Addiction Health Evaluation and Disease (AHEAD) Management Study in Boston, Massachusetts, 2006-2010 (ICPSR 33581)
Substance dependence (SD) is a chronic disease that requires specialty drug and alcohol treatment, primary care (PC), and management of related problems. Although patients with SD may be linked with specialty care and PC, their health care often remains episodic and fragmented, rather than longitudinal, comprehensive, integrated, and coordinated. As a result, adults with SD often enter addiction treatment later and require acute medical care, rather than entering the system earlier when interventions of lower intensity but longer duration might prevent catastrophes. Chronic disease management (CDM) is a collaborative, longitudinal approach to treatment of certain chronic medical illnesses proven to be more effective than routine care. CDM addresses individual patient and health systems barriers to receipt of needed treatment. However, the effectiveness of CDM for SD has not been tested. The objective of this Addiction Health Evaluation and Disease management (AHEAD) study, was to test the effectiveness of CDM for SD in PC.
Subject identification and recruitment occurred primarily at a local detoxification center, as well as by self and physician referral from the Boston Medical Center primary and ambulatory care clinics, emergency department, urgent care center, inpatient settings, and the community. The study enrolled 320 adults with drug dependence and 320 adults with alcohol dependence who were not in SD treatment, and randomized them to a SD CDM program (the AHEAD Clinic) integrated into a real-world PC clinic or to referral to standard PC. All subjects were assessed regarding SD diagnosis, substance use and problems, readiness to change, health-related quality of life, and medical and drug treatment utilization. Subjects were evaluated 3, 6, and 12 months later, and health services utilization data were collected for 2 years from a statewide database. Additionally, in order to better understand and explain the implementation and fidelity of the AHEAD Clinic, the primary care providers (PCPs) of AHEAD Clinic patients were surveyed. Each PCP was presented with a letter from the Principal Investigator explaining the purpose of the survey, the reason why s/he was being asked to complete the survey, compensation for completing the survey, and details about confidentiality and anonymity. The survey itself consisted of questions asking providers about their satisfaction and their attitudes towards caring for patients with alcohol and drug problems, their knowledge of services that the AHEAD Clinic provides, and their experience working with the AHEAD Clinic.
Primary outcomes were illicit drug use, alcohol use, substance-related problems, emergency department visits, and hospitalizations. The proposal's hypothesis was that compared with standard care, a health services delivery intervention (CDM for SD integrated in PC) would decrease alcohol and illicit drug use and related problems, and improve health care utilization patterns. Improved outcomes using the AHEAD approach would support the adoption of a health services delivery strategy, CDM, to better care for patients with SD.
- Dataset 1: 844 variables; 563 cases
- Dataset 2: 607 variables; 500 cases
- Dataset 3: 607 variables; 487 cases
- Dataset 4: 713 variables; 532 cases
- Dataset 5: 80 variables; 549 cases
- Dataset 6: 59 variables; 1,435 cases
- Dataset 7: 25 variables; 87 cases
- Dataset 8: 25 variables; 87 cases
- Dataset 9: 41 variables; 73 cases
- Dataset 10: 9 variables; 11,018 cases
- Dataset 11: 5 variables; 511 cases
Adoption of Innovations in Private Alcohol and Drug Treatment Centers in the United States [Restricted-Use], 2009-2013 (ICPSR 37621)
Adoption of Innovations in Private Alcohol and Drug Treatment Centers is a multi-wave longitudinal study conducted between 2009 and 2013. The study goal was to measure the adoption and implementation of evidence-based treatment practices in treatment centers that received more than 50 percent of their total operational funding from sources that were not guaranteed from year to year. This definition is based on the concept of entrepreneurship, namely the necessity for the treatment organization to respond to changing conditions in the external political and economic environment in order to obtain half or more of its funding. The innovations considered are of three types usually specific to organizations treating substance use disorders:
- medication-assisted treatments
- psychosocial treatments
- managerial practices
This data set consists of one of the multiple "waves" of data collection. The data was collected at four points in time. The baseline data, collected from June 2009 through October 2011 from 327 treatment centers, were obtained through face-to-face onsite interviews ranging from 1 to 4 hours in duration. These interviews were conducted with administrators of the respective treatment centers. In 70 of the 327 treatment centers, an administrator of the overall center and the administrator of clinical operations separately completed administrative and clinical interviews. In the remaining 257 centers, all of the administrative and clinical data were collected from the administrator of the overall center since there was no specialized administrator of clinical operations. The baseline data available here merge the data collected through these two different procedures so that the variables measured are identical for all centers regardless of the procedure.
The collected data include detailed information on Medication Assisted Treatment (MAT) and other treatment strategies used by the center to treat opioid use disorder (OUD) and alcohol use disorder (AUD). In cases where medications were not used by a center questions were asked for reasons why available medications were not used in treatment. Other sections of the interviews covered data on the organizations, their management, and other clinical practices implemented for OUD, AUD, and substance use disorder (SUD).
Three follow-up interviews were conducted via telephone at six month intervals following the previous interview. These follow-up interviews were much shorter compared to the baseline interview. The interviews centered on key changes in the center's operation and on the adoption of key innovations. But a focus of the follow-up interviews still focused on medications provided for treatment.
