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Behavioral Risk Factor Surveillance System (BRFSS), 2003 (ICPSR 34085)

Released/updated on: 2013-08-05
Geographic coverage: Oregon, Vermont, Puerto Rico, Indiana, United States, Oklahoma, Maine, Utah, Nebraska, West Virginia, Massachusetts, North Dakota, Wisconsin, Arizona, Nevada, District of Columbia, Rhode Island, Montana, Hawaii, Kansas, New York (state), New Jersey, Michigan, Iowa, New Mexico, Illinois, Texas, Connecticut, New Hampshire, Louisiana, Ohio, Georgia, Virginia, Maryland
The Behavioral Risk Factor Surveillance System (BRFSS) is a state-based system of health surveys that collects information on health risk behaviors, preventive health practices, and health care access primarily related to chronic disease and injury. For many states, the BRFSS is the only available source of timely, accurate data on health-related behaviors. BRFSS was established in 1984 by the Centers for Disease Control and Prevention (CDC); currently data are collected monthly in all 50 states, the District of Columbia, Puerto Rico, the United States Virgin Islands, and Guam. More than 350,000 adults are interviewed each year, making the BRFSS the largest telephone health survey in the world. States use BRFSS data to identify emerging health problems, establish and track health objectives, and develop and evaluate public health policies and programs. The BRFSS is a cross-sectional telephone survey conducted by state health departments with technical and methodologic assistance provided by CDC. States conduct monthly telephone surveillance using a standardized questionnaire to determine the distribution of risk behaviors and health practices among adults. Responses are forwarded to CDC, where the monthly data are aggregated for each state, returned with standard tabulations, and published at the year's end by each state. The BRFSS questionnaire was developed jointly by CDC's Behavioral Surveillance Branch (BSB) and the states. When combined with mortality and morbidity statistics, these data enable public health officials to establish policies and priorities and to initiate and assess health promotion strategies.
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Behavioral Risk Factor Surveillance System (BRFSS) Asthma Call-Back Survey, 2009 (ICPSR 34300)

Released/updated on: 2012-08-09
Geographic coverage: North Carolina, Oregon, Vermont, Puerto Rico, Indiana, United States, Oklahoma, Maine, Utah, Washington, Nebraska, West Virginia, Massachusetts, North Dakota, Wisconsin, Arizona, Nevada, District of Columbia, Rhode Island, Montana, Hawaii, California, Kansas, Florida, New York (state), New Jersey, Michigan, Iowa, New Mexico, Illinois, Texas, Connecticut, New Hampshire, Louisiana, Ohio, Georgia, Virginia, Maryland

Asthma is one of the nation's most common and costly chronic conditions, affecting over 38 million Americans at some time in their lives. Managing asthma requires a long term, multifaceted approach, including patient education, behavior changes, asthma trigger avoidance, pharmacological therapy, and frequent medical follow-up. This study provides asthma data available at the state and local level to direct and evaluate interventions undertaken by asthma control programs located in the state health departments. Improved tracking for asthma is critical for planning and evaluating efforts to reduce the health burden from the disease.

The Behavioral Risk Factor Surveillance System (BRFSS) is a state-based system of health surveys that collects information on health risk behaviors, preventive health practices, and health care access primarily related to chronic disease and injury. For many states, the BRFSS is the only available source of timely, accurate data on health-related behaviors. BRFSS was established in 1984 by the Centers for Disease Control and Prevention (CDC); currently data are collected monthly in all 50 states, the District of Columbia, Puerto Rico, the United States Virgin Islands, and Guam. More than 350,000 adults are interviewed each year, making the BRFSS the largest telephone health survey in the world. States use BRFSS data to identify emerging health problems, establish and track health objectives, and develop and evaluate public health policies and programs. The BRFSS is a cross-sectional telephone survey conducted by state health departments with technical and methodological assistance provided by CDC. States conduct monthly telephone surveillance using a standardized questionnaire to determine the distribution of risk behaviors and health practices among adults. Responses are forwarded to CDC, where the monthly data are aggregated for each state, returned with standard tabulations, and published at the year's end by each state. The BRFSS questionnaire was developed jointly by CDC's Behavioral Surveillance Branch (BSB) and the states. Data derived from the questionnaire provide health departments, public health officials, and policymakers with necessary behavioral information. When combined with mortality and morbidity statistics, these data enable public health officials to establish policies and priorities and to initiate and assess health promotion strategies. Demographic variables include race, age, sex, education level, marital status, employment status, and income level.

