Adolescent Health and Development in Context (AHDC) Study, Franklin County, Ohio, Wave 1, 2014-2016 (ICPSR 39045)
Americans' Changing Lives: Waves I, II, III, IV, V, and VI, 1986, 1989, 1994, 2002, 2011, and 2021 (ICPSR 4690)
The Americans' Changing Lives (ACL) survey series is an ongoing, nationally representative, longitudinal study focusing especially on differences between Black and White Americans in middle and late life. These data constitute the first, second, third, fourth, fifth, and sixth waves in a panel survey covering a wide range of sociological, psychological, mental, and physical health items. Wave I of the study began in 1986 with a nation face-to-face survey of 3,617 adults ages 25 and up, with Black Americans and people aged 60 and over over-sampled at twice the rate of the others. Wave II constitutes face-to-face re-interviews in 1989 of those still alive. Survivors have been re-interviewed by telephone, and when necessary face-to-face, in 1994 (Wave III), 2001/02 (Wave IV), 2011 (Wave V), and 2019/21 (Wave VI).
Please note that for Wave VI, the majority of data collection occurred in 2019, with only a small subset (n=39) of participants surveyed in 2021.
ACL was designed and sought to investigate the following: (1) The ways in which a wide range of activities and social relationships that people engage in are broadly "productive," (2) how individuals adapt to acute life events and chronic stresses that threaten the maintenance of health, effective functioning, and productive activity, and (3) sociocultural variations in the nature, meaning, determinants, and consequences of productive activity and relationships. Among the topics covered are interpersonal relationships (spouse/partner, children, parents, friends), sources and levels of satisfaction, social interactions and leisure activities, traumatic life events (physical assault, serious illness, divorce, death of a loved one, financial or legal problems), perceptions of retirement, health behaviors (smoking, alcohol consumption, overweight, rest), and utilization of health care services (doctor visits, hospitalization, nursing home institutionalization, bed days). Also included are measures of physical health, psychological well-being, and indices referring to cognitive functioning.
Demographic information provided for individuals includes household composition, number of children and grandchildren, employment status, occupation and work history, income, family financial situation, religious beliefs and practices, ethnicity, race, education, sex, and region of residence.
Army Study to Assess Risk and Resilience in Servicemembers (STARRS) (ICPSR 35197)
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April 29, 2025: STARRS - Longitudinal Study Wave 4 (LSW4) data released*****************************************************************************************
The Army Study to Assess Risk and Resilience in Servicemembers (STARRS) is an extensive study of mental health risk and resilience among military personnel. Army STARRS consists of eight separate but integrated epidemiologic and neurobiologic studies. Survey data for three of the Army STARRS study components are available via Secure Dissemination or via the ICPSR Virtual Data Enclave: New Soldier Study (NSS); All Army Study (AAS) and Pre-Post Deployment Study (PPDS). Also available are data for the STARRS-Longitudinal Study (STARRS-LS), which are follow-up surveys conducted with Army STARRS participants from AAS, NSS and PPDS studies. Lastly, baseline administrative data from the Army/Department of Defense (DoD) and blood sample flags for Soldiers who had blood drawn as a part of their participation in NSS or PPDS are available.
The AAS component of Army STARRS assesses soldiers' psychological and physical health, events encountered during training, combat, and non-combat operations, and life and work experiences across all phases of Army service. The AAS data includes data on soldiers' psychological resilience, mental health, and risk for self-harm.
The NSS data are drawn from new soldiers who have just entered the Army. The data contain information on soldier health, personal characteristics, and prior experiences. Results from a series of neurocognitive tests are also included in the NSS data.
The PPDS data are drawn from active duty soldiers who were interviewed at four points in time: 3-4 months prior to deployment to Afghanistan; within 1-2 weeks after return from deployment; 1-3 months after return from deployment; and 9-12 months after return from deployment. The PPDS data contain information on soldiers' psychological resilience, mental health, deployment experiences, and risk for self-harm.
The STARRS-LS data are from multiple follow-up interviews with individuals who previously participated in the AAS, NSS and PPDS study components of Army STARRS. STARRS-LS data contain follow-up information on soldiers' and veterans' physical and mental health, resilience and risk for self-harm, military and employment status, deployment experience, and personal characteristics as they move through their Army careers and after they leave the Army.
