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Curated

ABC News Hurricane Katrina Anniversary Poll, August 2006 (ICPSR 4664)

Released/updated on: 2007-12-18
Geographic coverage: Mississippi, United States, Louisiana, New Orleans, Alabama
Time period: 2006-08-01--2006-08-31
This special topic poll, conducted August 14-20, 2006, is part of a continuing series of monthly polls that solicit public opinion on various political and social issues. The focus of this data collection was on the one-year anniversary of Hurricane Katrina. Part 1, FEMA Counties, contains data from a sample of 501 adults living in counties in Louisiana, Mississippi, and Alabama that were designated as Hurricane Katrina disaster areas. Part 2, Orleans Parish Including Oversamples, contains data on respondents living in Orleans Parish, Louisiana, including oversamples of 160 respondents contacted via landline telephones, and 120 respondents contacted via cell phones. Respondents were asked to rate the recovery efforts of federal, state, and local governments with respect to Hurricane Katrina, and how much trust and confidence they had in the federal government and the Federal Emergency Management Agency's (FEMA) ability to respond to another disaster. Opinions were collected on whether Hurricane Katrina was the result of global climate change or just a severe weather event. Information was collected about the damage caused to respondents' residence and personal property, as well as the severity of the damage, how much of the losses were insured, and whether recovery had already occurred. Respondents were asked to rate the impact Hurricane Katrina had had on their life, whether they suffered a long-term negative impact on their finances, health, and emotional well-being, and whether any friends or family members were seriously injured or killed as as a result of the hurricane. A series of questions asked respondents to rate the job of groups involved with assisting recovery, such as the the United States Small Business Administration, state relief agencies, and insurance companies. Views were sought concerning whether respondents' trust in the government and fellow man was affected by the hurricane, how much they worried about another hurricane occurring, and how much extra stress was created by the possibility of another hurricane. Additional topics addressed whether race and poverty affected the recovery effort, and whether problems with the relief effort were an indication of racial inequality in the United States. Demographic variables include sex, age, race, education level, household income, political party affiliation, political philosophy, employment status, marital status, and type of residential area (e.g., urban or rural).
Curated

American National Election Studies: 2006 ANES Pilot Study (ICPSR 21440)

Released/updated on: 2008-11-17
Geographic coverage: United States
Time period: 2006-01-01--2006-12-31
In the fall of 2006 the American National Election Studies (ANES) carried out a pilot study after the 2006 mid-term elections in the United States. The 2006 ANES Pilot Study was conducted for the purpose of testing new questions and conducting methodological research to inform the design of future ANES studies. As such, it is not considered part of the ANES time series that has been conducted since 1948, and the pilot study only includes time series questions necessary to evaluate the new content. The election studies are designed to present data on Americans' social backgrounds, enduring political predispositions, social and political values, perceptions and evaluations of groups and candidates, opinions on questions of public policy, and participation in political life. This full release dataset contains all 675 interviews, with the survey portion of the interview lasting just over 37 minutes on average. The study had a re-interview rate of 56.25 percent. Respondents were asked questions over a variety of topics. They were queried on need for closure in various situations including unpredictable ones, how fast important decisions were made, and how often they could see that both people can be right when in disagreement. Respondents were asked many questions pertaining to their values. Some questions dealt with optimism and pessimism. Respondents were asked if they felt that were generally optimistic, pessimistic, or neither in regard to the future. They were asked specifically how they felt about the future of the United States. Respondents were also asked about their social networks, about who they talked to in the last six months, and how close they felt to them. Respondents were further queried about how many days in the last six months they talked to these people, their political views, interest in politics, and the amount of time it would take to drive to their homes. Other questions sought respondents' political attitudes including attentiveness to following politics, ambivalence, efficacy, and trust in government. Respondents were asked questions related to the media such as how much time and how many days during a typical week they watched or read news on the Internet, newspaper, radio, or television. Questions that dealt with abortion consisted of giving respondents various scenarios and asking if they favored or opposed it being legal for the women to have an abortion in that circumstance. The issue of justice was also included by asking respondents what percent of people of different backgrounds who are suspected of committing a crime in America are treated fairly. Respondents were also asked to give their opinion on gender in politics, specifically, whether gender played a role in how the respondent would vote for various political offices. Respondents were also queried on whether they would vote for Bill Clinton or George W. Bush and whether they had voted in the elections in November. Respondents were also asked if they approved of the way George W. Bush was handling his job as president, the way he was handling relations with foreign countries, and the way he was dealing with terrorism. Respondents were also asked how upsetting the thought of their own death was, and how likely it was that a majority of all people on Earth would die at once during the next 100 years because of a single event. Demographic variables include age, party affiliation, sex, religious preference, and political party affiliation.
Curated
Simple Crosstabs

Community Health Center: Core Data Project, 2001-2002 [United States] (ICPSR 21520)

Released/updated on: 2023-12-13
Geographic coverage: Vermont, Rhode Island, Massachusetts, Maine, Connecticut, New Hampshire
Time period: 2001-01-01--2002-12-31
A survey was administered to any patient that presented for services at a health center between 2001 and 2002. Patients were asked to complete a brief survey with questions relating to demographic, relationship status, reason for choosing this health center, mental health status, and abuse history.
Curated

Detroit Area Study, 1985: Life Events in Everyday Experience (ICPSR 6414)

Released/updated on: 2010-08-20
Geographic coverage: Detroit, United States, Michigan
Time period: 1985-01-01--1985-12-31

The 1985 Detroit Area Study surveyed life events of respondents. Questions addressed alcohol and drug use, emotional state, incidents of depression and fear, stress caused by children and work, and respondent's general health. Information on the respondent's family background was also collected, with specific emphases on children, parenting, and marriage. Gender comparison questions were posed to explore in detail issues such as the benefits/responsibilities of marriage, marriage roles and careers, and division of housework tasks. The survey also included items on the respondent's financial situation, social life, social support network, and demographic characteristics such as age, race, sex, education, religion, and income.

Curated

Detroit Area Study, 1993: Health and Aging (ICPSR 2839)

Released/updated on: 2001-03-26
Geographic coverage: Detroit, United States, Michigan
Time period: 1993-01-01--1993-12-31

The 1993 Detroit Area Study explored a variety of issues related to health, the effects of aging, living conditions, and participation in civic life in the Michigan tri-county area of Wayne, Oakland, and Macomb counties. A battery of questions probed respondents' perceptions of their health and mental state and those of their spouse, their ability to perform certain physical and mental activities, and the effect of their emotional state on their appetite and sleeping patterns. Other explored their feelings about neighborhood safety, means of transportation, relationships, accommodation, the portrayal of older people on television programs, and the treatment of older people by employers. The survey also sought respondents' opinions about government, their personal financial situation and problems, money management, savings and investments, and their life as a whole. Additional items questioned respondents about the frequency of their visits to the doctor, overnight hospitalization, chronic health conditions, smoking and drinking habits, and medical coverage, as well as electoral participation, political party preference, ideological leanings, class self-identification, assistance received from community organizations, family, and friends, personal regrets, and time spent watching television and engaging in pleasurable activities. Other questions gauged respondents' memory, vision, and motor skills. Respondents also provided demographic information on sex, age, marital status, race, ethnicity, religion, and education.

