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This study is part of the Seek, Test, Treat and Retain (STTR) Collaboration Project that involved over twenty studies in the fields of HIV and drug abuse. All studies were independently developed, but were chosen for the collaboration because they focused on one or more steps of the HIV treatment cascade: Seek, Test, Treat and Retain. As part of STTR Collaboration Project, the studies were grouped into Criminal Justice-related studies and Vulnerable Population-related studies. The data collected by these studies included twelve common domains (e.g., Demographic characteristics, Mental Health) in each of which a shared questionnaire or instrument was taken up by the studies and adapted to fit the study.

Using a randomized controlled study design, this study tested the efficacy of an abstinence-reinforcing CM intervention compared with a control condition (performance feedback) on HIV viral load (VL) suppression. The intervention CM group could receive up to $1320 in vouchers over the 16-week intervention based on drug-free urine. Participants were followed for 28 weeks (44 visits), with research visits occurring twice weekly during the Baseline Period (weeks 1-4, visits 1-8) and Intervention Period (weeks 5-20, visits 9-40), then every two weeks during the Post-Intervention Period (weeks 21-28, visits 41-44).

The Behavioral Risk Factor Surveillance System (BRFSS) is a system of health-related telephone surveys that collect state data about U.S. residents regarding their health-related risk behaviors, chronic health conditions, and use of preventive services. Established in 1984 with 15 states, BRFSS now collects data in all 50 states as well as the District of Columbia and three U.S. territories. BRFSS completes more than 400,000 adult interviews each year.

The Health and Aging in Africa: A Longitudinal Study of an INDEPTH Community in South Africa (HAALSI) study is a population-based survey that aims to examine and characterize a population of older men and women in rural South Africa with respect to health, physical and cognitive function, aging, and well-being, in harmonization with other Health and Retirement Studies.

The baseline survey was conducted among 5,059 men and women aged 40 years or older, who were sampled from within the existing framework of the Agincourt health and socio-demographic surveillance system (AHDSS), in rural Mpumalanga province, South Africa. Survey data were collected on cognitive and physical functioning, social networks, cardiometabolic disease and risk factors, HIV and HIV risk, and economic well-being. The survey also included anthropometric measures and point-of-care blood tests for hemoglobin, glucose and lipids. Dried bloodspots (DBS) were collected at the survey and later tested for HIV, HIV viral load, glucose and CRP. A sub-sample had more extensive laboratory follow-up testing, which will be available in future data releases. A second wave of the survey was administered in 2018 through 2019, and a third wave of the survey was administered in 2021 through 2022.

Demographic information includes age, sex, income, education, marital status, number of children, and employment.

Harvard dataverse hosts an additional restricted-use dataset which compliments this collection, the HAALSI Baseline HIV Biomarker Data; users interested in obtaining these data must request access based on the terms outlined in the data use agreement.

The Los Angeles Metropolitan Area Surveys [LAMAS] 1, 1970 collection features data gathered in 1970 as part of the Los Angeles Metropolitan Area Surveys (LAMAS). The LAMAS, beginning in the spring of 1970, are a shared-time omnibus survey of Los Angeles County community members, usually repeated twice annually. The LAMAS were conducted ten times between 1970 and 1976 in an effort to develop a set of standard community profile measures appropriate for use in the planning and evaluation of public policy.

The LAMAS instruments, indexes, and scales were used to track the development and course of social indicators (including social, psychological, health, and economic variables) and the impact of public policy on the community. Questions in this survey covered respondents' attitudes toward the following topics: air pollution, health care services in the community, local government politics, police relations, recreation, and leisure time. In addition, participating researchers were given the option of submitting questions to be asked in addition to the core items. Additional question topics included: politics in general, mobility, housing, schools, segregation, and social attitudes and opinions.

Demographic information collected includes age, race, sex, religion, marital status, education, income, and geographic origin.

The Los Angeles Metropolitan Area Surveys [LAMAS] 2, 1970 collection reflects data gathered in 1970 as part of the Los Angeles Metropolitan Area Surveys (LAMAS). The LAMAS, beginning in the spring of 1970, are a shared-time omnibus survey of Los Angeles County community members, usually repeated twice annually. The LAMAS were conducted ten times between 1970 and 1976 in an effort to develop a set of standard community profile measures appropriate for use in the planning and evaluation of public policy.

The LAMAS instruments, indexes, and scales were used to track the development and course of social indicators (including social, psychological, health, and economic variables) and the impact of public policy on the community. Questions in this survey cover respondents' attitudes toward the following topics: air pollution, health care services in the community, local government politics, police relations, recreation, and leisure time. In addition, participating researchers were given the option of submitting questions to be asked in addition to the core items. These additional question topics include: sleep habits, the true self, impact of computers, job seeking behavior, and mental health and psychological factors.

Demographic variables included in this dataset include age, marital status, religion, sex, education, income, geographic origin, and race.

The Los Angeles Metropolitan Area Surveys [LAMAS] 5, 1972 collection reflects data gathered in 1972 as part of the Los Angeles Metropolitan Area Surveys (LAMAS). The LAMAS, beginning in the spring of 1970, were a shared-time omnibus survey of Los Angeles County community members, usually repeated twice annually. The LAMAS were conducted ten times between 1970 and 1976 in an effort to develop a set of standard community profile measures appropriate for use in the planning and evaluation of public policy.

