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Showing 1 – 31 of 31 results.
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Partially restricted
Simple Crosstabs

21st Century Americanism: Nationally Representative Survey of the United States Population, 2004 (ICPSR 27601)

Released/updated on: 2015-04-02
Geographic coverage: United States
Time period: 2004-07-12--2004-10-08
The 21st Century Americanism survey was conducted to study (1) the multidimensional nature of American identity ("Americanism"); (2) resentment among Whites toward immigrants, Latinos, and Asians, fueled by perceptions that these groups violate the cherished norms that constitute American identity ("symbolic nativism"); (3) how perceptions of discrimination affect the process of "becoming American" among ethnic minorities ("reactive ethnicity"); and (4) the relationships among these issues and public opinion on policies that address ethnic change. The data collection began in July 2004 and was completed by October 2004. This nationally representative random-digit dial telephone survey has 2,800 respondents and includes oversamples of Blacks, Latinos, and Asians in the United States. It contains questions that allow for the examination of the causes and consequences of two facets of American identity: (1) how people define the normative content of American identity ("identity content"); and (2) the extent to which people think of themselves primarily as American rather than primarily as a member of a pan-ethnic (i.e., Latino or Asian) or national origin group ("identity attachment"). The survey can be used to test hypotheses regarding whether the alleged traditional consensus on what it means to be American is breaking down, or whether people are increasingly rejecting an American identity and instead prioritizing pan-ethnic or national origin identities. It can also be used to examine how these aspects of one's identity affect political attitudes and behaviors, such as trust in government, voting, and one's sense of obligation to the national community. Demographic variables include gender, age, country of origin, United States citizenship status, race, Hispanic origin, and language and educational attainment. Variables focusing on economic characteristics include employment status and household income.
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Adversity and Resilience After Hurricane Katrina (ICPSR 35900)

Released/updated on: 2015-06-03
Geographic coverage: United States, New Orleans
This project collects data to examine how a group of low-income parents from New Orleans, most of whom are single African American women, have coped with the effects of Hurricane Katrina. The 1,019 low-income parents in the sample are part of a randomized intervention, which was started before Hurricane Katrina, and provides pre-hurricane information on the health, social networks, and economic status of members of the treatment and control groups. This project conducts one post-hurricane follow-up survey and set of qualitative interviews, and collects another wave of data shortly after the three-year anniversary of the hurricane.
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Affective Influences on Adolescent Sexual Risk Behavior: Couple and Family Contexts (ICPSR 35863)

Released/updated on: 2015-04-24
Geographic coverage: United States
The study is focused on Latino and African American adolescents in grades 11 and 12 and their parents. Adolescents are recruited from public high schools in the Bronx borough of New York, NY, and are prospectively followed. The study identifies explanatory models of couple sexual risk behavior among a sample of unmarried, non-cohabiting Latino and African American high school-aged dyads that are romantically linked, as well as their parents. The study measures characteristics that individual members bring to couple sexual activity, and parental monitoring of sexual behavior.
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Barbershop-based HIV/STD Risk Reduction for African American Young Men (ICPSR 35854)

Released/updated on: 2015-05-01
Geographic coverage: United States
This project tests an intervention to reduce the risk of sexually transmitted diseases (STDs), including HIV, among African American young men 18 to 24 years of age. The design of the study is a cluster randomized controlled trial. Barber shops in zip codes of Philadelphia, PA with the highest rates of AIDS are matched in pairs. Also, this study randomly selects 24 matched-pairs and within each pair, randomly assigns the barbershops to one of two brief structurally similar small-group interventions led by a male barber facilitator: a 3-hour HIV/STD Risk-Reduction Intervention or a 3-hour violence prevention intervention that serves as the control. 24 men from each barbershop, for a total of 1,152 participants are enrolled in the trial.
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Census of Population, 1910 [United States]: Oversample of Black-headed Households (ICPSR 9453)

