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The Americans' Changing Lives (ACL) survey series is an ongoing, nationally representative, longitudinal study focusing especially on differences between Black and White Americans in middle and late life. These data constitute the first, second, third, fourth, fifth, and sixth waves in a panel survey covering a wide range of sociological, psychological, mental, and physical health items. Wave I of the study began in 1986 with a nation face-to-face survey of 3,617 adults ages 25 and up, with Black Americans and people aged 60 and over over-sampled at twice the rate of the others. Wave II constitutes face-to-face re-interviews in 1989 of those still alive. Survivors have been re-interviewed by telephone, and when necessary face-to-face, in 1994 (Wave III), 2001/02 (Wave IV), 2011 (Wave V), and 2019/21 (Wave VI).

Please note that for Wave VI, the majority of data collection occurred in 2019, with only a small subset (n=39) of participants surveyed in 2021.

ACL was designed and sought to investigate the following: (1) The ways in which a wide range of activities and social relationships that people engage in are broadly "productive," (2) how individuals adapt to acute life events and chronic stresses that threaten the maintenance of health, effective functioning, and productive activity, and (3) sociocultural variations in the nature, meaning, determinants, and consequences of productive activity and relationships. Among the topics covered are interpersonal relationships (spouse/partner, children, parents, friends), sources and levels of satisfaction, social interactions and leisure activities, traumatic life events (physical assault, serious illness, divorce, death of a loved one, financial or legal problems), perceptions of retirement, health behaviors (smoking, alcohol consumption, overweight, rest), and utilization of health care services (doctor visits, hospitalization, nursing home institutionalization, bed days). Also included are measures of physical health, psychological well-being, and indices referring to cognitive functioning.

Demographic information provided for individuals includes household composition, number of children and grandchildren, employment status, occupation and work history, income, family financial situation, religious beliefs and practices, ethnicity, race, education, sex, and region of residence.

The 1985 Detroit Area Study surveyed life events of respondents. Questions addressed alcohol and drug use, emotional state, incidents of depression and fear, stress caused by children and work, and respondent's general health. Information on the respondent's family background was also collected, with specific emphases on children, parenting, and marriage. Gender comparison questions were posed to explore in detail issues such as the benefits/responsibilities of marriage, marriage roles and careers, and division of housework tasks. The survey also included items on the respondent's financial situation, social life, social support network, and demographic characteristics such as age, race, sex, education, religion, and income.

This survey explored the ways in which social influences, such as stress and racism, affected health, and the impact these influences had on the respondents' outlook on life. Respondents were questioned about their health status and their exercise, smoking, sleeping, and dieting habits, as well as about diagnosed health problems and depression and their effects on daily activities. Respondents were also asked a series of questions regarding their employment status, type of job and whether it was a supervisory position, the racial makeup of their workgroup, their perceptions of their position and job, the likelihood of their finding another job, hassles experienced while at work, and whether they had any trouble balancing family and work. Another series of questions asked respondents whether they had been a victim of a serious physical attack or assault, robbery, or home burglary, if they had ever been unfairly searched, stopped, or questioned by police, why they felt they had been treated this way, and if they felt they had ever been treated unfairly by a teacher, landlord, or neighbor. Opinions were also solicited on the respondents' experience with depression and anxiety. Respondents were asked whether they felt it was possible to reach their goals, how satisfied they were with their present situation, how often they felt depressed and how long this feeling lasted, whether they lost weight or sleep due to this feeling, how this feeling of depression made them view themselves, how often and how long they were worried about things that were not likely to happen, how often they worried about non-serious things, and how they felt physically when they were anxious or depressed. Another set of questions queried respondents on alcohol and drug use. Respondents were asked how often they drank alcohol, the most they had to drink at one time, whether they had experienced any addiction to alcohol or experienced any emotional or psychological problems associated with drinking, whether they had any problem controlling their drinking, whether they had used drugs outside of a doctor's order, what types of drugs they had used, how often and in what type of situations they had used these drugs, and whether they had any addiction to the drugs. Respondents were also asked whether they had a regular doctor, whether they went to a doctor's office or clinic to seek medical attention, the last time they had gone for a checkup, how they were treated by staff at the visit, whether they trusted their doctor, the reasons why they did or did not receive medical attention, and whether they had health insurance. Respondents were also asked for their perceptions of differences between Blacks and whites, attitudes toward affirmative action with regard to employment, and their attitude toward interracial relationships. Another battery of questions queried respondents on any fears or phobias they had, such as a fear of animals, water, or visiting a doctor or dentist. Questions focused on the severity of these fears, how long they had had these fears, and how much these fears interfered in daily activities. A final set of questions gathered demographic information on respondents such as highest level of education completed, political affiliation, religious affiliation, level of religious participation, importance of religion, birth date, whether they owned their own home or rented, how much they spent on food each week, total family income for the year 1994, and the height and weight of respondents.