The LAMAS instruments, indexes, and scales were used to track the development and course of social indicators (including social, psychological, health, and economic variables) and the impact of public policy on the community. Questions in this survey covered respondents' attitudes toward the following topics: health care services in the community, problems facing Los Angeles and the United States, psychological well-being, civic engagement, political party affiliation, and financial well-being. In addition, participating researchers were given the option of submitting questions to be asked in addition to the core items. These additional question topics included: air pollution, drinking and driving, and school and residential desegregation.

Demographic variables in this collection include age, marital status, sex, education, income, household size, race, ethnicity, and housing type.

The Los Angeles Metropolitan Area Studies [LAMAS] 6, 1973 collection reflects data gathered in 1973 as part of the Los Angeles Metropolitan Area Studies (LAMAS). The LAMAS, beginning in the spring of 1970, are a shared-time omnibus survey of Los Angeles County community members, usually repeated twice annually. The LAMAS were conducted ten times between 1970 and 1976 in an effort to develop a set of standard community profile measures appropriate for use in the planning and evaluation of public policy.

The LAMAS instruments, indexes, and scales used to track the development and course of social indicators (including social, psychological, health, and economic variables) and the impact of public policy on the community. Questions in this year of the LAMAS cover respondents' attitudes toward the following topics: air pollution, health care services in the community, local government politics, police relations, recreation and leisure time. In addition, participating researchers were given the option of submitting questions to be asked in addition to the core items. These additional question topics include: sleep habits, the true self, impact of computers, job seeking behavior, and mental health and psychological factors.

Demographic variables in this collection include sex, age, race, ethnicity, education, occupation, income, religion, marital status, birth place, and housing type.

The Los Angeles Metropolitan Area Surveys [LAMAS] 7, 1973 collection reflects data gathered in 1973 as part of the Los Angeles Metropolitan Area Studies (LAMAS). The LAMAS, beginning in the spring of 1970, are a shared-time omnibus survey of Los Angeles County community members, usually repeated twice annually. The LAMAS were conducted ten times between 1970 and 1976 in an effort to develop a set of standard community profile measures appropriate for use in the planning and evaluation of public policy.

The LAMAS instruments, indexes, and scales were used to track the development and course of social indicators (including social, psychological, health, and economic variables) and the impact of public policy on the community. Questions in this survey cover respondents' attitudes toward the following topics: community and public services, local government politics, political efficacy, residential mobility, and integration of their neighborhood. In addition, participating researchers were given the option of submitting questions to be asked in addition to the core items. These additional question topics include: travel time to work, number of vehicles, means of transportation, and alcohol use, as well as drinking and driving.

Demographic variables in this collection include sex, age, race, ethnicity, education, occupation, income, religion, marital status, birth place, and housing type.

The Los Angeles Metropolitan Area Surveys [LAMAS] 9, 1974 collection reflects data gathered in 1974 as part of the Los Angeles Metropolitan Area Surveys (LAMAS). The LAMAS, beginning in the spring of 1970, were a shared-time omnibus survey of Los Angeles community members, usually repeated twice annually. The LAMAS were conducted ten times between 1970 and 1976 in an effort to develop a set of standard community profile measures appropriate for use in the planning and evaluation of public policy.

The LAMAS instruments, indexes, and scales were used to track the development and course of social indicators (including social, psychological, health, and economic variables) and the impact of public policy on the community. Questions in this survey covered respondents' attitudes toward the following topics: health care services in the community, financial well-being, local government politics, drinking and driving, views of President Gerald Ford, migration, and psychological well-being. Participating researchers were given the option of submitting questions to be asked in addition to the core items. These additional question topics included: medical care, health, and personal values.

Demographic variables in this dataset include age, sex, education, marital status, household size, income, race, ethnicity, geographic origin, and housing type.

The Midlife in the United States (MIDUS) is a collaborative, interdisciplinary investigation of patterns, predictors, and consequences of midlife development in the areas of physical health, psychological well-being, and social responsibility. A description of the study and findings from it are available at http://www.midus.wisc.edu.

The first wave of the MIDUS study (MIDUS 1 or M1) collected survey data from a total of 7,108 participants. The baseline sample was comprised of individuals from four subsamples: (1) a national RDD (random digit dialing) sample (n=3,487); (2) oversamples from five metropolitan areas in the U.S. (n=757); (3) siblings of individuals from the RDD sample (n=950); and (4) a national RDD sample of twin pairs (n=1,914). All eligible participants were non-institutionalized, English-speaking adults in the coterminous United States, aged 25 to 74.

Data from the samples were collected primarily in 1995/96. The survey (Project 1) dataset contains responses from a 30-minute Phone interview and two 50-page Self-Administered Questionnaire (SAQ) instruments. Of the 7,108 respondents who completed the Phone interview, 6,325 also completed the SAQ.

This updated version of the study is comprised of three primary datasets:

Dataset 1, Main, Siblings, and Twin Data, contains responses from the main survey of 7,108 respondents. Respondents were asked to provide extensive information on their physical and mental health throughout their adult lives, and to assess the ways in which their lifestyles, including relationships and work-related demands, contributed to the conditions experienced. Those queried were asked to describe their histories of physical ailments, including heart-related conditions and cancer, as well as the treatment and/or lifestyle changes they went through as a result. A series of questions addressed alcohol, tobacco, and illegal drug use, and focused on history of use, regularity of use, attempts to quit, and how the use of those substances affected respondents' physical and mental well-being. Additional questions addressed respondents' sense of control over their health, their awareness of changes in their medical conditions, commitment to regular exercise and a healthy diet, experience with menopause, the decision-making process used to deal with health concerns, experiences with nontraditional remedies or therapies, and history of attending support groups. Respondents were asked to compare their overall well-being with that of their peers and to describe social, physical, and emotional characteristics typical of adults in their 20's, 40's, and 60's. Information on the work histories of respondents and their significant others was also elicited, with items covering the nature of their occupations, work-related physical and emotional demands, and how their personal health had correlated to their jobs. An additional series of questions focusing on childhood queried respondents regarding the presence/absence of their parents, religion, rules/punishments, love/affection, physical/verbal abuse, and the quality of their relationships with their parents and siblings. Respondents were also asked to consider their personal feelings of accomplishment, desire to learn, sense of control over their lives, interests, and hopes for the future.