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Chicago Community Adult Health Study, 2001-2003 (ICPSR 31142)

Released/updated on: 2012-07-11
Geographic coverage: United States, Chicago, Illinois
Time period: 2001-01-01--2003-01-01

The Chicago Community Adult Health Study (CCAHS) consists of four interrelated components that were conducted simultaneously: (1) a survey of adult health on a probability sample of 3,105 Chicago adults, including direct physical measurements of their blood pressure and heart rate and of height, weight, waist and hip circumference, and leg length; (2) a biomedical supplement which collected blood and/or saliva samples on a subset of 661 survey respondents; (3) a community survey in which individuals described aspects of the social environment of all survey respondents' neighborhoods; and (4) a systematic social observation (SSO) of the blocks in which potential survey respondents resided, including a lost letter drop (Milgram et al. 1965) as an unobtrusive measure of neighborhood social capital/sense of responsibility to help others. The latter two extend a community survey and SSO of neighborhoods carried out by the Project on Human Development in Chicago Neighborhoods (PHDCN) in 1995. The adult health survey and the community survey were conducted jointly through face-to-face interviews with a stratified, multistage probability sample of 3,105 individuals aged 18 and over and living in the city of Chicago, with a response rate of 72 percent that is about the highest currently attainable in large urban areas. In addition, blood pressure, heart rate, and physical measurements (of height, weight, waist and hips, and leg length) were collected during the survey interview, and blood and saliva samples from 661 respondents or 60 percent of those doing the survey in the 80 "focal" neighborhood clusters (NCs). SSOs were conducted on 1,663 of the 1,672 city blocks on which each respondent lived. The CCAHS is the largest of five projects under the NIH-funded Michigan Interdisciplinary Center on Social Inequalities, Mind and Body Mind (#P50HD38986), one of five Mind-Body Centers funded by the National Institutes of Health in late 1999. This study will advance the understanding of socioeconomic and racial/ethnic disparities in health, a major priority of the Public Health Service and the National Institutes of Health.

The PI-supplied summary mentions that the study is comprised of four components. However, for the purposes of this data release there are three distinct datasets. Demographic variables include age, birth year, race, ethnicity, number of children in the household, number of children living elsewhere, number of times the respondent has been married, and relationship status, religious preference, and sex.

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Detroit Area Study, 1995: Social Influence on Health: Stress, Racism, and Health Protective Resources (ICPSR 3272)

Released/updated on: 2002-08-16
Geographic coverage: Detroit, United States, Michigan

This survey explored the ways in which social influences, such as stress and racism, affected health, and the impact these influences had on the respondents' outlook on life. Respondents were questioned about their health status and their exercise, smoking, sleeping, and dieting habits, as well as about diagnosed health problems and depression and their effects on daily activities. Respondents were also asked a series of questions regarding their employment status, type of job and whether it was a supervisory position, the racial makeup of their workgroup, their perceptions of their position and job, the likelihood of their finding another job, hassles experienced while at work, and whether they had any trouble balancing family and work. Another series of questions asked respondents whether they had been a victim of a serious physical attack or assault, robbery, or home burglary, if they had ever been unfairly searched, stopped, or questioned by police, why they felt they had been treated this way, and if they felt they had ever been treated unfairly by a teacher, landlord, or neighbor. Opinions were also solicited on the respondents' experience with depression and anxiety. Respondents were asked whether they felt it was possible to reach their goals, how satisfied they were with their present situation, how often they felt depressed and how long this feeling lasted, whether they lost weight or sleep due to this feeling, how this feeling of depression made them view themselves, how often and how long they were worried about things that were not likely to happen, how often they worried about non-serious things, and how they felt physically when they were anxious or depressed. Another set of questions queried respondents on alcohol and drug use. Respondents were asked how often they drank alcohol, the most they had to drink at one time, whether they had experienced any addiction to alcohol or experienced any emotional or psychological problems associated with drinking, whether they had any problem controlling their drinking, whether they had used drugs outside of a doctor's order, what types of drugs they had used, how often and in what type of situations they had used these drugs, and whether they had any addiction to the drugs. Respondents were also asked whether they had a regular doctor, whether they went to a doctor's office or clinic to seek medical attention, the last time they had gone for a checkup, how they were treated by staff at the visit, whether they trusted their doctor, the reasons why they did or did not receive medical attention, and whether they had health insurance. Respondents were also asked for their perceptions of differences between Blacks and whites, attitudes toward affirmative action with regard to employment, and their attitude toward interracial relationships. Another battery of questions queried respondents on any fears or phobias they had, such as a fear of animals, water, or visiting a doctor or dentist. Questions focused on the severity of these fears, how long they had had these fears, and how much these fears interfered in daily activities. A final set of questions gathered demographic information on respondents such as highest level of education completed, political affiliation, religious affiliation, level of religious participation, importance of religion, birth date, whether they owned their own home or rented, how much they spent on food each week, total family income for the year 1994, and the height and weight of respondents.