In 2005, 592 African Americans from Milwaukee were added to the MIDUS sample to examine health issues in minority populations (for more details, see Midlife in the United States (MIDUS 2): Milwaukee African American Sample [ICPSR #22840]). Respondents were interviewed in their homes using a Computer Assisted Personal Interview (CAPI) survey protocol and asked to complete and return a Self-Administered Questionnaire (SAQ). Afterwards these individuals were eligible for participation in the same research protocol as the national MIDUS 2 sample, including cognitive, daily stress, biomarker, and neuroscience projects.

With support from the National Institute on Aging, a second wave of survey data collection on the Milwaukee sample was begun in 2016. The survey consisted of a 2.5 hour CAPI interview followed by a 45-page mailed SAQ. CAPI survey data was collected for 389 individuals, realizing a 78 percent response rate, adjusted for mortality and other eligibility criteria. Data collection for this follow-up wave largely repeated baseline assessments, with additional questions in selected areas (e.g., economic recession experiences, childhood experience with race, etc.). Following successful completion of the CAPI and SAQ protocols, individuals were eligible for participation in cognitive, daily stress, biomarker, and neuroscience projects.

In 2012-2013, the MIDUS Milwaukee Refresher study recruited a sample of 508 Milwaukee African American adults, aged 25 to 64, designed to replenish the Midlife Development in the United States (MIDUS 2): Milwaukee African American Sample, 2005-2006 (ICPSR 22840). This sample was also designed to increase the number of racial minorities included in the broader MIDUS study. The MIDUS Milwaukee Refresher survey employed the same assessments (demographic, psycho-social, and physical and mental health) as those assembled on the existing MIDUS sample, but with additional questions about the effect of the economic recession of 2008-09. A sample of African Americans from Milwaukee County, Wisconsin, was stratified by age, gender, and income.

Area probability sampling methods were used to identify potential respondents. Field interviewers screened households to determine if they contained any African American adults. There was additional screening to achieve an appropriate age/gender distribution in a manner similar to what was done for the original MIDUS sample (Midlife in the United States (MIDUS 1), 1995-1996 [ICPSR 2760]). Milwaukee respondents were interviewed in their homes using a 2.5-hour Computer Assisted Personal Interview (CAPI) protocol and afterwards asked to complete a self-administered questionnaire (SAQ). All measures paralleled those used in the larger MIDUS samples. In addition to successful completion of the survey, participants were asked to complete a cognitive assessment by phone. Some respondents were eligible to participate in additional MIDUS projects: daily diary assessments, biomarker assessments, and neuroscience assessments.

In 2012-2013, the MIDUS Milwaukee Refresher study recruited a sample of 508 Milwaukee African American adults, aged 25 to 64, designed to replenish the original MIDUS Milwaukee 1 survey that was designed to increase the number of racial minorities in 2005. The MIDUS Milwaukee Refresher survey employed the same comprehensive assessments (demographic, psycho-social, and physical and mental health) as those on the existing MIDUS sample, with additional questions about the effect of the Great Recession in 2008-09.

