Showing 1 – 3 of 3 results.
Curated
Positive Connections: Connecting HIV-Infected Patients to Care, 2004-2006 [United States] (ICPSR 22482)
Released/updated on: 2010-06-16
Geographic coverage: United States, New England
Time period: 2004-01-01--2006-01-01
The research study Positive Connections tested the Health Systems Navigation (HSN) model, an intervention linking near-peer interventionists with underserved HIV-infected individuals to assist them to become engaged and retained in HIV medical care through supportive services and facilitated referrals. Working with a core group of local AIDS service organizations to identify unstable and out-of-care HIV-positive individuals, the HSN will enroll and provide health system navigation to participants. The principal goal was to enhance the probability that individuals from historically underserved populations would become engaged and retained in high quality, culturally competent HIV care. The theoretical basis for this intervention included individual behavior change models, social and community networks, and provider cultural competence. This project also sought to improve the understanding and the measurement of health care access problems by seeking to determine which problems have indicators and which do not, and to identify steps that can be taken to develop a reliable access monitoring system. The concept of Health Systems Navigator has been developed by the Multicultural AIDS Coalition.
Curated
Retention Challenges for HIV-Infected Primary Care Patients 2001-2004 [United States] (ICPSR 22220)
Released/updated on: 2010-08-30
Geographic coverage: Vermont, Rhode Island, United States, Massachusetts, Maine, Connecticut, New Hampshire
Time period: 2001-01-01--2004-01-01
This project examined HIV-infected patients who were lost to follow-up during calendar years 2001-2004 in order to identify reasons patients were leaving care. Sustaining and retaining HIV-infected patients in care has been a consistent challenge to primary care health systems. Continuity, enhancing wellness, and patient engagement are long-term goals in primary care. Factors that influence clients to disengage from care frequently result in patterns of episodic utilization that may compromise the patient's health status and increase their psychosocial vulnerability. The standard of care suggests that HIV-infected patients return for medical follow-up primary care visits four times a year. Since 2001, there have been over 495 patients that have been determined inactive. The project administered telephone and mail surveys to HIV-infected patients that no longer receive care at Fenway Health Center. The survey includes demographic questions, insurance questions, potential reasons for stopping care, and whether the participant is receiving care at another facility. Subsequently, the project connected interviewees into the Health System Navigation (HSN) Project to assist them with seeking HIV medical care. This was accomplished by including prescreener questions in the survey. If a patient is determined to be eligible, they will be invited to participate in the HSN Project.
Curated
United States Hospital AIDS/HIV and Pediatric AIDS/HIV Care Survey, 1988, 1989, AND 1991 (ICPSR 6455)
Released/updated on: 2006-01-12
Geographic coverage: United States
The purpose of this study was to obtain information on hospital-based treatment of persons with Acquired Immune Deficiency Syndrome (AIDS) and other Human Immunodeficiency Virus (HIV)-related illnesses. Aggregate data were obtained from each surveyed hospital, with the hospital as the unit of observation. Topics covered included patient demographics, service volume and structure, sources of payment, and types of services and treatments rendered. Information was also solicited on inpatient and outpatient AIDS/HIV hospital utilization, patient discharge disposition and likely mode of exposure, hospital community AIDS/HIV education programs, and policies for the treatment of AIDS/HIV patients, for employees with AIDS/HIV, and for the confidentiality of AIDS/HIV patients. Additionally, hospital administrators were queried about monitoring and tracking of outpatient services and the existence of special hospital-operated AIDS/HIV outpatient clinics. Financial characteristics covered included net revenues, costs, and charges for inpatient and outpatient AIDS/HIV services, payer source, and methods used to determine costs. In 1989 and 1991, separate data were obtained for pediatric AIDS/HIV patients.