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Enhanced Services for the Hard-to-Employ Demonstration and Evaluation Project: Rhode Island, Working Toward Wellness (ICPSR 33782)

Released/updated on: 2013-01-21
Geographic coverage: Rhode Island, United States
Time period: 2004-01-01--2009-01-01
The Enhanced Services for the Hard-to-Employ (HtE) Demonstration and Evaluation Project was a 10-year study (taken on by the MDRC) that evaluated strategies aimed at improving employment and other outcomes for groups who face serious barriers to employment. The Enhanced Services for the Hard-to-Employ was the first comprehensive attempt to understand the diverse low-income population and to test interventions aimed at the most common barriers to this population's employment. The HtE demonstration was designed to assess ways to boost employment, reduce welfare receipt, and promote well-being in low-income populations. This study analyzed the effectiveness of the Rhode Island "Working toward Wellness" (WTW) program, a one-year program that provided telephonic care management to depressed parents receiving Medicaid in Rhode Island. The Quick Inventory of Depressive Symptomatology Self Report (QIDS-SR) questionnaire was administered to parents in order to identify those with major depression. All consenting parents who were found to have major depression were then assigned to the study. The Working Toward Wellness full research sample consisted of 499 individuals randomly assigned between November 2004 and October 2006 (245 members in the program group and 254 in the control group). The research team followed the two groups for three years using surveys. All 400 sample members completed a baseline survey at random assignment, providing basic demographic information, data on depression, other health outcomes, employment, participation in outreach programs, receipt of behavioral health services, and material hardship prior to enrollment in the study. Three follow up surveys were collected at the sixth month, eighteenth month, and thirty-sixth month marks. The WTW 6, 18, and 36 month reports include data from surveys administered to parents and children; however, only measures used in the adult/parent analysis are included due to restrictions. Care managers recorded information on attempted and completed calls with 230 members in the program group. Data was collected on respondent's general health, depression scores and treatments, substance abuse, work performance and attendance, as well as wages and income. Demographic information includes age, race, marital status, education, employment status, individual and household monthly income, as well as social security and disability status.
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Health Behavior in School-Aged Children, 1997-1998 [United States] (ICPSR 3522)

Released/updated on: 2008-04-23
Geographic coverage: United States
Time period: 1997-01-01--1998-01-01
Since 1982, the World Health Organization (WHO) Regional Office for Europe has sponsored a cross-national, school-based study of health-related attitudes and behaviors of young people. These studies, generally known as Health Behavior in School-Aged Children (HBSC), are based on independent national surveys of school-aged children in as many as 30 participating countries. The HBSC studies were conducted every four years since the 1985-1986 school year. The data available here are from the results of the United States survey conducted during the 1997-1998 school year. The study results can be used as stand-alone data, or to compare with the other countries involved in the international HBSC. The HBSC study has two main objectives. The first objective is to monitor health-risk behaviors and attitudes in youth over time to provide background data and to identify targets for health promotion initiatives. The second objective is to provide researchers with relevant information in order to understand and explain the development of health attitudes and behaviors through early adolescence. The study contains variables dealing with many types of drugs such as tobacco, alcohol, marijuana, cocaine, inhalants, hallucinogens, and over-the-counter medications. The study also examines a person's health and other health behaviors such as eating habits, body image, health problems, family make-up, feelings, bullying, fighting, bringing weapons to school, personal injuries, and opinions about school.
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Health Information National Trends Survey (HINTS), 2003 (ICPSR 24382)

