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Curated

ABC News Hurricane Katrina Anniversary Poll, August 2006 (ICPSR 4664)

Released/updated on: 2007-12-18
Geographic coverage: Mississippi, United States, Louisiana, New Orleans, Alabama
This special topic poll, conducted August 14-20, 2006, is part of a continuing series of monthly polls that solicit public opinion on various political and social issues. The focus of this data collection was on the one-year anniversary of Hurricane Katrina. Part 1, FEMA Counties, contains data from a sample of 501 adults living in counties in Louisiana, Mississippi, and Alabama that were designated as Hurricane Katrina disaster areas. Part 2, Orleans Parish Including Oversamples, contains data on respondents living in Orleans Parish, Louisiana, including oversamples of 160 respondents contacted via landline telephones, and 120 respondents contacted via cell phones. Respondents were asked to rate the recovery efforts of federal, state, and local governments with respect to Hurricane Katrina, and how much trust and confidence they had in the federal government and the Federal Emergency Management Agency's (FEMA) ability to respond to another disaster. Opinions were collected on whether Hurricane Katrina was the result of global climate change or just a severe weather event. Information was collected about the damage caused to respondents' residence and personal property, as well as the severity of the damage, how much of the losses were insured, and whether recovery had already occurred. Respondents were asked to rate the impact Hurricane Katrina had had on their life, whether they suffered a long-term negative impact on their finances, health, and emotional well-being, and whether any friends or family members were seriously injured or killed as as a result of the hurricane. A series of questions asked respondents to rate the job of groups involved with assisting recovery, such as the the United States Small Business Administration, state relief agencies, and insurance companies. Views were sought concerning whether respondents' trust in the government and fellow man was affected by the hurricane, how much they worried about another hurricane occurring, and how much extra stress was created by the possibility of another hurricane. Additional topics addressed whether race and poverty affected the recovery effort, and whether problems with the relief effort were an indication of racial inequality in the United States. Demographic variables include sex, age, race, education level, household income, political party affiliation, political philosophy, employment status, marital status, and type of residential area (e.g., urban or rural).
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Simple Crosstabs

Americans' Changing Lives: Waves I, II, III, IV, V, and VI, 1986, 1989, 1994, 2002, 2011, and 2021 (ICPSR 4690)

Released/updated on: 2024-12-12
Geographic coverage: United States
Time period: 1986-01-01--2021-01-01

The Americans' Changing Lives (ACL) survey series is an ongoing, nationally representative, longitudinal study focusing especially on differences between Black and White Americans in middle and late life. These data constitute the first, second, third, fourth, fifth, and sixth waves in a panel survey covering a wide range of sociological, psychological, mental, and physical health items. Wave I of the study began in 1986 with a nation face-to-face survey of 3,617 adults ages 25 and up, with Black Americans and people aged 60 and over over-sampled at twice the rate of the others. Wave II constitutes face-to-face re-interviews in 1989 of those still alive. Survivors have been re-interviewed by telephone, and when necessary face-to-face, in 1994 (Wave III), 2001/02 (Wave IV), 2011 (Wave V), and 2019/21 (Wave VI).

Please note that for Wave VI, the majority of data collection occurred in 2019, with only a small subset (n=39) of participants surveyed in 2021.

ACL was designed and sought to investigate the following: (1) The ways in which a wide range of activities and social relationships that people engage in are broadly "productive," (2) how individuals adapt to acute life events and chronic stresses that threaten the maintenance of health, effective functioning, and productive activity, and (3) sociocultural variations in the nature, meaning, determinants, and consequences of productive activity and relationships. Among the topics covered are interpersonal relationships (spouse/partner, children, parents, friends), sources and levels of satisfaction, social interactions and leisure activities, traumatic life events (physical assault, serious illness, divorce, death of a loved one, financial or legal problems), perceptions of retirement, health behaviors (smoking, alcohol consumption, overweight, rest), and utilization of health care services (doctor visits, hospitalization, nursing home institutionalization, bed days). Also included are measures of physical health, psychological well-being, and indices referring to cognitive functioning.

Demographic information provided for individuals includes household composition, number of children and grandchildren, employment status, occupation and work history, income, family financial situation, religious beliefs and practices, ethnicity, race, education, sex, and region of residence.

Curated

CBS News/Black Entertainment Television (BET) Monthly Poll, July 2004 (ICPSR 4154)

Released/updated on: 2005-02-18
Geographic coverage: United States
This poll is part of a continuing series of monthly surveys that solicit public opinion on the presidency and on a range of other political and social issues. Respondents -- all Blacks/African Americans -- were asked to give their opinions on the 2004 presidential campaign and the candidates, the way the Bush administration was handling certain issues, and the war in Iraq. Questions were asked regarding respondents' confidence that their votes would be accurately counted, whether there was a deliberate attempt to prevent African Americans from voting or having their votes properly counted, how the voting problems reported in Florida in the 2000 presidential election would affect voter turnout, and which candidate had more 'soul'. Respondents were also asked about various issues facing the country, such as how to provide African Americans with more jobs, the best way to help more African Americans go to college, and whether the United States should intervene when crises occur in Africa. Additional questions queried respondents' health behavior, exercise patterns, experiences with low carbohydrate diets, and attitudes toward reinstating the military draft. Background information includes voter registration status, sex, religious preference, education, age, ethnicity, and income.
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Simple Crosstabs