Released/updated on: 2010-09-01
Geographic coverage: North Carolina, United States, Texas, Tennessee, Kentucky, Louisiana, Florida, Virginia, Arkansas, Maryland
Designed to facilitate analysis of the status of Blacks around the turn of the century, this oversample of Black-headed households in the United States was drawn from the 1910 manuscript census schedules. The sample complements the 1/250 Public Use Sample of the 1910 census manuscripts collected by Samuel H. Preston at the University of Pennsylvania: CENSUS OF POPULATION, 1910 [UNITED STATES]: PUBLIC USE SAMPLE (ICPSR 9166). Part 1, Household Records, contains a record for each household selected in the sample and supplies variables describing the location, type, and composition of the households. Part 2, Individual Records, contains a record for each individual residing in the sampled households and includes information on demographic characteristics, occupation, literacy, nativity, ethnicity, and fertility.
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Charleston Heart Study, Charleston, South Carolina, 1960-2000 (ICPSR 4050)

Released/updated on: 2021-06-03
Geographic coverage: Charleston (South Carolina), United States, South Carolina
Time period: 1960-01-01--2000-01-01
The Charleston Heart Study (CHS) represents data collected over a 41-year period (1960-2000) in order to provide an understanding of the natural progression of aging in a community-based cohort. In 1960 the CHS began enrolling a random selection of community residents who were 35 years of age and older -- including men and women, Black and White. The primary hypothesis of the original study was to investigate racial differences in the manifestation and risk factors for coronary disease. Over the ensuing 40+ years, a variety of outcome measurements were incorporated into the re-examination of the participants, including psychosocial, behavioral, aging, and functional measures. As a longitudinal study, the CHS allows for the study of the risk factors, correlates, and consequences of aging, while simultaneously allowing for exploration of racial disparity in the manifestation of putative risk factors and outcomes. The CHS began with baseline data and added a special cohort of Black men. In subsequent years three separate follow-ups were conducted. The data include death information for respondents and background characteristics (age, race, sex, occupation, education, and marital status).
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Collaborative Psychiatric Epidemiology Surveys (CPES), 2001-2003 [United States] (ICPSR 20240)

Released/updated on: 2024-02-28
Geographic coverage: United States
Time period: 2001-01-01--2003-01-01
The Collaborative Psychiatric Epidemiology Surveys (CPES) were initiated in recognition of the need for contemporary, comprehensive epidemiological data regarding the distributions, correlates and risk factors of mental disorders among the general population with special emphasis on minority groups. The primary objective of the CPES was to collect data about the prevalence of mental disorders, impairments associated with these disorders, and their treatment patterns from representative samples of majority and minority adult populations in the United States. Secondary goals were to obtain information about language use and ethnic disparities, support systems, discrimination and assimilation, in order to examine whether and how closely various mental health disorders are linked to social and cultural issues. To this end, CPES joins together three nationally representative surveys: the NATIONAL COMORBIDITY SURVEY REPLICATION (NCS-R), the NATIONAL SURVEY OF AMERICAN LIFE (NSAL), and the NATIONAL LATINO AND ASIAN AMERICAN STUDY (NLAAS). These surveys collectively provide the first national data with sufficient power to investigate cultural and ethnic influences on mental disorders. In this manner, CPES permits analysts to approach analysis of the combined dataset as though it were a single, nationally representative survey. Each of the CPES surveys has been documented in a comprehensive and flexible manner that promotes cross-survey linking of key data and scientific constructs.
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Simple Crosstabs

County-Specific Net Migration by Five-Year Age Groups, Hispanic Origin, Race and Sex: 2000-2010 (ICPSR 34638)

Released/updated on: 2013-09-05
Geographic coverage: United States
Time period: 2000-01-01--2010-01-01

These data include county-level, net migration estimates by five-year age cohorts and sex, and by race and Hispanic origin, for the intercensal period from 2000 to 2010. The estimates were prepared using a vital statistics version of the forward cohort residual method. These estimates (and the net migration rates derivable from them) extend the set of decennial estimates of net migration that have been produced following each decennial census beginning with 1960 (net migration for the 1950s: Bowles and Tarver, 1965; 1960s: Bowles, Beale and Lee, 1975; 1970s: White, Mueser and Tierney, 1987; 1980s: Fuguitt, Beale, and Voss 2010; and 1990s: Voss, McNiven, Hammer, Johnson and Fuguitt, 2004).

