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Collaborative Psychiatric Epidemiology Surveys (CPES), 2001-2003 [United States] (ICPSR 20240)

Released/updated on: 2024-02-28
Geographic coverage: United States
Time period: 2001-01-01--2003-01-01
The Collaborative Psychiatric Epidemiology Surveys (CPES) were initiated in recognition of the need for contemporary, comprehensive epidemiological data regarding the distributions, correlates and risk factors of mental disorders among the general population with special emphasis on minority groups. The primary objective of the CPES was to collect data about the prevalence of mental disorders, impairments associated with these disorders, and their treatment patterns from representative samples of majority and minority adult populations in the United States. Secondary goals were to obtain information about language use and ethnic disparities, support systems, discrimination and assimilation, in order to examine whether and how closely various mental health disorders are linked to social and cultural issues. To this end, CPES joins together three nationally representative surveys: the NATIONAL COMORBIDITY SURVEY REPLICATION (NCS-R), the NATIONAL SURVEY OF AMERICAN LIFE (NSAL), and the NATIONAL LATINO AND ASIAN AMERICAN STUDY (NLAAS). These surveys collectively provide the first national data with sufficient power to investigate cultural and ethnic influences on mental disorders. In this manner, CPES permits analysts to approach analysis of the combined dataset as though it were a single, nationally representative survey. Each of the CPES surveys has been documented in a comprehensive and flexible manner that promotes cross-survey linking of key data and scientific constructs.
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Culturally Focused Psychiatric Consultation Service For Massachusetts General Hospital's Asian American and Latino American Primary Care Patients with Depression, 2009-2011 (ICPSR 34495)

Released/updated on: 2024-02-14
Geographic coverage: United States, Massachusetts
Time period: 2009-12-16--2011-08-17

This randomized controlled trial evaluated a culturally appropriate intervention to improve the recognition and treatment of depression among Asian and Latino American primary care patients at Massachusetts General Hospital (MGH), using a culturally focused psychiatric (CFP) consultation with a team of mental health providers who were bilingual/bicultural, trained in culturally competent techniques, and familiar with the cultures and languages of the patients served. Targeted minority patients who screened positive for clinical depression were eligible to participate in the trial. The intervention patients were offered the CFP consultation at baseline and, if eligible, received the CFP patient toolkit as part of their treatment. The toolkit provided psychoeducation and tools for managing depression as well as information on community resources. The usual care patients were offered standard referrals to MGH mental health resources.

Questionnaires were administered to the patients at screening, baseline, two-week follow-up, and six month follow-up. The screening questionnaires included the two-item Public Health Questionnaire (PHQ-2) and demographic questions. Assessment measures administered to the intervention patients at baseline included the Mini International Neuropsychiatric Interview (MINI), Quick Inventory of Depressive Symptomatology-Self Rated Scale (QIDS-SR 16), Global Assessment of Functioning (GAF), Schwartz Outcome Scale (SOS-10), and a demographic questionnaire and resource utilization questionnaire. At six month follow-up, the intervention arm was administered a resource utilization questionnaire, patient satisfaction questionnaire (Treatment Satisfaction Scale), qualitative interview, and the QIDS-SR 16 and SOS-10. The SOS-10 was also administered to the intervention patients at two-week follow-up. In the usual care arm, the QIDS-SR 16 and resource utilization questionnaire was administered at baseline and six months, the qualitative interview at six months, and the demographic questionnaire at baseline or six-months. There was no two-week assessment for the usual care patients. Electronic medical record review was used for both arms at baseline and six months, as needed. In addition, qualitative interviews were conducted with project and practice staff at the end of the study.

The data file includes the responses to the questionnaires and variables describing the CFP consultation assessment (DSM-IV Axis I, II, III, IV, and V diagnoses), treatment recommendations made to the patients' primary care physicians (PCPs) after the CFP consultation, and study staff contacts with the patients' PCPs and mental health providers. ICPSR did not receive the data from the qualitative interviews or electronic medical record reviews.

