United Men's Health Study, San Francisco, 1994-2002 (ICPSR 38175)
Version Date: Nov 30, 2023 View help for published
Principal Investigator(s): View help for Principal Investigator(s)
Warren Winkelstein Jr., University of California, Berkeley;
James A. Wiley, University of California, Berkeley;
Dennis Osmond, San Francisco General Hospital
Series:
https://doi.org/10.3886/ICPSR38175.v1
Version V1
Summary View help for Summary
Beginning in March 1994, the San Francisco Men's Health Study was merged with the San Francisco General Hospital Cohort Study to form the United Men's Health Study. Data collection activities in this phase of the project are restricted to basic surveillance of men known to be HIV-positive. There were 7 waves of data collection between 1994 and 2002. Wave 1 of the UMHS (Surveillance) consisted of 272 cases, interviewed between March and October 1994.
All men known to be HIV positive were contacted by the Survey Research Center. The non-progressors, seroconverters, and a group of controls were invited to come to a clinic to be interviewed, given a physical exam, and asked to provide a blood specimen. Other men who were HIV-positive but did not fall into this group were asked to complete an interview over the telephone. The major focus of these activities are to detect the presence (or absence) of disease progressors among these men.
Please note the attrition rate across the study waves. Attrition may be related to non-response and/or the death of participants. Given the merging of the two studies, and the non-longitudinal structure of these data, response rate was difficult to determine from the available datasets. The Follow-Up file reports the survival status of the participants as of the end of the study, 1 March 2002.
In addition to the main waves of the study, there was a Host Genetics Substudy. The 231 participants in Wave 2 of this United Men's Health Study and 37 additional participants from the Host Genetics Substudy of the San Francisco Men's Health Study were in this substudy. About 30 of the questions were not administered to the 37 additional participants.
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Subject Terms View help for Subject Terms
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Date of Collection View help for Date of Collection
Data Collection Notes View help for Data Collection Notes
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There were three major studies in this series of HIV/AIDS studies.
The San Francisco Men's Health Study (ICPSR 38158) included a baseline survey in 1984-1985 and 15 more waves of follow-up interviews with the same respondents until 1993. There were also several self-administered sub-studies based on the same respondents.
Beginning in March 1994, the San Francisco Men's Health Study was merged with the San Francisco General Hospital Cohort Study to form the United Men's Health Study (this study). Data collection activities in this phase of the project were restricted to basic surveillance of men known to be HIV-positive. There were 7 waves of data collection between 1994 and 2002.
In 1992-1993, a new sample of younger men (aged 18-29) in San Francisco was interviewed for the San Francisco Young Men's Health Study (ICPSR 38173). There were 7 waves of data collection between 1993 and 1999.
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The Follow Up Data includes 1,496 subjects (1,034 from the San Francisco Men's Health Study cohort, 452 from the San Francisco General Hospital cohort, and 10 subjects who participated in both cohorts). This distribution is found under the variable "GROUP".
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For additional background information on this study and each of the waves, please see the "Introduction" section in the P.I. Codebooks.
- For additional information, please see the United Men's Health Study Data Archive.
Study Purpose View help for Study Purpose
The major focus of this study was to detect the presence (or absence) of disease progressors among HIV positive men living in San Francisco. Another focus of this study was to learn more about the natural history of Acquired Immune Deficiency Syndrome (AIDS).
Study Design View help for Study Design
Beginning in March 1994, the San Francisco Men's Health Study was merged with the San Francisco General Hospital Cohort Study to form the United Men's Health Study. Data collection activities in this phase of the project are restricted to basic surveillance of men known to be HIV-positive. All men known to be HIV positive were contacted by the Survey Research Center.
Individuals who were non-progressors, seroconverters, and a group of controls were invited to come to a clinic to be interviewed, given a physical exam, and asked to provide a blood specimen. Other men who were HIV-positive but do not fall into this group were asked to complete an interview over the telephone.
Sample View help for Sample
The sample for the San Francisco Men's Health Study was a two-stage area sample of 19 census tracts in the city of San Francisco. The San Francisco General Hospital Cohort Study was a clinic-based sample. All 272 men known to be HIV-positive in both studies were included in the United Men's Health Study. For more information on the sampling and weighting procedures please refer to the the technical sampling report.
Time Method View help for Time Method
Universe View help for Universe
English-speaking, HIV-positive men living in San Francisco.
Unit(s) of Observation View help for Unit(s) of Observation
Data Type(s) View help for Data Type(s)
Mode of Data Collection View help for Mode of Data Collection
Description of Variables View help for Description of Variables
This study had 7 waves as well as a Host Genetics Substudy and a final Follow Up wave. The data includes variables about participants' various health conditions, medications they were taking, and other medical information. Finally, the follow-up dataset includes health outcomes and statuses of the participants.
HideOriginal Release Date View help for Original Release Date
2023-11-30
Version History View help for Version History
2023-11-30 ICPSR data undergo a confidentiality review and are altered when necessary to limit the risk of disclosure. ICPSR also routinely creates ready-to-go data files along with setups in the major statistical software formats as well as standard codebooks to accompany the data. In addition to these procedures, ICPSR performed the following processing steps for this data collection:
- Created variable labels and/or value labels.
- Performed recodes and/or calculated derived variables.
- Checked for undocumented or out-of-range codes.
Notes
These data are freely available to data users at ICPSR member institutions. The curation and dissemination of this study are provided by the institutional members of ICPSR. How do I access ICPSR data if I am not at a member institution?