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This collection includes a combined dataset of the Generations study wave 1 (baseline) survey and the TransPop study transgender survey. The two studies have many overlapping variables, and they examined topics such as respondents' health outcomes and behaviors, experiences with discrimination, identity, and transition-related experiences. Data from these studies were merged to allow for analysis of the combined LGBT populations. This dataset has also been reweighted to be representative of these populations.

The complete Generations study data (baseline, wave 2, and wave 3 survey data) can be found under study number 37166, and the complete TransPop study data (transgender and cisgender survey data) can be found under study number 37938. For detailed information on the Generations and TransPop studies, including related publications, please refer to their respective DSDR/ICPSR study pages.

The Behavioral Risk Factor Surveillance System (BRFSS) is a system of health-related telephone surveys that collect state data about U.S. residents regarding their health-related risk behaviors, chronic health conditions, and use of preventive services. Established in 1984 with 15 states, BRFSS now collects data in all 50 states as well as the District of Columbia and three U.S. territories. BRFSS completes more than 400,000 adult interviews each year.

The TransPop study is the first national probability sample of transgender individuals in the United States (it also includes a comparative cisgender sample). A primary goal of this study was to provide researchers with a representative sample of transgender people in the United States. The study examines a variety of health-relevant domains including health outcomes and health behaviors, experiences with interpersonal and institutional discrimination, identity, transition-related experiences, and basic demographic characteristics (age, race/ethnicity, religion, political party affiliation, marital status, employment, income, location, sex, gender, and education).

Co-investigators (in alphabetical order): Walter O. Bockting, Ph.D. (Columbia University); Jody L. Herman, Ph.D. (UCLA); Sari L. Reisner, Ph.D. (Harvard University and The Fenway Institute, Fenway Health).

This study brings to light what is both patently obvious and far too often dismissed from the human rights agenda. Transgender and gender non-conforming people face injustice at every turn: in childhood homes, in school systems that promise to shelter and educate, in harsh and exclusionary workplaces, at the grocery store, the hotel front desk, in doctors' offices and emergency rooms, before judges and at the hands of landlords, police officers, health care workers and other service providers.

The National Gay and Lesbian Task Force and the National Center for Transgender Equality are grateful to each of the 6,450 transgender and gender non-conforming study participants who took the time and energy to answer questions about the depth and breadth of injustice in their lives. A diverse set of people, from all 50 states, the District of Columbia, Puerto Rico, Guam and the U.S. Virgin Islands, completed online or paper surveys. This tremendous gift has created the first 360-degree picture of discrimination against transgender and gender non-conforming people in the U.S. and provides critical data points for policymakers, community activists and legal advocates to confront the appalling realities documented here and press the case for equity and justice.

These data provide information on discrimination in every major area of life, including housing, employment, health and health care, education, public accommodation, family life, criminal justice and government identity documents, and demographic information such as citizenship, race, ethnicity, employment, and income. In virtually every setting, the data underscores the urgent need for policymakers and community leaders to change their business-as-usual approach and confront the devastating consequences of anti-transgender bias.

Demographic information includes race, ethnicity, gender identity, sexual orientation, education, income, U.S citizenship, household size, and relationship status.

The public-use dataset was created in an earlier version of Stata that truncated write-in responses after 244 characters. The non-truncated write-in responses, plus Q10 zip codes and the essay responses to Q70, are included in the restricted-use dataset.

The Black Rural and Urban Caregivers Mental Health/Functioning data collection includes survey data collected in 2000-2002 from African American females age 65 and older, who provide unpaid care for older African American adults in the St. Louis Metropolitan area and seven rural Missouri counties (Butler, Dunklin, Mississippi, New Madrid, Pemiscot, Scott, and Stoddard).