Further information about this project is available on the Net Migration Patterns for US Counties Web site.

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Development and Maintenance of Low-income Newlywed Marriages (ICPSR 35930)

Released/updated on: 2015-06-03
Geographic coverage: United States
This project examines marital distress and disruption within an ethnically diverse sample of low-income couples. Marriage licenses are used to sample 513 black, white, and Hispanic first-married newlywed couples living in low-income neighborhoods. Assessments include self-reports of personal history, stress, and marital quality, census data on neighborhood characteristics, videotaped observations of marital interactions, and interviewer ratings of the home environment. Couples are assessed in their homes and via telephone interviews 4 times over the first three years of marriage.
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Factors Influencing the Health Behavior of Young African American Adults (ICPSR 36025)

Released/updated on: 2015-06-22
Geographic coverage: United States
The project expands data collection for the Family and Community Health Study (FACHS), which includes approximately 900 African American families. Four waves of data have already been collected, focusing on family interaction, community context, racial discrimination, disposition (e.g., temperament, self-control), and adolescents' health behaviors, including their substance use and sexual behavior. Each wave included interviews with a target child (target; age 10/11 at Wave 1) and the target's primary caregiver (PC); plus a secondary caregiver (SC) and an older sibling (sib; age 13/14 at Wave 1), when they were available. Waves 5 and 6 take the targets and sibs into a developmental period emerging adulthood (EA), collecting data on factors that influence their substance use and abuse habits and their risky sexual behavior. Data are collected from their romantic partners and best friends about the same issues, and genetic data are also collected from targets.
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Simple Crosstabs

The Future of Families and Child Wellbeing Study (FFCWS), Public Use, United States, 1998-2024 (ICPSR 31622)

Released/updated on: 2026-04-06
Geographic coverage: United States
Time period: 1998-01-01--2024-01-01

The Future of Families and Child Wellbeing Study (FFCWS, formerly known as the Fragile Families and Child Wellbeing Study) follows a cohort of nearly 5,000 children born in large, U.S. cities between 1998 and 2000. The study oversampled births to unmarried couples; and, when weighted, the data are representative of births in large U.S. cities at the turn of the century. The FFCWS was originally designed to address four questions of great interest to researchers and policy makers:

  1. What are the conditions and capabilities of unmarried parents, especially fathers?
  2. What is the nature of the relationships between unmarried parents?
  3. How do children born into these families fare?
  4. How do policies and environmental conditions affect families and children?

The FFCWS consists of interviews with mothers, fathers, and/or primary caregivers at birth and again when children are ages 1, 3, 5, 9, 15, and 22. The parent interviews collected information on attitudes, relationships, parenting behavior, demographic characteristics, health (mental and physical), economic and employment status, neighborhood characteristics, and program participation. Beginning at age 9, children were interviewed directly (either during the home visit or on the telephone). The direct child interviews collected data on family relationships, home routines, schools, peers, and physical and mental health, as well as health behaviors.

A collaborative study of the FFCWS, the In-Home Longitudinal Study of Pre-School Aged Children (In-Home Study) collected data from a subset of the FFCWS Core respondents at the Year 3 and 5 follow-ups to ask how parental resources in the form of parental presence or absence, time, and money influence children under the age of 5. The In-Home Study collected information on a variety of domains of the child's environment, including: the physical environment (quality of housing, nutrition and food security, health care, adequacy of clothing and supervision) and parenting (parental discipline, parental attachment, and cognitive stimulation). In addition, the In-Home Study also collected information on several important child outcomes, including anthropometrics, child behaviors, and cognitive ability. This information was collected through interviews with the child's primary caregiver, and direct observation of the child's home environment and the child's interactions with his or her caregiver.