The Datasets previously numbered 2 and 3 have been removed to avoid redundancies, and all datasets have been renumbered. Please refer to the readme file.

Dataset 2, Twin Screener Data, provides the first national sample of twin pairs ascertained randomly via the telephone.

Dataset 3, Coded Text Responses, describes how open-ended textual responses in the MIDUS 1 Computer-Assisted Telephone Interview (CATI) and Self-Administered Questionnaire (SAQ) were transformed into categorical numeric codes. These codes are included in a stand-alone dataset containing only those cases (N=3,950) that contained text data in their responses.

Online Analysis Only: Datasets 1, 2, and 3 were merged together by the SU_ID variable to form "Merged Data with Weights (Online Analysis Only)" (Dataset 4) for online analysis capabilities.

MIDUS also maintains a Colectica portal, which allows users to interact with variables across waves and create customized subsets. Registration is required.

In 1995-1996, the MacArthur Midlife Research Network carried out a national survey of 7,108 Americans aged 25 to 74 (MIDLIFE IN THE UNITED STATES (MIDUS), 1995-1996 [ICPSR 2760]). The purpose of the study was to investigate the role of behavioral, psychological, and social factors in understanding age-related differences in physical and mental health. The study was innovative for its broad scientific scope, its diverse samples (which included twins and the siblings of main sample respondents), and its creative use of in-depth assessments in key areas (e.g., daily stress and cognitive functioning). A description of the study and findings from it are available at http://www.midus.wisc.edu. With support from the National Institute on Aging, a longitudinal follow-up of the original MIDUS samples: core sample (N = 3,487), metropolitan over-samples (N = 757), twins (N = 925 complete pairs), and siblings (N = 950), was conducted in 2004-2006. Guiding hypotheses for it, at the most general level, were that behavioral and psychosocial factors are consequential for physical and mental health. MIDUS 2 respondents were aged 35 to 86. Data collection largely repeated baseline assessments (e.g., phone interview and extensive self-administered questionnaire), with additional questions in selected areas (e.g., cognitive functioning, optimism and coping, stressful life events, and caregiving). To add refinements to MIDUS 2, an African American sample (N = 592) was recruited from Milwaukee, Wisconsin, who participated in a personal interview and completed a questionnaire paralleling the above assessments. Survey data for the Milwaukee sample are available in a separate project [ICPSR 22840]. Also administered was a modified form of the mail questionnaire, via telephone, to respondents who did not complete a self-administered questionnaire.

In 1995-1996, the MacArthur Midlife Research Network carried out a national survey of over 7,000 Americans aged 25 to 74 [ICPSR 2760]. The purpose of the study was to investigate the role of behavioral, psychological, and social factors in understanding age-related differences in physical and mental health. The study was innovative for its broad scientific scope, its diverse samples (which included siblings of the main sample respondents and a national sample of twin pairs), and its creative use of in-depth assessments in key areas (e.g. daily diary of stressful experiences [ICPSR 3725] and cognitive functioning [ICPSR 3596]) on a subset of participants. A detailed description of the study and findings generated by it are available at: http://www.midus.wisc.edu

With support from the National Institute on Aging, a follow-up of the original Midlife Development in the United States (MIDUS) sample was conducted in 2004 (MIDUS 2 [ICPSR 4652]). The daily stress and cognitive functioning projects were repeated and expanded at MIDUS 2; in addition the protocol was expanded to include biomarkers and neuroscience.

In 2013 a third wave (MIDUS 3) of survey data was collected on longitudinal participants. Data collection for this follow-up wave largely repeated baseline assessments (e.g., phone interview and extensive self-administered questionnaire), with additional questions in selected areas such as economic recession experiences. Cognitive functioning data were also collected at the same time, while data collection for the daily diary, biomarker, and neuroscience projects commenced in 2017.

MIDUS also maintains a Colectica portal, which allows users to interact with variables across waves and create customized subsets. Registration is required.

In 2011-2014, the MIDUS Refresher study recruited a national probability sample of 3,577 adults, aged 25 to 74, designed to replenish the original MIDUS 1 baseline cohort and paralleling the five decadal age groups of the MIDUS 1 baseline survey [ICPSR 2760]. The MIDUS Refresher survey employed the same comprehensive assessments as those assembled on the existing MIDUS sample, but with additional questions about the effect of the economic recession of 2008-09.