Because of inadequate recruitment knowledge about rural African American caregivers and persistent reports of challenges when involving African Americans elders in research, this study focused on the involvement of African American rural elders and recruitment of their female informal caregivers in a study of caregivers' well-being and service use. African Americans comprise the largest group of ethnic and racial minority elders aged 65 and older in the U.S. population thus making up one half of all ethnic and racial minority elders. Numerical changes in population size and increasing longevity of older African Americans direct attention to African American informal female caregivers- persons most likely to assist African American elderly with daily living tasks, personal needs, and long-term care. More disabled and chronically ill African American elders portend continuing need from informal or unpaid caregivers for dependent care.

There are two datasets associated with this study, a public-use (da36349-0001) and restricted-use (da36349-0002) version of the same survey data. Both data files contain 521 cases and 1438 variables. However, the restricted file contains continuous as opposed to categorical values for age variables rounded to the nearest whole number.

The Sacramento Area Latino Study on Aging (SALSA Study) project tracked the incidence of physical and cognitive impairment as well as dementia and cardiovascular diseases in elderly Latinos in the Sacramento, California, region. The SALSA project aimed to assess cognitive, physical, and social functions, which include the ability to follow instructions, to perform certain movements, and to interact with others. The study explored the effects that cultural, nutritional, social, and cardiovascular risk factors have on overall health and dementia, and examined the association between diabetes and functional status. This study contains the neuroclinical exam data from the SALSA project. Demographic information includes age given at follow-up visits, country of birth, language, religion, marital status, educational level, occupation, household income, and size of household.

The National Health and Nutrition Examination Surveys (NHANES) is a program of studies designed to assess the health and nutritional status of adults and children in the United States. The NHANES combines personal interviews and physical examinations, which focus on different population groups or health topics. These surveys have been conducted by the National Center for Health Statistics (NCHS) on a periodic basis from 1971 to 1994. In 1999 the NHANES became a continuous program with a changing focus on a variety of health and nutrition measurements which were designed to meet current and emerging concerns. The surveys examine a nationally representative sample of approximately 5,000 persons each year. These persons are located in counties across the United States, 15 of which are visited each year.

For NHANES 2003-2004, there were 12,761 persons selected for the sample, 10,122 of those were interviewed (79.3 percent) and 9,643 (75.6 percent) were examined in the mobile examination centers (MEC). Many of the NHANES 2003-2004 questions were also asked in NHANES II 1976-1980, Hispanic HANES 1982-1984, NHANES III 1988-1994, and NHANES 1999-2002. New questions were added to the survey based on recommendations from survey collaborators, NCHS staff, and other interagency work groups. As in past health examination surveys, data were collected on the prevalence of chronic conditions in the population. Estimates for previously undiagnosed conditions, as well as those known to and reported by survey respondents, are produced through the survey. Risk factors, those aspects of a person's lifestyle, constitution, heredity, or environment that may increase the chances of developing a certain disease or condition, were examined. Data on smoking, alcohol consumption, sexual practices, drug use, physical fitness and activity, weight, and dietary intake were collected. Information on certain aspects of reproductive health, such as use of oral contraceptives and breastfeeding practices, were also collected. The diseases, medical conditions, and health indicators that were studied include: anemia, cardiovascular disease, diabetes and lower extremity disease, environmental exposures, equilibrium, hearing loss, infectious diseases and immunization, kidney disease, mental health and cognitive functioning, nutrition, obesity, oral health, osteoporosis, physical fitness and physical functioning, reproductive history and sexual behavior, respiratory disease (asthma, chronic bronchitis, emphysema), sexually transmitted diseases, skin diseases, and vision. The sample for the survey was selected to represent the United States population of all ages. Special emphasis in the 2003-2004 NHANES was on adolescent health and the health of older Americans. To produce reliable statistics for these groups, adolescents aged 15-19 years and persons aged 60 years and older were over-sampled for the survey. African Americans and Mexican Americans were also over-sampled to enable accurate estimates for these groups. Several important areas in adolescent health, including nutrition and fitness and other aspects of growth and development, were addressed. Since the United States has experienced dramatic growth in the number of older people during the twentieth century, the aging population has major implications for health care needs, public policy, and research priorities. NCHS is working with public health agencies to increase the knowledge of the health status of older Americans. NHANES has a primary role in this endeavor. In the examination, all participants visit the physician who takes their pulse or blood pressure. Dietary interviews and body measurements are included for everyone. All but the very young have a blood sample taken and see the dentist. Depending upon the age of the participant, the rest of the examination includes tests and procedures to assess the various aspects of health listed above. Usually, the older the individual, the more extensive the examination. Some persons who are unable or unwilling to come to the examination center may be given a less extensive examination in their homes.

