Behavioral Risk Factor Surveillance System (BRFSS), 2003 (ICPSR 34085)
Behavioral Risk Factor Surveillance System (BRFSS) Asthma Call-Back Survey, 2009 (ICPSR 34300)
Asthma is one of the nation's most common and costly chronic conditions, affecting over 38 million Americans at some time in their lives. Managing asthma requires a long term, multifaceted approach, including patient education, behavior changes, asthma trigger avoidance, pharmacological therapy, and frequent medical follow-up. This study provides asthma data available at the state and local level to direct and evaluate interventions undertaken by asthma control programs located in the state health departments. Improved tracking for asthma is critical for planning and evaluating efforts to reduce the health burden from the disease.
The Behavioral Risk Factor Surveillance System (BRFSS) is a state-based system of health surveys that collects information on health risk behaviors, preventive health practices, and health care access primarily related to chronic disease and injury. For many states, the BRFSS is the only available source of timely, accurate data on health-related behaviors. BRFSS was established in 1984 by the Centers for Disease Control and Prevention (CDC); currently data are collected monthly in all 50 states, the District of Columbia, Puerto Rico, the United States Virgin Islands, and Guam. More than 350,000 adults are interviewed each year, making the BRFSS the largest telephone health survey in the world. States use BRFSS data to identify emerging health problems, establish and track health objectives, and develop and evaluate public health policies and programs. The BRFSS is a cross-sectional telephone survey conducted by state health departments with technical and methodological assistance provided by CDC. States conduct monthly telephone surveillance using a standardized questionnaire to determine the distribution of risk behaviors and health practices among adults. Responses are forwarded to CDC, where the monthly data are aggregated for each state, returned with standard tabulations, and published at the year's end by each state. The BRFSS questionnaire was developed jointly by CDC's Behavioral Surveillance Branch (BSB) and the states. Data derived from the questionnaire provide health departments, public health officials, and policymakers with necessary behavioral information. When combined with mortality and morbidity statistics, these data enable public health officials to establish policies and priorities and to initiate and assess health promotion strategies. Demographic variables include race, age, sex, education level, marital status, employment status, and income level.
Behavioral Risk Factor Surveillance System (BRFSS), United States, 2017 (ICPSR 37989)
The Behavioral Risk Factor Surveillance System (BRFSS) is a system of health-related telephone surveys that collect state data about U.S. residents regarding their health-related risk behaviors, chronic health conditions, and use of preventive services. Established in 1984 with 15 states, BRFSS now collects data in all 50 states as well as the District of Columbia and three U.S. territories. BRFSS completes more than 400,000 adult interviews each year.
Chicago Community Adult Health Study, 2001-2003 (ICPSR 31142)
The Chicago Community Adult Health Study (CCAHS) consists of four interrelated components that were conducted simultaneously: (1) a survey of adult health on a probability sample of 3,105 Chicago adults, including direct physical measurements of their blood pressure and heart rate and of height, weight, waist and hip circumference, and leg length; (2) a biomedical supplement which collected blood and/or saliva samples on a subset of 661 survey respondents; (3) a community survey in which individuals described aspects of the social environment of all survey respondents' neighborhoods; and (4) a systematic social observation (SSO) of the blocks in which potential survey respondents resided, including a lost letter drop (Milgram et al. 1965) as an unobtrusive measure of neighborhood social capital/sense of responsibility to help others. The latter two extend a community survey and SSO of neighborhoods carried out by the Project on Human Development in Chicago Neighborhoods (PHDCN) in 1995. The adult health survey and the community survey were conducted jointly through face-to-face interviews with a stratified, multistage probability sample of 3,105 individuals aged 18 and over and living in the city of Chicago, with a response rate of 72 percent that is about the highest currently attainable in large urban areas. In addition, blood pressure, heart rate, and physical measurements (of height, weight, waist and hips, and leg length) were collected during the survey interview, and blood and saliva samples from 661 respondents or 60 percent of those doing the survey in the 80 "focal" neighborhood clusters (NCs). SSOs were conducted on 1,663 of the 1,672 city blocks on which each respondent lived. The CCAHS is the largest of five projects under the NIH-funded Michigan Interdisciplinary Center on Social Inequalities, Mind and Body Mind (#P50HD38986), one of five Mind-Body Centers funded by the National Institutes of Health in late 1999. This study will advance the understanding of socioeconomic and racial/ethnic disparities in health, a major priority of the Public Health Service and the National Institutes of Health.