Combined Generations Wave 1 and TransPop surveys, United States, 2016-2018 (ICPSR 38421)

Released/updated on: 2024-08-29
Geographic coverage: United States
Time period: 2016-01-01--2018-01-01

This collection includes a combined dataset of the Generations study wave 1 (baseline) survey and the TransPop study transgender survey. The two studies have many overlapping variables, and they examined topics such as respondents' health outcomes and behaviors, experiences with discrimination, identity, and transition-related experiences. Data from these studies were merged to allow for analysis of the combined LGBT populations. This dataset has also been reweighted to be representative of these populations.

The complete Generations study data (baseline, wave 2, and wave 3 survey data) can be found under study number 37166, and the complete TransPop study data (transgender and cisgender survey data) can be found under study number 37938. For detailed information on the Generations and TransPop studies, including related publications, please refer to their respective DSDR/ICPSR study pages.

Curated

Detroit Area Study, 1985: Life Events in Everyday Experience (ICPSR 6414)

Released/updated on: 2010-08-20
Geographic coverage: Detroit, United States, Michigan

The 1985 Detroit Area Study surveyed life events of respondents. Questions addressed alcohol and drug use, emotional state, incidents of depression and fear, stress caused by children and work, and respondent's general health. Information on the respondent's family background was also collected, with specific emphases on children, parenting, and marriage. Gender comparison questions were posed to explore in detail issues such as the benefits/responsibilities of marriage, marriage roles and careers, and division of housework tasks. The survey also included items on the respondent's financial situation, social life, social support network, and demographic characteristics such as age, race, sex, education, religion, and income.

Curated

Detroit Area Study, 1995: Social Influence on Health: Stress, Racism, and Health Protective Resources (ICPSR 3272)

Released/updated on: 2002-08-16
Geographic coverage: Detroit, United States, Michigan

This survey explored the ways in which social influences, such as stress and racism, affected health, and the impact these influences had on the respondents' outlook on life. Respondents were questioned about their health status and their exercise, smoking, sleeping, and dieting habits, as well as about diagnosed health problems and depression and their effects on daily activities. Respondents were also asked a series of questions regarding their employment status, type of job and whether it was a supervisory position, the racial makeup of their workgroup, their perceptions of their position and job, the likelihood of their finding another job, hassles experienced while at work, and whether they had any trouble balancing family and work. Another series of questions asked respondents whether they had been a victim of a serious physical attack or assault, robbery, or home burglary, if they had ever been unfairly searched, stopped, or questioned by police, why they felt they had been treated this way, and if they felt they had ever been treated unfairly by a teacher, landlord, or neighbor. Opinions were also solicited on the respondents' experience with depression and anxiety. Respondents were asked whether they felt it was possible to reach their goals, how satisfied they were with their present situation, how often they felt depressed and how long this feeling lasted, whether they lost weight or sleep due to this feeling, how this feeling of depression made them view themselves, how often and how long they were worried about things that were not likely to happen, how often they worried about non-serious things, and how they felt physically when they were anxious or depressed. Another set of questions queried respondents on alcohol and drug use. Respondents were asked how often they drank alcohol, the most they had to drink at one time, whether they had experienced any addiction to alcohol or experienced any emotional or psychological problems associated with drinking, whether they had any problem controlling their drinking, whether they had used drugs outside of a doctor's order, what types of drugs they had used, how often and in what type of situations they had used these drugs, and whether they had any addiction to the drugs. Respondents were also asked whether they had a regular doctor, whether they went to a doctor's office or clinic to seek medical attention, the last time they had gone for a checkup, how they were treated by staff at the visit, whether they trusted their doctor, the reasons why they did or did not receive medical attention, and whether they had health insurance. Respondents were also asked for their perceptions of differences between Blacks and whites, attitudes toward affirmative action with regard to employment, and their attitude toward interracial relationships. Another battery of questions queried respondents on any fears or phobias they had, such as a fear of animals, water, or visiting a doctor or dentist. Questions focused on the severity of these fears, how long they had had these fears, and how much these fears interfered in daily activities. A final set of questions gathered demographic information on respondents such as highest level of education completed, political affiliation, religious affiliation, level of religious participation, importance of religion, birth date, whether they owned their own home or rented, how much they spent on food each week, total family income for the year 1994, and the height and weight of respondents.

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Simple Crosstabs

Flint [Michigan] Adolescent Study (FAS): A Longitudinal Study of School Dropout and Substance Use, 1994-1997 (ICPSR 34598)

Released/updated on: 2014-11-07
Geographic coverage: Flint, United States, Michigan
Time period: 1994-01-01--1997-01-01

The Flint Adolescent Study (FAS) interviewed 850 ninth graders in the four public high schools of Flint, MI. The study was conducted in collaboration with the Projects for Urban and Regional Affairs and Flint Community Schools. The goal of the study was to explore the protective factors associated with school dropout and alcohol and substance use. The study followed the youths for four years beginning in the Fall of 1994. The sample reflected the overall student body in the Flint high schools. In order to study those students most at risk for leaving school before graduation, individuals with grade point averages of 3.0 and below were selected.

