HIV Open Data Project: AIDS Drug Assistance Program (ADAP) Final Grantee Level Variables (Annual) (ICPSR 34894)
Version Date: Oct 3, 2013 View help for published
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United States Department of Health and Human Services. Health Resources and Services Administration
https://doi.org/10.3886/ICPSR34894.v1
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The AIDS Drug Assistance Program (ADAP) Data Report (ADR) includes two components: the Grantee Report and the Client Report. All ADAPs are required to submit both reports.
The Grantee Report is a collection of basic information about the grantee characteristics and policies. It includes a Programmatic Summary section and an Annual Submission section.
The Client Report (or client-level data) is a collection of one record for each client enrolled in the ADAP. Each record includes the client's encrypted unique identifier, basic demographic data, and enrollment and certification information. A client's record may also include data about the ADAP-funded insurance and medication received, including the costs of these services, as well as HIV clinical information.
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Study Purpose View help for Study Purpose
The HIV/AIDS Bureau (HAB) currently requires that all ADAPs report aggregate data quarterly using the ADAP Quarterly Report (AQR). However, aggregate data limits HAB's ability to respond to inquiries from Congress and other stakeholders regarding the ADAP program. To address this limitation, HAB has developed a new data reporting system, the ADAP Data Report (ADR). The ADR will enable HAB to evaluate the impact of the ADAP program on a national level. The ADR will allow HAB to characterize the individuals using the program, describe the ADAP-funded services being used, and delineate the costs associated with these services.
ADAPs will begin collecting data for the ADR in October 2012. However, because the ADR is new, grantees will continue to submit the AQR until they become accustomed to the ADR and the quality of the information provided through the ADR accurately represents the program. At that time, the AQR will be retired.
HAB's goal is to have a client-level data reporting system that provides data on the characteristics of the ADAPs and the clients served with program funds. The ADAP client-level data submitted will be used to:
- Monitor the clinical outcomes of clients receiving care and treatment through ADAP;
- Monitor the use of ADAP funds for appropriately addressing the HIV/AIDS epidemic in the United States;
- Monitor the support provided by ADAP to the most vulnerable, especially minority communities;
- Address the needs and concerns of Congress and the Department of Health and Human Services (HHS) concerning the HIV/AIDS epidemic and the RWHAP; and
- Monitor the outcomes achieved in response to the National HIV/AIDS Strategy.
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An ADAP client is any individual who is enrolled in the ADAP, i.e., certified as eligible to receive ADAP services, regardless of whether the individual used ADAP services during the reporting period.
During the reporting period, an ADAP client may have:
- Received medications and/or insurance assistance;
- Been placed on the waiting list;
- Been dis-enrolled; or
- Been eligible, but not received services for clinical or other reasons.
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2013-10-02
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2018-02-15 The citation of this study may have changed due to the new version control system that has been implemented. The previous citation was:
- United States Department of Health and Human Services. Health Resources and Services Administration. HIV Open Data Project: AIDS Drug Assistance Program (ADAP) Final Grantee Level Variables (Annual). ICPSR34894-v1. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 2013-10-03. http://doi.org/10.3886/ICPSR34894.v1
2013-10-03 This study includes information regarding ADAP grantees. The corresponding client level study is ICPSR 34723. The original study, ICPSR 34723, included client and grantee information.
2013-10-02 ICPSR data undergo a confidentiality review and are altered when necessary to limit the risk of disclosure. ICPSR also routinely creates ready-to-go data files along with setups in the major statistical software formats as well as standard codebooks to accompany the data. In addition to these procedures, ICPSR performed the following processing steps for this data collection:
- Created variable labels and/or value labels.
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The public-use data files in this collection are available for access by the general public. Access does not require affiliation with an ICPSR member institution.
ICPSR usually offers files in multiple formats for researchers to be able to access data and documentation in formats that work well within their needs. If you have questions about the accessibility of materials distributed by ICPSR or require further assistance, please visit ICPSR’s Accessibility Center.