The PI-supplied summary mentions that the study is comprised of four components. However, for the purposes of this data release there are three distinct datasets. Demographic variables include age, birth year, race, ethnicity, number of children in the household, number of children living elsewhere, number of times the respondent has been married, and relationship status, religious preference, and sex.
Detroit Area Study, 1993: Health and Aging (ICPSR 2839)
The 1993 Detroit Area Study explored a variety of issues related to health, the effects of aging, living conditions, and participation in civic life in the Michigan tri-county area of Wayne, Oakland, and Macomb counties. A battery of questions probed respondents' perceptions of their health and mental state and those of their spouse, their ability to perform certain physical and mental activities, and the effect of their emotional state on their appetite and sleeping patterns. Other explored their feelings about neighborhood safety, means of transportation, relationships, accommodation, the portrayal of older people on television programs, and the treatment of older people by employers. The survey also sought respondents' opinions about government, their personal financial situation and problems, money management, savings and investments, and their life as a whole. Additional items questioned respondents about the frequency of their visits to the doctor, overnight hospitalization, chronic health conditions, smoking and drinking habits, and medical coverage, as well as electoral participation, political party preference, ideological leanings, class self-identification, assistance received from community organizations, family, and friends, personal regrets, and time spent watching television and engaging in pleasurable activities. Other questions gauged respondents' memory, vision, and motor skills. Respondents also provided demographic information on sex, age, marital status, race, ethnicity, religion, and education.
Detroit Area Study, 1995: Social Influence on Health: Stress, Racism, and Health Protective Resources (ICPSR 3272)
This survey explored the ways in which social influences, such as stress and racism, affected health, and the impact these influences had on the respondents' outlook on life. Respondents were questioned about their health status and their exercise, smoking, sleeping, and dieting habits, as well as about diagnosed health problems and depression and their effects on daily activities. Respondents were also asked a series of questions regarding their employment status, type of job and whether it was a supervisory position, the racial makeup of their workgroup, their perceptions of their position and job, the likelihood of their finding another job, hassles experienced while at work, and whether they had any trouble balancing family and work. Another series of questions asked respondents whether they had been a victim of a serious physical attack or assault, robbery, or home burglary, if they had ever been unfairly searched, stopped, or questioned by police, why they felt they had been treated this way, and if they felt they had ever been treated unfairly by a teacher, landlord, or neighbor. Opinions were also solicited on the respondents' experience with depression and anxiety. Respondents were asked whether they felt it was possible to reach their goals, how satisfied they were with their present situation, how often they felt depressed and how long this feeling lasted, whether they lost weight or sleep due to this feeling, how this feeling of depression made them view themselves, how often and how long they were worried about things that were not likely to happen, how often they worried about non-serious things, and how they felt physically when they were anxious or depressed. Another set of questions queried respondents on alcohol and drug use. Respondents were asked how often they drank alcohol, the most they had to drink at one time, whether they had experienced any addiction to alcohol or experienced any emotional or psychological problems associated with drinking, whether they had any problem controlling their drinking, whether they had used drugs outside of a doctor's order, what types of drugs they had used, how often and in what type of situations they had used these drugs, and whether they had any addiction to the drugs. Respondents were also asked whether they had a regular doctor, whether they went to a doctor's office or clinic to seek medical attention, the last time they had gone for a checkup, how they were treated by staff at the visit, whether they trusted their doctor, the reasons why they did or did not receive medical attention, and whether they had health insurance. Respondents were also asked for their perceptions of differences between Blacks and whites, attitudes toward affirmative action with regard to employment, and their attitude toward interracial relationships. Another battery of questions queried respondents on any fears or phobias they had, such as a fear of animals, water, or visiting a doctor or dentist. Questions focused on the severity of these fears, how long they had had these fears, and how much these fears interfered in daily activities. A final set of questions gathered demographic information on respondents such as highest level of education completed, political affiliation, religious affiliation, level of religious participation, importance of religion, birth date, whether they owned their own home or rented, how much they spent on food each week, total family income for the year 1994, and the height and weight of respondents.
