Advanced Cognitive Training for Independent and Vital Elderly (ACTIVE), United States, 1999-2001 (ICPSR 4248)
The data producers have recompiled the ACTIVE data into a new study which is available as of December 2023, ICPSR 38821; data users should plan to use study 38821 instead.
ACTIVE (Advanced Cognitive Training for Independent and Vital Elderly), 1999-2001 [United States] was a multisite randomized controlled trial conducted at six field sites with New England Research Institutes (NERI) as the coordinating center. The field sites included the University of Alabama at Birmingham, Hebrew Rehabilitation Center for the Aged in Boston, Indiana University, Johns Hopkins University in Baltimore, Pennsylvania State University, and the University of Florida/Wayne State University (Detroit). The primary aim of the trial was to test the effects of three distinct cognitive interventions -- previously found to be successful in improving elders' performance on basic measures of cognition under laboratory or small-scale field conditions -- on measures of cognitively demanding daily activities. Trainings consisted of an initial series of ten group sessions followed by four-session booster trainings at one and three years. The three cognitive interventions focused on memory, executive reasoning, and speed of processing. The design included a no-contact control group. Participants were assessed at baseline, immediately after training, and annually thereafter. A total of 2,832 older adults were enrolled in the trial, and 2,802 were included in the analytical sample. Twenty-six percent of the participants were African American.
Americans' Changing Lives: Waves I, II, III, IV, V, and VI, 1986, 1989, 1994, 2002, 2011, and 2021 (ICPSR 4690)
The Americans' Changing Lives (ACL) survey series is an ongoing, nationally representative, longitudinal study focusing especially on differences between Black and White Americans in middle and late life. These data constitute the first, second, third, fourth, fifth, and sixth waves in a panel survey covering a wide range of sociological, psychological, mental, and physical health items. Wave I of the study began in 1986 with a nation face-to-face survey of 3,617 adults ages 25 and up, with Black Americans and people aged 60 and over over-sampled at twice the rate of the others. Wave II constitutes face-to-face re-interviews in 1989 of those still alive. Survivors have been re-interviewed by telephone, and when necessary face-to-face, in 1994 (Wave III), 2001/02 (Wave IV), 2011 (Wave V), and 2019/21 (Wave VI).
Please note that for Wave VI, the majority of data collection occurred in 2019, with only a small subset (n=39) of participants surveyed in 2021.
ACL was designed and sought to investigate the following: (1) The ways in which a wide range of activities and social relationships that people engage in are broadly "productive," (2) how individuals adapt to acute life events and chronic stresses that threaten the maintenance of health, effective functioning, and productive activity, and (3) sociocultural variations in the nature, meaning, determinants, and consequences of productive activity and relationships. Among the topics covered are interpersonal relationships (spouse/partner, children, parents, friends), sources and levels of satisfaction, social interactions and leisure activities, traumatic life events (physical assault, serious illness, divorce, death of a loved one, financial or legal problems), perceptions of retirement, health behaviors (smoking, alcohol consumption, overweight, rest), and utilization of health care services (doctor visits, hospitalization, nursing home institutionalization, bed days). Also included are measures of physical health, psychological well-being, and indices referring to cognitive functioning.
Demographic information provided for individuals includes household composition, number of children and grandchildren, employment status, occupation and work history, income, family financial situation, religious beliefs and practices, ethnicity, race, education, sex, and region of residence.
Carolina Abecedarian Project (ABC) and the Carolina Approach to Responsive Education (CARE), Age 21 Follow Up Study, 1993 - 2003 (ICPSR 32262)
The Carolina Abecedarian (ABC) Project and the Carolina Approach to Responsive Education (CARE) projects consist of two consecutive longitudinal studies on the effectiveness of early childhood educational intervention for children at high risk for developmental delays and school failure. Combined, the two studies test the hypothesis that child care, home visit, and home school resource interventions can enhance cognitive and academic outcomes for children at risk for school failure due to factors such as poverty, low maternal IQ, or low parental education. These studies provide the only experimental data regarding the efficacy of child care interventions that began during early infancy and lasted until the child entered kindergarten. In addition, the data allow for tests of the efficacy of intervention during the primary grades.
Research hypotheses include:
- Within this high-risk sample, early cumulative risk will be negatively associated with young adult educational outcomes, employment outcomes, avoidance of teen parenthood, and avoidance of criminal behavior.