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Galveston Bay Recovery Study, 2008-2010 (ICPSR 34801)

Released/updated on: 2016-06-21
Geographic coverage: United States, Texas, Galveston
Time period: 2008-01-01--2010-01-01
The Galveston Bay Recovery Study (GBRS) was designed to study trajectories of wellness after Hurricane Ike hit the Galveston Bay area on September 13, 2008. The sample included adults who were living in Galveston County or Chambers County, Texas at the time of the hurricane, not just those who remained in the area after the hurricane, who may have been less affected by the storm. Three interviews were conducted approximately 2-5, 5-9, and 14-18 months after the hurricane, respectively. Information was obtained on experiences during Hurricane Ike, lifetime traumatic events, and mental health and functioning before and after the hurricane, as well as between survey waves (including assessment of posttraumatic stress disorder, depression, generalized anxiety disorder, panic disorder, and suicidality). Demographic variables include race/ethnicity, age, education, marital status, number of children/offspring, income, and employment status.
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Gender, Mental Illness, and Crime in the United States, 2004 (ICPSR 27521)

Released/updated on: 2011-02-10
Geographic coverage: United States
The purpose of the study was to examine the gendered effects of depression, drug use, and treatment on crime and the effects of interaction with the criminal justice system on subsequent depression and drug use. The data for the study are from the NATIONAL HOUSEHOLD SURVEY ON DRUG USE AND HEALTH (NSDUH), 2004 [ICPSR 4373]. In addition to the 2004 NSDUH data, the study utilized new variables that were derived from the original dataset by the principal investigator, namely recoded variables, interaction variables, and computed indices. Information was provided on the use of illicit drugs, alcohol, and tobacco among members of United States households aged 12 years and older. Respondents also provided detailed information regarding criminal activity, depression, and other factors. A total of 55,602 respondents participated in the study. The dataset contains a total of 3,011 variables. The first 2,690 variables are drawn from the 2004 NSDUH dataset and the remaining 321 variables were created by the principal investigator. Variables created by the principal investigator are manipulations of the first 2,690 variables. Specifically, these variables include depression indices, drug dependence indicators, interactions with gender and other demographic variables, and dichotomous recoded variables relating to types of drug abuse and criminal behavior.
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Mental Health Concerns of Gay and Bisexual Men Seeking Mental Health Services, 2000 [United States] (ICPSR 22121)

Released/updated on: 2010-06-17
Geographic coverage: United States, New England
Time period: 2000-01-01--2000-06-01
This retrospective chart review was conducted on gay and bisexual men who presented for a mental health intake at a health center between January 2000 and June 2000 during which time intake procedures and assessments remained the same. Mental health intakes consisted of one- to three-hour clinical interviews conducted by psychologists and clinical social workers, who determined treatment recommendations and assignments. Current presenting problem(s) and history of them; prior medical, mental health and substance abuse treatment; current symptoms; areas of impaired functioning; and abuse history were included. Because mental health is a key component of overall quality of life, mental health providers who work with MSM can use these data to increase awareness of the types of mental concerns that are most distressing to this population.
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National Comorbidity Survey: Adolescent Supplement (NCS-A), [United States], 2001-2004 (ICPSR 28581)

Released/updated on: 2023-11-16
Geographic coverage: United States
Time period: 2001-02-01--2004-01-01

The National Comorbidity Survey Replication Adolescent Supplement (NCS-A) was designed to estimate the lifetime-to-date and current prevalence, age-of-onset distributions, course, and comorbidity of DSM-IV disorders in the child and adolescent years of life among adolescents in the United States; to identify risk and protective factors for the onset and persistence of these disorders; to describe patterns and correlates of service use for these disorders; and to lay the groundwork for subsequent follow-up studies that can be used to identify early expressions of adult mental disorders.

The core NCS-A interview schedule was an adaptation of the World Health Organization Composite International Diagnostic Interview (CIDI). NCS-A also administered the non-verbal subtest (Matrices subtest) of the Kaufman Brief Intelligence Test (K-BIT).

