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Hispanic Established Populations for the Epidemiologic Study of the Elderly (HEPESE) Wave 9, 2016 [Arizona, California, Colorado, New Mexico, and Texas] (ICPSR 39038)

Released/updated on: 2024-06-05

Geographic coverage: United States, New Mexico, Texas, Colorado, California, Arizona

Time period: 2016-01-26--2016-11-10

The Hispanic EPESE provides data on risk factors for mortality and morbidity in older Mexican Americans in order to contrast how these factors operate differently than in non-Hispanic Whites, African Americans, and other major ethnic groups.

The Wave 9 dataset comprises the eighth follow-up of the baseline Hispanic Established Populations for the Epidemiologic Studies of the Elderly, 1993-1994: [Arizona, California, Colorado, New Mexico, and Texas] (ICPSR 2851). The baseline Hispanic EPESE collected data on a representative sample of community-dwelling Mexican Americans, aged 65 years and older, residing in the five Southwestern states of Arizona, California, Colorado, New Mexico, and Texas.

The public-use data covers demographic characteristics (age, sex, type of Hispanic race, income, education, marital status, number of children, employment, and religion), height, weight, social and physical functioning, chronic conditions, related health problems, health behaviors, self-reported use of dental, hospital, and nursing home services, and depression. Subsequent follow-ups allow examination of the predictors of mortality, changes in health outcomes, institutionalization, changes in living arrangements, as well as changes in life situations and quality of life.

During this 9th Wave (Dataset 1), 2016, 480 re-interviews were conducted either in person or by proxy, with 283 of the original respondents interviewed in 1993-1994. This Wave also includes 197 re-interviews from the 902 new respondents added at Wave 5 in 2004-2005. All respondents were aged 85 and over at Wave 9.

The Wave 9 Informant Interviews dataset (Dataset 2) includes data from interviews with 460 respondents who provided information on themselves as well as the older respondents. The older respondents were asked to provide the name and contact information of the person they are "closer to" or they "depend on the most for help." These INFORMANTS, many of whom provide caregiving support to the older respondents, were contacted, and interviewed regarding the health, function, social situation, finances, and general well-being of the older Hispanic EPESE respondents. Information was also collected on the informant's health, function, and caregiver responsibilities and burden. This dataset includes information from the 460 informants, more than two-thirds of whom were children of the respective respondents. Thus, there are 460 respondent-informant dyads that provide opportunities for caregiving research.

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Resources for Enhancing Alzheimer's Caregiver Health, 1996-2001, Baseline and Follow-Up Data (ICPSR 3678)

Released/updated on: 2006-09-26

Geographic coverage: United States, Tennessee, California, Alabama, Florida, Birmingham, Pennsylvania, Miami, Palo Alto, Massachusetts, Memphis, Philadelphia, Boston

Time period: 1996-09-01--2001-02-01

Resources for Enhancing Alzheimer's Caregiver Health (REACH) was established in 1995 to conduct social and behavioral research on interventions designed to enhance family caregiving, particularly in minority families, for persons with Alzheimer's Disease and related disorders. Baseline data (ICPSR 3253) were collected through randomized clinical trials at six sites: University of Alabama-Birmingham, The Research and Training Institute of the Hebrew Rehabilitation Center for Aged in Boston, University of Tennessee-Memphis, University of Miami, Veterans Affairs Palo Alto Health Care System and Stanford University, and Thomas Jefferson University in Philadelphia. Interventions such as psychoeducational support groups, behavioral skills training programs, family-based systems interventions, environmental modifications, and technological computer-based information and communication services varied by site. This collection contains baseline data along with follow-up data at 6-, 12-, and 18-month intervals from each site with focus on the impact of the various intervention strategies on psychological distress, health status, health practices, and health care utilization. Also included are follow-up batteries, transition batteries (placement, bereavement, discontinued), and data reporting missed visits. Parts 1 through 5 contain screening data and responses to a short mental status questionnaire. Parts 6 through 34 contain baseline data along with follow-up data at 6, 12, and 18-month intervals and cover activities of daily living, anxiety, and caregiver health and health behaviors along with sociodemographic information. Also included are care recipient medications and sociodemographic information. Parts 35 through 40 contain tracking data and also include an examination of interventions.

Curated

Resources for Enhancing Alzheimer's Caregiver Health (REACH II), 2001-2004 (ICPSR 4354)

Released/updated on: 2006-10-27

Geographic coverage: Palo Alto, United States, Tennessee, Memphis, California, Alabama, Florida, Birmingham, Philadelphia, Pennsylvania, Miami

Time period: 2001-01-01--2004-01-01

Built upon the findings of RESOURCES FOR ENHANCING ALZHEIMER'S CAREGIVER HEALTH, 1996-2001, BASELINE AND FOLLOW-UP DATA [ICPSR 3678], REACH II designed and tested a single multi-component intervention among family caregivers of persons with Alzheimer's disease or related disorders. The overall objectives were (1) to identify and reduce modifiable risk factors among diverse family caregivers of patients with Alzheimer's Disease or a related disorder, (2) to enhance the quality of care provided to the care recipients, and (3) to enhance the well-being of the caregivers. REACH II is the first project to simultaneously test a comprehensive caregiver intervention in three distinct racial/ethnic groups: Hispanic/Latino, Black/African-American, and White/Caucasian. The intervention was based on a risk-appraisal approach in which five areas of risk--depression, burden, self-care, social support, and patient problem behaviors--that are central to caregiver well-being and quality of life were matched to corresponding intervention components. These components included education, skills to manage troublesome care-recipient behaviors, social support, cognitive strategies for reframing negative emotional responses, and strategies for enhancing healthy behaviors and managing stress. Consistent with this approach, the primary outcome was a multivariate quality of life indicator that assessed caregiver depression, burden, self-care, social support, and patient problem behaviors. Two hallmarks of caregiver intervention studies--caregiver clinical depression and patient institutionalization--were assessed as secondary outcomes. The dataset names listed in this collection include the shortened name of the form administered.