Detroit Area Study, 1997: Social Change in Religion and Child Rearing (ICPSR 4120)
For this survey, respondents from three counties in the Detroit, Michigan, area were queried about their work, health, marriage and family, finances, political views, religion, and child rearing. With respect to finances, respondent views were elicited on credit card purchases, recording expenditures, and savings and investments. Regarding political views, respondents were questioned about political preferences, presidential values, freedom of speech, nuclear war, and the interest of public officials. Questions also addressed religious beliefs and experiences, including the religiosity of respondents' parents, belief in and relationship with God, the relationship between science and religion, school prayer, divorce, and homosexuality. Additional religious questions -- based on the respondents' religious preference (i.e., Protestant, Catholic, Jew, Other Religion, or No Preference/Agnostic/Atheist Only) -- also were asked, covering topics such as interfaith marriages, religion of friends, and observance of religious holy days. Questions were asked about the views of respondents' religious leaders on issues including drinking, abortion, and test-tube fertilization. Regarding child rearing, views were elicited on issues including religious preference of child(ren) raised, religious training given to child(ren), and frequency of prayer before meals. Background information includes marital status, employment, political orientation, and income.
Early Years of Marriage (EYM) Project, Years 1-4, 1986-1989 (ICPSR 4557)
The purpose of the Early Years of Marriage (EYM) Project was to determine ways in which the early development of marriage for Black couples and White couples affect the mental and physical health of spouses, marital stability, long-term marital outcomes, patterns of family life and, for those who divorce, individual adjustment to family disruption. The EYM Project began in 1986 with 373 newlywed couples--174 White couples and 199 Black couples. The marriages were all intra-racial and it was the first marriage for both spouses.
Year 1 interviews, which queried the couples on various aspects of married life, began after four to nine months into the marriage. Very few respondents who originally participated in Year 1 of the study refused to participate in subsequent phases of the study. In 1986 (Year 1) and 1988 (Year 3) spouses were interviewed in their homes separately and together, with the interviews conducted by interviewers of the same race. In 1987 (Year 2) and 1989 (Year 4) shorter individual telephone interviews were conducted.
In all four years, respondents were queried on a wide variety of topics such as feelings and perceptions of their own family, spouse, in-laws, and their spouse's friends, family planning, how many children they should have, how the children should be reared, childcare, and household roles and responsibilities. A series of questions was asked about reasons for getting married, how satisfying married life was, what, if any, were the special pleasures and good feelings that came from being married, how often arguments and disagreements occurred, main reasons for arguments, and how they were eventually resolved. A series of questions were also asked regarding the mental and physical health of the spouse, job satisfaction, job security, and how the job affected the family. In Year 2 and Year 4 interviews (Parts 2-4), a series of questions regarding separation and divorce were also asked.
Demographic variables include race, gender, age, level of education, occupation, income, and religious preference.
