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Integrated Care Clinics for Injection Drug Users in India: A Cluster Randomized Trial, 2013 (ICPSR 39786)

Released/updated on: 2026-04-20
Geographic coverage: India
Time period: 2012-10-01--2016-11-01

This study is part of the Seek, Test, Treat and Retain (STTR) Collaboration Project that involved over twenty studies in the fields of HIV and drug abuse. All studies were independently developed, but were chosen for the collaboration because they focused on one or more steps of the HIV treatment cascade: Seek, Test, Treat and Retain. As part of STTR Collaboration Project, the studies were grouped into Criminal Justice-related studies and Vulnerable Population-related studies. The data collected by these studies included twelve common domains (e.g., Demographic characteristics, Mental Health) in each of which a shared questionnaire or instrument was taken up by the studies and adapted to fit the study.

This study focuses on interventions implemented by integrated care centers (ICCs) for injected-drug users amongst 12 cities across India.

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Midlife in the United States (MIDUS 3), 2013-2014 (ICPSR 36346)

Released/updated on: 2019-04-30
Geographic coverage: Contiguous United States
Time period: 2013-05-01--2014-11-01

In 1995-1996, the MacArthur Midlife Research Network carried out a national survey of over 7,000 Americans aged 25 to 74 [ICPSR 2760]. The purpose of the study was to investigate the role of behavioral, psychological, and social factors in understanding age-related differences in physical and mental health. The study was innovative for its broad scientific scope, its diverse samples (which included siblings of the main sample respondents and a national sample of twin pairs), and its creative use of in-depth assessments in key areas (e.g. daily diary of stressful experiences [ICPSR 3725] and cognitive functioning [ICPSR 3596]) on a subset of participants. A detailed description of the study and findings generated by it are available at: http://www.midus.wisc.edu

With support from the National Institute on Aging, a follow-up of the original Midlife Development in the United States (MIDUS) sample was conducted in 2004 (MIDUS 2 [ICPSR 4652]). The daily stress and cognitive functioning projects were repeated and expanded at MIDUS 2; in addition the protocol was expanded to include biomarkers and neuroscience.

In 2013 a third wave (MIDUS 3) of survey data was collected on longitudinal participants. Data collection for this follow-up wave largely repeated baseline assessments (e.g., phone interview and extensive self-administered questionnaire), with additional questions in selected areas such as economic recession experiences. Cognitive functioning data were also collected at the same time, while data collection for the daily diary, biomarker, and neuroscience projects commenced in 2017.

MIDUS also maintains a Colectica portal, which allows users to interact with variables across waves and create customized subsets. Registration is required.

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National Longitudinal Study of Adolescent to Adult Health (Add Health), 1994-2025 [Public Use] (ICPSR 21600)

Released/updated on: 2026-03-03
Geographic coverage: United States
Time period: 1994-01-01--2025-01-01

Downloads of Add Health require submission of the following information, which is shared with the original producer of Add Health: supervisor name, supervisor email, and reason for download. A Data Guide for this study is available as a web page and for download.

The National Longitudinal Study of Adolescent to Adult Health (Add Health), 1994-2018 [Public Use] is a longitudinal study of a nationally representative sample of U.S. adolescents in grades 7 through 12 during the 1994-1995 school year. The Add Health cohort was followed into young adulthood with four in-home interviews, the most recent conducted in 2008 when the sample was aged 24-32. Add Health combines longitudinal survey data on respondents' social, economic, psychological, and physical well-being with contextual data on the family, neighborhood, community, school, friendships, peer groups, and romantic relationships.

Add Health Wave I data collection took place between September 1994 and December 1995, and included both an in-school questionnaire and in-home interview. The in-school questionnaire was administered to more than 90,000 students in grades 7 through 12, and gathered information on social and demographic characteristics of adolescent respondents, education and occupation of parents, household structure, expectations for the future, self-esteem, health status, risk behaviors, friendships, and school-year extracurricular activities. All students listed on a sample school's roster were eligible for selection into the core in-home interview sample. In-home interviews included topics such as health status, health-facility utilization, nutrition, peer networks, decision-making processes, family composition and dynamics, educational aspirations and expectations, employment experience, romantic and sexual partnerships, substance use, and criminal activities. A parent, preferably the resident mother, of each adolescent respondent interviewed in Wave I was also asked to complete an interviewer-assisted questionnaire covering topics such as inheritable health conditions, marriages and marriage-like relationships, neighborhood characteristics, involvement in volunteer, civic, and school activities, health-affecting behaviors, education and employment, household income and economic assistance, parent-adolescent communication and interaction, parent's familiarity with the adolescent's friends and friends' parents.