Consequences of Recent Parental Divorce for Young Adults, 1990-1992 (ICPSR 24400)
Detroit [Michigan] Neighborhood Health Study, 2008-2013 (ICPSR 37038)
The Detroit Neighborhood Health Study (DNHS) is a prospective, representative longitudinal cohort study of predominantly African American adults living in Detroit, Michigan. The main purpose of the study was to determine the predictive effects of ecological stressors, such as income distribution and residential segregation, on the development of post-traumatic stress disorder (PTSD), substance use, and other psychological and behavioral outcomes. An additional purpose was to study the interrelationships between ecological stressors, exposure to potentially traumatic events (PTEs), PTSD, substance use, and immune function. The study team hypothesized that exposure to ecological stressors would influence the risk of PTE exposure, PTSD, substance use, other psychological outcomes, and the relationships between these factors.
The current collection includes data from all 5 waves of the study. Cohort participants were initially recruited in 2008 with a dual-frame probability design, using telephone numbers obtained from the U.S. Postal Service Delivery Sequence Files as well as a listed-assisted random-digit-dial frame. Individuals without listed landlines or telephones and individuals with only a cell phone listed were invited to participate through a postal mail effort. Participants completed a 40 minute, structured telephone interview annually between 2008-2012 to assess perceptions of participants' neighborhoods, mental and physical health status, social support, exposure to traumatic events, and alcohol and tobacco use. In addition, the study team completed a structured assessment of Detroit's 54 neighborhoods in order to describe the characteristics of respondents' neighborhoods. The assessment included information about the quality of housing exteriors; presence of graffiti, abandoned cars, alcohol and tobacco advertisements, and security warning signs; presence of vacant buildings; and street and traffic noise levels.
All survey participants were offered the opportunity to provide a blood specimen (venipuncture, blood spot, or saliva) for immune and inflammatory marker testing as well as genetic testing of DNA. Participants received an additional $25USD if they elected to give a sample. Informed consent was obtained at the beginning of each interview and again at specimen collection. However, these specimens are not included as part of this data collection.
For more information about the study, please visit the Detroit Neighborhood Health Study website.
Genotypic data from DNHS are available on the NIH database of Genotypes and Phenotypes (dbGaP).
Drug Use Trajectories: Ethnic/Racial Comparisons, 1998-2002 [United-States] (ICPSR 30862)
Flint [Michigan] Adolescent Study (FAS): A Longitudinal Follow-Up Study of Substance Use on Adult Transitional Events, 2000-2003 (ICPSR 37032)
The Flint [Michigan] Adolescent Study (FAS): A Longitudinal Follow-Up Study of Substance Use on Adult Transitional Events, 2000-2003 collection includes data collected as part of four follow-up waves conducted for the Flint Adolescent Study (FAS). These data are waves five through eight, the original four waves can be found in ICPSR study 34598 (Flint [Michigan] Adolescent Study (FAS): A Longitudinal Study of School Dropout and Substance Use, 1994-1997.)
The Flint Adolescent Study (FAS) originally interviewed 850 ninth graders in the four public high schools of Flint, MI, between 1994 and 1997. Follow-up wave interviews were conducted four years after high school, between 2000 and 2003, as participants transitioned to young adulthood. The study was conducted in collaboration with the projects of Urban and Regional Affairs and Flint Community Schools. The goal of the study was to explore the protective factors associated with school dropout and alcohol and substance use. The study followed the youths for four years beginning in the Fall of 1994 to gather the first four waves of the study. The sample reflected the overall student body in the Flint high schools. In order to study those students most at risk for leaving school before graduation, individuals with grade point averages of 3.0 and below were selected.
Interviews were conducted face-to-face with each participant in a community location. Each interview took about one hour to complete. At the end of the interview students were asked to complete the last section of the questionnaire containing questions about their drug use and sexual behavior by themselves.
Information obtained from the participants include: participation in church and community organizations; social support and influence of family and friends; self-esteem and psychological wellbeing; delinquent and violent behaviors; alcohol and substance use; sexual behavior and child bearing; school attitudes and performance; and family structure and relationships. Many items included in the follow-up waves repeat those present in the original surveys. Questions were also asked about driving behavior, stress, and racial identity. Data was also collected about participant education and occupation.
Demographic variables in this collection include age, sex, race, education, occupation, employment history, residence type, household composition, height and weight, marital status, and number of children.
Flint [Michigan] Adolescent Study (FAS): A Longitudinal Study of School Dropout and Substance Use, 1994-1997 (ICPSR 34598)
The Flint Adolescent Study (FAS) interviewed 850 ninth graders in the four public high schools of Flint, MI. The study was conducted in collaboration with the Projects for Urban and Regional Affairs and Flint Community Schools. The goal of the study was to explore the protective factors associated with school dropout and alcohol and substance use. The study followed the youths for four years beginning in the Fall of 1994. The sample reflected the overall student body in the Flint high schools. In order to study those students most at risk for leaving school before graduation, individuals with grade point averages of 3.0 and below were selected.
