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HIV Open Data Project: AIDS Drug Assistance Program (ADAP) Final Grantee Level Variables (Annual) (ICPSR 34894)

Released/updated on: 2013-10-03
Geographic coverage: United States
Time period: 2012-01-01--2013-12-31

The AIDS Drug Assistance Program (ADAP) Data Report (ADR) includes two components: the Grantee Report and the Client Report. All ADAPs are required to submit both reports.

The Grantee Report is a collection of basic information about the grantee characteristics and policies. It includes a Programmatic Summary section and an Annual Submission section.

The Client Report (or client-level data) is a collection of one record for each client enrolled in the ADAP. Each record includes the client's encrypted unique identifier, basic demographic data, and enrollment and certification information. A client's record may also include data about the ADAP-funded insurance and medication received, including the costs of these services, as well as HIV clinical information.

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National Longitudinal Study of Adolescent to Adult Health (Add Health), 1994-2025 [Public Use] (ICPSR 21600)

Released/updated on: 2026-03-03
Geographic coverage: United States
Time period: 1994-01-01--2025-12-31

Downloads of Add Health require submission of the following information, which is shared with the original producer of Add Health: supervisor name, supervisor email, and reason for download. A Data Guide for this study is available as a web page and for download.

The National Longitudinal Study of Adolescent to Adult Health (Add Health), 1994-2018 [Public Use] is a longitudinal study of a nationally representative sample of U.S. adolescents in grades 7 through 12 during the 1994-1995 school year. The Add Health cohort was followed into young adulthood with four in-home interviews, the most recent conducted in 2008 when the sample was aged 24-32. Add Health combines longitudinal survey data on respondents' social, economic, psychological, and physical well-being with contextual data on the family, neighborhood, community, school, friendships, peer groups, and romantic relationships.

Add Health Wave I data collection took place between September 1994 and December 1995, and included both an in-school questionnaire and in-home interview. The in-school questionnaire was administered to more than 90,000 students in grades 7 through 12, and gathered information on social and demographic characteristics of adolescent respondents, education and occupation of parents, household structure, expectations for the future, self-esteem, health status, risk behaviors, friendships, and school-year extracurricular activities. All students listed on a sample school's roster were eligible for selection into the core in-home interview sample. In-home interviews included topics such as health status, health-facility utilization, nutrition, peer networks, decision-making processes, family composition and dynamics, educational aspirations and expectations, employment experience, romantic and sexual partnerships, substance use, and criminal activities. A parent, preferably the resident mother, of each adolescent respondent interviewed in Wave I was also asked to complete an interviewer-assisted questionnaire covering topics such as inheritable health conditions, marriages and marriage-like relationships, neighborhood characteristics, involvement in volunteer, civic, and school activities, health-affecting behaviors, education and employment, household income and economic assistance, parent-adolescent communication and interaction, parent's familiarity with the adolescent's friends and friends' parents.

Add Health data collection recommenced for Wave II from April to August 1996, and included almost 15,000 follow-up in-home interviews with adolescents from Wave I. Interview questions were generally similar to Wave I, but also included questions about sun exposure and more detailed nutrition questions. Respondents were asked to report their height and weight during the course of the interview, and were also weighed and measured by the interviewer.

From August 2001 to April 2002, Wave III data were collected through in-home interviews with 15,170 Wave I respondents (now 18 to 26 years old), as well as interviews with their partners. Respondents were administered survey questions designed to obtain information about family, relationships, sexual experiences, childbearing, and educational histories, labor force involvement, civic participation, religion and spirituality, mental health, health insurance, illness, delinquency and violence, gambling, substance abuse, and involvement with the criminal justice system. High School Transcript Release Forms were also collected at Wave III, and these data comprise the Education Data component of the Add Health study.

Wave IV in-home interviews were conducted in 2008 and 2009 when the original Wave I respondents were 24 to 32 years old. Longitudinal survey data were collected on the social, economic, psychological, and health circumstances of respondents, as well as longitudinal geographic data. Survey questions were expanded on educational transitions, economic status and financial resources and strains, sleep patterns and sleep quality, eating habits and nutrition, illnesses and medications, physical activities, emotional content and quality of current or most recent romantic/cohabiting/marriage relationships, and maltreatment during childhood by caregivers. Dates and circumstances of key life events occurring in young adulthood were also recorded, including a complete marriage and cohabitation history, full pregnancy and fertility histories from both men and women, an educational history of dates of degrees and school attendance, contact with the criminal justice system, military service, and various employment events, including the date of first and current jobs, with respective information on occupation, industry, wages, hours, and benefits. Finally, physical measurements and biospecimens were also collected at Wave IV, and included anthropometric measures of weight, height and waist circumference, cardiovascular measures such as systolic blood pressure, diastolic blood pressure, and pulse, metabolic measures from dried blood spots assayed for lipids, glucose, and glycosylated hemoglobin (HbA1c), measures of inflammation and immune function, including High sensitivity C-reactive protein (hsCRP) and Epstein-Barr virus (EBV).

