Showing 1 – 11 of 11 results.
Curated
Cooperative Agreement for AIDS Community-Based Outreach/Intervention Research Program, 1992-1998: [United States] (ICPSR 3023)
Released/updated on: 2008-10-23
Geographic coverage: United States
Time period: 1992-01-01--1998-12-31
The purpose of the Cooperative Agreement (CA) Research Program was to monitor risk factors, risk behaviors, and rates of HIV seroprevalence and seroincidence among out-of-treatment, multi-ethnic/racial injection drug users and crack cocaine users. The program evaluated the efficacy of experimental interventions designed to prevent, eliminate, or reduce HIV risk behaviors and developed new treatment interventions. All participants received the standard intervention, which consisted of street-based outreach and HIV prevention counseling. Those assigned to enhanced interventions received more counseling sessions, educational videos, social gatherings, and support group activities. The public-use data file contains 31,088 respondent records, collected from 21 CA program facilities in the United States and one facility each in Puerto Rico and Brazil. Hence, the process data file contains 23 records of facility information that can be linked to individual respondents. Respondent interviews include a baseline Risk Behavior Assessment (completed prior to first intervention) and a Follow-Up Assessment, conducted either three months or six months after the baseline survey. Respondent data were augmented with eligibility information, biological markers of drug use, HIV test results, and intervention assignment. At baseline and post-intervention, the surveys measured drug use and drug treatment, sexual activity and sex for money/drugs, arrests, work/income, HIV/STD/pregnancy status, perceptions of risk, and risk reduction behaviors. The process questionnaires were completed by staff or principal investigators at the 23 site locations. Process data describe the program structure and process, other intervention projects in the community, needle exchange programs and pharmacy syringe sales, and local HIV infection rates. Drugs reported on include alcohol, marijuana/hashish, crack/cocaine, heroin (including speedball), non-prescription methadone, other opiates, and amphetamines.
Curated
Simple Crosstabs
Flint [Michigan] Adolescent Study (FAS): A Longitudinal Study of School Dropout and Substance Use, 1994-1997 (ICPSR 34598)
Released/updated on: 2014-11-07
Geographic coverage: Flint, United States, Michigan
Time period: 1994-01-01--1997-12-31
The Flint Adolescent Study (FAS) interviewed 850 ninth graders in the four public high schools of Flint, MI. The study was conducted in collaboration with the Projects for Urban and Regional Affairs and Flint Community Schools. The goal of the study was to explore the protective factors associated with school dropout and alcohol and substance use. The study followed the youths for four years beginning in the Fall of 1994. The sample reflected the overall student body in the Flint high schools. In order to study those students most at risk for leaving school before graduation, individuals with grade point averages of 3.0 and below were selected.
Interviews were conducted face-to-face with each student at the school or in a community location for students who were out of school. Each interview took about one hour to complete. At the end of the interview students were asked to complete the last section of the questionnaire by themselves which contains questions about their drug use and sexual behavior.
Information obtained from the youths includes: participation in church, school, and community organizations; social support and influence of family and friends; self esteem and psychological well being; delinquent and violent behaviors; alcohol and substance use; sex behavior and child bearing; school attitudes and performance; and family structure and relationships. The Youths were asked to complete a brief questionnaire at the end of the interview about their alcohol and substance use, and sexual behavior. In years 3 and 4 questions also asked about driving behavior, attachment style, stress, mentoring, and racial identity. Data was also collected about parental education and occupation.
Curated
Restricted
Health Consequences of Long-Term Injection Heroin Use Among Aging Mexican American Men in Houston, Texas, 2008 - 2011 [Restricted-use Files] (ICPSR 34896)
Released/updated on: 2015-01-21
Geographic coverage: United States, Texas
Time period: 2008-01-01--2011-12-31
The study is comprised of interviews from 227 Hispanic males aged 45 or older living in the area of Houston, Texas to address the gaps in knowledge on the social factors and health consequences of injection heroin use among aging Mexican American males. Specifically, the study investigated how the life course transitions of incarceration and drug treatment and drug abuse and family trajectories affect both the heroin career status and health consequences of these aging Mexican American men.
The study used a cross-sectional, field-intensive outreach methodology augmented with respondent-driven sampling. Recruitment was focused in two Houston neighborhoods that are predominantly Mexican American areas with high rates of crime, poverty, and psychosocial challenges. Trained Outreach Specialists familiar with these communities identified community gatekeepers and gained their trust through continued presence in the community and ongoing dialogue about the study. These gatekeepers then helped identify individuals meeting the inclusion criteria: Mexican American men aged 45 years or older with a history of injection drug use for at least 3 years. The men were then classified into one of three groups: current injectors (current group), former injectors not in treatment (former group), or former injectors currently enrolled in methadone maintenance treatment programs (MMTP group).
The second part is a second survey asking questions about social networks the respondent participates in. Questions ask the respondent to answer on one individual in their network and answer questions about that person and their interaction with them. Questions include basic demographics, history injecting drugs and sexual contact with the person.