Curated

Detroit Area Study, 2003: Information and Values in Today's Society (ICPSR 22630)

Released/updated on: 2008-09-26
Geographic coverage: Detroit, United States, Michigan
Time period: 2003-01-01--2003-12-31

For this survey, respondents from three counties in the Detroit, Michigan, area were queried about how they received and used information in their daily lives and how they viewed other people, groups, and institutions. Respondents were asked about their activities during the previous 12 months, the work they did, and about some things they or someone in their household may have experienced because of their race, ethnicity, or religion. Respondents were also asked for their opinions about American news coverage, helping children grow up, and what the aims of this country should be for the next ten years. In addition, questions addressed respondents' feelings and thoughts during the past 12 months about world events and the terrorist attacks on September 11, 2001. Demographic information includes age, sex, marital status, income, education, national origin, employment status, and household composition.

Curated

Filipino American Community Epidemiological Study (FACES), 1995-1999 (ICPSR 29262)

Released/updated on: 2011-08-08
Geographic coverage: San Francisco, United States, Honolulu, Hawaii, California
Time period: 1995-01-01--1999-12-31
The Filipino American Community Epidemiological Study (FACES) is a research project of Asian American Recovery Services, Inc. of San Francisco, California. The four-year study, whose formal title is Alcohol-Related Problems among Filipino Americans, was concluded in 1999. It provides information and data about the health of Filipino Americans of the San Francisco Bay Area and the City and County of Honolulu. The interview asked randomly chosen Filipino American respondents in these two geographic areas about their health, alcohol consumption, mood state, physical symptoms, cultural background and sociodemographic information. The purpose of FACES was to study alcohol and stress-related behaviors of Filipino Americans. Demographic variables include gender, age, race, education level, marital status, household income, military service, and religious preference.
Curated
Restricted

Hurricane Katrina Community Advisory Group Study [United States] (ICPSR 22325)

Released/updated on: 2010-06-10
Geographic coverage: Mississippi, United States, Louisiana, New Orleans, Alabama
Time period: 2006-01-01--2006-12-31
Hurricane Katrina was the most destructive and costliest natural disaster to occur in the United States. Nearly 5 million people lived in the path of Katrina. An additional 1.3 million lived in the New Orleans metropolitan area at the time of the hurricane. Although not in the direct path of Katrina, New Orleans was devastated by a massive flood that occurred as a result. The purpose of this study is to inform policy-makers of the impact of Hurricane Katrina on survivors' physical and mental health and barriers to treatment, as well as assist in future natural disaster planning efforts. This will be achieved by monitoring, over time, a group of people who represent those affected by Katrina. The Hurricane Katrina Community Advisory Group consists of a broad cross-section of people affected by Katrina, including separate samples of people who resided in the New Orleans metropolitan area at the time of the hurricane and those who resided in the counties or parishes of Alabama, Louisiana, and Mississippi that were in the path of the hurricane. Follow-up interviews conducted with the Advisory Group members to monitor the pace of recovery, as well as reports prepared for policy-makers, press releases, and digitally recorded oral histories are being posted on the Hurricane Katrina Community Advisory Group Web site as they become available. Demographic variables include gender, age, race, ethnicity, pre-hurricane residence (place), pre-hurricane type of housing (detached home, mobile home, apartment, etc.), pre-hurricane employment, family income, marital status, education, home ownership (owned with mortgage, owned without mortgage, rented, etc.), where the respondent lived at time of interview, religious preference, and religiosity.
Curated

Mental Health Concerns of Gay and Bisexual Men Seeking Mental Health Services, 2000 [United States] (ICPSR 22121)

Released/updated on: 2010-06-17
Geographic coverage: United States, New England
Time period: 2000-01-01--2000-06-30
This retrospective chart review was conducted on gay and bisexual men who presented for a mental health intake at a health center between January 2000 and June 2000 during which time intake procedures and assessments remained the same. Mental health intakes consisted of one- to three-hour clinical interviews conducted by psychologists and clinical social workers, who determined treatment recommendations and assignments. Current presenting problem(s) and history of them; prior medical, mental health and substance abuse treatment; current symptoms; areas of impaired functioning; and abuse history were included. Because mental health is a key component of overall quality of life, mental health providers who work with MSM can use these data to increase awareness of the types of mental concerns that are most distressing to this population.
Curated

National Health and Nutrition Examination Survey II, 1976-1980: Behavioral Questionnaire, Ages 25-74 Years (ICPSR 9552)

Released/updated on: 1992-02-17
Geographic coverage: United States
Time period: 1976-01-01--1980-12-31
This dataset from the National Health and Examination Survey II (NHANES II) features supplemental variables on personality and activity-level behaviors that may be related to coronary heart disease. Additionally, demographic variables and sampling weights are included in the file. The Demographic Section is divided into four parts: residence data, sample person data, household data, and head of household data. The residence data include information on where the respondent lives, size of place, and total number of persons in the household and/or family. Variables in the sample person data cover age, birth date, sex, race, state of birth, marital status, national origin or ancestry, educational status, and job- and work-related questions. Household data are concerned with characteristics such as total number of rooms in the residence, number of bedrooms, type of kitchen facilities, whether there are running water facilities in the household, and type of heating and cooling systems. Additional household variables offer information on transportation, the languages spoken in the household, and income for the past year. The head of household data include items such as head's age at interview, birth date, sex, race, state of birth, marital status, ancestry, education status, work status, and military service history. The Sample Weight Section provides appropriate adjustments to be used in making population estimates for the examined sample ages 25-74 as a whole, for the portion of the sample who had the medical history interview only, for those that had specific laboratory tests, for specific age/sex/race strata, and for poverty/nonpoverty status. The final section, variables from the Behavior Questionnaire, includes the 19-item Jenkins Activity Survey (1965 version), which elicits information on the sample respondent's perceptions of his or her own tendencies to be hard-driving, impatient, pressured by time, irritated, and competitive. Ten other questions were asked on amount and frequency of physical activity.
Curated

National Health and Nutrition Examination Survey (NHANES), 1999-2000 (ICPSR 25501)