The MIDUS Refresher collection is split into two datasets: Aggregate Data and Coded Text Data. The Coded Text Dataset provides coded responses to open-ended question items in the Aggregate Dataset. The survey data collection (Project 1) [MIDUS, ICPSR 2760] consisted of a 30-minute phone interview followed by two 50-page mailed self-administered questionnaires. Survey data were collected on demographic, psycho-social, and physical and mental health information. This new crosssectional MIDUS sample allows the examination of period effects on health (mental and physical) related to the economic recession by comparing the pre-recession MIDUS 1 sample with the post-recession MIDUS Refresher sample. A further objective of the MIDUS Refresher sample was to strengthen cross-project analyses in MIDUS by increasing the sample sizes available for testing hypotheses dealing with the interplay of key factors (e.g., socioeconomic status, gender, psychosocial factors, biological factors) in mid- and laterlife health. To that end, the MIDUS Refresher sample followed the same multi-disciplinary protocol established in the main MIDUS sample, in that after completing the survey protocol respondents were asked to complete a cognitive assessment by phone (Project 3) [MIDUS 3, ICPSR 36346] and later became eligible to participate in daily diary assessments (Project 2) [MIDUS 2, ICPSR 4652] biomarker assessments (Project 4) [MIDUS 2: Biomarker Project, ICPSR 29282] and neuroscience assessments (Project 5) [MIDUS 2: Neuroscience Project, ICPSR 28683].

The MIDUS Refresher was funded by the National Institute on Aging as two separate but related efforts: The MIDUS Refresher younger decades (MRY), was fielded in November, 2011, and recruited over 2,100 new participants aged 25 to 54; Funding was later added for the MIDUS Refresher older decades (MRO), which was fielded in June, 2013 and recruited over 1,400 new participants aged 55 to 74.

Demographic variables include age, sex, gender, race, religion, and marital status.

The NCS-2 was a re-interview of 5,001 individuals who participated in the Baseline (NCS-1). The study was conducted a decade after the initial baseline survey. The aim was to collect information about changes in mental disorders, substance use disorders, and the predictors and consequences of these changes over the ten years between the two surveys. The collection contains three major sections: the main survey, demographic data, and diagnostic data.

In the main survey, respondents were asked about general physical and mental health. Questions focused on a variety of health issues, including limitations caused by respondents' health issues, substance use, childhood health, life-threatening illnesses, chronic conditions, medications taken in the past 12 months, level of functioning and symptoms experienced in the past 30 days, and any services used by the respondents since the (NCS-1). Additional questions focused on mental disorders including depression, bipolar disorder, specific and social phobias, generalized anxiety, intermittent explosive disorder, suicidality, post-traumatic stress disorder, neurasthenia, pre-menstrual dysphoric disorder, attention deficit/hyperactivity disorder, oppositional defiant disorder, conduct disorder, and separation anxiety. Respondents were also asked about their lives in general, with topics including employment, finances, marriage, children, their social lives, and stressful life events experienced in the past 12 months. Additionally, two personality assessments were included consisting of respondents' opinions on whether various true/false statements accurately described their personalities. Another focus of the main survey dealt with substance use and abuse, nonmedical use of prescription drugs, and polysubstance use. Interview questions in the NCS-2 Main Survey were customized to each respondent based on previous responses in the Baseline (NCS-1).

The middle section contains demographic and other background information including age, education, employment, household composition, household income, marital status, and region.

The last section of the collection focused on whether respondents met diagnostic criteria for psychological disorders asked about in the main survey.

The NCS-2 was a re-interview of 5,001 individuals who participated in the Baseline (NCS-1). The study was conducted a decade after the initial baseline survey. The aim was to collect information about changes in mental disorders, substance use disorders, and the predictors and consequences of these changes over the ten years between the two surveys. The collection contains four major sections: the main survey, demographic data, diagnostic data, and state, county, and tract FIPS data.

In the main survey, respondents were asked about general physical and mental health. Questions focused on a variety of health issues, including limitations caused by respondents' health issues, substance use, childhood health, life-threatening illnesses, chronic conditions, medications taken in the past 12 months, level of functioning and symptoms experienced in the past 30 days, and any services used by the respondents since the (NCS-1). Additional questions focused on mental disorders including depression, bipolar disorder, specific and social phobias, generalized anxiety, intermittent explosive disorder, suicidality, post-traumatic stress disorder, neurasthenia, pre-menstrual dysphoric disorder, attention deficit/hyperactivity disorder, oppositional defiant disorder, conduct disorder, and separation anxiety. Respondents were also asked about their lives in general, with topics including employment, finances, marriage, children, their social lives, and stressful life events experienced in the past 12 months. Additionally, two personality assessments were included consisting of respondents' opinions on whether various true/false statements accurately described their personalities. Another focus of the main survey dealt with substance use and abuse, nonmedical use of prescription drugs, and polysubstance use. Interview questions in the NCS-2 Main Survey were customized to each respondent based on previous responses in the Baseline (NCS-1).

The second part contains demographic and other background information including age, education, employment, household composition, household income, marital status, and region.

The third part focuses on whether respondents met diagnostic criteria for psychological disorders asked about in the main survey.

The fourth part contains respondents' state, county, and tract FIPS data.

The purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. Implementation of a redesigned NHIS, consisting of a basic module, a periodic module, and a topical module, began in 1997 (See NATIONAL HEALTH INTERVIEW SURVEY, 1997 [ICPSR 2954]).

The 2001 NHIS contains the Household, Family, Person, Sample Adult, Sample Child, Child Immunization, and Injury and Poison Episode data files from the basic module. Each record in the Household-Level File (Part 1) contains data on type of living quarters, number of families in the household responding and not responding, and the month and year of the interview for each sampling unit.

The Family-Level File (Part 2) is made up of reconstructed variables from the person-level data of the basic module and includes information on sex, age, race, marital status, Hispanic origin, education, veteran status, family income, family size, major activities, health status, activity limits, and employment status, along with industry and occupation.