Similar activities were conducted during the Year 9 follow-up. At the Year 15 follow-up, a condensed set of home visit activities were conducted with a subsample of approximately 1,000 teens. Teens who participated in the In-Home Study were also invited to participate in a Sleep Study and were asked to wear an accelerometer on their non-dominant wrist for seven consecutive days to track their sleep (Sleep Actigraphy Data) and that day's behaviors and mood (Daily Sleep Actigraphy and Diary Survey Data).

An additional collaborative study collected data from the child care provider (Year 3) and teacher (Years 9 and 15) through mail-based surveys. Saliva samples were collected at Year 9 and 15 (Biomarker file and Polygenic Scores). The Study of Adolescent Neural Development (SAND) COVID Study began data collection in May 2020 following the onset of the COVID-19 pandemic. It included online surveys with the young adult and their primary caregiver.

The FFCWS began its seventh wave of data collection in October 2020, around the focal child's 22nd birthday. Data collection and interviews continued through January 2024. The Year 22 wave included a young adult (YA) survey with the original focal child and a primary caregiver (PCG) survey. Data were also collected on the children of the original focal child (referred to as Generation 3, or G3).

In 2017, the FFCWS team announced the Fragile Families (FF) Challenge, a collaborative effort in which participants were tasked with using machine learning methods and FFCWS data (Baseline to Year 9) to build a model that would predict six key outcomes at Year 15. Materials used in the FF Challenge have been archived in this collection.

Documentation for these files is available on the FFCWS website under Data and Documentation. For details of updates made to the FFCWS data files, please see the project's Data Alerts page.

Data collection for the Future of Families and Child Wellbeing Study was supported by the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) of the National Institutes of Health under award numbers R01HD36916, R01HD39135, and R01HD40421, as well as a consortium of private foundations.

Below is the citation for use of the FFCWS data accessed through ICPSR. For information on additional citation requirements when using FFCWS in publications, please refer to this FAQ on the FFCWS project site.

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Gender Informed HIV Intervention Development for Urban African American Youth (ICPSR 35853)

Released/updated on: 2015-05-01
Geographic coverage: United States
This project uses a three phase qualitative investigation to examine gender ideologies and other social/developmental factors that impact the HIV-related sexual behavior of urban African American youth in low-income urban communities.
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Gender Role Norms, Sexual Scripts and Black Men's Heterosexual Risk Behaviors (ICPSR 35933)

Released/updated on: 2015-06-03
Geographic coverage: United States
This project conducts in-depth interviews and focus groups to identify and describe gender role norms and sexual scripts for African American MSW (men who have sex with women). This 3-year study uses cross-sectional multi-site venue-based probability sampling to recruit African American MSW between the ages of 18 and 44 in Philadelphia, PA to examine how these concepts are associated with sexual risk among African American MSW.
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Harlem Longitudinal Study of Urban Black Youth, 1968 United States (ICPSR 121)

Released/updated on: 2008-03-26
Geographic coverage: New York City, Harlem, United States
This dataset is housed at the Murray Research Center at Harvard University's Radcliffe Institute for Advanced Study. This is a 26-year longitudinal study of physical, psychological, and social aspects of health among a representative community sample of African-American adolescents, aged 12 to 18, residing in Central Harlem, New York City. Data were collected in five waves: 1968-1970, 1975-1976, 1983-1984, 1989-1990, and 1993-1994. In 1968, there were 668 respondents aged 12-17, and in 1994, when respondents were aged 35-41, 347 remained in the study. Along with other health issues, later waves assessed patterns of non-medical related drug use and HIV-related knowledge, attitudes, and behaviors. In order to apply to use Murray Center data, one must register as a Murray Center user and complete an Application for the Use of Data form.
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Heterosexual Black Females: Socialization and HIV Risks in Scripts and Practices (ICPSR 35992)