Released/updated on: 2009-03-27
Geographic coverage: United States
The Health Information National Trends Survey (HINTS) collects nationally representative data about the American public's access to and use of cancer-related information. This data collection consists of the 2003 survey which focused on the changing patterns, needs, and behavior in seeking and supplying cancer information, and explored how cancer risks are perceived. A series of questions specifically addressed colon and breast cancer and respondents' familiarity with cancer screening procedures such as mammogram, colonoscopy, and the PSA test. Information was also gathered on physical and mental health status, smoking history, how often respondents ate fruits and vegetables, and whether they had health insurance. Demographic variables include sex, age, race, education level, employment status, marital status, household income, type of residential area (e.g., urban or rural), and whether respondents had children under the age of 18.
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Health Information National Trends Survey (HINTS), 2005 (ICPSR 24383)

Released/updated on: 2009-04-13
Geographic coverage: United States
The Health Information National Trends Survey (HINTS) collects nationally representative data about the American public's access to and use of cancer-related information. The 2005 HINTS survey is the second in an ongoing biannual series and provided information on the changing patterns, needs, and behavior in seeking and supplying cancer information, and explored how cancer risks are perceived. A series of questions addressed colon, lung, cervical, and breast cancer, the Human Papillomavirus (HPV), and respondents' familiarity with cancer screening procedures such as mammogram, colonoscopy, and the PSA test. Specific questions were also posed about the relationship between cancer, diet, and exercise. Information was also gathered on physical and mental health status, participation in community organizations, smoking history, how often respondents ate fruits and vegetables, and whether they had health insurance. Demographic variables include sex, age, race, education level, employment status, marital status, household income, frequency of religious attendance, number of people in the household, ownership of residence, type of residential area (e.g., urban or rural), and whether respondents were born in the United States.
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Health Information National Trends Survey (HINTS), 2007 (ICPSR 25262)

Released/updated on: 2009-06-23
Geographic coverage: United States
The Health Information National Trends Survey (HINTS) collects nationally representative data about the American public's access to and use of cancer-related information. The 2007 HINTS survey is the third in an ongoing biannual series and provides information on the changing patterns, needs, and behavior in seeking and supplying cancer information and explores how cancer risks are perceived. Respondents were asked about the ways in which they obtained health information, their use of health care services, their views about medical information and research, and their beliefs about cancer. A series of questions specifically addressed cervical cancer, colon cancer, and the Human Papillomavirus (HPV). Information was also collected on physical and mental health status, diet, physical activity, sun exposure, history of cancer, tobacco use, and whether respondents had health insurance. Demographic variables include sex, age, race, education level, employment status, marital status, household income, number of people living in the household, ownership of residence, and whether respondents were born in the United States.
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Positive Connections: Connecting HIV-Infected Patients to Care, 2004-2006 [United States] (ICPSR 22482)

Released/updated on: 2010-06-16
Geographic coverage: United States, New England
Time period: 2004-01-01--2006-01-01
The research study Positive Connections tested the Health Systems Navigation (HSN) model, an intervention linking near-peer interventionists with underserved HIV-infected individuals to assist them to become engaged and retained in HIV medical care through supportive services and facilitated referrals. Working with a core group of local AIDS service organizations to identify unstable and out-of-care HIV-positive individuals, the HSN will enroll and provide health system navigation to participants. The principal goal was to enhance the probability that individuals from historically underserved populations would become engaged and retained in high quality, culturally competent HIV care. The theoretical basis for this intervention included individual behavior change models, social and community networks, and provider cultural competence. This project also sought to improve the understanding and the measurement of health care access problems by seeking to determine which problems have indicators and which do not, and to identify steps that can be taken to develop a reliable access monitoring system. The concept of Health Systems Navigator has been developed by the Multicultural AIDS Coalition.
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Puerto Rican Elderly: Health Conditions (PREHCO) Project, 2002-2003, 2006-2007 (ICPSR 34596)

