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Cancer Surveillance and Epidemiology in the United States and Puerto Rico, 1973-1977 (ICPSR 8001)

Released/updated on: 1993-02-11
Geographic coverage: Puerto Rico, United States
Time period: 1973-01-01--1977-01-01
This dataset was produced as part of the Surveillance, Epidemiology, and End Results (SEER) Program to monitor the incidence of cancer and cancer survival rates in the United States, thus carrying out the mandates of the National Cancer Act. The SEER Program had several objectives: to estimate the annual cancer incidence in the United States, to examine trends in cancer patient survival, to identify cancer etiologic factors, and to monitor trends in the incidence of cancer in selected geographic areas with respect to demographic and social characteristics. Data collection began in 1973, and by 1977 had a population base of 11 geographic areas in the United States and Puerto Rico. SEER variables include patient demographic information (age, sex, race, birthplace, marital status, census tract) and information on cancer, which was gathered from hospitals, clinics, private laboratories, private practitioners, nursing/convalescent homes, autopsies, and death certificates. The medical data cover histologic type, anatomic site, laterality, multiplicity within primary site at first diagnosis, diagnostic procedures, diagnostic confirmation, sequence of the tumor, extent of the disease, treatment of the lesion, and outcome.
Curated

Health Information National Trends Survey (HINTS), 2003 (ICPSR 24382)

Released/updated on: 2009-03-27
Geographic coverage: United States
The Health Information National Trends Survey (HINTS) collects nationally representative data about the American public's access to and use of cancer-related information. This data collection consists of the 2003 survey which focused on the changing patterns, needs, and behavior in seeking and supplying cancer information, and explored how cancer risks are perceived. A series of questions specifically addressed colon and breast cancer and respondents' familiarity with cancer screening procedures such as mammogram, colonoscopy, and the PSA test. Information was also gathered on physical and mental health status, smoking history, how often respondents ate fruits and vegetables, and whether they had health insurance. Demographic variables include sex, age, race, education level, employment status, marital status, household income, type of residential area (e.g., urban or rural), and whether respondents had children under the age of 18.
Curated

Health Information National Trends Survey (HINTS), 2005 (ICPSR 24383)

Released/updated on: 2009-04-13
Geographic coverage: United States
The Health Information National Trends Survey (HINTS) collects nationally representative data about the American public's access to and use of cancer-related information. The 2005 HINTS survey is the second in an ongoing biannual series and provided information on the changing patterns, needs, and behavior in seeking and supplying cancer information, and explored how cancer risks are perceived. A series of questions addressed colon, lung, cervical, and breast cancer, the Human Papillomavirus (HPV), and respondents' familiarity with cancer screening procedures such as mammogram, colonoscopy, and the PSA test. Specific questions were also posed about the relationship between cancer, diet, and exercise. Information was also gathered on physical and mental health status, participation in community organizations, smoking history, how often respondents ate fruits and vegetables, and whether they had health insurance. Demographic variables include sex, age, race, education level, employment status, marital status, household income, frequency of religious attendance, number of people in the household, ownership of residence, type of residential area (e.g., urban or rural), and whether respondents were born in the United States.
Curated

Health Information National Trends Survey (HINTS), 2007 (ICPSR 25262)

Released/updated on: 2009-06-23
Geographic coverage: United States
The Health Information National Trends Survey (HINTS) collects nationally representative data about the American public's access to and use of cancer-related information. The 2007 HINTS survey is the third in an ongoing biannual series and provides information on the changing patterns, needs, and behavior in seeking and supplying cancer information and explores how cancer risks are perceived. Respondents were asked about the ways in which they obtained health information, their use of health care services, their views about medical information and research, and their beliefs about cancer. A series of questions specifically addressed cervical cancer, colon cancer, and the Human Papillomavirus (HPV). Information was also collected on physical and mental health status, diet, physical activity, sun exposure, history of cancer, tobacco use, and whether respondents had health insurance. Demographic variables include sex, age, race, education level, employment status, marital status, household income, number of people living in the household, ownership of residence, and whether respondents were born in the United States.
Curated

National Health Interview Survey, 1987: Cancer Control Study (ICPSR 9343)

