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This study is part of the Seek, Test, Treat and Retain (STTR) Collaboration Project that involved over twenty studies in the fields of HIV and drug abuse. All studies were independently developed, but were chosen for the collaboration because they focused on one or more steps of the HIV treatment cascade: Seek, Test, Treat and Retain. As part of STTR Collaboration Project, the studies were grouped into Criminal Justice-related studies and Vulnerable Population-related studies. The data collected by these studies included twelve common domains (e.g., Demographic characteristics, Mental Health) in each of which a shared questionnaire or instrument was taken up by the studies and adapted to fit the study.

Using a randomized controlled study design, this study tested the efficacy of an abstinence-reinforcing CM intervention compared with a control condition (performance feedback) on HIV viral load (VL) suppression. The intervention CM group could receive up to $1320 in vouchers over the 16-week intervention based on drug-free urine. Participants were followed for 28 weeks (44 visits), with research visits occurring twice weekly during the Baseline Period (weeks 1-4, visits 1-8) and Intervention Period (weeks 5-20, visits 9-40), then every two weeks during the Post-Intervention Period (weeks 21-28, visits 41-44).

This collection has not been processed by NACDA or ICPSR, and data are released in the format provided by the principal investigators. Please report any data errors or problems to user support, and we will work with you to resolve any data-related issues.

Hawaii Aging with HIV Cardiovascular Study (HAHCS) enrolled HIV-infected volunteer adults age 40 and over, recruited from the state of Hawaii. A natural history longitudinal study, HAHCS followed a cohort of 150 HIV positive subjects for five years. The study is based on observations that, while HIV-infected individuals now live longer because of the availability of highly active antiretroviral therapy, these individuals may be at increased risk of cardiovascular (CV) morbidity and mortality. Rates of well-accepted traditional CV risk factors such as diabetes/hyperglycemia, body morphology changes and smoking are high in the HIV population. Furthermore, there is growing concern that HIV per se may also contribute to CV risk.

HAHCS evaluated the cross-sectional and longitudinal impact of oxidative stress and inflammation on the development of subclinical atherosclerosis. Researchers assessed subclinical atherosclerosis functionally by brachial artery flow mediated vasodilatation (FMD) and structurally by intima-media thickness (IMT) as well as coronary artery calcium score obtained by dual source CT. Data include behavioral health indicators, medical history information, and medical test results. Demographic data include age, sex, and race.

The Iowa Adoption Studies were conducted between 1975 and 2008. The group of studies consist of 5 independent waves of data collection each of which examined genetic (biological) and environmental influences on psychopathology. The adoption paradigm allowed separation of genetic and environmental influences on behavior, as well as joint influences due to gene x environment interaction. Adoptees were interviewed about lifetime psychopathology including substance abuse and dependence, antisocial personality, and mood disorders. A follow-up study was conducted from 2000-2004 that recruited all previous participants and natural offspring of the adoptive parents when available. Standardized psychiatric assessments were administered along with measures of personality disorders and traits, retrospective reports on childhood experiences with adoptive parents, and current symptomatology. An extensive neurocognitive assessment was conducted on a subset of participants who had standardized school achievement scores. The goal of this last wave of assessment was to evaluate the influence of substance use on mid-life cognition and health.

The respondents were assessed using a number of different surveys over the study period. The following describes the notable variables as well as descriptions of the surveys included in the dataset.

The first variables in the dataset identify sibling pairs and provides data on whether the respondents' biological parents suffered from mental health or substance abuse issues. Next birth records are provided that give basic information about the health of the person when he or she was born. This information is followed by the survey results of "The Schedule for Nonadaptive and Adaptive Personality" (SNAP) as well as variables that reflect the diagnosis of personality disorders and nonadaptive personality traits based on the SNAP survey responses.

The next section includes responses from "The Iowa Personality Disorder Screen," a quick personality disorder screen developed in 1999 intended for use in clinical and research settings.

