Black Rural and Urban Caregivers Mental Health/Functioning, Missouri, 1999-2002 (ICPSR 36349)
The Black Rural and Urban Caregivers Mental Health/Functioning data collection includes survey data collected in 2000-2002 from African American females age 65 and older, who provide unpaid care for older African American adults in the St. Louis Metropolitan area and seven rural Missouri counties (Butler, Dunklin, Mississippi, New Madrid, Pemiscot, Scott, and Stoddard).
Because of inadequate recruitment knowledge about rural African American caregivers and persistent reports of challenges when involving African Americans elders in research, this study focused on the involvement of African American rural elders and recruitment of their female informal caregivers in a study of caregivers' well-being and service use. African Americans comprise the largest group of ethnic and racial minority elders aged 65 and older in the U.S. population thus making up one half of all ethnic and racial minority elders. Numerical changes in population size and increasing longevity of older African Americans direct attention to African American informal female caregivers- persons most likely to assist African American elderly with daily living tasks, personal needs, and long-term care. More disabled and chronically ill African American elders portend continuing need from informal or unpaid caregivers for dependent care.
There are two datasets associated with this study, a public-use (da36349-0001) and restricted-use (da36349-0002) version of the same survey data. Both data files contain 521 cases and 1438 variables. However, the restricted file contains continuous as opposed to categorical values for age variables rounded to the nearest whole number.
Hispanic Established Populations for the Epidemiologic Study of the Elderly (HEPESE) Wave 9, 2016 [Arizona, California, Colorado, New Mexico, and Texas] (ICPSR 39038)
The Hispanic EPESE provides data on risk factors for mortality and morbidity in older Mexican Americans in order to contrast how these factors operate differently than in non-Hispanic Whites, African Americans, and other major ethnic groups.
The Wave 9 dataset comprises the eighth follow-up of the baseline Hispanic Established Populations for the Epidemiologic Studies of the Elderly, 1993-1994: [Arizona, California, Colorado, New Mexico, and Texas] (ICPSR 2851). The baseline Hispanic EPESE collected data on a representative sample of community-dwelling Mexican Americans, aged 65 years and older, residing in the five Southwestern states of Arizona, California, Colorado, New Mexico, and Texas.
The public-use data covers demographic characteristics (age, sex, type of Hispanic race, income, education, marital status, number of children, employment, and religion), height, weight, social and physical functioning, chronic conditions, related health problems, health behaviors, self-reported use of dental, hospital, and nursing home services, and depression. Subsequent follow-ups allow examination of the predictors of mortality, changes in health outcomes, institutionalization, changes in living arrangements, as well as changes in life situations and quality of life.
During this 9th Wave (Dataset 1), 2016, 480 re-interviews were conducted either in person or by proxy, with 283 of the original respondents interviewed in 1993-1994. This Wave also includes 197 re-interviews from the 902 new respondents added at Wave 5 in 2004-2005. All respondents were aged 85 and over at Wave 9.
The Wave 9 Informant Interviews dataset (Dataset 2) includes data from interviews with 460 respondents who provided information on themselves as well as the older respondents. The older respondents were asked to provide the name and contact information of the person they are "closer to" or they "depend on the most for help." These INFORMANTS, many of whom provide caregiving support to the older respondents, were contacted, and interviewed regarding the health, function, social situation, finances, and general well-being of the older Hispanic EPESE respondents. Information was also collected on the informant's health, function, and caregiver responsibilities and burden. This dataset includes information from the 460 informants, more than two-thirds of whom were children of the respective respondents. Thus, there are 460 respondent-informant dyads that provide opportunities for caregiving research.