Released/updated on: 2012-02-22
Geographic coverage: United States
Time period: 1999-01-01--2000-12-31
The National Health and Nutrition Examination Surveys (NHANES) is a program of studies designed to assess the health and nutritional status of adults and children in the United States. The NHANES combines personal interviews and physical examinations, which focus on different population groups or health topics. These surveys have been conducted by the National Center for Health Statistics (NCHS) on a periodic basis from 1971 to 1994. In 1999 the NHANES became a continuous program with a changing focus on a variety of health and nutrition measurements which were designed to meet current and emerging concerns. The surveys examine a nationally representative sample of approximately 5,000 persons each year. These persons are located in counties across the United States, 15 of which are visited each year. The 1999-2000 NHANES contains data for 9,965 individuals (and MEC examined sample size of 9,282) of all ages. Many questions that were asked in NHANES II, 1976-1980, Hispanic HANES 1982-1984, and NHANES III, 1988-1994, were combined with new questions in the NHANES 1999-2000. The 1999-2000 NHANES collected data on the prevalence of selected chronic conditions and diseases in the population and estimates for previously undiagnosed conditions, as well as those known to and reported by respondents. Risk factors, those aspects of a person's lifestyle, constitution, heredity, or environment that may increase the chances of developing a certain disease or condition, were examined. Data on smoking, alcohol consumption, sexual practices, drug use, physical fitness and activity, weight, and dietary intake were collected. Information on certain aspects of reproductive health, such as use of oral contraceptives and breastfeeding practices, were also collected. The interview includes demographic, socioeconomic, dietary, and health-related questions. The examination component consists of medical, dental, and physiological measurements, as well as laboratory tests. Demographic data file variables are grouped into three broad categories: (1) Status Variables: Provide core information on the survey participant. Examples of the core variables include interview status, examination status, and sequence number. (Sequence number is a unique ID assigned to each sample person and is required to match the information on this demographic file to the rest of the NHANES 1999-2000 data). (2) Recoded Demographic Variables: The variables include age (age in months for persons through age 19 years, 11 months; age in years for 1-84 year olds, and a top-coded age group of 85+ years), gender, a race/ethnicity variable, an education variable (high school, and more than high school education), country of birth (United States, Mexico, or other foreign born), and pregnancy status variable. Some of the groupings were made due to limited sample sizes for the two-year dataset. (3) Interview and Examination Sample Weight Variables: Sample weights are available for analyzing NHANES 1999-2000 data. For a complete listing of survey contents for all years of the NHANES see the document -- Survey Content -- NHANES 1999-2010.
Curated

National Health and Nutrition Examination Survey (NHANES), 2001-2002 (ICPSR 25502)

Released/updated on: 2012-02-22
Geographic coverage: United States
Time period: 2001-01-01--2002-12-31
The National Health and Nutrition Examination Surveys (NHANES) is a program of studies designed to assess the health and nutritional status of adults and children in the United States. The NHANES combines personal interviews and physical examinations, which focus on different population groups or health topics. These surveys have been conducted by the National Center for Health Statistics (NCHS) on a periodic basis from 1971 to 1994. In 1999 the NHANES became a continuous program with a changing focus on a variety of health and nutrition measurements which were designed to meet current and emerging concerns. The surveys examine a nationally representative sample of approximately 5,000 persons each year. These persons are located in counties across the United States, 15 of which are visited each year. The 2001-2002 NHANES contains data for 11,039 individuals (and MEC examined sample size of 10,477) of all ages. Many questions that were asked in NHANES II, 1976-1980, Hispanic HANES 1982-1984, and NHANES III, 1988-1994, were combined with new questions in the NHANES 2001-2002. As in past health examination surveys, data were collected on the prevalence of chronic conditions in the population. Estimates for previously undiagnosed conditions, as well as those known to and reported by survey respondents, are produced through the survey. Risk factors, those aspects of a person's lifestyle, constitution, heredity, or environment that may increase the chances of developing a certain disease or condition, were examined. Data on smoking, alcohol consumption, sexual practices, drug use, physical fitness and activity, weight, and dietary intake were collected. Information on certain aspects of reproductive health, such as use of oral contraceptives and breastfeeding practices, were also collected. The diseases, medical conditions, and health indicators that were studied include: anemia, cardiovascular disease, diabetes and lower extremity disease, environmental exposures, equilibrium, hearing loss, infectious diseases and immunization, kidney disease, mental health and cognitive functioning, nutrition, obesity, oral health, osteoporosis, physical fitness and physical functioning, reproductive history and sexual behavior, respiratory disease (asthma, chronic bronchitis, emphysema), sexually transmitted diseases, skin diseases, and vision. The sample for the survey was selected to represent the United States population of all ages. Special emphasis in the 2001-2002 NHANES was on adolescent health and the health of older Americans. To produce reliable statistics for these groups, adolescents aged 15-19 years and persons aged 60 years and older were over-sampled for the survey. African Americans and Mexican Americans were also over-sampled to enable accurate estimates for these groups. Several important areas in adolescent health, including nutrition and fitness and other aspects of growth and development, were addressed. Since the United States has experienced dramatic growth in the number of older people during the twentieth century, the aging population has major implications for health care needs, public policy, and research priorities. NCHS is working with public health agencies to increase the knowledge of the health status of older Americans. NHANES has a primary role in this endeavor. In the examination, all participants visit the physician who takes their pulse or blood pressure. Dietary interviews and body measurements are included for everyone. All but the very young have a blood sample taken and see the dentist. Depending upon the age of the participant, the rest of the examination includes tests and procedures to assess the various aspects of health listed above. Usually, the older the individual, the more extensive the examination. Some persons who are unable to come to the examination center may be given a less extensive examination in their homes. Demographic data file variables are grouped into three broad categories: (1) Status Variables: provide core information on the survey participant. Examples of the core variables include interview status, examination status, and sequence number. (Sequence number is a unique ID assigned to each sample person and is required to match the information on this demographic file to the rest of the NHANES 2001-2002 data). (2) Recoded Demographic Variables: these variables include age (age in months for persons through age 19 years, 11 months; age in years for 1-84 year olds, and a top-coded age group of 85 years of age and older), gender, a race/ethnicity variable, current or highest grade of education completed, (less than high school, high school, and more than high school education), country of birth (United States, Mexico, or other foreign born), Poverty Income Ratio (PIR), income, and a pregnancy status variable (adjudicated from various pregnancy related variables). Some of the groupings were made due to limited sample sizes for the two-year data set. (3) Interview and Examination Sample Weight Variables: sample weights are available for analyzing NHANES 2001-2002 data. For a complete listing of survey contents for all years of the NHANES see the document -- Survey Content -- NHANES 1999-2010.
Curated

National Health and Nutrition Examination Survey (NHANES), 2003-2004 (ICPSR 25503)

Released/updated on: 2016-07-11
Geographic coverage: United States
Time period: 2003-01-01--2004-12-31

The National Health and Nutrition Examination Surveys (NHANES) is a program of studies designed to assess the health and nutritional status of adults and children in the United States. The NHANES combines personal interviews and physical examinations, which focus on different population groups or health topics. These surveys have been conducted by the National Center for Health Statistics (NCHS) on a periodic basis from 1971 to 1994. In 1999 the NHANES became a continuous program with a changing focus on a variety of health and nutrition measurements which were designed to meet current and emerging concerns. The surveys examine a nationally representative sample of approximately 5,000 persons each year. These persons are located in counties across the United States, 15 of which are visited each year.

