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Early Intervention Colorado (EI-CO) Participant Characteristics, Service Use, and Patient-Reported Outcomes, Colorado, 2017-2021 (ICPSR 37320)

Released/updated on: 2023-11-28

Geographic coverage: United States, Colorado

Time period: 2017-01-01--2021-01-01

The Individuals with Disabilities Education Act authorizes states to create early intervention (EI) programming to provide developmental and therapeutic services to infants and toddlers with a developmental condition; EI programs are mandated to report on child and family outcomes for purposes of accountability and quality improvement. For both purposes, there is critical need for research evidence on the adequacy of EI services. The researchers for this study partnered with a large urban EI program in Colorado that had recently transitioned to electronic data capture and was implementing a statewide initiative to facilitate function-focused care with individual families and paired collected electronic patient-reported outcomes (e-PRO) data with EI administrative data on child and family characteristics and service use to more fully examine EI service adequacy relative to patient-important outcomes.

This study collected information from Young Children's Participation and Environment Measure (YC-PEM e-PRO) on home, environment, and community participation, involvement, and desired change. Measurements were also collected from the Pediatric Evaluation of Disability Inventory Computer Adaptive Test (PEDI-CAT e-PRO) on mobility, social cognitive, and daily activities domains. The Child Outcomes Summary (COS) was used to capture functional performance related to having positive social relationships, acquiring and using knowledge and skills, and taking appropriate action to meet needs. Early Intervention Service Use measured EI intensity, whether child received specific services including physical therapy (PT), occupational therapy (OT), speech therapy (ST), psychology, or developmental intervention (DI), and the total number of service hours received within each discipline. Demographic variables include reasons child received EI services, number of developmental delay conditions, age, race, and ethnicity; as well as caregiver's education, employment, number of children at home, income, and insurance type.

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Immigration and Intergenerational Mobility in Metropolitan Los Angeles (IIMMLA), 2004 (ICPSR 22627)

Released/updated on: 2008-07-01

Geographic coverage: United States, Los Angeles, California

Time period: 2002-01-01--2008-01-01

IIMMLA was supported by the Russell Sage Foundation. Since 1991, the Russell Sage Foundation has funded a program of research aimed at assessing how well the young adult offspring of recent immigrants are faring as they move through American schools and into the labor market. Two previous major studies have begun to tell us about the paths to incorporation of the children of contemporary immigrants: The Children of Immigrants Longitudinal Study (CILS), and the Immigrant Second Generation in New York study. The Immigration and Intergenerational Mobility in Metropolitan Los Angeles study is the third major initiative analyzing the progress of the new second generation in the United States. The Immigration and Intergenerational Mobility in Metropolitan Los Angeles (IIMMLA) study focused on young adult children of immigrants (1.5- and second-generation) in greater Los Angeles. IIMMLA investigated mobility among young adult (ages 20-39) children of immigrants in metropolitan Los Angeles and, in the case of the Mexican-origin population there, among young adult members of the third- or later generations. The five-county Los Angeles metropolitan area (Los Angeles, Orange, Ventura, Riverside and San Bernardino counties) contains the largest concentrations of Mexicans, Salvadorans, Guatemalans, Filipinos, Chinese, Vietnamese, Koreans, and other nationalities in the United States. The diverse migration histories and modes of incorporation of these groups made the Los Angeles metropolitan area a strategic choice for a comparison study of the pathways of immigrant incorporation and mobility from one generation to the next. The IIMMLA study compared six foreign-born (1.5-generation) and foreign-parentage (second-generation) groups (Mexicans, Vietnamese, Filipinos, Koreans, Chinese, and Central Americans from Guatemala and El Salvador) with three native-born and native-parentage comparison groups (third- or later-generation Mexican Americans, and non-Hispanic Whites and Blacks). The targeted groups represent both the diversity of modes of incorporation in the United States and the range of occupational backgrounds and immigration status among contemporary immigrants (from professionals and entrepreneurs to laborers, refugees, and unauthorized migrants). The surveys provide basic demographic information as well as extensive data about socio-cultural orientation and mobility (e.g., language use, ethnic identity, religion, remittances, intermarriage, experiences of discrimination), economic mobility (e.g., parents' background, respondents' education, first and current job, wealth and income, encounters with the law), geographic mobility (childhood and present neighborhood of residence), and civic engagement and politics (political attitudes, voting behavior, as well as naturalization and transnational ties).

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Midlife in the United States (MIDUS 1) National Study of Daily Experiences (NSDE), 1996-1997 (ICPSR 3725)

Released/updated on: 2023-01-25

Geographic coverage: United States

Time period: 1996-03-01--1997-03-01

The National Study of Daily Experiences (NSDE) is one of the in-depth studies that are part of the MacAuthur Foundation National Survey of Midlife in the United States (MIDUS). The purpose of the NSDE is to examine the day-to-day lives, particularly the daily stressful experiences, of a subsample of MIDUS respondents. Although previous daily diary research has advanced understanding of daily stress processes, there are important limitations in these studies that are addressed in the NSDE. First, previous studies in this area have relied on small and often unrepresentative samples that limit the ability to generalize findings. For this reason, the NSDE uses a large national sample of adults in the United States. Second, previous studies of individual differences in exposure and reactivity to daily events have typically examined only one source of variability, such as personality, to the exclusion of others. The NSDE corrects this problem by utilizing the data collected in the larger MIDUS survey on a wide array of sociodemographic and psychosocial variables to study the determinants of exposure and reactivity to daily stress. Third, previous studies have failed to investigate the role of genetics in both exposure and reactivity to daily stressors. The NSDE has a subsample of identical and fraternal same-sex twin pairs in order to explore this issue. The twins were selected if twin pairs had high self-reported certainty of zygosity, had completed the MIDUS interview and questionnaires, and had mailed in their cheek cell samples. A wide range of information was obtained using the daily telephone interview. Conducting interviews for an entire year provided information about seasonal variation in daily experiences. Respondents completed an average of 7.2 of the 8 interviews resulting in a total of 10,397 days of interviews. Data collection consisted of 40 separate "flights" of interviews with each flight representing the eight-day sequence of interviews from approximately 33 respondents. The entire interview was CATI programmed, which enabled researchers to incorporate skip patterns and open ended probe questions as well as to keypunch data during the interview, allowing data cleaning throughout the data collection. Demographic information includes gender and age.

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Project on Human Development in Chicago Neighborhoods (PHDCN): Neighborhood Activity, Wave 2, 1997-2000 (ICPSR 13638)

Released/updated on: 2006-04-17

Geographic coverage: United States, Chicago, Illinois

Time period: 1997-01-01--2000-01-01

The Project on Human Development in Chicago Neighborhoods (PHDCN) was a large-scale, interdisciplinary study of how families, schools, and neighborhoods affect child and adolescent development. One component of the PHDCN was the Longitudinal Cohort Study, which was a series of coordinated longitudinal studies that followed over 6,000 randomly selected children, adolescents, and young adults, and their primary caregivers over time to examine the changing circumstances of their lives, as well as the personal characteristics, that might lead them toward or away from a variety of antisocial behaviors. Numerous measures were administered to respondents to gauge various aspects of human development, including individual differences, as well as family, peer, and school influences. One such measure was the Neighborhood Activity instrument that obtained information regarding the subject's community involvement. It was administered to Cohort 18.