Interviews were conducted face-to-face with each student at the school or in a community location for students who were out of school. Each interview took about one hour to complete. At the end of the interview students were asked to complete the last section of the questionnaire by themselves which contains questions about their drug use and sexual behavior.

Information obtained from the youths includes: participation in church, school, and community organizations; social support and influence of family and friends; self esteem and psychological well being; delinquent and violent behaviors; alcohol and substance use; sex behavior and child bearing; school attitudes and performance; and family structure and relationships. The Youths were asked to complete a brief questionnaire at the end of the interview about their alcohol and substance use, and sexual behavior. In years 3 and 4 questions also asked about driving behavior, attachment style, stress, mentoring, and racial identity. Data was also collected about parental education and occupation.

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Galveston Bay Recovery Study, 2008-2010 (ICPSR 34801)

Released/updated on: 2016-06-21
Geographic coverage: United States, Texas, Galveston
Time period: 2008-01-01--2010-01-01
The Galveston Bay Recovery Study (GBRS) was designed to study trajectories of wellness after Hurricane Ike hit the Galveston Bay area on September 13, 2008. The sample included adults who were living in Galveston County or Chambers County, Texas at the time of the hurricane, not just those who remained in the area after the hurricane, who may have been less affected by the storm. Three interviews were conducted approximately 2-5, 5-9, and 14-18 months after the hurricane, respectively. Information was obtained on experiences during Hurricane Ike, lifetime traumatic events, and mental health and functioning before and after the hurricane, as well as between survey waves (including assessment of posttraumatic stress disorder, depression, generalized anxiety disorder, panic disorder, and suicidality). Demographic variables include race/ethnicity, age, education, marital status, number of children/offspring, income, and employment status.
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Generations: A Study of the Life and Health of LGB People in a Changing Society, United States, 2016-2019 (ICPSR 37166)

Released/updated on: 2023-01-05
Geographic coverage: United States
Time period: 2016-01-01--2017-01-01, 2017-01-01--2018-01-01, 2018-01-01--2019-01-01

The Generations study is a five-year study designed to examine health and well-being across three generations of lesbians, gay men, and bisexuals (LGB). The study explored identity, stress, health outcomes, and health care and services utilization among LGBs in three generations of adults who came of age during different historical contexts. This collection includes baseline, wave 1, and wave 2 data collected as part of the Generations study.

The study aimed to assess whether younger cohorts of LGBs differed from older cohorts in how they viewed their LGB identity and experienced stress related to prejudice and everyday forms of discrimination, as well as whether patterns of resilience differed between different LGB cohorts. Additionally, the study sought to examine how differences in stress experience affected mental health and well-being, including depressive and anxiety symptoms, substance and alcohol use, suicide ideation and behavior, and how younger LGBs utilized LGB-oriented social and health services, relative to older cohorts.

In wave 2, respondents were re-interviewed approximately one year after completion of the baseline (wave 1) survey. Only respondents who participated in the original sample of participants were surveyed at wave 2 (i.e., the enhancement oversample was not included in the longitudinal design of this study).

In wave 3, respondents were re-interviewed approximately one year after the completion of the wave 2 survey.

Demographic variables collected as part of this study include questions related to age, education, race, ethnicity, sexual identity, gender identity, income, employment, and religiosity.

Curated

Hurricane Katrina Community Advisory Group Study [United States] (ICPSR 22325)

Released/updated on: 2010-06-10
Geographic coverage: Mississippi, United States, Louisiana, New Orleans, Alabama
Hurricane Katrina was the most destructive and costliest natural disaster to occur in the United States. Nearly 5 million people lived in the path of Katrina. An additional 1.3 million lived in the New Orleans metropolitan area at the time of the hurricane. Although not in the direct path of Katrina, New Orleans was devastated by a massive flood that occurred as a result. The purpose of this study is to inform policy-makers of the impact of Hurricane Katrina on survivors' physical and mental health and barriers to treatment, as well as assist in future natural disaster planning efforts. This will be achieved by monitoring, over time, a group of people who represent those affected by Katrina. The Hurricane Katrina Community Advisory Group consists of a broad cross-section of people affected by Katrina, including separate samples of people who resided in the New Orleans metropolitan area at the time of the hurricane and those who resided in the counties or parishes of Alabama, Louisiana, and Mississippi that were in the path of the hurricane. Follow-up interviews conducted with the Advisory Group members to monitor the pace of recovery, as well as reports prepared for policy-makers, press releases, and digitally recorded oral histories are being posted on the Hurricane Katrina Community Advisory Group Web site as they become available. Demographic variables include gender, age, race, ethnicity, pre-hurricane residence (place), pre-hurricane type of housing (detached home, mobile home, apartment, etc.), pre-hurricane employment, family income, marital status, education, home ownership (owned with mortgage, owned without mortgage, rented, etc.), where the respondent lived at time of interview, religious preference, and religiosity.
Curated