For NHANES 2003-2004, there were 12,761 persons selected for the sample, 10,122 of those were interviewed (79.3 percent) and 9,643 (75.6 percent) were examined in the mobile examination centers (MEC). Many of the NHANES 2003-2004 questions were also asked in NHANES II 1976-1980, Hispanic HANES 1982-1984, NHANES III 1988-1994, and NHANES 1999-2002. New questions were added to the survey based on recommendations from survey collaborators, NCHS staff, and other interagency work groups. As in past health examination surveys, data were collected on the prevalence of chronic conditions in the population. Estimates for previously undiagnosed conditions, as well as those known to and reported by survey respondents, are produced through the survey. Risk factors, those aspects of a person's lifestyle, constitution, heredity, or environment that may increase the chances of developing a certain disease or condition, were examined. Data on smoking, alcohol consumption, sexual practices, drug use, physical fitness and activity, weight, and dietary intake were collected. Information on certain aspects of reproductive health, such as use of oral contraceptives and breastfeeding practices, were also collected. The diseases, medical conditions, and health indicators that were studied include: anemia, cardiovascular disease, diabetes and lower extremity disease, environmental exposures, equilibrium, hearing loss, infectious diseases and immunization, kidney disease, mental health and cognitive functioning, nutrition, obesity, oral health, osteoporosis, physical fitness and physical functioning, reproductive history and sexual behavior, respiratory disease (asthma, chronic bronchitis, emphysema), sexually transmitted diseases, skin diseases, and vision. The sample for the survey was selected to represent the United States population of all ages. Special emphasis in the 2003-2004 NHANES was on adolescent health and the health of older Americans. To produce reliable statistics for these groups, adolescents aged 15-19 years and persons aged 60 years and older were over-sampled for the survey. African Americans and Mexican Americans were also over-sampled to enable accurate estimates for these groups. Several important areas in adolescent health, including nutrition and fitness and other aspects of growth and development, were addressed. Since the United States has experienced dramatic growth in the number of older people during the twentieth century, the aging population has major implications for health care needs, public policy, and research priorities. NCHS is working with public health agencies to increase the knowledge of the health status of older Americans. NHANES has a primary role in this endeavor. In the examination, all participants visit the physician who takes their pulse or blood pressure. Dietary interviews and body measurements are included for everyone. All but the very young have a blood sample taken and see the dentist. Depending upon the age of the participant, the rest of the examination includes tests and procedures to assess the various aspects of health listed above. Usually, the older the individual, the more extensive the examination. Some persons who are unable or unwilling to come to the examination center may be given a less extensive examination in their homes.

Demographic data file variables are grouped into three broad categories: (1) Status Variables: provide core information on the survey participant. Examples of the core variables include interview status, examination status, and sequence number. (Sequence number is a unique ID assigned to each sample person and is required to match the information on this demographic file to the rest of the NHANES 2003-2004 data). (2) Recoded Demographic Variables: these variables include age (age in months for persons through age 19 years, 11 months; age in years for 1- to 84-year-olds, and a top-coded age group of 85 years of age and older), gender, a race/ethnicity variable, current or highest grade of education completed, (less than high school, high school, and more than high school education), country of birth (United States, Mexico, or other foreign born), Poverty Income Ratio (PIR), income, and a pregnancy status variable (adjudicated from various pregnancy related variables). Some of the groupings were made due to limited sample sizes for the two-year data set. (3) Interview and Examination Sample Weight Variables: sample weights are available for analyzing NHANES 2003-2004 data. For a complete listing of survey contents for all years of the NHANES see the document -- Survey Content -- NHANES 1999-2010.

Curated

National Health and Nutrition Examination Survey (NHANES), 2005-2006 (ICPSR 25504)

Released/updated on: 2012-02-22
Geographic coverage: United States
Time period: 2005-01-01--2006-12-31
The National Health and Nutrition Examination Surveys (NHANES) is a program of studies designed to assess the health and nutritional status of adults and children in the United States. The NHANES combines personal interviews and physical examinations, which focus on different population groups or health topics. These surveys have been conducted by the National Center for Health Statistics (NCHS) on a periodic basis from 1971 to 1994. In 1999 the NHANES became a continuous program with a changing focus on a variety of health and nutrition measurements which were designed to meet current and emerging concerns. The surveys examine a nationally representative sample of approximately 5,000 persons each year. These persons are located in counties across the United States, 15 of which are visited each year. For NHANES 2005-2006, there were 10,348 persons selected for the sample, 10,122 of those were interviewed (79.3 percent) and 9,643 (75.6 percent) were examined in the mobile examination centers (MEC). Many of the NHANES 2005-2006 questions were also asked in NHANES II 1976-1980, Hispanic HANES 1982-1984, NHANES III 1988-1994, and NHANES 1999-2004. New questions were added to the survey based on recommendations from survey collaborators, NCHS staff, and other interagency work groups. As in past health examination surveys, data were collected on the prevalence of chronic conditions in the population. Estimates for previously undiagnosed conditions, as well as those known to and reported by survey respondents, are produced through the survey. Risk factors, those aspects of a person's lifestyle, constitution, heredity, or environment that may increase the chances of developing a certain disease or condition, were examined. Data on smoking, alcohol consumption, sexual practices, drug use, physical fitness and activity, weight, and dietary intake were collected. Information on certain aspects of reproductive health, such as use of oral contraceptives and breastfeeding practices, were also collected. The diseases, medical conditions, and health indicators that were studied include: anemia, cardiovascular disease, diabetes and lower extremity disease, environmental exposures, equilibrium, hearing loss, infectious diseases and immunization, kidney disease, mental health and cognitive functioning, nutrition, obesity, oral health, osteoporosis, physical fitness and physical functioning, reproductive history and sexual behavior, respiratory disease (asthma, chronic bronchitis, emphysema), sexually transmitted diseases, skin diseases, and vision. The sample for the survey was selected to represent the United States population of all ages. Special emphasis in the 2005-2006 NHANES was on adolescent health and the health of older Americans. To produce reliable statistics for these groups, adolescents aged 15-19 years and persons aged 60 years and older were over-sampled for the survey. African Americans and Mexican Americans were also over-sampled to enable accurate estimates for these groups. Several important areas in adolescent health, including nutrition and fitness and other aspects of growth and development, were addressed. Since the United States has experienced dramatic growth in the number of older people during the twentieth century, the aging population has major implications for health care needs, public policy, and research priorities. NCHS is working with public health agencies to increase the knowledge of the health status of older Americans. NHANES has a primary role in this endeavor. In the examination, all participants visit the physician who takes their pulse or blood pressure. Dietary interviews and body measurements are included for everyone. All but the very young have a blood sample taken and see the dentist. Depending upon the age of the participant, the rest of the examination includes tests and procedures to assess the various aspects of health listed above. Usually, the older the individual, the more extensive the examination. Some persons who are unable or unwilling to come to the examination center may be given a less extensive examination in their homes. Demographic data file variables are grouped into three broad categories: (1) Status Variables: provide core information on the survey participant. Examples of the core variables include interview status, examination status, and sequence number. (Sequence number is a unique ID assigned to each sample person and is required to match the information on this demographic file to the rest of the NHANES 2005-2006 data). (2) Recoded Demographic Variables: these variables include age (age in months for persons through age 19 years, 11 months; age in years for 1- to 84-year-olds, and a top-coded age group of 85 years of age and older), gender, a race/ethnicity variable, current or highest grade of education completed, (less than high school, high school, and more than high school education), country of birth (United States, Mexico, or other foreign born), Poverty Income Ratio (PIR), income, and a pregnancy status variable (adjudicated from various pregnancy related variables). Some of the groupings were made due to limited sample sizes for the two-year dataset. (3) Interview and Examination Sample Weight Variables: sample weights are available for analyzing NHANES 2005-2006 data. For a complete listing of survey contents for all years of the NHANES see the document -- Survey Content -- NHANES 1999-2010.
Curated