Released/updated on: 1992-02-17
Geographic coverage: United States
In 1987, a supplementary Cancer Control Study questionnaire was administered to an adult subsample of National Health Interview Survey (NHIS) respondents as part of that year's special inquiry into cancer. Responses to the supplement are recorded in this dataset, along with other information derived from the core 1987 NHIS questionnaire. The Cancer Control Study questionnaire included questions on acculturation (such as language, ethnic identification, and place of birth of self and parents), medical care, food knowledge, cancer knowledge and attitudes, cancer screening knowledge and practice, smoking and other tobacco use, and occupational exposures to harmful substances. Variables from the core questionnaire include height, weight, age, race, Hispanic origin, type of living quarters, region and metropolitan status of residence, marital status, veteran status, education, family income, health status, industry, occupation, activity limitation status, medical conditions, restricted activity days in the past two weeks, bed days in the past two weeks and past 12 months, time interval since the last doctor visit, and the number of doctor visits and short-stay hospital episodes in the past two months.
Curated

National Health Interview Survey, 1987: Cancer Risk Factor Supplement, Epidemiology Study (ICPSR 9341)

Released/updated on: 1992-02-17
Geographic coverage: United States
The National Health Interview Surveys (NHIS) continuously monitor illness and injury, disability and chronic impairments, and health services used by people in the United States. In 1987, additional interviews were conducted with two subsamples of NHIS respondents to gather data on cancer control and epidemiology. Like the Cancer Control supplement, this Cancer Epidemiology supplement included questions on acculturation (in terms of language, ethnicity, and place of birth), dietary knowledge, smoking and tobacco use, and occupational history. The Cancer Epidemiology supplement also included questions on frequency and portion sizes of food and drink items, vitamin and mineral intake, reproduction, hormone use, family's and respondent's history of cancer, height and weight, and participation in social activities. Approximately 90 demographic, health status, and health care variables from the core data files are included on the supplement file.
Curated

National Health Interview Survey, 1992: Cancer Control Supplement (ICPSR 6344)

Released/updated on: 1994-10-19
Geographic coverage: United States
The purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. The 1992 Cancer Control Supplement includes variables from the NHIS core Person File (see NATIONAL HEALTH INTERVIEW SURVEY, 1992 [ICPSR 6343]), including sex, age, race, marital status, veteran status, education, income, industry and occupation codes, and limits on activity. Variables unique to this supplement include items on acculturation (e.g., language, ethnic identification, place of birth of self and parents), medical care, food knowledge, cancer knowledge and attitudes, cancer screening knowledge and practice, smoking and other tobacco use, and occupational exposures to harmful substances.
Curated

National Health Interview Survey, 1992: Cancer Epidemiology Supplement (ICPSR 6349)

Released/updated on: 1994-10-19
Geographic coverage: United States
The purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. The 1992 Cancer Epidemiology Supplement includes variables from the NHIS core Person File (see NATIONAL HEALTH INTERVIEW SURVEY, 1992 [ICPSR 6343]), including sex, age, race, marital status, veteran status, education, income, industry and occupation codes, and limits on activity. Variables unique to this supplement include information on acculturation (in terms of language, ethnicity, and place of birth), dietary knowledge, smoking and tobacco use, and occupational history. The supplement also covers frequency and portion sizes of food and drink items, vitamin and mineral intake, hormone use, family's and respondent's history of cancer, and respondent's height and weight.
Curated

National Medical Expenditure Survey, 1987: Household Survey, Health Status Questionnaire and Access to Care Supplement [Public Use Tape 9] (ICPSR 9674)

Released/updated on: 1992-02-17
Geographic coverage: United States
Public Use Tape 9 contains the initial release of data from two supplementary parts of the 1987 National Medical Expenditure Survey's Household Survey: the Health Status Questionnaire, and the Access to Care Supplement. The file provides person-level data for all those respondents (other than infants less than one year of age) with both information for their entire period of 1987 survey eligibility (Rounds 1-4) and valid data on a minimum set of items in both the Health Status Questionnaire and Access to Care Supplement. The minimum items were: perceived general health status, at least one question on availability and characteristics of a usual source of medical or dental care, all items in the checklists of chronic conditions (for adults aged 18 and over), at least one question on screening for breast and cervical cancer (for adult females), and all questions on immunizations (for children aged 1-17). The Health Status Questionnaire was administered in three age-specific versions between Rounds 1 and 2 of the interviews. Adults aged 18 and over responded for themselves and for children aged 5-17 and under 5 years in their families. The Questionnaire contained items concerning self-assessments of current and past health status, acute and chronic conditions, vision and hearing, dental status, mental health and functional ability, and health-related behaviors such as care-seeking and preventive care. The Access to Care Supplement was administered to all eligible household respondents during Round 3 interviews, and covered access to and usual sources of medical and dental care. For medical providers identified as a usual source of care, information was sought on their specialty, sex, race/ethnicity, and on availability and convenience in terms of hours of practice, travel and waiting times, and related items. Other topics in the Access to Care Supplement included reasons for the lack of a usual source of care and sources of care during an illness. The file also includes basic demographic data from the Household Survey.