National Health Interview Survey, 1985 (ICPSR 8668)

Released/updated on: 2011-05-25
Geographic coverage: United States
The basic purpose of the National Health Interview Survey is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. There are five types of records in the core survey, each in a separate data file. The variables in the Household File (Part 1) include type of living quarters, size of family, number of families in household, and geographic region. The variables in the Person File (Part 2) include sex, age, race, marital status, veteran status, education, income, industry and occupation codes, and limits on activity. These variables are found in the Condition, Doctor Visit, and Hospital Episode Files as well. The Person File also supplies data on height, weight, bed days, doctor visits, hospital stays, years at residence, and region variables. The Condition (Part 3), Doctor Visit (Part 4), and the Hospital Episode (Part 5) Files contain information on each reported condition, two-week doctor visit, or hospitalization (twelve-month recall), respectively. A sixth, seventh, and eighth file have been added along with the five core files. The Health Promotions and Disease Prevention Supplement is separated into three categories as follows: Child Safety/Infant Feeding (Part 6), Sample Person (Part 7), and Smoking (Part 8). These data files include questions on health and fitness awareness, general health habits, injury control, child safety and health, high blood pressure, stress, exercise, smoking, alcohol use, dental care, and occupational safety and health.
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National Health Interview Survey, 1995: Year 2000 Objectives Supplement (ICPSR 2528)

Released/updated on: 1998-08-28
Geographic coverage: United States
The purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. This supplement includes variables from the NHIS core Person File (see NATIONAL HEALTH INTERVIEW SURVEY, 1995 [ICPSR 2533]), including sex, age, race, marital status, veteran status, education, income, industry and occupation codes, and limits on activity. The Year 2000 Supplement contains items on five selected topics that relate to the Department of Health and Human Services (HHS) Year 2000 Health Objectives: tobacco, nutrition, clinical preventive services, mental health, and physical activity and fitness. Variables relating to smoking include respondent's current smoking status and tobacco use. Items on nutrition cover participation in activities to control weight, exercise, salt intake, and fat intake. Variables in the clinical preventive services section provide information on whether the respondent had a flu shot in the last year, a tetanus shot in the last 10 years, or the pneumonia vaccination, whether the respondent had diabetes, asthma, emphysema, chronic bronchitis, TB, or chronic kidney and liver disease in the past year, whether the respondent experienced extreme fatigue, and whether he or she was treated for cancer. The mental health section includes items on the levels of stress the respondent experienced, the effects of stress on health, steps taken to control stress, emotional/personal problems in the past year, and whether any treatment for these problems had been sought. Variables on physical activity and fitness include types of exercise (walking, gardening, stretching, weight- lifting, jogging, aerobics or aerobic dancing, bicycle riding, stair climbing, swimming, tennis, golf, baseball, handball/raquetball or squash, downhill skiing, cross-country skiing, water skiing, basketball, volleyball, soccer, football, and other sports), how often the respondent performed the activity, number of minutes spent doing the activity, and change in heart rate during the activity. Additionally, respondents were asked about the length of time since their last check-up and whether the doctor had recommended that exercise be started or continued.
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Project on Human Development in Chicago Neighborhoods (PHDCN): Young Adult Self Report, Wave 1, 1994-1995 (ICPSR 13606)

Released/updated on: 2006-03-01
Geographic coverage: United States, Chicago, Illinois
Time period: 1994-01-01--1997-01-01
The Project on Human Development in Chicago Neighborhoods (PHDCN) was a large-scale, interdisciplinary study of how families, schools, and neighborhoods affect child and adolescent development. One component of the PHDCN was the Longitudinal Cohort Study, which was a series of coordinated longitudinal studies that followed over 6,000 randomly selected children, adolescents, and young adults, and their primary caregivers over time to examine the changing circumstances of their lives, as well as the personal characteristics, that might lead them toward or away from a variety of antisocial behaviors. Numerous measures were administered to respondents to gauge various aspects of human development, including individual differences, as well as family, peer, and school influences. One of the measures that composed the Longitudinal Cohort Study was the Young Adult Self Report (YASR). The YASR protocol, a self-administered survey, was first developed by Thomas M. Achenbach and has been a widely used measure for evaluating subjects between the ages of 18 and 30 with respect to their functioning in social relationships, level of mental, emotional and physical health, substance use and abuse, as well as tendencies toward anti-social and criminal behavior. The PHDCN version of the Young Adult Self Report provided a thorough self assessment of the respondents belonging to Cohort 18 of the Longitudinal Cohort Study and scored each respondent based on his or her level of psychological and behavioral functioning.
Curated

Project on Human Development in Chicago Neighborhoods (PHDCN): Young Adult Self Report, Wave 2, 1997-2000 (ICPSR 13666)

