNATIONAL STATISTICAL CLASSIFICATION OF DISEASES, INJURIES, AND CAUSE-OF-DEATH, NINTH REVISION (ICD-9), VOLUMES 1 AND 2.
External data
National Longitudinal Mortality Study (NLMS) (ICPSR 134)
Released/updated on: 2008-03-26
Geographic coverage: United States
The National Longitudinal Mortality Study (NLMS) consists of a database developed for the purpose of studying the effects of demographic and socio-economic characteristics on differentials in United States mortality rates. The NLMS database is based on a random sample of the non-institutionalized population of the United States. It consists of United States Census Bureau data from Current Population Surveys, annual Social and Economic Supplements and the 1980 Census combined with death certificate information to identify mortality status and cause of death.
Curated
Restricted
Project on Human Development in Chicago Neighborhoods (PHDCN): Life History Calendar, Wave 2, 1997-2000 (ICPSR 13635)
Released/updated on: 2006-05-12
Geographic coverage: United States, Chicago, Illinois
Time period: 1997-01-01--2000-12-31
The Project on Human Development in Chicago Neighborhoods (PHDCN) was a large-scale, interdisciplinary study of how families, schools, and neighborhoods affect child and adolescent development. One component of the PHDCN was the Longitudinal Cohort Study, which was a series of coordinated longitudinal studies that followed over 6,000 randomly selected children, adolescents, and young adults, and their primary caregivers over time to examine the changing circumstances of their lives, as well as the personal characteristics, that might lead them toward or away from a variety of antisocial behaviors. Numerous measures were administered to respondents to gauge various aspects of human development, including individual differences, as well as family, peer, and school influences. One such instrument was the Life History Calendar. This was a structured interview utilizing a grid-like format to facilitate rapid and accurate recall of life events experienced by young adults. It was administered to Cohort 18.
Curated
Simple Crosstabs
Swedish Adoption/Twin Study on Aging (SATSA), 1984, 1987, 1990, 1993, 2004, 2007, and 2010 (ICPSR 3843)
Released/updated on: 2015-05-13
Geographic coverage: Sweden, Global
Time period: 1984-01-01--2010-12-31
The Swedish Adoption/Twin Study on Aging (SATSA) was designed to study the origins of individual differences in aging and the environmental and genetic factors that are involved. SATSA began in 1984, and six additional waves were conducted in 1987, 1990, 1993, 2004, 2007, and 2010. The questionnaire was initially sent to all twins from the Swedish Twin Registry who were separated at an early age and raised apart; the survey was also administered to a control sample of twins who were raised together. The respondents were surveyed on items that included health status, how they were raised, work environment, alcohol consumption, and dietary and smoking habits, as well as questions about personality and attitudes; this information comprised the first component. The second component was collected from a subsample composed of 150 pairs of twins raised apart and 150 pairs of twins raised together. This subsample participated in seven waves of in-person testing, which included a health examination, structured interviews, and tests on functional capacity, cognitive abilities, and memory. The data are represented according to questionnaire and time number, and correspond to each wave/year: Questionnaire 1 and In-Person Testing Time 1 were in 1984; Questionnaire 2 and In-Person Testing Time 2 were in 1987; Questionnaire 3 and In-Person Testing Time 3 were in 1990; Questionnaire 4 and In-Person Testing Time 4 were in 1993; Questionnaire 5 was in 2003; In-Person Testing Time 5 was in 2004; Questionnaire 6 and In-Person Testing Time 6 were in 2007; In-Person Testing Time 7 was in 2010. The Administrative and Cognitive datasets include data from all years/waves. The Smell Survey dataset only includes data from 1990. No years were specified for the Contact measures and Separation measures datasets. Demographic and background information includes age, sex, education, family history, household composition and employment.
Curated
Simple Crosstabs
TAZAMA Health and Demographic Surveillance System, 1994-2012 (ICPSR 29541)
Released/updated on: 2014-11-18
Geographic coverage: Africa, Tanzania
Time period: 1994-01-01--2012-12-31
The TAZAMA Health and Demographic Surveillance System (HDSS) study site is located in the Kisesa and Bukandwe rural electoral wards in the Magu district of the Mwanza Region in Northern Tanzania. The two wards are comprised of six villages. There is one health center and five dispensaries (3 public and 2 private) in the study area. The two wards have eleven government primary schools (at least one in each village) and two secondary schools. Both Mwanza city and Magu town are accessible to residents; buses run along the main road and take about an hour and a half to get to Mwanza. Most of the residents are subsistence farmers; a lot of surplus agricultural produce is traded in Mwanza, which is Tanzania's second city. In the year 2012, the research study covered a population of about 30,000 people who live in the Kisesa and Bukandwe wards. The majority of the residents (about ninety five per cent) belong to the Sukuma ethnic group.
The DSS collects information on births and deaths and movements in and out of the households. It helps researchers to understand the population dynamics in the study area including fertility, mortality and migration patterns. It provides information on the structure of families that live together. The DSS study is also used to identify people who are eligible to participate in the serological surveys (the right age group, and continuously resident rather than just visiting). It provides the data for calculating the denominators for demographic rates.
The objectives of this study are as follows: (1) to improve understanding of the dynamics of the HIV epidemic; (2) to assess the demographic, social and economic impacts of the HIV/AIDS epidemic; (3) to evaluate the effects of national prevention, treatment and care interventions as implemented in Kisesa Ward; (4) to measure child and adult mortality and fertility in the general population and by HIV status; (5) to asses the leading causes of death through verbal autopsy; (6) to assess changes in the family structure due to HIV epidemic; and (7) to provide reliable data for district health planning.
Curated
Restricted
Tsogolo la Thanzi (TLT): Verbal Autopsy Data, Malawi, 2009-2019 [Healthy Futures] (ICPSR 39181)
Released/updated on: 2024-08-19
Geographic coverage: Balaka, Malawi, Africa
Time period: 2009-01-01--2019-12-31
Tsogolo la Thanzi (TLT) was a longitudinal study in Balaka, Malawi designed to examine how young people navigate reproduction in an AIDS epidemic. Tsogolo la Thanzi means "Healthy Futures" in Chichewa, Malawi's most widely spoken language. This particular study contains the Verbal Autopsy data providing information on 36 respondents who died over the study period (2009-2019). These 36 individuals were known to be deceased through recruitment efforts to re-interview the person during a subsequent wave of data collection. However, not all groups of respondents were re-interviewed in 2012, 2015, and 2019. Therefore, the total number of deaths from the original sample is potentially more than what is reported in this particular study. The 36 verbal autopsy cases in this study represent known deaths, and should not be interpreted as an inventory of all deaths that occurred.