Next, responses to Pearson Assessments "Brief symptoms inventory" are included as well as the scores calculated based on these survey responses. The results of this survey assess the mental state of the patient including scales on Somatization, Obsessive-Compulsive, Interpersonal Sensitivity, Depression, Anxiety, Hostility, Phobic Anxiety, Paranoid Ideation and Psychoticism.

The respondents also completed the "Buss-Durkee Hostility Questionnaire" and were assessed on measure regarding the following hostility traits: negativism, resentment, indirect hostility, assault, suspicion, irritability and verbal hostility.

Reponses to the "The Social Provisions Scale" survey are also included. The purpose of this survey is to assess the relationship the respondents have to other people. The 6 social provisions assessed include: guidance, reliable alliance, reassurance of worth, attachment, social integration, and opportunity for nurturance.

"The Parental Bonding Instrument" instrument was utilized to assess the respondents' relationships to their mothers and fathers.

A series of cognitive tests were administered to respondents. ICPSR is unable to provide the survey instruments used in the cognitive test due to copy write issues. These tests include:

Controlled Oral Word Association Test (COWAT)

North American Adult Reading Test (NAART)

Rey Figure and Rey Complex Figure Test and Recognition Trial (RCFT)

Shipley Institute of Living Scale (SILS)

Stroop Color and Word Test (SCWT)

Tower of Hanoi (TofH)

Comprehensive Trailmaking Test (CTMT)

Weschler Adult Intelligence Test (WAIS)

Weschler Memory Test (WMS)

The dataset also includes respondents' results of the Comprehensive Performance Test (CPT) and the Iowa Gambling Task (IGT)

Scores from the "Iowa Test of Basic Skills," a test of academic achievement that evaluates students knowledge in subjects including, mathematics, reading comprehension, and science, are included in the dataset. Respondents are evaluated in grades 4, 8 and 11.

The final section of the dataset includes two waves of the "Semi Structured Assessment for the Genetics of Alcoholism," a survey intended to assess the physical, psychological, and social manifestations of alcohol abuse. These survey responses make up the bulk of the dataset and include variables on a variety of topics including: demographics, medical history, substance use, eating disorders, depression, dysthymia, mania, ASP, suicide, PTSD, generalized anxiety disorder, OCD, social phobia, agoraphobia, panic disorder, home environment, gambling, and ADHD. Substances use investigated includes alcohol, tobacco, marijuana, sedatives, stimulants, cocaine, opiates, solvents, hallucinogens, and other drugs.

This dataset includes 934 cases and 9,370 variables.

The Los Angeles Metropolitan Area Surveys [LAMAS] 3, 1971 collection reflects data gathered in 1973 as part of the Los Angeles Metropolitan Area Surveys (LAMAS). The LAMAS, beginning in the spring of 1970, are a shared-time omnibus survey of Los Angeles County community members, usually repeated twice annually. The LAMAS were conducted ten times between 1970 and 1976 in an effort to develop a set of standard community profile measures appropriate for use in the planning and evaluation of public policy.

The LAMAS instruments, indexes, and scales were used to track the development and course of social indicators (including social, psychological, health, and economic variables) and the impact of public policy on the community. Questions in this survey cover respondents' attitudes toward the following topics: the concept of a model neighborhood, air pollution, medical problems and health care services in the community, local government politics, police relations, crime, the Mexican-American protests, and public transportation. A sub-sample of households in the San Fernando Area were asked questions about the 1970 earthquake, rating the effectiveness of local government response and the respondents' feelings about possible future disasters.

Demographic variables included in this dataset include age, marital status, religion, sex, education, income, geographic origin, and race.

The Los Angeles Metropolitan Area Surveys [LAMAS] 8, 1974 collection reflects data gathered in 1974 as part of the Los Angeles Metropolitan Area Surveys (LAMAS). The LAMAS, beginning in the spring of 1970, are a shared-time omnibus survey of Los Angeles County community members, usually repeated twice annually. The LAMAS were conducted ten times between 1970 and 1976 in an effort to develop a set of standard community profile measures appropriate for use in the planning and evaluation of public policy.