Demographic data file variables are grouped into three broad categories: (1) Status Variables: provide core information on the survey participant. Examples of the core variables include interview status, examination status, and sequence number. (Sequence number is a unique ID assigned to each sample person and is required to match the information on this demographic file to the rest of the NHANES 2003-2004 data). (2) Recoded Demographic Variables: these variables include age (age in months for persons through age 19 years, 11 months; age in years for 1- to 84-year-olds, and a top-coded age group of 85 years of age and older), gender, a race/ethnicity variable, current or highest grade of education completed, (less than high school, high school, and more than high school education), country of birth (United States, Mexico, or other foreign born), Poverty Income Ratio (PIR), income, and a pregnancy status variable (adjudicated from various pregnancy related variables). Some of the groupings were made due to limited sample sizes for the two-year data set. (3) Interview and Examination Sample Weight Variables: sample weights are available for analyzing NHANES 2003-2004 data. For a complete listing of survey contents for all years of the NHANES see the document -- Survey Content -- NHANES 1999-2010.

The Kinder Houston Area Survey is a longitudinal study that began in May 1982 after Houston, Texas, recovered from the recession of the mid-1980s. The overall purpose of this research was to measure systematically the public responses to the new economic, educational, and environmental challenges, and to make the findings of this continuing project readily available to civic and business leaders, to the general public, and to research scholars. Part 1, All Responses from 25 Successive Samples, contains all the responses from the successive representative samples of Harris County residents from 1982 through 2014. These are the data that enabled the project to analyze continuity and change among area residents over the course of 26 years. In 13 of the 14 surveys (the years from 1994 through 2014, the one exception being 1996), the surveys were expanded with oversample interviews in Houston's ethnic communities. Using identical random-selection procedures, and terminating after the first few questions if the respondent was not of the ethnic background required, additional interviews were conducted in each of the years to enlarge and equalize the samples of Anglo, African American, and Hispanic respondents at about 500 each. In 1995 and 2002, the research also included large representative samples (N=500) from Houston's Asian communities, with one-fourth of the interviews conducted in Vietnamese, Cantonese, Mandarin, or Korean -- the only such surveys in the country. These additional interviews are included in Part 2, Additional Oversample Interviews.

The data contained in Part 2 are for Restricted-Use of Part 1, All Responses from 25 Successive Samples.

The data contained in Part 3 are based on a 14-year total of 6,576 Anglos, 6,086 African Americans, 6,094 Hispanics, and 1,250 Asians, along with 387 others, and are of particular value in assessing the similarities and differences both within and among Houston's (and America's) four largest ethnic groups. Beginning in 2003, the data files have incorporated detailed information from the 2000 Census on the characteristics of the respondent's neighborhood, not only at the level of home ZIP code, but also by Census tract and block group.

In Part 4, Restricted-Use information from 2000 Census, the data record the population and geographical area of each of the three sectors, distributions by ethnicity and immigrant status, age and gender composition, employment and commuting patterns, and levels of education and income. With this information incorporated in the datasets covering five years of expanded surveys, researchers are able to connect the respondents' perceptions and experiences with information on the neighborhoods in which they live, thereby adding a contextual dimension to analyses of the factors that account for individual differences in attitudes and beliefs. Conducted during February and March of each year, the interviews measured perspectives on the local and national economy, on poverty programs, inter-ethnic relationships. Also captured were respondents' beliefs about discrimination and affirmative action, education, crime, health care, taxation, and community service, as well as their assessments of downtown development, mobility and transit, land-use controls and environmental concerns, and their attitudes toward abortion, homosexuality, and other aspects of the social agenda. Also recorded were religious and political orientations, as well as an array of demographic and immigration characteristics, socioeconomic indicators, and family structures.