As part of the basic module, the Person-Level File (Part 3) provides information on all family members with respect to health status, limitation of daily activities, cognitive impairment, and health conditions. Also included are data on years at current residence, region variables, height, weight, bed days, doctor visits, hospital stays, and health care access and utilization.

A randomly-selected adult in each family was interviewed for the Sample Adult File (Part 4) regarding respiratory conditions, renal conditions, AIDS, joint symptoms, health status, limitation of daily activities, and behaviors such as smoking, alcohol consumption, and physical activity. Also included in this file are variables pertaining to the Healthy People 2010 Objectives.

The Sample Child File (Part 5) provides information from an adult in the household on medical conditions of one child in the household, such as respiratory problems, seizures, allergies, and use of special equipment such as hearing aids, braces, or wheelchairs. Also included are variables regarding child behavior, the use of mental health services, and Attention Deficit Hyperactivity Disorder (ADHD).

The Child Immunization File (Part 6) presents information from shot records and supplies vaccination status, along with the number and dates of shots, and information about the chicken pox vaccine.

Episode-based information regarding injuries and poisonings are found in the Injury and Poison Episode File (Part 7), which examines the cause and date of injury or poisoning, loss of time from work or school, and whether the episode resulted in hospitalization.

Information in the Injury and Poison Verbatim File (Part 8) is comprised of narrative text describing injuries, including type of injury, how the injury occurred, and the body part injured.

Downloads of Add Health require submission of the following information, which is shared with the original producer of Add Health: supervisor name, supervisor email, and reason for download. A Data Guide for this study is available as a web page and for download.

The National Longitudinal Study of Adolescent to Adult Health (Add Health), 1994-2018 [Public Use] is a longitudinal study of a nationally representative sample of U.S. adolescents in grades 7 through 12 during the 1994-1995 school year. The Add Health cohort was followed into young adulthood with four in-home interviews, the most recent conducted in 2008 when the sample was aged 24-32. Add Health combines longitudinal survey data on respondents' social, economic, psychological, and physical well-being with contextual data on the family, neighborhood, community, school, friendships, peer groups, and romantic relationships.

Add Health Wave I data collection took place between September 1994 and December 1995, and included both an in-school questionnaire and in-home interview. The in-school questionnaire was administered to more than 90,000 students in grades 7 through 12, and gathered information on social and demographic characteristics of adolescent respondents, education and occupation of parents, household structure, expectations for the future, self-esteem, health status, risk behaviors, friendships, and school-year extracurricular activities. All students listed on a sample school's roster were eligible for selection into the core in-home interview sample. In-home interviews included topics such as health status, health-facility utilization, nutrition, peer networks, decision-making processes, family composition and dynamics, educational aspirations and expectations, employment experience, romantic and sexual partnerships, substance use, and criminal activities. A parent, preferably the resident mother, of each adolescent respondent interviewed in Wave I was also asked to complete an interviewer-assisted questionnaire covering topics such as inheritable health conditions, marriages and marriage-like relationships, neighborhood characteristics, involvement in volunteer, civic, and school activities, health-affecting behaviors, education and employment, household income and economic assistance, parent-adolescent communication and interaction, parent's familiarity with the adolescent's friends and friends' parents.

Add Health data collection recommenced for Wave II from April to August 1996, and included almost 15,000 follow-up in-home interviews with adolescents from Wave I. Interview questions were generally similar to Wave I, but also included questions about sun exposure and more detailed nutrition questions. Respondents were asked to report their height and weight during the course of the interview, and were also weighed and measured by the interviewer.

From August 2001 to April 2002, Wave III data were collected through in-home interviews with 15,170 Wave I respondents (now 18 to 26 years old), as well as interviews with their partners. Respondents were administered survey questions designed to obtain information about family, relationships, sexual experiences, childbearing, and educational histories, labor force involvement, civic participation, religion and spirituality, mental health, health insurance, illness, delinquency and violence, gambling, substance abuse, and involvement with the criminal justice system. High School Transcript Release Forms were also collected at Wave III, and these data comprise the Education Data component of the Add Health study.

Wave IV in-home interviews were conducted in 2008 and 2009 when the original Wave I respondents were 24 to 32 years old. Longitudinal survey data were collected on the social, economic, psychological, and health circumstances of respondents, as well as longitudinal geographic data. Survey questions were expanded on educational transitions, economic status and financial resources and strains, sleep patterns and sleep quality, eating habits and nutrition, illnesses and medications, physical activities, emotional content and quality of current or most recent romantic/cohabiting/marriage relationships, and maltreatment during childhood by caregivers. Dates and circumstances of key life events occurring in young adulthood were also recorded, including a complete marriage and cohabitation history, full pregnancy and fertility histories from both men and women, an educational history of dates of degrees and school attendance, contact with the criminal justice system, military service, and various employment events, including the date of first and current jobs, with respective information on occupation, industry, wages, hours, and benefits. Finally, physical measurements and biospecimens were also collected at Wave IV, and included anthropometric measures of weight, height and waist circumference, cardiovascular measures such as systolic blood pressure, diastolic blood pressure, and pulse, metabolic measures from dried blood spots assayed for lipids, glucose, and glycosylated hemoglobin (HbA1c), measures of inflammation and immune function, including High sensitivity C-reactive protein (hsCRP) and Epstein-Barr virus (EBV).