The LAMAS instruments, indexes, and scales were used to track the development and course of social indicators (including social, psychological, health, and economic variables) and the impact of public policy on the community. Questions in this survey cover respondents' attitudes toward the following topics: commute times, means of transportation, and trust in government. In addition, participating researchers were given the option of submitting questions to be asked in addition to the core items. These additional topics include: mental health and psychological factors, access to medical care, alcoholism, the energy crisis, and attitudes towards black-owned businesses.

Demographic variables in this dataset include age, sex, marital status, ethnicity, education, income, occupation, political party affiliation, and language.

In 1995-1996, the MacArthur Midlife Research Network carried out a national survey of over 7,000 Americans aged 25 to 74 [ICPSR 2760]. The purpose of the study was to investigate the role of behavioral, psychological, and social factors in understanding age-related differences in physical and mental health. The study was innovative for its broad scientific scope, its diverse samples (which included siblings of the main sample respondents and a national sample of twin pairs), and its creative use of in-depth assessments in key areas (e.g. daily diary of stressful experiences [ICPSR 3725] and cognitive functioning [ICPSR 3596]) on a subset of participants. A detailed description of the study and findings generated by it are available at: http://www.midus.wisc.edu

With support from the National Institute on Aging, a follow-up of the original Midlife Development in the United States (MIDUS) sample was conducted in 2004 (MIDUS 2 [ICPSR 4652]). The daily stress and cognitive functioning projects were repeated and expanded at MIDUS 2; in addition the protocol was expanded to include biomarkers and neuroscience.

In 2013 a third wave (MIDUS 3) of survey data was collected on longitudinal participants. Data collection for this follow-up wave largely repeated baseline assessments (e.g., phone interview and extensive self-administered questionnaire), with additional questions in selected areas such as economic recession experiences. Cognitive functioning data were also collected at the same time, while data collection for the daily diary, biomarker, and neuroscience projects commenced in 2017.

MIDUS also maintains a Colectica portal, which allows users to interact with variables across waves and create customized subsets. Registration is required.

The NCS-2 was a re-interview of 5,001 individuals who participated in the Baseline (NCS-1). The study was conducted a decade after the initial baseline survey. The aim was to collect information about changes in mental disorders, substance use disorders, and the predictors and consequences of these changes over the ten years between the two surveys. The collection contains three major sections: the main survey, demographic data, and diagnostic data.

In the main survey, respondents were asked about general physical and mental health. Questions focused on a variety of health issues, including limitations caused by respondents' health issues, substance use, childhood health, life-threatening illnesses, chronic conditions, medications taken in the past 12 months, level of functioning and symptoms experienced in the past 30 days, and any services used by the respondents since the (NCS-1). Additional questions focused on mental disorders including depression, bipolar disorder, specific and social phobias, generalized anxiety, intermittent explosive disorder, suicidality, post-traumatic stress disorder, neurasthenia, pre-menstrual dysphoric disorder, attention deficit/hyperactivity disorder, oppositional defiant disorder, conduct disorder, and separation anxiety. Respondents were also asked about their lives in general, with topics including employment, finances, marriage, children, their social lives, and stressful life events experienced in the past 12 months. Additionally, two personality assessments were included consisting of respondents' opinions on whether various true/false statements accurately described their personalities. Another focus of the main survey dealt with substance use and abuse, nonmedical use of prescription drugs, and polysubstance use. Interview questions in the NCS-2 Main Survey were customized to each respondent based on previous responses in the Baseline (NCS-1).

The middle section contains demographic and other background information including age, education, employment, household composition, household income, marital status, and region.

The last section of the collection focused on whether respondents met diagnostic criteria for psychological disorders asked about in the main survey.

The NCS-2 was a re-interview of 5,001 individuals who participated in the Baseline (NCS-1). The study was conducted a decade after the initial baseline survey. The aim was to collect information about changes in mental disorders, substance use disorders, and the predictors and consequences of these changes over the ten years between the two surveys. The collection contains four major sections: the main survey, demographic data, diagnostic data, and state, county, and tract FIPS data.