Released/updated on: 2006-01-16
Geographic coverage: United States, Chicago, Illinois
Time period: 1997-01-01--2000-01-01
The Project on Human Development in Chicago Neighborhoods (PHDCN) was a large-scale, interdisciplinary study of how families, schools, and neighborhoods affect child and adolescent development. One component of the PHDCN was the Longitudinal Cohort Study, which was a series of coordinated longitudinal studies that followed over 6,000 randomly selected children, adolescents, and young adults, and their primary caregivers over time to examine the changing circumstances of their lives, as well as the personal characteristics, that might lead them toward or away from a variety of antisocial behaviors. Numerous measures were administered to respondents to gauge various aspects of human development, including individual differences, as well as family, peer, and school influences. One of the measures that composed the Longitudinal Cohort Study was the Young Adult Self Report (YASR). The YASR protocol, a self-administered survey, was first developed by Thomas M. Achenbach. It has been a widely used measure for evaluating subjects between the ages of 18 and 30 with respect to their functioning in social relationships, level of mental, emotional and physical health, substance use and abuse, and their tendencies toward antisocial and criminal behavior. The Wave 2 PHDCN version of the Young Adult Self Report, including an officially revised version of behavior problem items, offered a thorough self-assessment of the respondents belonging to Cohort 18 of the Longitudinal Cohort Study, scoring each respondent based on his or her level of psychological and behavioral functioning.
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Project STRIDE: Stress, Identity, and Mental Health, New York City, 2004-2005 (ICPSR 35525)

Released/updated on: 2018-11-28
Geographic coverage: New York City
Time period: 2004-01-01--2005-01-01

Project STRIDE is a three-year research project that examines the effect of stress and minority identity related to sexual orientation, race/ethnicity and gender on mental health. The research describes social stressors that affect minority populations, explores the coping and social support resources that they utilize as they confront these social stressors, and assesses the associations of stress and coping with mental health outcomes including mental disorders and wellbeing. The study also explores the impact of various identity characteristics, such as whether an identity is viewed positively or negatively, or whether it is prominent or not to the relationship of stress and mental health outcomes.

The study, using extensive quantitative and some qualitative measures, is a longitudinal survey of 525 men and women between the ages 18 and 59 who are residents of New York City. Socio-demographic information collected about respondents included age, education, race and Hispanic ethnicity, adopting the measures developed and used by the United States Census Bureau in the United States population survey of 2000. In addition to these items, racial/ethnic identity was also assessed with the question "What is the country of origin related to your or your family's ethnic or national background, if any?" Respondents were allowed to select up to two nations from a comprehensive listing. For the purposes of the study, the instrument also assessed whether or not participants were natives of New York City or migrated as adults. Additional demographic variables include employment status, religion, relationship status, and sexual orientation.

Curated

Resources for Enhancing Alzheimer's Caregiver Health, 1996-2001, Baseline and Follow-Up Data (ICPSR 3678)

Released/updated on: 2006-09-26
Geographic coverage: United States, Tennessee, California, Alabama, Florida, Birmingham, Pennsylvania, Miami, Palo Alto, Massachusetts, Memphis, Philadelphia, Boston
Time period: 1996-09-01--2001-02-01
Resources for Enhancing Alzheimer's Caregiver Health (REACH) was established in 1995 to conduct social and behavioral research on interventions designed to enhance family caregiving, particularly in minority families, for persons with Alzheimer's Disease and related disorders. Baseline data (ICPSR 3253) were collected through randomized clinical trials at six sites: University of Alabama-Birmingham, The Research and Training Institute of the Hebrew Rehabilitation Center for Aged in Boston, University of Tennessee-Memphis, University of Miami, Veterans Affairs Palo Alto Health Care System and Stanford University, and Thomas Jefferson University in Philadelphia. Interventions such as psychoeducational support groups, behavioral skills training programs, family-based systems interventions, environmental modifications, and technological computer-based information and communication services varied by site. This collection contains baseline data along with follow-up data at 6-, 12-, and 18-month intervals from each site with focus on the impact of the various intervention strategies on psychological distress, health status, health practices, and health care utilization. Also included are follow-up batteries, transition batteries (placement, bereavement, discontinued), and data reporting missed visits. Parts 1 through 5 contain screening data and responses to a short mental status questionnaire. Parts 6 through 34 contain baseline data along with follow-up data at 6, 12, and 18-month intervals and cover activities of daily living, anxiety, and caregiver health and health behaviors along with sociodemographic information. Also included are care recipient medications and sociodemographic information. Parts 35 through 40 contain tracking data and also include an examination of interventions.
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Resources for Enhancing Alzheimer's Caregiver Health (REACH II), 2001-2004 (ICPSR 4354)