Released/updated on: 2013-09-13
Geographic coverage: Puerto Rico, United States
Time period: 2002-01-01--2007-01-01
The Puerto Rican Elderly: Health Conditions (PREHCO) study investigates issues affecting the elderly (individuals over 60 years of age) population in Puerto Rico: health status, housing arrangements, functional status, transfers, labor history, migration, income, childhood characteristics, health insurance, use of health services, marital history, mistreat, sexuality, etc. It is an island-wide, longitudinal sample survey of target individuals and their spouses with two waves of data collection: 2002-2003 and 2006-2007.
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Robert Wood Johnson Foundation Family Health Insurance Survey, 1993 (ICPSR 6894)

Released/updated on: 2005-06-22
Geographic coverage: Oregon, Vermont, New York, United States, New Mexico, Oklahoma, Colorado, Minnesota, Florida, North Dakota, Washington
Time period: 1993-01-01--1994-01-01
This survey investigated health insurance coverage, as well as access to and use of health services, in each of ten states. With the goal of remedying the previous lack of state-level data, the survey was conducted to aid in defining problems of insurance coverage and to analyze the impacts of states' policy options. The main unit of observation is the health insurance family, which includes the head, spouse, and their children up to age 18, or to age 23 if they were in school. Variables on health insurance coverage include the types of coverage respondents carried (Medicare, Medicaid, additional state or federal programs, and private policies), sources of private policy coverage, premiums paid for private policies, and number of months uninsured during the last year. Access to health care is measured by variables such as the type of usual health care provider, the amount of time it usually took to get to the doctor's office, and whether needed medical care was not received during the previous year. Variables on the utilization of health care include the number of overnight hospital stays, the number of visits to doctors, age at first DPT (diphtheria, whooping cough, and tetanus) shot, age at first oral polio immunization, and the number of months since the most recent breast exam and Pap smear. The survey also elicited self-reported health status and opinions on the health care system, gauged satisfaction/dissatisfaction with health services received, and gathered information on employment, income, education, migration, age, sex, marital status, race, Hispanic origin, and citizenship.
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Stigma and Tuberculosis in Haitian Populations: A cross-national study of the impact of stigma on patient experience and clinical outcomes in Haiti and the United States, 2003-2008 (ICPSR 30521)

Released/updated on: 2012-05-09
Geographic coverage: Haiti, United States, Florida, Tampa
Time period: 2003-01-01--2008-01-01
Tuberculosis (TB) is a public health problem of global magnitude. In the United States its victims are primarily the poor, foreign immigrants, and persons with AIDS. Efforts to control the disease are severely handicapped by the effects of social stigma and further compounded by issues of race, social class, ethnic stereotypes, immigrant status, and HIV coinfection. The study investigated the social dynamics of stigma in relation to TB in two populations particularly affected by all of these issues, Haitians in the United States and in Haiti. The theoretical framework of the study was cultural epidemiology, which combines quantitative and qualitative measures to study experience, meaning, and behavior in subpopulations of interest. The study design enabled important comparisons across national settings that highlight the differential effects of political-economic context, differences in stigma dynamics for active disease compared to latent infection, and measured the impact of stigma on adherence to preventive therapy. Study components included an ethnography of TB stigma, a cross-cultural epidemiologic study, and a community trial of adherence to preventive therapy. Study sites were South Florida, United States, and Leogane, Haiti. The study aimed to investigate: (1) differences in the degree and components of stigma across different sociocultural settings and comparison groups (community members, health care providers, patients); (2) differential stigma effects in a public vs. private, culturally competent clinic; (3) correlates of TB-related stigma; and (4) the influence of perceived stigma on adherence to latent tuberculosis therapy. Data were collected between 2003-2006 in three phases: Phase I Ethnographic Research; Phase II Cultural Epidemiologic Study; and Phase III Adherence Study. A total of 768 persons were interviewed, including 408 women (53 percent) and 360 men (47 percent). All study aims were completed with the exception of No. 2, which was not possible due to the closure of the Haitian Community Clinic in South Florida. The study consists of data from community, patient, and provider interviews. Demographic variables include sex, age, primary language, education level, employment status, marital status, and religion.
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Study of Women's Health Across the Nation (SWAN), 1998-2001: Family Medical History From Visits 02, 03, and 04 (ICPSR 30181)