- Early intervention will moderate the effects of risk such that the effects of increased risk would be weaker for those who received the intervention than for those who did not.
- The early home environment would mediate any found effects for early risk and that early educational intervention would moderate the effects of the early home environment such that the effects of a poor-quality home environment would be weaker for those who received treatment compared to those who did not.
Further information can be found on the Carolina Abecedarian Project Web site.
Carolina Abecedarian Project and the Carolina Approach to Responsive Education (CARE), United States, 1972-1992 (ICPSR 4091)
The Carolina Abecedarian (ABC) Project and the Carolina Approach to Responsive Education (CARE) projects consist of two consecutive longitudinal studies on the effectiveness of early childhood educational intervention for children at high risk for developmental delays and school failure. Combined, the two studies test the hypothesis that child care, home visit, and home school resource interventions can enhance cognitive and academic outcomes for children at risk for school failure due to factors such as poverty, low maternal IQ, or low parental education. These studies provide the only experimental data regarding the efficacy of child care interventions that began during early infancy and lasted until the child entered kindergarten. In addition, the data allow for tests of the efficacy of intervention during the primary grades.
Research hypotheses include:
- Within this high-risk sample, early cumulative risk will be negatively associated with young adult educational outcomes, employment outcomes, avoidance of teen parenthood, and avoidance of criminal behavior.
- Early intervention will moderate the effects of risk such that the effects of increased risk would be weaker for those who received the intervention than for those who did not.
- The early home environment would mediate any found effects for early risk and that early educational intervention would moderate the effects of the early home environment such that the effects of a poor-quality home environment would be weaker for those who received treatment compared to those who did not.
Demographic variables included in this collection: gender, age, level of education.
Center for Education and Drug Abuse Research (CEDAR): Etiological and Prospective Family Study in Southwestern Pennsylvania, Baseline and Follow-Up Data, 1990-2014 (ICPSR 33444)
Danish 1905 Cohort Study, 1998 (ICPSR 3960)
English Longitudinal Study of Ageing (ELSA) (ICPSR 139)
The English Longitudinal Study of Ageing is a study of aging and quality of life for people over the age of 50. Established in 2002, the original sample was drawn from households that had previously responded to the Health Survey for England (HSE) between 1998 and 2001. The same group of respondents are surveyed every two years to see how their health, economic, and social circumstances may change over time. One of the study's aims is to determine the relationships between functioning and health, social networks, resources, and economic position as people plan for, move into, and progress beyond retirement. It is patterned after the Health and Retirement Study, a similar study based in the United States.
Although new topics can be introduced at different waves, every module has been reviewed to ensure that it will provide data that can measure change over time. This is achieved by repeating some measures exactly, by asking directly about change, and by adopting questions to allow people to update or amend past responses.
The information collected provides data about: Household and individual demographics; Health - physical and psychosocial; Social care (from Wave 6); Work and pensions; Income and assets; Housing; Cognitive function; Social participation; Effort and Reward (voluntary work and caring); Expectations; Walking speed; Weight.
The Future of Families and Child Wellbeing Study (FFCWS), Public Use, United States, 1998-2024 (ICPSR 31622)
The Future of Families and Child Wellbeing Study (FFCWS, formerly known as the Fragile Families and Child Wellbeing Study) follows a cohort of nearly 5,000 children born in large, U.S. cities between 1998 and 2000. The study oversampled births to unmarried couples; and, when weighted, the data are representative of births in large U.S. cities at the turn of the century. The FFCWS was originally designed to address four questions of great interest to researchers and policy makers:
- What are the conditions and capabilities of unmarried parents, especially fathers?
- What is the nature of the relationships between unmarried parents?
- How do children born into these families fare?
- How do policies and environmental conditions affect families and children?
The FFCWS consists of interviews with mothers, fathers, and/or primary caregivers at birth and again when children are ages 1, 3, 5, 9, 15, and 22. The parent interviews collected information on attitudes, relationships, parenting behavior, demographic characteristics, health (mental and physical), economic and employment status, neighborhood characteristics, and program participation. Beginning at age 9, children were interviewed directly (either during the home visit or on the telephone). The direct child interviews collected data on family relationships, home routines, schools, peers, and physical and mental health, as well as health behaviors.