Wave V data collection took place from 2016 to 2018, when the original Wave I respondents were 33 to 43 years old. For the first time, a mixed mode survey design was used. In addition, several experiments were embedded in early phases of the data collection to test response to various treatments. A similar range of data was collected on social, environmental, economic, behavioral, and health circumstances of respondents, with the addition of retrospective child health and socio-economic status questions. Physical measurements and biospecimens were again collected at Wave V, and included most of the same measures as at Wave IV.

The overall goal of Wave VI was to better understand life course trajectories, determinants, and consequences of critical dimensions of aging, health, and health disparities among U.S. early midlife adults. Data collection took place from 2022 to 2025, with participants between the ages of 39 and 51, with an average age of 44. Beyond longitudinal survey measures, newly added questions included those on cumulative stress, discrimination, despair, work-life balance, memory, physical limitations, and caregiving. Continuing from previous waves, home exams collected physical measurements and biospecimens with most of the same measures as Wave V.

This study is part of the Seek, Test, Treat and Retain (STTR) Collaboration Project that involved over twenty studies in the fields of HIV and drug abuse. All studies were independently developed, but were chosen for the collaboration because they focused on one or more steps of the HIV treatment cascade: Seek, Test, Treat and Retain. As part of STTR Collaboration Project, the studies were grouped into Criminal Justice-related studies and Vulnerable Population-related studies. The data collected by these studies included twelve common domains (e.g., Demographic characteristics, Mental Health) in each of which a shared questionnaire or instrument was taken up by the studies and adapted to fit the study.

This study is divided into BCAP1/2 and BCU (or BCAP3):

BCAP1/2

• Compares Respondent-driven sampling (RDS)and Venue-based sampling (VBS) recruitment in terms of numbers of new diagnosis of HIV+ and examines the effectiveness of peer-driven intervention (PDI) in heterosexuals at high risk (HHR). BCAP2 only includes those who tested HIV+ in BCAP1 who were included in recruitment but not in the main analyses. PDI involving structured intervention sessions including a computerized "CARE for Prevention" tool and HIV pre-test and post-test counseling, the opportunity to educate three peers on core education messages, and navigation for those HIV infected. If HIV-negative: total 3.5 hours of facilitated/computer intervention activities, plus peer education experiences; if HIV-positive: 5 hrs facilitated/computer activities, plus peer education experiences and six months of navigation.

BCU (or BCAP3)

• BCU is a supplement study to BCAP1/2 and tests an anonymous, single-session HIV testing intervention (ASTN) in the same high-risk area (HRA) in Brooklyn as BCAP1/2 and compare to CTTN in two phases: the Seek and Test phase (N=750), and Treat and Retain phase (N=65). The primary endpoint of the Seek and Test intervention phase is the relative yield (proportion of newly identified HIV infections) of the RDS-ASTN intervention. The study assesses the proportion of those newly diagnosed that engages in activities of the Treat and Retain part (i.e., feasibility). The primary endpoints for the Treat and Retain intervention phase are the proportion linked to care within three months (i.e., attending a care appointment and receiving CD4 and viral load tests) and time to the HIV care appointment.1 BCU2 only includes those who tested positive in BCU1 who were included in ST counseling sessions and blood collection but not included in TrR phase.

This feasibility study tested the logistics and acceptance of the intervention and its evaluation tools against "usual care" conditions in preparation for a future randomized controlled trial. Specific aims included:

1. Demonstrating that recruitment and delivery of the intervention are feasible.
2. Demonstrating that enrolled releasees will link to HIV care by 3 months post release. A successful linkage to HIV medical care was defined as a confirmed visit to a clinic post release, validated by a recorded HIV viral load and CD4 count in the clinic's medical records.
3. Documenting retention in care, defined as a minimum of 2 HIV clinical visits occurring within 12 months post release, with at least 2 clinical visits spaced a minimum of 3 months apart. Related retention outcome measures included proportion with viral load suppression and, as needed, attendance at substance abuse rehabilitation, and mental health treatment.

Data was collected at baseline, and at 3 and 12 months post-release. The 1st and 2nd sessions occurred in jail and 4 post-release sessions in the community.

The Research on Early Life and Aging Trends and Effects (RELATE) study compiles cross-national data that contain information that can be used to examine the effects of early life conditions on older adult health conditions, including heart disease, diabetes, obesity, functionality, mortality, and self-reported health. The complete cross sectional/longitudinal dataset (n=147,278) was compiled from major studies of older adults or households across the world that in most instances are representative of the older adult population either nationally, in major urban centers, or in provinces. It includes over 180 variables with information on demographic and geographic variables along with information about early life conditions and life course events for older adults in low, middle and high income countries. Selected variables were harmonized to facilitate cross national comparisons.

In this first public release of the RELATE data, a subset of the data (n=88,273) is being released. The subset includes harmonized data of older adults from the following regions of the world: Africa (Ghana and South Africa), Asia (China, India), Latin America (Costa Rica, major cities in Latin America), and the United States (Puerto Rico, Wisconsin). This first release of the data collection is composed of 19 downloadable parts: Part 1 includes the harmonized cross-national RELATE dataset, which harmonizes data from parts 2 through 19. Specifically, parts 2 through 19 include data from Costa Rica (Part 2), Puerto Rico (Part 3), the United States (Wisconsin) (Part 4), Argentina (Part 5), Barbados (Part 6), Brazil (Part 7), Chile (Part 8), Cuba (Part 9), Mexico (Parts 10 and 15), Uruguay (Part 11), China (Parts 12, 18, and 19), Ghana (Part 13), India (Part 14), Russia (Part 16), and South Africa (Part 17).