National Health and Nutrition Examination Survey (NHANES), 2007-2008 (ICPSR 25505)

Released/updated on: 2012-02-22
Geographic coverage: United States
Time period: 2007-01-01--2008-12-31
The National Health and Nutrition Examination Surveys (NHANES) is a program of studies designed to assess the health and nutritional status of adults and children in the United States. The NHANES combines personal interviews and physical examinations, which focus on different population groups or health topics. These surveys have been conducted by the National Center for Health Statistics (NCHS) on a periodic basis from 1971 to 1994. In 1999 the NHANES became a continuous program with a changing focus on a variety of health and nutrition measurements which were designed to meet current and emerging concerns. The surveys examine a nationally representative sample of approximately 5,000 persons each year. These persons are located in counties across the United States, 15 of which are visited each year. For NHANES 2007-2008, there were 12,946 persons selected for the sample, 10,149 of those were interviewed (78.4 percent) and 9,762 (75.4 percent) were examined in the mobile examination centers (MEC). Many of the NHANES 2007-2008 questions were also asked in NHANES II 1976-1980, Hispanic HANES 1982-1984, NHANES III 1988-1994, and NHANES 1999-2006. New questions were added to the survey based on recommendations from survey collaborators, NCHS staff, and other interagency work groups. As in past health examination surveys, data were collected on the prevalence of chronic conditions in the population. Estimates for previously undiagnosed conditions, as well as those known to and reported by survey respondents, are produced through the survey. Risk factors, those aspects of a person's lifestyle, constitution, heredity, or environment that may increase the chances of developing a certain disease or condition, were examined. Data on smoking, alcohol consumption, sexual practices, drug use, physical fitness and activity, weight, and dietary intake were collected. Information on certain aspects of reproductive health, such as use of oral contraceptives and breastfeeding practices, were also collected. The diseases, medical conditions, and health indicators that were studied include: anemia, cardiovascular disease, diabetes and lower extremity disease, environmental exposures, equilibrium, hearing loss, infectious diseases and immunization, kidney disease, mental health and cognitive functioning, nutrition, obesity, oral health, osteoporosis, physical fitness and physical functioning, reproductive history and sexual behavior, respiratory disease (asthma, chronic bronchitis, emphysema), sexually transmitted diseases, skin diseases, and vision. The sample for the survey was selected to represent the United States population of all ages. The NHANES target population is the civilian, noninstitutionalized United States population. Beginning in 2007, some changes were made to the domains being oversampled. The primary change is the oversampling of the entire Hispanic population instead of just the Mexican American (MA) population, which has been oversampled since 1988. Sufficient numbers of MAs were retained in the sample design so that trends in the health of MAs can continue to be monitored. Persons 60 years of age and older, Blacks, and low income persons were also oversampled. In addition, for each of the race/ethnicity domains, the 12-15 and 16-19 year age domains were combined and the 40-59 year age minority domains were split into 10-year age domains of 40-49 and 50-59. This has led to an increase in the number of participants aged 40 and older and a decrease in 12- to 19-year-olds from previous cycles. The oversample of pregnant women and adolescents in the survey from 1999-2006 was discontinued to allow for the oversampling of the Hispanic population. NCHS is working with public health agencies to increase knowledge of the health status of older Americans. NHANES has a primary role in this endeavor. In the examination, all participants visit the physician who takes their pulse or blood pressure. Dietary interviews and body measurements are included for everyone. All but the very young have a blood sample taken and see the dentist. Depending upon the age of the participant, the rest of the examination includes tests and procedures to assess the various aspects of health listed above. Usually, the older the individual, the more extensive the examination. Demographic data file variables are grouped into three broad categories: (1) Status Variables: Provide core information on the survey participant. Examples of the core variables include interview status, examination status, and sequence number. (Sequence number [SEQN] is a unique ID number assigned to each sample person and is required to match the information on this demographic file to the rest of the NHANES 2007-2008 data.) (2) Recoded Demographic Variables: The variables include age (age in months for persons under age 80, age in years for 1 to 80-year-olds, and a top-coded age group of 80 years and older), gender, a race/ethnicity variable, an current or highest grade of education completed, (less than high school, high school, and more than high school education), country of birth (United States, Mexico, or other foreign born), ratio of family income to poverty threshold, income, and a pregnancy status variable (adjudicated from various pregnancy-related variables). Some of the groupings were made due to limited sample sizes for the two-year dataset. (3) Interview and Examination Sample Weight Variables: Sample weights are available for analyzing NHANES 2007-2008 data. Most data analyses require either the interviewed sample weight (variable name: WTINT2YR) or examined sample weight (variable name: WTMEC2YR). The two-year sample weights (WTINT2YR, WTMEC2YR) should be used for NHANES 2007-2008 analyses.
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New York City Health and Nutrition Examination Survey (NYC HANES), 2004 (ICPSR 31421)

Released/updated on: 2011-11-03
Geographic coverage: New York City, United States, New York (state)
Time period: 2004-06-02--2004-12-19
The New York City Department of Health and Mental Hygiene, with support from the National Center for Health Statistics, conducted the New York City Health and Nutrition Examination Survey (NYC HANES) to improve disease surveillance and establish citywide estimates for several previously unmeasured health conditions from which reduction targets could be set and incorporated into health policy planning initiatives. NYC HANES also provides important new information about the prevalence and control of chronic disease precursors, such as undiagnosed hypertension, hypercholesterolemia, and impaired fasting glucose, which allow chronic disease programs to monitor more proximate health events and rapidly evaluate primary intervention efforts. Study findings are used by the public health community in New York City, as well as by researchers and clinicians, to better target resources to the health needs of the population. The NYC HANES data consist of the following six datasets: (1) Study Participant File (SPfile), (2) Computer-Assisted Personal Interview (CAPI), (3) Audio Computer-Assisted Self-Interview (ACASI), (4) Composite International Diagnostic Interview(CIDI), (5) Examination Component, and (6) Laboratory Component. The Study Participant File contains variables necessary for all analyses, therefore, when using the other datasets, they should be merged to this file. Variable P_ID is the unique identifier used to merge all datasets. Merging information from multiple NYC HANES datasets using SP_ID ensures that the appropriate information for each SP is linked correctly. (SAS datasets must be sorted by SP_ID prior to merging.) Please note that NYC HANES datasets may not have the same number of records for each component because some participants did not complete each component. Demographic variables include race/ethnicity, Hispanic origin, age, body weight, gender, education level, marital status, and country of birth.
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Project on Human Development in Chicago Neighborhoods (PHDCN): Depression, Wave 2, 1997-2000 (ICPSR 13614)