A collaborative study of the FFCWS, the In-Home Longitudinal Study of Pre-School Aged Children (In-Home Study) collected data from a subset of the FFCWS Core respondents at the Year 3 and 5 follow-ups to ask how parental resources in the form of parental presence or absence, time, and money influence children under the age of 5. The In-Home Study collected information on a variety of domains of the child's environment, including: the physical environment (quality of housing, nutrition and food security, health care, adequacy of clothing and supervision) and parenting (parental discipline, parental attachment, and cognitive stimulation). In addition, the In-Home Study also collected information on several important child outcomes, including anthropometrics, child behaviors, and cognitive ability. This information was collected through interviews with the child's primary caregiver, and direct observation of the child's home environment and the child's interactions with his or her caregiver.
Similar activities were conducted during the Year 9 follow-up. At the Year 15 follow-up, a condensed set of home visit activities were conducted with a subsample of approximately 1,000 teens. Teens who participated in the In-Home Study were also invited to participate in a Sleep Study and were asked to wear an accelerometer on their non-dominant wrist for seven consecutive days to track their sleep (Sleep Actigraphy Data) and that day's behaviors and mood (Daily Sleep Actigraphy and Diary Survey Data).
An additional collaborative study collected data from the child care provider (Year 3) and teacher (Years 9 and 15) through mail-based surveys. Saliva samples were collected at Year 9 and 15 (Biomarker file and Polygenic Scores). The Study of Adolescent Neural Development (SAND) COVID Study began data collection in May 2020 following the onset of the COVID-19 pandemic. It included online surveys with the young adult and their primary caregiver.
The FFCWS began its seventh wave of data collection in October 2020, around the focal child's 22nd birthday. Data collection and interviews continued through January 2024. The Year 22 wave included a young adult (YA) survey with the original focal child and a primary caregiver (PCG) survey. Data were also collected on the children of the original focal child (referred to as Generation 3, or G3).
In 2017, the FFCWS team announced the Fragile Families (FF) Challenge, a collaborative effort in which participants were tasked with using machine learning methods and FFCWS data (Baseline to Year 9) to build a model that would predict six key outcomes at Year 15. Materials used in the FF Challenge have been archived in this collection.
Documentation for these files is available on the FFCWS website under Data and Documentation. For details of updates made to the FFCWS data files, please see the project's Data Alerts page.
Data collection for the Future of Families and Child Wellbeing Study was supported by the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) of the National Institutes of Health under award numbers R01HD36916, R01HD39135, and R01HD40421, as well as a consortium of private foundations.
Below is the citation for use of the FFCWS data accessed through ICPSR. For information on additional citation requirements when using FFCWS in publications, please refer to this FAQ on the FFCWS project site.
Housing and Children's Healthy Development Study (HCHD) Wave 1, Cleveland, Ohio, and Dallas, Texas Metropolitan Areas, 2017-2018 (ICPSR 39274)
The Housing and Children's Healthy Development (HCHD) Study included four main aims:
- to learn how parents make choices about where to live while negotiating tradeoffs between dwelling unit quality, neighborhood quality, and school quality;
- to assess how features of the child's social contexts--home, neighborhood, and school--combine to influence key cognitive, socio-emotional, and health outcomes among parents and their children;
- to examine how the quality of housing affects parenting practices and outcomes for children and their caregivers; and
- to enhance the study of child development through theoretical and methodological advances in the study of housing and the other social contexts related to housing.
For this collection, the study team conducted Wave 1 data collection with families in Cleveland, Ohio (Cuyahoga County) and Dallas, Texas, United States, using a randomized controlled trial design. One-half of the sample was an experimental sample consisting of applicants for a federal housing voucher, including both voucher winners (treatment group) and voucher losers (control group). The other half of the sample was generated through a random selection and screening process in census blocks that varied by household income weighted toward lower-income blocks.
Interviews were conducted with primary caregivers, lasting about 90 minutes, and included the collection of anthropometric measures from primary caregivers and children and administration of Woodcock-Johnson tests to children. Primary caregiver voucher sample participants were asked for three blood pressure measurements, and blood spots were collected from voucher sample primary caregivers and children. The data collection also includes laser tape measurement of all rooms in a household, 8 block face neighborhood observations, and post-interview observations. Four-day leave-behind child time diary data were collected but are not available.