Interviews were conducted face-to-face with each student at the school or in a community location for students who were out of school. Each interview took about one hour to complete. At the end of the interview students were asked to complete the last section of the questionnaire by themselves which contains questions about their drug use and sexual behavior.
Information obtained from the youths includes: participation in church, school, and community organizations; social support and influence of family and friends; self esteem and psychological well being; delinquent and violent behaviors; alcohol and substance use; sex behavior and child bearing; school attitudes and performance; and family structure and relationships. The Youths were asked to complete a brief questionnaire at the end of the interview about their alcohol and substance use, and sexual behavior. In years 3 and 4 questions also asked about driving behavior, attachment style, stress, mentoring, and racial identity. Data was also collected about parental education and occupation.
Iowa Youth and Families Project, 1989-1992 (ICPSR 26721)
This data collection contains the first four waves of the Iowa Youth and Families Project (IYFP), conducted in 1989, 1990, 1991, and 1992. The Iowa Youth and Families Project was developed from an initial sample of 451 7th graders from two-parent families in rural Iowa. The study was merged with the Iowa Single Parent Project (ISPP) to form the Iowa Family Transitions Project in 1994, when the target youth were seniors in high school. Survey data were collected from the target child (7th grader), a sibling within four years of age of the target child, and both parents. Field interviewers visited families at their homes on several occasions to administer questionnaires and videotape interaction tasks including family discussion tasks, family problem-solving tasks, sibling interaction tasks, and marital interaction tasks.
The Household Data files contain information about the family's financial situation, involvement in farming, and demographic information about household members.
The Parent and the Child Survey Data files contain responses to survey questions about the quality and stability of family relationships, emotional, physical, and behavioral problems of individual family members, parent-child conflict, family problem-solving skills, social and financial support from outside the home, traumatic life experiences, alcohol, drug, and tobacco use, and opinions on topics such as abortion, parenting, and gender roles. In addition, the Child Survey Data files include responses collected from the target child and his or her sibling in the study about experiences with puberty, dating, sexual activity, and risk-taking behavior.
The Problem-Solving Data files contain survey data collected from respondents about the family interactions tasks.
The Observational Data files contain the interviewers' observations collected during these tasks.
Demographic variables include sex, age, employment status, occupation, income, home ownership, religious preference, frequency of religious attendance, as well as the ages and sex of all household members and their relationship to the head of household. Demographic information collected on the parents also includes their birth order within their family, the ages and political philosophy of their parents, the sex, age, education level, and occupation of their siblings, and the country of origin of their ancestors.
Mental and Substance Use Disorders Prevalence Study (MDPS), United States, 2020-2022 (ICPSR 38953)
Minnesota Adolescent Community Cohort (MACC) Study 2000-2013 (ICPSR 36282)
New Hope Project: Income and Employment Effects on Children and Families, 1994-2003 [Restricted Use] (ICPSR 30282)
Oregon Youth Study Wave 27, 2010-2011 (ICPSR 38453)
Oregon Youth Study Wave 29, 2011-2013 (ICPSR 38454)
Project STRIDE: Stress, Identity, and Mental Health, New York City, 2004-2005 (ICPSR 35525)
Project STRIDE is a three-year research project that examines the effect of stress and minority identity related to sexual orientation, race/ethnicity and gender on mental health. The research describes social stressors that affect minority populations, explores the coping and social support resources that they utilize as they confront these social stressors, and assesses the associations of stress and coping with mental health outcomes including mental disorders and wellbeing. The study also explores the impact of various identity characteristics, such as whether an identity is viewed positively or negatively, or whether it is prominent or not to the relationship of stress and mental health outcomes.
The study, using extensive quantitative and some qualitative measures, is a longitudinal survey of 525 men and women between the ages 18 and 59 who are residents of New York City. Socio-demographic information collected about respondents included age, education, race and Hispanic ethnicity, adopting the measures developed and used by the United States Census Bureau in the United States population survey of 2000. In addition to these items, racial/ethnic identity was also assessed with the question "What is the country of origin related to your or your family's ethnic or national background, if any?" Respondents were allowed to select up to two nations from a comprehensive listing. For the purposes of the study, the instrument also assessed whether or not participants were natives of New York City or migrated as adults. Additional demographic variables include employment status, religion, relationship status, and sexual orientation.
