Optimizing Decision Making about Breast Reconstruction after Mastectomy: A Patient-Centered Approach, United States, 2017 (ICPSR 38415)
Version Date: Apr 21, 2022 View help for published
Principal Investigator(s): View help for Principal Investigator(s)
Mary C. Politi, Washington University in St. Louis. School of Medicine;
Terence M. Myckatyn, Washington University in St. Louis. School of Medicine
Series:
https://doi.org/10.3886/ICPSR38415.v1
Version V1
Summary View help for Summary
Breast reconstruction after mastectomy is an important part of breast cancer treatment for many patients. Breast reconstruction can restore quality of life after mastectomy, but its complication risk is quite high. Many patients and surgeons lack knowledge of that risk, and reconstruction decisions often misalign with patient preferences about risk, appearance, and recovery. Although clinical decision tools exist for a variety of treatments, tools designed to support breast reconstruction decisions, particularly about type and timing of reconstruction, are lacking. The objective of this project was to develop and test a clinical decision tool that is risk stratified and reflective of patients' preferences and clinical needs. The study team conducted qualitative interviews with patients and clinicians exploring their decision-making process about breast reconstruction. The study team used this information about stakeholder needs and preferences to inform the development of a decision tool.
Citation View help for Citation
Export Citation:
Subject Terms View help for Subject Terms
Geographic Coverage View help for Geographic Coverage
Restrictions View help for Restrictions
This data collection may not be used for any purpose other than statistical reporting and analysis. Use of these data to learn the identity of any person or establishment is prohibited. To protect respondent privacy, this data collection is restricted from general dissemination. To obtain this file, researchers must agree to the terms and conditions of a Restricted Data Use Agreement in accordance with existing ICPSR servicing policies.
Distributor(s) View help for Distributor(s)
Time Period(s) View help for Time Period(s)
Date of Collection View help for Date of Collection
Study Purpose View help for Study Purpose
The purpose of this study was to develop and test a clinical decision tool that is risk stratified and reflective of patients' preferences and clinical needs.
Study Design View help for Study Design
Forty semi-structured interviews with stakeholders (20 postmastectomy patients, 10 surgeons, 10 nurses) were conducted.
Sample View help for Sample
Clinicians were recruited from diverse practices across the United States. Patients were recruited using purposive sampling with varying breast reconstruction experiences, including no reconstruction.
Time Method View help for Time Method
Universe View help for Universe
Surgeons, nurses, and patients in the United States.
Unit(s) of Observation View help for Unit(s) of Observation
Data Type(s) View help for Data Type(s)
Response Rates View help for Response Rates
33 patients were contacted based on their clinical characteristics to achieve diversity in perspectives about reconstruction experiences. Of those, 20 agreed to participate, a 61% response rate.
HideNotes
The public-use data files in this collection are available for access by the general public. Access does not require affiliation with an ICPSR member institution.
ICPSR usually offers files in multiple formats for researchers to be able to access data and documentation in formats that work well within their needs. If you have questions about the accessibility of materials distributed by ICPSR or require further assistance, please visit ICPSR’s Accessibility Center.
One or more files in this data collection have special restrictions. Restricted data files are not available for direct download from the website; click on the Restricted Data button to learn more.