The Health and Retirement Study (HRS) was also used in the compilation of the larger RELATE data set (HRS) (N=12,527), and these data are now available for public release on the HRS data products page. To access the HRS data that are part of the RELATE data set, please see the collection notes below.

This study is part of the Seek, Test, Treat and Retain (STTR) Collaboration Project that involved over twenty studies in the fields of HIV and drug abuse. All studies were independently developed, but were chosen for the collaboration because they focused on one or more steps of the HIV treatment cascade: Seek, Test, Treat and Retain. As part of STTR Collaboration Project, the studies were grouped into Criminal Justice-related studies and Vulnerable Population-related studies. The data collected by these studies included twelve common domains (e.g., Demographic characteristics, Mental Health) in each of which a shared questionnaire or instrument was taken up by the studies and adapted to fit the study.

The Seek, Test, and Treat (STT) strategies included the following parts:

Part 1

• Tested all detainees at the Milwaukee Secure Detention Facility (MSDF). MSDF is the state-operated detention facility for probation and parole revokees in Milwaukee County.

Part 2

• Linked (or re-linked) all HIV-positive persons and released to Milwaukee County from the WI prison system (including MSDF) to the state's largest HIV treatment and prevention service provider, the AIDS Resource Center of Wisconsin (ARCW).

Part 3

• Sought undiagnosed HIV infection within MSDF releasees' social/sexual risk networks through an innovative releasee-based referral testing strategy.

This study is part of the Seek, Test, Treat and Retain (STTR) Collaboration Project that involved over twenty studies in the fields of HIV and drug abuse. All studies were independently developed, but were chosen for the collaboration because they focused on one or more steps of the HIV treatment cascade: Seek, Test, Treat and Retain. As part of STTR Collaboration Project, the studies were grouped into Criminal Justice-related studies and Vulnerable Population-related studies. The data collected by these studies included twelve common domains (e.g., Demographic characteristics, Mental Health) in each of which a shared questionnaire or instrument was taken up by the studies and adapted to fit the study.

Project VISTA offers drug users in Vietnam HIV testing and counseling (HTC). The primary outcome measure for this study was suppression of HIV-1 viral load below 400 copies/mL (measured at the 6 and 12 month visits). Secondary outcome measures included self-reported antiretroviral adherence, changes in CD4 cell counts, and quality of life.

A secondary seek/test study will be done to evaluate uptake of HIV testing and counseling by network referrals from the RCT participants (the data files will not be part of the STTR integrated data).

This study is part of the Seek, Test, Treat and Retain (STTR) Collaboration Project that involved over twenty studies in the fields of HIV and drug abuse. All studies were independently developed, but were chosen for the collaboration because they focused on one or more steps of the HIV treatment cascade: Seek, Test, Treat and Retain. As part of STTR Collaboration Project, the studies were grouped into Criminal Justice-related studies and Vulnerable Population-related studies. The data collected by these studies included twelve common domains (e.g., Demographic characteristics, Mental Health) in each of which a shared questionnaire or instrument was taken up by the studies and adapted to fit the study.

The overall aim of the START study is to increase the rate of HIV testing among recently released offender populations.

CARE-RAPID (RCT)

• This is a pilot randomized study of a computer-assisted program, the Computer Assessment and Risk-Reduction Education--Rapid (CARE-Rapid). CARE-Rapid was used as means of educating offenders leaving jails about the risk of HIV and gaining their consent for an HIV test. The sample consisted of offenders discharged from jails within the past 90 days and entering a residential substance abuse treatment program. The study used an intent-to-treatment design with random assignment to a CARE-Rapid and a treatment-as-usual (TAU) condition. The outcome of interest was whether participants got an HIV test at admission to the treatment program. Participants were followed-up with at 3 months after baseline. CARE-RAPID was conducted at Samaritan Village Inc, a residential substance abuse treatment center, and includes individuals discharged from Riker's Island or Nassau County Jail.

Project START (Quasi-experimental study)

• Project START is a quasi-experimental pilot study to evaluate the efficacy of Project START, a manualized intervention focusing on reducing risk for HIV. Project START consisted of two sessions in jail and four sessions during the first three months after discharge from a facility for offenders serving one year or less. The intervention was administered by Exponents, not-for-profit organization that offers a number of services, including outpatient substance abuse treatment. All Project START subjects were offered an HIV test and pre- and post-test counseling on their arrival at Exponents post-discharge from Rikers Island. Participants in Project Start were compared to the experimental arm from CARE-RAPID.

Qualitative Interviews

• Qualitative interviews were conducted to gain a better understanding of those aspects of the offender's perceptions and circumstances that facilitate or hinder taking an HIV test. Interviews were with offenders who have been released from New York City and Nassau County Jails in the 90-days prior to entering Exponents for treatment.

The Study of Women's Health Across the Nation (SWAN) is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause.

The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 1997 and 1999, 2,881 of the 3,302 women that joined SWAN were seen for their first follow-up visit. The research centers are located in the following communities: Detroit, MI; Boston, MA; Chicago, IL; Oakland and Los Angeles, CA; Newark, NJ; and Pittsburgh, PA. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.