Housing and Children's Healthy Development Study (HCHD) Wave 2, Cleveland, Ohio, and Dallas, Texas Metropolitan Areas, 2020-2021 (ICPSR 39275)
The Housing and Children's Healthy Development (HCHD) Study included four main aims:
- to learn how parents make choices about where to live while negotiating tradeoffs between dwelling unit quality, neighborhood quality, and school quality;
- to assess how features of the child's social contexts--home, neighborhood, and school--combine to influence key cognitive, socio-emotional, and health outcomes among parents and their children;
- to examine how the quality of housing affects parenting practices and outcomes for children and their caregivers; and
- to enhance the study of child development through theoretical and methodological advances in the study of housing and the other social contexts related to housing.
This collection includes data from Wave 2 of the HCHD Study. In Wave 2, telephone interviews were completed with 1,413 primary caregivers (PCGs) from the Wave 1 data collection. The PCGs also provided reports for 1,954 focal children who were still living in the household of the caregiver at the time of the Wave 2 survey. Wave 2 data collection included a coverscreen to gather updated location and contact information for the PCGs and children to determine household eligibility, and a PCG questionnaire based largely on the Wave 1 protocol with modifications for telephone interviewing.
The Irish Longitudinal Study on Ageing (TILDA), Wave 2, 2012-2013 (ICPSR 37105)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The TILDA Series data, including studies 34315, 38681, 37105, 37106, 38670, 38674, are currently unavailable at the request of the data producer due to concerns related to EU and Irish data privacy and data sharing rules. We are working to determine the best solution to continue to share these data with the research community. Individuals interested in obtaining TILDA data access at this time should reach out to the TILDA project directly (https://tilda.tcd.ie/data/accessing-data/).
The Irish Longitudinal Study on Ageing (TILDA) is a major inter-institutional initiative led by Trinity College Dublin which aims to produce a massive improvement in the quantity and quality of data, research and information relating to older people and ageing in Ireland. Eligible respondents for this study include individuals aged 50 and over and their spouses or partners of any age. The study involves interviews on a two yearly basis with a sample cohort of 8,504 people aged 50 and over (or their spouses/partners) and resident in Ireland, collecting detailed information on all aspects of their lives, including the economic (pensions, employment, living standards), health (physical, mental, service needs and usage) and social aspects (contact with friends and kin, formal and informal care, social participation). Both survey interviews and physical and biological measurements are utilized.
The second wave of TILDA interviews were undertaken between February 2012 and March 2013. Of the 8,504 interviewed in Wave 1, a second interview was obtained for 7,445 respondents. These consisted of the self, proxy and end-of-life interviews types. In addition to the returning respondents, 170 interviews were obtained from eligible household members who had chosen not to take part in Wave 1 or the new spouses/partners of existing respondents.
Demographic and background variables include age, sex, marital status, household composition, education, and employment.
Long Beach Longitudinal Study (ICPSR 26561)
The Long Beach Longitudinal Study (LBLS) was created in 1978 to obtain normative data for the Schaie-Thurston Adult Mental Abilities Test (STAMAT). From 1994 to 2003 it was extended under the guiding principle that cognitive aging is a largely contextual phenomenon. Individual differences in abilities and change in those abilities over adulthood are associated not only with cognitive mechanisms, but with sociodemographic phenomena such as birth cohort, or gender, and within-individual characteristics, including health, affect, self-efficacy, personality, and other variables that impact health. This principle is reflected in the testing measures added to the original panel. Besides the original ability measures used by Schaie, the Life Complexity Inventory, has been included in all testing. Because these measures were included in the later generations of testing, independent and direct comparisons can be made with Seattle Longitudinal Study (ICPSR 00158) to replicate findings and to generalize longitudinal samples.
Panel 1
The initial panel was sampled in 1978 and consisted of 65 adults aged 28-33 and 518 adults aged 55-84. This sample was tested using the STAMAT, as well as a 20-item list of common English nouns for testing free recall, and a brief essay to test text recall. In 1981, 264 participants from this sample were retested, 106 were again retested from 1994-1995, and 42 in 1997. Finally, 15 participants of the original sample were tested from 2000-2002 using additional tests adopted for the creation of a second panel, described below, as well as a test for measuring executive function.