Released/updated on: 2014-02-13
Geographic coverage: Inkster, Hackensack, United States, Chicago, Ypsilanti, California, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 1998-02-15--2001-06-01
The Study of Women's Health Across the Nation (SWAN) is a multisite longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers, and women learn how mid-life experiences affect health and quality of life during aging. The study is co-sponsored by the National Institute on Aging (NIA) and the National Institute of Health (NIH), Office of Research on Women's Health. The study began in 1994. Between 1998 and 2001, 2,829 of the 3,302 women that joined SWAN participated in a collection of family history data. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan); Boston, MA (Massachusetts General Hospital); Chicago, IL (Rush Presbyterian-St. Luke's Medical Center); Almeda and Contra Costa County, CA (University of California, Davis and Kaiser Permanente); Los Angeles, CA (University of California, Los Angeles); Hackensack, NJ (Hackensack University Medical Center); and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.
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Study of Women's Health Across the Nation (SWAN), 2001-2003: Visit 05 Dataset (ICPSR 30501)

Released/updated on: 2025-08-05
Geographic coverage: Inkster, Hackensack, United States, Chicago, Ypsilanti, California, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 2001-03-01--2003-02-15
The Study of Women's Health Across the Nation (SWAN), is a multisite longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers, and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. The study began in 1994. Between 2001 and 2003, 2,617 of the 3,302 women that joined SWAN were seen for their fifth follow-up visit. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan); Boston, MA (Massachusetts General Hospital); Chicago, IL (Rush Presbyterian-St. Luke's Medical Center); Alameda and Contra Costa County, CA (University of California-Davis, and Kaiser Permanente); Los Angeles, CA (University of California-Los Angeles); Hackensack, NJ (Hackensack University Medical Center); and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. Demographic and background information includes age, language of interview, marital status, household composition, and employment.
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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN), 2002-2004: Visit 06 Dataset (ICPSR 31181)

Released/updated on: 2025-06-30
Geographic coverage: Inkster, Hackensack, Contra Costa County, Alameda County, United States, Chicago, Ypsilanti, California, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 2002-03-15--2004-02-15
The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. Data were collected about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. The study began in 1994. Between 2002 and 2004, 2,448 of the 3,302 women that joined SWAN were seen for their sixth follow-up visit. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan); Boston, MA (Massachusetts General Hospital); Chicago, IL (Rush Presbyterian-St. Luke's Medical Center); Alameda and Contra Costa County, CA (University of California-Davis and Kaiser Permanente); Los Angeles, CA (University of California-Los Angeles); Hackensack, NJ (Hackensack University Medical Center); and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. Demographic and background information includes age, language of interview, marital status, household composition, and employment.
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Study of Women's Health Across the Nation (SWAN), 2003-2005: Visit 07 Dataset (ICPSR 31901)

Released/updated on: 2025-07-10
Geographic coverage: Inkster, Contra Costa County, Alameda County, United States, Chicago, Ypsilanti, California, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 2003-05-15--2005-01-31
The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. Data were collected about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. The study began in 1994. Between 2003 and 2005, 2,327 of the 3,302 women that joined SWAN were seen for their seventh follow-up visit. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan); Boston, MA (Massachusetts General Hospital); Chicago, IL (Rush Presbyterian-St. Luke's Medical Center); Alameda and Contra Costa County, CA (University of California-Davis and Kaiser Permanente); Los Angeles, CA (University of California-Los Angeles); Hackensack, NJ (Hackensack University Medical Center); and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. Though the New Jersey site was still part of the study, data was not collected from this site for the seventh visit. Demographic and background information includes age, language of interview, marital status, household composition, and employment.
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Study of Women's Health Across the Nation (SWAN), 2004-2006: Visit 08 Dataset (ICPSR 32122)

Released/updated on: 2018-11-20
Geographic coverage: Inkster, Contra Costa County, Alameda County, United States, Chicago, Ypsilanti, California, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 2004-03-15--2006-01-31
The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. Data were collected about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. The study began in 1994. Between 2004 and 2006, 2,278 of the 3,302 women that joined SWAN were seen for their eighth follow-up visit. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan); Boston, MA (Massachusetts General Hospital); Chicago, IL (Rush Presbyterian-St. Luke's Medical Center); Alameda and Contra Costa County, CA (University of California-Davis and Kaiser Permanente); Los Angeles, CA (University of California-Los Angeles); Hackensack, NJ (Hackensack University Medical Center); and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. Though the New Jersey site was still part of the study, data was not collected from this site for the eighth visit. Demographic and background information includes age, language of interview, marital status, household composition, and employment.
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Study of Women's Health Across the Nation (SWAN), 2005-2007: Visit 09 Dataset (ICPSR 32721)