Released/updated on: 2005-11-14
Geographic coverage: United States, Chicago, Illinois
Time period: 1997-01-01--2000-12-31
The Project on Human Development in Chicago Neighborhoods (PHDCN) was a large-scale, interdisciplinary study of how families, schools, and neighborhoods affect child and adolescent development. One component of the PHDCN was the Longitudinal Cohort Study, which was a series of coordinated longitudinal studies that followed over 6,000 randomly selected children, adolescents, and young adults, and their primary caregivers over time to examine the changing circumstances of their lives, as well as the personal characteristics, that might lead them toward or away from a variety of antisocial behaviors. Numerous measures were administered to respondents to gauge various aspects of human development, including individual differences, as well as family, peer, and school influences. The Depression survey was administered to subjects' primary caregivers for Cohorts 0 to 15. The instrument was adapted from the short form of the Composite International Diagnostic Interview (UM-CIDI) and obtained information about depressive symptoms experienced by the primary caregiver during the past year.
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Project on Human Development in Chicago Neighborhoods (PHDCN): Dysthymia, Wave 2, 1997-2000 (ICPSR 13616)

Released/updated on: 2005-11-22
Geographic coverage: United States, Chicago, Illinois
Time period: 1997-01-01--2000-12-31
The Project on Human Development in Chicago Neighborhoods (PHDCN) was a large-scale, interdisciplinary study of how families, schools, and neighborhoods affect child and adolescent development. One component of the PHDCN was the Longitudinal Cohort Study, which was a series of coordinated longitudinal studies that followed over 6,000 randomly selected children, adolescents, and young adults, and their primary caregivers over time to examine the changing circumstances of their lives, as well as the personal characteristics, that might lead them toward or away from a variety of antisocial behaviors. Numerous measures were administered to respondents to gauge various aspects of human development, including individual differences, as well as family, peer, and school influences. The Dysthymia survey was administered to subjects' primary caregivers for Cohorts 0 to 15. The instrument was adapted from the short form of the Composite International Diagnostic Interview (UM-CIDI) and obtained information about depressive symptoms experienced by the primary caregiver during the past two years.
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Project on Human Development in Chicago Neighborhoods (PHDCN): Emotionality, Activity, Sociability, and Impulsivity Temperament Survey, Wave 1, 1994-1995 (ICPSR 13586)

Released/updated on: 2006-02-17
Geographic coverage: United States, Chicago, Illinois
Time period: 1994-01-01--1997-12-31
The Project on Human Development in Chicago Neighborhoods (PHDCN) was a large-scale, interdisciplinary study of how families, schools, and neighborhoods affect child and adolescent development. One component of the PHDCN was the Longitudinal Cohort Study, which was a series of coordinated longitudinal studies that followed over 6,000 randomly selected children, adolescents, and young adults, and their primary caregivers over time to examine the changing circumstances of their lives, as well as the personal characteristics, that might lead them toward or away from a variety of antisocial behaviors. Numerous measures were administered to respondents to gauge various aspects of human development, including individual differences, as well as family, peer, and school influences. One of the measures employed by the Longitudinal Cohort Study was the Emotionality, Activity, Sociability, and Impulsivity (EASI) Temperament Survey. The EASI Temperament Survey, introduced in the mid-1970s by Arnold H. Buss and Robert Plomin, was designed to evaluate subjects based on four temperaments (emotionality, activity, sociability, and impulsivity). For the purposes of the PHDCN Longitudinal Cohort Study, the EASI Temperament Survey was administered both to subjects and primary caregivers (PC). The young adults comprising cohort 18 completed the EASI Temperament Survey as a self-report inventory, while the primary caregivers of children belonging to cohorts 3 through 15 completed the EASI Temperament measure as a parental ratings survey. Respondents were asked to determine how accurately the behaviors or personality traits mentioned, characterized the subject in question, either themselves or their child. The responses to the EASI measure were used to evaluate the subjects' various social tendencies, emotional characteristics, and personality traits.
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Project on Human Development in Chicago Neighborhoods (PHDCN): Generalized Anxiety Disorder (Primary Caregiver), Wave 2, 1997-2000 (ICPSR 13624)

Released/updated on: 2005-12-06
Geographic coverage: United States, Chicago, Illinois
Time period: 1997-01-01--2000-12-31
The Project on Human Development in Chicago Neighborhoods (PHDCN) was a large-scale, interdisciplinary study of how families, schools, and neighborhoods affect child and adolescent development. One component of the PHDCN was the Longitudinal Cohort Study, which was a series of coordinated longitudinal studies that followed over 6,000 randomly selected children, adolescents, and young adults, and their primary caregivers over time to examine the changing circumstances of their lives, as well as the personal characteristics, that might lead them toward or away from a variety of antisocial behaviors. Numerous measures were administered to respondents to gauge various aspects of human development, including individual differences, as well as family, peer, and school influences. The primary caregiver version of the Generalized Anxiety Disorder instrument was administered to subjects' primary caregivers for Cohorts 3, 6, and 9. The instrument was adapted from the Anxiety module of the Diagnostic Interview Schedule for Children (DISC 4) and obtained information regarding subjects' worrying and anxiety.
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Project on Human Development in Chicago Neighborhoods (PHDCN): Generalized Anxiety Disorder (Subject), Wave 2, 1997-2000 (ICPSR 13625)

Released/updated on: 2005-12-06
Geographic coverage: United States, Chicago, Illinois
Time period: 1997-01-01--2000-12-31
The Project on Human Development in Chicago Neighborhoods (PHDCN) was a large-scale, interdisciplinary study of how families, schools, and neighborhoods affect child and adolescent development. One component of the PHDCN was the Longitudinal Cohort Study, which was a series of coordinated longitudinal studies that followed over 6,000 randomly selected children, adolescents, and young adults, and their primary caregivers over time to examine the changing circumstances of their lives, as well as the personal characteristics, that might lead them toward or away from a variety of antisocial behaviors. Numerous measures were administered to respondents to gauge various aspects of human development, including individual differences, as well as family, peer, and school influences. The subject version of the Generalized Anxiety Disorder instrument was administered to subjects in Cohorts 9, 12, and 15. The instrument was adapted from the Anxiety module of the Diagnostic Interview Schedule for Children (DISC 4) and obtained information regarding subjects' worrying and anxiety.
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Project on Human Development in Chicago Neighborhoods (PHDCN): Major Depressive Disorder (Primary Caregiver), Wave 2, 1997-2000 (ICPSR 13636)