Add Health data collection recommenced for Wave II from April to August 1996, and included almost 15,000 follow-up in-home interviews with adolescents from Wave I. Interview questions were generally similar to Wave I, but also included questions about sun exposure and more detailed nutrition questions. Respondents were asked to report their height and weight during the course of the interview, and were also weighed and measured by the interviewer.

From August 2001 to April 2002, Wave III data were collected through in-home interviews with 15,170 Wave I respondents (now 18 to 26 years old), as well as interviews with their partners. Respondents were administered survey questions designed to obtain information about family, relationships, sexual experiences, childbearing, and educational histories, labor force involvement, civic participation, religion and spirituality, mental health, health insurance, illness, delinquency and violence, gambling, substance abuse, and involvement with the criminal justice system. High School Transcript Release Forms were also collected at Wave III, and these data comprise the Education Data component of the Add Health study.

Wave IV in-home interviews were conducted in 2008 and 2009 when the original Wave I respondents were 24 to 32 years old. Longitudinal survey data were collected on the social, economic, psychological, and health circumstances of respondents, as well as longitudinal geographic data. Survey questions were expanded on educational transitions, economic status and financial resources and strains, sleep patterns and sleep quality, eating habits and nutrition, illnesses and medications, physical activities, emotional content and quality of current or most recent romantic/cohabiting/marriage relationships, and maltreatment during childhood by caregivers. Dates and circumstances of key life events occurring in young adulthood were also recorded, including a complete marriage and cohabitation history, full pregnancy and fertility histories from both men and women, an educational history of dates of degrees and school attendance, contact with the criminal justice system, military service, and various employment events, including the date of first and current jobs, with respective information on occupation, industry, wages, hours, and benefits. Finally, physical measurements and biospecimens were also collected at Wave IV, and included anthropometric measures of weight, height and waist circumference, cardiovascular measures such as systolic blood pressure, diastolic blood pressure, and pulse, metabolic measures from dried blood spots assayed for lipids, glucose, and glycosylated hemoglobin (HbA1c), measures of inflammation and immune function, including High sensitivity C-reactive protein (hsCRP) and Epstein-Barr virus (EBV).

Wave V data collection took place from 2016 to 2018, when the original Wave I respondents were 33 to 43 years old. For the first time, a mixed mode survey design was used. In addition, several experiments were embedded in early phases of the data collection to test response to various treatments. A similar range of data was collected on social, environmental, economic, behavioral, and health circumstances of respondents, with the addition of retrospective child health and socio-economic status questions. Physical measurements and biospecimens were again collected at Wave V, and included most of the same measures as at Wave IV.

The overall goal of Wave VI was to better understand life course trajectories, determinants, and consequences of critical dimensions of aging, health, and health disparities among U.S. early midlife adults. Data collection took place from 2022 to 2025, with participants between the ages of 39 and 51, with an average age of 44. Beyond longitudinal survey measures, newly added questions included those on cumulative stress, discrimination, despair, work-life balance, memory, physical limitations, and caregiving. Continuing from previous waves, home exams collected physical measurements and biospecimens with most of the same measures as Wave V.

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National Survey of Adolescents, 2004: Uganda (ICPSR 22411)

Released/updated on: 2018-07-09
Geographic coverage: Africa, Uganda, Sub-Saharan Africa
Time period: 2004-02-01--2004-07-01
The National Survey Adolescents was launched in 2004 in four Sub-Saharan African countries--Burkina Faso, Ghana, Malawi, and Uganda--to provide detailed information on adolescent risk-taking and health-seeking behavior as related to HIV, STDs and unintended pregnancy. The study examined a range of factors (e.g., behavioral, sociocultural, economic) that could lead to increased vulnerability to risk. The study also encompassed knowledge of means of prevention, sources of trusted information and health care, and impediments to adolescents' abilities to apply their knowledge and take preventive action. The Ugandan portion was administered between February and July 2004. Using a two-stage stratified sample design that selected households from rural and urban clusters, 7,106 households were listed for initial screening. After an initial interview in each household, individual surveys were administered in person to adolescents between the ages of 12 and 19 who were de facto or de jure members of the household. This process collected 6,659 individual interviews with adolescents. Because of the sensitive nature of questions administered in the survey, informed consent forms were obtained from both parents/guardians and the respondents, and in all possible instances interviewers and respondents were paired up by gender.
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Project STRIDE: Stress, Identity, and Mental Health, New York City, 2004-2005 (ICPSR 35525)

Released/updated on: 2018-11-28
Geographic coverage: New York City
Time period: 2004-01-01--2005-01-01

Project STRIDE is a three-year research project that examines the effect of stress and minority identity related to sexual orientation, race/ethnicity and gender on mental health. The research describes social stressors that affect minority populations, explores the coping and social support resources that they utilize as they confront these social stressors, and assesses the associations of stress and coping with mental health outcomes including mental disorders and wellbeing. The study also explores the impact of various identity characteristics, such as whether an identity is viewed positively or negatively, or whether it is prominent or not to the relationship of stress and mental health outcomes.

