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Curated

National Home and Hospice Care Survey, 1994 (ICPSR 6733)

Released/updated on: 2006-01-12
Geographic coverage: United States
The National Home and Hospice Care Survey (NHHCS) for 1994 is the third annual survey of home health agencies and hospices and their current patients and discharges. These surveys were designed to provide information for those who establish standards for, plan, provide, and assess long-term care services, both in the home and in inpatient settings. Data on agency characteristics were obtained through personal interviews with the agency administrators and include the number of home health and hospice patients served in the last 12 months, type of facility ownership (i.e., profit, nonprofit, government, other), Medicare and Medicaid certification, number and type of staff personnel, and the hours they worked. Data on a sample of patients currently receiving home health and hospice care as well as a sample of discharges were obtained by interviewing staff persons most familiar with the care provided to these patients. Respondents were requested to refer to medical or other records whenever necessary. No patient was interviewed directly. Information for patients currently receiving services and discharged patients includes services provided and provider type, type of residence, referral source, medical diagnosis, type of care (home health or hospice), type of aids used (eyeglasses, dentures, walker, cane, oxygen, hospital bed, etc.), daily living activities that required assistance, and billing charges and expected payment source(s). The discharge diagnosis for discharged patients was also recorded. Demographic variables for both types of patients include sex, age, race, Hispanic origin, and marital status.
Curated

National Home and Hospice Care Survey, 1996 (ICPSR 2707)

Released/updated on: 2006-01-18
Geographic coverage: United States
The National Home and Hospice Care Survey (NHHCS) for 1996 is the fourth survey of home health agencies and hospices and their current patients and discharges. These surveys were designed to provide information for those who establish standards for, plan, provide, and assess long-term care services, both in the home and in inpatient settings. Data on agency characteristics were obtained through personal interviews with the agency administrators and include the number of home health and hospice patients served in the last 12 months, type of facility ownership (i.e., profit, nonprofit, government, other), Medicare and Medicaid certification, number and type of staff personnel, and the hours they worked. Data on a sample of patients currently receiving home health and hospice care as well as a sample of discharges were obtained by interviewing staff persons most familiar with the care provided to these patients. Respondents were requested to refer to medical or other records whenever necessary. No patient was interviewed directly. Information for patients currently receiving services and discharged patients includes services provided and provider type, type of residence, referral source, medical diagnosis, type of care (home health or hospice), type of aids used (eyeglasses, dentures, walker, cane, oxygen, hospital bed, etc.), daily living activities that required assistance, and billing charges and expected payment source(s). The discharge diagnosis for discharged patients was also recorded. Demographic variables for both types of patients include sex, age, race, Hispanic origin, and marital status.
Curated

National Home and Hospice Care Survey, 2000 (ICPSR 3791)

Released/updated on: 2006-06-22
Geographic coverage: United States
The National Home and Hospice Care Survey (NHHCS) for 2000 examines home health agencies and hospices and their current patients and discharges. These surveys were designed to provide information for those who establish standards for, plan, provide, and assess long-term care services, both in the home and in inpatient settings. Data on agency characteristics were obtained through personal interviews with the agency administrators and include the number of home health and hospice patients served in the last 12 months, type of facility ownership (i.e., profit, nonprofit, government, other), Medicare and Medicaid certification, number and type of staff, and the hours they worked. Data on a sample of patients currently receiving home health and hospice care as well as a sample of discharges were obtained by interviewing staff persons most familiar with the care provided to these patients. Respondents were requested to refer to medical or other records whenever necessary. No patient was interviewed directly. Information for patients currently receiving services and discharged patients includes services provided and provider type, type of residence, referral source, medical diagnosis, type of care (home health or hospice), type of aids used (eyeglasses, dentures, walker, cane, oxygen, hospital bed, etc.), daily living activities that required assistance, and billing charges and expected payment source(s). The discharge diagnosis for discharged patients was also recorded. Demographic variables for both types of patients include sex, age, race, Hispanic origin, and marital status.
Curated

National Home and Hospice Care Survey, 2007 (ICPSR 28961)

Released/updated on: 2010-09-01
Geographic coverage: United States
Time period: 2007-08-01--2008-02-01, 2007-09-01--2008-04-01

The National Home and Hospice Care Survey (NHHCS) was reintroduced into the field in 2007 after a 7-year break. During that time, the survey was redesigned and expanded to include a computer-assisted personal interviewing (CAPI) system, many new data items, and larger sample sizes of current home health patients and hospice discharges. All agencies that participated in the survey were either certified by Medicare and/or Medicaid or were licensed by a state to provide home health and/or hospice services and currently or recently served home health and/or hospice patients. Agencies that provided only homemaker services or housekeeping services, assistance with instrumental activities of daily living (IADLs), or durable medical equipment and supplies were excluded from the survey. The 2007 NHHCS included a supplemental survey of home health aides employed by home health and/or hospice agencies, called the National Home Health Aide Survey (NHHAS). The 2007 NHHCS data were collected through in-person interviews with agency directors and their designated staffs; no interviews were conducted directly with patients or their families and/or friends. Agency data collected, available in agency administrative records, included information on the year an agency was established, the types of services an agency provided, referral sources, specialty programs, and staffing characteristics. Data collected on home health patients and hospice discharges, available in medical records, included age, sex, race and ethnicity, services received, length of time since admission, diagnoses, medications taken, advance directives, and many other items.