Released/updated on: 2005-12-06
Geographic coverage: United States, Chicago, Illinois
Time period: 1997-01-01--2000-12-31
The Project on Human Development in Chicago Neighborhoods (PHDCN) was a large-scale, interdisciplinary study of how families, schools, and neighborhoods affect child and adolescent development. One component of the PHDCN was the Longitudinal Cohort Study, which was a series of coordinated longitudinal studies that followed over 6,000 randomly selected children, adolescents, and young adults, and their primary caregivers over time to examine the changing circumstances of their lives, as well as the personal characteristics, that might lead them toward or away from a variety of antisocial behaviors. Numerous measures were administered to respondents to gauge various aspects of human development, including individual differences, as well as family, peer, and school influences. The primary caregiver version of the Major Depressive Disorder instrument was administered to subjects' primary caregivers for Cohorts 3, 6, and 9. The instrument was adapted from the Depression module of the Diagnostic Interview Schedule for Children (DISC 4) and obtained information regarding subjects' depression.
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Project on Human Development in Chicago Neighborhoods (PHDCN): Major Depressive Disorder (Subject), Wave 2, 1997-2000 (ICPSR 13637)

Released/updated on: 2005-12-06
Geographic coverage: United States, Chicago, Illinois
Time period: 1997-01-01--2000-12-31
The Project on Human Development in Chicago Neighborhoods (PHDCN) was a large-scale, interdisciplinary study of how families, schools, and neighborhoods affect child and adolescent development. One component of the PHDCN was the Longitudinal Cohort Study, which was a series of coordinated longitudinal studies that followed over 6,000 randomly selected children, adolescents, and young adults, and their primary caregivers over time to examine the changing circumstances of their lives, as well as the personal characteristics, that might lead them toward or away from a variety of antisocial behaviors. Numerous measures were administered to respondents to gauge various aspects of human development, including individual differences, as well as family, peer, and school influences. The subject version of the Major Depressive Disorder instrument was administered to subjects for Cohorts 9, 12, and 15. The instrument was adapted from the Depression module of the Diagnostic Interview Schedule for Children (DISC 4) and obtained information regarding subjects' depression.
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Project on Human Development in Chicago Neighborhoods (PHDCN): Young Adult Self Report, Wave 1, 1994-1995 (ICPSR 13606)

Released/updated on: 2006-03-01
Geographic coverage: United States, Chicago, Illinois
Time period: 1994-01-01--1997-12-31
The Project on Human Development in Chicago Neighborhoods (PHDCN) was a large-scale, interdisciplinary study of how families, schools, and neighborhoods affect child and adolescent development. One component of the PHDCN was the Longitudinal Cohort Study, which was a series of coordinated longitudinal studies that followed over 6,000 randomly selected children, adolescents, and young adults, and their primary caregivers over time to examine the changing circumstances of their lives, as well as the personal characteristics, that might lead them toward or away from a variety of antisocial behaviors. Numerous measures were administered to respondents to gauge various aspects of human development, including individual differences, as well as family, peer, and school influences. One of the measures that composed the Longitudinal Cohort Study was the Young Adult Self Report (YASR). The YASR protocol, a self-administered survey, was first developed by Thomas M. Achenbach and has been a widely used measure for evaluating subjects between the ages of 18 and 30 with respect to their functioning in social relationships, level of mental, emotional and physical health, substance use and abuse, as well as tendencies toward anti-social and criminal behavior. The PHDCN version of the Young Adult Self Report provided a thorough self assessment of the respondents belonging to Cohort 18 of the Longitudinal Cohort Study and scored each respondent based on his or her level of psychological and behavioral functioning.
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Project on Human Development in Chicago Neighborhoods (PHDCN): Young Adult Self Report, Wave 2, 1997-2000 (ICPSR 13666)

Released/updated on: 2006-01-16
Geographic coverage: United States, Chicago, Illinois
Time period: 1997-01-01--2000-12-31
The Project on Human Development in Chicago Neighborhoods (PHDCN) was a large-scale, interdisciplinary study of how families, schools, and neighborhoods affect child and adolescent development. One component of the PHDCN was the Longitudinal Cohort Study, which was a series of coordinated longitudinal studies that followed over 6,000 randomly selected children, adolescents, and young adults, and their primary caregivers over time to examine the changing circumstances of their lives, as well as the personal characteristics, that might lead them toward or away from a variety of antisocial behaviors. Numerous measures were administered to respondents to gauge various aspects of human development, including individual differences, as well as family, peer, and school influences. One of the measures that composed the Longitudinal Cohort Study was the Young Adult Self Report (YASR). The YASR protocol, a self-administered survey, was first developed by Thomas M. Achenbach. It has been a widely used measure for evaluating subjects between the ages of 18 and 30 with respect to their functioning in social relationships, level of mental, emotional and physical health, substance use and abuse, and their tendencies toward antisocial and criminal behavior. The Wave 2 PHDCN version of the Young Adult Self Report, including an officially revised version of behavior problem items, offered a thorough self-assessment of the respondents belonging to Cohort 18 of the Longitudinal Cohort Study, scoring each respondent based on his or her level of psychological and behavioral functioning.
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Resources for Enhancing Alzheimer's Caregiver Health, 1996-2001, Baseline and Follow-Up Data (ICPSR 3678)

Released/updated on: 2006-09-26
Geographic coverage: United States, Tennessee, California, Alabama, Florida, Birmingham, Pennsylvania, Miami, Palo Alto, Massachusetts, Memphis, Philadelphia, Boston
Time period: 1996-09-01--2001-02-28
Resources for Enhancing Alzheimer's Caregiver Health (REACH) was established in 1995 to conduct social and behavioral research on interventions designed to enhance family caregiving, particularly in minority families, for persons with Alzheimer's Disease and related disorders. Baseline data (ICPSR 3253) were collected through randomized clinical trials at six sites: University of Alabama-Birmingham, The Research and Training Institute of the Hebrew Rehabilitation Center for Aged in Boston, University of Tennessee-Memphis, University of Miami, Veterans Affairs Palo Alto Health Care System and Stanford University, and Thomas Jefferson University in Philadelphia. Interventions such as psychoeducational support groups, behavioral skills training programs, family-based systems interventions, environmental modifications, and technological computer-based information and communication services varied by site. This collection contains baseline data along with follow-up data at 6-, 12-, and 18-month intervals from each site with focus on the impact of the various intervention strategies on psychological distress, health status, health practices, and health care utilization. Also included are follow-up batteries, transition batteries (placement, bereavement, discontinued), and data reporting missed visits. Parts 1 through 5 contain screening data and responses to a short mental status questionnaire. Parts 6 through 34 contain baseline data along with follow-up data at 6, 12, and 18-month intervals and cover activities of daily living, anxiety, and caregiver health and health behaviors along with sociodemographic information. Also included are care recipient medications and sociodemographic information. Parts 35 through 40 contain tracking data and also include an examination of interventions.
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Resources for Enhancing Alzheimer's Caregiver Health (REACH II), 2001-2004 (ICPSR 4354)