In addition to interviewing adolescents, information was collected from a parent or a parent surrogate to obtain an additional perspective on the adolescent's mental health and its correlates. Information from parents focused on the five adolescent disorders for which previous methodological research has most consistently shown that parental reports are important for making diagnoses: attention-deficit/hyperactivity disorder, conduct disorder, oppositional defiant disorder, major depressive episode, and dysthymic disorder.

Demographic information collected by NCS-A includes age, citizenship status, country of birth, criminal history, ethnicity, grandparents' country of birth, language(s) spoken in the home, parents' country of birth, race, religion, and sex.

The data collection contains six data files: (1) data for the adolescent household and school respondents; (2) data for the parents who responded to the long self-administered questionnaire; (3) data for the parents who responded to both the long self-administered questionnaire and short telephone interview; (4) diagnostic variables derived from the data collected from the adolescents and parents; (5) K-BIT scores normed to the NCS-A adolescent sample; and (6) raw K-BIT data.

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National Survey of Alcohol, Drug, and Mental Health Problems [Healthcare for Communities], 1997-1998 (ICPSR 3025)

Released/updated on: 2006-03-30
Geographic coverage: United States
Time period: 1997-01-01--1998-01-01
This survey is a component of the Robert Wood Johnson Foundation's Health Tracking Initiative, a program designed to monitor changes within the health care system and their effects on people. Focusing on care and treatment for alcohol, drug, and mental health conditions, the survey reinterviewed respondents to the 1996-1997 CTS Household Survey (COMMUNITY TRACKING STUDY HOUSEHOLD SURVEY, 1996-1997, AND FOLLOWBACK SURVEY, 1997-1998: [UNITED STATES] [ICPSR 2524]). Topics covered by the questionnaire include (1) demographics, (2) health and daily activities, (3) mental health, (4) alcohol and illicit drug use, (5) use of medications, (6) health insurance coverage including coverage for mental health, (7) access, utilization, and quality of behavioral health care, (8) work, income, and wealth, and (9) life difficulties. Five imputed versions of the data are included in the collection for analysis with multiple imputation techniques.
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National Survey of Alcohol, Drug, and Mental Health Problems [Healthcare for Communities], 2000-2001 (ICPSR 4165)

Released/updated on: 2006-03-30
Geographic coverage: United States
Time period: 2000-01-01--2001-01-01
This survey (HCC2) is a component of the Robert Wood Johnson Foundation's Health Tracking Initiative, an initiative designed to track changes in the the American health care system and their effects. HCC2 reinterviewed respondents to the first National Survey of Alcohol, Drug, and Mental Health Problems (HCC1) and a cross-section of adult respondents from the second Community Tracking Study (CTS) Household Survey (CTS2). Previously, HCC1 reinterviewed a cross-section of adult respondents from the first CTS Household Survey (CTS1). HCC1 is available as the NATIONAL SURVEY OF ALCOHOL, DRUG, AND MENTAL HEALTH PROBLEMS [HEALTHCARE FOR COMMUNITIES], 1997-1998 (ICPSR 3025), CTS1 as the COMMUNITY TRACKING STUDY HOUSEHOLD SURVEY, 1996-1997, AND FOLLOWBACK SURVEY, 1997-1998 (ICPSR 2524), and CTS2 as the COMMUNITY TRACKING STUDY HOUSEHOLD SURVEY, 1998-1999, AND FOLLOWBACK SURVEY, 1998-2000 (ICPSR 3199). Central to the design of the CTS Household Surveys, from which all HCC1 and HCC2 respondents originated, is its community focus. Sixty sites (51 metropolitan and 9 nonmetropolitan areas) were randomly selected to form the core of the CTS surveys and to be representative of the nation as a whole. The CTS Household Surveys were administered to households in the 60 CTS sites (known as the site sample) and to a supplemental national sample of households. Both HCC1 and HCC2 focused on the care and treatment for alcohol, drug, and mental health conditions. Like HCC1, the HCC2 questionnaire collected information on (1) demographics, (2) health and daily activities, (3) mental health, (4) alcohol and illicit drug use, (5) use of medications, (6) general health insurance and insurance coverage for mental health, substance abuse, and prescription medications, (7) access, utilization, and quality of behavioral health care, (8) labor market status, income, and wealth, and (9) life difficulties. Three sets of a data files are supplied with this collection: a set containing the interviews completed with the follow-up sample of persons who responded to HCC1, a set containing the interviews completed with the cross-sectional sample of subjects who responded to CTS2, and a set named the "complete sample" which contains all of the completed interviews. Five imputed versions of the data are included with each set for analysis with multiple imputation techniques.
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National Survey of American Life - Adolescent Supplement (NSAL-A), 2001-2004 (ICPSR 36380)