Released/updated on: 2006-10-27
Geographic coverage: Palo Alto, United States, Tennessee, Memphis, California, Alabama, Florida, Birmingham, Philadelphia, Pennsylvania, Miami
Time period: 2001-01-01--2004-01-01
Built upon the findings of RESOURCES FOR ENHANCING ALZHEIMER'S CAREGIVER HEALTH, 1996-2001, BASELINE AND FOLLOW-UP DATA [ICPSR 3678], REACH II designed and tested a single multi-component intervention among family caregivers of persons with Alzheimer's disease or related disorders. The overall objectives were (1) to identify and reduce modifiable risk factors among diverse family caregivers of patients with Alzheimer's Disease or a related disorder, (2) to enhance the quality of care provided to the care recipients, and (3) to enhance the well-being of the caregivers. REACH II is the first project to simultaneously test a comprehensive caregiver intervention in three distinct racial/ethnic groups: Hispanic/Latino, Black/African-American, and White/Caucasian. The intervention was based on a risk-appraisal approach in which five areas of risk--depression, burden, self-care, social support, and patient problem behaviors--that are central to caregiver well-being and quality of life were matched to corresponding intervention components. These components included education, skills to manage troublesome care-recipient behaviors, social support, cognitive strategies for reframing negative emotional responses, and strategies for enhancing healthy behaviors and managing stress. Consistent with this approach, the primary outcome was a multivariate quality of life indicator that assessed caregiver depression, burden, self-care, social support, and patient problem behaviors. Two hallmarks of caregiver intervention studies--caregiver clinical depression and patient institutionalization--were assessed as secondary outcomes. The dataset names listed in this collection include the shortened name of the form administered.
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Schools and Families Educating (SAFE) Children Study [Chicago, IL]: 1997-2008 (ICPSR 34368)

Released/updated on: 2016-03-31
Geographic coverage: United States, Chicago, Illinois
Time period: 1997-01-01--2008-01-01

The Schools and Families Education (SAFE) Children Study was a randomized control trial designed to test the efficacy of a family-based comprehensive preventive intervention, with children living in inner-city Chicago and entering the 1st grade, for effects on key risk markers for later drug and other substance use.

A total of 11 waves of data were collected over the course of three phases and approximately 13 years. In the spring of 1997, there were 424 kindergarten students and primary caregivers recruited to participate in this study. Wave 1 began while the children were in 1st grade. These data contain survey responses for students, their primary caregivers, and their teachers across 27 datasets.

Phase I of the study was to assess the intervention provided in the 1st grade. Half of the families were randomly selected to receive the intervention. The other half were assigned to the control group. Phase II of the study was set-up to give half of the intervention group a booster, a second intervention training. Lastly, there was a Phase III which sought to assess the long-term affects of the initial and booster interventions.

The first dataset (DS1) provides an overview of the study which includes variables for the study design and survey administration. This first file contains 38 variables.

Survey responses were obtained from students nine times beginning in 1st grade and ending in 12th grade. Children were not surveyed in waves 3 and 7. The student survey response data are in DS2 through DS10. The datasets for waves 1, 2, 4, and 5 contain only 50 variables. Waves 6, 8, and 9 contain 424 variables. Waves 10 and 11 contain 1,394 variables. Each of the three phases contain almost identical variables within their respective waves.

The children's primary caregivers were also surveyed nine times over the survey period. Primary caregivers were not surveyed in waves 3 and 7. These data are contained in DS11 through DS19. The primary caregiver files vary in the number and content of variables. On average each wave contains about 1,060 variables with a low of 470 on up to a high of 1,435.

Teachers were surveyed during each of the first eight waves of the study. The teacher data are in DS20 through DS27. Waves 1 and 2 contain just over 120 variables. Waves 3, 4, and 5 contain 145 variables. And waves 6, 7, and 8 contain 173 variables. Each of the three phases contain almost identical variables within their respective waves.

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The Science of BDSM Data, Phoenix, Arizona, 2014 (ICPSR 37395)

Released/updated on: 2019-08-26
Geographic coverage: United States, Phoenix, Arizona

The goals of this study were to test whether participants who engaged in an extreme ritual in a naturalistic setting would evidence signs of altered states of consciousness, to examine other physiological and affective effects of the ritual, and to determine whether these effects varied based on the role the individual performed within the ritual. A multi-method approach was used that utilized various psychological self-report measures, a measure of cognitive functioning, and a measure of physiological stress. The data collection took place at the "Dance of Souls," a ritual conducted on the last day of the annual Southwest Leather Conference in Phoenix, Arizona, in which participants received temporary piercings with hooks or weights attached to the piercings and danced to music provided by drummers.

The associated publication, Altered States of Consciousness during an Extreme Ritual, was used to accompany the data in this collection. Users are encouraged to consult the publication for additional information. The data collection includes one de-identified dataset with 164 variables for 83 cases. Demographic variables include sex, gender, pierced vs. non-pierced, and the role the participant played in the ceremony.

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Stigma and Tuberculosis in Haitian Populations: A cross-national study of the impact of stigma on patient experience and clinical outcomes in Haiti and the United States, 2003-2008 (ICPSR 30521)