Released/updated on: 2015-06-17
Geographic coverage: United States
This project extends and builds upon findings emerging from the parent project called "Multiple Sexual Partnering and HIV Risks Among Low-Income Heterosexual Black Men". The project conducts 15 focus groups involving 120 participants. 150 focal subjects are recruited who report different patterns of multiple sexual partnerships (overlapping and/or sequential), and they participate in three years of research. The omnibus longitudinal ethnographic approach involves in-depth qualitative interviews about the women's sexual partners and practices and their preferred scripts for justifying multiple partners, along with direct observations of the focal subjects in their households and communities.
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The Impact of Environmental and Physiological Factors on Sexual Assault and HIV (ICPSR 35889)

Released/updated on: 2015-05-14
Geographic coverage: Baltimore, United States, Maryland
This project recruits 400 HIV-negative African American women at increased risk for HIV from low-income health clinics in inner-city Baltimore, MD into a retrospective cohort study. By study design, at least one-third of the sample has experienced forced sex since the age of 18 and two-thirds have not experienced any abuse. In Phase I, participants complete a quantitative survey and biological data collection to measure salivary cortisol levels. In Phase II, a subset of women with a history of forced sex in adulthood (N=20) participate in qualitative in-depth interviews.
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The Impact of Transient Domesticity Coparenting in Poor African American Families (ICPSR 35862)

Released/updated on: 2015-05-01
Geographic coverage: United States
The project performs a five-year panel study of 150 poor urban African American households involved with transient domesticity to contemporaneously measure the dynamics of coparenting processes and their impact on adolescent children age 11-16. The project also performs an embedded ethnography with a subsample of the households to more fully identify the dynamics, subjective experiences and impacts in the subjects' own words.
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Longitudinal Study of Biosocial Factors Related to Crime and Delinquency, 1959-1962: [Pennsylvania] (ICPSR 8928)

Released/updated on: 2005-11-04
Geographic coverage: United States, Pennsylvania
Time period: 1959-01-01--1962-01-01
This study was designed to measure the effects of family background and developmental characteristics on school achievement and delinquency within a "high risk" sample of Black youths. The study includes variables describing the mother and the child. Mother-related variables assess prenatal health, pregnancy and delivery complications, and socioeconomic status. Child-related variables focus on the child at age 7 and include place in birth order, physical development, family constellation, socioeconomic status, verbal and spatial intelligence, and number of offenses.
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Mortality in the South, 1850 (ICPSR 7424)

Released/updated on: 1992-02-16
Geographic coverage: North Carolina, United States, Texas, Tennessee, Kentucky, Louisiana, Georgia, South Carolina
This study recorded information on deaths that occurred in 1850 in seven states of the southern United States: Georgia, Kentucky, Louisiana, North Carolina, South Carolina, Tennessee, and Texas. The data were obtained from the manuscript mortality schedules of the 1850 United States Census. Variables identify the state and county in which each death occurred, and provide information on the age, sex, race, legal status (free or slave), place of birth, and occupation of the deceased. The month and cause of death as well as the number of days of illness before death are also documented.
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Multiple Sexual Partnering and HIV Risks Among Low Income Heterosexual Black Men (ICPSR 35847)

Released/updated on: 2015-05-01
Geographic coverage: United States
The project employs omnibus ethnographic methodology to investigate sexual behavior which commonly occurs among inner-city, low income heterosexual black males who have multiple sex partners. This involves conducting four focus groups during each of two years (N=96). Ethnographers write field notes based on observations of subjects in households and community settings. Focal subjects (N=125) with multiple sex partners are interviewed in depth and re-interviewed.
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Simple Crosstabs

National Survey of American Life - Adolescent Supplement (NSAL-A), 2001-2004 (ICPSR 36380)

Released/updated on: 2016-07-28
Geographic coverage: United States
Time period: 2001-01-01--2004-01-01