Panel 2
In 1994, a second panel of 630 participants aged 30-97, a third of which were over 80, was added to the study. The testing for this sample included multiple indices of list recall, text recall, working memory, perceptual speed, and vocabulary for structural equation modeling. Assessment of language, autobiographical memory, personality, depression, health, health behaviors and other measures were also incorporated into the study. In 1997, 352 members of this second panel were retested. From 2000-2002, 179 participants of this second panel completed the 1994-1995 measures, as well as several tests extending the battery to indices of executive function. In 2003, 133 participants were retested.
Panel 3
A third sample was recruited during the 2000-2002 time frame consisting of 911 participants aged 30-98, again approximately a third of which were over the age of 80. In 2003, 513 members of this third panel were retested.
Datasets
The data are provided in 6 datasets.
Panel 1 and 2 1978 - 2003 Longitudinal File
Dataset 1 is a longitudinal file of data from Panel 1 for tests performed in 1978, 1981, 1994, 1997, and 2000-2002, and data from Panel 2 for tests performed in 1994, 1997, 2000-2002 and 2003.
Panels 1 and 2 1994 STAMAT File
Dataset 2 contains the STAMAT test variables for Panels 1 and 2.
Panel 1 and 2 1994-2000 Master Data Longitudinal File
Dataset 3 is a second longitudinal file containing the complete catalog of variables from Panels 1 and 2 for test performed in 1994, 1997 and 2000.
Panel 2 Wave 1 1994 Cross File
Dataset 4 contains variables for the first wave of Panel 2 which took place in 1994.
Panel 2 Wave 2 1997 Cross File
Dataset 5 contains variables for the second wave of Panel 2 which took place in 1997.
Panel 3 Wave 1 2000 Master File
Dataset 6 contains variables from the first wave of Panel 3 which took place in 2000.
Longitudinal Study of Aging Danish Twins, 1995 (ICPSR 21041)
Midlife in the United States (MIDUS 2): Cognitive Project, 2004-2006 (ICPSR 25281)
In 1994/1995, the MacArthur Midlife Research Network carried out a national survey of over 7,000 Americans aged 25 to 74. The purpose of the study was to investigate the role of behavioral, psychological, and social factors in understanding age-related differences in physical and mental health. A description of the study and findings from it are available at the MIDUS website.
With support from the National Institute on Aging, a longitudinal follow-up of the original MIDUS samples (core sample (N = 3,487), metropolitan over-samples (N = 757), twins (N = 957 pairs), and siblings (N = 950)) was conducted in 2004-2006. Guiding hypotheses, at the most general level, were that behavioral and psychosocial factors are consequential for health (physical and mental). The purpose of the Cognitive Project was to determine how cognition is related to overall mental and physical health. Specific goals were: (1) to characterize the nature and range of midlife cognitive performance, relative to those younger and older, across multiple domains in a nationally representative sample (MIDUS); and (2) to examine the relationship between biopsychosocial factors (e.g., SES, health status, health-promoting behaviors, metabolic and cardiovascular biomarkers, depression, personality, control beliefs, stressful life events) and individual differences in cognitive functioning.
The development of a cognitive battery for the second wave of testing of the Midlife Development in the United States (MIDUS) study provided an opportunity to examine the cognitive performance of young, middle-aged and older adults from a wide range of education levels in a large-scale, national sample. As part of the Cognitive Project of the MIDUS II the Brief Test of Adult Cognition by Telephone (BTACT) (Lachman & Tun, 2008; Tun & Lachman, 2006) was administered. More information about the BTACT can be found at the Brandeis website. The BTACT represents the first comprehensive cognitive battery, including measures of speed and reaction time, to be administered by telephone to a national sample across the adult years and into later life. With a response rate of over 86 percent for the cognitive testing component of the MIDUS II, a cognitive data set of unprecedented range in terms of age, gender, socioeconomic status (SES), education, and geographic diversity was produced.
Midlife in the United States (MIDUS 3): Neuroscience Project, 2017-2022 (ICPSR 38862)
From 2004-2009, an initial follow-up of the original Midlife Development in the United States samples (MIDUS 2) was conducted with expansion of the protocol to include Neuroscience Project data collection and a sample of Black Americans from Milwaukee, WI. The MIDUS Neuroscience Project performed a second follow-up from 2017-2022 of the MIDUS Main and Milwaukee samples (MIDUS 3) on a subsample of those who completed the MIDUS 3 Survey and Biomarker Projects.