In the main survey, respondents were asked about general physical and mental health. Questions focused on a variety of health issues, including limitations caused by respondents' health issues, substance use, childhood health, life-threatening illnesses, chronic conditions, medications taken in the past 12 months, level of functioning and symptoms experienced in the past 30 days, and any services used by the respondents since the (NCS-1). Additional questions focused on mental disorders including depression, bipolar disorder, specific and social phobias, generalized anxiety, intermittent explosive disorder, suicidality, post-traumatic stress disorder, neurasthenia, pre-menstrual dysphoric disorder, attention deficit/hyperactivity disorder, oppositional defiant disorder, conduct disorder, and separation anxiety. Respondents were also asked about their lives in general, with topics including employment, finances, marriage, children, their social lives, and stressful life events experienced in the past 12 months. Additionally, two personality assessments were included consisting of respondents' opinions on whether various true/false statements accurately described their personalities. Another focus of the main survey dealt with substance use and abuse, nonmedical use of prescription drugs, and polysubstance use. Interview questions in the NCS-2 Main Survey were customized to each respondent based on previous responses in the Baseline (NCS-1).

The second part contains demographic and other background information including age, education, employment, household composition, household income, marital status, and region.

The third part focuses on whether respondents met diagnostic criteria for psychological disorders asked about in the main survey.

The fourth part contains respondents' state, county, and tract FIPS data.

The National Social Life, Health and Aging Project (NSHAP) is a population-based study of health and social factors on a national scale, aiming to understand the well-being of older, community-dwelling Americans by examining the interactions among physical health, illness, medication use, cognitive function, emotional health, sensory function, health behaviors, and social connectedness. It is designed to provide health providers, policy makers, and individuals with useful information and insights into these factors, particularly on social and intimate relationships.

The National Opinion Research Center (NORC), along with Principal Investigators at the University of Chicago, conducted more than 3,000 interviews during 2005 and 2006 with a nationally representative sample of adults aged 57 to 85. Face-to-face interviews and biomeasure collection took place in respondents' homes. Round 3 was conducted from September 2015 through November 2016, where 2,409 surviving Round 2 respondents were re-interviewed, and a New Cohort consisting of adults born between 1948 and 1965 together with their spouses or co-resident partners was added. All together, 4,777 respondents were interviewed in Round 3. The following files constitute Round 3: Core Data, Social Networks Data, Disposition of Returning Respondent Partner Data, and Proxy Data.

Included in the Core files (Datasets 1 and 2) are demographic characteristics, such as gender, age, education, race, and ethnicity. Other topics covered respondents' social networks, social and cultural activity, physical and mental health including cognition, well-being, illness, history of sexual and intimate partnerships and patient-physician communication, in addition to bereavement items. In addition data on a panel of biomeasures including, weight, waist circumference, height, and blood pressure was collected. The Social Networks (Datasets 3 and 4) files detail respondents' current relationship status with each person identified on the network roster. The Disposition of Returning Respondent Partner (Datasets 5 and 6) files detail information derived from Section 6A items regarding the partner from Rounds 1 and 2 within the questionnaire. This provides a complete history for respondent partners across both rounds. The Proxy (Datasets 7 and 8) files contain final health data for Round 1 and Round 2 respondents who could not participate in NSHAP due to disability or death.

The COVID-19 sub-study, administered to NSHAP R3 respondents in the Fall of 2020, was a brief self-report questionnaire that probed how the coronavirus pandemic changed older adults' lives. The COVID-19 sub-study questionnaire was limited to assessing specific domains in which respondents may have been affected by the coronavirus pandemic, including: (1) COVID experiences, (2) health and health care, (3) job and finances, (4) social support, (5) marital status and relationship quality, (6) social activity and engagement, (7) living arrangements, (8) household composition and size, (9) mental health, (10) elder mistreatment, (11) health behaviors, and (12) positive impacts of the coronavirus pandemic. Questions about engagement in racial justice issues since the death of George Floyd in police custody were also added to facilitate analysis of the independent and compounding effects of both the COVID-19 pandemic and reckoning with longstanding racial injustice in America.