In 2023-2024, the second wave of survey data was collected from 327 longitudinal Refresher Milwaukee participants, including the questions (1) repeated from the Refresher 1, (2) new impacts of the COVID-19 pandemic replacing the questions related to the Great Recession in the Refresher 1, and (3) the additional questions in selected areas (e.g., AD8, IADL, family history of dementia). This new longitudinal MIDUS Refresher Milwaukee data allow examination of period effects on health and well-being related to the COVID-19 pandemic by comparing the pre-pandemic MIDUS Refresher Milwaukee 1 data with the post-pandemic MIDUS Refresher Milwaukee 2 data. Further, the longitudinal MIDUS Refresher datasets (wave 1 and wave 2) allow investigation of the two major macro-level historic events, the Great Recession and the COVID-19 pandemic, on health and well-being.

The National Survey of Families and Households (NSFH), Wave 1 (1987-1988) is the first of three waves in a longitudinal survey that was designed to study the causes and consequences of changes happening in families and households within the United States. At a time when the range of family structures was becoming more and more diverse, this study permitted a close examination of the resulting family compositions and household operations. One adult per household was randomly selected as the primary respondent, and there was a total of 13,007 respondents. In addition to the main interview conducted with the primary respondent, a shorter, self-administered questionnaire was given to the spouse or cohabitating partner, and also administered to the householder if he or she was a relative of the primary respondent.

A considerable amount of life-history information was collected, such as the respondent's family living arrangements in childhood, departures and returns to the parental home, and histories of marriage, separation, divorce, cohabitation, adoption, child custody arrangements, and stepfamily relations. Respondents were also asked about the relationship of household members to each other and the quality of their relationships with their parents, children, and in-laws. Information on economic well-being was also collected, including earnings from wages, self-employment income, interest, dividends, investments, pensions, Social Security, public assistance, and child support/alimony. Demographic information collected includes sex, age, marital status, education, and employment.

The National Survey of Families and Households (NSFH), Wave 2 1992-1994, a longitudinal population-based survey of families and households in the United States, investigates the causes and consequences of changes in American family and household structure. This is the second wave of a three part survey. The current study, NSFH Wave 2, is the second follow up and was conducted in 1992-1994. The sample included all NSFH Wave 1 main respondents and spouse/partner with focal children and all other NSFH Wave 1 main respondents ages 45 and over in 2000, as well as their NSFH Wave 1 spouse/partner.

The Wave 2 survey included the following components: (1) an interview of all surviving members of the original sample via face-to-face personal interview, (2) a personal interview with the current spouse or cohabiting partner almost identical to the interview with the main respondent, (3) a personal interview with the original spouse or partner of the primary respondent in cases where this relationship had ended, (4) a telephone interview with "focal children" who were originally aged 13-18 in Wave 1, (5) a short telephone interview with "focal children" who were originally aged 5-12 in Wave 1, (6) short proxy interviews with a surviving spouse or other relative in cases where the original respondent had died or was too ill to interview, and (7) a telephone interview with a randomly-selected parent of the main respondent. Demographic information collected includes sex, age, marital status, education, and employment

The Stroke Recovery in Underserved Populations 2005-2006 study was created to address the National Institute on Aging (NIA) Request For Application entitled "Research on Mind-Body Interactions and Health" (RFA OD-03-008). It addressed the NIA interest in "the impact of optimism, happiness, or a positive attitude on well-being and health; and social functioning and health." The study examined how positive emotion (e.g., joy, gratitude, love, contentment) and social networks independently and interactively contribute to recovery of functional status after stroke within two underserved groups. The specific study aims were to:

1. Examine recovery of functional status (motor and cognitive function), for White, African American and Hispanic persons with stroke discharged from rehabilitation facilities
2. Examine the contributions of positive emotion and social networks on recovery of functional status (motor and cognitive function), for White, African American, and Hispanic persons with stroke discharged from rehabilitation facilities; and
3. Examine the interaction between positive emotion and social networks on recovery of functional status (motor and cognitive function) for White, African American, and Hispanic persons with stroke discharged from rehabilitation facilities.

The data were collected by the IT Health Track at four time points: at admission and discharge from rehabilitation facility, and 80-180 days and 365-425 days after discharge. These data emphasize recovery of motor and cognitive functional status, positive emotion, and social networks

The dataset contains 226 variables and 1219 cases from 11 rehabilitation facilities across the United States.