The goal was to examine indices of brain aging, function, and structure with a focus on the brain circuitry associated with individual differences in affective style, and to characterize the peripheral consequences of these central profiles for biological systems that may be relevant to health. The primary aims were to: (1) characterize individual differences in emotional reactivity, recovery, and sustaining processes using corrugator and zygomatic electromyography and eyeblink startle magnitude, (2) characterize individual differences in brain morphology and connectivity using structural magnetic resonance imaging (MRI) and diffusion weighted imaging (DWI) (3) characterize individual differences in functional activity within the neural circuitry of emotion using task and resting state fMRI, (4) calculate brain age, and (5) test the ability of these indices to predict the comprehensive array of health, wellbeing, cognitive, psychological, social, and life challenge factors assessed in other MIDUS projects. To probe individual differences in emotional processes, psychophysiological and fMRI measures of emotional responses to the presentation of negative, positive, and neutral pictures, and these same measures during a post-picture period were examined.
Emotion-influenced memory was assessed at both the psychophysiological and imaging sessions: (1) Free recall of the presented affective pictures at the end of the psychophysiological session. (2) Memory and likeability ratings for neutral faces paired with the affective pictures in the imaging task. Finally, selected tasks from the CANTAB assessed affective biases and cognitive processes important for emotion regulation.
National Health and Nutrition Examination Survey (NHANES), 1999-2000 (ICPSR 25501)
National Health and Nutrition Examination Survey (NHANES), 2001-2002 (ICPSR 25502)
National Health and Nutrition Examination Survey (NHANES), 2003-2004 (ICPSR 25503)
The National Health and Nutrition Examination Surveys (NHANES) is a program of studies designed to assess the health and nutritional status of adults and children in the United States. The NHANES combines personal interviews and physical examinations, which focus on different population groups or health topics. These surveys have been conducted by the National Center for Health Statistics (NCHS) on a periodic basis from 1971 to 1994. In 1999 the NHANES became a continuous program with a changing focus on a variety of health and nutrition measurements which were designed to meet current and emerging concerns. The surveys examine a nationally representative sample of approximately 5,000 persons each year. These persons are located in counties across the United States, 15 of which are visited each year.
For NHANES 2003-2004, there were 12,761 persons selected for the sample, 10,122 of those were interviewed (79.3 percent) and 9,643 (75.6 percent) were examined in the mobile examination centers (MEC). Many of the NHANES 2003-2004 questions were also asked in NHANES II 1976-1980, Hispanic HANES 1982-1984, NHANES III 1988-1994, and NHANES 1999-2002. New questions were added to the survey based on recommendations from survey collaborators, NCHS staff, and other interagency work groups. As in past health examination surveys, data were collected on the prevalence of chronic conditions in the population. Estimates for previously undiagnosed conditions, as well as those known to and reported by survey respondents, are produced through the survey. Risk factors, those aspects of a person's lifestyle, constitution, heredity, or environment that may increase the chances of developing a certain disease or condition, were examined. Data on smoking, alcohol consumption, sexual practices, drug use, physical fitness and activity, weight, and dietary intake were collected. Information on certain aspects of reproductive health, such as use of oral contraceptives and breastfeeding practices, were also collected. The diseases, medical conditions, and health indicators that were studied include: anemia, cardiovascular disease, diabetes and lower extremity disease, environmental exposures, equilibrium, hearing loss, infectious diseases and immunization, kidney disease, mental health and cognitive functioning, nutrition, obesity, oral health, osteoporosis, physical fitness and physical functioning, reproductive history and sexual behavior, respiratory disease (asthma, chronic bronchitis, emphysema), sexually transmitted diseases, skin diseases, and vision. The sample for the survey was selected to represent the United States population of all ages. Special emphasis in the 2003-2004 NHANES was on adolescent health and the health of older Americans. To produce reliable statistics for these groups, adolescents aged 15-19 years and persons aged 60 years and older were over-sampled for the survey. African Americans and Mexican Americans were also over-sampled to enable accurate estimates for these groups. Several important areas in adolescent health, including nutrition and fitness and other aspects of growth and development, were addressed. Since the United States has experienced dramatic growth in the number of older people during the twentieth century, the aging population has major implications for health care needs, public policy, and research priorities. NCHS is working with public health agencies to increase the knowledge of the health status of older Americans. NHANES has a primary role in this endeavor. In the examination, all participants visit the physician who takes their pulse or blood pressure. Dietary interviews and body measurements are included for everyone. All but the very young have a blood sample taken and see the dentist. Depending upon the age of the participant, the rest of the examination includes tests and procedures to assess the various aspects of health listed above. Usually, the older the individual, the more extensive the examination. Some persons who are unable or unwilling to come to the examination center may be given a less extensive examination in their homes.