Rochester Intergenerational Study (RIGS), New York, United States, 1999-2019 (ICPSR 37920)
The Rochester Intergenerational Study (RIGS), is an extension of the Rochester Youth Development Study (RYDS). RIGS investigates intergenerational continuity and discontinuity of drug use in a three-generation prospective design. The focal participant is the oldest biological child (G3) of the original participant in the RYDS study. The project contains developmental data collected since 1988 on the G2 parents and G1 grandparents; combining those data with the prospective data collected from 1999 to 2019 allows examination of how the parent's own developmental course influences their transition to adulthood and their behavior as parents which, in turn, can be used to explain the onset and development of the G3 child's drug use.
Variables included pertain to the parent's stressors, drug use and problem behaviors, prosocial bonds, peer networks, gang affiliation, family context, major family events, and parenting behaviors. G3 assessments include their general psychosocial development, with detailed information on the onset and course of their drug use, problem behaviors, school behavior, and prosocial behavior.
Schools and Families Educating (SAFE) Children Study [Chicago, IL]: 1997-2008 (ICPSR 34368)
The Schools and Families Education (SAFE) Children Study was a randomized control trial designed to test the efficacy of a family-based comprehensive preventive intervention, with children living in inner-city Chicago and entering the 1st grade, for effects on key risk markers for later drug and other substance use.
A total of 11 waves of data were collected over the course of three phases and approximately 13 years. In the spring of 1997, there were 424 kindergarten students and primary caregivers recruited to participate in this study. Wave 1 began while the children were in 1st grade. These data contain survey responses for students, their primary caregivers, and their teachers across 27 datasets.
Phase I of the study was to assess the intervention provided in the 1st grade. Half of the families were randomly selected to receive the intervention. The other half were assigned to the control group. Phase II of the study was set-up to give half of the intervention group a booster, a second intervention training. Lastly, there was a Phase III which sought to assess the long-term affects of the initial and booster interventions.
The first dataset (DS1) provides an overview of the study which includes variables for the study design and survey administration. This first file contains 38 variables.
Survey responses were obtained from students nine times beginning in 1st grade and ending in 12th grade. Children were not surveyed in waves 3 and 7. The student survey response data are in DS2 through DS10. The datasets for waves 1, 2, 4, and 5 contain only 50 variables. Waves 6, 8, and 9 contain 424 variables. Waves 10 and 11 contain 1,394 variables. Each of the three phases contain almost identical variables within their respective waves.
The children's primary caregivers were also surveyed nine times over the survey period. Primary caregivers were not surveyed in waves 3 and 7. These data are contained in DS11 through DS19. The primary caregiver files vary in the number and content of variables. On average each wave contains about 1,060 variables with a low of 470 on up to a high of 1,435.
Teachers were surveyed during each of the first eight waves of the study. The teacher data are in DS20 through DS27. Waves 1 and 2 contain just over 120 variables. Waves 3, 4, and 5 contain 145 variables. And waves 6, 7, and 8 contain 173 variables. Each of the three phases contain almost identical variables within their respective waves.
Study of Women's Health Across the Nation (SWAN), 2001-2003: Visit 05 Dataset (ICPSR 30501)
Study of Women's Health Across the Nation (SWAN), 2002-2004: Visit 06 Dataset (ICPSR 31181)
Study of Women's Health Across the Nation (SWAN), 2006-2008: Visit 10 Dataset (ICPSR 32961)
Study of Women's Health Across the Nation (SWAN): Visit 01 Dataset, [United States], 1997-1999 (ICPSR 29221)
The Study of Women's Health Across the Nation (SWAN) is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause.
The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 1997 and 1999, 2,881 of the 3,302 women that joined SWAN were seen for their first follow-up visit. The research centers are located in the following communities: Detroit, MI; Boston, MA; Chicago, IL; Oakland and Los Angeles, CA; Newark, NJ; and Pittsburgh, PA. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.
Study of Women's Health Across the Nation (SWAN): Visit 03 Dataset, [United States], 1999-2001 (ICPSR 29701)
The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers, and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information.
The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 1999 and 2001, 2,710 of the 3,302 women that joined SWAN were seen for their third follow-up visit. The research centers are located in the following communities: Detroit, Michigan; Boston, Massachusetts; Chicago, Illinois; Oakland and Los Angeles, California; Newark, New Jersey; and Pittsburgh, Pennsylvania. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.