The study, using extensive quantitative and some qualitative measures, is a longitudinal survey of 525 men and women between the ages 18 and 59 who are residents of New York City. Socio-demographic information collected about respondents included age, education, race and Hispanic ethnicity, adopting the measures developed and used by the United States Census Bureau in the United States population survey of 2000. In addition to these items, racial/ethnic identity was also assessed with the question "What is the country of origin related to your or your family's ethnic or national background, if any?" Respondents were allowed to select up to two nations from a comprehensive listing. For the purposes of the study, the instrument also assessed whether or not participants were natives of New York City or migrated as adults. Additional demographic variables include employment status, religion, relationship status, and sexual orientation.

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Survey and Assessment of Vietnamese Youth (SAVY), 2003 (ICPSR 24387)

Released/updated on: 2009-01-13
Geographic coverage: Vietnam (Socialist Republic)
Time period: 2003-10-01--2004-01-01
The Survey and Assessment of Vietnamese Youth (SAVY) is the first national survey on adolescents and youth to evaluate health status and other important development issues of the group of married and unmarried young people aged 14-25 from ethnic, rural, and urban areas of 42 provinces across Vietnam. The study provides detailed analysis and disaggregation of data for comparison purposes of specific groups including young men and women, rural and urban youth, married and unmarried young people, and young people of differing education levels. The survey was designed to assess education, employment, health and reproductive behavior and other development issues of adolescent and young people including HIV/AIDS, substance use, injuries, and violence. SAVY also explored young people's perceptions and attitudes as well as their future expectations.
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Toledo Adolescent Relationships Study (TARS): Wave 1, 2001 (ICPSR 4679)

Released/updated on: 2026-05-13
Geographic coverage: United States, Ohio, Toledo

The Toledo Adolescent Relationships Study (TARS) explores the relationship qualities and the subjective meanings that motivate adolescent behavior. More specifically, this study seeks to examine the nature and meaning of adolescent relationship experiences (e.g. with family, peers, and dating partners) in an effort to discover how experiences associated with age, gender, race, and ethnicity influence the meaning of dating relationships. The study further investigates the relative impact of dating partners and peers on sexual behavior and contraceptive practices, as well as involvement in other problem behaviors that can contribute independently to sexual risk-taking. The longitudinal design of the Toledo Adolescent Relationships Study (TARS) includes a schedule of follow-up interviews occurring one, three, five, ten, and about eighteen years after the initial interview. Additional waves have since been conducted.

Wave 1 of TARS includes detailed data collected from both parents and adolescent respondents about their relationship experiences, including self-reported data from parents, parent-reported data about adolescent respondents, and self-reported data from adolescent respondents. These data are available as a combined dataset organized by adolescent respondent.

The Toledo Adolescent Relationships Study (TARS) includes several waves of data collection available through ICPSR. Please see the ICPSR Series page for available studies.

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Toledo Adolescent Relationships Study (TARS): Wave 2, 2002 (ICPSR 32081)

Released/updated on: 2011-10-04
Geographic coverage: United States, Ohio, Toledo
Time period: 2002-01-01--2003-01-01
This study explores the relationship qualities and the subjective meanings that motivate adolescent behavior. More specifically, this study seeks to examine the nature and meaning of adolescent relationship experiences (e.g., with family, peers, and dating partners) in an effort to discover how experiences associated with age, gender, race, and ethnicity influence the meaning of dating relationships. The study further investigates the relative impact of dating partners and peers on sexual behavior and contraceptive practices, as well as involvement in other problem behaviors that can contribute independently to sexual risk taking. The longitudinal design of the Toledo Adolescent Relationships Study (TARS) includes a schedule of follow-up interviews occurring one, three, and five years after the initial interview. Three waves of data have been collected (2001, 2002, and 2004) and a fourth wave is scheduled for collection (2006). Data were collected from adolescent respondents through structured in-home interviews utilizing laptop computers. In-depth interviews were conducted at the first wave with a subsample (n=100) of the respondents. Parent data was collected via a short, self-administered questionnaire at the first wave.