Released/updated on: 2006-10-27
Geographic coverage: Palo Alto, United States, Tennessee, Memphis, California, Alabama, Florida, Birmingham, Philadelphia, Pennsylvania, Miami
Time period: 2001-01-01--2004-12-31
Built upon the findings of RESOURCES FOR ENHANCING ALZHEIMER'S CAREGIVER HEALTH, 1996-2001, BASELINE AND FOLLOW-UP DATA [ICPSR 3678], REACH II designed and tested a single multi-component intervention among family caregivers of persons with Alzheimer's disease or related disorders. The overall objectives were (1) to identify and reduce modifiable risk factors among diverse family caregivers of patients with Alzheimer's Disease or a related disorder, (2) to enhance the quality of care provided to the care recipients, and (3) to enhance the well-being of the caregivers. REACH II is the first project to simultaneously test a comprehensive caregiver intervention in three distinct racial/ethnic groups: Hispanic/Latino, Black/African-American, and White/Caucasian. The intervention was based on a risk-appraisal approach in which five areas of risk--depression, burden, self-care, social support, and patient problem behaviors--that are central to caregiver well-being and quality of life were matched to corresponding intervention components. These components included education, skills to manage troublesome care-recipient behaviors, social support, cognitive strategies for reframing negative emotional responses, and strategies for enhancing healthy behaviors and managing stress. Consistent with this approach, the primary outcome was a multivariate quality of life indicator that assessed caregiver depression, burden, self-care, social support, and patient problem behaviors. Two hallmarks of caregiver intervention studies--caregiver clinical depression and patient institutionalization--were assessed as secondary outcomes. The dataset names listed in this collection include the shortened name of the form administered.
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Stigma and Tuberculosis in Haitian Populations: A cross-national study of the impact of stigma on patient experience and clinical outcomes in Haiti and the United States, 2003-2008 (ICPSR 30521)

Released/updated on: 2012-05-09
Geographic coverage: Haiti, United States, Florida, Tampa
Time period: 2003-01-01--2008-12-31
Tuberculosis (TB) is a public health problem of global magnitude. In the United States its victims are primarily the poor, foreign immigrants, and persons with AIDS. Efforts to control the disease are severely handicapped by the effects of social stigma and further compounded by issues of race, social class, ethnic stereotypes, immigrant status, and HIV coinfection. The study investigated the social dynamics of stigma in relation to TB in two populations particularly affected by all of these issues, Haitians in the United States and in Haiti. The theoretical framework of the study was cultural epidemiology, which combines quantitative and qualitative measures to study experience, meaning, and behavior in subpopulations of interest. The study design enabled important comparisons across national settings that highlight the differential effects of political-economic context, differences in stigma dynamics for active disease compared to latent infection, and measured the impact of stigma on adherence to preventive therapy. Study components included an ethnography of TB stigma, a cross-cultural epidemiologic study, and a community trial of adherence to preventive therapy. Study sites were South Florida, United States, and Leogane, Haiti. The study aimed to investigate: (1) differences in the degree and components of stigma across different sociocultural settings and comparison groups (community members, health care providers, patients); (2) differential stigma effects in a public vs. private, culturally competent clinic; (3) correlates of TB-related stigma; and (4) the influence of perceived stigma on adherence to latent tuberculosis therapy. Data were collected between 2003-2006 in three phases: Phase I Ethnographic Research; Phase II Cultural Epidemiologic Study; and Phase III Adherence Study. A total of 768 persons were interviewed, including 408 women (53 percent) and 360 men (47 percent). All study aims were completed with the exception of No. 2, which was not possible due to the closure of the Haitian Community Clinic in South Florida. The study consists of data from community, patient, and provider interviews. Demographic variables include sex, age, primary language, education level, employment status, marital status, and religion.
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Suicide and Risk Behaviors in an Incarcerated American Indian Population in the Northern Plains [United States], 1999-2000 (ICPSR 3925)

Released/updated on: 2006-03-30
Geographic coverage: United States
Time period: 1999-01-01--2000-12-31
This study was initiated by the administrator of a county jail in the Northern Plains of the United States who was concerned about the incidence of suicide behaviors in that facility, particularly among the American Indian population. It was a two-year project designed to evaluate the existing admissions suicide screening tool and to improve the instrument's cultural relevance for the American Indian population. The existing screening instrument used in the county jail to interview inmates at their intake was developed in New York. The main objective of the first year of the project was to determine if that instrument was culturally appropriate for the jailed American Indian population. The principal objective of the second year of the project was to determine whether the employment of different suicide screening protocols would make a difference in the responses of new detainees with regard to the likelihood of securing their honest reports of experiencing suicide ideation and its associated risk factors. For the duration of the project, all male and female inmates aged 18 and older who were booked into the jail went through the customary booking procedure that included the administration of the New York Suicide Prevention Screening Guidelines. In the first year of the project, researchers also administered a short self-report survey consisting of measures commonly associated with suicidal ideation. The self-report survey measured stress, anxiety, suicide ideation, hopelessness, and suicidal behavior history. The protocols in the second year of the project reflected efforts to test different screening conditions for four experimental groups and one control group of new detainees. The outcome variables of the short self-report survey consisted of measures of demographics, comfort experience during booking and the screening process, self-efficacy and management of depression, knowledge of mental health support available within the jail, and general well-being. In addition to the quantitative data collection, qualitative data were also collected to develop a straightforward assessment of suicide ideation criteria in this specific jail setting using semi-structured focus group interviews.
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Women's Health in Boston and Cambridge, 2000 [Massachusetts] (ICPSR 26583)

Released/updated on: 2010-06-16
Geographic coverage: United States, Massachusetts, Cambridge, Boston
Time period: 2000-09-01--2000-11-30
Using Random Digit Dial, this study tested the feasibility of using a brief telephone interview to assess sexual attraction, behavior, and identity among women. A neighborhood in Boston with a high density of lesbian residents was selected. The study used three criteria to identify a neighborhood that was expected to have a high density of lesbian residents. Neighborhoods were defined by a postal ZIP code so that potential respondents could easily identify whether or not they lived in the target area. The criteria used were: (a) a high proportion of never-married females aged 35 years or older (calculated as ratio of ZIP code area to city wide, United States Department of Commerce, 1990), (b) a high proportion of female-headed households who also reported an unmarried female partner in the household (United States Department of Commerce, Bureau of the Census, 1990), and (c) a high proportion of female patients from the ZIP code area among Fenway Community Health Center female patients (Fenway Community Health Center is a major health service provider to gay and lesbian populations in Boston and Cambridge). These criteria led to the selection of the Jamaica Plain neighborhood in Boston. Women were eligible if they resided in that area, were between the ages of 18 and 59 years, and spoke English well enough to be able to answer the interview questions. Phone interviews lasted a mean of 5.6 minutes. Respondents who identified themselves as lesbian or bisexual completed an additional specialized section that lasted a mean of 2.5 minutes and inquired about participation in and identification with the gay/lesbian community. In total, 1,250 numbers were dialed. Of them, 169 (14 percent) were nonworking numbers, 165 (13 percent) were not households (e.g., businesses), 235 (19 percent) were indeterminable (number was never answered by a person), and 681 (54 percent) were households. Of these households, 439 (64 percent) were successfully screened, 176 (26 percent) refused or delayed screening, and 66 (10 percent) could not be screened (e.g., language barriers). Of the screened households, 223 (51 percent) were not eligible. Of 216 eligible households, 202 (94 percent) women completed the interview.
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