The National Survey on Drug Use and Health (NSDUH) series (formerly titled National Household Survey on Drug Abuse) primarily measures the prevalence and correlates of drug use in the United States. Detailed NSDUH 2008 documentation is available from SAMHSA. The surveys are designed to provide quarterly, as well as annual, estimates. Information is provided on the use of illicit drugs, alcohol, and tobacco among members of United States households aged 12 and older. Questions included age at first use as well as lifetime, annual, and past-month usage for the following drug classes: marijuana, cocaine (and crack), hallucinogens, heroin, inhalants, alcohol, tobacco, and nonmedical use of prescription drugs, including pain relievers, tranquilizers, stimulants, and sedatives. The survey covered substance abuse treatment history and perceived need for treatment, and included questions from the Diagnostic and Statistical Manual (DSM) of Mental Disorders that allow diagnostic criteria to be applied. The survey included questions concerning treatment for both substance abuse and mental health related disorders. Respondents were also asked about personal and family income sources and amounts, health care access and coverage, illegal activities and arrest record, problems resulting from the use of drugs, and needle-sharing. Questions introduced in previous administrations were retained in the 2008 survey, including questions asked only of respondents aged 12 to 17. These "youth experiences" items covered a variety of topics, such as neighborhood environment, illegal activities, drug use by friends, social support, extracurricular activities, exposure to substance abuse prevention and education programs, and perceived adult attitudes toward drug use and activities such as school work. Several measures focused on prevention-related themes in this section. Also retained were questions on mental health and access to care, perceived risk of using drugs, perceived availability of drugs, driving and personal behavior, and cigar smoking. Questions on the tobacco brand used most often were introduced with the 1999 survey. For this 2008 survey, Adult mental health questions were added to measure symptoms of psychological distress in the worst period of distress that a person experienced in the past 30 days and suicidal ideation. A split-sample design also was included to administer separate sets of questions to assess impairment due to mental health problems. Background information includes gender, race, age, ethnicity, marital status, educational level, job status, veteran status, and current household composition.

This study contains demographic variables for the the Sacramento Area Latino Study on Aging (SALSA) Series and can be used with ICPSR studies 22760, 29321, 29322, 29323. Demographic variables include gender, primary language, country of origin, state of birth, cause of death, 2000 census tract codes, birth date, date of death, and age given at follow-up visits.

About SALSA: The Sacramento Area Latino Study on Aging (SALSA Study) project tracked the incidence of physical and cognitive impairment as well as dementia and cardiovascular diseases in elderly Latinos in the Sacramento, California, region. The SALSA project aimed to assess cognitive, physical, and social functions, which include the ability to follow instructions, to perform certain movements, and to interact with others. The study explored the effects that cultural, nutritional, social, and cardiovascular risk factors have on overall health and dementia, and examined the association between diabetes and functional status.

Asthma is one of the nation's most common and costly chronic conditions, affecting over 38 million Americans at some time in their lives. Managing asthma requires a long term, multifaceted approach, including patient education, behavior changes, asthma trigger avoidance, pharmacological therapy, and frequent medical follow-up. This study provides asthma data available at the state and local level to direct and evaluate interventions undertaken by asthma control programs located in the state health departments. Improved tracking for asthma is critical for planning and evaluating efforts to reduce the health burden from the disease.