This study is part of the Seek, Test, Treat and Retain (STTR) Collaboration Project that involved over twenty studies in the fields of HIV and drug abuse. All studies were independently developed, but were chosen for the collaboration because they focused on one or more steps of the HIV treatment cascade: Seek, Test, Treat and Retain. As part of STTR Collaboration Project, the studies were grouped into Criminal Justice-related studies and Vulnerable Population-related studies. The data collected by these studies included twelve common domains (e.g., Demographic characteristics, Mental Health) in each of which a shared questionnaire or instrument was taken up by the studies and adapted to fit the study.

The Testing & Linkage to Care 'TLC_IDU' study aimed to integrate STTR elements to the base Government of Kenya (GoK) program, including rapid CD4 cell count testing, ART treatment support using peer case support, and evaluation of community viral load. TLC_IDU addressed a most at-risk population (MARP) by focusing on Nairobi and coastal Mombasa (including Malindi), where most injecting drug users (IDU) in Kenya reside. Data was collected at baseline and at five semi-annual follow-ups.

The World Health Organization (WHO)'s Study on Global Ageing and Adult Health (SAGE) is a longitudinal follow-up of a cohort of ageing and older adults. SAGE has been built on the experience and standardized instruments of WHO's 2000/2001 Multi-country Survey Study (MCSS) and the 2002/2004 World Health Surveys (WHS).

These surveys focused on health and health-related outcomes and their determinants and impacts in nationally representative samples. These data will address data gaps on ageing, adult health and well-being in lower and middle income countries, whilst being comparable to surveys conducted in higher income countries (such as the United States' Health and Retirement Study (HRS), English Longitudinal Study of Ageing (ELSA), and the Survey of Health, Ageing and Retirement in Europe (SHARE)). One of the major drivers of this effort has been the lack of comparability of self-reported health status in international health surveys due to systematic biases in reporting, despite using similar instruments and attempts at making questions conceptually equivalent in translation. SAGE uses standard instruments developed over the last decade, a common design and training approach with explicit strategies for making data comparable to cover a wide range of issues that directly and indirectly impact health and well-being.

The survey methodology and research design has included a number of methods to address methods for detecting and correcting for systematic reporting biases in health interview surveys, including vignette methodologies, objective performance tests and biomarkers. A number of techniques have also been employed to improve data comparability, including using common definitions of concepts, common methods of data collection and translations, rigorous sample design and post hoc harmonization. The 2007-2010 SAGE Wave 1 data from six countries (China, Ghana, India, Mexico, Russia, and South Africa) is the follow-up survey project to the 2002-2004 WHO data, which constitutes Wave 0 of WHO's Study on Global Ageing and Adult Health (SAGE). A sample of these respondents from SAGE Wave 0 are included in this follow-up 2007-2010 SAGE Wave 1 in the six countries, with new respondents added to ensure a nationally representative sample.

The Youth Development Study (YDS) was initiated as a school-based study of adolescent children and their parents to examine the consequences of formative experiences in adolescence for mental health, value formation, educational achievement, and multiple facets of behavioral adjustment. Particular attention was directed to the impacts of early work experience. Data were also obtained about parent-child and peer relationships and experiences in school. As the study continued, the focus shifted to adult development and attainment and, most recently, mid-life adjustment and health. This comprehensive longitudinal study now encompasses three generations: the initial cohort studied from adolescence to mid-life (G2), their parents (G1), and their adolescent children (G3). Data from three generations in the same families enable study of intergenerational relationships and differences in the experience of adolescence and transition to adulthood across parent and child cohorts. The YDS covers a wide range of topics of interest to sociologists, social psychologists, developmental psychologists, and life course scholars, including the development and impacts of agentic resources, socioeconomic attainment, processes of inter- and intra-generational mobility, objective and subjective work conditions, family relationships, intergenerational relationships, mental and physical health, and well-being.

In-school administration of paper surveys during the first four years of the study was supplemented by mailed surveys. Subsequent data collection took place entirely by mail, with 19 surveys conducted between 1988 and 2011. A final survey was conducted on-line in 2019. Survey data was obtained from the parents (G1) of this cohort during the first and fourth waves of the study (1988 and 1991). Surveys of the children (G3) began in 2009, continued in 2010 and 2011 (by mail) and in 2019-2020 (online).

The Youth Development Study measures a wide range of formative experiences and both psychological and behavioral variables, using survey methodology.

The G1 surveys obtained information about socioeconomic background as well as attitudes toward teenage employment, the parents' own employment as teenagers, their current work experiences, and educational expectations for their children.

The G2 surveys during the high school years included detailed questions about students' work and volunteer experiences, as well as experiences in their family, school, and peer groups, with an emphasis on the ways that working affected other life domains, mental health, and well-being. Shorter surveys containing many of the same topics were administered to students in 1992, 1993, and 1994, and included questions about current family and living arrangements. In 1995, a full survey was administered covering the wide range of topics included in previous surveys as well as information about career plans and life events that had occurred in the past five years. G2 Waves 9 through 19 (1997-2011) included many of the same questions contained in earlier surveys and additional sections that focused on the respondents' educational experiences, family relationships, sources of living expenses, and health and well-being. The most recent G2 survey (2019), administered on-line, included questions about support of aging parents. The YDS is unique in its coverage of both objective and subjective work experiences from adolescence to mid-life.

The topics covered by the G3 surveys are very similar to the G2 variables described above. Variables in each G2 and G3 wave are included in cross-wave codebooks, available at the Data Archive Codebook website.

For an overview of the Youth Development Study, see Mortimer, Jeylan T. (2012) "The Evolution, Contributions, and Prospects of the Youth Development Study: An Investigation in Life Course Social Psychology." Social Psychology Quarterly 75(1, March):5-27.