Released/updated on: 2016-07-28
Geographic coverage: United States
Time period: 2001-01-01--2004-01-01

The National Survey of American Life Adolescent Supplement (NSAL-A), 2001-2004, was designed to estimate the lifetime-to-date and current prevalence, age-of-onset distributions, course, and comorbidity of DSM-IV disorders among African American and Caribbean adolescents in the United States; to identify risk and protective factors for the onset and persistence of these disorders; to describe patterns and correlates of service use for these disorders; and to lay the groundwork for subsequent follow-up studies that can be used to identify early expressions of adult mental disorders. In addition and similar to the NSAL adult dataset (Collaborative Psychiatric Epidemiology Surveys (CPES), 2001-2003 [United States] (ICPSR 20240)), the adolescent dataset contains detailed measures of health; social conditions; stressors; distress; racial identity; subjective, neighborhood conditions; activities and school; media; and social and psychological protective and risk factors. Numerous variables from the adult dataset have been merged into the adolescent dataset, as the NSAL adult and adolescent respondents reside in the same households. Some of these variables apply to the entire household (i.e. region, urbanicity, and family income), while others apply specifically to the NSAL adult respondent living in the adolescent's household (i.e. adult years of education, adult marital status, and adult nativity [foreign-born vs. US born]). The immigration measures were asked of Caribbean black adult respondents only. No comparable measures assess the immigration and generational status of the Caribbean black adolescent respondents. The adult dataset measures are merged into the adolescent dataset to assist in approximating these measures for adolescent respondents. The NSAL adolescent dataset also includes variables for other non-core and experimental disorders. These include tobacco use/nicotine dependence, premenstrual syndrome, minor depression, recurrent brief depression, hypomania, and hypomania sub-threshold. Demographic variables include age, race and ethnicity, ancestry or national origins, height, weight, marital status, income, and education level.

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National Survey of American Life: Multi-Generational and Caribbean Cross-Section Studies, Guyana, Jamaica, [United States], 2004-2005 (ICPSR 36406)

Released/updated on: 2021-12-13
Geographic coverage: United States, Guyana, Jamaica
Time period: 2004-01-01--2005-01-01

The study National Survey of American Life: Multi-Generational and Caribbean Cross-Section Studies also known as the Family Connections Across Generations and Nations is a follow-up to the National Survey of American Life (NSAL): Coping With Stress in the 21st Century, the baseline study which interviewed 6,200 adults and 1,200 adolescents in households of African Americans, non-Hispanic Whites, and Blacks of Caribbean descent.

This study examines influences of family life on people's satisfaction with their lives and their health and general well-being. Specifically, it investigates family and inter-generational processes, with a special emphasis on contextual and structural influences on relationships as they affect individual and family health and well-being across, and within, ethnically and nationally diverse population samples.

Categories of variables include sections on neighborhood, health, social support, depression, social support, mental health episodes (such as depression and mania), substance use, tobacco use, discrimination, and interviewer observations. Demographic variables include the race and ethnicity of the respondent and their spouse, racial background of parents, education, employment, volunteerism, and family income.