Released/updated on: 2012-05-09
Geographic coverage: Haiti, United States, Florida, Tampa
Time period: 2003-01-01--2008-01-01
Tuberculosis (TB) is a public health problem of global magnitude. In the United States its victims are primarily the poor, foreign immigrants, and persons with AIDS. Efforts to control the disease are severely handicapped by the effects of social stigma and further compounded by issues of race, social class, ethnic stereotypes, immigrant status, and HIV coinfection. The study investigated the social dynamics of stigma in relation to TB in two populations particularly affected by all of these issues, Haitians in the United States and in Haiti. The theoretical framework of the study was cultural epidemiology, which combines quantitative and qualitative measures to study experience, meaning, and behavior in subpopulations of interest. The study design enabled important comparisons across national settings that highlight the differential effects of political-economic context, differences in stigma dynamics for active disease compared to latent infection, and measured the impact of stigma on adherence to preventive therapy. Study components included an ethnography of TB stigma, a cross-cultural epidemiologic study, and a community trial of adherence to preventive therapy. Study sites were South Florida, United States, and Leogane, Haiti. The study aimed to investigate: (1) differences in the degree and components of stigma across different sociocultural settings and comparison groups (community members, health care providers, patients); (2) differential stigma effects in a public vs. private, culturally competent clinic; (3) correlates of TB-related stigma; and (4) the influence of perceived stigma on adherence to latent tuberculosis therapy. Data were collected between 2003-2006 in three phases: Phase I Ethnographic Research; Phase II Cultural Epidemiologic Study; and Phase III Adherence Study. A total of 768 persons were interviewed, including 408 women (53 percent) and 360 men (47 percent). All study aims were completed with the exception of No. 2, which was not possible due to the closure of the Haitian Community Clinic in South Florida. The study consists of data from community, patient, and provider interviews. Demographic variables include sex, age, primary language, education level, employment status, marital status, and religion.
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Simple Crosstabs

Stress in America, United States, 2007-2024 (ICPSR 37288)

Released/updated on: 2026-06-16
Geographic coverage: United States
Time period: 2007-01-01--2018-01-01, 2019-01-01--2024-01-01

Since 2007, the American Psychological Association (APA) has commissioned an annual nationwide survey as part of its Mind/Body Health campaign to examine the state of stress across the country and understand its impact. The Stress in America survey measures attitudes and perceptions of stress among the general public and identifies leading sources of stress, common behaviors used to manage stress and the impact of stress on our lives. The results of the survey draw attention to the serious physical and emotional implications of stress and the inextricable link between the mind and body.

From 2007 to 2024, the research has documented this connection among the general public as well as various sub-segments of the public. Each year, the Stress in America surveys aims to uncover different aspects of the stress/health connection via focusing on a particular topic and/or subgroup of the population. Below is a list of the focus of each of the Stress in America surveys.

  • 2007-2018 Cumulative Dataset
  • 2007 General Population
  • 2008 Gender and Stress
  • 2009 Parent Perceptions of Children's Stress
  • 2010 Health Impact of Stress on Children and Families
  • 2011 Our Health Risk
  • 2012 Missing the Health Care Connection
  • 2013 Are Teens Adopting Adults' Stress Habits
  • 2014 Paying With Our Health
  • 2015 The Impact of Discrimination
  • 2016 Coping with Change, Part 1
  • 2016 Coping with Change, Part 2: Technology and Social Media
  • 2017 The State of Our Nation
  • 2018 Stress and Generation Z
  • 2019-2024 Cumulative Dataset
  • 2019 Stress and Current Events
  • 2020 COVID Tracker Wave 1
  • 2020 COVID Tracker Wave 2
  • 2020 COVID Tracker Wave 3
  • 2020 A National Mental Health Crisis
  • 2021 Pandemic Anniversary Survey
  • 2021 Stress and Decision-Making During the Pandemic
  • 2022 Pandemic Anniversary Survey
  • 2022 Concerned for the Future, Beset by Inflation
  • 2023 A Nation Recovering From Collective Trauma
  • 2024 A Nation in Political Turmoil
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Study of Women's Health Across the Nation (SWAN), 1998-2001: Family Medical History From Visits 02, 03, and 04 (ICPSR 30181)

Released/updated on: 2014-02-13
Geographic coverage: Inkster, Hackensack, United States, Chicago, Ypsilanti, California, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 1998-02-15--2001-06-01
The Study of Women's Health Across the Nation (SWAN) is a multisite longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers, and women learn how mid-life experiences affect health and quality of life during aging. The study is co-sponsored by the National Institute on Aging (NIA) and the National Institute of Health (NIH), Office of Research on Women's Health. The study began in 1994. Between 1998 and 2001, 2,829 of the 3,302 women that joined SWAN participated in a collection of family history data. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan); Boston, MA (Massachusetts General Hospital); Chicago, IL (Rush Presbyterian-St. Luke's Medical Center); Almeda and Contra Costa County, CA (University of California, Davis and Kaiser Permanente); Los Angeles, CA (University of California, Los Angeles); Hackensack, NJ (Hackensack University Medical Center); and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.
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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN), 2001-2003: Visit 05 Dataset (ICPSR 30501)

Released/updated on: 2025-08-05
Geographic coverage: Inkster, Hackensack, United States, Chicago, Ypsilanti, California, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 2001-03-01--2003-02-15
The Study of Women's Health Across the Nation (SWAN), is a multisite longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers, and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. The study began in 1994. Between 2001 and 2003, 2,617 of the 3,302 women that joined SWAN were seen for their fifth follow-up visit. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan); Boston, MA (Massachusetts General Hospital); Chicago, IL (Rush Presbyterian-St. Luke's Medical Center); Alameda and Contra Costa County, CA (University of California-Davis, and Kaiser Permanente); Los Angeles, CA (University of California-Los Angeles); Hackensack, NJ (Hackensack University Medical Center); and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. Demographic and background information includes age, language of interview, marital status, household composition, and employment.
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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN), 2002-2004: Visit 06 Dataset (ICPSR 31181)