The National Survey of American Life Adolescent Supplement (NSAL-A), 2001-2004, was designed to estimate the lifetime-to-date and current prevalence, age-of-onset distributions, course, and comorbidity of DSM-IV disorders among African American and Caribbean adolescents in the United States; to identify risk and protective factors for the onset and persistence of these disorders; to describe patterns and correlates of service use for these disorders; and to lay the groundwork for subsequent follow-up studies that can be used to identify early expressions of adult mental disorders. In addition and similar to the NSAL adult dataset (Collaborative Psychiatric Epidemiology Surveys (CPES), 2001-2003 [United States] (ICPSR 20240)), the adolescent dataset contains detailed measures of health; social conditions; stressors; distress; racial identity; subjective, neighborhood conditions; activities and school; media; and social and psychological protective and risk factors. Numerous variables from the adult dataset have been merged into the adolescent dataset, as the NSAL adult and adolescent respondents reside in the same households. Some of these variables apply to the entire household (i.e. region, urbanicity, and family income), while others apply specifically to the NSAL adult respondent living in the adolescent's household (i.e. adult years of education, adult marital status, and adult nativity [foreign-born vs. US born]). The immigration measures were asked of Caribbean black adult respondents only. No comparable measures assess the immigration and generational status of the Caribbean black adolescent respondents. The adult dataset measures are merged into the adolescent dataset to assist in approximating these measures for adolescent respondents. The NSAL adolescent dataset also includes variables for other non-core and experimental disorders. These include tobacco use/nicotine dependence, premenstrual syndrome, minor depression, recurrent brief depression, hypomania, and hypomania sub-threshold. Demographic variables include age, race and ethnicity, ancestry or national origins, height, weight, marital status, income, and education level.

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National Survey of American Life Self-Administered Questionnaire (NSAL-SAQ), February 2001-June 2003 (ICPSR 27121)

Released/updated on: 2010-04-13
Geographic coverage: United States
Time period: 2001-02-01--2003-06-01
The National Survey of American Life, 2001-2003 (NSAL) was followed up by a self-administered interview (NSAL SAQ) as a way to reduce respondent burden following the 2 1/2 hour NSAL survey. The SAQ includes additional questions about social, group, and individual characteristics: psychological resources (i.e., John Henryism), group and personal identity (racial awareness and identity), as well as ideology and racial relations (i.e., social dominance; stratification beliefs; egalitarianism; national pride; work ethic; authoritarian, interracial contact; and exposure to Black social contexts); political attitudes (i.e., Race-conscious Policy Index, Race-blind Policy Index, Non-Electoral Participation Index); care of elderly values; job and financial stressors; and wealth. Demographic variables include age, race, and sex.
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National Survey on HIV Risk for African-American Women (ICPSR 35902)

Released/updated on: 2015-06-03
Geographic coverage: United States
This study recruits 1,000 African American women between 18 and 44 years of age who are unmarried and sexually active to examine the gendered HIV risk factors in this population. Computer-Assisted Telephone Interviews are conducted over a 24-month follow-up period. Data are collected on the sexual division of labor, the sexual division of power, the structure of cathexis (norms and affective influences), unprotected sex, and number of sexual partners.
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Perceived Risk for Sexually Transmitted Diseases (ICPSR 35944)

Released/updated on: 2015-06-03
Geographic coverage: United States
This project uses a sample of 200 15-19 year old female patients attending either a general adolescent medicine clinic or an STD (sexually transmitted diseases) clinic in Baltimore, Maryland and follows them for 27 months. This study collects data to assess relationship characteristics, perceived partner concurrency, PRSTD (perceived risk for STDs), and sexual behaviors through daily electronic diaries and interviews every four months using PDAs (personal digital assistants).
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Race/Ethnic Variability in Survey Question Processing and Response (ICPSR 35928)

Released/updated on: 2015-06-03
Geographic coverage: United States
This project collects data from a sample of 1,200 adults representing four distinct cultural groups in the United States: African Americans, Korean Americans, Mexican Americans, and non-Hispanic Whites, to investigate how respondent race/ethnicity and culture influence survey-related behaviors. Sampled adults are further stratified by gender, age, education, and language preference groups. Interviews are audio-recorded and videotaped.
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A Randomized Trial of Effects of Parent Mentors on Insuring Minority Children (ICPSR 35866)