The Behavioral Risk Factor Surveillance System (BRFSS) is a state-based system of health surveys that collects information on health risk behaviors, preventive health practices, and health care access primarily related to chronic disease and injury. For many states, the BRFSS is the only available source of timely, accurate data on health-related behaviors. BRFSS was established in 1984 by the Centers for Disease Control and Prevention (CDC); currently data are collected monthly in all 50 states, the District of Columbia, Puerto Rico, the United States Virgin Islands, and Guam. More than 350,000 adults are interviewed each year, making the BRFSS the largest telephone health survey in the world. States use BRFSS data to identify emerging health problems, establish and track health objectives, and develop and evaluate public health policies and programs. The BRFSS is a cross-sectional telephone survey conducted by state health departments with technical and methodological assistance provided by CDC. States conduct monthly telephone surveillance using a standardized questionnaire to determine the distribution of risk behaviors and health practices among adults. Responses are forwarded to CDC, where the monthly data are aggregated for each state, returned with standard tabulations, and published at the year's end by each state. The BRFSS questionnaire was developed jointly by CDC's Behavioral Surveillance Branch (BSB) and the states. Data derived from the questionnaire provide health departments, public health officials, and policymakers with necessary behavioral information. When combined with mortality and morbidity statistics, these data enable public health officials to establish policies and priorities and to initiate and assess health promotion strategies. Demographic variables include race, age, sex, education level, marital status, employment status, and income level.

The Chicago Community Adult Health Study (CCAHS) consists of four interrelated components that were conducted simultaneously: (1) a survey of adult health on a probability sample of 3,105 Chicago adults, including direct physical measurements of their blood pressure and heart rate and of height, weight, waist and hip circumference, and leg length; (2) a biomedical supplement which collected blood and/or saliva samples on a subset of 661 survey respondents; (3) a community survey in which individuals described aspects of the social environment of all survey respondents' neighborhoods; and (4) a systematic social observation (SSO) of the blocks in which potential survey respondents resided, including a lost letter drop (Milgram et al. 1965) as an unobtrusive measure of neighborhood social capital/sense of responsibility to help others. The latter two extend a community survey and SSO of neighborhoods carried out by the Project on Human Development in Chicago Neighborhoods (PHDCN) in 1995. The adult health survey and the community survey were conducted jointly through face-to-face interviews with a stratified, multistage probability sample of 3,105 individuals aged 18 and over and living in the city of Chicago, with a response rate of 72 percent that is about the highest currently attainable in large urban areas. In addition, blood pressure, heart rate, and physical measurements (of height, weight, waist and hips, and leg length) were collected during the survey interview, and blood and saliva samples from 661 respondents or 60 percent of those doing the survey in the 80 "focal" neighborhood clusters (NCs). SSOs were conducted on 1,663 of the 1,672 city blocks on which each respondent lived. The CCAHS is the largest of five projects under the NIH-funded Michigan Interdisciplinary Center on Social Inequalities, Mind and Body Mind (#P50HD38986), one of five Mind-Body Centers funded by the National Institutes of Health in late 1999. This study will advance the understanding of socioeconomic and racial/ethnic disparities in health, a major priority of the Public Health Service and the National Institutes of Health.

The PI-supplied summary mentions that the study is comprised of four components. However, for the purposes of this data release there are three distinct datasets. Demographic variables include age, birth year, race, ethnicity, number of children in the household, number of children living elsewhere, number of times the respondent has been married, and relationship status, religious preference, and sex.

The 2001 Detroit Area Study (DAS) is a survey of over 4,300 adults in metro Detroit and addresses their perceptions, expectations, satisfaction, and behaviors associated with community living. The 2001 DAS, conducted in the spring and summer 2001, consisted of two parts. Initially, face-to-face interviews were conducted with a probability sample of 315 adult respondents (18 years of age and older) living in the tri-county area of Wayne, Oakland, and Macomb Counties. Subsequently, a questionnaire was mailed to a sample of adults throughout the seven counties; 4,077 were returned. Response rates were 59.8 percent for the face-to-face sample and 56.7 percent for the mail sample. In addition to survey responses, DAS 2001 compiled contextual information about the minor civil divisions (MCDs) or communities and environments associated with each respondent. Contextual information includes housing and demographic characteristics, land use characteristics, and other characteristics of the communities where respondents live (growth rates, employment, school information). Questions on the survey asked about residential history; public services and transportation; government and taxes; schools; police; parks, recreation and where kids play; shopping and other community issues; community participation and involvement; neighborhood and neighboring; housing and prospective mobility; safety; employment and journey to work; health and health care facilities; other Detroit and regional issues; demographics; and observations. The 2001 DAS presents a unique opportunity to explore and record changes over time by measuring people's opinions and behaviors and the conditions in their communities. The 2001 DAS is different from earlier DAS surveys in several ways. First, the study has been expanded from three to seven counties in southeast Michigan, often referred to as the metro Detroit area. That is, the study contacted residents in Livingston, Macomb, Monroe, Oakland, St. Clair, Wayne, and Washtenaw counties and in the city of Detroit. Second, the number of people contacted is greatly increased using a combination of face-to-face interviews and questionnaires sent by mail. Over 4,000 households in the region were contacted. Third, the questionnaires were designed in consultation with stakeholder groups representing government, industry, and nonprofit organizations in the region. Finally, indicators associated with the sampled households are being compiled and analyzed (along with the survey responses) using statistical and spatial analytic techniques including Geographic Information Systems (GIS).