Curated
Partially restricted
Simple Crosstabs
Latino MSM Community Involvement: HIV Protective Effects (ICPSR 34385)
Released/updated on: 2014-04-02
Geographic coverage: San Francisco, United States, Chicago, Illinois, California
Time period: 2004-01-01--2004-12-31
The purpose of this study was to contribute to the conceptual understanding and practical application of social integration theory to health behaviors. The research aimed to investigate the protective effects of community involvement in HIV/AIDS and gay-related organizations for HIV/AIDS sexual risk behavior among Latino gay or bisexual men and transgender individuals in Chicago and San Francisco. As part of this, the study examined HIV prevalence and the socioeconomic correlates of HIV infection, sexual risk behaviors, and substance use. Further, the study tested whether community involvement in AIDS and LGBT organizations moderated the relationship of racial and homosexual stigma to sexual risk behavior. Data were collected from a sample of 643 individuals (Chicago: n=320; San Francisco: n=323) through respondent-driven sampling and computer-assisted self-administered interviews. Demographic variables included ethnic identification, sexual identification, ZIP code (only available in restricted use data), country of birth, years in the United States, employment status, income, family religion, age, and health/STD status.
Curated
National Health Interview Survey, 1995: AIDS Knowledge and Attitudes Supplement (ICPSR 2531)
Released/updated on: 1998-09-11
Geographic coverage: United States
Time period: 1995-01-01--1995-12-31
The purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. This supplement includes variables from the NHIS core Person File (see NATIONAL HEALTH INTERVIEW SURVEY, 1995 [ICPSR 2533]), including sex, age, race, marital status, veteran status, education, income, industry and occupation codes, and limits on activity. Questions unique to this supplement cover sources of information on Acquired Immune Deficiency Syndrome (AIDS), perceptions of and discrimination against persons with AIDS, knowledge about modes of Human Immunodeficiency Virus (HIV) transmission, perceived likelihood of transmission by casual contact, experience with blood donation and HIV antibody testing, content of post-test counseling, perceived effectiveness of condoms and mutual monogamy to prevent HIV, and personal knowledge of someone with HIV or AIDS.
Curated
National Survey of Family Growth, Cycle IV, 1988 (ICPSR 9473)
Released/updated on: 2009-08-26
Geographic coverage: United States
Time period: 1988-01-01--1988-08-31
The National Survey of Family Growth (NSFG) Cycle IV interviews covered respondents' pregnancy histories, past and current use of contraception, ability to bear children, use of medical services for family planning, infertility, and prenatal care, marital histories, and associated cohabiting unions. Data on occupation and labor force participation and on a wide range of social, economic, and demographic characteristics are also presented. Cycle IV added questions about AIDS and cohabitation and asked detailed questions on adoption and sexually transmitted diseases.
Curated
National Survey of Family Growth, Cycle VI, 2002 (ICPSR 4157)
Released/updated on: 2008-10-01
Geographic coverage: United States
Time period: 2002-01-01--2002-12-31
Cycle VI of the National Survey of Family Growth (NSFG) was conducted in 2002 by the National Center for Health Statistics (NCHS), with the participation and funding support of nine other programs of the United States Department of Health and Human Services. Consistent with previous cycles, Cycle VI contains interviews conducted with females 15-44 years of age. A female pregnancy file was also compiled, consisting of one record per pregnancy for all female respondents having experienced pregnancy. New to Cycle 6 is the introduction of the interviewing of males aged 15-44. The male questionnaire averaged about 60 minutes in length, while the female interview averaged about 80 minutes. For most of the survey a Computer-Assisted Personal Interviewing (CAPI) technique was used in which the interviewer entered the respondents' answers into a laptop computer. For the last section of the interview, the survey participants entered their own answers into the computer using a technique called Audio Computer-Assisted Self-Interviewing (Audio CASI). The interviews included questions on schooling, family background, marriage and divorce, having and raising children (including contraceptive use, pregnancy outcomes and "wantedness" of pregnancies, infertility and infertility services, family planning services, sterilizing operations, adoption, and medical care), sex education, first sexual intercourse, sexually transmitted diseases, AIDS, religion, race/ethnicity, employment/occupation, income, and insurance.
Curated
Partially restricted
Simple Crosstabs
Parents And Children Coping Together (PACT I Child), Los Angeles, California, 1997-2002 (ICPSR 35194)
Released/updated on: 2018-04-23
Geographic coverage: Los Angeles, California
Time period: 1997-01-01--2002-12-31
Parents And Children Coping Together (PACT) was designed to longitudinally assess mothers in Los Angeles county living with HIV (MLHs) and their young, well children age 5 to 11 years old. The PACT sample was followed every 6 months for 30 months. The study utilizes longitudinal data from children/adolescent and mother dyads to investigate the effects of maternal HIV and family variables on adolescent sexual behavior. Specific aims were to:
- Evaluate longitudinally youth adjustment (i.e., mental health, behavioral adjustment, social outcomes) including measures for young children. Measures included developmentally appropriate youth and maternal mental health measures (e.g., Children's Depression Inventory for youths age under 18; Beck Depression Inventory for youths age equal to or greater than 18), assessment of maternal physical health, assessment of child behaviors, and family functioning.