Demographic data file variables are grouped into three broad categories: (1) Status Variables: provide core information on the survey participant. Examples of the core variables include interview status, examination status, and sequence number. (Sequence number is a unique ID assigned to each sample person and is required to match the information on this demographic file to the rest of the NHANES 2003-2004 data). (2) Recoded Demographic Variables: these variables include age (age in months for persons through age 19 years, 11 months; age in years for 1- to 84-year-olds, and a top-coded age group of 85 years of age and older), gender, a race/ethnicity variable, current or highest grade of education completed, (less than high school, high school, and more than high school education), country of birth (United States, Mexico, or other foreign born), Poverty Income Ratio (PIR), income, and a pregnancy status variable (adjudicated from various pregnancy related variables). Some of the groupings were made due to limited sample sizes for the two-year data set. (3) Interview and Examination Sample Weight Variables: sample weights are available for analyzing NHANES 2003-2004 data. For a complete listing of survey contents for all years of the NHANES see the document -- Survey Content -- NHANES 1999-2010.
National Health and Nutrition Examination Survey (NHANES), 2005-2006 (ICPSR 25504)
National Health and Nutrition Examination Survey (NHANES), 2007-2008 (ICPSR 25505)
National Longitudinal Study of Adolescent to Adult Health (Add Health) Parent Study: Public Use, [United States], 2015-2017 (ICPSR 37375)
The National Longitudinal Study of Adolescent to Adult Health (Add Health) Parent Study Public Use collection includes data gathered as part of the Add Health longitudinal survey of adolescents. The original Add Health survey is a longitudinal study of a nationally representative sample of adolescents in grades 7-12 in the United States during the 1994-1995 school year. In Wave 1 of the Add Health Study (1994-1995), a parent of each Add Health Sample Member (AHSM) was interviewed. The Add Health Parent Study gathered social, behavioral, and health survey data in 2015-2017 from the parents of Add Health Sample members who were originally interviewed at Wave 1 (1994-1995). Wave 1 Parents were asked about their adolescent children, their relationships with them, and their own health.
The Add Health Parent Study interview is a comprehensive survey of Add Health parents' family relations, education, religious beliefs, physical and mental health, social support, and community involvement experiences. In addition, survey data contains cognitive assessments, a medications log linked to a medications database lookup table, and household financial information collection. The survey also includes permission for administrative data linkages and includes data from a Family Health History Leave-Behind questionnaire. Interviews were conducted with parents' spouse/partner when available.
Research domains targeted in the survey and research questions that may be addressed using the Add Health Parent Study data include:
- Health Behaviors and Risks Many health conditions and behaviors run in families; for example, cardiovascular disease, obesity and substance abuse. How are health risks and behaviors transmitted across generations or clustered within families? How can we use information on the parents' health and health behavior to better understand the determinants of their (adult) children's health trajectories?
- Cognitive Functioning and Non-Cognitive Personality Traits What role does the intergenerational transmission of personality and locus of control play in generating intergenerational persistence in education, family status, income and health? How do the personality traits of parents and children, and how they interact, influence the extent and quality of intergenerational relationships and the prevalence of assistance across generations?
- Decision-Making, Expectations, and Risk Preferences Do intergenerational correlations in risk preferences represent intergenerational transmission of preferences? If so, are the transmission mechanisms a factor in biological and environmental vulnerabilities? Does the extent of genetic liability vary in response to both family-specific and generation-specific environmental pressures?
- Family Support, Relationship Quality and Ties of Obligation How does family complexity affect intergenerational obligations and the strength of relationship ties? As parents near retirement: What roles do they play in their children's lives and their children in their lives? What assistance are they providing to their adult children and grandchildren? What do they receive in return? And how do these ties vary with divorce, remarriage and familial estrangement?
- Economic Status and Capacities What are the economic capacities of the parents' generation as they reach their retirement years? How have fared through the wealth and employment shocks of the Great Recession? Are parents able to provide for their own financial need? And, do they have the time and financial resources to help support their children and grandchildren and are they prepared to do so?