The National Home Health Aide Survey (NHHAS), the first national probability survey of home health aides, was designed to provide national estimates of home health aides employed by agencies that provide home health and/or hospice care. The NHHAS survey instrument included sections on recruitment, training, job history, family life, management and supervision, client relations, organizational commitment and job satisfaction, workplace environment, work-related injuries, and demographics.

Curated

National Medical Expenditure Survey, 1987: Household Survey I, Population and Home Health Providers (ICPSR 9339)

Released/updated on: 2006-01-18
Geographic coverage: United States
This data collection contains two data files derived from information gathered in the initial screening and Round 1 interviews of the Household Survey component of the 1987 NATIONAL MEDICAL EXPENDITURE SURVEY (NMES). The Person File contains data on each person sampled in the first round of the Household Survey. Data are included on each sampled person's self-reported coverage under private health insurance and public programs such as Medicaid, Medicare, and CAMPUS/CAMPVA. In addition, data describe difficulties and help with activities of daily living such as bathing, dressing, eating, toileting, handling money, walking, shopping, preparation of meals, light housekeeping, and the use of telephones and transportation. For persons with difficulties in activities of daily living, there is also information on prior nursing home institutionalization and the use of special equipment, adult day care, senior centers, home-delivered and congregate meals, special transportation, and telephone assurance. The Person File covers a broad range of personal background variables: age, sex, race, ethnicity, Hispanic ancestry, marital status, family relationships, educational status, employment status, occupation, industry, wages and salary, length of time at work, characteristics of the workplace, union membership, and military service. The Home Health Provider File contains data (as reported by the Household Survey respondents) on each provider of formal or informal services who came to the home of a person in the Household Survey sample within a month of the Round 1 interview. Information in the Home Health Provider File includes date of the provider's last visit, length of stay in the home, type of services rendered, provider's place of work, provider's medical specialty, if any, and whether or not the provider was a relative of the person receiving help.
Curated

National Medical Expenditure Survey, 1987: Survey of American Indians and Alaska Natives, Preliminary Ambulatory Medical Visit Data [Public Use Tape 23.5P] (ICPSR 6221)

Released/updated on: 2006-03-30
Geographic coverage: United States
Time period: 1987-01-01--1987-12-31
The National Medical Expenditure Survey (NMES) series provides information on health expenditures by or on behalf of families and individuals, the financing of these expenditures, and each person's use of services. The Survey of American Indians and Alaska Natives (SAIAN) was designed in collaboration with the Indian Health Service (IHS), and used the same data collection instruments, interview procedures, and time frame as the NMES Household Survey component. However, the SAIAN differed from the Household Survey in several respects. The SAIAN sample was interviewed only three times and was not given the supplements on long-term care, caregiving, and care-receiving. Also, SAIAN respondents were asked additional questions on topics such as use of IHS facilities and traditional medicine, and were given a modified self-administered questionnaire with separate versions for adults and children. Interviewers for the SAIAN were mainly American Indians or Alaska Natives, and about 20 percent of the interviews were not conducted entirely in English. Of these, approximately 40 percent were conducted entirely in the native language of the respondent. Public Use Tape 23.5 provides three data files containing information on the use of and expenditures for ambulatory medical services and sources of payment reported in the SAIAN Survey. An ambulatory visit is defined as a single contact with a medical provider for one or more services in either a hospital outpatient department or emergency room, a setting other than an inpatient hospital (such as a physician's office, a clinic, or a lab), a nursing home, or a person's home. The first file includes visits and telephone calls to physicians' offices (including HMOs and health departments) in settings other than a hospital or at home, and to providers of care (e.g., chiropractors and psychologists). The second file covers visits to hospital outpatient departments, while the third file provides information on visits to hospital emergency rooms, both regardless of provider type. A record on any of these data files represents a unique ambulatory visit. Variables include dates of visits, medical conditions associated with the visit, types of procedures performed, and the main reason for the visit. In addition, each file contains demographic information such as age, sex, and race.
Curated

National Medical Expenditure Survey, 1987: Survey of American Indians and Alaska Natives, Preliminary Data on Home Health Care, Medical Equipment Purchases and Rentals, and Traditional Medicine [Public Use Tape 23.2P] (ICPSR 6251)

Released/updated on: 2006-03-30
Geographic coverage: United States
The National Medical Expenditure Survey (NMES) series provides information on health expenditures by or on behalf of families and individuals, the financing of these expenditures, and each person's use of services. The Survey of American Indians and Alaska Natives (SAIAN) was designed in collaboration with the Indian Health Service (IHS), and used the same data collection instruments, interview procedures, and time frame as the NMES Household Survey component. However, the SAIAN differed from the Household Survey in several respects. The SAIAN sample was interviewed only three times and was not given the supplements on long-term care, caregiving, and care-receiving. Also, SAIAN respondents were asked additional questions on topics such as use of IHS facilities and traditional medicine, and were given a modified self-administered questionnaire with separate versions for adults and children. Interviewers for the SAIAN were mainly American Indians or Alaska Natives, and about 20 percent of the interviews were not conducted entirely in English. Of these, approximately 40 percent were conducted entirely in the native language of the respondent. Part 1 of this collection contains information on formal home care providers for each eligible person in the SAIAN who reported receiving home health services, including date the provider was seen, provider's length of stay, type of agency the provider worked for, and kind of help performed by the provider. Demographic information on the recipient (race, age, and sex), and household-reported medical conditions associated with the use of home health care is also included. Part 2 contains information on medical items purchased, rented, or otherwise obtained. Demographic variables similar to those in Part 1 are provided, along with medical conditions and dates that items were obtained. Part 3 contains variables on the type of traditional practitioner seen by respondents, as well as demographic and medical condition variables.