Extending Health Insurance to the Working Poor: An Assessment of Health Status and Health Care Utilization Effects Among New York City Home Health Attendants, February 1990-June 1991 (ICPSR 9774)
Harvard School of Public Health College Alcohol Study, 1993 (ICPSR 6577)
Harvard School of Public Health College Alcohol Study, 1997 (ICPSR 3163)
Harvard School of Public Health College Alcohol Study, 1999 (ICPSR 3818)
Harvard School of Public Health College Alcohol Study, 2001 (ICPSR 4291)
Health and Nutrition Examination Survey I, 1971-1975: Medical History Questionnaire, Ages 1-11 (ICPSR 8138)
Health Insurance Coverage Among Working Latinos in California, 2001 (ICPSR 3572)
Hispanic Established Populations for Epidemiologic Studies of the Elderly (EPESE) Frailty Study: 2006-2009 (ICPSR 36321)
Hispanic Established Populations for Epidemiologic Studies of the Elderly, Wave II, 1995-1996: [Arizona, California, Colorado, New Mexico, and Texas] (ICPSR 3385)
Hispanic Established Populations for Epidemiologic Studies of the Elderly, Wave III, 1998-1999: [Arizona, California, Colorado, New Mexico, and Texas] (ICPSR 4102)
Hispanic Established Populations for Epidemiologic Studies of the Elderly, Wave IV, 2000-2001 [Arizona, California, Colorado, New Mexico, and Texas] (ICPSR 4314)
Hispanic Established Populations for the Epidemiologic Studies of the Elderly, 1993-1994: [Arizona, California, Colorado, New Mexico, and Texas] (ICPSR 2851)
Hispanic Established Populations for the Epidemiologic Study of the Elderly (HEPESE) Wave 5, 2004-2005 [Arizona, California, Colorado, New Mexico, and Texas] (ICPSR 25041)
Hispanic Established Populations for the Epidemiologic Study of the Elderly (HEPESE) Wave 6, 2006-2007 [Arizona, California, Colorado, New Mexico, and Texas] (ICPSR 29654)
Hispanic Health and Nutrition Examination Survey, 1982-1984 (ICPSR 8535)
Hurricane Katrina Community Advisory Group Study [United States] (ICPSR 22325)
Mexican Origin People in the United States: the 1979 Chicano Survey (ICPSR 8436)
Midlife in the United States (MIDUS 2): Cognitive Project, 2004-2006 (ICPSR 25281)
In 1994/1995, the MacArthur Midlife Research Network carried out a national survey of over 7,000 Americans aged 25 to 74. The purpose of the study was to investigate the role of behavioral, psychological, and social factors in understanding age-related differences in physical and mental health. A description of the study and findings from it are available at the MIDUS website.
With support from the National Institute on Aging, a longitudinal follow-up of the original MIDUS samples (core sample (N = 3,487), metropolitan over-samples (N = 757), twins (N = 957 pairs), and siblings (N = 950)) was conducted in 2004-2006. Guiding hypotheses, at the most general level, were that behavioral and psychosocial factors are consequential for health (physical and mental). The purpose of the Cognitive Project was to determine how cognition is related to overall mental and physical health. Specific goals were: (1) to characterize the nature and range of midlife cognitive performance, relative to those younger and older, across multiple domains in a nationally representative sample (MIDUS); and (2) to examine the relationship between biopsychosocial factors (e.g., SES, health status, health-promoting behaviors, metabolic and cardiovascular biomarkers, depression, personality, control beliefs, stressful life events) and individual differences in cognitive functioning.
The development of a cognitive battery for the second wave of testing of the Midlife Development in the United States (MIDUS) study provided an opportunity to examine the cognitive performance of young, middle-aged and older adults from a wide range of education levels in a large-scale, national sample. As part of the Cognitive Project of the MIDUS II the Brief Test of Adult Cognition by Telephone (BTACT) (Lachman & Tun, 2008; Tun & Lachman, 2006) was administered. More information about the BTACT can be found at the Brandeis website. The BTACT represents the first comprehensive cognitive battery, including measures of speed and reaction time, to be administered by telephone to a national sample across the adult years and into later life. With a response rate of over 86 percent for the cognitive testing component of the MIDUS II, a cognitive data set of unprecedented range in terms of age, gender, socioeconomic status (SES), education, and geographic diversity was produced.