Released/updated on: 2018-11-20
Geographic coverage: Inkster, Contra Costa County, Alameda County, United States, Chicago, Ypsilanti, California, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 2005-02-15--2007-01-31
The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. Data were collected about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. The study began in 1994. Between 2005 and 2007, 2,255 of the 3,302 women that joined SWAN were seen for their ninth follow-up visit. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan); Boston, MA (Massachusetts General Hospital); Chicago, IL (Rush Presbyterian-St. Luke's Medical Center); Alameda and Contra Costa County, CA (University of California-Davis and Kaiser Permanente); Los Angeles, CA (University of California-Los Angeles); Hackensack, NJ (Hackensack University Medical Center); and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. Though the New Jersey site was still part of the study, data was not collected from this site for the ninth visit. Demographic and background information includes age, language of interview, marital status, household composition, and employment.
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Study of Women's Health Across the Nation (SWAN), 2006-2008: Visit 10 Dataset (ICPSR 32961)

Released/updated on: 2018-11-15
Geographic coverage: Inkster, Hackensack, United States, Chicago, Ypsilanti, California, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 2006-02-15--2008-01-31
The Study of Women's Health Across the Nation (SWAN) is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. Data were collected about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. The study began in 1994. Between 2006 and 2008, 2,245 of the 3,302 women that joined SWAN were seen for their tenth follow-up visit. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan), Boston, MA (Massachusetts General Hospital), Chicago, IL (Rush Presbyterian-St. Luke's Medical Center), Almaeda and Contra Costa County, CA (University of California, Davis and Kaiser Permanente), Los Angeles, CA (University of California, Los Angeles), Hackensack, NJ (Hackensack University Medical Center) and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. Though the New Jersey site was still part of the study, data was not collected from this site for the tenth visit. Demographic and background information includes age, language of interview, marital status, household composition, and employment.
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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN): Baseline Dataset, [United States], 1996-1997 (ICPSR 28762)

Released/updated on: 2019-05-15
Geographic coverage: Detroit, United States, Chicago, California, Oakland, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Newark, Boston, Pittsburgh
Time period: 1996-01-01--1997-11-30

The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers, and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause.

The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 1996 and 1997, 3,302 participants joined SWAN through 7 designated research centers. The research centers are located in the following communities: Detroit, MI; Boston, MA; Chicago, IL; Oakland and Los Angeles, CA; Newark, NJ; and Pittsburgh, PA. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. This is the next phase of data collection after the original collection of the screening data (ICPSR 4368).

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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN): Cross-Sectional Screener Dataset, [United States], 1995-1997 (ICPSR 4368)

Released/updated on: 2019-03-11
Geographic coverage: Detroit, United States, Chicago, California, Oakland, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Newark, Boston, Pittsburgh
Time period: 1995-01-01--1997-01-01

This collection includes screener data collected as part of the Study of Women's Health Across the Nation (SWAN), which is a multi-site longitudinal, epidemiologic study which began in 1994 and was designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers, and women learn how mid-life experiences affect health and quality of life during aging. This data includes questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. Also included in the data are background characteristics (age, race, occupation, education, marital status, and family size).

The SWAN study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The screener dataset contains information from 16,142 women who responded to the SWAN cross-sectional screening interview during the period from 11/1/1995 through 12/1/1997 from the 7 clinical sites participating in the SWAN longitudinal study. The sites include Boston, Massachusetts, Pittsburgh, Pennsylvania, Oakland and Los Angeles, California, Detroit, Michigan, Newark, New Jersey and Chicago, Illinois. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.

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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN): Visit 01 Dataset, [United States], 1997-1999 (ICPSR 29221)

Released/updated on: 2019-05-02
Geographic coverage: Detroit, United States, Chicago, California, Oakland, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Newark, Boston, Pittsburgh
Time period: 1997-02-01--1999-01-31

The Study of Women's Health Across the Nation (SWAN) is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause.