Wave V data collection took place from 2016 to 2018, when the original Wave I respondents were 33 to 43 years old. For the first time, a mixed mode survey design was used. In addition, several experiments were embedded in early phases of the data collection to test response to various treatments. A similar range of data was collected on social, environmental, economic, behavioral, and health circumstances of respondents, with the addition of retrospective child health and socio-economic status questions. Physical measurements and biospecimens were again collected at Wave V, and included most of the same measures as at Wave IV.

The overall goal of Wave VI was to better understand life course trajectories, determinants, and consequences of critical dimensions of aging, health, and health disparities among U.S. early midlife adults. Data collection took place from 2022 to 2025, with participants between the ages of 39 and 51, with an average age of 44. Beyond longitudinal survey measures, newly added questions included those on cumulative stress, discrimination, despair, work-life balance, memory, physical limitations, and caregiving. Continuing from previous waves, home exams collected physical measurements and biospecimens with most of the same measures as Wave V.

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National Supported Work Evaluation Study, 1975-1979: Public Use Files (ICPSR 7865)

Released/updated on: 2009-02-02
Geographic coverage: United States, Chicago, California, Oakland, New York (state), New Jersey, Pennsylvania, New York City, Atlanta, Illinois, Connecticut, Hartford, Georgia, Wisconsin, Philadelphia
Time period: 1975-01-01--1979-12-31
This study is an evaluation of the National Supported Work Demonstration project, a transitional, subsidized work experience program for four target groups of people with longstanding employment problems: ex-offenders, former drug addicts, women who were long-term recipients of welfare benefits, and school dropouts, many with criminal records. The program provided up to 12-18 months of employment to about 10,000 individuals at 15 locations across the country for four years. In ten of these sites -- Atlanta, Chicago, Hartford, Jersey City, Newark, New York, Philadelphia, Oakland, San Francisco, and Wisconsin, 6,600 eligible applicants were randomly assigned either to experimental groups (offered a job in supported work) or to control groups, and an evaluation was conducted on the effects of the Supported Work Program. At the time of enrollment, each respondent was given a retrospective baseline interview, generally covering the previous two years, followed by up to four follow-up interviews scheduled at nine-month intervals. Two public use files were originally distributed for this data collection: Supported Work Employment and Earnings File, and Supported Work Deviant Behavior File. Each file contained data for up to five interviews, a cross-document dataset and an Aid to Families with Dependent Children (AFDC) recipients follow-up. The Employment and Earnings File contains data from all interview modules except the drug and crime sections, and the Deviant Behavior File contains all variables on the Employment and Earnings File as well as additional information on drugs and crime. Aid to Families with Dependent Children (AFDC) recipients were further asked about children in school and welfare participation, while all non-AFDC respondents were questioned about any extralegal activities. Demographic items specify age, sex, race, marital status, education, number of children, employment history, job search, job training, mobility, household income, welfare assistance, housing, military discharge status, and drug use. Each respondent has up to six logical, fixed-length records, with each record corresponding to a completed interview (up to five) and one additional short "cross-document" record. A User's Guide describing the collection and its components is available and should be read before the collection or any part of it is ordered.
Curated

New Family Structures Study (ICPSR 34392)

Released/updated on: 2012-11-28
Geographic coverage: United States
Time period: 2011-08-01--2012-02-29
The New Family Structure Study (NFSS) is a comparative, social-science data-collection project, which focused on American young adults (ages 18-39) who were raised in different types of family arrangements with varying household experiences. The sample included respondents that had lived in biologically-intact households, lived with cohabiting parents, adoptive, step, or single parents, with parents who had same-sex relationships, or with parents who remarried after divorce. Respondents were asked about a range of topics, including social behaviors: such as educational attainment and performance, work history, risk-taking, and religiosity; health behaviors: such as substance abuse, sexually transmitted infections, and emotional states (depression, anger, and stress), and relationships: including the quality and stability of romantic relationships, marital history, fertility, sexual orientation, and family connectedness. Additional questions asked whether respondents voted in the 2008 presidential election, how much time they spent on various activities; watching TV, gaming, and on social networking sites, and how many Facebook "friends" they had. Demographic information includes age, education level, race, gender, income, marital status, employment status, and household size.
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