Impact of WHO's 8-step Wheelchair Service Provision in Indonesia, 2013-2014 (ICPSR 37093)
Version Date: Jul 24, 2018 View help for published
Principal Investigator(s): View help for Principal Investigator(s)
Jon Pearlman, University of Pittsburgh
Series:
https://doi.org/10.3886/ICPSR37093.v1
Version V1
Summary View help for Summary
The Impact of the World Health Organization's (WHO) 8-step Wheelchair Service Provision in Indonesia, 2013-2014 includes data collected in Indonesia by United Cerebral Palsy (UCP) Wheels for Humanity and the University of Pittsburgh. The purpose of this study was to investigate how wheelchairs provided to individuals with mobility impairments related to mobility, participation in society, quality of life, wheelchair skills, wheelchair maintenance, and satisfaction with mobility as compared to a control group.
The dataset includes: age, gender, diagnosis/type of disability, type of wheelchair and use of a wheelchair. Additionally, data includes the following outcome measures: Wheelchair Skills Test, the Wheelchair Assessment Checklist (WAC), the Craig Handicap Assessment Recording Technique Short Form (CHART), World Health Organization Quality of Life-BREF (WHOQOL-BREF) and Functional Mobility Assessment (FMA). The CHART (short form) was designed to provide a simple measure of involvement in life situations and is the most widely used participation measure in rehabilitation research. The 5-item Satisfaction with Life Scale is a global measure of life satisfaction. The Wheelchair Skills Test Questionnaire is used to measure a person's skill in using their wheelchair, such as their capability of putting on brakes, propelling a straight distance, and doing a reaching task from their wheelchair. The Wheelchair Skills Test has been shown to be a safe, valid and reliable method to objectively assess the skills of wheelchair users.
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Geographic Coverage View help for Geographic Coverage
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District
Restrictions View help for Restrictions
Access to these data is restricted. Users interested in obtaining these data must complete a Restricted Data Use Agreement, specify the reasons for the request, and obtain IRB approval or notice of exemption for their research.
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Date of Collection View help for Date of Collection
Data Collection Notes View help for Data Collection Notes
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In order to protect respondent anonymity and prevent disclosure risk, ICPSR has recoded the variable Q3 (Age) into categories for the Baseline dataset. Users interested in accessing the full data for this variable must apply for access to the restricted version of this dataset.
- For a related study, please see Functional Independence in Children at a Pediatric Clinic in Guanajuato, Mexico, 2004-2013 (ICPSR 37068).
- This study is associated with the International Society of Wheelchair Professionals (ISWP). For more information, please see the ISWP website.
Study Purpose View help for Study Purpose
The purpose of this study was to investigate how the provision of wheelchairs according to the World Health Organization's service provision process by United Cerebral Palsy (UCP) Wheels for Humanity in Indonesia affects wheelchair recipients compared to wait-listed controls.
Study Design View help for Study Design
Interviews were conducted at baseline and a 6-month follow-up to collect the following data: demographics and wheelchair use questions, the World Health Organization Quality of Life-BREF, Functional Mobility Assessment, Craig Handicap Assessment Recording Technique Short Form. The Wheelchair Assessment Checklist and Wheelchair Skills Test Questionnaire were administered at follow up only.
Sample View help for Sample
This study used a convenience sample (N = 344) of children, children with proxies, adults, and adults with proxies who were on a waiting list to receive a wheelchair (n=167), as well as those who received one (n=142).
Time Method View help for Time Method
Universe View help for Universe
Children and adults in Indonesia on a waiting list to receive a wheelchair and those who received a wheelchair from United Cerebral Palsy (UCP) Wheels for Humanity.
Unit(s) of Observation View help for Unit(s) of Observation
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Response Rates View help for Response Rates
A total of 344 participants were enrolled in the study. Of these, 29 passed away before the completion of the study and 6 were missing "Type of participant" information and were not included in the analysis.
Presence of Common Scales View help for Presence of Common Scales
- World Health Organization Quality of Life-BREF (WHOQOL-BREF)
- Functional Mobility Assessment (FMA)
- Craig Handicap Assessment Recording Technique (CHART) Short Form
- Wheelchair Assessment Checklist (WAC)
- Wheelchair Skills Test
Notes
The public-use data files in this collection are available for access by the general public. Access does not require affiliation with an ICPSR member institution.
One or more files in this data collection have special restrictions. Restricted data files are not available for direct download from the website; click on the Restricted Data button to learn more.
This study is maintained and distributed by Advancing Research on Disability.