Behavioral Risk Factor Surveillance System (BRFSS), 2003 (ICPSR 34085)
Community Health Center: Core Data Project, 2001-2002 [United States] (ICPSR 21520)
Finding, Testing and Treating High-Risk Probationers and Parolees with HIV (Urban Health Studies: UHS II), California, 2012-2013 (ICPSR 39801)
The Seek, Test, Treat and Retain (STTR) Collaboration Project involved over twenty studies in the fields of HIV and drug abuse. These studies were independently developed, but were chosen for the collaboration because they focused on one or more steps of the HIV treatment cascade: Seek, Test, Treat and Retain. These studies were grouped into Criminal Justice-related studies and Vulnerable Population-related studies. The data collected by these studies included twelve common domains (e.g. demographic characteristics, mental health) in each of which a shared questionnaire or instrument was taken up by the studies and adapted to fit the study. This repository contains the collected data and documentation from the STTR collaboration.
This study in particular is part of the Urban Health Studies project, specifically assessing treatment outcomes of high-risk probationers and parolees with HIV in California from 2012 to 2013.
Linking Infectious and Narcology Care (LINC), Russia, 2012-2014 (ICPSR 39788)
This study is part of the Seek, Test, Treat and Retain (STTR) Collaboration Project that involved over twenty studies in the fields of HIV and drug abuse. All studies were independently developed, but were chosen for the collaboration because they focused on one or more steps of the HIV treatment cascade: Seek, Test, Treat and Retain. As part of STTR Collaboration Project, the studies were grouped into Criminal Justice-related studies and Vulnerable Population-related studies. The data collected by these studies included twelve common domains (e.g., Demographic characteristics, Mental Health) in each of which a shared questionnaire or instrument was taken up by the studies and adapted to fit the study.
Linking Infectious and Narcology Care (LINC) involved coordination between the narcology and HIV systems of care utilizing HIV strengths-based case management delivered via five one-on-one sessions by a peer case manager (i.e., HIV-infected men and women in recovery from addiction) to help motivate and reduce barriers to HIV care. The initial session was designed to be delivered in the narcology hospital and included provision of CD4 test results by the case manager (CM) in a timely fashion, to increase engagement in HIV medical care. Subsequent sessions were conducted upon discharge from the narcology hospital over a 6-month period in community (e.g., parks, coffee shops) or clinic locations, agreed upon by the case manager and participant.
The LINC intervention was developed via adaptation of the Antiretroviral Treatment Access Study (ARTAS) intervention for use in the Russian setting and specifically with people who inject drugs (PWID).
Los Angeles Metropolitan Area Surveys [LAMAS] 6, 1973 (ICPSR 36615)
The Los Angeles Metropolitan Area Studies [LAMAS] 6, 1973 collection reflects data gathered in 1973 as part of the Los Angeles Metropolitan Area Studies (LAMAS). The LAMAS, beginning in the spring of 1970, are a shared-time omnibus survey of Los Angeles County community members, usually repeated twice annually. The LAMAS were conducted ten times between 1970 and 1976 in an effort to develop a set of standard community profile measures appropriate for use in the planning and evaluation of public policy.
The LAMAS instruments, indexes, and scales used to track the development and course of social indicators (including social, psychological, health, and economic variables) and the impact of public policy on the community. Questions in this year of the LAMAS cover respondents' attitudes toward the following topics: air pollution, health care services in the community, local government politics, police relations, recreation and leisure time. In addition, participating researchers were given the option of submitting questions to be asked in addition to the core items. These additional question topics include: sleep habits, the true self, impact of computers, job seeking behavior, and mental health and psychological factors.
Demographic variables in this collection include sex, age, race, ethnicity, education, occupation, income, religion, marital status, birth place, and housing type.
Positive Connections: Connecting HIV-Infected Patients to Care, 2004-2006 [United States] (ICPSR 22482)
Retention Challenges for HIV-Infected Primary Care Patients 2001-2004 [United States] (ICPSR 22220)
Seek, Test, Treat and Retain Strategies Leveraging Mobile Health Technologies (Connect4Care), San Francisco, California, 2013-2015 (ICPSR 39783)
This study is part of the Seek, Test, Treat and Retain (STTR) Collaboration Project that involved over twenty studies in the fields of HIV and drug abuse. All studies were independently developed, but were chosen for the collaboration because they focused on one or more steps of the HIV treatment cascade: Seek, Test, Treat and Retain. As part of STTR Collaboration Project, the studies were grouped into Criminal Justice-related studies and Vulnerable Population-related studies. The data collected by these studies included twelve common domains (e.g., Demographic characteristics, Mental Health) in each of which a shared questionnaire or instrument was taken up by the studies and adapted to fit the study.
Connect4Care (C4C) was a single site, randomized year-long study of Short Message Service (SMS) primary care appointment reminders vs. SMS primary care appointment reminders plus thrice-weekly supportive, informational, and motivational SMS messages. Eligible consenting patients were allocated 1:1 to the two arms within strata defined by HIV diagnosis within the past 12 months (i.e. "newly diagnosed") vs. earlier.