This study is part of the Seek, Test, Treat and Retain (STTR) Collaboration Project that involved over twenty studies in the fields of HIV and drug abuse. All studies were independently developed, but were chosen for the collaboration because they focused on one or more steps of the HIV treatment cascade: Seek, Test, Treat and Retain. As part of STTR Collaboration Project, the studies were grouped into Criminal Justice-related studies and Vulnerable Population-related studies. The data collected by these studies included twelve common domains (e.g., Demographic characteristics, Mental Health) in each of which a shared questionnaire or instrument was taken up by the studies and adapted to fit the study.

This study is divided into BCAP1/2 and BCU (or BCAP3):

BCAP1/2

• Compares Respondent-driven sampling (RDS)and Venue-based sampling (VBS) recruitment in terms of numbers of new diagnosis of HIV+ and examines the effectiveness of peer-driven intervention (PDI) in heterosexuals at high risk (HHR). BCAP2 only includes those who tested HIV+ in BCAP1 who were included in recruitment but not in the main analyses. PDI involving structured intervention sessions including a computerized "CARE for Prevention" tool and HIV pre-test and post-test counseling, the opportunity to educate three peers on core education messages, and navigation for those HIV infected. If HIV-negative: total 3.5 hours of facilitated/computer intervention activities, plus peer education experiences; if HIV-positive: 5 hrs facilitated/computer activities, plus peer education experiences and six months of navigation.

BCU (or BCAP3)

• BCU is a supplement study to BCAP1/2 and tests an anonymous, single-session HIV testing intervention (ASTN) in the same high-risk area (HRA) in Brooklyn as BCAP1/2 and compare to CTTN in two phases: the Seek and Test phase (N=750), and Treat and Retain phase (N=65). The primary endpoint of the Seek and Test intervention phase is the relative yield (proportion of newly identified HIV infections) of the RDS-ASTN intervention. The study assesses the proportion of those newly diagnosed that engages in activities of the Treat and Retain part (i.e., feasibility). The primary endpoints for the Treat and Retain intervention phase are the proportion linked to care within three months (i.e., attending a care appointment and receiving CD4 and viral load tests) and time to the HIV care appointment.1 BCU2 only includes those who tested positive in BCU1 who were included in ST counseling sessions and blood collection but not included in TrR phase.

This feasibility study tested the logistics and acceptance of the intervention and its evaluation tools against "usual care" conditions in preparation for a future randomized controlled trial. Specific aims included:

1. Demonstrating that recruitment and delivery of the intervention are feasible.
2. Demonstrating that enrolled releasees will link to HIV care by 3 months post release. A successful linkage to HIV medical care was defined as a confirmed visit to a clinic post release, validated by a recorded HIV viral load and CD4 count in the clinic's medical records.
3. Documenting retention in care, defined as a minimum of 2 HIV clinical visits occurring within 12 months post release, with at least 2 clinical visits spaced a minimum of 3 months apart. Related retention outcome measures included proportion with viral load suppression and, as needed, attendance at substance abuse rehabilitation, and mental health treatment.

Data was collected at baseline, and at 3 and 12 months post-release. The 1st and 2nd sessions occurred in jail and 4 post-release sessions in the community.

This study is part of the Seek, Test, Treat and Retain (STTR) Collaboration Project that involved over twenty studies in the fields of HIV and drug abuse. All studies were independently developed, but were chosen for the collaboration because they focused on one or more steps of the HIV treatment cascade: Seek, Test, Treat and Retain. As part of STTR Collaboration Project, the studies were grouped into Criminal Justice-related studies and Vulnerable Population-related studies. The data collected by these studies included twelve common domains (e.g., Demographic characteristics, Mental Health) in each of which a shared questionnaire or instrument was taken up by the studies and adapted to fit the study.

Project VISTA offers drug users in Vietnam HIV testing and counseling (HTC). The primary outcome measure for this study was suppression of HIV-1 viral load below 400 copies/mL (measured at the 6 and 12 month visits). Secondary outcome measures included self-reported antiretroviral adherence, changes in CD4 cell counts, and quality of life.