- Evaluate youth characteristics from across developmental periods that may moderate or mediate the impact of MLHs' chronic illness on patterns of youth adjustment over time, including: (a) background factors of age, gender, ethnicity; and (b) moderating and mediating factors, such as self-concept, family cohesion, the parent-child relationship, HIV/AIDS knowledge, perceived stigma, autonomy, and parent-adolescent separation.
- Evaluate maternal characteristics that may moderate or mediate the impact of MLHs' chronic illness on the youth (e.g., illness severity, mental health status, social support, parenting skills).
Curated
Positive Connections: Connecting HIV-Infected Patients to Care, 2004-2006 [United States] (ICPSR 22482)
Released/updated on: 2010-06-16
Geographic coverage: United States, New England
Time period: 2004-01-01--2006-12-31
The research study Positive Connections tested the Health Systems Navigation (HSN) model, an intervention linking near-peer interventionists with underserved HIV-infected individuals to assist them to become engaged and retained in HIV medical care through supportive services and facilitated referrals. Working with a core group of local AIDS service organizations to identify unstable and out-of-care HIV-positive individuals, the HSN will enroll and provide health system navigation to participants. The principal goal was to enhance the probability that individuals from historically underserved populations would become engaged and retained in high quality, culturally competent HIV care. The theoretical basis for this intervention included individual behavior change models, social and community networks, and provider cultural competence. This project also sought to improve the understanding and the measurement of health care access problems by seeking to determine which problems have indicators and which do not, and to identify steps that can be taken to develop a reliable access monitoring system. The concept of Health Systems Navigator has been developed by the Multicultural AIDS Coalition.
Curated
Retention Challenges for HIV-Infected Primary Care Patients 2001-2004 [United States] (ICPSR 22220)
Released/updated on: 2010-08-30
Geographic coverage: Vermont, Rhode Island, United States, Massachusetts, Maine, Connecticut, New Hampshire
Time period: 2001-01-01--2004-12-31
This project examined HIV-infected patients who were lost to follow-up during calendar years 2001-2004 in order to identify reasons patients were leaving care. Sustaining and retaining HIV-infected patients in care has been a consistent challenge to primary care health systems. Continuity, enhancing wellness, and patient engagement are long-term goals in primary care. Factors that influence clients to disengage from care frequently result in patterns of episodic utilization that may compromise the patient's health status and increase their psychosocial vulnerability. The standard of care suggests that HIV-infected patients return for medical follow-up primary care visits four times a year. Since 2001, there have been over 495 patients that have been determined inactive. The project administered telephone and mail surveys to HIV-infected patients that no longer receive care at Fenway Health Center. The survey includes demographic questions, insurance questions, potential reasons for stopping care, and whether the participant is receiving care at another facility. Subsequently, the project connected interviewees into the Health System Navigation (HSN) Project to assist them with seeking HIV medical care. This was accomplished by including prescreener questions in the survey. If a patient is determined to be eligible, they will be invited to participate in the HSN Project.
Curated
Partially restricted
Stigma and Tuberculosis in Haitian Populations: A cross-national study of the impact of stigma on patient experience and clinical outcomes in Haiti and the United States, 2003-2008 (ICPSR 30521)
Released/updated on: 2012-05-09
Geographic coverage: Haiti, United States, Florida, Tampa
Time period: 2003-01-01--2008-12-31
Tuberculosis (TB) is a public health problem of global magnitude. In the United States its victims are primarily the poor, foreign immigrants, and persons with AIDS. Efforts to control the disease are severely handicapped by the effects of social stigma and further compounded by issues of race, social class, ethnic stereotypes, immigrant status, and HIV coinfection. The study investigated the social dynamics of stigma in relation to TB in two populations particularly affected by all of these issues, Haitians in the United States and in Haiti. The theoretical framework of the study was cultural epidemiology, which combines quantitative and qualitative measures to study experience, meaning, and behavior in subpopulations of interest. The study design enabled important comparisons across national settings that highlight the differential effects of political-economic context, differences in stigma dynamics for active disease compared to latent infection, and measured the impact of stigma on adherence to preventive therapy. Study components included an ethnography of TB stigma, a cross-cultural epidemiologic study, and a community trial of adherence to preventive therapy. Study sites were South Florida, United States, and Leogane, Haiti. The study aimed to investigate: (1) differences in the degree and components of stigma across different sociocultural settings and comparison groups (community members, health care providers, patients); (2) differential stigma effects in a public vs. private, culturally competent clinic; (3) correlates of TB-related stigma; and (4) the influence of perceived stigma on adherence to latent tuberculosis therapy. Data were collected between 2003-2006 in three phases: Phase I Ethnographic Research; Phase II Cultural Epidemiologic Study; and Phase III Adherence Study. A total of 768 persons were interviewed, including 408 women (53 percent) and 360 men (47 percent). All study aims were completed with the exception of No. 2, which was not possible due to the closure of the Haitian Community Clinic in South Florida. The study consists of data from community, patient, and provider interviews. Demographic variables include sex, age, primary language, education level, employment status, marital status, and religion.