Released/updated on: 2015-05-01
Geographic coverage: United States
This study is a randomized controlled trial comparing the effectiveness of parent mentors (PMs) versus traditional Medicaid/CHIP outreach in insuring uninsured minority children. It collects insurance and health data from 300 initially uninsured Latino and African-American children eligible for Medicaid/CHIP residing in Dallas County, where 90 percent of uninsured children are Latino or African American. Participants are assessed monthly for a year.
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Sources of Change and Stability in Low-income Black Marriages (ICPSR 35967)

Released/updated on: 2015-06-17
Geographic coverage: United States
This project samples 250 first-married Black newlywed couples living in low-income neighborhoods. These data are combined with data from an ongoing study of low-income Hispanic newlyweds in order to identify the sources of differences in marital outcomes for these two similarly underprivileged groups.
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A Study of African American Marriage and Health (ICPSR 35914)

Released/updated on: 2015-06-09
Geographic coverage: United States
This project collects in-depth longitudinal data on 780 newlywed African American couples over the course of the first five years of marriage. The data focus on mental and physical health, as well as the social, familial, economic, occupational, and psychological factors on marital and health outcomes for these couples.
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Study of Women's Health Across the Nation (SWAN), 1998-2001: Family Medical History From Visits 02, 03, and 04 (ICPSR 30181)

Released/updated on: 2014-02-13
Geographic coverage: Inkster, Hackensack, United States, Chicago, Ypsilanti, California, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 1998-02-15--2001-06-01
The Study of Women's Health Across the Nation (SWAN) is a multisite longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers, and women learn how mid-life experiences affect health and quality of life during aging. The study is co-sponsored by the National Institute on Aging (NIA) and the National Institute of Health (NIH), Office of Research on Women's Health. The study began in 1994. Between 1998 and 2001, 2,829 of the 3,302 women that joined SWAN participated in a collection of family history data. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan); Boston, MA (Massachusetts General Hospital); Chicago, IL (Rush Presbyterian-St. Luke's Medical Center); Almeda and Contra Costa County, CA (University of California, Davis and Kaiser Permanente); Los Angeles, CA (University of California, Los Angeles); Hackensack, NJ (Hackensack University Medical Center); and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.
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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN), 2003-2005: Visit 07 Dataset (ICPSR 31901)

Released/updated on: 2025-07-10
Geographic coverage: Inkster, Contra Costa County, Alameda County, United States, Chicago, Ypsilanti, California, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 2003-05-15--2005-01-31
The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. Data were collected about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. The study began in 1994. Between 2003 and 2005, 2,327 of the 3,302 women that joined SWAN were seen for their seventh follow-up visit. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan); Boston, MA (Massachusetts General Hospital); Chicago, IL (Rush Presbyterian-St. Luke's Medical Center); Alameda and Contra Costa County, CA (University of California-Davis and Kaiser Permanente); Los Angeles, CA (University of California-Los Angeles); Hackensack, NJ (Hackensack University Medical Center); and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. Though the New Jersey site was still part of the study, data was not collected from this site for the seventh visit. Demographic and background information includes age, language of interview, marital status, household composition, and employment.
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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN): Visit 01 Dataset, [United States], 1997-1999 (ICPSR 29221)

Released/updated on: 2019-05-02
Geographic coverage: Detroit, United States, Chicago, California, Oakland, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Newark, Boston, Pittsburgh
Time period: 1997-02-01--1999-01-31

The Study of Women's Health Across the Nation (SWAN) is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause.

The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 1997 and 1999, 2,881 of the 3,302 women that joined SWAN were seen for their first follow-up visit. The research centers are located in the following communities: Detroit, MI; Boston, MA; Chicago, IL; Oakland and Los Angeles, CA; Newark, NJ; and Pittsburgh, PA. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.