A secondary seek/test study will be done to evaluate uptake of HIV testing and counseling by network referrals from the RCT participants (the data files will not be part of the STTR integrated data).

This study is part of the Seek, Test, Treat and Retain (STTR) Collaboration Project that involved over twenty studies in the fields of HIV and drug abuse. All studies were independently developed, but were chosen for the collaboration because they focused on one or more steps of the HIV treatment cascade: Seek, Test, Treat and Retain. As part of STTR Collaboration Project, the studies were grouped into Criminal Justice-related studies and Vulnerable Population-related studies. The data collected by these studies included twelve common domains (e.g., Demographic characteristics, Mental Health) in each of which a shared questionnaire or instrument was taken up by the studies and adapted to fit the study.

The overall aim of the START study is to increase the rate of HIV testing among recently released offender populations.

CARE-RAPID (RCT)

• This is a pilot randomized study of a computer-assisted program, the Computer Assessment and Risk-Reduction Education--Rapid (CARE-Rapid). CARE-Rapid was used as means of educating offenders leaving jails about the risk of HIV and gaining their consent for an HIV test. The sample consisted of offenders discharged from jails within the past 90 days and entering a residential substance abuse treatment program. The study used an intent-to-treatment design with random assignment to a CARE-Rapid and a treatment-as-usual (TAU) condition. The outcome of interest was whether participants got an HIV test at admission to the treatment program. Participants were followed-up with at 3 months after baseline. CARE-RAPID was conducted at Samaritan Village Inc, a residential substance abuse treatment center, and includes individuals discharged from Riker's Island or Nassau County Jail.

Project START (Quasi-experimental study)

• Project START is a quasi-experimental pilot study to evaluate the efficacy of Project START, a manualized intervention focusing on reducing risk for HIV. Project START consisted of two sessions in jail and four sessions during the first three months after discharge from a facility for offenders serving one year or less. The intervention was administered by Exponents, not-for-profit organization that offers a number of services, including outpatient substance abuse treatment. All Project START subjects were offered an HIV test and pre- and post-test counseling on their arrival at Exponents post-discharge from Rikers Island. Participants in Project Start were compared to the experimental arm from CARE-RAPID.

Qualitative Interviews

• Qualitative interviews were conducted to gain a better understanding of those aspects of the offender's perceptions and circumstances that facilitate or hinder taking an HIV test. Interviews were with offenders who have been released from New York City and Nassau County Jails in the 90-days prior to entering Exponents for treatment.

The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers, and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause.

The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 1996 and 1997, 3,302 participants joined SWAN through 7 designated research centers. The research centers are located in the following communities: Detroit, MI; Boston, MA; Chicago, IL; Oakland and Los Angeles, CA; Newark, NJ; and Pittsburgh, PA. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. This is the next phase of data collection after the original collection of the screening data (ICPSR 4368).

The Study of Women's Health Across the Nation (SWAN) is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause.

The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 1997 and 1999, 2,881 of the 3,302 women that joined SWAN were seen for their first follow-up visit. The research centers are located in the following communities: Detroit, MI; Boston, MA; Chicago, IL; Oakland and Los Angeles, CA; Newark, NJ; and Pittsburgh, PA. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.

The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers, and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information.

The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 1999 and 2001, 2,710 of the 3,302 women that joined SWAN were seen for their third follow-up visit. The research centers are located in the following communities: Detroit, Michigan; Boston, Massachusetts; Chicago, Illinois; Oakland and Los Angeles, California; Newark, New Jersey; and Pittsburgh, Pennsylvania. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.

The Study of Women's Health Across the Nation (SWAN) is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause.

The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 2000 and 2002, 2,679 of the 3,302 women that joined SWAN were seen for their second follow-up visit. The research centers are located in the following communities: Boston, Massachusetts, Pittsburgh, Pennsylvania, Oakland and Los Angeles, California, Detroit, Michigan, Newark, New Jersey and Chicago, Illinois. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.