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National Survey of American Life Self-Administered Questionnaire (NSAL-SAQ), February 2001-June 2003 (ICPSR 27121)

Released/updated on: 2010-04-13
Geographic coverage: United States
Time period: 2001-02-01--2003-06-01
The National Survey of American Life, 2001-2003 (NSAL) was followed up by a self-administered interview (NSAL SAQ) as a way to reduce respondent burden following the 2 1/2 hour NSAL survey. The SAQ includes additional questions about social, group, and individual characteristics: psychological resources (i.e., John Henryism), group and personal identity (racial awareness and identity), as well as ideology and racial relations (i.e., social dominance; stratification beliefs; egalitarianism; national pride; work ethic; authoritarian, interracial contact; and exposure to Black social contexts); political attitudes (i.e., Race-conscious Policy Index, Race-blind Policy Index, Non-Electoral Participation Index); care of elderly values; job and financial stressors; and wealth. Demographic variables include age, race, and sex.
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Resources for Enhancing Alzheimer's Caregiver Health, 1996-2001, Baseline and Follow-Up Data (ICPSR 3678)

Released/updated on: 2006-09-26
Geographic coverage: United States, Tennessee, California, Alabama, Florida, Birmingham, Pennsylvania, Miami, Palo Alto, Massachusetts, Memphis, Philadelphia, Boston
Time period: 1996-09-01--2001-02-01
Resources for Enhancing Alzheimer's Caregiver Health (REACH) was established in 1995 to conduct social and behavioral research on interventions designed to enhance family caregiving, particularly in minority families, for persons with Alzheimer's Disease and related disorders. Baseline data (ICPSR 3253) were collected through randomized clinical trials at six sites: University of Alabama-Birmingham, The Research and Training Institute of the Hebrew Rehabilitation Center for Aged in Boston, University of Tennessee-Memphis, University of Miami, Veterans Affairs Palo Alto Health Care System and Stanford University, and Thomas Jefferson University in Philadelphia. Interventions such as psychoeducational support groups, behavioral skills training programs, family-based systems interventions, environmental modifications, and technological computer-based information and communication services varied by site. This collection contains baseline data along with follow-up data at 6-, 12-, and 18-month intervals from each site with focus on the impact of the various intervention strategies on psychological distress, health status, health practices, and health care utilization. Also included are follow-up batteries, transition batteries (placement, bereavement, discontinued), and data reporting missed visits. Parts 1 through 5 contain screening data and responses to a short mental status questionnaire. Parts 6 through 34 contain baseline data along with follow-up data at 6, 12, and 18-month intervals and cover activities of daily living, anxiety, and caregiver health and health behaviors along with sociodemographic information. Also included are care recipient medications and sociodemographic information. Parts 35 through 40 contain tracking data and also include an examination of interventions.
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Resources for Enhancing Alzheimer's Caregiver Health (REACH II), 2001-2004 (ICPSR 4354)

Released/updated on: 2006-10-27
Geographic coverage: Palo Alto, United States, Tennessee, Memphis, California, Alabama, Florida, Birmingham, Philadelphia, Pennsylvania, Miami
Time period: 2001-01-01--2004-01-01
Built upon the findings of RESOURCES FOR ENHANCING ALZHEIMER'S CAREGIVER HEALTH, 1996-2001, BASELINE AND FOLLOW-UP DATA [ICPSR 3678], REACH II designed and tested a single multi-component intervention among family caregivers of persons with Alzheimer's disease or related disorders. The overall objectives were (1) to identify and reduce modifiable risk factors among diverse family caregivers of patients with Alzheimer's Disease or a related disorder, (2) to enhance the quality of care provided to the care recipients, and (3) to enhance the well-being of the caregivers. REACH II is the first project to simultaneously test a comprehensive caregiver intervention in three distinct racial/ethnic groups: Hispanic/Latino, Black/African-American, and White/Caucasian. The intervention was based on a risk-appraisal approach in which five areas of risk--depression, burden, self-care, social support, and patient problem behaviors--that are central to caregiver well-being and quality of life were matched to corresponding intervention components. These components included education, skills to manage troublesome care-recipient behaviors, social support, cognitive strategies for reframing negative emotional responses, and strategies for enhancing healthy behaviors and managing stress. Consistent with this approach, the primary outcome was a multivariate quality of life indicator that assessed caregiver depression, burden, self-care, social support, and patient problem behaviors. Two hallmarks of caregiver intervention studies--caregiver clinical depression and patient institutionalization--were assessed as secondary outcomes. The dataset names listed in this collection include the shortened name of the form administered.