Released/updated on: 2025-06-30
Geographic coverage: Inkster, Hackensack, Contra Costa County, Alameda County, United States, Chicago, Ypsilanti, California, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 2002-03-15--2004-02-15
The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. Data were collected about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. The study began in 1994. Between 2002 and 2004, 2,448 of the 3,302 women that joined SWAN were seen for their sixth follow-up visit. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan); Boston, MA (Massachusetts General Hospital); Chicago, IL (Rush Presbyterian-St. Luke's Medical Center); Alameda and Contra Costa County, CA (University of California-Davis and Kaiser Permanente); Los Angeles, CA (University of California-Los Angeles); Hackensack, NJ (Hackensack University Medical Center); and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. Demographic and background information includes age, language of interview, marital status, household composition, and employment.
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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN), 2003-2005: Visit 07 Dataset (ICPSR 31901)

Released/updated on: 2025-07-10
Geographic coverage: Inkster, Contra Costa County, Alameda County, United States, Chicago, Ypsilanti, California, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 2003-05-15--2005-01-31
The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. Data were collected about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. The study began in 1994. Between 2003 and 2005, 2,327 of the 3,302 women that joined SWAN were seen for their seventh follow-up visit. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan); Boston, MA (Massachusetts General Hospital); Chicago, IL (Rush Presbyterian-St. Luke's Medical Center); Alameda and Contra Costa County, CA (University of California-Davis and Kaiser Permanente); Los Angeles, CA (University of California-Los Angeles); Hackensack, NJ (Hackensack University Medical Center); and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. Though the New Jersey site was still part of the study, data was not collected from this site for the seventh visit. Demographic and background information includes age, language of interview, marital status, household composition, and employment.
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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN), 2006-2008: Visit 10 Dataset (ICPSR 32961)

Released/updated on: 2018-11-15
Geographic coverage: Inkster, Hackensack, United States, Chicago, Ypsilanti, California, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 2006-02-15--2008-01-31
The Study of Women's Health Across the Nation (SWAN) is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. Data were collected about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. The study began in 1994. Between 2006 and 2008, 2,245 of the 3,302 women that joined SWAN were seen for their tenth follow-up visit. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan), Boston, MA (Massachusetts General Hospital), Chicago, IL (Rush Presbyterian-St. Luke's Medical Center), Almaeda and Contra Costa County, CA (University of California, Davis and Kaiser Permanente), Los Angeles, CA (University of California, Los Angeles), Hackensack, NJ (Hackensack University Medical Center) and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. Though the New Jersey site was still part of the study, data was not collected from this site for the tenth visit. Demographic and background information includes age, language of interview, marital status, household composition, and employment.
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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN): Visit 01 Dataset, [United States], 1997-1999 (ICPSR 29221)

Released/updated on: 2019-05-02
Geographic coverage: Detroit, United States, Chicago, California, Oakland, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Newark, Boston, Pittsburgh
Time period: 1997-02-01--1999-01-31

The Study of Women's Health Across the Nation (SWAN) is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause.

The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 1997 and 1999, 2,881 of the 3,302 women that joined SWAN were seen for their first follow-up visit. The research centers are located in the following communities: Detroit, MI; Boston, MA; Chicago, IL; Oakland and Los Angeles, CA; Newark, NJ; and Pittsburgh, PA. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.

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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN): Visit 03 Dataset, [United States], 1999-2001 (ICPSR 29701)

Released/updated on: 2019-05-29
Geographic coverage: Detroit, United States, Chicago, California, Oakland, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Newark, Boston, Pittsburgh
Time period: 1999-02-01--2001-01-31

The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers, and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information.

The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 1999 and 2001, 2,710 of the 3,302 women that joined SWAN were seen for their third follow-up visit. The research centers are located in the following communities: Detroit, Michigan; Boston, Massachusetts; Chicago, Illinois; Oakland and Los Angeles, California; Newark, New Jersey; and Pittsburgh, Pennsylvania. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.

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Partially restricted
Simple Crosstabs

TransPop, United States, 2016-2018 (ICPSR 37938)

Released/updated on: 2021-06-23
Geographic coverage: United States
Time period: 2016-01-01--2018-01-01

The TransPop study is the first national probability sample of transgender individuals in the United States (it also includes a comparative cisgender sample). A primary goal of this study was to provide researchers with a representative sample of transgender people in the United States. The study examines a variety of health-relevant domains including health outcomes and health behaviors, experiences with interpersonal and institutional discrimination, identity, transition-related experiences, and basic demographic characteristics (age, race/ethnicity, religion, political party affiliation, marital status, employment, income, location, sex, gender, and education).

Co-investigators (in alphabetical order): Walter O. Bockting, Ph.D. (Columbia University); Jody L. Herman, Ph.D. (UCLA); Sari L. Reisner, Ph.D. (Harvard University and The Fenway Institute, Fenway Health).

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