This study is part of the Seek, Test, Treat and Retain (STTR) Collaboration Project that involved over twenty studies in the fields of HIV and drug abuse. All studies were independently developed, but were chosen for the collaboration because they focused on one or more steps of the HIV treatment cascade: Seek, Test, Treat and Retain. As part of STTR Collaboration Project, the studies were grouped into Criminal Justice-related studies and Vulnerable Population-related studies. The data collected by these studies included twelve common domains (e.g., Demographic characteristics, Mental Health) in each of which a shared questionnaire or instrument was taken up by the studies and adapted to fit the study.

The Testing & Linkage to Care 'TLC_IDU' study aimed to integrate STTR elements to the base Government of Kenya (GoK) program, including rapid CD4 cell count testing, ART treatment support using peer case support, and evaluation of community viral load. TLC_IDU addressed a most at-risk population (MARP) by focusing on Nairobi and coastal Mombasa (including Malindi), where most injecting drug users (IDU) in Kenya reside. Data was collected at baseline and at five semi-annual follow-ups.

The Youth Development Study (YDS) was initiated as a school-based study of adolescent children and their parents to examine the consequences of formative experiences in adolescence for mental health, value formation, educational achievement, and multiple facets of behavioral adjustment. Particular attention was directed to the impacts of early work experience. Data were also obtained about parent-child and peer relationships and experiences in school. As the study continued, the focus shifted to adult development and attainment and, most recently, mid-life adjustment and health. This comprehensive longitudinal study now encompasses three generations: the initial cohort studied from adolescence to mid-life (G2), their parents (G1), and their adolescent children (G3). Data from three generations in the same families enable study of intergenerational relationships and differences in the experience of adolescence and transition to adulthood across parent and child cohorts. The YDS covers a wide range of topics of interest to sociologists, social psychologists, developmental psychologists, and life course scholars, including the development and impacts of agentic resources, socioeconomic attainment, processes of inter- and intra-generational mobility, objective and subjective work conditions, family relationships, intergenerational relationships, mental and physical health, and well-being.

In-school administration of paper surveys during the first four years of the study was supplemented by mailed surveys. Subsequent data collection took place entirely by mail, with 19 surveys conducted between 1988 and 2011. A final survey was conducted on-line in 2019. Survey data was obtained from the parents (G1) of this cohort during the first and fourth waves of the study (1988 and 1991). Surveys of the children (G3) began in 2009, continued in 2010 and 2011 (by mail) and in 2019-2020 (online).

The Youth Development Study measures a wide range of formative experiences and both psychological and behavioral variables, using survey methodology.

The G1 surveys obtained information about socioeconomic background as well as attitudes toward teenage employment, the parents' own employment as teenagers, their current work experiences, and educational expectations for their children.

The G2 surveys during the high school years included detailed questions about students' work and volunteer experiences, as well as experiences in their family, school, and peer groups, with an emphasis on the ways that working affected other life domains, mental health, and well-being. Shorter surveys containing many of the same topics were administered to students in 1992, 1993, and 1994, and included questions about current family and living arrangements. In 1995, a full survey was administered covering the wide range of topics included in previous surveys as well as information about career plans and life events that had occurred in the past five years. G2 Waves 9 through 19 (1997-2011) included many of the same questions contained in earlier surveys and additional sections that focused on the respondents' educational experiences, family relationships, sources of living expenses, and health and well-being. The most recent G2 survey (2019), administered on-line, included questions about support of aging parents. The YDS is unique in its coverage of both objective and subjective work experiences from adolescence to mid-life.

The topics covered by the G3 surveys are very similar to the G2 variables described above. Variables in each G2 and G3 wave are included in cross-wave codebooks, available at the Data Archive Codebook website.

For an overview of the Youth Development Study, see Mortimer, Jeylan T. (2012) "The Evolution, Contributions, and Prospects of the Youth Development Study: An Investigation in Life Course Social Psychology." Social Psychology Quarterly 75(1, March):5-27.