The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 1997 and 1999, 2,881 of the 3,302 women that joined SWAN were seen for their first follow-up visit. The research centers are located in the following communities: Detroit, MI; Boston, MA; Chicago, IL; Oakland and Los Angeles, CA; Newark, NJ; and Pittsburgh, PA. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.

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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN): Visit 02 Dataset, [United States], 1998-2000 (ICPSR 29401)

Released/updated on: 2019-05-02
Geographic coverage: Detroit, United States, Chicago, California, Oakland, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Newark, Boston, Pittsburgh
Time period: 1998-02-01--2000-01-01

The Study of Women's Health Across the Nation (SWAN) is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. Also included in the data are background characteristics (age, race, occupation, education, marital status, and family size).

The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 1998 and 2000, 2,748 of the 3,302 women that joined SWAN were seen for their second follow-up visit. The research centers are located in the following communities: Boston, Massachusetts, Pittsburgh, Pennsylvania, Oakland and Los Angeles, California, Detroit, Michigan, Newark, New Jersey and Chicago, Illinois. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.

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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN): Visit 03 Dataset, [United States], 1999-2001 (ICPSR 29701)

Released/updated on: 2019-05-29
Geographic coverage: Detroit, United States, Chicago, California, Oakland, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Newark, Boston, Pittsburgh
Time period: 1999-02-01--2001-01-31

The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers, and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information.

The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 1999 and 2001, 2,710 of the 3,302 women that joined SWAN were seen for their third follow-up visit. The research centers are located in the following communities: Detroit, Michigan; Boston, Massachusetts; Chicago, Illinois; Oakland and Los Angeles, California; Newark, New Jersey; and Pittsburgh, Pennsylvania. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.

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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN): Visit 04 Dataset, [United States], 2000-2002 (ICPSR 30142)

Released/updated on: 2019-05-15
Geographic coverage: Detroit, United States, Chicago, California, Oakland, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Newark, Boston, Pittsburgh
Time period: 2000-03-01--2002-01-31

The Study of Women's Health Across the Nation (SWAN) is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause.

The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 2000 and 2002, 2,679 of the 3,302 women that joined SWAN were seen for their second follow-up visit. The research centers are located in the following communities: Boston, Massachusetts, Pittsburgh, Pennsylvania, Oakland and Los Angeles, California, Detroit, Michigan, Newark, New Jersey and Chicago, Illinois. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.

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Simple Crosstabs

Survey of Health Services Utilization and Expenditures, 1963 (ICPSR 7741)

Released/updated on: 2015-05-27
Geographic coverage: United States
This survey is concerned with trends in the use of health services and the expenditures made for these services. One or more members of selected families provided information regarding use of health services, the cost of these services, and how this cost was met for the calendar year 1963. Information on health attitudes and beliefs was also collected for the head of each household (or spouse). In addition, data were gathered from hospitals, employers, and insuring organizations concerning hospitalizations and insurance coverage reported in the family interviews. These data were then combined with family reports to achieve the best possible estimates for hospitalization and health insurance coverage variables. Data are supplied at the individual level and are broken down by age, income, race and residence.
Curated

Survey of Health Services Utilization and Expenditures, 1970 (ICPSR 7740)

Released/updated on: 1992-02-16
Geographic coverage: United States
This national survey was conducted to compare health services utilization and expenditures in 1970 with results of similar studies done in 1953, 1958, and 1964. In the survey, respondents from 3,763 families plus additional older individuals -- a total of 11,619 persons -- were interviewed in 1971. One or more persons in each family provided information regarding use of health services, the cost of such services, and how these costs were met for the calendar year 1970. Information was also collected on perceptions of illness and health, attitudes and opinions about medical care in the United States, and health beliefs. An attempt was made to verify all hospital admissions, physician visits, and insurance reports and claims. These verifications had two purposes: first, to determine if the reported care was, in fact, provided during the survey year, and second, to elicit more precise information than the families were likely to give on diagnoses, costs, kinds of treatment, and sources of payment for services. Verification data were obtained for over 90 percent of the hospital admissions and for two-thirds of the physician visits. Demographic data were also collected, including age, sex, race, education, occupation, income, and place of residence.