Midlife in the United States (MIDUS 2): Milwaukee African American Sample, 2005-2006 (ICPSR 22840)
Midlife in the United States (MIDUS 3): Milwaukee African American Sample, 2016-2017 (ICPSR 37120)
In 2005, 592 African Americans from Milwaukee were added to the MIDUS sample to examine health issues in minority populations (for more details, see Midlife in the United States (MIDUS 2): Milwaukee African American Sample [ICPSR #22840]). Respondents were interviewed in their homes using a Computer Assisted Personal Interview (CAPI) survey protocol and asked to complete and return a Self-Administered Questionnaire (SAQ). Afterwards these individuals were eligible for participation in the same research protocol as the national MIDUS 2 sample, including cognitive, daily stress, biomarker, and neuroscience projects.
With support from the National Institute on Aging, a second wave of survey data collection on the Milwaukee sample was begun in 2016. The survey consisted of a 2.5 hour CAPI interview followed by a 45-page mailed SAQ. CAPI survey data was collected for 389 individuals, realizing a 78 percent response rate, adjusted for mortality and other eligibility criteria. Data collection for this follow-up wave largely repeated baseline assessments, with additional questions in selected areas (e.g., economic recession experiences, childhood experience with race, etc.). Following successful completion of the CAPI and SAQ protocols, individuals were eligible for participation in cognitive, daily stress, biomarker, and neuroscience projects.
Midlife in the United States (MIDUS Refresher 1): Milwaukee African American Sample, 2012-2013 (ICPSR 36722)
In 2012-2013, the MIDUS Milwaukee Refresher study recruited a sample of 508 Milwaukee African American adults, aged 25 to 64, designed to replenish the Midlife Development in the United States (MIDUS 2): Milwaukee African American Sample, 2005-2006 (ICPSR 22840). This sample was also designed to increase the number of racial minorities included in the broader MIDUS study. The MIDUS Milwaukee Refresher survey employed the same assessments (demographic, psycho-social, and physical and mental health) as those assembled on the existing MIDUS sample, but with additional questions about the effect of the economic recession of 2008-09. A sample of African Americans from Milwaukee County, Wisconsin, was stratified by age, gender, and income.
Area probability sampling methods were used to identify potential respondents. Field interviewers screened households to determine if they contained any African American adults. There was additional screening to achieve an appropriate age/gender distribution in a manner similar to what was done for the original MIDUS sample (Midlife in the United States (MIDUS 1), 1995-1996 [ICPSR 2760]). Milwaukee respondents were interviewed in their homes using a 2.5-hour Computer Assisted Personal Interview (CAPI) protocol and afterwards asked to complete a self-administered questionnaire (SAQ). All measures paralleled those used in the larger MIDUS samples. In addition to successful completion of the survey, participants were asked to complete a cognitive assessment by phone. Some respondents were eligible to participate in additional MIDUS projects: daily diary assessments, biomarker assessments, and neuroscience assessments.
Midlife in the United States (MIDUS Refresher 2): Milwaukee African American Sample, 2023-2024 (ICPSR 39583)
In 2012-2013, the MIDUS Milwaukee Refresher study recruited a sample of 508 Milwaukee African American adults, aged 25 to 64, designed to replenish the original MIDUS Milwaukee 1 survey that was designed to increase the number of racial minorities in 2005. The MIDUS Milwaukee Refresher survey employed the same comprehensive assessments (demographic, psycho-social, and physical and mental health) as those on the existing MIDUS sample, with additional questions about the effect of the Great Recession in 2008-09.
In 2023-2024, the second wave of survey data was collected from 327 longitudinal Refresher Milwaukee participants, including the questions (1) repeated from the Refresher 1, (2) new impacts of the COVID-19 pandemic replacing the questions related to the Great Recession in the Refresher 1, and (3) the additional questions in selected areas (e.g., AD8, IADL, family history of dementia). This new longitudinal MIDUS Refresher Milwaukee data allow examination of period effects on health and well-being related to the COVID-19 pandemic by comparing the pre-pandemic MIDUS Refresher Milwaukee 1 data with the post-pandemic MIDUS Refresher Milwaukee 2 data. Further, the longitudinal MIDUS Refresher datasets (wave 1 and wave 2) allow investigation of the two major macro-level historic events, the Great Recession and the COVID-19 pandemic, on health and well-being.