The Sacramento Area Latino Study on Aging (SALSA Study) project tracked the incidence of physical and cognitive impairment as well as dementia and cardiovascular diseases in elderly Latinos in the Sacramento, California, region. The SALSA project aimed to assess cognitive, physical and social functions, which include the ability to follow instructions, to perform certain movements, and to interact with others. The study explored the effects that cultural, nutritional, social and cardiovascular risk factors have on overall health and dementia, and examined the association between diabetes and functional status. Demographic information includes age given at follow-up visits, country of birth, language, religion, marital status, educational level, occupation, household income, and size of household.

This data collection is part of a longitudinal survey designed to provide detailed information on the economic situation of households and persons in the United States. These data examine the distribution of income, wealth, and poverty in American society and gauge the effects of federal and state programs on the well-being of families and individuals.

There are three basic elements contained in the survey. The first is a control card that records basic social and demographic characteristics for each person in a household, as well as changes in such characteristics over the course of the interviewing period. These include age, sex, race, ethnic origin, marital status, household relationship, education, and veteran status. Limited data are provided on housing unit characteristics such as the number of units in the structure, tenure, access, and complete kitchen facilities. The second element is the core portion of the questionnaire, with questions repeated at each interview on labor force activity, types and amounts of income, and participation in various cash and noncash benefit programs for each month of the four-month reference period. Data for employed persons include number of hours and weeks worked, earnings, and weeks without a job. Nonworkers are classified as unemployed or not in the labor force. In addition to providing income data associated with labor force activity, the core questions cover nearly 50 other types of income. Core data also include postsecondary school attendance, public or private subsidized rental housing, low-income energy assistance, and school breakfast and lunch participation. The third element consists of topical modules, which are a series of supplemental questions asked during selected household visits. Topical modules include some core data to link individuals to the core files. For more information on this study, see the SIPP Web site.

Information about child care is located in the topical modules for Waves III, V, VI, and VIII.

1. The Wave I Topical Module covers recipiency and employment history.
2. The Wave II Topical Module includes work disability, education and training, household relationships, marital, migration, and fertility histories.
3. The Wave III Topical Module covers medical expenses and utilization of health care, work-related expenses and child support, assets and liabilities, real estate, shelter costs, dependent care, vehicles, value of business, interest earning accounts, rental properties, stocks and mutual fund shares, mortgages, other assets, and child well-being.
4. The Wave IV Topical Module covers adult well-being, work schedule, taxes, child care, and annual income and retirement accounts.
5. Data in the Wave V Topical Module describe child support agreements, school enrollment and financing, support for nonhousehold members, adult and child disability, and employer-provided health benefits.
6. The Wave VI Topical Module covers medical expenses and utilization of health care, work-related expenses, child support paid and child care, poverty, assets and liabilities, real estate, shelter costs, dependent care, vehicles, value of business, interest earning accounts, rental properties, stock and mutual fund shares, mortgages, and other financial investments.
7. The Wave VII Topical Module covers retirement, pension plan coverage, annual income, taxes, and retirement accounts. Variables on informal caregiving, such as who received unpaid care and how long they were cared for, are located in a separate topical module file.
8. The Wave VIII Topical Module covers welfare reform, child well-being, and child care.