National Longitudinal Survey of Youth (NLSY): Child Supplement (ICPSR 182)
New York City Health and Nutrition Examination Survey (NYC HANES), 2004 (ICPSR 31421)
Social Environment and Biomarkers of Aging Study (SEBAS) in Taiwan, 2000 and 2006 (ICPSR 3792)
The Social Environment and Biomarkers of Aging Study (SEBAS) in Taiwan, 2000 and 2006, provides information regarding the health and well-being of older persons in Taiwan. Taiwan has undergone rapid demographic, social, and economic changes, becoming a highly urbanized and industrial society with a growing population of persons age 65 or older. SEBAS explores the relationship between life challenges and mental and physical health, the impact of social environment on the health and well-being of the elderly, as well as biological markers of health and stress. The study collected self-reports of physical, psychological, and social well-being, plus extensive clinical data based on medical examinations and laboratory analyses. Examination of health outcomes included chronic illnesses, functional status, psychological well-being, and cognitive function. Questions regarding life challenges focused on perceived stress, economic difficulties, security and safety, and the consequences of a major earthquake. Biological markers were used to identify cardiovascular risk factors, metabolic process measures, immune-system activity, the hypothalamic-pituitary adrenal axis, and sympathetic nervous system activity. Two rounds of biomarker data collected in 2000 and 2006 were complemented by face-to-face interviews with the participants. Demographic and background variables included age, sex, education, ethnicity, occupation, and residency.
Additional information about the Social Environment and Biomarkers of Aging Study can be found at the Georgetown University Center for Populations and Health Web site.
A Webinar describing the Social Environment and Biomarkers of Aging Study (SEBAS) was presented June 20, 2016. All interested users can access the webinar here.
Study of Family Life in Urban China, 1999 (ICPSR 28143)
The Survey of Health, Ageing and Retirement in Europe (SHARE) -- Israel, 2005-2006 (ICPSR 22160)
The Survey of Health, Ageing and Retirement in Europe (SHARE) is a multidisciplinary and cross-national database of micro data on health, socio-economic status and social and family networks of individuals aged 50 or over which was designed after the role models of the United States Health and Retirement Study (HRS) and the English Longitudinal Study of Ageing (ELSA).
SHARE-Israel was added to the collection during 2005 and 2006 and required a complex adaptation of the SHARE survey instruments for implementation in Israel. In order to access the three major population groups that make up Israeli society, veteran Jewish-Israelis, Arab-Israelis and new immigrants from the former Soviet Union after 1989, it was necessary to translate the CAPI questionnaire and the drop off questionnaire into Hebrew, Arabic and Russian.
Data collected include health variables (e.g., self-reported health, physical functioning, cognitive functioning, health behavior, use of health care facilities), psychological variables (e.g., psychological health, well-being, life satisfaction), economic variables such as (current work activity, job characteristics, opportunities to work past retirement age, sources and composition of current income, wealth and consumption, housing, education), and social support variables (e.g., assistance within families, transfers of income and assets, social networks, volunteer activities).
Two physical performance measures were also employed. The first was grip strength, the respondent's maximum handgrip strength measured by means of a dynamometer. The second physical performance measure was walking speed, which was asked only of persons aged 75 and older. This physical measurement involved asking the respondent to walk a certain distance and measuring the time it took for the respondent to complete the task.
Unique to SHARE-Israel were questions in the drop-off questionnaire regarding trauma. Respondents were asked about difficult life events that they had experienced and the degree to which they were affected by them. The events were drawn from the following areas (1) having personally suffered injury in war, in a terrorist attack, a grave illness or accident, (2) having witnessed injury or death in war, in a terrorist attack, and/or in an accident or crime, (3) having been a victim of crime, abuse, sexual harassment and/or severe economic adversity, (4) having had a close person injured or lost due to war, a terrorist attack, accident or grave illness, (5) loss of spouse and/or offspring, and (6) having provided or received long term care due to functional disability. A separate inventory chronicled respondents' exposure to the Holocaust.
Also included in the drop-off questionnaire were questions regarding pension reform: which addressed respondents' awareness of the legislated delay in the age of eligibility for retirement pension in Israel, (for men, age 67 and for women, age 64). It also inquired about implications of the change in pension age, information regarding personal plans for employment or retirement in light of the change, and sources of income that would be used to bridge the period between retirement and receipt of pension, if early retirement was contemplated. Full details regarding SHARE can be located at the SHARE Web site.